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Where can Big Data and Analytics

take Healthcare in Africa


Building capacity and expertise in Big Data and data
science to ensure that African countries are able
to capitalise on the scientific, technical, social and
economic benefits of this new global industry.
Bringing together a series of presentations from IBM
Research Africa, the Wellcome Trust Sanger Institute,
International AIDS Vaccine Initiative, KEMRI Wellcome
Trust Research Programme, Massachusetts Institute
of Technology, and Global Alliance for Genomics and
Health.

Thursday 3rd November


Lake Victoria Hotel, Entebbe

8:30 am

Registration opens - Teas and Coffees served

9:15 am

Official opening- Big Data For Health in Africa: The value of big data
Manj Sandhu
University of Cambridge

The Generation of Big Data: Population health, Genomics and electronic Health Systems
9:30 am

H3A Diabetes Study


Ayesha Motala
University of KwaZulu-Natal

10:00 am

The Uganda Genome Project


Ins Barroso
The Wellcome Trust Sanger Institute

10:30 am

Break - Teas and Coffees served

11:00 am

Exploting Data: EHRs & Population Health research


Chris Bates
ResearchOne

11:30 am

The Generation of Big Data to Improve the Clinical Decision Making


Leo Anthony Celi
Harvard Medical School/MIT-Sana

12:00 noon

Data Sharing for Genomics and Health - moving from International to Global
Peter Goodhand
The Global Alliance for Genomics and Health

12:30 pm

Lunch

Big Data implementation: Analysis, interactive platforms and disease surveillance

1:45 pm

The Relevance Of Big Data And Data Visualisation To Health And Demographic
Surveillance
Kobus Herbst
Africa Centre

2:15 pm

Managing and Analysing Large Datasets for a systems immunology project with
LabKey
Etienne De Villiers
KEMRI-Wellcome Trust Programme

2:45 pm

Break - Teas and Coffees served

3:15 pm

Genomic Pathogen Surveillance


David Aanensen
The Wellcome Trust Sanger Institute

3:45 pm

Using Mobile Data and Messaging to support Response to Ebola Crisis


Yusuf A Ibrahim
Magpi

4:15 pm

Break - Teas and Coffees served

Keynote Talk
4:45 pm

BIG DATA Analytics in health Care: Unlocking The Potential For Public
Healthcare In Resource Constrained Countries.
Darlington Shingiriarai Mapoye
IBM Research Africa

7:00 pm

Dinner - Lake Victoria Hotel

8:00 pm

Cocktail, Live Music and networking with UbuntuNet

Friday 4th November


MRC/UVRI Campus, Entebbe

The Uganda Medical Informatics Centre: UMIC


10:30 am

Introduction to UMIC - Enabling Big Data & analytics in Africa


Francesc Galban Horcajo
The Wellcome Trust Sanger Institute

11:00 am

UMIC- Unravelling a data intensive computational resource


Emyr James on behalf of Beatrice Dhaala
Sanger/UMIC

11:30 am

Break - Teas and Coffees served

12:00 noon

Developing An Integrated And Accessible Data System To Enable Collaborative


Vaccine Research In Africa
Jill Gilmour
International AIDS Vaccine Initiative

12:30 pm

Developing infrastructure and capacity in Uganda


Pontiano Kaleebu
MRC/UVRI- Uganda

UMIC Launch and site visits


1:00 pm

Extended Lunch & cutting of UMIC cake

1:30 pm

Rolling tours of UMIC (groups of 5 people)

2:45 pm

Travel back to Lake Victoria hotel

5:15 pm

Transport to Golf View Hotel, Entebbe

Data Sharing and Connectivity


- Drinks reception with talks 5:50 pm
6:30 pm

7:15 pm

Connectivity and Big Data in Africa


Pascal Hoba
UbuntuNet Alliance
Big Data for Health in Africa-Closing Remarks
Manj Sandhu
University of Cambridge
Dinner and live traditional dance performance

Speakers

Ayesha Motala
Ayesha is currently Professor and Head of the Department of Diabetes and Endocrinology at the Nelson
R. Mandela School of Medicine of the University of KwaZulu-Natal and the Inkosi Albert Luthuli Central
Hospital in Durban, South Africa. She is a clinician and her research has focussed on the epidemiology,
genetics and clinical aspects of diabetes mellitus in South African Indians and Africans. She is the Lead
Principal Investigator of the H3Africa Diabetes group to assess the burden, spectrum and determinants of
type 2 diabetes across 8 countries in sub-Saharan Africa. She has served as chairperson of SEMDSA, vice
- chairperson of the International Diabetes Epidemiology Group, member of the WHO Consultation for the
definition, classification and diagnosis of diabetes mellitus, the IDF Consensus group on IGT / IFG, and is
on the Executive Committee of the IDF BRIDGES Committee for Translational Research.

Ins Barroso
Ins is Head of Human Genetics at the Wellcome Trust Sanger Institute and leader of the Metabolic Disease
Group. She uses genetic and genomic approaches to understand the aetiology of common and rare forms
of metabolic disease, as well as host genetics of infection. Her research is focused on understanding the
causes and mechanisms underlying common and rare forms of metabolic disease, with a particular focus
on type 2 diabetes, obesity, and related quantitative traits, as well as rare syndromes of insulin resistance
and early onset childhood obesity.

Chris Bates
Chris is Head of Informatics and Analytics at TPP, a supplier of electronic health records with active
deployments in the UK, China and the Middle-East. He recently worked with the UK Governments
Technology Strategy Board to develop TPP ResearchOne, a not-for-profit enterprise which hosts one of the
largest EHR research databases in the world and supports a wide-range of new research and public health
initiatives. Chris has expertise in data analytics and statistics and has special interests in population
health and the impact of big data on clinical research. He holds a PhD in Mathematics and is currently a
Visiting Research Fellow in Health Informatics at the MRC-funded Leeds Institute of Data Analytics. He sits
on the board of HL7 UK and was recently recognised as one of the top 50 innovators in UK healthcare by
the Health Service Journal.

Speakers

Leo Anthony Celi


Leo has practiced medicine in three continents, giving him broad perspectives in healthcare delivery. He holds
a faculty position at Harvard Medical School as an intensive care specialist at the Beth Israel Deaconess
Medical Center and is the clinical research director for the Laboratory of Computational Physiology (LCP)
at MIT. He also founded and co-directs Sana, a cross-disciplinary organization based at the Institute for
Medical Engineering and Science at MIT, whose objective is to leverage information technology to improve
health outcomes in low- and middle-income countries. Leo is one of the course directors for HST.936 at
MIT global health informatics to improve quality of care, and HST.953 secondary analysis of electronic
health records. He is an editor of the textbook for each course, both published under an open access license.

David Aanensen
David is Director of the recently established Centre for Genomic Pathogen Surveillance, a collaboration
between the Wellcome Trust Sanger Institute and Imperial College London. Thebroad aims of the Centre
are to provide data and tools for local, national and international utility focused on antimicrobial resistance
and genomic surveillance. The Centre will be addressing the utility of large-scale structured pathogen
surveys to provide contextual Whole genome sequencing datasets and population structure, as well as
the identification of high-risk clones of public health importance, their risk assessment and ultimately
management.

Kobus Herbst
Kobus is responsible for the INDEPTH Data Repository and has developed an innovative platform, the
Centre-in-a-Box (CiB), to bring together in a convenient package the most important software tools to
extract, document and make available analytical datasets to researchers from the complex relational
databases used by HDSSs. His team has trained research data managers from more than 25 health
and demographic surveillance systems and are currently hosting datasets from 12 of these sites on the
INDEPTH Data Repository. In 2014 this technology was successfully introduced to the Africa Centre for
Population Health own internal process to manage research data.

Speakers

Yusuf A. Ibrahim
Yusuf is the Director of Magpi, which is a leading provider of configurable, cloud-based mobile collection,
communication, and data visualization tools to let organizations improve the effectiveness of their mobile
workforce and improve field operations. Magpi enables organizations across various industries to easily
and cost-effectively develop flexible and robust mobile forms, access and visualize real-time data. Yusuf
is a Monitoring and Evaluation specialist and liaises between WHO, Magpi and MOH Kenya. He is a part
time lecturer at the Jomo Kenyatta University of Agriculture and Technology. Yusuf is also an expert in
Mobile data collection and his experience stretches way back to 2005. He pioneered real time vaccination
campaign in Kenya during Polio, Measles and Avian flu vaccination campaign. The same has been rolled
out to different WHO countries who now uses mobile technology during vaccination campaign.

Etienne De Villiers
Etienne is a Genome Biologist and is responsible for establishing a Bioinformatics and Genomics platform
at KEMRI-Wellcome Trust Research Programme in Kilifi, Kenya. He is a molecular biologist by training that
developed an interest in computing and ventured into the area of bioinformatics and has an interest in the
application of bioinformatics to develop vaccines and diagnostics for orphan diseases of both livestock
and now humans. He is actively involved in capacity building in bioinformatics in East and central Africa
and has introduced several hundred students to the subject.

Peter Goodhand
Peter played a key role in the creation of the Global Alliance for Genomics and Health (GA4GH) and was
appointed as its founding Executive Director in 2014. In May 2016, he was appointed Interim President
of the Ontario Institute for Cancer Research (OICR) in addition to his role as the Executive Director of
GA4GH. Prior to this role, he was the President and CEO of the Canadian Cancer Society. Before joining
the charitable sector, Goodhand had a 20 year career in the global medical technology industry, including
strategic leadership roles with multinational healthcare companies such as American Cyanamid and
Johnson & Johnson, and as the founding Managing Director of the Health Technology Exchange.

Speakers

Francesc Galban Horcajo


Francesc (Cesc) Horcajo Galban has a multidisciplinary background and professional experience as an
Emergency Medical Technician (EMT) in Barcelona and clinical researcher and project manager at the
University of Glasgow, Scotland, and the Royal Institute of Technology, Sweden. I also have first-hand
experience of clinical research management and working on international multidisciplinary initiatives
including the International Guillain-Barr syndrome Outcome Study (IGOS) in Scotland and Bangladesh,
and translational research projects on point-of-care diagnostics in Sweden and Western Uganda. Cesc has
been central to the management of the African Partnership for Chronic Disease (APCDR) programme and
the Uganda Medical Informatics Centre (UMIC) project since 2015.

Manjinder Sandhu
Manjs research seeks to improve our understanding of genomic diversity and the development of and
susceptibility to complex diseases by integrating population genetics, epidemiology and genomic wide
technologies. His research is focused on low and middle income countries and particularly those in Africa
and South-East Asia. Manj led the development and delivery of the African Genome Variation Project a
major resource that provides insights into population genome diversity in Africa and am engaged in a
programme of work to study ancient DNA and indigenous populations groups. Together with Professor
Pontiano Kaleebu, Manj is co-Director of the African Partnership for Chronic Disease Research (APCDR)
and the Ugandan Medical Informatics Centre (UMIC). Manj is also the Editor-in-Chief of Global Health,
Epidemiology and Genomics (GHEG)an on-line, open-access journal, published by Cambridge University
Press, which is committed to publishing cross-disciplinary research that integrates population science,
genomics and related technological advances to increase our understanding of human health and disease
worldwide.

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Speakers

Darlington Shingirirai Mapiye (Keynote Speaker)


Darlington is a Senior Research Scientist at IBM Research Africa, working in the Data Driven healthcare
thematic area, where he is involved in projects that are pioneering innovative ways to address healthcare
challenges in Africa. Darlington has a passion for research that makes an impact and transforms healthcare
for the benefit of many, especially in resource constrained countries. This has seen him working on a
number of projects with clinicians and Public health policy makers.

Jill Gilmour
Jillis the Executive Director for Human Immunology at the International AIDS Vaccine Initiative (IAVI) and
Principal Investigator of the IAVI Human Immunology Laboratoryat Imperial College London. With more
than 20 years of experience in HIV research and development, focusing on the African epidemic, she is
responsible for IAVIs Clinical Laboratory Program and staff internationally, overseeing research strategy,
immune monitoring, data, quality, and scientific and laboratory capacity building to support HIV vaccine
trials and epidemiology studies.

Emyr James
Emyr is responsible for the technical direction of UMIC, with oversight of all hardware and software systems.
Emyr joined the UMIC team in 2015 and has been involved with various aspects including procuring the
server systems and networking and power infrastructure, as well as identifying software systems to install.
He also has been writing and maintaining system configurations, plus coordinating the work of other team
members in the UK and Uganda. Currently, Emyr is focusing on improving, monitoring and reporting of the
compute and storage resources to manage capacity and reliability of the compute cluster. Emyr is primarily
based at the Wellcome Trust Sanger Institute, where he has provided LINUX and software expertise for the
institute over the past three years, following three years at the University of Sussex administering a cluster
for processing data from the Large Hadron Collider (LHC) at CERN.

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Speakers

Pascal Hoba
Pascalwas appointed as the CEO of the UbuntuNet Alliance from 1st January 2015. Before his appointment,
he served as the Director of Knowledge Management Information and Communications at the Association
of African Universities(AAU) since 2005. A graduatein business law from Law school of Aix en Provence,
France, Dr Hoba also holds a Masters Degree and PhD in Scientific and Technical Information from the
University of Marseilles in France where he also worked as Lecturer in Information Communication from
between 1999 and 2005.

Pontiano Kaleebu
Prof. Pontiano Kaleebu is the Director of the MRC/UVRI Uganda Research Unit on AIDS and Deputy Director
Uganda Virus Research Institute. He also heads the Basic Sciences Programme and is a founder of the
UVRI-IAVI HIV Vaccine Program and its Director 2001- 2010. He is Honorary Professor at the London School
of Hygiene and Tropical Medicine and Makerere University, College of Health Sciences.
Prof. Kaleebu holds a medical degree from Makerere University, a Diploma in Immunology and a PhD from
the University of London. He was admitted to the Fellowship of the Faculty of Medicine, Imperial College,
London in 2011. He leads the EDCTP East African Networks of Excellence.
Prof. Kaleebu has served on many committees including the WHO HIV Vaccine Advisory Committee, The
Global HIV Vaccine Enterprise coordinating committee, The UNAIDS science panel, the AIDS Vaccine
Advocacy Coalition Board, the NIAID HIV/AIDS Clinical trials strategic working group, CHAVI-Immune
Discovery Scientific Advisory Board and was chair of the African AIDS Vaccine Programme (AAVP). He
is Ugandas representative at the EDCTP General Assembly. He chairs the National HIV drug resistance
Working group. His main research interest includes HIV vaccine research especially understanding
protective immune responses, HIV diversity and resistance to ARVs.

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Concept of logo
The logo for theBig Data for Health in Africameeting was inspired by the conferences location,
on the shores of Lake Victoria. Bordering Uganda, Kenya and Tanzania, it is the largest lake
in Africa and has been an important source of life for the people living along its shores. Like
the water of the lake, technology and data can connect people beyond national borders.
This meeting, hosted by APCDR, aims to bring together researchers across Africa to discuss
the opportunities big data presents. Innovative tools, infrastructure and partnerships will
be required to capitalise on the rapid expansion of data generation. Africa has the potential
to deliver significant societal and health benefits, globally, if it ensures it is in a position to
actively participate in the era of big data.
Text by Louise Barr
Logo Design by Claudia Gonzlez