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Carole
Edelsky
T. J. Rosegrant
Language
Mainstreamed
Handicapped
Development
for
Severely
Non-Verbal
Children
The 1975 passing of Public Law 94.142, the Education forAll Handicapped Children
Act, declared that an estimated 7-8 million handicapped children had the rightto
free,appropriate education. By law the states were given a two-yeargrace period to
plan for the education of handicapped children with a full obligation to meet the
educational needs of childrenfromthreeto eighteen years of age by the Fall of 1978.
The term "handicapped children" referredto mentally retarded, hard of hearing,
deaf, speech impaired, visually or health impaired children, or children with
specific learning disabilities, who by reason thereofrequire special education and
service (P.L. 94.142). Yet in 1980 it is apparent that states are at widely varying
stages of compliance. The difficultyin implementationprobably stems frominsufficient funds, programs,policies, materials, stafftraining,and related servcies.
Basic to P.L. 94.142 is a right to education, which requires schools to find,
locate, and evaluate every handicapped child ages three to twenty-one.School personnel, along with parents, are required to plan an Individualized Education Program for each handicapped child, which includes regular and special education
services. Parents are guaranteed involvement in I.E.P.'s and are to be given due
process if their child's rightsare not observed by the school district.Handicapped
students are to receive placement according to the least restrictivealternative.This
means that these children are to be educated with their non-handicapped peers, or
placed in a programout of the "mainstream" only if it is deemed more appropriate.
Testing and evaluation must be based on multiple criteria,be culturallyindiscriminatory, be in the child's primary language, and include multiple testing approaches. For fiscalyear 1979 the federalappropriations relatingto P.L. 94.142 were
approximately804 million dollars (Sunderlin 1979).
Under the "handicapped" umbrella term a wide range of differenttypes of
68
"special needs" children is evident. For many of the subpopulations (e.g., retarded,
deaf, blind, learning disabled, aphasie), research, programsfortraining,and materials exist to help guide the classroom teacher and clinicians primarilyconcerned
with the language development of these children. Although much of this guiding
"support" is neither specific to mainstreamed classrooms nor theoretically
grounded in the most currentviewpoints regardingthe nature of language, at least
it exists. There is scarcelyany such support, however, forthose who work with one
sub-population of children: children with severe and multiple physical handicaps,
seemingly of average intelligence, and with attendant productive language disabilities (forexample, cerebral palsy).
With an increasing number of severely handicapped children in regularclassrooms, disparities are found between what is needed and what exists. Those of us
concerned with the development of language and language-relatedprocesses forall
children in regular classrooms have much to seriously consider. The overall concern, of course, is what would promote language development for these multiple
handicapped youngsters when mainstreamed. In other words, what are the legal
and professional obligations incurred by the phrase "least restrictiveenvironment"?
Broadly,we take "least restrictive"to mean "most conducive" to enhancing a
child's language development in the "most similar-to-real-worldcontexts." We believe this is our legal obligation, the intentof the law (Sunderlin 1979). More important, however, is our contentionthat our firstobligation as professionals is a negative one: to make certainthat we do not create more restrictiveenvironments.
On the one hand, there are tangential research findings to suggest that some
language environmentsmay be more restrictive(and therefore,possibly damaging)
forlanguage development. We are referringhere to findings on the deviant nature
of child-parentlanguage interactionswith already language disabled children (de
Villiers and de Villiers 1978), and on the problems in transferability
and authenticof
the
of
small
bits
of
some
of
ity
"learning"
sub-groups handicapped
language by
children under conditions of imitation and reward (Cohen and Plaskon 1978). On
the other hand, there is neither research establishing the longitudinal differential
effectivenessof language development programs forthese children (Menyuk 1975),
nor research on language acquisition in this population to conclusively indicate
what would be the least restrictiveenvironment. In a recent review of child language disabilities by well respected psycholinguistic researchers (deVilliers and
deVilliers 1978) there was not a mention of these children (cerebral palsy, non verbal). Clearly more research is needed. At this point, however, since we cannot be
guided by conclusive research, we have placed our confidence in educational linguistic theory, tempered by observation and experience with a group of six to
twelve-year-oldcerebral palsied children. That confidence leads us to propose certain principles to be considered in planning least restrictivelanguage development
environmentsfor these multiply handicapped children. The principles will most
likely be familiarto many readers of Language Arts, since they also referto good
language arts environments for "normal" youngsters. They have special significance and implications, however, for these children with extraordinarilyspecial
needs.
Language Development forMainstreamed Non-Verbal Children
69
Language Arts
71
Language Arts
lack of resources). Once a week, your fatherworks in the garden and takes you
outside with him for your one regular, other-than-maintenanceweekly activity.
How high would that garden be on your interestscale? A wise programdeveloper
would incorporate gardens as a topic into materials designed for you. Unfortunately, developers of published materials don't know about your garden, or about
the personal histories of other individuals. Programs prepared formass use, therefore,may be inadequate forthis population.
Appropriate sequencing means that programs,materials,and activitiesshould
be used flexibly. Sequences in language-process programs tend to be based on
adult logic ratherthan child strategies(Cazden 1972). Moreover, recentresearch on
writing(Graves 1980), on reading (Smith 1978), and on language acquisition processes (Lindfors 1980) discredits notions of qualitatively differentstages in the development of these processes. Therefore,though carefullysequenced programsmay
seem logicallynecessary fromthe adult viewpoint, theymay not be necessary- and
- fromthe viewpoint of the individual learnerwho
may even be counter-productive
has little energy to expend on sub-steps irrelevantto his/herparticular learning
strategies. Again, an example featuringa cerebral palsied child: Daniel "writes"
(dictates, by means of pointing to words on a communicationboard) ingenious and
complex stories. He does this by firstidentifyingkey words and then going back
and fillingin most functors,descriptors,and so on. His teacher,however, is slowly
teaching him how to compose in the "right" sequence, by dictatingfull sentences
in linear order. Daniel is learning. His stories are becoming dull, short,correct,and
minus any characteridentifiableas Daniel.
AppropriateTechnology
Classrooms that promote language development for multiply physically handicapped children must also have what is not yet available- workable, theoretically
sound technologyto make language production easier and faster(it can take a child
a half hour to literallyuse his/herhead to point out the words forone sentence with
a headstick on a communication board). Technology to make reception easier (for
example, silent reading, listening to read-aloud stories) could be supplied by
people with or without tape recorders or by automatic page-turning machines.
Technology for production, however, has not yet been developed. Two-feet wide
communication boards are unwieldy and taxing, and thus create more ratherthan
less restrictiveenvironments. The 200 words supplied by the board might be increased in number and put onto a computer programthat could be scanned at the
direction of a child-controlled light. The decrease in physical effortdemanded
would still not solve the problem of faulty theoretical assumptions underlying
communication boards, however. Language is composed of finitesystems that encode infinite meanings, as knowledgeable teachers know. Word lists constrain
those meanings. Some technological device must be developed that allows forboth
the expenditure of minimal physical effortand the generationof infinitemeanings.
Perhaps some formof computerized light-sensitivetypewritercombined with artificialvoice renditions of typed messages would be an answer. Until some device is
developed for fast and easy communication of basic necessities as well as more
Language Development forMainstreamed Non-Verbal Children
73
complex transactionalto expressive to poetic messages (Britton1978), severelyphysically handicapped non-verbal children will be totallydependent forlanguage production on the knowledge, sensitivity,and patience of people around them.
Adequate Assessment
This is not easily attained. In fact, because of the difficultiesinvolved in testing
non-verbal, motoricallyimpaired children, satisfactoryassessment has not yet been
achieved even by researchers with few subjects and no school districtand classroom demands to meet. Still, certain issues must be considered as we attemptto
improve means of assessment. At the least, we must begin to devise experience-fair
(not only culture-fair)test items. Testing for knowledge of positional terms (e.g.,
under, beside) or geographic facts(e.g., location of rivers) of childrenwho are rarely
out of a wheelchair, who do no manipulating (e.g., sorting,stacking,building) of
objects, and who have never even been to the grocerystore, let alone on a trip, is
like testingrural Navajo children on formsof underwaterocean life.
When tests are given, physically handicapped children need various forms,
more time, and physical assistance. A few horrible examples: a spina bifida child
who could not "fill in the circle" by herselfwas denied the assistance of an aide
during standardized reading achievement testing because it was feared that the
aide would "cheat" forher; cerebral palsied children with aides to do the marking
have had to meet the same time limits as "normals" even though it takes them a
huge amount of time just to point out one answer with headsticks; a brightnonverbal cerebral palsied boy was assigned no aide during a language arts test and
resortedto a strategyof screamingso his aide could be found. Aftershe arrivedand
calmed him down, she elicited the source of his distress. "They'll thinkI'm stupid,"
he dictated.
Such examples should never occur. Mainstreaming does not mean that all
children must functionin the same way in relation to the same items in the same
period of time. Nor does assessment mean thatwe findout only what childrencan't
do in order to startfromdeficits.Assessment could just as well mean observations
and other means of finding out what children can do in order to expand on
abilities. The severely physicallyhandicapped children we have seen have a sense
of humor (both receptivelyand productivelyin "dictation"), use metaphors, and
invent ways to overcome the constraints imposed by 200-word communication
boards. Flexible and sensitive means must also be devised to assess language comprehension, since production and receptionwill be verydifferentin these children.
Surely, what we have seen, composition-in-actionor even finished products,
could be used to assess production as well as development if assessment did not
have to be standardized and norm-referenced.
Sophisticated Notions of Individualization
The preceding discussion of assessment is also clearly related to our position here
that notions of individualizing must reflectthe diversityrepresentedby real people
in real classrooms. Too often, individualization means simply alteringthe rate of
74
Language Arts
progressionthrougha program. We are referringto individualization at the physical, cognitive, and affectivelevels.
Physically,individualization forseverelyhandicapped children means freeing
them as much as possible- providing drinks of water without waiting forsignals,
developing systemssuch as bells sewn on belts or jackets forthe part of theirbodies
over which they have most control(Sadacca 1980) so thatbathroomor help requests
can be easily signalled, applying restrainingdevices for spastic and involuntarily
moving body parts when energy must be focused on a task.
At the cognitive level, individualization means developing activitiesaround a
child's topics of interest,testingchildren in varied ways, and allowing each child's
communication strategiesand intentionsto be the source of curriculum.
Affectively,individualization means explicit attentionto the degree and type
of emotional and social stress a child experiences. Further,it means accommodation
to the way stress interactswith that child's physical and intellectualstates. Some
severely physically handicapped children with no easy outlets for stress suffer
strong physical reaction to excitementof any kind. Often, the reaction produces
fatigue which then interfereswith subsequent activity.Physical and occupational
therapists and teachers will need to work together increasingly in the service of
these children. It is not the case that attentionto the affectiveis merelyhumane or
that time devoted to physical therapyis merelyrecreational.Both are crucial needs
forthis population.
We began by showing the likelihood that regular teachers will be tryingto
"do" language arts in regularclassrooms with most un-regularchildren- those with
severe multiple, physical, and language handicaps. A general lack of preparedness
forthis eventualitywas then discussed. Given the absence of well-developed plans
forenhancing language-related processes in least restrictiveenvironmentsforthese
children,a priorityfordevelopment of such plans must be established. Toward that
end, we proposed six principles that should be considered as these plans are developed. Our principles are stringent,but we believe they are theoreticallygrounded,
coherent,and legally and professionalyjustified. Puttingthem into practice would
- but would reap even greaterrewards.
require great effort
References
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