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So Lucky: A Novel
So Lucky: A Novel
So Lucky: A Novel
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So Lucky: A Novel

Rating: 3.5 out of 5 stars

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From the author of Hild, a fierce and urgent autobiographical novel about a woman facing down a formidable foe

So Lucky
is the sharp, surprising new novel by Nicola Griffith—the profoundly personal and emphatically political story of a confident woman forced to confront an unnerving new reality when in the space of a single week her wife leaves her and she is diagnosed with multiple sclerosis.

Mara Tagarelli is, professionally, the head of a multimillion-dollar AIDS foundation; personally, she is a committed martial artist. But her life has turned inside out like a sock. She can’t rely on family, her body is letting her down, and friends and colleagues are turning away—they treat her like a victim. She needs to break that narrative: build her own community, learn new strengths, and fight. But what do you do when you find out that the story you’ve been told, the story you’ve told yourself, is not true? How can you fight if you can’t trust your body? Who can you rely on if those around you don’t have your best interests at heart, and the systems designed to help do more harm than good? Mara makes a decision and acts, but her actions unleash monsters aimed squarely at the heart of her new community.

This is fiction from the front lines, incandescent and urgent, a narrative juggernaut that rips through sentiment to expose the savagery of America’s treatment of the disabled and chronically ill. But So Lucky also blazes with hope and a ferocious love of self, of the life that becomes possible when we stop believing lies.

LanguageEnglish
Release dateMay 15, 2018
ISBN9780374718343
Author

Nicola Griffith

Nicola Griffith (she/her) is a dual UK/US citizen living in Seattle. She is the author of award-winning novels including Hild and Ammonite, and her shorter work has appeared in Nature, New Scientist, New York Times, etc. She is the founder and co-host of #CripLit, holds a PhD from Anglia Ruskin University, and enjoys a ferocious bout of wheelchair boxing. She is married to novelist and screenwriter Kelley Eskridge.

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Rating: 3.694915271186441 out of 5 stars
3.5/5

59 ratings12 reviews

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  • Rating: 3 out of 5 stars
    3/5
    I listened to this audiobook, narrated by the author, while putting primer on the walls of my new study. I so wanted to love it. The author is self-identified queer, a Seattle-based writer, and the topic is one I care about: encroaching disability and the interpersonal and intrapersonal terrain involved in coming to terms with a serious debilitating illness. Griffith's voice is true, her passion is clear, the insights imbedded throughout are spot on. But as literature, this novel left me wanting. Marra is an Executive Director of a non-profit in Atlanta, an independent soul with martial arts training. However, her wife has just left her and she is exploring a romantic attachment to the woman she thinks of as her best friend. It's not a good time in her life. And one night, as she tries to get some milk from the refrigerator, she falls and experiences the first episode leading to the diagnosis of Multiple Sclerosis. Marra has an angry edge in any case, but her reaction to this new reality is understandably colored by rage, terror, and a bit of paranoia. Has the mailing list she created in association with a newly-founded non-profit established to help folks with disabilities been compromised? And is it being used by a gang of robbers and murderers to prey on the most helpless? Are they coming for her? There is an intriguing mystery built into the novel and for this I give Griffith a nod of appreciation. I want to recommend it because I do think everyone -- everyone -- should learn from its lessons about persons with disability living in our society. It took fewer than five hours to listen and the narration is excellent. Got a room to which primer needs application? This served as a good distraction.
  • Rating: 4 out of 5 stars
    4/5
    A novel that hits very close to where I am. A book that shows how life changing the diagnosis of a terrible disease can be, affecting all parts of a life. Mara, who works for a non profit, is dignosed withMS, after an unexplained fall. Her emotions and her life are in free fall. She is angry, bitter and not easy to be around. The treatments make her ill, and are often worse than the disease. She needs to find a new way forward. It will not be easy.It is at times hard to like Mara, her abrasiveness, bitterness can be off putting, but it is realistic and honest. I can relate since I too have MS as does the author. These are authentic feelings, and it takes a while to adjust to having a life altering disease that has very little in the way of effective treatment.So hard for me at times but I knew what the book was about and was curious as to how it would be handled, written. This part was well done, often reading like a memoir.I went down instead of up in my rating because of an element consisting of some horrfic crimes that were introduced relatively late in the book. While I understand what these crimes were meant to show, I felt that there was not enough of the book to build up the intensity, nor fully explore the subject. This part felt very rushed. Definitely worth reading for it's realistic portrayal of a woman whose whole way of life as well of her sense of identity is in peril. ARC from Netgalley.
  • Rating: 4 out of 5 stars
    4/5
    The recommendation I saw portrayed this novel as a "tense psychological thriller", but don't read it for that. Rather read it for the sense of what it might be like to be to have a chronic disease and be disabled. The feeling of helplessness and self-loathing and unimportance is well written along with the anger and desire to not be seen as a victim. The glimpse inside non-profits and fund-raising is interesting. Short book, well worth the time to encounter a different perspective.
  • Rating: 3 out of 5 stars
    3/5
    2019 TOB--I didn't like this book. Didn't like the main character and all her anger and righteousness. If you by some chance have MS, do not read this book--it would not be helpful--in my opinion.
  • Rating: 4 out of 5 stars
    4/5
    There was something about the writing here that I didn't find wholly convincing. Perhaps it was a little too autobiographical for fiction, a little too angry when it might have been better served by some dispassion. The off-screen murders and creeping sense that the narrator may be involved never really intrude... and yet... there is an urgency and a righteous anger and a fiery sense of self that comes from these pages. The loss of control that comes with illness. The loss of dignity and the look in other people's eyes, that's what works here and it is gut-wrenching. Not perfect by any stretch, but vital and worthy in all the right ways.
  • Rating: 5 out of 5 stars
    5/5
    This short, compelling novel is a window in to the experience of being diagnosed with MS/becoming disabled. It's not a fun journey but I know, given the author's experience, that it is a realistic one. It'd an important viewpoint and an important contribution to literature.Also, like everything Griffith writes, it's beautifully written. Each word is carefully chosen. An engrossing and quick read.
  • Rating: 5 out of 5 stars
    5/5
    A novella about grief and despair (what a relevant theme these days) but mostly about coming to terms with disability and illness after an MS diagnosis, it also manages to be the epitome of a taut psychological thriller in very little space. Astonishing, emotional, and unexpectedly compelling.
  • Rating: 5 out of 5 stars
    5/5
    This is a fast but engrossing read which does a better job than anything else I’ve read for giving an idea of what life is like with a disease like MS, not to mention a welcome reminder of how bad well-meaning words or actions might feel.
  • Rating: 3 out of 5 stars
    3/5
    Mara has a great life. She's in a relationship and they live in a cute condo. Her job with a large AIDS non-profit gives her recognition and challenges and she's passionate about martial arts. Then, in a few days, it all collapses. Her partner leaves her for another woman and then she is diagnosed with multiple sclerosis (MS), an unpredictable and disabling disease, which progresses rapidly, exhausting her, rendering her unable of continuing with the physical activity she loves. She loses her job and is quickly isolated, home alone, but also isolated by the distance that people put between themselves and the disabled. In So Lucky, Nicola Griffith takes a strong, focused and self-focused woman and shows what becoming disabled does to a person. Mara is a fighter, and she's quick to turn her attention and experience to helping ms patients advocate for themselves by starting her own non-profit organization. But this is not, despite the title, an inspiring book about a woman who overcomes odds or who learns acceptance. Mara is angry and her rage, which is open and uncontrolled, is an impressive thing. I'm used to men's rage. There are entire movie franchises and book series based on a man's rage at an injustice done to a woman he fancies, but here is a woman angry about what has happened to her and not about to sit home and suffer quietly. So Lucky not a comfortable book to read, nor is it a perfect book, but it is a worthwhile book.

    1 person found this helpful

  • Rating: 3 out of 5 stars
    3/5
    Seemingly inspired by many things in the author's life, this swift little book seems too odd to truly get to the heart of the book, people with Multiple Sclerosis, as the focus becomes the main character losing reality a bit. And the story is also too brief to really get to the heart of the difficulties I can only imagine that the author and main character has faced. Even the main character instantly receiving a diagnosis of MS happens so quickly! In real life, I'm sure it takes months to diagnose ANYTHING. It's a quick little book but I'm sure it was an important project to have a book focus on MS and at least it now exists for the sufferers of MS.**Morning News Tournament of Books #113
  • Rating: 4 out of 5 stars
    4/5
    Naked and raw. Well worth the read.
  • Rating: 1 out of 5 stars
    1/5
    This book is probably genius for some but it sure was not for me. I read it to the end hoping I would catch on to whatever I was supposed to and I never ever did. Oh well.

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So Lucky - Nicola Griffith

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Table of Contents

A Note About the Author

Copyright Page

The author and publisher have provided this e-book to you for your personal use only. You may not make this e-book publicly available in any way. Copyright infringement is against the law. If you believe the copy of this e-book you are reading infringes on the author’s copyright, please notify the publisher at: us.macmillanusa.com/piracy.

For Kelley, partner in all things

It came for me in November, that loveliest of months in Atlanta: blue sky stinging with lemon sun, and squirrels screaming at each other over the pecans because they weren’t fooled; they knew winter was coming. While Rose stood by her Subaru, irresolute, a large red-brown dogwood leaf—the same color as her hair—fell on its roof. She hated the mess of leaf fall, had threatened over the years to cut that damned tree down. Too late now.

Mara? she said. Are you sure it’s all right?

After fourteen years of course it wasn’t all right, but, Yes, I said, because she would leave anyway.

The shadows under her eyes, the tiny tight lines by her mouth, nearly broke my heart. I hoped the lover whose name I knew perfectly well but refused to use would know what to do when those lines crinkled down like concertinas, as they were doing now.

You should get going, I said, before she could cry. Traffic.

She shook her head, slow and baffled: How did we get to this?

I turned away. And tripped. A slippery leaf, I thought, if I thought anything at all. A twig. Or that uneven bit of concrete we really should fix. But it wasn’t we anymore. It was just me.

*   *   *

AIYANA SAT, AS SHE ALWAYS DID, with her feet tucked under her and her close-cropped head dark against the far end of the sofa. I sat catty-corner in the armchair. The physical distance between us was a habit developed four years ago when, one summer evening in a bar after a softball game, sexual awareness unfurled between us. We never spoke of it but we knew that to come within the orbit of each other’s skin-scent and cellular hum could end only one way: falling helplessly, spectacularly into the other’s gravity well, momentarily brilliant like all falling stars, but doomed, because I loved Rose. And this friendship was too precious to burn.

The day had been warm enough for the end of summer, but the sun still set at November times. At twilight I opened the windows and cool air began to move through the house. The dark was not close and scented with humidity, not sappy with bright greens and hot pinks, but spare and smelling as brittle as the straw-colored winter lawn.

Aiyana turned her glass of Pinot, playing with the refraction of the floor lamp’s low light. So. She really left.

She really did.

Her eyes were velvety but she said nothing because she was leaving, too. Two days before Rose asked for a divorce, Aiyana won funding for postdoc research at the University of Auckland’s Douglas Human Brain Bank.

You’ve booked your flight?

She closed her eyes slowly, the way she said yes when not trusting herself to speak.

When do you leave?

Two and a half weeks.

Two and a half weeks. No Rose, no Aiyana. I need more wine.

In the kitchen I reached for the second bottle of Pinot already on the counter but then thought, Fuck it, and opened the wine fridge for the Barolo. My hand tingled and I shook it. Static maybe.

When I brought through the wine with fresh glasses she raised her eyebrows.

If not now, then when? I had been saving it for a fifteenth anniversary that would never come. I knelt by the coffee table. The cork made a satisfying thock, like the sound of summer tennis. I poured; it smelled of sun-baked dirt. I handed her a glass.

Perhaps because Rose was gone, or Aiyana was leaving, too, which made it safe, or maybe it was the smell of the wine or just that we wanted it that way, our fingertips touched and my belly dropped, and now the music seemed to deepen and the air thicken to cream. Her nostrils flared. We were caught.

Her feet were the color of polished maple, perfect, not like mine, not hard from years of karate. They needed to be touched. I needed to touch them. She sat still, wineglass in her hand, while I bent and brushed the side of one foot with one cheek, then the other. Under the soft, soft skin, tendon and bone flexed like steel hawsers as her toes curled and uncurled. I stroked the foot. I wanted to kiss it.

Her eyes were almost wholly black, fringed with dark-brown pleats. I kept stroking. She closed them slowly. I took the wineglass from her hand and put it on the table.

Our breath was fast, harsh, mutual. My cheek where it had touched her felt more alive than the rest of me and all I could think was how it would feel to lay my whole length against hers. So I did.

*   *   *

JOSH NEXT DOOR had forgotten to turn off his porch light again and through my bedroom window a slice of light curved over Aiyana’s forehead, cheek, and chin. A face familiar from sweaty afternoons playing softball, drinking beer afterward, and sometimes coffee at the Flying Biscuit. But strange here. Nothing like the face I was used to seeing on that pillow.

What?

She didn’t smell like Rose, either. I slid an arm over her belly, breathed her in, then drew back and began to stroke in lazy circles. Are you still going to Greensboro first? Her grandmother lived there. Nana was old enough to be her great-grandmother, and to a woman of that generation, a granddaughter leaving for New Zealand was goodbye, a one-way trip.

I can’t think when you do that.

Are you?

In ten days.

I dipped my finger into her belly button, in and out. Will you come back?

It’s just Greensboro, babe.

I butted her arm. From New Zealand. The fellowship was for one year, extensible to two on mutual approval.

She arched so that her belly pushed into my hand and her head moved deeper into the pillow, and shadow. Give me some incentive.

*   *   *

ROSE AND I HAD FALLEN INTO BED, fallen in love, fallen into a life together with no pause for assessment, no hesitation. This was different. Aiyana and I already had a years-long friendship, an established relationship as separate individuals, not partners. The next week was full of missteps and surprises. We would stop, confused, in the middle of conversations, when I treated her as a partner of fourteen years or she treated me as a friend. I called her Rose, once, in bed; and on Saturday, when I suggested a special meal for two—one I’d already shopped for—it turned out she had plans for the afternoon and evening she hadn’t thought to tell me about. Our schedules did not help: twelve-hour days for me at work—it was budget season—and Aiyana packing and wrapping up her life to move to the other side of the world. We talked briefly about trying to reschedule one or both of her flights so she had more than twenty-four hours in Atlanta when she got back from Greensboro, but her grandmother did not like her plans upset, and the Air New Zealand change fees were obscene.

Her flight to Greensboro was on a Monday, mid-morning, so I couldn’t drive her to the airport. We said goodbye the night before; at work the next day two people remarked that I seemed to be in a good mood. Perhaps I was relieved to be on my own for a while; I wondered if she was, too, and immediately started missing her.

She had been in Greensboro two days when I got up from the too-big bed, sleepless, and went into the kitchen to make cocoa. I didn’t turn on the lights. The white tile was shadowy under my bare feet, and hard against the calluses formed by kicking boards and punchbags. I opened the fridge, pulled out the milk, pushed the door closed, remembered I needed the cream too, and pivoted. A movement made a hundred times before, a thousand, ten thousand, except this time, instead of muscle and nerve performing their everyday miracle of coordination, I tilted to my right and started to fall. I tried to compensate, putting out my right leg, only it didn’t move, and I kept going down, and now my temple was grazing the handle of the fridge, and the milk was flying out of my hand, and I was lying in the dark, half on my back, half on my side, naked and wet, and thinking, What? What?

*   *   *

THE NEUROLOGIST SAID: IT’S MULTIPLE SCLEROSIS.

Multiple sclerosis. Crippler of young adults, the actor says, looking earnestly into the camera. Give generously. Help us fight this terrible disease. Multiple sclerosis.

There’s a lot we can do these—

I shook my head. She stopped. I could imagine how I might look: the eyes-like-burnt-holes-in-a-paper-bag shock I had seen every day when I first became an HIV and AIDS counselor. From now on you are different. Diagnosis as death sentence. Doctor as priest. She stood next to me, holding out a paper cup of water. I sipped obediently, stared at the name embroidered in red on her white coat, Marie Liang, PhD, MD. I blinked, tried to make myself concentrate. The tests are conclusive?

She turned the screen so I could see the MRI images. Pointed to pictures of my spine. Three lesions on the spine, here, here, and here. This one is very large. She clicked through to pictures of my brain. I could see my eyeballs, like boiled eggs. A possible plaque on the left parietal lobe.

Parietal lobe. I felt slow and stupid.

The left parietal is responsible for speech, words. And your balance and coordination. Your optic nerve is fine. And your hearing. She sounded brisk, but very far away. It is likely that you have relapsing-remitting MS. Exacerbated by stress.

She looked at me, waiting for questions, comments. Stress. My wife had left me. I had a hard job, always harder at this time of year, putting the budget together. When will I get better? What about work?

She glanced discreetly at my notes.

I’m the executive director at Wynde House. GAP. I could not tell if she recognized the name or not. The Georgia AIDS Partnership.

She kept looking at her notes, evidently found the relevant line, under Employment. Now that I had lesions on the brain, was I an unreliable source? Fatigue may be a problem, she said. Particularly during exacerbations. Do try to rest for the next few days.

We were at the height of our budget cycle. There was no rest. I hadn’t even been to the dojo for three weeks. What about exercise?

Some people find yoga helpful. I believe the MS Society runs a class.

Yoga. Chanting and crystals and goodwill to all men. I’d rather hit things.

Read the literature I gave you. Next week we’ll talk about therapies.

*   *   *

THE SUN WAS BRIGHT, but glittery now rather than hot, and most of the riders on the MARTA train wore light sweaters. Two tourists were in T-shirts. I downloaded a cheap book on MS. Average lifespan following diagnosis of the disease is thirty years. But Average lifespan of sufferers can be up to 85 percent of normal. Weasel words. I

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