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Royal Adelaide Hospital, Cancer Centre, EW, Level 7, Adelaide, SA 5000, Australia
b
Royal Adelaide Hospital, University of Adelaide, SA, Australia
Available online 29 September 2006
Abstract
Hope is the subject of increasing research and discussion within the healthcare literature. However, although deemed of
vital import to patient welfare, there is little examination of how hope features within patients speech. This qualitative
study presents the discursive properties of hope as it emerged unprompted during semi-structured interviews with 28
patients in the nal phase of terminal cancer recruited from the oncology clinic of the Royal Adelaide Hospital, Australia.
In the context of discussions about decision-making at the end of a terminal illness, when used as a noun, hope invariably
referenced the medical domainfocussing either on the objective probability of medical cure (typically taking the negative
form there is no hope), or the subjective possession of the patient, needed to ght their disease. Positioning the patient as
relatively powerless and subject to external forces, this hope was most commonly associated with absolute solutions, and
life-and-death stakes. Hope as a verb emphasised the patients active engagement in life, identifying what was good and
positive for them. It was used to assign responsibility to others, to indicate and establish solidarity or agreement between
the speaker and others, effectively strengthening interpersonal ties between individuals. Through hoping, patients
established connection with others and with the future. In the context of interactions between patients and clinical staff, we
conclude that the use of hope-as-a-verb may have benets, enabling the patienteven when dyingto focus on the
positive, to connect to others, and to continue to engage with life.
r 2006 Elsevier Ltd. All rights reserved.
Keywords: Australia; Hope; Discourse analysis; Bioethics; Clinical interaction; Cancer
Introduction
Since the mid-twentieth century, hope has been
the subject of much research and discussion within
healthcare discourse and practice (Cutcliffe &
Herth, 2002; Eliott, 2005). Yet many have concluded that hope research is fragmented, imprecise,
and episodic, and that hope itself remains
problematic (Cutcliffe & Herth, 2002; Kylma &
Corresponding author. Tel.: +61 88 222 2014;
fax: +61 88 232 2148.
E-mail address: jeliott@mail.rah.sa.gov.au (J.A. Eliott).
0277-9536/$ - see front matter r 2006 Elsevier Ltd. All rights reserved.
doi:10.1016/j.socscimed.2006.08.029
Vehvilainen-Julkunen, 1997; Lohne, 2001; Stephenson, 1991) with different versions of hope articulated (Eliott, 2005; Eliott & Olver, 2002; Wang,
2000). These differences may be associated with
specic research traditions or disciplines. For
example, the dominant approach within psychology
has been to employ quantitative methodologies
within a cognitive behaviourist tradition, to operationalise and measure hope, correlating it with
other variables (Cheavens, Michael, & Snyder,
2005; Snyder, Cheavens, & Michael, 2005). Nursing
researchers have often favoured a qualitative
approach, drawing upon an experiential paradigm
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focused upon meaning, asserting and then attempting to delineate a complexity of hope (Dufault &
Martocchio, 1985; Morse & Doberneck, 1995;
Stephenson, 1991). Within medicine, hope is commonly equated with the promise, potential, or
provision of curative treatments for disease (Beste,
2005), and medical anthropologists, sociologists,
and others interested in the social function of hope
have concluded that hope may be a powerful
rhetorical tool invoked to justify specic healthcare
practices (Brown, 1998; Danforth, 1997; Good,
Good, Schaffer, & Lind, 1990). Within bioethics,
hope is most often discussed in terms of the pros
and cons of false hope, and located in opposition
to truth-telling on the part of the physician to the
patient (Beste, 2005; Simpson, 2002, 2004). Representing an additional, prevalent construal of hope
within medical discourse, this rests upon a conceptualisation of hope as the possession of an
individual patient, to be objectively measured and
compared with a presumed optimal amount, with
interventions typically targeted to reduce discrepancies between optimal and actual levels of hope
(Eliott & Olver, 2002; Wang, 2000)a conceptualisation evident in the clinical practice of medicine,
nursing, and psychology.
However, some have claimed that dening and
measuring hope risks distancing hope from its
everyday context of use, asserting the need to connect
hope to the everyday experience of patients (Nekolaichuk, Jevne, & Maguire, 1999; Simpson, 2004).
There has been, nonetheless, little examination of
how hope operates in situ, of how patients use hope,
and to what effect, in speech. An exception is the
analysis by Eliott and Olver (2002) of the discursive
properties of hope as it emerged spontaneously
during interviews with cancer patients. Employing
discourse analytical techniques (Potter & Wetherell,
1987), they analysed hope as employed as a noun or
verb, demonstrating that these linguistic characteristics were associated with consistent differences in
functions and consequences for the patient. Briey,
as a noun, hope was depicted as an object with
attendant properties, implicated the medical domain,
usually referenced a patients death, and the presence
or absence of hope was used to justify particular
decisions or actions with regard to a patient. By
contrast, use of hope as a verb, in introducing the
someone who hopes, saw hope as determined by
an active patient, and most signicantly in clinical
terms, usually referenced the possibility of some
positive outcome.
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Speech items
identified through
string-patternsearch
Objective
characteristic
Personal
possession of
patient
I hope you
construction
Other-centred
reference
Fig. 1. Example showing how hope was coded within N6. Note: The third level had many more categories.
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imminent is likely to be negatively perceived (Charmaz, 1980). Drawing upon this equivalence of no
hope and death, Ruth argued that even a onepercent chance of hope means theres hope and
therefore death cannot be presumed to be inevitably
imminent. Moreover, as even small amounts have
vital import in relation to life or death, Ruths
argument works to further endorse the value of hope.
This understanding then formed the basis for her
criticism of her oncologist (using words like
terminal), with the inference that the clinician
conveying judgements about the inevitability of
death should be responsive to a patients readiness
to receive them. This contributes towards something
of a dilemma for clinicians who, although endorsing
the need for patients to be informed of their
prognosis, may yet be hesitant to unequivocally
assert that there is no chance that the patient may be
well, to unambiguously predict patients death
(Christakis, 1999; Gordon & Daugherty, 2003; Olver,
2005). However, this aspect of HN may also function
as something of an escape clause available in the
above-cited pro-euthanasia statements: determining
that there is no hopeindeed, that there is
absolutely no hopemay be open to contestation.
Hope: The subjective possession of the patient
The second version of HN saw hope as the
subjectively held possession of the patient, as
varying in amounts, and associated with particular
features of patient well-being. In this context, many
participants considered that a discussion about the
DNR decision would negatively affect patients
hope, and that this constituted justication for
avoiding such discussions.
Tom. I might live for another 12 years, and to live
that way, knowing that Ive just talked about a
lot of end-of-the-road things, you know, it
wouldnt go over well for me, because that way
I believe that Ive given up a bit of hope, and
ght and that, you know.
Tom depicted hope positively as a vital resource
in his ght, accessing a dominant theme in
western culture. Patients with cancer are typically
depicted as engaged in a ght against their disease,
and ultimately in a ght against death, with hope
regularly implicated in this (Charmaz, 1980; Christakis, 1999; Good et al., 1990). Toms reference to a
bit of hope also works to establish that hope be
quantied (thus reinforcing its status as a thing),
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placed in the context of an interpersonal relationship between two persons, establishing it, and hope,
as having moral and interpersonal connotations.
Thus HV functioned in Xaviers speech to
acknowledge and enact the structural relationship
between doctor and patient, simultaneously placing
moral obligation upon the doctor to positively
respond to the patient. An individuals use of HV in
interpersonal exchanges may consequently act to
increase the probability that their desired outcome
is achieved, establishing and enacting both patient
agency and interpersonal ties with others. Others
have asserted the existence and merits of relational
or afliative aspects of hope (Dufault & Martocchio, 1985; Farran, Herth, & Popovich, 1995;
Herth, 1991) and Beste (2005) has argued that a
relational hope could provide a useful counterpoint to constructions of hope that see it as an
individual attribute with emphasis on curealternatives that seem to parallel these participants
employment of HV and HN.
Similarly, the agentic aspect of hope has been
discussed and delineated by others (e.g., Nowotny,
1989; Snyder et al., 2005). What this discursive
analysis adds is clarication of how this is
performed in situ, showing how hope functions in
speech to establish and enact agency. Certainly, the
positioning of the hoper as actively engaged in their
life may be particularly pertinent for patients in the
terminal phase of an illness.
As a further example of enacted agency, Zack
used HV in the context of relating his part in his
ongoing and developing relationships with signicant others.
Zack. Julie is just another friend. And Ive got,
well, hopefully, Ive asked this friend of mine,
Rebecca, y if she would marry me y and shes
agreed to.
Many aspects of hope may be discerned in Zacks
speech: Hopefully functions to signal what is
valued, andgiven that the future, including Zacks
presence within it and Rebeccas future behaviour,
remains unrealisedto acknowledge the uncertainty of attainment of this. Notwithstanding the
uncertainty, what is depicted, what is valued, is a
future that not only featured Zack, but in which
he is linked (indeed, married) to another person.
Thus Zack established himself as connected to a
future time, and some other person. In doing so, he
afrms his own worth, and the worth of the other
implicated in that hope. Zack was undeniably dying,
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Table 1
Differences between noun and verb versions of hope in dying cancer patients speech
Hope as noun
Hope as verb
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