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Perceived and Measured Stigma Among

Workers With Serious Mental Illness


Marjorie L. Baldwin, Ph.D.
Steven C. Marcus, Ph.D.

Objective: This research analyzed the extent to which self-reports of job- bution of stigma in determining wages
related discrimination by persons with serious mental illness are associ- for minority groups. By applying these
ated with econometric measures of discrimination. Methods: Data were methods to persons with serious men-
from the 19941995 National Health Interview SurveyDisability Sup- tal illness, recent research has shown
plement. Data for workers with mood, psychotic, or anxiety disorders that the functional limitations associ-
(N=1,139) were compared with data for those without such disorders ated with mental disorders explain
(N=66,341). The main outcome measures were self-reports of wages and only part of the differences in mean
stigmatizing experiences in the workplace. Results: After the analyses wages between persons with mental
controlled for functional limitations and job characteristics, no significant disorders and those without such dis-
difference in mean wages was found between workers with serious men- orders (unpublished manuscript,
tal illness who did not report experiencing stigma and those with no men- Baldwin ML, Marcus SC, 2005). Be-
tal illness. In contrast, for all types of mental disorders examined, mean cause the largest unexplained wage
wages for workers with serious mental illness who reported experiencing differences were noted for persons
stigma were significantly lower than mean wages for those with no men- with psychotic disorders, the sub-
tal illness. Conclusions: Workers self-reports of stigmatizing experiences group of mental illness arguably sub-
in the labor market appear to be consistent with econometric measures ject to the strongest stigma, it is possi-
of the effect of stigma on wages, suggesting that workers know when they ble that a large portion of the unex-
are being discriminated against. (Psychiatric Services 57:388392, 2006) plained differences may be attributed
to stigma and discrimination.
What is lacking in the research is ev-

R
esearch shows that compared tional limitations associated with their idence of an association between stig-
with persons with different illness, they are less capable members matizing treatment in the labor mar-
types of general medical disor- of the workforce. Even though new ket and econometric measures of
ders, those with mental disorders treatments are available that effective- wage discrimination. To address this
have the strongest stigma rankings, ly control symptoms for many persons, gap, we used data from a large, na-
lowest employability rankings, and employers with this view are potential- tionally representative sample to com-
largest productivity-adjusted wage ly less likely to reward workers with pare productivity-adjusted wage rates
differentials (1). Evidence on em- mental illness because of the biased for workers with serious mental illness
ployer hiring practices is consistent: belief that the workers productivity is who reported that they had experi-
among the 117 businesses inter- limited (35). Still, despite such stig- enced stigma at work and those who
viewed in a recent survey, 68 percent ma, thousands of persons with serious had not experienced such stigma.
made an effort to hire persons from mental illness are working in the com-
minority groups and 41 percent made petitive workforce, but they receive Methods
an effort to hire persons with general some of the lowest productivity-ad- Data
medical disorders but only 33 percent justed wages (1). The relationship be- Data were from the 19941995 Na-
made an effort to hire persons with tween the low wages and potential dis- tional Health Interview SurveyDis-
mental disorders (2). criminatory behavior on the part of ability Supplement (NHIS-D). The
A central stereotype about persons their employers is unknown. NHIS-D was administered in two
with mental illness is the belief that Economists have developed tech- phases. The primary screening ques-
because of the symptoms and func- niques to quantify the relative contri- tion asked individuals whether they
were currently unable or limited in
ability to participate in a major activi-
Dr. Baldwin is affiliated with Arizona State University School of Health Management and ty, including work and household re-
Policy, P.O. Box 874506, Tempe, Arizona 85287-4506 (e-mail, marjorie.baldwin@asu. sponsibilities. Each respondent who
edu). Dr. Marcus is with the University of Pennsylvania School of Social Policy and Prac- answered yes was asked to identify up
tice in Philadelphia, Pennsylvania. to two contributory conditions, which
388 PSYCHIATRIC SERVICES ps.psychiatryonline.org March 2006 Vol. 57 No. 3
were subsequently coded by using Analyses phone, and cleaning); or who had so-
ICD-9 criteria. Using the ICD-9 Econometric estimates of stigma cial or cognitive limitations (had a lot
codes, we identified persons who had were computed by using multivariate of trouble making or keeping friend-
the following serious mental illnesses: ordinary least squares regressions ships, getting along in a social setting,
mood disorders (ICD-9 codes 296, with the natural log of the hourly or concentrating long enough to com-
300.4, and 311), psychotic disorders wage rate of each worker as the de- plete tasks or were frequently con-
(ICD-9 codes 295, 297299, and pendent variable and mental illness fused, disoriented, or forgetful). The
780.1), and anxiety disorders (ICD-9 status as the primary independent models also controlled for workers
code 300). Multiple ICD-9 codes are variable, controlling for worker pro- race and gender.
possible, so some persons with seri- ductivity and other worker character- All analyses were conducted with
ous mental illness were included in istics. Separate models were run for SUDAAN to account for the complex
more than one diagnostic subgroup. each diagnosis (mood, psychotic, and sample design and weighting of the
Self-reports are not as ideal as physi- anxiety disorders and all mental NHIS-D (7).
cians diagnoses for defining study health disorders) for each stigma-re-
groups, but Spitzer and colleagues (6) porting group, with workers without Results
showed exceedingly high correspon- mental illness used as the reference. Table 1 shows the weighted percentage
dence between self-reported mental The coefficient of the mental illness of workers with serious mental illness
health symptoms and physicians di- variable in each wage model repre- who reported various types of job-re-
agnoses in a large clinical sample. sents the effect of stigma against lated stigma attributed to their illness.
We restricted the sample to per- workers with mental illness. Taking Overall, 222 workers with mental ill-
sons aged 18 to 65 years who worked the exponential of this coefficient, the ness (20 percent) reported that they
during the month preceding the in- transformed coefficient can be inter- had experienced some type of job-re-
terview. Our study groups included preted as the ratio of mean productiv- lated stigma. Among the workers with
1,139 workers with a serious mental ity-adjusted wages for workers with mental illness, 31 (3.1 percent) report-
illness and a comparison group of serious mental illness relative to ed being refused employment, 30 (2.8
66,341 workers with no reported workers with no mental illness. We percent) reported being refused a pro-
limitations in major life activities. hypothesized that the productivity- motion, 20 (1.8 percent) reported be-
We selected this pure comparison adjusted wage ratios would be signifi- ing refused a transfer, and 15 (1.4 per-
group to ensure that these partici- cantly smaller (that is, lower mean ad- cent) reported being refused access to
pants were not subject to any disabil- justed wages) for workers who report- job training. Additionally, 158 (14.0
ity-related discrimination. In the ed stigmatizing experiences com- percent) had difficulty changing jobs,
sample, 30,964 (46 percent) were fe- pared with those who did not. 110 (9.7 percent) had difficulty advanc-
male and 55,089 (82 percent) were The rich set of control variables ing in a job, and 68 (6.3 percent) had
white. A total of 10,473 participants available on the NHIS-D is an impor- been fired, laid off, or told to resign
(16 percent) were aged 18 to 24 tant advantage of the study. The re- from a job. Overall, workers with psy-
years, and 38,621 (57 percent) were gression models included productivi- chotic disorders were more likely to re-
aged 25 to 44 years. Among those ty-related characteristics of workers port experiences of job-related stigma
with serious mental illness, 914 per- with and without mental illness, in- (22 workers, or 29 percent) than work-
sons had a mood disorder, 86 had a cluding differences in human capital ers with either mood disorders (187
psychotic disorder, and 703 had an investments, job characteristics, and workers, or 21 percent) or anxiety dis-
anxiety disorder. functional limitations. We controlled orders (148 workers, or 22 percent),
Questions on the work history sec- for human capital investments in ed- but these differences were not statisti-
tion of the NHIS-D asked persons ucation (years of schooling), work ex- cally significant.
who were currently working and re- perience (years of experience in the Table 2 presents ratios of mean
ported that a chronic health condition current job and age, as a proxy for po- wages (observed wage ratios) for work-
limited the kind or amount of work tential work experience outside the ers with mental illness (both those who
they could do whether in the past five current job), and health (whether the reported and those who did not report
years, because of the condition, they worker had a comorbid chronic phys- stigmatizing experiences in the work-
had been refused employment, a pro- ical disability or substance use disor- place) relative to those with no mental
motion, a transfer, or access to train- der). Measures of job characteristics illness. Among workers with serious
ing programs. Additionally, persons described the industrial and occupa- mental illness, those who did not report
were asked whether the condition tional classifications of the workers experiencing stigma had an observed
made it difficult to change jobs, made current job. Measures of functional wage ratio of 85 percent and those who
it difficult to advance in their current limitations identified workers who reported experiencing stigma had a ra-
job, or ever caused them to lose a job. needed help with activities of daily tio of 72 percent. Similarly, among
For analysis, we disaggregated work- living (including bathing, dressing, workers with mood disorders, the ob-
ers with serious mental illness into eating, and getting in and out of bed); served wage ratio was 84 percent for
two groups, according to whether instrumental activities of daily living those who did not report experiencing
they reported any of these experi- (including preparing meals, shop- stigma and 73 percent for those who
ences of job-related stigma. ping, managing money, using the tele- did. Among workers with anxiety disor-
PSYCHIATRIC SERVICES ps.psychiatryonline.org March 2006 Vol. 57 No. 3 389
Table 1
Workers with serious mental illness and self-reports of experiences of job-related discriminationa

Total Mood disorders Psychotic disorders Anxiety disorders


(N=1,139) (N=914) (N=86) (N=703)
Experiences of
discriminationb N % 95% CI N % 95% CI N % 95% CI N % 95% CI

Been refused employment 31 3.1 2.144.40 28 3.4 2.335.04 4 5.6 2.0814.45 22 3.6 2.325.52
Been refused promotion 30 2.8 1.964.04 27 3.2 2.194.74 6 8.7 4.0018.05 23 3.7 2.445.44
Been refused a transfer 20 1.8 1.102.75 18 2.0 1.203.22 1 1.1 .167.33 17 2.4 1.513.88
Been refused access to
training 15 1.4 .802.38 13 1.5 .832.71 2 2.3 .598.84 12 1.9 .993.42
Had difficulty changing jobs 158 14.0 11.9716.32 131 14.4 12.1217.04 16 20.8 12.1033.24 102 15.1 12.5118.09
Had difficulty advancing in
a job 110 9.7 8.0211.78 96 10.6 8.6312.86 13 17.1 9.1329.77 70 10.5 8.2513.24
Been fired, laid off, or told
to resign 68 6.3 4.888.06 59 6.9 5.268.98 10 13.9 7.3524.80 46 6.8 4.969.30
Experienced any of the above 222 20.2 17.6523.11 187 21.4 18.3724.66 22 29.0 18.8541.86 148 21.9 18.7125.42
a The sum of Ns across all subgroups can be greater than the total N because nearly 50 percent of workers with mental illness were in more than one
diagnostic group. Reported Ns are not weighted. Percentages are weighted by using NHIS-D weights.
b Questions were phrased, Because of a health condition, have you ever . . .? Questions were asked to a subset of 721 workers who reported that they
were limited in the kind or amount of work they could do. We assumed that the remaining 418 workers had not experienced disability-related dis-

ders, the wage ratios are 81 percent for sons with psychotic disorders reported cant adjusted wage differential associ-
those who did not report experiencing the highest rates of functional limita- ated with mental illness. The adjusted
stigma and 66 percent for those who tions across most categories of limita- wage ratio was close to one, and the
did. The lowest wage ratios, by far, were tions, reflecting the relatively severe underlying regression coefficient was
observed for workers with psychotic nature of the disorders and the dis- not significantly different from zero
disorders: 76 percent for those who did abling effects of common symptoms. (p=.81). In other words, the observed
not report experiencing stigma and 46 The wage differentials between wage difference between workers
percent for those who did. workers with mental illness and those with mental illness who did not report
The wage differences surely reflect, with no mental illness, and between stigmatizing experiences and workers
at least in part, productivity-related dif- workers with mental illness who re- with no mental illness is entirely ex-
ferences between the study groups and ported experiencing stigma and those plained by differences in functional
controls. Fortunately, our data set con- who did not, can also be partly ex- limitations and other characteristics.
tains an extensive array of variables that plained by characteristics of the In contrast, the adjusted wage ratio
allowed us to examine and subsequent- groups with mental illness and their comparing workers with mental ill-
ly control for these differences. Most jobs, which are associated with lower ness who reported stigmatizing expe-
important of these is likely the associa- wages. For example, in our sample riences with those with no mental ill-
tion between mental disorders and workers with serious mental illness ness is 69 percent, a result that is
deficits in the higher-order social and were more likely than those with no large and significant (t=2.31, df=
cognitive skills that are particularly im- mental illness to be female, to work in 373, p=.02). The results imply that
portant for success in the workplace (8). a service industry, and to work in serv- the wage difference between workers
Workers with serious mental illness ice occupations. Workers with mental with mental illness who report stig-
were more likely than those with no illness who reported experiencing matizing experiences and workers
mental illness to report all types of stigma had higher rates of comorbid with no mental illness cannot be ex-
functional limitations (results not physical disorders than those with plained by differences in functional
shown). Among workers with mental mental illness who did not report ex- limitations and other measured pro-
illness, those who reported stigmatiz- periencing stigma. ductivity-related characteristics.
ing experiences were more likely to re- Table 2 also reports productivity- Hence, the econometric measure of
port functional limitations than those adjusted wage ratios, estimated from stigma is consistent with workers
who did not experience stigma. For ex- the coefficient of the mental illness self-reports of their experiences in
ample, only 169 workers with no men- dummy variable in wage regressions the labor market.
tal illness (.3 percent) reported that that controlled for differences in hu- Turning to the productivity-adjusted
they were frequently confused, disori- man capital investments, job charac- wage ratios for different diagnoses of
ented, or forgetful, compared with 162 teristics, and functional limitations. mental illness, the results are uniform-
workers with mental illness who did As shown in Table 2, workers with se- ly consistent with the results for seri-
not report experiencing stigma (18 rious mental illness who did not re- ous mental illness overall, although the
percent) and 74 workers who reported port stigmatizing experiences in the magnitudes of the ratios vary across
experiencing stigma (33 percent). Per- labor market did not have any signifi- subgroups (Table 2). Within each diag-
390 PSYCHIATRIC SERVICES ps.psychiatryonline.org March 2006 Vol. 57 No. 3
Table 2
Observed and productivity-adjusted wage ratios of workers, by self-reports of whether stigma was experienced at work

Hourly wage (dollars) Productivity- p (for the


Observed adjusted adjusted
Variable N Mean SD wage ratio (%) wage ratio (%)a ratio)

No mental illness and


did not experience stigma 66,341 12.70 .07 Reference Reference Reference
All serious mental illness
Did not experience stigma 917 10.82 .31 85 111 .81
Experienced stigma 222 9.15 .58 72 69 .02
Mood disorders
Did not experience stigma 727 10.67 .38 84 102 .62
Experienced stigma 187 9.31 .67 73 70 .04
Psychotic disorders
Did not experience stigma 64 9.63 1.32 76 92 .42
Experienced stigma 22 5.84 1.05 46 17 .02
Anxiety disorders
Did not experience stigma 555 10.35 .34 81 101 .88
Experienced stigma 148 8.50 1.74 66 61 .02
a Adjusted wage ratios are computed from the estimated coefficients () of the mental illness dummy variable in a log-linear wage regression, using the
conversion formula e.

nostic category, the adjusted wage ra- comparing workers with serious men- presence of functional limitations
tio is close to one, and the underlying tal illness who did not report experi- may be a trigger for discrimination.
coefficient of the mental illness dum- encing stigma with workers with no On the other hand, some persons
my variable is insignificant when work- mental illness, we found no signifi- with serious mental illness may have
ers who did not report stigmatizing ex- cant between-group differences in highly visible impairments that trigger
periences were compared with those adjusted wages (the analyses con- stigma but are not associated with any
with no mental illness. However, the trolled for functional limitations and loss of functional capacity. For exam-
productivity-adjusted wage ratios are other productivity-related character- ple, tardive dyskinesia, an uncontrol-
less than one and the underlying coef- istics). However, when we compared lable tic or twitching of the facial mus-
ficients are significant (p<.05) when workers who reported experiencing cles, is a common side effect of some
the group that reported stigmatizing stigma with those with no mental ill- first-generation antipsychotics. Al-
experiences was compared with the ness, the results showed adjusted though the tic is annoying and acts as
control group. The adjusted wage ratio wages that were about two-thirds as a negative label, a person with this
was smallest (17 percent) for workers large. The results strongly suggest condition may have no functional lim-
with psychotic disorders who reported that workers know when they are be- itations if the symptoms of mental ill-
stigmatizing experiences, suggesting ing discriminated against. ness are controlled effectively with
that stigma may be an important factor What is less clear is why some medication. If he or she is subject to
contributing to their significantly low- workers with serious mental illness stigma that affects wages, the effects
er wages. experienced stigma in the labor mar- will be detected as unexplained wage
Our diagnostic groups contained ket while others did not. Our descrip- differentials in the econometric meas-
persons with multiple mental disor- tive results suggest some hypotheses. ures of discrimination.
ders, which could potentially bias the Workers who reported experiencing Although we found more people
estimated discrimination coefficients. stigma also reported higher rates of with serious mental illness working
To test the sensitivity of our results to functional limitations compared with than one might expect, and relatively
the inclusion of multiple disorders, those who did not. Because workers small wage differentials between per-
we reran the multivariate models, with mental illness are often reluctant sons with and without mental illness,
controlling for all diagnoses, and to disclose their diagnoses in the we may be observing a selected sam-
found no substantive differences in workplace, the presence of functional ple of persons with mental illness who
either the magnitude or direction of limitations may make mental illness have above-average functional capac-
our findings. more visible to employers and ities. Once in the labor market these
coworkers. In other words, employers persons do fairly well, within the oc-
Discussion may not know about a mental disor- cupations and industries where they
Our results indicate that workers der unless there are observable signs, have obtained jobs. The importance
self-reports of stigmatizing experi- such as functional limitations. Clearly, of functional capacities is further sup-
ences in the labor market are consis- employers cannot discriminate ported by the gradations we were
tent with econometric measures of against a person with mental illness if able to observe across diagnostic cat-
the effect of stigma on wages. After they are unaware of the illness, so the egories. The most severely disabled
PSYCHIATRIC SERVICES ps.psychiatryonline.org March 2006 Vol. 57 No. 3 391
group (as measured by reported func- lower prevalence rates and lower em- Acknowledgment
tional limitations) was persons with ployment rates for psychotic disorders This research was supported by grant
psychotic disorders, who were both relative to other mental disorders. In RO3-MH-067087-01 from the National
less likely to work in white-collar jobs fact, employment rates for persons Institute of Mental Health.
and subject to the largest wage differ- with psychotic disorders are so much
ences. As possible supporting evi- lower, it is likely that the differentials References
dence, Hallock and colleagues (9) did are, in part, associated with the intense 1. Baldwin ML, Johnson WG: Labor market
not find a strong association between stigma against psychotic disorders. discrimination against men with disabilities.
Journal of Human Resources 29:119, 2004
worker perceptions of disability-relat- The stigma may translate to discrimi-
ed discrimination and econometric nation in hiring and firing decisions, 2. Scheid TL: Compliance with the ADA and
measures in a sample of workers with which is exactly the point of this study. employment of those with mental disabili-
ties, in Employment, Disability, and the
disabilities drawn from graduates of a Americans With Disabilities Act: Issues in
major mid-Western university. Conclusions Law, Public Policy, and Research. Edited by
The research has some important Even after passage of the Americans Blanck PD. Evanston, Ill, Northwestern
University Press, 2000
limitations. A workers self-report of With Disabilities Act of 1990, negative
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4. Wahl OF: Mental health consumers experi-
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1984
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392 PSYCHIATRIC SERVICES ps.psychiatryonline.org March 2006 Vol. 57 No. 3

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