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Travel

Dan Cadey: working with transport


providers across the UK

Making changes to cater for


someone with autism doesnt have
to be terribly complicated, he
points out. In this example, the
driver could make an announcement
or there could be electronic
information at bus stops. The really
important thing is that staff have an
understanding of autism and what
might distress people.
Experts agree that where
someone with autism is able to
make a journey by themselves, it
can be a huge confidence-booster
and a step towards greater
independence. But, understandably,

Just the ticket


many families are worried about
how their child would cope.

Learning life skills


Charity Ambitious about Autism
runs a college in North London for
young adults with autism aged
Getting about on public transport can be to cater for their needs. Weve got time. The plan is for the UKs other Making it between 16 and 25. The focus is
to a point where theres greater airports to follow suit, following an better by bus: Some of the on learning life skills; as part of
one of the most difficult but empowering awareness of autism among the
general public, he says. Now
announcement by the Civil Aviation students from
students are
this, staff have joined forces with
Authority at the end of last year. Ambitious Transport for London (TfL) to get
things for a person with autism to achieve. people are looking for greater This is all good news for families about Autism afraid of buses - students comfortable with bus travel.
understanding. They want to know hoping to travel abroad in the practice getting Some of the students are afraid
Fiona McNeill looks at initiatives to help how to help. coming months. However, its the used to public maybe its fear of the of buses maybe its fear of the
Cadey is working with a number smaller, everyday journeys that we transport unknown or perhaps unknown or perhaps they dont like
individuals become independent travellers of transport providers across the all need to make, Cadey explains, in a special
they dont like the
the vibration of the engine, says
UK and recently helped Gatwick that are often the most distressing scheme run by Natasha Rhoden, community
Airport achieve Autism Friendly for someone with autism. Transport for vibration of the engine access co-ordinator at the college.
When Robert Louis Stevenson unexpected delays, noises, lights status. Among the measures the London A couple of them also need help
image courtesy of ambitious about autism

wrote, To travel hopefully is a and unfamiliar faces and places airport has introduced to help Results were revealing with safety issues. One student
better thing than to arrive he had can be overwhelming. passengers with autism is an In a survey of 7,000 people cent said theyd avoided the metro/ was obsessed with buses and used
never been on a bus with a child Dan Cadey is autism access optional lanyard to identify a conducted by the NAS last year, underground; and 40 per cent said to run down the street after them.
with autism having a meltdown. development manager with the passenger with an ASD and a people with ASD, their friends and theyd avoided the train. To address these difficulties, a
But its not just bus journeys that National Autistic Society. booklet with lots of photos families, as well as some Its difficult to generalise why London bus visits the college every
can be challenging for someone on Overseeing the organisations explaining the process of boarding professionals, were asked whether people with autism might be week. To start with, it parked
the spectrum. Any kind of Autism Friendly Awards, part of his a plane. There is also a separate they had ever avoided public anxious about public transport. outside with no driver or
excursion whether by bus, train, role is to persuade businesses to security area for vulnerable people transport because of autism and However, Cadey suggests one passengers and the engine turned
tram, plane or car comes with an become more aware of the and their families. peoples reactions to it. The results scenario that could be stressful is off. Students were encouraged to
element of unpredictability. For problems facing people with Manchester Airport has been were revealing: 53 per cent said if someone finds themselves on a climb aboard and explore. In
someone with autism, these autism and to make adjustments offering similar assistance for some theyd avoided the bus; 45 per re-routed bus in an unfamiliar place. subsequent weeks the engine was

42 Au t i s m | e y e I s s u e 2 5 2 0 1 7 www.autismeye.com www.autismeye.com Au t i s m | e y e I s s u e 2 5 2 0 1 7 43
Travel

Four brothers learn how to compromise and travel together


United
UnitedResponse
Responseisisan
anaward-winning
award-winning Sarah Ziegel, who lives in mise, which I think has been
charity
charitywith
withover
over40
40years
yearsexperience
experience London, has four sons with good for them.
supporting
supportingpeople
peoplewith
withdisabilities
disabilities autism aged eight to 17. You The boys have all been
and
andmental
mentalhealth
healthneeds.
needs. might think that going following an ABA (Applied
anywhere together would be Behavioural Analysis)
Weve
Wevebeen
beencheering
cheeringatatthe
thesidelines
sidelines four times the aggravation for programme for years. This
as
astheyve
theyvecelebrated
celebratedpassing
passingexams,
exams, the family, but, surprisingly, approach, Ziegel maintains,
Ziegel says this isnt the case. has been instrumental in
first
firstjobs
jobsand
andmoving
movinginto
intotheir
theirown
own
When were going on an helping to make journeys of all
homes.
homes.Weve
Weveeven
evendonned
donnedaahat hatfor
for
outing, we definitely have kinds much smoother.
the
theoddoddwedding
weddingorortwo.
two. to choose somewhere they For example, one of the
all want to go, she says. boys would only sit on the
Weve
Wevewitnessed
witnessedthetheheart-stopping
heart-stopping Theyve all had to compro- back seat of the bus, she
moment
momentwhen whensomeone
someonewhos
whosbeen
been says. Obviously, this wasnt
voiceless
voicelessforforaadecade
decadeisisfinally
finallygiven
given always possible. To get over
the
themeans
meansto tocommunicate
communicateand andsaysay this, we arranged for him to
yes
yes- -or
orjust
justas
asempowering,
empowering,no.no. go on a bus with a carer to

Find
Find out
out what
what we
we Let
Letus
ushelp
helpyou
youreach
reachyour
your
somewhere he really wanted
to go. If the seat was occupied Out together: Sarah Ziegels
When were
could
could do
do for
for you!
you! potential.
potential.
Registered
RegisteredCharity
CharityNo.
No.265249
265249
and he screamed, they got off.
They got on the next bus and
if he screamed again, they got
sons have learned to co-operate

older boys is learning to travel


going on
off again. He learned quickly by himself on public transport an outing, we
phone:
phone: 0800
08000884 377 // web:
0884377 web: www.unitedresponse.org.uk/get-support
www.unitedresponse.org.uk/get-support that he had to stop screaming to his running club. He loves definitely have to
to get to his destination. running, so he wants to go to
Giving children a reason to the club, she says. If he was choose somewhere
Sarah Ziegel: ABA has been make a journey is a useful tool, going to the dentist, Im not they all want to go
instrumental in sons travel Ziegel believes. One of her sure he would be so keen!

on and they were joined by a fear of dogs. Students are escorted


driver. After that, the bus drove the TfL have been at first, carrying smart phones for
students twice round the block. tracking or for following a map.
The aim is to eventually get them amazingly They are also encouraged to hold
making a journey on a working bus helpful. Theyve even something, such as keys or a
with other members of the public. pebble, to focus their attention and
The students have really offered to send over relieve stress.
enjoyed it, Rhoden says. Its random members of Days or weeks later, they make
given them a real sense of the journey with a carer following
achievement. TfL have been staff to pretend to from a safe distance. Finally, when
amazingly helpful. Theyve even be passengers! they are confident with the route, the
offered to send over random person makes the journey alone.
members of staff to pretend to be There can be a difference
passengers on the bus! brain injuries, mental health issues between the theory and practice of
Another organisation that helps or autism. With its scheme, each making a journey, a spokesperson
individuals with autism to travel autistic client has their route to comments, but we received
independently is Tracscare. This is college or voluntary work planned excellent feedback when we
a private company offering for them. This could be on foot or piloted the scheme in Wales. A
supported living to people across public transport and takes into couple of the clients can now travel
the UK with learning difficulties, account any anxieties such as a by themselves.

Contacts Further reading


l See the National Autistic Society website at l Ambitious About Autism: A Parents Guide to
www.autism.org.uk for travel tips and more www.ambitiousaboutautism.org.uk Coping with Autism
information about the Autism Friendly Awards. l Gatwick Airports disability provision: www. by Sarah Ziegel, Hale
l Tracscare: www.tracscare.co.uk gatwickairport.com/at-the-airport/passenger- Books, available
l Transport for London can supply a travel services/special-assistance/other-assistance from Waterstones
mentor to accompany passengers for their first l Manchester Airports disability provision: bookshops or Amazon
few times on a particular route. Visit: www.manchesterairport.co.uk/at-the-airport/ at 14.99/$5.51
www.tfl.gov.uk/transport-accessibility special-assistance/autism-awareness (special offer).

44 Au t i s m | e y e I s s u e 2 5 2 0 1 7 www.autismeye.com www.autismeye.com Au t i s m | e y e I s s u e 2 5 2 0 1 7 45

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