Вы находитесь на странице: 1из 4

We're the stop at nothing type

JDRF exists for the millions of children, adults, and families challenged
by type 1 diabetes (T1D), every single day. Their determination to live
with this disease strengthens ours to end it. We are the one
organization (non-profit or otherwise) with the plan, influence, and
ability to not just deliver hope, but a series of life-changing therapies
that will make the burden of T1D less and less. Until it no longer
exists.
JDRF is uniquely positioned to advance these therapies through the
pipeline and create the promise to better treat, and one dayeven
prevent and cure T1D.

PREMIER SPONSORS
Huntington Hilton
598 NY-110 (Rt. 110)
Melville, NY 11747
8:30AM 1:00PM

Together, we can improve our lives


along the way to a cure for type 1

LONG ISLAND CHAPTER


Date: Saturday, March 19, 2016
Time: 8:30 AM - 1:00 PM

diabetes (T1D).
Talk to the experts about research advances, meet with
other families to exchange ideas, and participate in
discussions important to you.
9:45am - 10:45am - Session 1 (Select 1)
- Care Givers Course Part 1: must attend both sessions
- T1D on the Field
- Taking T1D to School
- Ask the Specialist
- Lessons I Learned Along the Way
- For Parents Onlyquestions that never get answered!

Location: Huntington Hilton


598 NY-110 (Rt. 110)
Melville, NY 11747
Schedule of Events
8:30am - 9:30am: Registration, Breakfast, and Exhibitor Fair
9:30am - 9:45am: Welcome
9:30am - 1:00pm: Kids Korner - for ages 3-9
Drop off your child in this fun filled area designed to keep them engaged
and occupied while you learn. All children MUST be pre-registered and you
will need to provide a cell phone number in the event you are needed.
9:45am - 10:45am: Session 1
11:00am - 12:00pm: Session 2
12:15pm - 1:00pm: Closing Remarks: An Up Close Look at Life with T1D.

11:00am - 12:00pm - Session 2 (Select 1)


- Care Givers Course Part 2: must attend both sessions
- T1D on the Field
- Taking T1D to School
- Whats Next: Research and Advancements on the Horizon
- Our Kids Go to Camp
- For Tweens and Teens Only the frustrations of all those questions!

*Please note if you go to the Care Givers Course you must attend
both session 1 and 2.

_________ _______ _______ ______ _______ _______ ______ _______ _______ ______ _______ ______ _______ _______ ______ _______ _______ ______ _______ _______ ______ _______ ______ _______ _______ ______ _______ _______ ______ _______ _______ ______ _______ ______ _______ _______ ____ _________ _______ _______ ______ _______ _______ ______ _______ _______ ______ _______ ______ _______ _______ ______ _______ _______ ______ _______ _______ ______ _______ ______ _______ _______ ______ _______ _______ ______ _______ _______ ______ _______ ______ _______ _______ ____ _________ _______ _ ______ ______ _______ _______ ______ _______ _______ ______ _______ ______ _______ _______ ______ _______ _______ ______ _______ _______ ______ _______ ______ _______ _______ ______ _______ _____

Be a part of T1D research and participate in a TrialNet screening. TrialNet screening involves
a blood test to identify blood relatives of those living with T1D for diabetes- related
autoantibodies. This study is confidential and at no cost to you! To participate, you must be
age 1 to 45 years old and have a brother, sister, child or parent with type 1 diabetes or be
age 1 to 20 years old and have a cousin, aunt, uncle, niece, nephew, half-sibling, or
grandparent with type 1 diabetes. TrialNet screenings will be available from 8am to 10am;
pre-registration is suggested. Please contact Margaret Pellizzari, RN, CDE at
mpellizz@northwell.edu or 516-472-3762. For more information about TrialNet, please visit
www.diabetestrialnet.org.

To register today visit http://goo.gl/forms/218PQsUXPh or


contact Betsy Paffmann at 631.768.3388 or bpaffmann@jdrf.org.

Workshop Descriptions

Workshop Descriptions

Care Givers Course: This is a two part workshop. You must attend both session
1 and 2. JDRF welcomes back Eileen Egan, DNP, FNP-C, CDE Chief Nurse
Practitioner Winthrop Comprehensive Diabetes Care Center, who is passionate
about her commitment and support of furthering T1D education to family
members, school staff, coaches, etc.

Care Givers Course: This is a two part workshop. You must attend both session
1 and 2. JDRF welcomes back Eileen Egan, DNP, FNP-C, CDE Chief Nurse
Practitioner Winthrop Comprehensive Diabetes Care Center, who is passionate
about her commitment and support of furthering T1D education to family
members, school staff, coaches, etc.

When someone is diagnosed with T1D, many want to help, but often times do
not know much about T1D and caring for someone with this disease. This
workshop is scheduled for the entire summit workshop session (9:45am
12:00pm; with a break) and will offer basic diabetes care.

When someone is diagnosed with T1D, many want to help, but often times do
not know much about T1D and caring for someone with this disease. This
workshop is scheduled for the entire summit workshop session (9:45am
12:00pm; with a break) and will offer basic diabetes care.

T1D on the Field: This workshop is offered for both session 1 and 2. Matthew
Patrick, elite runner and team member for the Diabetes Sports Project (DSP),
who thrives with T1D, will share his story, athletic accomplishments and will
empower anyone living with T1D to live healthy, responsible and an active life.
DSP is comprised of the worlds elite diabetic athlete ambassadors and
Matthew, a sought-after ambassador, is dedicated to sharing his experiences
to never let diabetes control your life. He instills hope and inspiration to utilize
your athletic talents, whether you are just starting an exercise program or are
a competitive athlete. Join him and Dr. Michael Shanik, for a powerful and
meaningful discussion on sports and diabetes.

T1D on the Field: This workshop is offered for both session 1 and 2. Matthew
Patrick, elite runner and team member for the Diabetes Sports Project (DSP),
who thrives with T1D, will share his story, athletic accomplishments and will
empower anyone living with T1D to live healthy, responsible and an active life.
DSP is comprised of the worlds elite diabetic athlete ambassadors and
Matthew, a sought-after ambassador, is dedicated to sharing his experiences
to never let diabetes control your life. He instills hope and inspiration to utilize
your athletic talents, whether you are just starting an exercise program or are
a competitive athlete. Join him and Dr. Michael Shanik, for a powerful and
meaningful discussion on sports and diabetes.

Taking T1D to School: This workshop is offered for both session 1 and 2. Going
to school with T1D requires a lot of preparation and planning. This session will
feature Seth Packrone, Disability Rights Advocate, who will discuss childrens
rights and offer tips and strategies for making your childs school experiences a
success.

Taking T1D to School: This workshop is offered for both session 1 and 2. Going
to school with T1D requires a lot of preparation and planning. This session will
feature Seth Packrone, Disability Rights Advocate, who will discuss childrens
rights and offer tips and strategies for making your childs school experiences a
success.

Ask the Specialist: This workshop is only offered during session 1. Of course,
you are the most important member of your health care team, but who else
should be included to help you maintain your good health? Join the medical
team of specialists who will provide guidance and treatment to help you live
well with T1D.

Ask the Specialist: This workshop is only offered during session 1. Of course,
you are the most important member of your health care team, but who else
should be included to help you maintain your good health? Join the medical
team of specialists who will provide guidance and treatment to help you live
well with T1D.

Lessons I Learned Along the Way: This workshop is only offered during session
1. Diabetes challenges so many people hear the good, the bad, and the ugly
that have happened and the perseverance that keeps you going. Diabetes can
be managed and the adult panelists will help you with their lessons of life with
T1D to ensure you live a happy healthy, close-to-normal life. This workshop
is designed for 19 and older.

Lessons I Learned Along the Way: This workshop is only offered during session
1. Diabetes challenges so many people hear the good, the bad, and the ugly
that have happened and the perseverance that keeps you going. Diabetes can
be managed and the adult panelists will help you with their lessons of life with
T1D to ensure you live a happy healthy, close-to-normal life. This workshop
is designed for 19 and older.

For Parents Onlyquestions that never get answered: This workshop is only
offered during session 1. A forum just for you what do you want to know
from your tween/teen living with T1D? How can you ask so they will answer
honestly? We will discuss communication techniques to help get answers to
those elusive questions.Margie Sugarman, LCSW-R, BCD, DCSW, will be

For Parents Onlyquestions that never get answered: This workshop is only
offered during session 1. A forum just for you what do you want to know
from your tween/teen living with T1D? How can you ask so they will answer
honestly? We will discuss communication techniques to help get answers to
those elusive questions.Margie Sugarman, LCSW-R, BCD, DCSW, will be

facilitator of this workshop.

facilitator of this workshop.

Whats Next: Research and Advancements on the Horizon: This workshop is


only offered during session 2. Be encouraged by all that JDRF is doing to turn
Type One into Type None! With JDRFs constant vigilance and hard work,
Robert Parant, Research Information Volunteer, will bring you on a tour of
where weve been, where we are and where were headed. Information will
be shared about the most major scientific breakthroughs in T1D research to
date, made possible because of the generous support of JDRF donors and volunteers.

Whats Next: Research and Advancements on the Horizon: This workshop is


only offered during session 2. Be encouraged by all that JDRF is doing to turn
Type One into Type None! With JDRFs constant vigilance and hard work,
Robert Parant, Research Information Volunteer, will bring you on a tour of
where weve been, where we are and where were headed. Information will
be shared about the most major scientific breakthroughs in T1D research to
date, made possible because of the generous support of JDRF donors and volunteers.

Our Kids Go to Camp: This workshop is only offered during session 2. Diabetes
camps make a difference! The experience has a lasting impact on their lives,
their families and on diabetes management. While health care professionals
oversee daily diabetes care, the counselors who live with T1D themselves, also
help campers learn to live successfully with their disease. Representatives
from day and sleep away camps will share the profound impact of diabetes
camp on the entire family.

Our Kids Go to Camp: This workshop is only offered during session 2. Diabetes
camps make a difference! The experience has a lasting impact on their lives,
their families and on diabetes management. While health care professionals
oversee daily diabetes care, the counselors who live with T1D themselves, also
help campers learn to live successfully with their disease. Representatives
from day and sleep away camps will share the profound impact of diabetes
camp on the entire family.

For Tweens and Teens Only the frustrations of all those questions: This
workshop is only offered during session 2. No one likes to be asked the same
questions over & over again, but parents and caregivers always do. Lets get
those questions addressed and move on to life as a tween/teen who just happens to have T1D. Margie Sugarman, LCSW-R, BCD, DCSW , will be facilitator of
this workshop.

For Tweens and Teens Only the frustrations of all those questions: This
workshop is only offered during session 2. No one likes to be asked the same
questions over & over again, but parents and caregivers always do. Lets get
those questions addressed and move on to life as a tween/teen who just happens to have T1D. Margie Sugarman, LCSW-R, BCD, DCSW , will be facilitator of
this workshop.

To register today visit http://goo.gl/forms/218PQsUXPh or

To register today visit http://goo.gl/forms/218PQsUXPh or

contact Betsy Paffmann at 631.768.3388 or bpaffmann@jdrf.org.

contact Betsy Paffmann at 631.768.3388 or bpaffmann@jdrf.org.

Вам также может понравиться