Академический Документы
Профессиональный Документы
Культура Документы
August 2010
(Final Draft)
For Further Details Please Contact: Planning, Policy and Performance Team Tel: 0141 287 8786 cormac.quinn@glasgow.gov.uk
CONTENTS
Stage One Identification and Scope Stage Two Research and Consultation Stage Three Assessing the Impact Stage Four Taking Action Stage Five Feedback on Proposed Actions Stage Six Monitoring and Evaluation Stage Seven Approval Appendices: Appendix A: Day Service Modernisation Consultation April 2008 Appendix B: Members of the Steering Group Appendix C: References Appendix D: Equality Legislation
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(Extract from The Same As You? A Review of Services for People with Learning Disabilities - The Scottish Executive.
(Extracts from Valuing People: A New Strategy for Learning Disability for the 21st Century)
This is an assessment of the reform of an existing function/practice. Aims and objectives of the function/practice and the scope of the reform:
For any of these needs the level of support will vary. A person with learning disabilities may need: occasional or short-term support; limited support, for example, only during periods of change or crisis; regular long-term support, perhaps every day; or constant and highly intensive support if they have complex or other needs which are related. So people with learning disabilities have a range of needs which will change during their lifetime. Professionals need to help people plan for the future. For many people with learning disabilities, particularly those with complex needs, organisations need to work together with the individual and their family to plan and support them. People with learning disabilities should have the following: Services that promote and protect their health and welfare, help them lead lives which are as normal as possible and are best suited to their needs, whether at home, in schools, health services or other settings; Information, advice and help to get education, work and leisure that offers personal fulfilment, consistency and security, best meets their needs and personal preferences, and helps them to be included and accepted within local communities; Ordinary homes which are private, secure, comfortable and safe. People with learning disabilities and their families should: have accurate and easily accessible information at the right time about what services and support are available locally and nationally, in a number of different ways; be involved when professionals make decisions about what help to provide, so that they can have a real choice about what happens to them; and get independent advice and advocacy services when they need them. Families and carers should have: a range of help to support them including training and advice to look after a person with a learning disability; access to professionals who take into account and find ways to meet their needs as carers (whether they are parents, brothers and sisters or other family members); and access to short breaks. Communities need to: have greater understanding of people with learning disabilities and how they can contribute to the community; and be involved in supporting people with learning disabilities and their families to achieve their rights. Employers need to: overcome prejudice associated with employing people with learning disabilities, and play their part in helping them to reach their potential.
Deliverables/Outcomes
We will produce a written report on the EQIA with an action plan which will be considered by the Social Work Leadership Team, and thereafter it will go to the Corporate Equality Working Group for information. Stage six contains details of the monitoring and evaluation process.
Constraints
The main constraints we are aware of are: Lack of equality data, especially on sexuality and socio-economic data Adequate staff resources to complete the EQIA process Reliance on staff to make time to take part in the exercise
Key Policies
In Scotland the key policies that underpin the drive towards changes in the way learning disability services are delivered are: Same As You (Scottish Executive - 2000) Working for a Change? (Same As You Implementation Group - 2003) Changing Lives 21st Century Social Work Review (Scottish Executive 2004) Make My Day! (Same As You Implementation Group - 2006) How is it going? (SCLD 2006) Whats out there? (SCLD 2009)
This proposed modernisation programme is underpinned by a number of key drivers for change. These include:
Demography
Advances in medical science have seen more infants with disabilities surviving into adulthood. People now have increased life expectancy. Scottish Executive figures highlight a year-on-year 1% increase in the number of people with severe and moderate learning disabilities during the period 1965-2010. These demographic changes have resulted in a growing number of older adults with learning disabilities.
Policy Direction
National and devolved governments expect local agencies to place priority on the development of personalised, individually tailored services that promote choice, social integration and independence in order to enable people to lead a full life within their local community. Significantly, the recent Make my day! Report recommended that the role of day centres should change. The vision outlined is of day services transforming to become resource centres, offering limited in-house activities and support and using more community resources to support people with learning disabilities to access education and development, real jobs and sport and leisure activities.
These comments reflect service users desire for more community-focused day services that promote choice and flexibility. These views are consistent of the ethos of greater personalisation of services; e.g. through the introduction of individual budgeting.
Local Context
Glasgow provides day opportunities for adults with learning disabilities from 10 resource centres across the City, 8 of these provide access to integrated Area Learning Disability Teams. The traditional day service model is ill-equipped to respond to the continuing growth in both the overall population of people with learning disabilities and the proportion of that population presenting with complex needs. However, the aspirations of people with learning disabilities and their carers, whether young people in transition from school, those with complex physical and health needs, or those who are ageing or have older carers, are proving difficult to accommodate within the current service construct and is creating growing pressure for the development of more personalised models of service delivery. Notwithstanding some notable exceptions, Glasgows day services continue to be characterised by a building rather than a community focussed approach, with a large number of learning disabled adults transported daily to services segregated from their communities. This compares unfavourably with national policy and best practice examples from other local authorities.
Building capacity in local communities; e.g. through further development of leisure, further education, employment etc.
This proposed re-design positions the Council and its partners to provide a transformed service supporting choice, independence and personalisation through the use of direct payments, and supporting the move away from a dependency culture. The envisaged modernised service model is a community-focused one, where the emphasis is on supporting people with a learning disability to access greater opportunities in employment, education, training, sport and leisure, volunteering and other opportunities for community inclusion. Individual programmes would be designed in line with individual needs and interests and will provide outcomes, which reflect the aspirations of both service users and carers. As these opportunities develop, fewer people would require access to day centre services. Rather, they would be supported by appropriate staff to access communitybased services and opportunities directly. Access to day services from centres or hubs would continue for those who needed them, particularly those with more complex needs and disabilities and those with a greater requirement for therapeutic interventions. Each CHCP would retain at least one centre or hub in its area. The main features of the new service model can be summarised as follows: Person centred care plans Better community presence More opportunity for employment/further education Needs led and person centred delivery Service level better reflects needs Go direct to activities Flexible transport and hours More involvement of community partners
The key principles underpinning the re-design process are built upon consultation feedback from service users, carers and stakeholders. These are: A phased approach Making sure alternatives are in place before a building is closed. Risk is assessed and managed. Support to maintain relationships and develop new ones. People will generally receive support in their locality. Support arrangements are flexible to enable access to community opportunities in the evenings and weekends.
Workforce Issues
The process of change to the full modernised service envisaged will be complex requiring a building of opportunities and service capacity, redesign of the workforce and close attention to the involvement and impact on service users and carers as the changes move forward.
Proposed staffing for the modernised service is based upon a profiling of service users, living and family situations, information provided by each CHCP and anticipated future demand. Significant numbers of service users live in supported accommodation and residential care and it is felt that a more holistic, individualised and efficient approach to supporting many of these individuals would be achieved by developing plans with the same provider agencies, who currently support them, to extend that support to encompass day support for individuals to access community opportunities (as is the case already for around 800 people supported by provider agencies across the city). This will involve enhancing staffing as appropriate within these services. The proposed workforce for the directly provided service will involve: More focus on management structure Enhanced roles opportunities for Day Services Workers Major increase in Support Workers Increased frontline staffing ratios, particularly for those with complex needs (from 1:2.4 service users to 1:2 service users on average daily attendance at end point). Staff capacity to support a flexible and individual service that can support clients to realise their choices.
Day Service Managers will have a responsibility for both strands of the whole service. CHCPs have also estimated how many other service users they are likely to require in the future as alternative opportunities are developed, service delivery through a centre or hub and how many would require to be supported directly to access community opportunities through a Community Connections team in each area. Therefore, it is envisaged that, at end point, the service requirements will break down as follows: 200 people Community access supported by existing providers or through individual budgets. 350 people Support co-ordinated through hubs but involving community access. 300 people Supported through Community Connections team in each CHCP. In practice the service designed for individuals will be in line with needs which may see some individuals accessing different strands of the service.
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Communication Commissioning Providers Workforce Development o Induction o Recruitment o Staff Training and Development o Staff Restructure phased approach (3 tranches) Trade Union Liaison Flexible Support Staff Learning and Developments Finance Equality Impact Assessment Flexible Support
Challenges
Scale of change Building confidence in change Delivering in current financial framework Partner agencies buying in Complexity of work strands e.g. workforce planning Community infrastructure readiness Ensuring staff have and can apply necessary knowledge and skills required Transport Partnership working
Stakeholder Involvement
It has been recognised that a critical factor in successfully transforming the service is to gain the support of service users and their carers as well as other stakeholders. Therefore a series of events with service users, carers, providers, partners and staff across each of the 5 Community Health and Care Partnerships were organised, some through consultants to get the views of stakeholders and to establish and agree the drivers for change.
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With regard to equalities, evidence seems to suggest that people with learning disabilities are one of the most excluded groups in our society, and their exclusion from the labour market is exceptionally high. Also people with learning disabilities are reluctant to use public transport because of fears of bullying and harassment. Specifically, there exits significant inequality between people with learning disabilities and other impairment groups and the general population in relation to access to education, employment, health and leisure.
Race/Ethnicity
A review of research on people with learning disabilities and ethnicity reveals considerable amount of data. In this section we provide a summary of the findings of some of the researchers with references detailed at Appendix C. A study by Ghazala Mir et al (2001) found that people with learning difficulties from minority ethnic communities and their carers face considerable problems in accessing relevant services. The main points highlighted in the report were as follows: People with learning difficulties from minority ethnic communities and their carers face considerable problems in accessing relevant services. Minority ethnic communities face substantial inequalities and discrimination in employment, education, health and social services and leisure. The higher prevalence of learning difficulties in South Asian communities has been linked to high levels of material and social deprivation. These may combine with other factors such as poor access to maternal health care, misclassification and higher rates of environmental or genetic risk factors. People with learning difficulties from minority ethnic communities experience simultaneous disadvantage in relation to race, impairment and, for women, gender. In addition, negative stereotypes and attitudes held by service professionals contribute to the disadvantage they face. The study projected that the prevalence of learning disabilities amongst the South Asian communities may be around three times higher than in other communities, and this trend is likely to increase over the next twenty years. Elderly and ill carers and those caring for people with severe disabilities received little support from services. There is a widespread neglect of the needs of people with learning disabilities from black and minority ethnic communities.
Hubert (2006) interviewed 30 family carers of people with learning disabilities from black and minority ethnic communities. The study identified key issues that people with learning disabilities from a minority ethnic background face. The main findings were: BME people with learning disabilities do not receive sufficient or accessible information about available services; there is poor communication between carers and service providers; some BME people have no English and cannot initiate or respond to contact and communications; some are socially isolated from the community in which they live; they are unable to get access to services they need; some services carry a charge which is not within their means to pay; they do not have anyone who visits them on a regular basis; they do not know how to contact service providers for help when they need it; they feel neglected by the service providers; some are suffering from high levels of stress;
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some are frail and/or ill and cannot get the help and support they need to continue caring; they do not have supportive family groups; they have serious anxieties about the future, and need support to start making viable plans.
The lack of social work support was also identified to be an issue in Glasgow. Taylor (2009) held a meeting with nine family carers predominantly from the South Asian communities and found that the most common complaint was that social work passed them to their childs school to address a particular issue and the school pass them back to social work. The school advised the parents to ask social work for assessments or help on behalf of the child as this meant they were more likely to get a social worker allocated to the family, but this was not always the case as not all social work picked up cases due to their workload. There is then a predicted need not only to improve how services are being engaged by people with learning disabilities and how the services themselves are engaging people with learning disabilities but to increase the level of service provision. Karlsen & Nazroo (2002) found that: families from black and minority ethnic communities with a member who has learning disabilities are twice as disadvantaged as those from majority ethnic communities due to racial prejudice and lack of culturally sensitive services; people who have a learning disability and who are from a visible minority ethnic background suffer from added racial discrimination.
Azmi et al (1997) found that Racism and learning difficulty stigma are persistent issues faced in the lives of people with learning disabilities who are from the South Asian community. This is known as double discrimination. A study by Ethnic Enable in Glasgow (http://www.iriss.ac.uk/files/iriss-fc-3-furrah-2008-0617.ppt) found that the main issues affecting people with learning disabilities from ethnic backgrounds are language difficulties, transport issues, social isolation, and more vulnerable to domestic and sexual abuse A report by Kusminder Chahal (2004) which brought together lessons from projects funded by Joseph Rowntree Foundation relating to ethnicity and service provision identified a persistent lack of recognition of the circumstances of groups and individuals that make up minority ethnic communities and the fact that they are often ignored in policy and practice responses. The main findings were:
black and minority ethnic service users felt mainstream services are often inappropriate for their needs and that services make assumptions based on stereotypes and prejudice about what the needs of these users may be or what they may want to access; the experience of racial discrimination and prejudice in mainstream service provision often meant that what minority ethnic users are asking for are specialist, culturally competent services; there are few black and minority ethnic staff in mainstream services and some of the services have made little attempt to change this; there is a general desire for more information about services and entitlements from service providers. For example, very few disabled people have any knowledge of direct payment schemes; religious and cultural identity is very important to many people from minority ethnic communities but it is rarely responded to by mainstream service providers;
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common myths about informal family networks looking after each other cannot be taken for granted. Although informal support is available in certain circumstances, this cannot be relied upon; the differences between the experiences of men and women are often sharper than the differences between different ethnic groups.
Gender
A review of the available literature on gender and learning disabilities reveals the following key findings: Emerson et al (1997) found that severe learning disabilities are most common amongst males, young people and people from South Asian communities. Brenda Ellis (1995) found that transport is a major issue for disabled women. Lack of reliable, accessible transport means they are isolated in their homes, unable to pursue employment, education or leisure activities; Beyer, Goodere and Kilsby (1996) found that 65.8% of the supported employees surveyed are male; and women undertaking supported employment work fewer hours than their male counterparts. A study by Levy et al (1994) found that female supported employees are more likely to have their employment stopped and to have worked a shorter period of time than men; South Asian women are seen as isolated because of traditional customs; the failure to take up services provided by statutory bodies is attributed to black and minority ethnic womens lack of relevant skills, language and understanding of Western lifestyles. gender differences exist with more men receiving supported employment than women, and men working more hours. women and girls with disabilities experience disadvantages and discrimination based on the combination of both disability and gender-based discrimination, known as 'intersectional discrimination'. This means responses targeted to their specific issues and needs must ensure that they enjoy the same rights as all others, including disabled men and/or their non-disabled peers. women, especially BME women face barriers to accessing employment and leisure activities because of lack of reliable transport.
Age
A review of existing literature on age and learning disabilities reveals the following: The Institute for Health Research, Lancaster University (2004) predicted that the number of adults with learning disabilities will increase by 11 per cent and those aged over 60 by 36 per cent by 2021. This increase may be explained by: increased life expectancy, growing numbers of children and young people with complex and multiple disabilities who now survive into adulthood, a sharp rise in the reported numbers of school age children with autistic spectrum disorders, some of whom will have learning disabilities and greater incidence among some minority ethnic populations of South Asian origin. Rimmerman et al (1996) found that women under the age of thirty are less likely to be employed, and males under the age of 35 have higher employment rates than women, but that over the age of 35 the opposite is true.
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Faubion and Andrew (2000) found that the severity of disability and age are negatively correlated to whether somebody is referred to a supported employment agency. A study by the charity Age Concern (2004) found that 28 per cent of adults have experienced age discrimination, most under 25 or the 55-65 age groups; A report by Jane Fitzgerald (1998) for the Joseph Rowntree Foundation found that: people with disabilities, young people moving out of care or gay and lesbian young people often face particular challenges in moving to independent housing. lower rates of housing benefit for people under 18 limit their housing choices; young people experience increased risk and uncertainty as they move into independent housing. there is a marked lack of opportunity for older people with learning difficulties to develop networks with others of similar ages or interests; many older people with learning difficulties would have preferred being cared for by other older people, with similar interests to themselves. age and language can present difficulties in advocating for support and that there exists a population whose needs are being met by families as distinct from the state. older people with learning disabilities are more likely to be excluded from the labour market.
Sexual Orientation
Sexuality and people with learning disabilities is a controversial and sensitive area of research. Because of the specific needs of disabled LGB people and the challenges posed by researching a hidden population, there are no large-scale surveys of disabled LGB peoples health needs. Rather, evidence is provided by a number of small-scale qualitative studies. The National Disability Authority (2005 concluded that the rights of people who are disabled to engage in everyday activities that the rest of society take for granted (for example, taking part in leisure activities, getting a job and falling in love) are severely curtailed; the rights of people who are disabled to sexual relationships are not widely accepted; moreover, the fact that some may wish to have a same-sex relationship is largely unconsidered; same-sex relationships are more likely to be seen as a potential danger and rarely as a source of pleasure or fulfilment;
Abbot and Howarth (2005) concluded current practice in work with people with learning disabilities is more likely to restrict opportunities for sexual relationships rather than support people to have relationships that are satisfying; as with heterosexual relationships, there are issues about consent, mental capacity and risk. Brothers (2003) found that while parents, carers and professionals are concerned about protecting disabled people from exploitation, this often means that disabled people are not empowered to lead the lives they would choose. In Beyond Barriers (2002), one LGB research participant remarked that people with disabilities are unable to explore their sexual orientation and are kept under parental control until they are in their fifties when their parents died.
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Rainbow Ripples and Butler (2006) stated many disabled LGB people have not received relevant sex education in schools; as adults they lack appropriate information about sexual health and do not have access to information about fertility issues; they may also encounter difficulties in accessing mental health services; Brothers (2003) argued that because LGB people with learning disabilities often live at home with their family and rely on them for financial or practical support, they may be more likely to fear rejection from their family than other LGB people. The possibility of disclosure to a social care worker about their sexuality requires that relevant training be provided so that staff are able to offer appropriate support. Shakespeare et al (1996) observed that education for disabled people has often been segregated from mainstream schooling; disabled people say that they received little or no sex education; they lack access to appropriate guidance about safer sex and little support in accessing LGB social spaces; the language of health promotion materials is inappropriate for people with learning disabilities, and targeted materials are likely to be restricted to heterosexual sex.
Valuing People (2001) and Valuing People Now (2007) concluded that there is a need for people with learning disabilities to understand their sexuality, and also to have the opportunity to form relationships; people with learning disabilities should not be left isolated, and that services should provide them with a stimulating environment in which to meet others, and form relationships. education is important to support people with learning disabilities to maintain their relationships; same-sex relationships should be supported if that is what the individual chooses.
An article by Iain Carson and Craig Blyth, Lonely hearts need a helping hand (LD Today, April 2009), concluded that: staff need to do more to support people with learning disabilities when it comes to forming and maintaining relationships; there are many negative attitudes towards the sexuality of people with learning disabilities and that this view needs to be explored and challenged; services need to make small changes in order to improve the experiences of service users when discussing relationships and sexuality with their paid carers.
The implications for policy makers and service providers of the above are: social care staff, in particular, need clear policy guidelines to enable them to offer support for LGB disabled people in relation to relevant sex education; support for their identities as LGB people, including support to help them to socialise in LGB spaces; inclusion of their identities in person-centred plans; and support for developing intimate same-sex relationships; services need to consider whether it is possible to offer private spaces for people with learning disabilities; need to ensure that resources and training are available to support staff; need to view same-sex relationships as being of equal worth and value as heterosexual relationships; support for disabled LGB people to use direct payments to employ a gay-friendly home care assistant.
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According to Abbot and Howarth (2005) the particular issues raised in their study were: difficulties in meeting and knowing other LGB people (there are few groups for disabled LGB people); lack of validation for same-sex relationships; lack of acknowledgement of LGB people (e.g. few images of LGB people displayed in service provision); lack of acceptance in the non-disabled LGB scene; lack of privacy; and few policies, meaning that staff do not feel supported to do proactive work.
Religion or Belief
The Equality Act 2006 defines religion as serious and cohesive belief compatible with human dignity. Belief relates to philosophical beliefs such as humanism or pacifism but not to other sorts of belief such as supporting a political party. The main findings of studies exploring the relationship between religion or belief and people with learning disabilities are as follows: Summers and Jones (2004) stressed that it is important for staff to examine their own beliefs and attitudes as part of training for working with people with learning difficulties from minority ethnic communities; and training should include teaching and discussion around specific cultural beliefs and norms so staff can begin to develop a framework for working cross-culturally.
Having an understanding of religious or other beliefs is important for staff because: religious or other beliefs influence preferences and behaviours, such as negotiating relationships between men and women, washing requirements and facilities, and dietary needs. It is important for health and social care services to be sensitive to these in order to provide culturally appropriate services; disagreements over religious or other beliefs can potentially cause conflict in the community and damage good relations. belief or faith is often cited as a coping mechanism for both the person with a learning disability and for those that care for them; knowledge about religious beliefs and cultural practices can enable services to ensure that people with learning disabilities from black and minority ethnic communities experience a range of relevant cultural events and influences.
Recurrent themes reported by carers include: the need to meet dietary requirements provide culturally appropriate activities same-gender activities or centres increase the number of staff from minority cultures and the number of bilingual workers throughout mainstream services adapt materials in a culturally sensitive way
Mir, G et al (2001) argued that: the assumption that a family wants support only from someone of their own culture is often misplaced, as workers from other cultures may be perceived as less intrusive. The preference for same-gender staff to carry out intimate personal care and support is curiously portrayed as a requirement specific only to certain
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religions and cultures, when, in fact, it exists to a large extent in all communities. This belief is unhelpful as it suggests that the preference is different or special and it gives the impression of an additional burden on resources; not enough consideration is being given to the impact of the religious beliefs of individuals with learning disabilities in an employment context. It would appear that double discrimination exists for people with a learning disability whose religious beliefs may put them at a disadvantage when seeking work or attempting to assimilate into the work place.
Socio-Economic Inequalities
The literature review on socio-economic inequalities reveals the following: Four in ten households in Scotland with at least one member who is disabled live on an income of 10,000 per year or less, compared to only one in four households without anyone who is disabled (Disability in Scotland 2005-2020: a state of the Nation Report, DRC 2005); Nine out of ten families which include a disabled child are likely to experience problems with their housing. Around 28.6 per cent of disabled households live in homes that fall below accepted standards of decency compared to 25.9 per cent of nondisabled households (Prime Minister's Strategy Unit Report, 2005). Mir et al (2001) reported that Black and minority ethnic communities inherently face inequality, discrimination and disadvantage due to a combination of factors - they are more likely to live in inner cities, live in poor housing and suffer discrimination in education, employment, health and social services. Butt and Mirza (1996) concluded that in the U.K., the burden of care, both socially and financially, is greater for carers from black and minority ethnic communities compared with their White peers, due to a number of contributory factors including poverty, poor housing, racism, higher levels of unemployment, low pay, minimum pension rights, reduced benefits because of residence status and inadequate education. For example, spouses of adults with learning disabilities from black and minority ethnic communities are allowed into the U.K. on the proviso that they do not claim on the welfare state for the first 5 years. The Department of Health Report (2005) rightly highlighted that whilst some ethnic minority families may prefer to look after their family members, it is not a general presumption that should be held. Rather, services should account for the fact that many families may not ask for help, but this does not mean they do not need it. Some may not know of services and help available to them; there may be barriers such as language that inhibit families from asking for help and some families may resign themselves to their belief systems, that it is a matter of Gods will and therefore may not seek out help. The report concluded that lack of information often leads to low expectations of the outcome that could be achieved; and knowledge about religious beliefs and cultural practices can enable services to ensure that people with learning disabilities from black and minority ethnic communities experience a range of relevant cultural events and influences.
In The same as you? it was reported that benefits play a big part in the lives of people with learning disabilities. Most are not, or have not been wage earners, and benefits are often their only source of income. So their ability to live a normal and
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fulfilling life is governed by benefits. The report stated that the benefits system is complicated and getting the right advice and help is essential.
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Negative impact:
As the focus of the new service model is on people with moderate to severe learning disabilities, one can argue that the proposals are likely to have a differential outcome for disabled people, and potentially, can have an adverse effect on some of them, in particular people with a milder learning disability who may not be eligible for adult social services. It might be interpreted as a policy that treats people with learning disabilities more favourably than other disability groups. In this regard, the Council is at risk of creating a two tier service. Currently, many community facilities do not meet the needs of people with learning disabilities, for example some of the facilities lack adequate changing places. Unless people with learning disabilities have access to adequate facilities their experience of community-based resources may be a negative experience and may end up using the Hubs. There is some perception that the creation of Hubs to accommodate people with complex needs potentially could mean less opportunity for social interaction for them as those with mild learning disabilities will be out using community facilities. It is important to ensure inclusive opportunities are available. It has been suggested that because of prejudice or stigma the community may not be ready to accept or tolerate people with learning disabilities when they go out to access community-based facilities and as a result they may suffer rejection, hence it will be necessary to educate the public.
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Negative impact:
Evidence tells us that BME people with learning disabilities face many barriers, for example, poor housing, language difficulties, transport problems and lack of information and awareness about services available. Unless these are identified and addressed, the reform may not improve the situation for BME service users. Research tells us that BME service users will need more than encouragement to access community-based services, in particular issues about staff imbalance, low staff morale, transport, communication and language including prejudice and stigma need to improve significantly before the reform can have a positive impact on BME people with learning disabilities. In addition, if services are to improve for BME service users, the reform needs to address the reluctance of older BME carers to ask for help or access Social Work Services. They need help and individual support to come forward to express what they need. In light of the above, the new model should be flexible enough to cater for the needs of all excluded groups. Also it will be necessary to carefully monitor and evaluate how well the reform is working for BME groups. This will ensure that their needs are being met. Furthermore, the reform needs to continue to record information on ethnicity.
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important to monitor the outcomes for service users by gender to ensure the reform does not only benefit men. The focus on personalisation means that service users should be able to ask for a staff member who is of the same gender to meet their personal needs, assuming there is a better gender balance of staff. Encouraging service users to access community activities may increase their visibility and give them increased opportunity to mix with the general public. Overtime, this can help change the attitude of the public in a positive way and reduce the discrimination experienced by people with learning disabilities. Equally, it can provide them with more opportunities to be involved in gender specific activities. We know from research that the majority of carers are women. The reform may offer them more flexible and responsive services, with better lifestyle choices, better social networks and employment opportunities. In addition, the reform may highlight personal safety issues concerning women and awareness of male issues in caring, in particular, the shortage of male carers and attending to the personal needs of women service users. To meet the shortage of male staff, the Service recently implemented a recruitment policy which resulted in the recruitment of additional male staff. This is a good example of how the Council can increase the numbers of under-represented groups in the workforce.
Negative impact
We know from research that there exists gender imbalance in the workforce which seems to restrict the choices available to service users in terms of staff availability to give personal care. It is important that efforts are made to correct this, otherwise the reform may create the impression that service users have more choice whilst in reality they dont. This can be frustrating for both carers and service users. Over the years, service users have established their own networks and made friends. It is possible that by moving out from day centres to community-based resources they may lose these networks and their friendships. This may leave service users feeling isolated, vulnerable and discriminated against, especially women from the BME background. Efforts need to be made to support existing networks.
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and negative relationships. Each service user is asked to evaluate the course and their own progress every 6 months. The Service needs to promote this course across the City.
Negative impact
Currently the Council does not have an agreed policy or system of monitoring the sexual orientation of service users. However, within Social Work Services, service usage is recorded by ethnicity and gender. Also equality and diversity training is delivered to all staff, but this does not include LGBT training. As a result, staff we have consulted have expressed a lack of awareness about the sexual needs of people with learning disabilities. The reform should result in a supporting environment for people with learning disabilities where they feel safe discussing their sexuality.
Negative impact
Implementing good employment support measures within schools and colleges, with the intention of keeping people out of day services and residential care, may have an adverse effect on older people who are left behind in increasingly under-used day services. If measures are skewed towards young adults, this may arguably lead to older people being less of a focus in the new model. It is important to encourage Services to engage with supported employment agencies to seek work experience opportunities for those furthest from the labour market. Using North Lanarkshire as an example, the new model should ensure that older people using day services have alternatives to traditional day service provision, which includes opportunities for meaningful work.
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Negative impact
It is worth noting that providing individualised services do not always match up with what service users and carers want due to the lack of adequate staff and resources. The lack of resources can prevents the Service from meeting fully the specific religious and cultural needs of BME service users and carers, partly because staff may not get the appropriate cultural awareness training. It also means the Service may not recruit bilingual staff, which in turn creates an imbalance in the number of male and female staff available. Failure to provide adequate resources and build capacity of the organisation can undermine the reform programme and have a negative impact on service users from the black and minority ethnic communities, as they will simply not trust the Council to deliver on its promises.
Negative impact
We know from research that carers from black and minority ethnic communities experience greater burden of care, both socially and financially.
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The reform may bring with it additional burden in the form of increased costs to service users and carers. This may create gaps in the welfare benefits received by service users and prevent them from having enough money to meet real needs. In the end it may increase the burden of care. This needs to be recognised and addressed. If service users and carers face additional costs as a result of the reform, they may find it difficult to manage their finances and may be forced to give up control of the them. During consultation with staff, some reported that service users tend not have enough money when they want to access venues or purchase food on outings. One explanation is that they have little control over their budgets and they have to take what they are given. This example shows that service users need to be empowered to have more control over their finances. A key issue in caring for people with learning disabilities is safety of the person being cared for. The reform is likely to raise some issues about safety and it is important that efforts are made to monitor the individuals and organisations that provide the service to ensure the safety of service users is not compromised.
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SPECIFIC ISSUES within existing Learning Disability Day Service Reform workstreams
The LD Day Reform activity can be separated into 2 phases: The first phase deals with the closure of existing day service buildings which is currently underway. The second phase incorporates the bulk of the reform activity identified in the LD workstreams below.
Workstream 1.Transport
Action Develop alternative transport options which are affordable, accessible and efficient.
Timescale Phase 1: Completion of Building Closure anticipated March 2011. Phase 2: LD Workstreams to be determined pending completion of phase 1
2. Catering
Action Ensure catering options reflect diversity of service users cultural backgrounds
Timescale Phase 1: Completion of Building Closure anticipated March 2011. Phase 2: LD Workstreams to be determined pending completion of phase 1
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3. Community Access
Action Continuing to support development work on access to employment and performance of ESF employment services and purchased employability services
Timescale Phase 1: Completion of Building Closure anticipated March 2011. Phase 2: LD Workstreams to be determined pending completion of phase 1
4. Care Commission
Action Effective monitoring of services to establish how service providers and people in contact with service users deal with safety issues with regard to service users and staff
Timescale Phase 1: Completion of Building Closure anticipated March 2011. Phase 2: LD Workstreams to be determined pending completion of phase 1
5. Buildings
Action Ensure Building closure takes account of the equality needs of service users when identifying alternative centre locations and services
Timescale Phase 1: Completion of Building Closure anticipated March 2011. Phase 2: LD Workstreams to be determined pending completion of phase 1
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Action Make service information and guidance accessible to people with learning disabilities
Timescale Phase 1: Completion of Building Closure anticipated March 2011. Phase 2: LD Workstreams to be determined pending completion of phase 1 Phase 1: Completion of Building Closure anticipated March 2011. Phase 2: LD Workstreams to be determined pending completion of phase 1
Listening more to what people with learning disabilities say they want when planning services and meeting them in flexible ways
LD Strategic Group
7.Commissioning Providers
Action Ensure commissioning strategy takes account of the equality needs of service users when identifying providers and potential services.
Timescale Phase 1: Completion of Building Closure anticipated March 2011. Phase 2: LD Workstreams to be determined pending completion of phase 1
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8.Workforce Development
Action Providing appropriate equality and diversity awareness training for staff and other service providers in line with Council policy on equality
Timescale Phase 1: Completion of Building Closure anticipated March 2011. Phase 2: LD Workstreams to be determined pending completion of phase 1 Phase 1: Completion of Building Closure anticipated March 2011. Phase 2: LD Workstreams to be determined pending completion of phase 1 Phase 1: Completion of Building Closure anticipated March 2011. Phase 2: LD Workstreams to be determined pending completion of phase 1
LD Strategic Group
To ensure that the workforce reflects the cultural diversity of Glasgow within the constraints of the current necessary staffing and new recruitment freeze
Race-Ethnicity
Head of Corporate HR
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OTHER ISSUES TO BE CONSIDERED outwith existing Learning Disability Day Service Reform workstreams Workstream Personalisation
Timescale Phase 1: Completion of Building Closure anticipated March 2011. Phase 2: LD Workstreams to be determined pending completion of phase 1 Phase 1: Completion of Building Closure anticipated March 2011. Phase 2: LD Workstreams to be determined pending completion of phase 1 Phase 1: Completion of Building Closure anticipated March 2011. Phase 2: LD Workstreams to be determined pending completion of phase 1
Ensure the cultural and religious needs of service users are met
Implementing good practice in relation to work with young people in transition and in particular with reference to SDS
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Action Ensure that Care Management delivers effectively through thorough care assessment(particularly around Complex needs) and incorporates new duties around Self Direct Support
Timescale Phase 1: Completion of Building Closure anticipated March 2011. Phase 2: LD Workstreams to be determined pending completion of phase 1 Phase 1: Completion of Building Closure anticipated March 2011. Phase 2: LD Workstreams to be determined pending completion of phase 1 Phase 1: Completion of Building Closure anticipated March 2011. Phase 2: LD Workstreams to be determined pending completion of phase 1
Ensuring people with complex needs have a variety of experiences and opportunities to learn skills to be part of the community
LD Strategic Group
Sharing Good practice with Carers and Involving them in a service development and individual planning sessions where appropriate
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Action Monitoring and reporting on service usage by ethnicity/age/gender where information available
Timescale Phase 1: Completion of Building Closure anticipated March 2011. Phase 2: LD Workstreams to be determined pending completion of phase 1 Phase 1: Completion of Building Closure anticipated March 2011. Phase 2: LD Workstreams to be determined pending completion of phase 1
Developing and implementing initiatives to identify BME people with learning disabilities and their carers who are not accessing the service, especially older BME carers
Race-Ethnicity
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More people using mainstream leisure and transport Increase in the number people working towards employment Directory of leisure available to all services and service users
Carers issues
Carers Charter in place Number of carers assessments offered Number of carers involved with individual planning sessions Make sure more carers know about direct payments/individual budgets and what support they can have to get it even if they do not want to use them just now.
Staffing issues
Well trained staff in equality and diversity issues A flexible workforce
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To be completed after sending to services and stakeholders Detail changes proposed to your action plan in the light of this feedback To be completed after sending to services and stakeholders
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The Head of Adult Services will report on progress in implementing the Action Plan to the Health and Well-being Social Care and Equalities Policy Development Committee on an annual basis. These progress reports will cover the same ground as the above mentioned monitoring reports, and highlight any requirements to review or update the Action Plan. In order to link with other relevant strategies and plans, six-monthly reports, annual reports, reviews and any relevant reports will be submitted to the relevant joint planning structures to note or comment, for example, the CHCP Joint Partnership Board. The Senior Management Team has overall responsibility to ensure the effective implementation of this policy. All managers have a responsibility to ensure that equality issues are core to the planning and delivery of their services. Training will be provided to all employees to support them in their responsibility to promote equality and challenge discrimination in the course of their work.
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Appendix A
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A day service staff development day and five focused group meetings were held for day service staff. Two further group meetings were held for fieldwork and clinical staff. Discussions with Working together in the West indicated a strong preference to organising service user consultation via an independent provider. Fair Deal were commissioned to provide this service for which work commenced on the 18th March and is still underway. One event was held with Head Teachers from special schools and separate events were held with staff from Anniesland and Clydebank College.
Summary of Findings
The findings from all of the events gave a wide range of views, however some common themes emerged.
Transport
The current transport system was widely reported by all stakeholders as being inflexible and often unreliable. Individuals felt aggrieved that they were often prevented from participating in individual activities owing to transport arrangements dictating that several people needed to go to the same place. A response in one
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questionnaire highlighted that the current system is not only undesirable but is often stigmatising. There are examples where CHCPs use people carriers instead of Day Centre buses, which is considered as both more responsive to peoples needs and non-stigmatising. Transport was clearly identified as one area that required to be reviewed to ensure it was responsive to meet the needs of a modernised day service.
Main Themes
Existing Day Centres Employment and More Opportunities Transport Flexibility and Choice People with a Higher Level of Needs Process of Change and Involvement in Process
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Need for useful contacts where carers can obtain information about services Concerns about unhelpful attitudes of health care staff towards people with learning disability and their carers. More opportunities for people with learning disabilities and their carers to get access to advice around welfare benefits and other money matters Concerns that using Direct Payments and Independent Living Fund as a way of financing services could result in poor quality of care Concerns that the care management and/or key worker system is not working well Carry out audit of accessible facilities Involve carers in raising awareness among staff across the whole range of CHCP services around the needs of people with learning disabilities Involve carers in raising awareness among the public and private sector organisations
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Appendix B
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Appendix C
References Introduction
Declaration on the Rights of Disabled Persons. UN; 1975, Department of Health (1995) The Health of the Nation A Strategy for People with Learning Disabilities, London: HMSO as cited in, The same as you? A review of services for people with learning disabilities, The Scottish Government, May 11th 2000 http://www.scotland.gov.uk/ldsr/docs/tsay-03.asp#b2 SWIA Report and the Social Work Survey (2001 Working for a Change? (Same As You Implementation Group - 2003) Changing Lives 21st Century Social Work Review (Scottish Executive 2004) Make My Day! (Same As You Implementation Group - 2006) How is it going? (SCLD 2006) Whats out there? (SCLD 2009)
Learning Disabilities
CHCP Demographics (2009) Social Work Services Publication Mental Retardation 1989 World Health Organisation Roeleveld et al (1997): The prevalence of mental retardation: a critical review of recent literature Department of Health (1995) The Health of the Nation A Strategy for People with Learning Disabilities, London: HMSO
Race/Ethnicity
Ghazala Mir, Andrew Nocon and Waqar Ahmad, with Lesley Jones (2001) Learning Difficulties and Ethnicity: London: Department of Health Hubert, Jane (May 2006) Family carers' views of services for people with learning disabilities from Black and minority ethnic groups: a qualitative study of 30 families in a south London borough Taylor, S (2009) Administration Meeting at Barnardos, Albert Drive, Glasgow Learning Disability Partnership. NHS Greater Glasgow and Clyde Health Board. Nadirshaw, Z. (1997) Cultural issues. In Adults with Learning Disabilities: A Practical Approach for Health Professionals (eds J. OHara & A. Sperlinger), pp. 139153. Chichester: John Wiley & Sons. Karlsen, S. & Nazroo, J. Y. (2002) Agency and structure: the impact of ethnic identity and racism on the health of ethnic minority people. Sociology of Health and Illness, 24, 120.
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Ghizala Avan and Farkhanda Chaudhry (2009) Whats Out There? Ex Anima Training & Research Consultancy Azmi, S., Hatton, C., Emerson, E., et al (1997) Listening to adolescents and adults with intellectual disability in South Asian communities. Journal of Applied Research in Intellectual Disability, 10, 250263. Ethnic Enable: http://glasgow.radioramadhan.com/files/EthnicEnable.doc. http://www.iriss.ac.uk/files/iriss-fc-3-furrah-2008-06-17.ppt. http://glasgow.radioramadhan.com/files/EthnicEnable.doc. http://www.iriss.ac.uk/files/iriss-fc-3-furrah-2008-06-17.ppt. http://www.nwtdt.com/Events/Raising%20Aw%20of%20Learn%20Dis%20v2.pdf Kusminder Chahal (2004) Experiencing Ethnicity: Discrimination and Service Provision
Gender
Emerson et al, (1997) Is there an increased prevalence of severe learning disabilities among British Asians? Ethnicity and Health 2, 317-21. Brenda Ellis (1995) - The experiences of disabled women Beyer, S. Goodere, L., & Kilsby, M. (1996). The costs and benefits of supported employment agencies: Findings from a national survey. (Employment Service Research Series, No. 37). London: Stationery Office. Shelly Botuck, Joel M Levy, Arie Rimmerman; The Journal of Rehabilitation, vol. 64, 1998 - Post-Placement Outcomes in Competitive Employment: How Do Urban Young Adults with Developmental Disabilities Fare over Time? Levy, J.M., Botuck, S., Levy, P.H., Kramer, M.E., Murphy, B.S. and Rimmerman, A. (1994.) Differences in job placements between men and women with mental retardation. Disability and Rehabilitation, 16, 2, 53 57.
Age
Institute for Health Research, Lancaster University (2004) Valuing People, Department of Health (2001 Department of Health (1995) The Health of the Nation A Strategy for People with Learning Disabilities, London: HMSO as cited in, The same as you? A review of services for people with learning disabilities, The Scottish Government, May 11th 2000 http://www.scotland.gov.uk/ldsr/docs/tsay-03.asp#b2 Rimmerman, A., Botuck, S. and Levy, J.M. (1995a). Job placement of urban youth with developmental disabilities: research and implications. Journal of rehabilitation, 62, 1, 56-64. Faubion, C.W. and Andrew, J. (2000): A systems analysis of the case-coordinator model and an outcome analysis in supported employment.
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Joseph Rowntree Foundation Services for Older People with Learning Difficulties Jane Fitzgerald -1998 Mencap, Housing Time Bomb (2002)
Sexual Orientation
Department of Health (2007) Valuing People Now: From progress to transformation [online]. Available from: http://www.dh.gov.uk/en/Consultations/ LiveConsultations/DH_081014 (accessed January2010). National Disability Authority (2005) Disability and Sexual Orientation: A discussion paper, National Disability Authority, Dublin. www.nda.ie Abbott, D and Howarth, J (2005) Secret Loves, Hidden Lives: Exploring issues for people with learning diffi culties who are gay, lesbian or bisexual, Policy Press, Bristol. Brothers, M (2003) Not Just Ramps and Braille: Disability and sexual orientation, ReThinking Identity: The challenge of diversity (4964). www.ihrc.ie Beyond Barriers (2002) First Out: Report of the Beyond Barriers survey of lesbian, gay, bisexual and transgender people in Scotland, Beyond Barriers, Glasgow. www.beyondbarriers.org.uk Rainbow Ripples and Butler, R (2006) The Rainbow Ripples Report: Lesbian, gay and bisexual disabled peoples experiences of service provision in Leeds, Rainbow Ripples, Leeds. www.rainbowripples.org.uk/the_rainbow_ ripples_report.pdf Shakespeare, T, Gillespie-Sells, K and Davies, D (1996) The Sexual Politics of Disability: Untold desires, Cassell, London. Valuing People, Department of Health (2001) Valuing People Now, Department of Health (2007) Carson I & Blyth C (2009) Lonely hearts need a helping hand. Learning Disability Today April 2009 1821.
Religion or Belief
Summers, S.J. and Jones, J. (2004) Cross-cultural working in community learning disabilities services: clinical issues, dilemmas and tensions, Journal of Intellectual Disability Research, vol 48, no 7, pp 687694. Hatton, c et al (2004) Religious Expression: A fundamental human right OHara, Jean (Royal College of Psychiatrists 2003) Learning Disabilities and Ethnicity: achieving cultural competence
Socio-Economic Inequalities
Department of Health (1995) The Health of the Nation A Strategy for People with Learning Disabilities, London: HMSO as cited in, The same as you? A review of services for people with learning disabilities, The Scottish Government, May 11th 2000 http://www.scotland.gov.uk/ldsr/docs/tsay-03.asp#b2
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Prime Minister's Strategy Unit Report to Transform the Life Chances of Disabled People. 19 January 2005. CAB 002/05. www.cabinetoffice.gov.uk/.../2005/050119_disabled.aspx English House Condition Survey Technical Report (2005 Edition). Published: 4 September 2007; Site: Housing Ghazala Mir, Andrew Nocon and Waqar Ahmad, with Lesley Jones (2001) Learning Difficulties and Ethnicity: London: Department of Health Butt, J. & Mirza, K. (1996) Social Care and Black Communities. London: HMSO. Advances in Psychiatric Treatment (2003), vol 9 (Disability in Scotland 2005-2020: a state of the Nation Report, DRC 2005
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Appendix D
Equality Legislation
Below is a list of KEY legislation in terms of Equality. The list is not exhaustive and will change as new Acts are introduced or existing Acts are amended.
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Codes of practice
Race Equality Duty, Statutory Code of Practice, Scotland, 2002 Disability Equality Duty, Statutory Code of Practice, Scotland, 2006 Gender Equality Duty, Statutory Code of Practice, Scotland, 2007 The above Codes of Practice give practical guidance to public authorities on how to meet the duties imposed on them to promote equality in terms of Race, Disability and Gender. The Codes do not impose legal obligations. They are statutory Codes which means that they have been approved by Parliament and are admissible as evidence in legal proceedings under any of the Acts in relation to Race, Disability and Gender equality.
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