Cuestionario labio y paladar hendido

1. Riesgo de salud en un infante recin nacido

Labio hendido, paladar hendido, labio y paladar hendido
Micrognatia, retrognatia, hipoplasia mandibular
Deshidratacin, pobre alimentacin, falla de ganancia ponderal durante los
primeros 4 a 10 das de vida
Problemas de alimentacin, vmito, prdida de leche por los lados de la boca
o por la nariz
2. Tipos de hendiduras
Labio hendido, paladar hendido, labio y paladar hendido
Paladar hendido aislado
Lnea media hendida
Submucosa hendida
vula bfida
Incompetencia velofaringeal
3. Cules son los problemas que afectan el plan de cuidado de nutricin que
determina la direccin de la intervencin nutricional
Tipo de hendidura
Habilidad para alimentarse oralmente
Presencia de Micrognatia o retrognatia
Sndromes sospechados o diagnosticados
4. Cul es la condicin ms comnmente asociada con el Sndrome de Pierre
Robin
Micrognatia, retrognatia e hipoplasia mandibular. La mandbula esta retrada
causando glosoptosis que es el desplazamiento posterior de la lengua
5. Cules son los exmenes de laboratorio que se deben elaborar en una
evaluacin nutricional de rutina
Hemoglobina
Hematocrito
Electrolitos sricos
Niveles de glucosa en sangre
Nitrgeno ureico
Bilirrubina
Sodio srico
6. Cules son los parmetros a utilizar en la evaluacin nutricional en nios
diagnosticados con labio y paladar hendido
Uso de seno materno o frmula
Volumen y frecuencia de alimentacin
Energa total ingerida
Tcnica de alimentacin
Ingesta de hierro
Problemas para alimentar por seno materno
Recordatorio de 24 horas
Historia clnica sobre heces y micciones en 24 horas
Si han existido episodios de vmito, ahogamiento o nuseas
7. Cul es la suplementacin que el nio debe tener en cuanto a vitaminas y
minerales cuando se alimentan con seno materno. Vitamina D.
1

Cuestionario labio y paladar hendido

8. Cules son las medidas antropomtricas a valorar en el nio con labio y
paladar hendido
Talla
Peso
Cambio de peso
Peso para la talla
IMC
ndices de crecimiento
Estimar compartimentos corporales
9. Intervencin nutricional en el nio con labio y paladar hendido
Nutricin Enteral
Asistencia de alimentacin
Educacin nutricional
Cuidados nutricionales
10.
Cules son los protocolos a seguir en la ciruga en cuanto a
intervencin nutricional se refiere
Durante y despus de una distraccin mandibular, la intervencin nutricional
debe incluir adecuada protena, calcio, fsforo y vitamina D
Un beb puede iniciar seno materno inmediatamente despus de la ciruga
El dolor puede ser el factor estorbador mayor en la alimentacin
postquirrgica. Se debe de tomar de 2 a 3 das para la recuperacin del labio
y de 7 a 10 das para la recuperacin del paladar.
Los anestsicos y analgsicos pueden provocar constipacin por lo que los
lquidos y la fibra son necesarios
11.
Cules son los problemas dentales que puede presentar un nio con
labio y paladar hendido
Pueden presentar caries
Se debe promover el uso de agua fluorada en la frmula a preparar para
consumo del nio
Por la mal oclusin, brote dental u otras anormalidades dentales, un nio
mayor puede experimentar dificultad para masticar y puede ahogarse, por lo
que se debe modificar la textura de los alimentos. El nio mayor puede
presentar boca seca crnica debido a que respira por la boca
12.
Cundo puede iniciar el nio a comer alimentos solidos
Cuando est listo fisiolgicamente listo y desarrollado
13.
Cules son los alimentos recomendados de 0 a 12 meses
El seno materno es altamente recomendado para evitar infecciones. Y si la madre
no puede lactar el uso de frmula lctea es lo indicado
14.
Cules son los alimentos recomendado de 12 a 36 meses
Dependiendo del tiempo de la ciruga y la restauracin del paladar la dieta puede
ser normal en el nio. Solo alimentos suaves
15.
Alimentos no recomendados en el nio con labio y paladar hendido
Dependiendo del tamao de la hendidura del labio o paladar y la habilidad de
alimentarse del nio, se deben limitar la textura de los alimentos. En general la
2

Cuestionario labio y paladar hendido

alimentacin se debe avanzar de acuerdo con la edad y referir a un terapista de la
alimentacin para aquellos que batallan con los slidos y las texturas.
REFERENCIAS

Abadie V, Morisseau-Durand M-P, Beyler C, Manach Y, Couly G. Brainstem dysfunction: A possible

neuroembryological pathogenesis of isolated Pierre Robin sequence.Eur J Pediatr. 2002;161:275-280. Related
Links: Abstract

American Dietetic Association.Pocket Guide for International Dietetic and Nutrition Terminology (IDNT) Reference
Manual: Standardized Language for the Nutrition Care Process. 4th ed. Chicago, IL: Academy of Nutrition and
Dietetics; 2012.

American Dietetic Association. Position of The American Dietetic Association: Providing nutrition services for people
with developmental disabilities and special health care needs.J Am Diet Assoc. 2010;110(2):296-307. Related
Links: Abstract and Full Text pdf

American Dietetic Association. Position of the Academy of Nutrition and Dietetics: Oral Health and Nutrition Position
Statement.J Acad Nutr Diet. 2013;113(5):693-701. Related Links: Abstract

Balluff MA. Nutritional needs of an infant or child with a cleft lip or palate.Ear Nose Throat J.1986;65(7):311-315.

Beaumont D. A study into weight gain in infants with cleft lip/palate.Paediatr Nurs. 2008 Jul;20(6):20-3. Related
Links: Abstract

Bergman NJ, Linley LC, Fawcus SR. Randomized controlled trial of skin-to-skin contact from birth versus
conventional incubator for physiological stabilization in 1200 to 2199 gram newborns.Acta Paediatr. 2004; 93, 779785. Related Links:Abstract

Bessell A, Hooper L, Shaw WC, Reilly S, Reid J, Glenny AM. Feeding interventions for growth and development in
infants with cleft lip, cleft palate or cleft lip and palate.Cochrane Database Syst Rev. 2011;2:CD003315. Related
Links: Abstract

Breugem CC, Mink van der Molen AB. What is "Pierre Robin sequence?J Plast Reconstr Aesth Surg.
2009;62(12):1555-1558. Related Links: Abstract

Brine E, Rickard K, Brady MS, Leichty EA, Manatunga A, Sadove M, Bull MJ. Effectiveness of two feeding methods in
improving energy intake and growth of infants with cleft palate: a randomized study.J Am Diet Assoc. 1994;94:732738. Related Links:Abstract

Brooks MS. Nutrition overview of cleft lip and palate.Top Clin Nutr. 1988;3:9-15.

Cuestionario labio y paladar hendido

Bunting KD, Mills J, Ramsey E, Rich S, Trout S, eds.Pediatric Nutrition Reference Guide. 10th ed. Houston, TX:
Texas Children's Hospital, 2013:15.

Calnan, JS. Permanent nasal escape in speech after adenoidectomy. Br J Plast Surg. 1971;24(2):197-204.

Carlisle D. Feeding babies with cleft lip and palate.Nurs Times. 1998;94(4):59-60.

Children's Healthcare of Atlanta Center for Craniofacial and Speech Disorders. Cleft lip and palate resource
handbook. Atlanta, GA: Children's Healthcare of Atlanta Center for Craniofacial and Speech Disorders; 2012.

Cohen M, Marschall MA, Schafer ME. Immediate unrestricted feeding of infants following cleft lip and palate repair.J
Craniofac Surg. 1992;3(1):30-32. Related Links: Abstract

Cooper-Brown L, Copeland S, Dailey S, et al. Feeding and swallowing dysfunction in genetic syndromes.Dev Disabil
Res Rev. 2008;14(2):147-57. Related Links: Abstract

Coy K, Speltz MI, Jones K. Facial appearance and attachment in infants with orofacial clefts: a replication. Cleft
Palate Craniofac J. 2002: 39. 66-72. Related Links:Abstract

Dubourg C, Bendavid C, Pasquier L, Henry C, Odent S, David V. Holoprosencephaly.Orphanet J Rare Dis. 2007;2:8.
Related Links: Abstract;Full text

Dunning Y. Child nutrition. Feeding babies with cleft lip and palate.Nurs Times. 1986;Jan 29:46-47.

Farnan S. Cleft Lip/Palate and Craniofacial Anomalies. In: Ekvall SM, ed.Pediatrc Nutrition in Chronic Diseases and
Developmental Disorders, Prevention, Assessment, and Treatment. New York, NY: Oxford University Press;
1993:219-223.

Fisher JC. Discussion of early repair and breastfeeding for infants with cleft lip.Plast Reconstr Surg. 1987;79:886887.

Fox-Lewis A. A technique for nurses to use when educating families about cleft nutrition. Nurs. Child. Young People.
2011;23(4):28-9. Related Links: Abstract

Froom J, Culpepper L, Green LA, de Melker RA, Grob P, Heeren T, van Balen F. A cross-national study of acute otitis
media: risk factors, severity, and treatment at initial visit.J Am Board Fam Pract. 2001 Nov-Dec; 14(6):241-252.
Related Links:Abstract;Full Text

Glass RP, Wolf LS. Feeding management of infants with cleft lip and palate and micrognathia.Inf Young Child.
1999;12(1):70-81.

Cuestionario labio y paladar hendido

Garcez LW, Giugliani ERJ. Population-based study on the practice of breastfeeding in children born with cleft lip and
palate. Cleft Palate Craniofac J. Nov 2005:42(6).687-693. Related Links: Abstract

Kasten EF, Schmidt SP, Zickler CF, et al. Team care of the patient with cleft lip and palate. Curr. Probl. Pediatr.
Adolesc. Health Care. 2008;38(5):138-158. Related Links: Abstract

Klein MD, Delaney T.Feeding and Nutrition for the Child with Special Needs. San Antonio, Tex: Psychological
Corporation; 1994.

Leslie EJ, Marazita ML. Genetics of cleft lip and cleft palate.Am J Med Genet C Semin Med Genet. 2013;163C:246248. Related Links: Abstract

Miller CK. Feeding issues and interventions in infants and children with clefts and craniofacial syndromes.Semin
Speech Lang. 2011;32(2):115-126. Related Links: Abstract

Montagnoli LC, Barbieri MA. Growth impairment of chidren with different types of lip and palate clefts in the first 2
years of life: a cross-sectional study. J Pediatr(Rio J) 2005;81(6):461-5. Related Links: Abstract;Full Text

Mossey PA, Little J, Munger RG, Dixon MJ, Shaw WC. Cleft lip and palate.Lancet. 2009;374(9703):1773-1785.
Related Links: Abstract

Oddy WH, Sly PD, de Klerk NH, Landau LI, Kendall GE, Holt PG, Stanley FJ. Breast feeding and respiratory
morbidity in infancy: a birth cohort study. Arch Dis Child. 2003; 88:224-8. Related links:Abstract

Oliver RG, Jones G. Neonatal feeding of infants born with cleft lip and/or palate: parental perceptions of their
experience in south Wales. Cleft Palate. Craniofac. J. 1997;34(6):526-532. Related Links: Abstract

Pandya A, Boorman J. Failure to thrive in babies with cleft lip and palate.Br J Plast Surg. 2001;54:471-475. Related
Links: Abstract

Redford-Badwal DA, Mabry K, Frassinelli JD. Impact of cleft lip and/or palate on nutritional health and oral-motor
development.Dent Clin North Am. 2003;47(2):305-317. Related Links: Abstract

Reilly S, Reid J, Skeat J, Academy of Breastfeeding Medicine Clinical Protocol Committee. ABM clinical protocol #17:
Guidelines for breastfeeding infants with cleft lip, cleft palate, or cleft lip and palate.Breastfeed Med. 2013;8(4):349353. Related Links: Abstract

Riski JE. Feeding the Infant Born With Cleft Lip / Palate: A Literature Review. Perspect Swallowing Swallowing
Disord. 2007;(October):12-17.

Cuestionario labio y paladar hendido

Rodriguez NA, Meier PP, Groer MW, Zeller JM. Oropharyngeal administration of colostrum to extremely low birth
weight

infants:

theoretical

perspectives.J

Perinatol. 2009

Jan;29(1):1-7.

Epub

2008

Sep

4.

Related

Links: Abstract;Full Text

Saal HM. Classification and description of nonsyndromic clefts. In: Wyszynski DF, ed.Cleft Lip and Palate: From
Origin to Treatments. New York: Oxford University Press; 2002.

Stepans MB, Wilhelm SL, Hertzog M, Rodehorst TK, Blaney S, Clemens B, Polak JJ, Newburg DS. Early
consumption of human milk oligosaccharides is inversely related to subsequent risk of respiratory and enteric disease
in infants.Breastfeed Med. 2006; 1:207-215. Related Links:Abstract;Full Text

Strathearn L, Mamun AA, Najman JM, O'Callaghan MJ. Does breastfeeding protect against substantiated child
abuse, and neglect? A 15-year cohort study. Pediatrics. 2009; 123:483-493. Related Links:Abstract;Full Text

Sullivan S, Schanler RJ, Kim JH, Patel AL, Trawger R, Kiechl-Kohlendorfer U, Chan GM, Blanco CL, Abrams S,
Cotten CM, Laroia N, Ehrenkranz RA, Dudell G, Cristofalo EA, Meier P, Lee ML, Rechtman DJ, Lucas A. An
exclusively human milk-based diet is associated with a lower rate of necrotizing enterocolitis than a diet of human
milk and bovine milk-based products.J Pediatr.2010 Apr;156(4):562-7.e1. Epub 2009 Dec 29. Related Links: Abstract

Tanaka SA, Mahabir RC, Jupiter DC, Menezes JM. Updating the epidemiology of cleft lip with or without cleft
palate.Plast Reconstr Surg. 2012;129(3):511e-518e. Related Links: Abstract

Taveras EM, Capra AM, Braveman PA, Jensvold NG, Escobar GJ, Liew TA. Clinician Support and Psychosocial risk
factors associated breastfeeding discontinuation.Pediatrics.2003; vol 112, No. 1:108-115. Related Links:Abstract;Full
Text

Tolarova MM, Cervenka J. Classification and birth prevalence of orofacial clefts. Am J Med Genet. 1998 Jan 13;
75(2):126-37. Related Links:Abstract

Trenouth MJ, Campbell AN. Questionnaire evaluation of feeding methods for cleft lip and palate neonates.Int J
Pediatr Dent. 1996;6:241-244. Related Links: Abstract

Weatherly-White RCA, Kuehn DP, Mirrett P, Gilman LI, Weatherly-White CC. Early repair and breastfeeding for
infants with cleft lip.Plast Reconstr Surg. 1987;79:879-885. Related Links: Abstract

Wolf LS, Glass RP.Feeding and Swallowing Disorders in Infancy:Assessment and Management. Austin, Texas:
Hammermil Institute on Disablities;1992.

World Health Organization. Addressing the global challenges of craniofacial anomalies: Report of a WHO meeting on
International Collaborative Research. Mossey, P, ed. 2004:1-135.

Cuestionario labio y paladar hendido

Young JL, O'Riordan M, Goldstein JA, Robin NH. What information do parents of newborns with cleft lip, palate, or
both, want to know? Cleft Palate Craniofac J. 2001 Jan; 38(1):55-8. Related Links: Abstract