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TEKTIC WORKSHOP 2009

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FOREWORD

This workshop was brought to you by the partnership of the following institutions: A

Page 2 “ICT 4 HPE” Illustration by Nelson Shen


Dear Participant:

On behalf of the Technology Enabled Knowledge Translation Investigative Centre


(TEKTIC) research team, we would like to welcome you to our invitational forum
“Using Information and Communication Technologies for ‘Healthy’ Patient Engagement.”
We would like to also recognize our appreciation for the Michael Smith Foundation
who has supported TEKTIC through their Infrastructure Program since 2006. This
ongoing support has given our research team the opportunity to conduct innovative
eHealth research in the areas of eLearning and evidence based policy translation.
More importantly, TEKTIC has enabled our group carry out various knowledge
exchange activities and share ideas, all of which supports the continuous co-creation
of many exciting research initiatives. The theme of today’s workshop is an important and timely one to explore,
and we appreciate your interest in joining us in this dialogue. We look forward to interacting with you not only
today at the forum, but also in the future in an effort to continue optimizing health care and outcomes through
active patient engagement, excellence in health service delivery, and acceleration of translated research evidence
into routine care— all enabled by the ongoing advances in information and communication technologies.

Sincerely,

Kendall Ho,
MD FRCPC
Executive Director, TEKTIC
Associate Professor, Emergency Medicine
Faculty of Medicine
University of British Columbia

Tel:+1.604.875.4111 ext 69153


Fax: +1.604.875.5083
e-mail: Kendall.Ho@ubc.ca

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GUEST SPEAKERS
Preamble:
Ms. Mary Martin,
Councillor, Surrey City Council

Since her election to Surrey City Council in 2005, Councillor Mary Martin has worked A
hard to bring Surrey’s diverse community together. Councillor Martin is dedicated
to ensuring the adequate and proper care of City residents, and has used her 20 years
of experience in the medical field to lead highly successful fundraising campaigns for
hospital foundations.
A
Councillor Martin’s involvement in community work began while raising her three children. She has served as
Co-Chair of the first PAC at Brookside Elementary in Newton, as Chair of the Parish Education Committee
Board at Cloverdale Catholic School, and as Secretary and Treasurer of Kids Help Phone, which she helped A
launch in South Surrey/White Rock.

Councillor Martin is currently an appointed member of the following City of Surrey committees: Finance,
Public Safety, Parks and Community Services Committee (Chair), Multicultural Advisory Committee
(Deputy Chair), Mayor’s Committee on Health Care (Chair), Mayor's Committee on Arts and Culture, and
Mayor's Committee Crime Reduction Working Group.

In addition, Councillor Martin has been appointed to the following community organizations: Semiahmoo
A
House Society (Board Member), City Liaison of Surrey Memorial Hospital Foundation, Representative of
the Fraser Health/Municipal Government Advisory Council, Peace Arch Hospital Foundation - City Liaison,
and Honorary Board Member of the Surrey Hospice Society
(
Councillor Martin serves as an Alternate on the Metro Vancouver Board of Directors.

As a Surrey resident for the past 18 years, Councillor Martin, her husband Tony and family feel blessed to live
in such a beautiful, dynamic city and believe that community service is the key to building any great city.

Councillor Martin is a member of the Surrey First Coalition.

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! Speaker
! #1
Dr. Antoine Geissbuhler,
Professor and Chairman, Deparment of Radiology and Medical Informatics,
Geneva University Hospitals

Antoine Geissbuhler is a Professor of Medical Informatics, Chairman of the Department


of Radiology and Medical Informatics at Geneva University, Director of the Division of
Medical Informatics at Geneva University Hospitals, and President of the Health-On-the-Net
Foundation. He is also President-elect of the International Medical Informatics Association
and member of the HIMSS Europe Governing Council.

A Philips European Young Scientist first award laureate, he graduated from Geneva University
School of Medicine in 1991 and received his doctorate for work on tri-dimensional reconstruction of positron
emission tomography images. He then specialized in internal medicine under the direction of Prof. Francis Waldvogel.
After a post-doctoral fellowship in medical informatics at the University of Pittsburgh and Vanderbilt University, he
became associate professor of biomedical informatics and vice-chairman of the Division of Biomedical Informatics
at Vanderbilt University Medical Center, under the mentorship of Prof. Randolph Miller and Prof. William Stead,
, working primarily on the development of clinical information systems and knowledge-management tools. In 1999,
he returned to Geneva to head the Medical Informatics Service in Geneva University Hospitals and School of
Medicine, following in the steps of Prof. Jean-Raoul Scherrer who founded this world-renowned group. In 2005,
his efforts in developing telemedicine and tele-education were recognized by the creation of the UNESCO chair
for telemedicine and multidisciplinary teaching.

Author of more than 100 original scientific publications in peer-reviewed scientific journals, his current research
focuses on the development of innovative, knowledge-enabled information systems and computer-based tools for
, improving the quality, safety and efficiency of care processes, at the local level of the hospital, the regional level
of a community healthcare informatics network, and at the global level with the Health-On-the-Net Foundation
(http://www.hon.ch) and with the development of a south-south telemedicine network in Africa (http://raft.hcuge.
ch). He is the President-elect of the International Medical Informatics Association and is one of the editors of the
International Journal of Medical Informatics and of the IMIA Yearbook of Medical Informatics.

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Speaker #2
Dr. Cameron Norman
Assistant Professor,
Department of Public Health Science, University of Toronto
Director of Evaluation, Peter A. Silverman Global eHealth Program

Cameron Norman is an Assistant Professor in the Department of Public Health Sciences at


the University of Toronto, Director of Evaluation with the Peter A. Silverman Global eHealth
Program, and the principal investigator of Youth Voices Research, the youth engagement
unit of the Centre for Health Promotion.
!
The focus of his research is on understanding how people work together across boundaries to solve health problems
and how information technologies can aid learning and collaboration across time, physical space, social status, and
culture to improve health and wellbeing. His research places emphasis on engaging youth and young adults in health
promotion; exploration of the necessary skills and organizational supports required for the public and professionals
alike to fully participate in health decisions using information technology (eHealth); and how electronic social
networks connect people -professionals and patients alike - and ideas together to translate knowledge into improved
wellbeing for all. T

Dr Norman holds undergraduate and Master’s degrees in psychology, a PhD in public health sciences from the
University of Toronto and completed a post-doctoral fellowship in Systems Thinking and Knowledge Translation W
jointly at the University of British Columbia in Vancouver and the Centre for Global eHealth Innovation in
Toronto.

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Speaker #3
Dr. Gerri Sinclair
CEO and Executive Director of Digital Media Program,
Centre for Digital Media

Gerri Sinclair is currently the Executive Director of the Masters of Digital Media Program,
t as well as the CEO of the Centre for Digital Media, a collaborative partnership between
h the University of B.C., Simon Fraser University, Emily Carr Institute of Art + Design, and
t the B.C. Institute of Technology. Most recently she was the Chair of the Canadian Federal
Government’s Telecom Policy Review Panel, advising the Federal Government on the future
policy and regulatory environment required to support an advanced telecommunications
s framework. She was also the General Manager of MSN Canada and a senior member of the Microsoft executive
d team, as well as the founder and CEO of NCompass Labs, an Internet content management company acquired
h by Microsoft in 2001. A former visiting scientist at IBM Research, Dr. Sinclair was also the president of the
s British Columbia Government Premier’s Technology Council, and the founding director of the ExCITE lab at
l Simon Fraser University, the first multimedia educational technology centre in Canada. She has served on several
d government and corporate boards including Telus Corporation and BC Telecom, and is currently a director of the
Toronto Stock Exchange, Ballard Power, and the Canadian Social Sciences and Humanities Research Council.

She is the recipient of the YWCA Woman of Distinction award, the Canadian Women in Communications’
n Woman of the Year award, the Canadian Women in New Media Pioneer award, the Influential Woman in Business
n award, the Sarah Kirke award for the most outstanding Canadian woman in High Tech, the 2005 Canadian
Consumer Choice Award for Business Woman of the Year, and most recently the 2008 Canadian Public Policy
Forum Testimonial Award. She holds a Ph.D. in Renaissance drama as well as an honorary Doctor of Science in
Computer Science from the University of British Columbia.

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C
Speaker #4
TELUS
Representative from Telus Health Solutions, Telus

TELUS Health Solutions – backed by Emergis, have a simple promise: to help lead the
change in Canadian healthcare through innovative and proven information communication
technology (ICT). We have years of expertise in successfully implementing healthcare
applications and ICT processes through our industry leading consulting services for
customers across Canada and around the world. Our solutions are backed by over 1,000
team members, including clinicians.

We power hospital-to-home technology solutions that are shifting healthcare’s focus from remediation to
prevention. Our robust wireless and wireline networks and data centres span the country. We facilitate
collaboration between caregivers through secure, timely and reliable data transmission, including electronic
health records for five million Canadians.

We can connect health professionals with patient records at the point of care, so that practitioners of every
description can instantly access everything they need to know about the patient they’re treating for better
decision making and improved outcomes.

By optimizing the efficiency of caregivers with our pharmacy solutions, we’re helping pharmacists across Canada
better manage every aspect of their operations, including, most critically, access to essential drug and medical
information. In doing so, we add capacity and capability to the Canadian healthcare system.

We provide leading claims management solutions for private group insurers and public government payers.
With strategic initiatives like our multi-benefit claims management solution, we continue to invest in areas
that increase the value of our offerings to existing insurance company customers and help them to attract new
ones.

In January 2008, TELUS demonstrated its strategic commitment to healthcare with the acquisition of Emergis.
By coming together and taking a unified brand approach, as TELUS Health Solutions, we are able to marry
the highly effective complementary expertise of both teams. At TELUS Health Solutions, we help you use
information for life.

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COMMENTS FROM DR. SCOTT
TEKTIC is familiar with the need for involvement of individuals and communities in
decision-making processes, and several TEKTIC members already research or actively
practice various aspects of public engagement. Mid-morning we will have an opportunity
to learn from several TEKTIC researchers and their colleagues. Michal Fedeles will
e
explain how actually involving patients early in the process of ICT implementation,
n
helping them understand how ICTs are – or could be – used, can be empowering and
lead to the public becoming advocates for appropriate technology use. Sandra Jarvis-
r
Selinger will describe research that is helping to understand the respectful processes and
0
active participation needed to introduce Community Learning Centres into Aboriginal
and First Nations communities to promote community health, and to then assess
their impact. This session will close with Kendall Ho Helen Novak Lauscher showcasing how TEKTIC was
able to contribute to an extension of an existing study (iCON – Chinese On-Line Health Network) through
c actively engaging the local Chinese community in the design of a personal health record portal, while learning
important lessons about the value and generalisability of this approach.

y We will conclude the workshop with a facilitated discussion. The workshop used the term ‘healthy engage-
r ment’ as a deliberate double entendre – we wish to engage the public around ‘healthy’ related issues, and to
have a positive outcome we need the engagement itself to be ‘healthy’. While we can – and are – learning
from other settings, we need a collective understanding of answers to “who, why, what, where, when ….
and how”. To do this, the tables will be turned. Questions will be asked of the audience to tease out the an-
l swers. Your participation in the workshop begins to answer ‘who’, and the experts will have explained ‘why’.
But ‘what’ do we wish to achieve, ‘where’ are we headed, ‘when’ do we need to get there, and most impor-
tantly ‘how’ are we going to do this? So many questions come to mind. Do we need or want to engage every-
. one, or do we need to focus on aging baby-boomers or perhaps Generation Y? (“Generation Y”, the largest
generation since the boomers, are growing rapidly; by 2014 - just 5 years from now - there will be nearly 63M
w Generation Y employees in the workforce, while the number of baby boomers will drop to less than 48M).
And when we embark on ‘healthy engagement’ with the public - just how much do we tell? (Too little and
we are considered patronising or to be hiding something; but too much and we are likely to confuse; staged
.
engagement may sound tempting, but that becomes complex and costly.) Tempting though such questions
y
are, we will focus instead on creating a roadmap to guide our journey to healthy public engagement, seeking
e
to identify key ‘signs’ to guide, roadblocks to avoid, and perhaps opportunities to travel paths less trod!

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PATIENT ENGAGEMENT PROJECTS
TEKTIC Project #1: information available to with health resources, and
community members. We hope collect/analyze outcome and
Engaging Patients
that these sessions will enhance process data at each learning
and the Community: the public’s digital literacy in centre. Funding from TEKTIC
(e)Literacy for both urban and rural settings, has enabled CLC to expand to
Better Health ultimately contributing to health new Aboriginal communities
Presenters: and well-being. and has also allowed researchers
Dr. Michal Fedeles & to host other community
Katherine Wisener engagement events such as the
KCLC Music Workshop.
Information and communication TEKTIC Project #2:
technologies (ICT) play a crucial
role in facilitating quality health
Community Learning
Centres (CLC) TEKTIC Project #3:
care, education, and research.
The first two phases of this Presenter: Public Engagement
project are comprised of: (1) a Dr. Sandra Jarvis-Selinger with Multicultural
needs assessment with the public Communities via
The Ktunaxa Community
to understand their technical
literacy around health; (2) three
Learning Centres (KCLC) Multimedia Channels
project is a three year CIHR Presenters:
interactive sessions providing
funded initiative that evaluates Dr. Kendall Ho &
participants with resources and
the design and implementation Dr. Helen Novak Lauscher
training on how to search for
of four Community Learning
health information online. Phase
Centres (CLC) in British Intercultural Online Health
three builds upon the model
Columbia’s Ktunaxa Nation. Network (iCON) is a
developed from the first two
Each CLC was created to community-engaged project,
phases and extends its reach to
provide community members focused on health education
Aboriginal communities. It will
and community health in multicultural communities
focus on applying the interactive
professionals with culturally in Greater Vancouver. The
sessions to community-based
relevant health information and aim of the iCON project is
health professionals, non-health
resources. Community-based to improve the knowledge,
professionals and research leads,
research and technical personnel attitude and skills within BC’s
who can then build capacity in
currently support day-to-day Chinese- and Punjabi-speaking
their communities by making
operations, create and connect

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population to optimize self- of Health Sciences at Simon implementation of a research
care in the management and Fraser University. He also serves project entitled ‘Community
prevention of chronic diseases as facilitator and trainer with the Learning Centres: A Model of
through an innovative and UBC Centre for Teaching and Community Engagement in
interactive patient health Academic Growth and as Health, Education and
informatics solution. This educational consultant (Six Training”.
initiative is conducted through Interactions).
a multi-stage and multi-channel Dr. Kendall Ho is the Executive
engagement strategy via public Katherine Wisener is a Director of the TEKTIC. He is
forums and interactive websites. Researcher with the eHealth also the founding Director of the
Through these channels, Strategy Office within the eHealth Strategy Office within
culturally relevant, linguistically Faculty of Medicine at UBC. the Faculty of Medicine at UBC
appropriate patient-centred Her research interests include and a practicing emergency
educational materials are co- program evaluation, community- medicine specialist at Vancouver
developed with community and based research, childhood General Hospital.
are disseminated to patients. development, and technology.
Through support from TEKTIC, Dr. Helen Novak Lauscher is
additional investigation into Dr. Sandra Jarvis-Selinger is the Assistant Director of
integrating technologies into the Associate Director of Research in the eHealth Strategy
healthcare from a patient Education at the eHealth Office within the Faculty of
perspective have been Strategy Office and an Assistant Medicine at University of British
conducted. These technologies Professor in the Department of Columbia. Her work at the
include personal health records Surgery with the Faculty of eHealth Strategy Office involves
and Web 2.0 applications. Medicine at UBC. In 2008, leading an interdisciplinary
Sandra was the recipient of the research team working on
Michael Smith Foundation of projects in the areas of
Health Research Career technology-enabled knowledge
Investigator Award. She is also translation in health professional
About our Presenters: the nominated principal practice and education,
investigator of a Canadian participatory community-based
Dr. Michal Fedeles is the Institutes of Health Research health research, and program
Director of Continuing Health three-year grant to explore the evaluation.
Education and Adjunct Professor development and

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ABOUT US
setting – known as eHealth – and communication
can be used most effectively, technologies (ICT) can be
and accelerate the translation used effectively to accelerate
of health research evidence into the translation of health
routine health care practice research evidence into
and implementation into the routine practice and health
health system. Through on system implementation.
going exploration in five key
research theme areas (human OBJECTIVES AND
The Technology Enabled technology interface; technology RESEARCH FOCUS
Knowledge Translation demonstration, research Through ongoing research
Investigative Centre (TEKTIC) synchronization, evidence based grounded in five key objectives,
is a collaborative group policy translation; and capacity TEKTIC explores the potential
supported by the Research building), TEKTIC will be of technology-enabled
Unit Infrastructure Award able to assist in providing best solutions for health systems,
granted by the Michael Smith practices for sustainability of education, and knowledge
Foundation for Health Research the integration of technologies translation. The founding
(MSFHR) in 2006. Members in health care contexts and objectives of TEKTIC are:
include researchers, clinicians, building caring relationships.
academics, decision makers, Objective 1: Human-technology
information technology MEMBERS interface - usability and data
specialists and trainees from TEKTIC’s members represent visualization - to examine the
various institutions and a diversity of perspectives and interface between humans
organizations. TEKTIC began professional training. Each and technological tools to
with 16 original members from individual brings expertise and optimize ICT integration
5 different institutions. The experience that affords the unit in healthcare contexts.
team has now grown to include a strong human infrastructure
over 25 members representing to be successful in its activities. Objective 2: Technology
8 different organizations demonstration - to design,
MISSION AND VISION develop, and evaluate
TEKTIC seeks to understand, The mission of TEKTIC is information technologies
explore and innovate on how to understand, explore, and intended to enhance
ICTs used within a healthcare innovate on how information clinical practice.

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Objective 3: Research KNOWLEDGE FUTURE DIRECTIONS
synchronization for effective TRANSLATION AND TEKTIC has achieved early
knowledge dissemination DISSEMINATION success in the emerging and
and change management - to rapidly evolving field of
ACTIVITIES
understand and coordinate technology-enabled knowledge
TEKTIC has a responsibility to
efforts towards effective systems- translation. We have taken
promote knowledge exchange
based knowledge translation. advantage of opportunities for
between fellow academic
researchers, health professionals, interdisciplinary collaboration
Objective 4: eHealth evidence which has solidified the process
policy- and decision makers, and
based policy translation - to and enriched the outcomes. We
the public. Knowledge sharing
assist health policy makers in are determined to build on this
and dissemination of research
incorporating eHealth evidence success and continue to generate
activities within TEKTIC occur
into policy innovation. significant contributions to BC’s
at both a project and unit level.
Research project dissemination health research by designing,
Objective 5: Capacity building - evaluating, and advocating
activities include public forums,
to nurture existing and emerging ground breaking technology-
eCommunities of Practice and
researchers interested in the enabled solutions for achieving
websites. Unit dissemination
exploration of ICT in promoting excellence in our health system.
activities include the TEKTIC
knowledge translation.
Elluminate Sessions* and The * External partners are welcome to join
TICr* - our monthly online the Elluminate sessions and subscribe to
Currently there are 34 projects
knowledge sharing series and the TICr. For more information please
within TEKTIC’s research visit www.TEKTIC.ca or email Jennifer
our monthly eMagazine.
portfolio. Each individual Cordeiro at jennifer.c@ubc.ca .
researcher project cuts across five
research objectives differently.
Sub-themes that have emerged in
TEKTIC’s work include: public
engagement, Aboriginal health,
health literacy, interprofessional
education and practice,
electronic communities of
practice, innovations in medical
school curriculum, professional
development, and global health.

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TEKTIC MEMBERS
Founding Members Francis Lau,
Associate Professor and Graduate Advisor,
School of Health Information Science,
Kendall Ho,
University of Victoria
TEKTIC Executive Director
Director, eHealth Strategy Office, UBC
Malcolm Maclure,
Assistant Professor, Division of Emergency
Adjunct Professor,
Medicine, Vancouver General Hospital
School of Health Information Science,
University of Victoria
Lesley Bainbridge,
Manager of Research,
Director, Interprofessional Education,
Pharmaceutical Services Division,
Faculty of Medicine, UBC
B.C. Ministry of Health
Michal Fedeles,
Raymond Ng,
Director, Continuing Health Education,
Professor, Department of Computer Science, UBC
Simon Fraser University
Anne Nguyen,
Sandra Jarvis-Selinger,
Director, Evaluation Drug Use Optimization,
Assistant Professor, Department of Surgery, UBC
Pharmaceutical Services Division,
Associate Director of Education, eHealth Strategy
BC Ministry of Health
Office, UBC
Helen Novak
Harry Karlinsky,
Lauscher,
Clinical Professor and Medical Director,
Assistant Director of Research,
BC Physician Integration Programs,
eHealth Strategy Office, UBC
Continuing Professional Development, UBC
Coordinator of Medical Education and Professional
Richard Scott,
Development, Richmond Mental Health Services
Associate Professor,
Global eHealth Research and Training Program,
Andre Kushniruk,
Centre for Innovation in Health Technology,
Associate Professor and Director,
University of Calgary
School of Health Information Science at the
University of Victoria
Robert Woollard,
Professor, Department of Family Practice, UBC

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Coordinator Cameron Norman,
Assistant Professor,
Dalla Lana School of Public Health,
Jennifer Cordeiro,
University of Toronto
Research Coordinator -
Director of Evaluation,
TEKTIC and Technology Portfolio,
Peter A. Silverman Global eHealth Program
eHealth Strategy Office, UBC
Elizabeth Stacy,
Co-Investigators Research Coordinator -
Language & Community Engagement Portfolio,
Elizabeth Borycki, eHealth Strategy Office, UBC
Assistant Professor, School of
Health Information Science,
University of Victoria
Affiliate Members
Liz Harrison,
Elaine Chong,
Professor and Associate Dean, Physical Therapy
Acting Director, Evaluation
and Interprofessional Health Sciences Education,
Drug Use Optimization,
College of Medicine, University of Saskatchewan
Pharmaceutical Services
Division,
Grace Mickelson,
BC Ministry of Health
Corporate Director - Academic Development,
Provincial Health Services Authority (PHSA), B.C.
Celine Cressman,
CIHR Fellow in Public Health
Richard Smith,
Policy, University of Toronto
Professor, School of Communication, SFU
Yolanda Liman,
Research Coordinator- Aboriginal Portfolio, Student Affiliate Members
eHealth Strategy Office, UBC
Francisco Grajales III,
Brenna Lynn, Graduate Student Researchers, UBC
Director, Continuing Professional Development,
Faculty of Medicine, UBC Varun Ramraj,
Graduate Student Researchers, UBC

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TEKTIC Workshop Agenda
Using Information and Communication Technologies for “Healthy” Public Engagement
Thursday September 10th, 2009

Time* Activity
7:45-8:15 Registration and Breakfast

8:15-8:20 Opening Remarks:


Dr. Kendall Ho and Dr. Alison Buchan, UBC Faculty of Medicine

8:20-8:30 Achieving Optimal Public Engagement in Health - The Health Consumer Perspective:
Ms. Mary Martin, City of Surrey Counsil

8:30-10:00 Panel Session #1: Engaging Health Consumers and Patients: What’s happening today
(Facilitated by Dr. Kendall Ho)

8:30-8:45 Speaker #1 Dr. Antoine Geissbuhler


Health on the Net (via WebEx)

8:45-9:00 Speaker #2 Dr. Cameron Norman


Using the Internet for Health Promotion in Youth (via WebEx)

9:00-9:15 Speaker #3 Dr. Gerri Sinclair


Digital Media and Public Engagement: Opportunities in Health Applications (via WebEx)

9:15-9:30 Speaker #4 Telus


New Health Applications on the Horizon
9:30-10:00 Question and Answer Period
10:00 - 10:15 Break

10:15 - 11:00 Panel Session #2: TEKTIC Patient Engagement Projects


(Facilitated by Dr. Richard Scott)

10:15-10:30 TEKTIC Project #1 Dr. Michal Fedeles & Ms. Katherine Wisener
Engaging Patients and the Community: (e)Literacy for Better Health

10:30-10:45 TEKTIC Project #2 Dr. Sandra Jarvis Selinger


Community Learning Centres

10:45-11:00 TEKTIC Project #3 Dr. Kendall Ho & Dr. Helen Novak Lauscher
Public Engagement with Multicultural Communities via Multimedia Centres

11:00 - 11:45 Facilitated Discussion: Patient Engagement and Collaboration


(Facilitated by Dr. Richard Scott)

11:45 - 12:15 Summary and Closing Remarks:


Dr. Kendall Ho
12:15 - 1:15 Lunch and Networking

Illustrations and Layout by Nelson Shen