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BrianaCanterino,BrianaLopresti,AlinoelNavia,MarieOdejar
TABLEOFCONTENTS
BackgroundInformationandCaseHistory
2
Diagnosis
4
DescriptionofImpairment 5
ImpactofHearingLossonCommunicationAbility
AudiologicalIntervention 9
SpecialConsiderations
11
AudiologicalStatusandtheSLP 14
Demographics
15
LawsandRegulations
16
References 22
BACKGROUNDINFORMATIONANDCASEHISTORY
JMisa5year,2montholdboywhoattendsMarieKatzenbachSchoolfortheDeaf
(MKSD)forkindergarten.MedicalhistoryissignificantforthediagnosesofAttentionDeficit
HyperactiveDisorder(ADHD)andaprofoundbilateralsensorineuralhearingloss(SNHL).JM
isfollowedbyaneurologist,audiologist,andallergist.Birthhistoryissignificantforprematurity
and low birth weight, which involved a 9day stay in the Neonatal Intensive Care Unit
(NICU)untilheachievedadequatenutritionalneeds.JMtakesadailymultivitamintoaddress
nutritionaldeficits.
Familyhistoryissignificantformaternalhearingloss.JMsmotherhasaseverebilateral
SNHL.SheisamemberoftheDeafcommunityandisfirmlyagainstthefittingofanassistive
hearingdevice.SheandherhusbandwishtoupholdtheidealsoftheDeafculture.
JMfailedhisNewbornInfantHearingScreeninginbothearsandreceivedafullhearing
evaluation,whichconfirmedhisdiagnosisofabilateralSNHL.JMqualifiedforservicesand
participated in the Early Hearing Detection and Intervention program. Developmental motor
milestoneswerereachedwithinnormallimits;however,speechmilestonesweresignificantly
delayed.SignlanguageisJMsprimarymodeofcommunication.JMsinitialspeechevaluation
revealed a moderatesevere expressive and receptive language disorder. He received speech
therapythroughEarlyInterventionservicesuntilheturnedthreeandwasnolongereligible.The
agencytransitionedhimtoanewspeechtherapist;however,hisparentsdischargedservicesafter
theclinicianstronglyurgedthemtoconsideranassistivehearingdevice.
DIAGNOSIS
PrimaryDiagnosis:ProfoundBilateralSensorineuralHearingLoss(SNHL)
SecondaryDiagnosis:AttentionDeficitHyperactiveDisorder(ADHD)
Accordingtohisprevioushearingassessmentsandcomprehensiveaudiologicevaluation,
JMs primary diagnosis was found to be a profound SNHL. JM was noted as aggressive,
excitable,andfidgety.Hisparentsfirstattributedthesesymptomstobearesultofhishearing
difficulties, but their pediatrician recommended a neurological assessment. JM received a
neurologicalassessmentwhenheturned4,andresultsconfirmedadiagnosisofADHD.Asa
resultofhisprofoundbilateralSNHLandADHDdiagnoses,JMsinterpersonalandacademic
successaresignificantlyimpacted.JMwasrecommendedforaspecializedschoolfortheDeaf
andwassubsequentlyadmittedtoMKSDtomeethisneeds.
DESCRIPTIONOFIMPAIRMENT
JMfailedtheotoacousticemissionsscreeningtesttwiceandwasreferredforanABR,
whichhealsofailed.AnASSRtestprovidedresultsindicatingaseverehearingloss.Further
testingwaswarrantedtoassesshishearingfunction.JMstympanometryresultsreportaTypeA
tympanogram,reflectingappropriatetympanicmembraneandmiddleearfunctioninbothears.
TheaudiogramindicatesaprofoundbilateralSNHLwithhishearingthresholdatabout90dB
HL.
Through these various assessments, JM was confirmed to have a profound bilateral
SNHL.Theaudiogramindicatesaprofoundhearinglossduetohishearingthresholdbeingabout
90dBHLforbothears.Hishearinglosswasfurtherdiagnosedassensorineuralduetothe
absence of an airbone gap; there was no difference between the air conduction and bone
conductionthresholds.Furthermore,aconductivepathologyastheetiologyofJMshearingloss
wasruledout.ThiswasdeterminedbynormalTypeAtympanometryresults,whichindicates
normalmiddleearfunction. InaTypeAtympanogram,peakcomplianceoccursatornear
atmosphericpressure.Themiddleearsystemisfreeoffluidorphysiologicalanomaliesthat
wouldpreventtheadmittanceofsoundfromthemiddleearintothecochlea. Asaresult,the
problemliesonlywithintheinnerear,whichissupportedbythelackofairbonegapinthe
audiogramresults.
In order to understand the impact of his profound loss in regards to language and
communication,JMwasalsoassessedforhisspeechrecognitionthresholds(SRT).TheSRTis
theminimumhearinglevelforspeechatwhichanindividualcanrecognize50%ofthespeech
material.However,duetotheseverityofhishearingloss,anSRTcouldnotbedetermined.
IMPACTOFHEARINGLOSSONCOMMUNICATIONABILITY
DifficultiesthatJMexperiencesasaresultofabilateralsevereSNHLinclude:
Theinabilitytousereceptivelanguage/processauditoryinformation.
Theinabilitytohearspeechsounds.
Theinabilitytouseexpressivespokenlanguage.
Challengesinteractingwithothersinplacesofdailyliving(grocerystore,playground,
shoppingmall,etc).
Reducedcommunicativeinteractionswithpeershisage.
Difficultywithexpressinghisgeneralwantsandneedsthroughsign.
Makingfriends/havingplaydates.
Inappropriatebehaviors/impulsivity.
Unintelligiblevocalizations.
SignificantlydelayedskillsinASL(signingata24yearoldlevel).
ThefollowingtoolswillbeusedtocollectinformationregardingJMscommunicationabilities:
StudentLanguageandCommunicationProfileSummary(GallaudetUniversity,2010)
o
KendallConversationalProficiencyLevel(French,1999):ASL/SpokenEnglish
Completedby:ASLSLPatMKSD,ClassroomTeacher,Parents
FunctionalCommunicationProfile(FCPR)(Kleiman,2003)
o
Completedthroughparentreport
BecausesomeofthesubtestsonthistestarenotapplicableforJM(SensoryMotor,
Voice,Fluency,Speech),the ChecklistofEmergingASLSkills wasusedtoobtain
informationregardinghissignuse.
ChecklistofEmergingASLSkills(Easterbrooks&Baker,2002)
Completedthroughparentreport
AUDIOLOGICALINTERVENTION
Surgical interventions were not necessary for JMs diagnosis. However, medical
interventionwasneeded.JMwasprescribedadoseofAdderall(2x/day)inordertomaintainand
regulatehisbehaviorsassociatedwithhisdiagnosisofADHD.
PrevioustherapistshaverecommendedacochlearimplantforJM.However,hisfamilyis
stronglyopposedtothisformofanyinterventioninvolvingassistivetechnology.Inlightofthis
opposition,ourcenterplanstocontinuestrengtheninghissignlanguageskillsashisprimary
formofcommunicationbyreferringouttoanSLPwhoisfluentinASL.JMsparentswere
provided with an audiologist to contact if they decide to explore the use of cochlear
implants.JMsparentsandhisschoolSLPhavedevelopedanopenforumtodiscusstheuseof
assistivehearingtechnologywithoutplacinganypressureintomakingdecisions.
Duetotherejectionofanassistivehearingdevice,therearenospecificfollowupsthat
needtoberoutinelyplacedwithanaudiologist.Thespeechlanguagepathologistandclassroom
teacher should monitor progress of language skills consistently to mark improvements and
mastery.
Thisparticularaudiologicinterventionplanisnottailoredtowardstheuseofanassistive
hearingdevice.Generally,wewouldneedtomakeareferraltoanSLPwhoisfluentinASLto
workwithJMonhisexpressiveandreceptivelanguagedeficitsaswellashissocialpragmatic
skills.SinceJMsparentsareeagertoprovidetheirsonwithasmanyservicesasnecessaryto
facilitateageappropriatecommunicationinsign,werecommendhiringaprivateinstructorwho
iscertifiedtoteachASL.Aprivateinstructorwillbeespeciallyhelpfulinthesummermonthsto
ensurecarryoverandfurthersupplementJMsASLskills.
EastWindsorMedicalCommons
300APrincetonHightstownRd.(Route571)SecondFloor,Suite204
EastWindsor,NJ08520.
Telephone:
6094489730
Website:
horizonaudiology.com
Email:
info@horizonaudiology.com
SPECIALCONSIDERATIONS
JM does not have any physical aspects that inhibit his overall communication and
development. It should be noted that he is extremely physically hyperactive and impulsive,
whichisattributedtohisADHDdiagnosis.
JMs parents have enrolled him in the Little League baseball program at MKSD to
enhance his social growth by increasing communicative opportunities with peers as well as
providehimwithaformofutilizehisenergyinapositivemanner.Hismother,fromexperience,
expressedconcernwithdifficultymakingfriendsandfeelingnormalinpublicplaceswhere
others primarily communicate through speaking. His parents also remain adamant about
abstainingfromassistivetechnology.
Withparentconsent,regularcommunicationbetweenJMsparents,JMs audiologist,
MKSD SLP, and pediatrician will be established. Regular communication between all
individualsinvolvedintreatingJMwillfacilitateastrongerteamapproachintreatment.JMs
previousaudiologicalreportswillberequestedandreviewed.Thiswillenhancecontinuityof
care, provide different professional resources for JM and his family, and offer multiple
perspectivesonJMsprogress.
Additionally,resourcesandreferralsarelistedbelow,includingwebsiteresourcesfor
parentsupportgroups,afamilypsychologist,andconsultationwithaspeechtherapistfluentin
ASL.Potentialsummercampopportunitiesforcontinuityofsocializationduringthesummer
months will also be discussed and recommended. JMs IFSP has provided his family with
adequateresourcesforpeersupport.GivenhismothersstatusintheDeafcommunity,hisfamily
ADDititude,strategiesandsupportforchildrenwithADHD&LD:
http://www.additudemag.com/resourcecenter/adhdparentingskills.html
Fidgets/sensorytoystoregulatebehaviorforathome/school:
http://www.funandfunction.com
GeneralInformationonHearingLossandTreatment(ASHA):
http://www.asha.org/PRPSpecificTopic.aspx?folderid=8589935335§ion=Overview
TheHearingLossAssociationofAmerica(HLAA):http://www.hearingloss.org
HearingLossSupportGroup(DeafLinx):http://www.deaflinx.com/Children/family.html
KarenAnderson(Au.D.,CCCA):Specializesineducationalaudiology,identification
andinterventionofinfantswithhearingloss,servesstudentswhoareDHHandprovides
classroomacoustics.Email:Karen@successforkidswithhearingloss.com.Phone:850
3639909.Website:http://successforkidswithhearingloss.com/about/
TheKnowledgeCenter(AmericanSocietyforDeafChildren):
http://deafchildren.org/knowledgecenter/parentsandfamilies/nowwhat/
LegalResources(Hands&Voices):http://www.handsandvoices.org/resources/docs.htm
ListeningandSpokenLanguageKnowledgeCenter(AlexanderGrahamBell
AssociationfortheDeafandHardofHearing):
http://www.agbell.org/FamilyNeedsAssessment/
SLPfluentinASL:http://www.signingfingers.com/home.html
AUDIOLOGICALSTATUSANDTHESLP
Duetohisaudiologicalstatus,languageassessmentsrequiringverbalinstructionarenot
appropriateforJM.AssessmentsthataccommodateforhishearingstatusandincorporateASL
wereresearchedandimplementedtogainabetterdescriptionofhisfunctionalcommunication.
Hehaslimitedspokenreceptiveandexpressivecapabilities,soanSLPwhoisfluentinASL
mustadministerthetestsanddelivertheinstructions.
Modificationstothephysicallearningenvironmentarerecommendedtoaccommodate
forhisdiagnosisofADHD.ItisimportantthatJMbeseatedinthefrontoftheroomandaway
fromwindowstodecreaseexternaldistractions.Forsensorypurposes,placingtapewithdifferent
texturesunderJMsdeskhasbeenproposedtoprovidehimwithawaytoselfregulate.JM
requiredfrequentbreakswhendoingclassworktopreventoverstimulationaswellasextended
timetodotestswithaclassroomaide.
SinceJMwasenrolledintoaschoolthatspecializesinteachingstudentswhoaredeafor
profoundlyhearingimpaired,theteachersandstaffmembersarefullytrainedtocollaboratewith
specialiststogainabetter,holisticdescriptionifJMsfunctionalneeds.
Inadditiontohisparents,thefollowingprofessionals,atminimum,areresponsiblefor
opencommunicationandcollaborationwhenmakingmajordecisionsregardingJMstreatment:
ClassroomTeacher(andaide,ifapplicable)
SLPs(schoolandprivate,ifapplicable)
PrivateASLteacher
NeurologistforhisdiagnosisofADHD
DEMOGRAPHICS
Mr.andMrs.MareayoungmarriedcoupleofHispanicdescent.Theyhavebeenmarried
10 years and are reported tohave high socioeconomic status. Both parents have graduated
collegewithBachelorsdegrees.Mr.Mpresentlyworksfulltime,andMrs.Misastayathome
mom.JMsfatherspeaksEnglish,andbothparentsarefluentinASL.JMisexposedtoboth
EnglishandASLathome.Mr.andMrs.Mhavestatedthattheyaremorethanwillingtotravel
longdistancesandpayanyamountforthehighestqualityofcareandservicefortheirchild.
Currently,Mr.andMrs.Marefirmintheirdecisionagainsttheuseandimplementation
ofassistivedeviceswiththeirchild.TheywishtofullysupporttheDeafculture,astheirfamily
historyissignificantforhearingloss.JMsmotherhasaseverebilateralSNHL,andherprimary
modeofcommunicationisASL.WhenJMsdadispresent,heisabletotranslateforMrs.M.
Whenheisnotpresent,thefamilyhashiredaprivatetranslatorwhoisreadilyavailablewhen
translation services are needed. Mr. and Mrs. M are hopeful that JM will proficiently
communicate using ASL without any assistive technology. Clinicians and all treating
professionalsmustmakepriorarrangementstoensurethatatranslatorispresentduringparent
meetings,andtheymustbewillingtohonortheirfamilysdecisiontoupholdtheidealsofthe
DeafculturewhenconsideringtreatmentoptionsforJM.
LAWSANDREGULATIONS
Federal&StateSpecialEducation
Regulations
ApplicationforJM
NJAC6A:143.9:Relatedservicesincluding,
JMsSLPisthecasestudymanagerforJMs
butnotlimitedto,counseling,occupational
IEP.
therapy,physicaltherapy,schoolnurse
services,recreation,socialworkservices,
InJMscase,theSLPisthehighestqualified
medicalservicesandspeechlanguageservices officialwhocaninterprettheinstructional
shallbeprovidedtoastudentwithadisability
implicationsofJMsevaluation.
whenrequiredforthestudenttobenefitfrom
theeducationalprogram.Relatedservicesshall
beprovidedbyappropriatelycertifiedand/or
licensedprofessionalsasspecifiedinthe
student'sIEPandaccordingtothefollowing:
N.J.A.C.6A:142.3(k)2:Thespeech
languagespecialistshallbeconsideredthe
childstudyteammember,theindividualwho
caninterprettheinstructionalimplicationsof
evaluationresultsandtheserviceproviderat
theIEPmeeting.
N.J.A.C.6A:144.3:Programoptions
TheSLPwillbeinchargeofeducatingthe
Apreschoolagestudentwithadisabilitymay
familyonallprogramplacementoptions
availableforJM.
anearlychildhoodprogramoperatedbyan
agencyotherthanaboardofeducation
accordingtothefollowing:Suchearly
childhoodprogramshallbelicensedor
approvedbyagovernmentalagency.
N.J.A.C.6A:143.5:Determinationof
TheSLPneedstodetermineeligibility
eligibilityforspecialeducationandrelated
alongsidetheaudiologicalevaluations.The
services:"Auditorilyimpaired"correspondsto
SLPalsodecidesifhisdisabilityisimpacting
"auditorilyhandicapped"andfurther
hisacademicperformanceanddeterminesthe
correspondstotheFederaleligibilitycategories reasonsbehindit.
ofdeafnessorhearingimpairment."Auditorily
impaired"meansaninabilitytohearwithin
normallimitsduetophysicalimpairmentor
dysfunctionofauditorymechanisms.An
audiologicalevaluationbyaspecialist
qualifiedinthefieldofaudiologyandaspeech
andlanguageevaluationbyacertifiedspeech
languagespecialistarerequired.
N.J.A.C6A:143.7:Inthecaseofastudent
SLPsandtheparentsmustconsiderJMs
whoisdeaforhardofhearingconsiderthe
languageandcommunicationneeds,
student'slanguageandcommunicationneeds,
primarycommunicationmethod,language
accessandexposureinordertorecommended
peersandprofessionalpersonnelinthe
appropriateservices,treatment,andpossible
student'slanguageandcommunicationmode,
hearingassistivedevices.
academiclevel,andfullrangeofopportunities
fordirectinstructioninthestudent'slanguage
andcommunicationmode
IndividualswithDisabilitiesEducationAct
(IDEA)
ApplicationforJM
IDEASec.300.300:Parentalconsent.
JMsparentsmustconsentforany/allchanges
Parentalconsentforinitialevaluation,re
andimplicationstoJMsIEP.Theirdenialof
evaluation,testingprocedures,screenings,
treatmentusinghearingassistivedeviceswas
changesinIEPandtherapyinterventions.
respected.
IDEASec.300.8:Childwithadisabilityby
Studentswhoaredeaffaceseveraleducational
reasonthereof,isinneedofspecialeducation
barriers.JMwillhavetroublewith
andrelatedservicesincludinghearing
participatinginclassroomdiscussions,playing
impairment.Hearingimpairmentmeansan
withpeers,givingoralpresentations,taking
impairmentinhearing,whetherpermanentor
oralinformation,learningtoreal,attendingto
fluctuating,thatadverselyaffectsachild's
readaloudsbyteachers,watching
educationalperformancebutthatisnot
educationalfilms,andlearningclassroom
includedunderthedefinitionofdeafnessin
safetyetiquette(e.g.firealarms).
thissection.
Sec.614:(3)DevelopmentofIEP;(B)
Althoughampleamountsresourceswere
providedtoJMsparentstohelpeducatethem
teamshall.(iv)Considerthecommunication
onallpossibleoptionsandtheirbenefits
needsofthechild,andinthecaseofthechild
towardsJMacademicsuccess,theparents
whoisdeaforhardofhearing,considerthe
denialoftreatmentthroughusinghearing
child'slanguageandcommunicationneeds,
assistivedeviceswasrespected.
opportunitiesfordirectcommunicationswith
peersandprofessionalpersonnelinthechild's
languageandcommunicationmode,academic
level,andfullrangeofneeds,including
opportunitiesfordirectinstructioninthe
child'slanguageandcommunicationmode;and
(v)Considerwhetherthechildrequires
assistivetechnologydevicesandservices.
ASHASLPRoles&Responsibilities
ApplicationforJM
Speechlanguagepathologistsengagein
SLPsareresponsibleforscreening/interpreting
preventionandadvocacyactivitiesrelatedto
audiologicalfindings,educatingthefamilyon
humancommunicationandswallowing.
whattheseresultsmean,andhelpingthefamily
Exampleactivitiesinclude:(1)prevention;2)
makeappropriatedecisionsregardingJMs
providingearlyidentificationandearly
educationalsetting.TheSLPshouldnotfavor
interventionservicesforcommunication
onetypeofcommunicationmethodand/or
setting.Itisimportantthatthefamilyis
familiesthroughcommunityawareness,4)
educatedonallpossibleoptionsandthat
screeningindividuals5);selecting,fitting,and
professionalrecommendationsremain
establishingeffectiveuseofprosthetic/adaptive unbiased.ItisdictatedbyASHAthattheSLP
devicesforcommunicationandswallowing
keepfamilyvaluesandculturalperspectivesa
priority.JMsfamilyhasstrongvaluesabout
hisplacementinatotalcommunicationschool.
Theyareadamantagainstanyassistive
devices.
AccordingtoASHA,regardlessofthe
Inordertoprovidethehighestqualityofcare
approachused,SLPshavetheresponsibilityof forJM,itwasinourbestpracticetoreferhim
embeddingtheirbestassessmentofevidence
andhisfamilytoanotherclinicianwhowas
basedinterventionswithinfamilyidentified,
bettersuitedtotreathisdeficits.JMneedsa
preferredroutinesandactivitiesand/ora
clinicianthatwillbeabletoeffectively
comprehensivecurriculum(forearlycareand
communicatewithhimusingmanualsignand
educationgroupsettings)thattargetfunctional
so,inordertoprovidehimwiththeappropriate
outcomesindividualizedforthechildwithin
services,wereferredhimtoaspeechtherapist
theIFSP.
thatspecializesinASL.
FamilyEducationalRightsandPrivacyAct
(FERPA)
ApplicationforJM
FERPAgivesparentsandeligiblestudents
Itisimportantthatallworkingteammembers
thesebasicrights:Therighttoinspectand
keepJMsfilesconfidential.Information
reviewthestudent'seducationrecords
pertainingtothecaseshouldonlybeshared
maintainedbytheschool;Therighttorequest
withteammembers.
thataschoolamendthestudentseducation
records;Therighttoconsentinwritingtothe
disclosureofpersonallyidentifiable
informationfromthestudent'seducation
record,exceptundercertainpermitted
situation;andTherighttofileacomplaintwith
theFamilyPolicyComplianceOffice(FPCO)
regardinganallegedviolationunderFERPA.
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Welling,D.,&Ukstins,C.(2013).Fundamentalsofaudiologyforthespeechlanguage