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By
Twin1
“THIS SICKNESS IS NOT UNTO DEATH BUT
FOR THE GLORY OF GOD, THAT THE SON OF
GOD MAY BE GLORIFIED THROUGH IT.”
JOHN11:4
First Edition
ISBN:
Copyright © Twin1 2010
INTRODUCTION
I
wake up on a high every morning. The first thing I do is
switch on the computer and look at the computer generated
picture of the flats that are being built. My name is already
down for one of them I am just waiting for them to contact me
to invite me along for a viewing. I have already spoken to a
mortgage advisor at my bank and my mortgage has been
sorted I have lived on Plato road with my parents for 36 +
years. Many years ago my cousins use to live with us. It was
I, my twin sister, with mum and dad. My aunty, uncle with
their two daughters and son. There was never a dull moment.
This house on Plato road holds many memories … if walls
could talk. We lived like this for several years then things
changed my aunty bought a house not too far from us. I
remember being very sad as I did not want them to leave us.
It did not matter because it was walking distance so I and my
sister found ourselves round there every day. We start
secondary school, Pimlico school my older female cousin and
her brother went to Kingsdale school. The years pass by and
we continue onto college find jobs, leave jobs, find another,
leave another one and so forth. I have no direction I really
never took anything seriously I wanted the easy way; if it was
too hard then I didn’t want to know. I did not see the
logic in doing anything that caused unhappiness or stress.
How ironic that statement is to me now. When you read my
journey you will see what I mean. Time passes and my sister
announces that she has become a born again Christian. I do
not know how to take this, I think I am a bit unsure what this
is all about anyhow no questions are really asked and the
family accept this. Not long after she announces that she
wants to marry the guy she had met at church. We are shocked
and we all felt that they should wait a year before tying the
knot. But she and her fiancé were adamant. Of course we
came round to the idea and we were happy for them. I was to
be bridesmaid and my eldest cousin was chief bridesmaid.
She was chief only because she was always seen as our bigger
sister we had all lived together and we were more like sisters
than cousins. I didn’t mind not being chief bridesmaid. The
whole preparation was stressful. I made a decision I would
never be a bridesmaid again. The wedding day came and I was
nervous as I was unable to get the wedding march right, I
think that is what it is called. It was like I had two left feet.
THE FATIGUE
Well this factor knocked me off my feet as I had never
experienced feeling tired like this before. It is such an effort to
talk and even attending the exercise group at the hospital for
me, not appreciated at all I thought I was about to commit my
first offence( murder). The tasks you had to do were very
frustrating even more so when you are extremely tired and all
you are thinking about is climbing back into your hospital bed.
One of the tasks involved emptying peas out of a jar then put
them back in and screwing the lid back on.
When you have a stroke one side of your body becomes weak/
paralysed (as I am sure you already know) so this task in itself
is a testing one as trying to pick up the peas is difficult and
frustrating as you have to learn how to grip again. I remember
feeling that I am going to scream in the minute and kill the
nurse who asked me to do this. I did however fall asleep at the
table only to be awoken by the same nurse asking me to repeat
the task again. How I did not kill her there and then firstly, for
interrupting my sleep and secondly, for wanting me to repeat
the task (I do not know). Me feeling this way was because I
only wanted to sleep uninterrupted.
The second time I attended the session I was fine although
tired but I carried out the task
successfully without wanting to kill anyone. I knew from then
onwards that I would not be afraid to look at my timetable
stuck on the wall in my hospital room and see when my next
session would take place and not start panicking about how I
was going to get enough sleep before the class or even how
I am now well and truly spent one year later, apparently I look
real good, but I hate the way men, look at me when they are
checking me out. Do they not see that I walk with a stick? I
am not implying that disabled people do not get attention as
not all disabilities are visual. I am disgusted by this as when
they look at me and I look back straight into their eyes they
say (your eyes is the window to your soul) it’s like I can read
their dirty ungodly minds the same way you look someone in
the eyes and you can tell whether they are lying or that they
sincerely love you. Yes, I thank God that I can still walk and
that I have lived to tell the tale but I can sure do without the
short term memory loss and the other after effects I have
suffered since having this stroke. I must mention the
inappropriate laughter which I have suffered and which has
been embarrassing but I swear I had no control over it. I was
sitting in the salon one afternoon and this well dressed Indian
man came in selling cutting scissors for hair. Prior to that we
had been acting like kids telling jokes, I was making my jokes
up as usual and crying with laughter at them. The man that
came in was dressed all in black. He was talking to the owner
and I looked him straight in his eyes and for the life of me
could not stop the laughter that felt like I wanted to be sick so
naturally I opened my mouth and this loud laughter from deep
within came out. There was another time when I was in the
font garden of my parents house and a man who I say hello to
saw me with a stick and he asked me “what have you done to
you leg babe?” I burst out laughing and said “I had a stroke.
He looked at me and said “that’s not funny” I answered him
still laughing “I know”. I had no control, I couldn’t stop
myself.
I find the term STROKE a funny one I sit down and think
sometimes that a Stroke must be where God
flicks you with his finger and as he is the almighty one he may
flick you so hard that, that one flick equivalent to a stroke or
an almighty slap and your body suffers a big jerk, enough to
shake your organs.
MOODS
For me this happened straightaway without me realising.
Whilst in hospital I was looking at people in a rude way. That
was all effects of the stroke. I couldn’t wait to go home. One
of the doctor’s at my GP surgery told me that I had suffered a
personality change. It almost felt like I was being pulled
between good and bad/and or love and hate. Unfortunately my
mother was on the receiving end of my wrath. I would get so
worked up that my head would start thumping and I just
wanted to squeeze the life out of something. All of that
energy would be wasted and the tiredness would kick straight
in, it would be back to my room lock the door and lie down. I
could never sleep when I wanted and when I was supposed to
be sleeping. I now feel that I am going mad and that everyone
is against me, but it’s just the lack of sleep and anger I hope. I
visualise ending it all as I feel I am a burden to my family. I
think how I should do it. In the back of my head I know it is a
sin to take your own life , so automatically I switch thoughts
and try to think positive and try to remember I have come this
far from being paralysed on my left side unable to walk or sit
up by myself. Hobbling around on a stick. I still felt like no
one really understood the psychological and my emotional
state of my mind.
ANGRY
I am extremely angry, I am angry with the world and I am
angry with God, I think why didn’t you just allow for my legs
to be broken. I don’t want to speak to anybody as everybody
always manages to say the wrong thing. It gets to a point
where I start to believe that people were actually going out of
their way to wind me up. There was even days I felt I was
going mad literally losing my mind. The anger was eating me
up from the inside out. Even though I am physically weak I
would have taken you on looking to knock you out I felt
invincible. I never cursed God I would not do that as I am a
God fearing woman but I was well vex with him and the
world. I was jealous watching people or the family do things
that I was no longer able to do like run up and down the stairs
and laugh, I mean really laugh because they are happy, really
happy. I am sad I feel the spark that I had has left my body I
feel dead although sometimes I wished I were. I notice now
when I am angry my head starts thumping literally and it does
not feel right when this is happening, my body is hot and the
whole
thing does not feel right. I am like this for several months
after; I mean the thumping of my head when I get angry.
COUNSELLING
I have been referred to a counsellor. My first appointment
was interesting. I meet the counsellor whose name is Richard
and he invites me into a room and we sit down and he asks me
to tell him about myself and wants me to talk about when I
had the stroke. I start to explain in detail what happened and I
see that he is engrossed in what I am saying holding on to
every word. I detect compassion and or sadness. I see that his
eyes are becoming glazed I realise that this man looks like he
is about to cry. I am thinking please do not cry otherwise you
may start me off.
When I have finished telling him about my experience he
replies “Juliet, I could actually feel every part of what you was
saying”.
I see Richard once a week. Some sessions are tearful and some
are not. Some of the times I feel the sessions are not helping
me as we are straying away from the subject as we end up
talking about my family. I am thinking what have they got to
do with my stroke. Richard said to me at my first session that
we would work on trying to deal with my anger. So far I could
not see this happening. Weeks have passed now and at one of
the sessions Richard asks me how I feel in general I reply
leaning forward in my chair as I answered “broken, my spirit
is broken” he looks at me and replies “that was very
descriptive. One of the sessions I remember we spoke about
having suicidal thoughts and I confirmed that I had. I said I
could not go through with it based on the fact that it was a sin
to take your own life. He asked “are you religious”? I said “I
am a Christian” but It felt like he had just slapped me in my
face. Moving forward to the edge of my chair I start
witnessing to him. Something took me over in that room at
that moment and I looked him dead in his face and said with
passion “do you know that God sent his only son to die for me
and you, so that we may live?” He didn’t answer but I saw
something in his eyes, like I had hit a chord or something. I
hope that day I had planted a seed. I always reminded Richard
WHO FEELS IT KNOWS IT. People were always trying to
justify my situation, or even coming up with so called pathetic
things that they suggested I should do because I had suffered a
stroke. A man said to me one day “ you know what causes
stroke?” this would have been about the thousandth time
somebody reckoned they had an answer so I responded in my
head here we go again, let’s see where he is going with this he
carried on and asked me “do you eat pork?”
“Yes” I replied irritated and now he’s on a roll “do you know
when you eat pork, the worms in the pork block up your
veins.” I thought shut up you idiot where is the logic in that I
interrupted “let me stop you right there, let me stop you right
there the artery at the back of my neck was torn” he said “Oh,
oh, oh, like Frank Bruno. I always said to Richard who feels
it knows it. I remember a stroke nurse came to see me at my
parents home and I said to him that I was stressed at my new
job and I asked would that have caused my artery to harden
then tear because it was so hard, he said on the contrary the
artery would have become soft which would have made it easy
to tear.
My body has had to deal with a lot, and out of all that what
makes me sad is that me and my family have never sat around
the table whereby we have spoken about what has happened to
me It almost feels like it is taboo. Having ‘old skool’
Jamaican parents hugging and saying I love you is something
that you don’t really hear or see in the home.
They will never know how I feel for example, they would
never know that I play the morning of 22nd October over and
over again like it was yesterday and that the tears would fill
my eyes as they do now but never fall, that the emotions I
have is enough to choke me. I guess its because I look well on
the outside, but no one really knows what is going on in the
inside. I am strong, I am too strong to cry I just carry on as
that is what I feel is expected of me. I cannot show any signs
of weakness now I have come too far. No one has told me that
I should not cry. On the contrary I have been told to cry but I
can’t. I can cry now when I see an animal being mistreated
back in the day it wouldn’t have bothered me at all. I would
just kiss my teeth.
APPOINTMENTS
How frustrating, hospitals, doctors. It’s really funny how I
feel when I go to these appointments. I do sit there and think
you really don’t know what you are talking about. They will
never get it right they can do all the research they like but it
really is a case of “who feels it knows it”. I saw a neurologist
a few weeks ago she had a student with her and asked me to
walk down the corridor. She then said to the student “She is
walking better now as she is bending her left leg.”
IT’S A STROKE
The realness of me having a stroke didn’t actually kick in until
a year had passed. By this time I had received my Freedom
pass and blue badge for disabled people and I thought this is
good I don’t have to pay bus fare. Only thing is I had
developed a fear of travelling on the buses tubes and crowds.
I think I was/am scared of the crowds and not being able to get
a seat as I cannot stand for too long. However, I manage to
overcome this fear only to hold on to dear life whilst on the
bus as no one gave
I MADE IT
IT is now Jan 2010 and it is just over one month of my
baptism. My sad days are few and far between my focus is on
God. I have that peace that surpasses all understanding. I give
all my burdens and fears to God. I wait for him to answer I
dance in my living room to “worship hymns” praising him,
falling to my knees and praying to him. It is beautiful. I know
God has a purpose for me. People stop me in the streets and
ask me what have I done to my leg?
CARRY ON
I give thanks to God everyday now he is my life and I
sometimes wished I had found him a long time ago but they
say nothing before its time. I still relive that morning of the
22nd October 2007 all the time and as much as it is sad, it is
also a reminder of that day when God spoke to me ({audibly).
This is another separate journal in itself The day my life
changed……………………………….....Watch this space.
nb] please note that I no longer have the fear of this happening
to my sister as mentioned on page 3 . Thank you Jesus.
There is a large table with several chairs and the room isn’t
particularly warm. I don’t know where to sit and I feel like a
child, searching for a familiar face, feeling nervous and
isolated. This may well have been nerves kicking in. They
start to interview me and after a few minutes they excuse
themselves and I am thinking gosh the interview didn’t last
long. Not a good sign. They came back in and said the magic
words “we would like to offer you the job”. I smile a big smile
and all I want to really do is jump out the chair and leave the
room to find my friend to share the good news. I held it
together, thanked them, and then went on my way.
I went back to my seat and a few minutes later she came out
and loudly said to another secretary that “Yeah I think you
were right about what you said” or words to that effect. I do
not have a degree, but I am no fool I knew right away that she
meant that maybe it wasn’t a good idea to work with a friend.
As I said earlier on I saw a different side to my friend. I am
extremely busy I even have someone else helping me even
between the two of us I cannot see the piles going down as I
am drowning. Even the woman that I worked for came out and
said to me in her irritating fine well spoken voice “Juliet are
you drowning?” I said yes I am. I am so stressed out I am not
telling anyone how I feel I am just carrying on.
Me and my friend managed to go out to lunch, I think it was
Thursday of week 2 . We went to a Chinese restaurant as we
were talking and I cried out “ouch” I looked at my hand only
to see that it was bleeding. My friend said to me I had been
scratching my hand since we arrived. I now believe this is a
sign of me being stressed or suffering from anxiety. I didn’t
even realise and didn’t feel anything. It is the Friday of week
2 and both of the people I work for took me out separately.
The woman took me out in the morning. I had got in at
7.00am hoping to get a bit of work done but she wanted to
take me out to talk to me. All I was thinking was not now I
have so much work to do that is why I came in early again.
She took me to a coffee shop, I don’t even drink coffee. She
mentioned that she thought I was rushing some of her work as
I was making mistakes she mentioned something about me not
losing my job. I said to her that “I am rushing everything as
you mark everything as urgent” She didn’t offer up any
solution. I went back to the office. Snowed under. I realize I
really do not like it here at all, I feel like I don’t belong, I feel
like an outsider. She had already emailed the partner that I
worked for about our chat. She tells me this when I walk into
her office. She tells him something else which I remember
that he really didn’t need to know. So I start to strangle her
moving her back and forth. I admit I got carried away and to
be honest I was enjoying it. I remember feeling her fingers
trying to prise my fingers from off around her neck. When I
look at her she looked red. I didn’t realise how tight a grip I
had of her neck. I am so stressed out maybe I really wanted to
kill her at that moment maybe temporary insanity took me
over and I am trying to keep afloat. I cannot speak to anyone
as I do not want to appear incompetent, being the new girl. I
just get on with it without asking any questions. The partner
takes me out a plush Chinese restaurant and buys me lunch.
The next morning the nurse came to check to see how I was
and she asked me how I slept and I didn’t really because of the
man beside me snoring all night.
I was moved off the ward into my own room. Thank goodness.
I was constantly tired. Physio started and it would be in the
mornings when all I wanted to do was sleep. The room was
cold I remember a few days later my sister came into my
hospital room and informed me that the Consultant said that if
I didn’t run for the bus I would be dead or the clot would have
got bigger and bigger and the result would have been a lot
worse. If you remember a few pages back when I said the
lady massaged the back of my neck and I said it felt good. She
was massaging the spot where the clot was. I know that the
voice I heard that morning was the voice of God prompting
me to run he kept the stroke moving. THANK YOU JESUS.
I also believe that the time that I closed my eyes when the
woman held me and thought it was extremely dark even
though it was after 8 in the morning. If you close your eyes
and you are outside you should see some brightness through
your eyelids. But it was pitch black and I thought that straight
away even though I was having a stroke. I believe I was on
my way to hell but the lady’s scream brought me back.
Now who was this man and how did he know who my cousin
was? I am gutted I that I cannot place this man at the scene.
But I know that he was an angel.
he ambulance was approaching apparently he flagged them
T
down. I believe in angels . . .
‘FOR HE SHALL GIVE HIS ANGELS CHARGE OVER
YOU, TO KEEP YOU IN ALL YOUR WAYS. IN THEIR
HANDS THEY SHALL BEAR YOU UP LEST YOU
DASH YOUR FOOT AGAINST A STONE’. Psalms:
91:11-12.
I believe this verse refers to all of the above and I also believe
that God orchestrated that morning as he is now orchestrating
my life.
I came home after several days the first thing I do is look for
my cat. I notice the adaptations that have been made. I hold
onto the new railings and walk to the top of the house. I am
exhausted, but I need to
see my cat. I get to the top and see her. She shows no interest
in me and I am disappointed. I turn to walk back down the
stairs. Panic grips me as I start thinking how on earth am I
going to get down from up here. The adaptations stopped on
the landing below. So now I only have one side to hold onto.
Slowly but surely, one step at a time I make my way
down the stairs, holding on for dear life, not breathing as I am
really concentrating on not falling or missing my step. I am
getting hot and the sweat is pricking my body so now all I
want to do is scratch. I cannot let get go, I am too scared and
stopping to scratch is not an option. I reach the bottom intact
and sigh heavily. It all begins now, the journey.
I climb into bed still trying to get my head around having had
a stroke. I don’t know what lies ahead. I am glad to be in my
own bed and in my own room.
The next few days consist of people coming round to see me.
These people are linked to helping stroke victims
Occupational Health, Social worker etc.
I have been living here just over a year now and every
morning I thank God for life, and my home and everything he
has provided me with. And we know that All things come
together for good to those who are called according to his
purpose: Romans 8:28. I know that I have been called. I
heard him before but I did not respond to him. Now, I cannot
run from him anymore. I am still. Like I mentioned before in
part 1 of my journal Different strokes for Different People I
am the happiest I have ever been even though I am still
recovering from having had a stroke just over 2 years ago.
If you do not have a valid ticket you cannot get on the train,
plane, coach or even on an angel’s back. I do not want to be
left behind. A lady made a speech at my friend’s funeral a
couple of weeks ago that we are living in hell hole it was
funny when she said it because of her Jamaican accent as the
emphasis was on the H’s. Everybody laughed, but never a
truer word spoken, the thing is, it is going to get worse. Many
people hear about Jesus and for some reason, ‘Many are
called but few chosen’ Matthew20:16 they fight him resist
him I am guilty of that myself. He has me where he wants me
now. I am glad that it happened the way that it has because I
have time on my hands to get in tune with him, worship him
pray to him and he has been using me to do certain things and
he is revealing certain things to me, when I pray he answers
me and my relationship is like WOW, who would have said
Juliet Campbell would be sitting here praising God giving
God the glory in her journal. One day when I was in the car
with my sister she was playing a reggae gospel CD by Denis
Mclean I not a fan of reggae but this particular track makes me
want to fall to my knees and bawl like a baby. The track is
called Jesus you’re my friend, I will never leave you, I’ll
never betray this love. The rhythm track is a Dennis Brown
track I think it is called it was the day, well it stars off like
that. As I sing this in the car this song belongs to me now, you
know when you hear a track and it stirs up all your emotions
and you think it’s your own track. Well this is how I feel about
this particular track as when I sing it I mean every single word
of it and sing from the heart, I raise my hands.
My sister is driving and turns to look at me and says “Wow”.
She cannot believe what she is seeing. I tell you something
she would have a hissy fit if she saw how I carry on at home
when I am alone with the lord. My niece was speaking to me
one day over the phone and she made a comment along the
lines of not believing that I was the same person I was how
many months ago. My mother made a comment to me the
other day about the change in me. God has done wonders to
our relationship. I can say that now as we never had one
before now God is right there between us. I can literally feel
him. It feels right now. We can talk freely and openly. I
shouldn’t be surprised as I asked the lord for this and he has
given me more than I ever imagined The same thing for my
dad even though my relationship with my dad has always been
alright, it has just got better Thank you Jesus.
Thank you
Thank you to Jesus
Twin sis, I love you and I am truly sorry that you were hurting
whilst watching your twin go through dealing with having had
a stroke.
Mum n dad I am sorry that I turned into a monster and took
out my anger on you when I had the stroke. I love you both
very much and I hope you can find it in your hearts to forgive
me.
Thank you Shaz, I am sorry please forgive me, you know what
I am
talking about, I have already forgiven you and I love you.
DUNCAN, Thank you so much, Duncan you know you pulled
me out of that dark hole when I wanted to end it all, when I
felt alone and sad, you were there all the way, even now. You
are a blessing to me and I thank God for blessing me with
you. I love you bro.
Big sis Wendy, what can I say, I thank God that you are still
here with us after you had an aneurism 2 weeks before I had
my stroke. You are an inspiration and I love you.
Sue and Michael, isn’t life funny, Michael I have known you
all my life but I know you more now since I have had the
stroke. Thank you both for being there for me when I am tired
and have come to a dead end. May God bless you both
abundantly.
Thank you to my family for tolerating my moods and anger
Thank you Debbie H for taking me shopping every Wednesday
I love you.
Thank you Kenneth for being there for me at a drop of a hat
and really understanding what I was going through when I
didn’t get it.
I love you.
Thank you Julyette you know that I would have been lost
without your massive support, you know what I am talking
about I love you.
Thank you Septi for reminding me of my moods J I love you,
you love me and thank you for being my friend
Thank you Val, I love you.
Thank you Tina you know we have that connection, I love you.
Thank you Mich, my girl. I cannot find the words to express
my thanks to you, but you are a true representation of a friend
I Love you.
Thank you Ruth for not giving up on me even when I shut you
out when you were trying to reach out to me I am sorry please
forgive me.