Bloomberg Businessweek

How Much Is a Miracle Worth?

• New one-shot medicines could eliminate years of costly care

• “So $1 million upfront…that’s not much, if they’re healed for life”

Sofia Priebe, 14, is slowly going blind. Her parents were devastated when they were told there’s no treatment for the genetic mutation that’s causing her retinas to deteriorate. For the dozen years since Sofia received that diagnosis, her mother has lived every parent’s nightmare—being powerless to help her suffering child.

Now a gene therapy for a similar form of blindness is expected to receive U.S. Food and Drug Administration approval this year, and Laura Manfre, Sofia’s mom, is holding out hope that her daughter may soon get treatment as well. “We don’t really care what it costs,” she says.

But how much is a miracle really worth? A million dollars? Five million? More? And who will pay and

You're reading a preview, sign up to read more.

More from Bloomberg Businessweek

Bloomberg Businessweek5 min read
How to Save A Network
On a Saturday night in July in Salinas, Calif., officer Cameron Mitchell began pursuing a suspected stolen car. As a couple million TV viewers watched at home, Mitchell chased the vehicle over curbs and through crowded intersections. He attempted wha
Bloomberg Businessweek2 min read
An Old Company Buys New Tricks to Spur Growth
Parker-Hannifin Corp., maker of motion-control technology for planes and factories, isn’t a household name. But at $20 billion, its market value is bigger than that of Nordstrom, Harley-Davidson, and TripAdvisor combined. Founded in 1917 in Cleveland
Bloomberg Businessweek3 min readTech
A Bicycle Built for Many
Swapfiets aims to take its Amsterdam rental/repair business into every city with a bike rack