Академический Документы
Профессиональный Документы
Культура Документы
Abstract
A critical incident is any event that had an effect, or could have had
an effect, on the welfare of a patient. Patients must be treated with
respect by staff who demonstrate that they are sensitive to individual
needs, values, beliefs and cultural background. This article will examine
the legal and ethical issues relevant to the right of an unconscious
Jehovahs Witness in an intensive care unit (ICU) to refuse a blood
transfusion. The concepts of consent, capacity to consent, necessity
to act, advance directives, decision making, consequences of failing
to obtain consent, ethical principles, human rights and the best interests
of the patient will be explored, in the light of relevant statute and case
law, in order to demonstrate some of the legal and ethical complexities
within acute healthcare delivery.
Key words: Advance directives Blood transfusion Culture
and religion Ethics Law Patients: rights Unconsciousness
270
Jehovahs Witnesses
Jehovahs Witnesses have a cultural and religious objection to
blood donation and transfusion (Figure 1). However, Sanderson
(2002) suggests that nurses need to be aware of the Watchtower
Societys (the governing body of Jehovahs Witnesses) policy on
blood transfusions since many Jehovahs Witnesses are not actually
sure what is acceptable and what is not (http://www.watch
tower.org/) (Table 1). All statements on the subject stress the
individuals right to choose based on his/her own conscience but,
in practice, fear still undermines this basic right. Simpson (2002)
explains that Jehovahs Witnesses and their relatives are taught by
their faith that it is important to keep Jehovahs organization
Genesis 9:4 But you must not eat meat that has its lifeblood
still in it (p.10)
Leviticus 17:13-14 Anywho hunts any animal or bird that
may be eaten must drain out the blood and cover it with earth,
because the life of every creature is its blood. That is
whyyou must not eat the blood of any creature, because the
life of any creature is its blood; anyone who eats it must be cut
off (p.120).
Acts 15:19-20 It is my judgement, therefore, that we should
not make it difficult for the gentiles who are turning to God.
Instead we should write to them, telling them to abstain from
food polluted by idols, from sexual immorality, from the meat
of strangled animals and from blood (p. 1110)
Figure 1. Jehovahs Witnesses believe that blood transfusion is prohibited
by biblical passages;The Holy Bible, New International Version (1989).
British Journal of Nursing. Downloaded from magonlinelibrary.com by 159.092.233.176 on September 29, 2015. For personal use only. No other uses without permission. . All rights reserved.
PRACTICE DILEMMAS
clean and that one of the ways in which they are encouraged so
to do is to inform those in positions of authority about the
indiscretions of others.Therefore, it must not be assumed that all
Jehovahs Witnesses agree with the blood policy and if given
privacy, confidentiality and the exclusion of any third party, some
will agree to blood-based treatments.
Advance directives
An advance directive, or living will, is an advance statement in
which individuals express their wishes about medical care to be
given if they are unable to voice their wishes at a time, in the
future, when decisions have to be made (Haas, 2005).The British
Medical Association (BMA, 1995) states that, as a minimum, the
directive should include the following: name and address of both
the individual and the GP; date of signing; signatures of both
individual and a witness; health professional input if applicable; a
clearly worded statement of his/her wishes; and the name and
address of the nominated decision maker if applicable. Under the
Mental Capacity Bill 2004 this nominated decision maker
would be able to make decisions about life-sustaining treatment
on behalf of the person making the advance directive.
Figure 2. Jehovahs Witness advance medical directive/release: no blood card.
Unacceptable
Haemoglobin
Albumin
Interferons
Interlukins
Clotting factors
Fibrinogen
Immunoglobulins
Whole blood
Red cells
White cells
Platelets
Plasma serum
Incident analysis
This critical incident analysis examines the treatment, and
subsequent death, of John, a 42-year-old man, who was
brought to intensive care following a fall at work which had
resulted in severe head trauma and multiple fractures, including
pelvis, femur, tibia and fibula. He had suffered major blood loss
and his haemoglobin levels were soon reduced to such that a
blood transfusion was needed if he was to have any hope of
surviving. However, it was very likely that Johns devastating
head injury would prove fatal even if all treatment options
were explored and followed.The doctors had been advised by
staff, on admission, that he carried a Jehovahs Witness no
blood card (Figure 2). On their arrival at the hospital, Johns
family confirmed that he held very strong beliefs as to the
inappropriateness of blood transfusion even if by denying one
it would lead to his death. While Johns decision was his to
make, those responsible for his care, understandably, found the
concept of allowing a young man to die very difficult.
However, the fact that, even with a transfusion, death was still
likely did mean that staff were rather less traumatized than they
might otherwise have been.
The fact that John was unconscious and unable to voice his
refusal of treatment meant that the issue of whether to treat or not
had to be considered extremely carefully, in the light of previous
legal and ethical precedents, by those medical staff accountable for
his care. In circumstances such as this the DoH recommends that
doctors consult with a patients family in order to ascertain and/or
confirm values and preferences (DoH, 2001b).To this end, a case
conference, led by one of the ICU consultants, was arranged with
the utmost urgency to examine all the available evidence.The aim
was to draw up a treatment plan which would not be against
Johns will but would ensure that he was treated with all possible
medical alternatives to donor-derived blood transfusion in the
hope that his life could be saved. Examples of systemic clinical
strategies for managing haemorrhage and anaemia include
combinations of drugs, e.g. erythropoietin, equipment and
medical/surgical techniques to reduce or avoid blood loss and to
enhance the patients own blood production (McClelland, 2001).
The basic principle is that if it is known that blood cannot be
given, every opportunity should be taken to save the patients own
blood (McClelland, 2001).
A copy of Johns full advance directive was brought in from
home; the original was kept by church elders and further copies
by his GP and solicitor, and this clearly demonstrated his beliefs
and wishes. It must be borne in mind that John had written his
wishes when fit and well and in the belief, typical of many, that
such a situation would never happen to him. The question is
whether he would really want to die if he could voice his wishes
at that moment or whether he would want to change his
decision now that there was a very real possibility of death.
The consultant came to the conclusion that it was clear in this
case, from discussion with Johns family, the written no blood
card that he carried and the do not transfuse advance directive,
that John would not wish to receive a blood transfusion
regardless of whether it would risk his death to refuse. To go
ahead and administer a blood transfusion would not be in Johns
best interest; indeed, it would be unlawful (Dimond, 2002), and
271
British Journal of Nursing. Downloaded from magonlinelibrary.com by 159.092.233.176 on September 29, 2015. For personal use only. No other uses without permission. . All rights reserved.
Figure 3. Human
Rights Act 1998.
272
British Journal of Nursing. Downloaded from magonlinelibrary.com by 159.092.233.176 on September 29, 2015. For personal use only. No other uses without permission. . All rights reserved.
PRACTICE DILEMMAS
gangrene which the court upheld (C (re) (an adult) (refusal of
treatment) [1994]). The test has three components: the patient
must be able to comprehend and retain information, believe the
information, and be able to weigh it in the balance so as to arrive
at a choice (DoH, 2001a; Stauch et al, 2002). Since John was
unconscious he would currently not meet the test for capacity
and therefore is unable to give legally effective consent. However,
his prewritten advance directive was binding upon all.
If an adult lacks the legal capacity to make treatment decisions
and cannot give valid consent, no-one, regardless of how they
may be related to the patient, can either give, or refuse to give,
consent to a medical treatment (Re T (an adult) (refusal of
medical treatment) [1992]). In the case of a patient being unable
to give consent because of being unconscious, the decision as to
the path of treatment is the responsibility of medical staff unless
there is a valid advance directive. However, medical staff should
still approach relatives in order to ascertain, if possible, what they
feel the patient would have wanted to happen if he/she was able
to comment (DoH, 2001b; Tingle and Cribb, 2002). However,
one must be acutely aware that what a relative tells us may, in fact,
not be the truth. There are many anecdotal incidents of family
feuds and disagreements where the relatives may give their own
opinion as to the proposed course of action rather than their
view of what the patient would have wanted in the circumstances
if he/she was able to speak for him/herself. However, in the case
of John, there was a valid advanced refusal of treatment which
clearly informed the doctors of his wishes.
The Law Commission for England and Wales (1995) states
that an unconscious person is deemed to be without capacity
at the material time (the time the decision is needed) since it
is not possible for him/her to communicate a decision.
Therefore, doctors must arrive at a decision that they are sure
is in the patients best interest and not a paternalistic, save life
at all cost decision (Jones et al, 1998). Best interests are not
confined to best medical interests since case law has established
that other factors need to be taken into account, including the
patients values and preferences when competent, his/her
psychological health, wellbeing, quality of life, family
relationships, spiritual and religious beliefs and his/her own
fundamental interests (Cornock, 2002). In addition, if the
doctors have knowledge that patients have drawn up a living
will they must treat it as seriously as a refusal made at the time
treatment is offered; it cannot be ignored (BMA, 1995).
The Enduring Power of Attorney Act 1985 enables people to
create powers for someone to act in their interest if they cease to
have capacity. However, this does not extend to the delegation of
power to decide on treatment and relatives sometimes feel that it
does not matter what their loved one may have wanted because,
since they cannot speak for themselves, all decision making lies
with the doctors. However, this has been addressed by the
Mental Capacity Bill 2004 which supports advance directives and
allows for individuals to nominate a named individual as their
decision maker should such a situation arise where they are
unable to voice their own wishes.
Indeed, the Mental Capacity Bill 2004 will allow decisions by a
nominated person or persons to be made on behalf of mentally
incapacitated adults (Dimond, 2002) and, as this becomes accepted
practice, staff will need to be even more acutely aware of the
implications and possible ramifications of any action taken. The
273
British Journal of Nursing. Downloaded from magonlinelibrary.com by 159.092.233.176 on September 29, 2015. For personal use only. No other uses without permission. . All rights reserved.
Conclusion
Analysis of this incident has highlighted the complex legal, ethical
and professional issues surrounding the inability of the
unconscious patient to consent to treatment.Thorne (1999) states
that being valued and understood as a unique person is often as
important, or more important, than being cured. By respecting
Johns human right, as a Jehovahs Witness, to refuse treatment
with blood products the staff involved acted in his best interests.
In times of ethical dilemma nurses are often a human bridge
between doctors, technology and the individualized care of the
patient and his/her family. Being prepared to speak up in their role
as an advocate, while caring in a holistic and compassionate
manner, is a challenge that delivers much reward for nurses. BJN
The author would like to acknowledge Rachel OConnell, University of Hertfordshire,
for her advice and guidance, and Karen Wilson, her partner, for her unstinting support.
Beeby JP (2000) Intensive care nurses experiences of caring. Intensive Crit Care
Nurs 16: 7683
BMA (1995) Advance Statements About Medical Treatment. BMA Publishing Group,
London
Bolam v. Friern Barnet HMC [1957] 2 All ER 118
Burke v. General Medical Council [2004] EWHC 1879 (Admin)
C (re) (an adult) (refusal of treatment) [1994] 1 All ER 819
274
Cornock M (2002) Legal basis of decision making in critical care. Nurs Crit Care
7(5): 23540
Dimond B (2002) Legal Aspects of Nursing. 3rd edn. Longman, Harlow
Dimond B (2003) Medicinal products and consent by mentally capacitated
patients. Br J Nurs 12(18): 11067
Dimond B (2004) The refusal of treatment: living wills and the current law in the
UK. Br J Nurs 13(18): 11046
DoH (2001a) Consent What You Have a Right to Expect.The Stationery Office,
London
DoH (2001b) Good Practice in Consent Implementation Guide. The Stationery
Office, London
F v.West Berkshire Health Authority [1989] 2 All ER 545
Ford P,Walsh M (1994) New Rituals for Old Nursing Through the Looking Glass.
Butterworth-Heinemann, Oxford
Gillon R (1992) Philosphical Medical Ethics. Wiley, Chichester
GMC (2001) Withholding and Withdrawing Life-Prolonging Treatments: Good Practice in
Decision Making. Draft guidance from the Standards Committee. GMC, London
Haas F (2005) Understanding the legal implications of living wills. Nurs Times
101(3): 346
Jones S, McWilliam D, Coakley J (1998) The Really Useful Book on Intensive Care.
Martin Lister Publishing, Carnforth
Kennedy I, Grubb A (2000) Medical Law. Oxford University Press, Oxford
Kokkinakis v. Greece (1994) 17 EHRR 397
McClelland DBL, ed (2001) Handbook of Transfusion Medicine. The Stationery
Office, London
Malette v. Shulman [1991] 2 Med LR 162
Montgomery J (2003) Health Care Law. 2nd edn. Oxford University Press, Oxford
Nursing and Midwifery Council (2002) Code of Professional Conduct. NMC, London
Re B (adult: refusal of medical treatment) [2002] EWHC 429 (Fam) [2002] 2 All
ER 449
Re T (an adult) (refusal of medical treatment) [1992] 4 All ER 649
Rodgers M (2000) The child patient and consent to treatment: legal overview. Br
J Community Nurs 5(10): 4948
Sanderson A (2002) Blood pressure. Nurs Times 98(2): 26
Schloendorff v. Society of New York Hospital [1914] 211 New York Reports 125
Simpson J (2002) Nursing with dignity. Part 9: Jehovahs Witnesses. Nurs Times
98(17): 367
Singleton J, McLaren S (1995) Ethical Foundations of Health Care: Responsibilities in
Decision Making. CV Mosby, London
St Georges Healthcare NHS Trust v. S [1999] Fam 26. (1998) 2 All ER 673, CA
Stauch M, Wheat K, Tingle K (2002) Sourcebook on Medical Law. 2nd edn.
Cavendish, London
Sutherland P (1998) Ethical issues. In: Bassett C, Makin L, eds. Caring for the
Seriously Ill Patient.Arnold, London
The Holy Bible, New International Version (1989) 15th impression. Hodder and
Stoughton, London.
The Law Commission for England and Wales (1995) Mental Incapacity: Law
Commission Report 231.The Stationery Office, London
Thompson IE,Melia KM,Boyd KM (1996) Nursing Ethics. 3rd edn.Churchill,London
Thorne S (1999) Communication in cancer care: what science can and cannot
teach us. Cancer Nurs 22(5): 3709
Tingle J, Cribb A, eds (2002) Nursing Law and Ethics. 2nd edn. Blackwell
Publishing, Oxford
Walsh M (2000) Nursing Frontiers: Accountability and the Boundaries of Care.
Butterworth-Heinemann, Oxford
Watchtower Society (2004) Quality Alternatives to Transfusion.Watchtower Society
(http://www.watchtower.org/library/hb/index.htm) (last accessed 23
February 2005)
KEY POINTS
The intensive care unit (ICU) environment can lead
to the loss of patient autonomy and the principle
of self-determination.
Obtaining consent in ICU can be an ethical minefield.
English law recognizes that a competent patient is entitled
to refuse treatment even if it is to sustain life.
Unconscious patients do not meet the test for capacity
and are therefore unable to give, or refuse to give, legally
effective consent but if there is a valid advance directive
then this is legally binding.
Doctors should attempt to ascertain what the patient
would have wanted to happen in the circumstances
if he/she could speak for him/herself.
The Human Rights Act 1998 supports the right of a
Jehovahs Witness to refuse a blood transfusion and to make
such a decision known in advance of needing to make it.
British Journal of Nursing. Downloaded from magonlinelibrary.com by 159.092.233.176 on September 29, 2015. For personal use only. No other uses without permission. . All rights reserved.