Chronic Fatigue Syndrome (CFID)

Issue
Candida (yeast Infection)

Implications

Supports (Medication and/or Supplementation)

ThreeLac

Research
Dr Walt Stoll's site Many people have been asking for a mechanism for the depressed immunity seen in people who eat sugar and other refined carbohydrates. Many are known but the Leukocytic Index is an especially helpful one for many people to begin to take this health risk seriously. More than 20 years ago a large study [ "Sucrose, Neutrophilic Phagocytosis, and Resistance to Disease", Ringsdorf, Cheraskin and Ramsey; Dent. Surv. 52: #12, 46-48, December, 1976 ] was published about the effects of refined carbohydrates (of which sweets are the worst) on the leukocytic index. Our white cells are the most important factors in protecting us from invading organisms. The leukocytic index is a measure of how many organisms one white blood cell (WBC) can eat in an hour. Therefore an index of 10 means that that one WBC ate 10 organisms in THAT hour. The average LI (leukocytic index) in the USA--and remember, average is not as healthy as one can get--is about 13.9. Within 15 minutes, after an individual eats the amount of refined carbohydrates normally ingested in the evening meal --about 100 grams, the leukocytic index drops to about 1.4. Depending on the genetic susceptibility to this problem, it might be better or worse--this is just an average. Diabetics ALWAYS have a LI of less than 2. That means: the average person loses more than 90% of their immune function within 15 minutes of indulging in this poisonous substance. This deficiency lasts for about 2 hours after the stress occurs .

Issue
Viral Infections

Implications

Supports (Medication and/or Supplementation)

Valtrex Famvir Acyclovir

Research
My pharmacist said the Famvir was newer and more effective than Valtrex or Acyclovir. I only take AV's when I am sick now. Instead, I pulse transfer factors. Most of the time, one takes the AV's for a period of time and then stops them for a bit and starts them again. If symptoms return when they are stopped, one has to start them again. Anything which kills pathogens usually works better if taken straight for a while initially and then pulsed. It keeps the pathogens confused. Also, taking probiotics, colostrum, and undenatured whey help build up the immune system so it can work on its own eventually.

Issue
EBV HHV-6 mycoplasma

Implications

Supports (Medication and/or Supplementation)

Transfer Factors test was antibodies by ELISA

Famvir/Doxycycline regime

Research
Some docs have given our members AV's and transfer factors at the same time, but I think it is counterproductive. The TF's need time to train the immune system and if the AV's kill off any trace of the pathogen's transfer info, the immune system never has the chance to learn to identify and kill the pathogens. This is especially true for the TF's which target specific pathogens, IMHO. The TF's are usually taken for three months and then only pulsed a couple of days every six weeks. This is

how I take mine. I still Herx when I pulse them, but the Herxes are less and less severe. The TF's are really powerful and produce strong immune reactions in the beginning. It was a full month before I could even tolerate a full capsule. Work better if pulsed, after an initial period of taking them all the time. It's trial and error to see how long one can go without the symptoms' returning. Six weeks on and two weeks off in the beginning is a good way to start. The TF's elicit such a strong immune reaction because they are bugging the immune system to recognize them that I think it's good to reduce the pathogen load with antivirals first before going on the TF's. If one has had a chronic infection for a long time, hypercoagulation can also be a problem which should be addressed. The HEMEX Lab website has excellent info on how to get the tests done. My doc and I just had me do the Heparin empirically and it did help. He Heparin causes strong Herxing too. TF's are taken for three months and then one pulses them for a couple of days every four to six weeks. Some here have felt so well on the TF's, after the initial immune response, that they just take them all the time. I still think they are better pulsed, especially once the body is in better control.

Issue mycoplasma infections Research

Implications

Supports (Medication and/or Supplementation) ABX treatment protocol

Some docs have given our members AV's and transfer factors at the same time, but I think it is counterproductive. The TF's need time to train the immune system and if the AV's kill off any trace of the pathogen's transfer info, the immune system never has the chance to learn to identify and kill the pathogens. This is especially true for the TF's which target specific pathogens, IMHO. The TF's are usually taken for three months and then only pulsed a couple of days every six weeks. This is how I take mine. I still Herx when I pulse them, but the Herxes are less and less severe. The TF's are really powerful and produce strong immune reactions in the beginning. It was a full month before I could even tolerate a full capsule. Work better if pulsed, after an initial period of taking them all the time. It's trial and error to see how long one can go without the symptoms' returning. Six weeks on and two weeks off in the beginning is a good way to start. The TF's elicit such a strong immune reaction because they are bugging the immune system to recognize them that I think it's good to reduce the pathogen load with antivirals first before going on the TF's. If one has had a chronic infection for a long time, hypercoagulation can also be a problem which should be addressed. The HEMEX Lab website has excellent info on how to get the tests done. My doc and I just had me do the Heparin empirically and it did help. He Heparin causes strong Herxing too. TF's are taken for three months and then one pulses them for a couple of days every four to six weeks. Some here have felt so well on the TF's, after the initial immune response, that they just take them all the time. I still think they are better pulsed, especially once the body is in better control.

You might like to check out the web site RemedyFind.com lots of people evaluate lots of meds. for lots of conditions. It make interesting and informative reading.

Klonopin

12/13/05 08:47 AM

is the only thing I take which I can definitely say helps me. I take a lot of other vitamins & supplements, but I can't say whether they help that much or not. However, if I forget to take the Klonopin, I definitely notice. I have CFS and it's the only thing that helps me with the lightheadedness which has plagued me since I got sick.

We all know what helps one may not help another, this can be put down to genetics and the various factors that make and keep us ill. Over the years it has always taken a combo even though I keep hoping otherwise. Vitamin D3 and balanced electrolytes have been important, adding those seemed to bring about further rebalancing of my immune and endocrine systems. If I were starting afresh these would be a priority. It took me a long time to find what really made a difference.

Melatonin-sublingual by source naturals-2.5

Mixture
1/ 2/ 3/ 4/ Amitryptilyne Synthroid Oxycontin time released Flexeril
12/14/05 01:02 PM

Non medicinal L-Tryptophan GreensPlus Energy Assorted supplements One of the most helpful things is actually not medication nor supplement .. Yoga .. tailored to my individual needs .. deep stretching .. I can get out of bed and walk without that gnawing pain .. when I miss a few nights the muscle tension and pain is remarkable .. Every one is so different .. it takes a lot of guts and fortitude to keep trying different things to find out what works for you .. when I stop trying .. it is then I know I am in real trouble. Fudge : ) PJ days and a bit of chocolate goes a long way too !!!

My top things that help would be

Herbals/Naturals: 1. Probiotics 2. The Shake (Stormyskye's Shake) 3. Garlic 4. Peaceful Nights/ZMA 5. Ultimate Greens (still deciding if this helps or not) Meds: 1. T3 compounded thyroid 2. Cortef 3. Ambien 4. oxycodone Katy

12/14/05 02:53 PM

Drugs, Herbs & Therapies that have worked for me

12/14/05 03:05 PM

I have FMS and this is what has worked for me 1. Topamax - helps with migraines, vertigo, dizziness and resulting daily nausea that lasted for 8 months - reduced it by aprox. 90%. It also makes me sleepy at night so falling asleep is easy. Too bad it doesn't keep me asleep all night as I wake up every few hours all night. 2. Fatigued to Fantastic Energy Supplement Drink, B complex vitamin, Acetyl LCarnitine, N-Acetyl Cysteine, Omega 3 Fish Oil, Vit. B-12 shots. This combination of supplements has restored some of my energy since I started it a little over a month ago. My exercise tolerance and endurance increased as well until I took a week off because of kidney problems. It has been hard going since that week, but I have persisted and am confident that energy level will be restored. I couldn't name just one because it's the combination that works together so it's hard to see exactly which one is the most beneficial. 3. Diet Changes - I had to modify my diet to find what foods triggered migraines and discovered they also flared my FMS sx. Things like MSG, cheese, bacon, sugar, Splenda, chocolate, pizza, and others I can't remember right now. I eliminate them for awhile then splurge and find they flare either a migraine, burning pain or muscle tendon pain. It sucks not to eat my former favorite foods without having consequences and paying a price. 4. Exercise - My favorite has been water exercise at a pool program approved by the Arthritis foundation. It's heated to 92% and I feel so good when I leave. I also enjoy my Yoga classes and a Chi-ball aerobics class. I try and get 4 - 5 cardio workouts a week on an eliptical or stationary bike as well. Losing 60 pounds this last year I'm sure has helped my joints after an ankle and knee injury. I still have daily pain in them, but it could be a lot worse if I hadn't made any changes. I still have 70 pounds to go. Jeanette

Paraphrasing from Dr. Rind....

05/04/03 02:48 PM

...if you treat the thyroid first, the treatment forces the failing adrenals to push even harder, so the improvement from the thyroid treatment will be short-lived, since the adrenals will become even more exhausted and those symptoms will worsen. Klutzo

And this website. Dr. Garth Nicolson's Immed website has good info on mycoplasma infections, how to get tested for them, and the ABX treatment protocol. The HEMEX Lab website has similar info on hypercoagulation. You can also do a web search on mycoplasmas, Lyme, and stealth viruses to find more info. There is a ton of info available. I spent hours and hours researching these things. The beauty of the FFC's is that they do all the testing in one place. I know Canadians come to the U.S. and see docs but I don't know how this is handled with the Canadian healthcare system. At the FFC's, you have to pay up front and collect from any third-party yourself. Start with your worst symptom and try to treat that first. With those of us with CFIDS, that is usually sleep and energy. Then, go to the next worst symptom. I has taken 4 1/2 years to formulate my own regimen. If I had had the FFC's available, it would have saved me a lot of time and research. Nothing is going to be "the answer" for all of us but I do believe that, with the right treatments, most of us can improve. I am not well--yet but 5 years ago, I was on morphine for pain and bedridden most of the time. After the First of the year, I am going to the state rehab dept to see about some kind of part-time work.