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American Academy of Nursing on Policy

The importance of health information technology in care


coordination and transitional care
Pamela F. Cipriano, PhD, RN, NEA-BC, FAANa,*, Kathryn Bowles, PhD, RN, FAANb,
Maureen Dailey, DNSc, RN, CWOCNb, Patricia Dykes, DNSc, MA, RN, FAANb,
Gerri Lamb, PhD, RN, FAANb, Mary Naylor, PhD, RN, FAANb
a
Galloway Consulting and University of Virginia School of Nursing, Charlottesville, VA
b
Care Coordination Members

Executive Summary Technology, and the Administrator for the Centers for
Medicare and Medicaid (CMS) should expedite
completion and dissemination of the format for a sin-
Care coordination and transitional care services are gle consensus-based, longitudinal patient-centered
strategically important for achieving the priorities of plan of care (LPC) framework to enhance coordinated
better care, better health, and reduced costs embodied care planning and implementation, communication,
in the National Strategy for Quality Improvement in and continuity. Furthermore, they should endorse the
Health Care (National Quality Strategy [NQS]). Some of use of this single framework and ensure the following:
the most vulnerable times in a persons care occur with
changes in condition as well as movement within and 1. The LPC framework must include data generated by
between settings of care. The American Academy of all clinicians.
Nursing (AAN) believes it is essential to facilitate the 2. The CMS must reconcile or harmonize the data re-
coordination of care and transitions by using health quirements for home care, long-term care, acute and
information technology (HIT) to collect, share, and postacute care.
analyze data that communicate patient-centered in- 3. The LPC data must be interoperable and accessible to
formation among patients, families, and care providers all providers across settings.
across communities. 4. Patients and their families must have access to their
HIT makes information accessible, actionable, own data and information.
timely, customizable, and portable. Rapid access to
information also creates efficiencies in care by elimi-
nating redundancies and illuminating health history Recommendation 2
and prior care. The adoption of electronic health re-
cords (EHRs) and information systems can enable care To ensure an adequate diversity of perspectives, HHS,
coordination to be more effective but only when a the Office of the National Coordinator of HIT (ONC), the
number of essential elements are addressed to reflect National Quality Forum (NQF), CMS, and the Agency for
the team-based nature of care coordination as well as a Healthcare Research and Quality (AHRQ) should appoint
focus on the individuals needs and preferences. a greater number of nurses and other health care pro-
To that end, the AAN offers a set of recommendations fessionals who are carrying out or researching care co-
to guide the development of the infrastructure, ordination and transitional care activities to decision-
standards, content, and measures for electronically making bodies that will determine the frameworks,
enabled care coordination and transitions in care as standards, and electronic measures (eMeasures) for care
well as research needed to build the evidence base to coordination activities and effectiveness. Broader input
assess outcomes of the associated interventions. is needed to address the following:

1. Technical expert panels developing care coordina-


Recommendation 1 tion concepts and specifications for eMeasures
require the expertise of nurses and others delivering
The Secretary of Health and Human Services (HHS), these services directly to patients and families as
the National Coordinator for Health Information well as those with relevant research expertise.

Reviewers: Dana Alexander, MSN, MBA, RN, FHIMSS, FAAN, Norma Lang, PhD, RN, FRCN, FAAN.
* Corresponding author: Dr. Pamela F. Cipriano, 512 Rosemont Drive, Charlottesville, VA 22903.
E-mail address: pcipriano93@gmail.com (P.F. Cipriano).
0029-6554/$ - see front matter 2013 Elsevier Inc. All rights reserved.
http://dx.doi.org/10.1016/j.outlook.2013.10.005
476 Nurs Outlook 61 (2013) 475e489

2. Data elements required for effective care coordina- 2. Data elements in the EHR and CDS must describe the
tion that are built into HIT systems must capture patient-centered LPC, transitional activities, and
actions of all care providers; outcomes relevant to nursing practice and coordi-
3. Data elements for care coordination and transitional nation of care.
care must articulate patient and caregiver preferences 3. Structural measures are included to evaluate the HIT
and needs across patient settings and professional infrastructure as well as the workforce capacity and
groups; competence in care coordination and transitional
care that contribute to outcomes.
Recommendation 3 4. Process and outcomes measures are included to
illuminate best practices for at-risk populations that
The AAN together with the American Nurses Associa- will identify indications for transition to an appro-
tion, other national nursing organizations, and nurse priate care setting and prevent adverse events.
leaders must do the following:
The AAN applauds the continuing efforts of the
1. Articulate the data elements that describe Department of Health and Human Services to
nurses actions and shared activities of care co- encourage the adoption and use of EHRs and CISs to
ordination and transitional care to be captured in improve care. Ongoing efforts to strengthen the coor-
EHRs that will build the evidence base for these dination of care, improve safety, and engage patients
actions. in their own care can be greatly enabled by the strategic
2. Stipulate that the inclusion of care coordination and use of HIT that provides sharing of health information
transitional care data elements be part of the con- among health care providers, patients, families, and
tent in electronic clinical information systems (CISs) other stakeholders across all settings of care.
as a requirement for purchase.
3. Develop and advance a research agenda to the
Agency for Healthcare Research and Quality, Glide Path to Achieve Improved Care
the National Institutes of Health (NIH), CMS, and the Coordination with HIT
National Library of Medicine (NLM) to secure funding
for the following:
a. Research studies and quality improvement ini- The coordination of care, especially at transitions,
tiatives that analyze care coordination data el- strives to overcome the cracks in our fragmented
health care system. Coordination demands timely
ements and show the relationship between
structures, processes, and outcomes; communication and collaboration among providers
b. Research studies that identify standardized data and organizations together with patients and their
elements leading to the rapid identification of caregivers. HIT is a necessary tool to accomplish the
individuals in subpopulations who will benefit rapid and systematic collection, use, and analysis of
from care coordination and transitional care data as well as the sharing of information, which is
interventions (e.g., those with multiple chronic critical for patient safety and effective care. The rec-
or comorbid conditions); ommendations included in this article are intended to
c. Coordination and transition intervention studies; accelerate the effective use of HIT for care coordination
d. Usability testing of HIT across venues of care; as well as to provide specific directives to ensure the
e. Development and testing of personal health re- representation and measurement of team-based
approaches to improving coordination and transitions
cords content, utilization, and impact;
f. Electronic clinical decision support (CDS) for in care.
coordination and transitional care interven- HIT can facilitate efficient and successful care co-
tions; ordination by linking patients and providers with data
g. Development and testing of e-measures for care and information. HIT can ensure that actionable,
coordination and transitions. timely, patient-centered information is accessible to all
involved in care through interoperable electronic re-
Recommendation 4 cords. Included in those records must be a single LPC
that supports and guides care team decision making
Measure developers must create a broader array of (inclusive of the patient) across the life span and care
performance eMeasures to evaluate effective care co- settings. HIT makes possible, in the most efficient
ordination across teams and settings. Attention should manner, the organization and sharing of information,
focus on measure topics that are most relevant to collection, clinical use, analysis, and reporting of data
public reporting of outcomes, quality improvement, for quality measurement and multidirectional com-
and value-based payments. The following are expected: munication among patients and providers and the
greater health care community. The presence and
1. Data capture and reporting are automatic as a sharing of information is essential for keeping patients
byproduct of clinical documentation. safe in any setting and during transitions of care. HIT
Nurs Outlook 61 (2013) 475e489 477

augments the human interactions that aim to deliver, and transitional care. Also discussed are needed
measure, and evaluate care. functionalities, such as the electronic exchange of
HIT is a broad array of hardware and software information, to better support emerging models of
products that supports the secure collection, clinical care believed to be essential for transforming health
use, storage, and movement of large amounts of care.
health data about individuals. HIT is a critical foun- The AAN believes that the use of HIT is an essential
dation of high-value care coordination and transi- tool to meet the strategic imperative to improve care
tional care serving patients and providers from coordination and transitional care outlined in the NQS
primary care through end-of-life care. Care coordina- aimed at achieving better care, healthy people and
tion and transitional care require timely flow and communities, and affordable care with lower costs
synthesis of information among providers within and (Department of Health and Human Services, 2011).
across any care experience.1 Closing gaps that have Consistent with the Federal HIT Strategic Plan (ONC,
prevented the availability of timely information en- 2011), nurses and other health care providers who
sures better integration of care and makes transitions strive to deliver patient-centered, efficient, and coor-
safer, seamless, efficient, and effective. When widely dinated care support the use of a wide range of HIT
adopted, HIT enables communication among pro- applications to achieve those goals.
viders, caregivers, patients, and families, which in Throughout this article, the AAN recommends
turn helps prevent threats to safety, thereby actions to ensure the timely availability of data to pa-
improving quality and preventing avoidable costs. In tients, their caregivers, health care providers, and
addition, individual data are aggregated and trans- organizations to facilitate care coordination and
mitted for use in public health and public reporting essential activities during transitions in care. The rec-
and by payers and policy makers. ommendations address electronic infrastructure,
This article describes the essential functions of HIT standards, content, and quality measurement to assess
in care coordination informing nurses and other the effectiveness of care coordination represented in a
health care professionals, care partners, consumers, single unified plan of care and embodied in team-based
payers, and policy makers about the imperative to care delivery.
ensure the transmission of consistent, timely, patient-
centered2 information among providers, patients and
families, and other stakeholders in the health care Background: Effective Care Coordination
system. The article builds on the AANs policy brief
The Imperative for Patient, Family, and Population
Centered Interprofessional Approaches to Care Coor- The AAN recognizes that care coordination and tran-
dination and Transitional Care, which offered a set of sitional care are central components of all care de-
recommendations designed to accelerate the delivery livery models to achieve better care, improved health,
of effective care coordination and transitional care to and lower costs. The AANs March 2012 policy brief
ensure better care, better health, and lower costs. offered specific recommendations to accelerate the
Building on a review of the strengths and challenges development and delivery of high-value care coordi-
of current EHRs,3 key recommendations focus on nation and transitional care. The AANs recommen-
steps to achieve an effective LPC and an interoperable dations highlighted the need for (a) consistent
architecture to support and improve care coordination application of definitions of patient- and family-
centered care coordination and transitional care;
1
(b) implementation of payment models that support
Transitional care is the range of time-limited services and
evidence-based care coordination, including transi-
environments that complement primary care and are designed to
ensure health care continuity and avoid preventable poor out-
tional care, within communities by teams that include
comes among at-risk populations as they move from one level of nurses and other health professionals; and (c) support
care to another, among multiple providers and across settings for the infrastructure including workforce develop-
(Naylor & Keating, 2008). Care coordination incorporates transi- ment and relevant performance measures to promote
tional care and includes a range of continuous activities and replicability and sustainability of such models. The
services designed to organize and integrate patient information AAN brief also emphasized the importance of HIT in
and care within and across providers and settings to ensure that
supporting high-value care coordination and transi-
patient needs and preferences for services are met over time.
Although transitional care is targeted at primarily at-risk pop- tional care by members of the interprofessional health
ulations, care coordination is relevant to the health care of all care team.
individuals and populations (adapted from McDonald et al., 2010 The American Nurses Association (2012) issued a
and NQF, 2006). white paper in June 2012 titled The Value of Nursing
2
The terminology patient-centered is used throughout this Care Coordination, highlighting the central role that
article; however, it should be noted that the reference is evolving
registered nurses play in care coordination and rein-
to terms such as person-centered and user of health care
forcing the Institute of Medicines Future of Nursing
services.
3
An EHR is an electronic repository of longitudinal health in- report that nurses and all members of the health care
formation gathered across care settings and care providers team must practice at the top of their license to
(Caligtan and Dykes, 2011). ensure achievement of the national safety goals. The
478 Nurs Outlook 61 (2013) 475e489

ANAs paper highlights successful care coordination Importance for Patients and Families
activities by nurses leading to improved quality and
efficiency across a variety of patient groups and care
settings. The ANA recommends additional research to The mission of the Federal HIT Strategic Plan 2011 to
advance quality measure development and to 2015 (ONC, 2011) is to improve health and health care
broaden understanding of best practices for care co- for all Americans through the use of information and
ordination; enhanced education about care coordina- technology. The plans goals include the improved
tion and team-based approaches to care; and support design of HIT policies and programs that will better
for nurse-led models of care coordination that offer meet individual needs and expectations, such as
greater patient, family, and other community care- increased access to personal health information and
giver engagement. HIT is foundational to these the integration of communications between patients
efforts. and providers. With easier access to information from
their health care providers and health plans, it is
anticipated that consumers can better manage their
HIT-Enabled Care health and health care (Skipper, 2012).
The continuity of care and seamless transition ex-
periences, which is essential to improving health and
The general benefits of HIT-enabled care are amplified health care for patients and family caregivers, can best
when applied to care coordination. This underscores be achieved with the aid of HIT. The use of HIT tools
the urgency for the greater adoption of EHR systems to such as EHRs and personal health records (PHRs)4
achieve safer, more effective, and more efficient team- support comprehensive and efficient coordination of
oriented, patient-centered care. If designed and used care. If these records are functionally connected, care
appropriately, HIT enables the benefits detailed later coordination can increase the possibility that patient-
and helps drive accountability for care. centered goals are met, and patient self-care actual-
The benefits of HIT-enabled care are as follows: ization is supported while avoiding duplicate, futile,
and unwanted care or unnecessary cost.
1. Data availability 24/7 Joint decision making by stakeholders including
2. Informed decision making the patient and family can be enhanced through the
3. Mutually agreed-on patient-centered plan of care use of key EHR information, particularly during tran-
4. More timely actions sitional care planning. The information can guide the
5. Automated capture of data for clinical decision type of long-term post-acute care (LTPAC) services
making, reporting of quality measures, and research that patients need, prefer, and are covered for on
6. Opportunity to assess team member contributions hospital discharge. For example, access to necessary
7. Creation of a learning health system insurance coverage information should include cur-
8. Uniform interoperable set of data among health care rent LTPAC coverage type (e.g., setting and services),
organizations and health professionals length of coverage, and so on. This information is very
useful to patients and caregivers during transition
EHRs have been associated with significant im- phases.
provements in the transfer of clinical information
among multiple clinicians as well as facilitating
agreement on treatment goals and plans (Graetz et al., Current State of EHRs
2009). To ensure widespread benefits of HIT, stan-
dardized, integrated, and interoperable systems must
provide access to patient-related information Over more than 30 years, EHRs have evolved from
including care provided, treatment indications, results, simple data collection to aid in diagnosis to becoming
and ongoing plans across providers, settings, condi- complex tools that support care delivery workflow
tions, and time. and decision making by capturing, aggregating,
New delivery models embodied in Accountable Care analyzing, and moving data across the continuum of
Organizations and patient-centered medical (health) care. However, current EHRs are inadequate to deliver
homes rely on HIT to connect care team members, the patient-centric view needed to improve care
patients, caregivers, health plans, and regulatory transitions because they are designed to capture data
agencies and to provide tools for care coordination. in a linear and not dynamic fashion and to reflect
Data analytics, still in their early development, can structures built to optimize documentation for billing
provide intelligence to identify high-risk patients, and not for describing the patient experience; they
construct predictive models for risk analysis, avoid also lack interoperability with other providers EHRs
errors and unnecessary care, help manage cost, (OMalley, Grossman, Cohen, Kemper, & Pham, 2010).
improve quality, and measure and report results. The
combination of improved efforts to coordinate care and 4
A PHR is a lifelong, universally available resource of health
apply timely analytics offers the promise of acceler- information that is separate from the EHR (Caligtan and Dykes,
ating improvements in population health. 2011).
Nurs Outlook 61 (2013) 475e489 479

The idealized vision for the EHR is that it contains a organization- and setting-specific data collection
single source of data that are entered once and reused forms for multiple new programs aimed at reducing
repeatedly by all team members, including patients hospitalization and other adverse outcomes. Most
and family caregivers, to support decision making, notably, a comprehensive, longitudinal plan of care to
reporting, benchmarking, and research. Debate con- support continuity, quality, and safe patient-centric
tinues about the accuracy and redundancy of data care is often lacking. The proposed meaningful use
because there is not a mechanism to verify which standards promulgated by the ONC such as the
data are correct. Many EHR systems in use today Consolidated Clinical Document Architecture (CCDA)
include a range of clinical applications such as pro- address barriers related to standardizing the informa-
vider order entry, e-prescribing, patient problem lists, tion and terminology models needed to share patient
plan of care, flow sheets, note templates, and closed- plans and summaries across settings. However, addi-
loop medication systems to facilitate safe medication tional work is needed to ensure that the core data and
administration processes. The degree to which these information captured and transmitted are adequate to
systems leverage existing standards to facilitate sec- provide context into the patient story and to inform
ondary use of data and benchmarking is variable. nursing care that is consistent with best evidence and
Even if adopted and fully implemented, the recom- patient preferences.
mended data set for care transitions (S&I, 2012) is
medically focused, not patient centric, and may be
inadequate to describe patient goals and conditions. It Recommendation 1
is unclear whether existing standards will relay the
complete set of information needed to understand The secretary of the HHS, the national coordinator for
patient status and to identify issues relevant to Health Information Technology, and the Administrator
nursing practice. Moreover, functionality to synthe- for the Centers for Medicare and Medicaid (CMS)
size data to provide context, identify the most salient should expedite completion and dissemination of the
points, and to prevent cognitive overload is needed format for a single consensus-based, longitudinal
(Caligtan, Carroll, Hurley, Gersh-Zaremski, & Dykes, patient-centered plan of care (LPC) framework to
2012). enhance coordinated care planning and implementa-
In addition, an existing plan of care functionality is tion, communication, and continuity. Furthermore,
lacking. Individualized patient care is often not visible they should endorse the use of this single framework
(Keenan, Yakel, Tschannen, & Mandeville, 2008), and and ensure the following:
discrepancies exist between information found in the
plan of care and verbal reports from providers and 1. The LPC framework must include data generated by
patients about their perception of the plan (Ehrenberg all clinicians.
& Ehnfors, 2001). Poorly designed electronic systems 2. The CMS must reconcile or harmonize the data re-
can exacerbate these problems. Although interdisci- quirements for home care, long-term care, and acute
plinary plans of care are required by regulatory and postacute care.
agencies for accreditation and reimbursement (CMS, 3. The LPC data must be interoperable and accessible to
2012a), the majority of research to date has focused all providers across settings.
on the development of plan of care applications for use 4. Patients and their families must have access to their
by a single discipline, such as nursing or medicine own data and information.
(Darmer, 2006; Dellefield, 2006; Elnahal, Joynt, Bristol, &
Jha, 2011). This siloed approach is unlikely to meet the A uniform, single electronic patient-centered LPC is
desired effects of a patient-centered plan of care. The needed to enhance care planning and continuity in all
plan, if done correctly, should bridge communication settings from primary care through end of life, during
among care team members and should be available to patient transitions from one setting to another, or
patients and their caregivers. It should also reflect an during a health status change. The use of multiple care
interdisciplinary approach to problem identification, plans with different data elements measured in
goal setting, interventions, criteria for terminating in- different ways creates unnecessary obstacles to con-
terventions, and documentation of progress toward tinuity of care and achieving patient- and family-
meeting the patients goals. In organizations in which a centered goals. The LPC needs to be the focal point of
patient-centered plan of care is developed, institution- the patients care over time, across settings of care, and
specific formats preclude routine sharing of key com- inclusive of all providers. Patients and designated
ponents across care transitions. Even vendor systems caregivers can access electronic care plans efficiently,
that enable intraoffice or intraorganizational commu- empowering them by providing them with essential
nication and coordination do not routinely capture information during critical discussions with other
information needed to understand the context of care members of the care team. These discussions include
and to support coordination across organizations or goal setting and other key decisions, such as alignment
settings (OMalley et al., 2010). This problem is exac- of treatment choices, re-evaluation of progress and
erbated by the widespread development of goals, and symptom management. Together patients,
480 Nurs Outlook 61 (2013) 475e489

caregivers, and providers share accountability to extend across EHRs and other information systems. A
address patient-centered goals. data aggregation intelligence platform and a health in-
An accurate, dynamic plan that links all episodes of formation exchange (HIE) strategy are also essential
care into a portable personal health care story will components to extend the capabilities of any EHR or HIT.
require capturing data in the correct format based on Shared care plans and patient-centered goals align
its intended use. For example, detailed patient-level the most appropriate team members with the skills/
elements are needed to drive secondary use of data, knowledge needed to best assist the patients/care-
such as decision support, reporting, and research. givers to meet their needs. For example, a patient with
These data must be represented as structured, coded an advanced pressure ulcer may require access to a
data elements using standard vocabularies. However, certified wound care nurse to consult on pressure ulcer
narrative text may also be needed to support the un- prevention interventions and wound healing during
derstanding of context and transmission of the pa- hospitalization and after discharge. The use of this
tients story. The increased development of natural single source document by teams can promote ac-
language processing may facilitate the use of narrative cess to the right care at the right time with transitional
findings. However, at this time, electronic information care continuity, which is consistent with patient/
systems require the use of electronic readable data caregiver goals and preferences. Moreover, the use of
elements. Patient-friendly tools are needed to support this comprehensive plan will help to prevent duplicate
patient participation and updates to their plan of care. care as well as avoidable suffering and cost. This is
A limitation of existing EHR systems is that they rarely empowering to patients/caregivers, particularly during
provide access or the tools to enable patients to vulnerable periods such as during disease progression,
communicate their preferences, status, and other coping with new loss of function, and at end of life.
health-related data that are needed to ensure that the The need for a uniform, single patient-centered LPC
plan of care is optimized from the patients perspec- is heightened during transitions to and from acute care
tive. Additional work is needed to develop consumer settings. Hospitalizations are a time of substantial
vocabularies to improve patient access to health in- vulnerability and risk for patients and families and far
formation and to ensure that information is displayed too often result in preventable readmissions. The vol-
in a format that is consistent with their level of health ume of complex self-care education and other infor-
literacy (Cardillo, Tamilin, & Serafini, 2011). mation is often overwhelming for patients/caregivers
Another concern is the underrepresentation of during hospital discharge. Personalization of the LPC,
robust EHRs or HIT capabilities in LTPAC5 settings. informed by comprehensive team member assess-
Despite hospitals progress to address care transitions, ments, facilitates transition/discharge planning and
the coordination of care will only be effective with timely joint decision making with patients/caregivers.
integration and communication across the whole For example, using the care plan to inform transitional
spectrum of providers and settings. Transitions to and care requirements can cue necessary discussions
from LTPAC settings are often the most sensitive to about needed but noncovered services. Integral to
information gaps and produce failures, resulting in transition/discharge planning, the LPC provides infor-
complications, delayed recovery, readmissions, and mation for timely decision making and linkages to
mortality. Many of these organizations have been un- community-based transitional care services that can
able to make investments to obtain an EHR and rely on prevent avoidable deterioration, complications, and
antiquated means such as facsimile transmission for hospital readmissions or emergency department visits.
much information. The Standards & Interoperability
Longitudinal Care Coordination Workgroup of the
ONCs HIT Policy Committee has engaged the LTPAC Patient and Family Access to Information
community to develop the standards for interopera-
bility and exchange of patient assessments, transitions
of care documents, and LCPs among these settings. Patient and family access to health information is
central to achieving the goals of patient-centered care.
Interoperable LPC Adds Value Although the provision of personal health data is in its
infancy, research findings reflect a growing trend in
To be used effectively, the LPC data must be interoperable which patients and families with access to key infor-
and used across settings. As well, longitudinal and cross- mation about their health and test results have become
continuum care coordination and plans of care must engaged in their care (Schnipper et al., 2012). In one
trial, patients were more likely to improve the accuracy
of medications at home (Krist et al., 2012). Another
5
LTPAC settings include home health, hospice, long-term care study showed improved preventive care by seeking
facilities such as skilled nursing homes, inpatient rehabilitation,
cancer and other disease screenings. Other studies are
long-term care hospitals, and community-based care services.
not definitive, citing the low volume and infrequency
Patients may receive services for chronic illness or for short- or
long-term functional impairment. Care is shared by team mem- of patients accessing their personal health records
bers who may have no common organizational affiliation and are (Wagner et al., 2012; Tenforde, Nowacki, Jain, &
not in close physical proximity. Hickner, 2012). The ONC is promoting the use of PHRs
Nurs Outlook 61 (2013) 475e489 481

dosage change instructions. Thus, PHRs are likely to be


a useful tool to prevent avoidable medication-related
emergency department visits and hospitalizations.
Patient and caregiver reported information will likely
increase with greater adoption of PHRs.

Standards and Interoperability for Data


Figure 1 e The Blue Button logo. Capture and Movement

in the Putting the I into HIT campaign (www.healthit. There is general consensus on the need for standards
gov). Nursing has pledged to engage more nurses and and interoperability of EHRs as proposed by the ONC.
patients in using PHRs given the advancement of The achievement of these goals is foundational to
technology and standards. Further evidence of the advancing care coordination and transitional care.
promotion of patient access to information is the Therefore, it is essential to accelerate the adoption of
ONCs meaningful use incentive requirement that a national standards for data structures, messaging,
written clinical summary be provided to the patient at terminologies, and EHR content that address the need
the conclusion of any clinical office visit. to capture and improve care coordination and transi-
Consumers have the right to access their health in- tional care activities. To achieve the coordination of
formation, and the process is being simplified with the care, interoperable data elements must include all
use of technology, signified by an electronic Blue But- health professionals plans along with patient goals
ton, which provides secure online access and download and preferences.
of personal health data (ONC, 2013) (Figure 1). The
project was initiated by the Department of Veterans Capturing Essential Data
Affairs. Data were initially available only to veterans
and military personnel and then extended to Medicare Capturing care coordination activities of diverse pro-
beneficiaries. Today, a growing number of insurance viders, although challenging, is important to identi-
companies and health care organizations are providing fying and improving those activities related to
easy access through this technology. To further spread improved outcomes and lower costs. Using standard-
the application of the Blue Button, the Department of ized terminologies that are mapped to reference
Health and Human Services, the White House, and the terminologies, such as Systematized Nomenclature of
Department of Veterans Affairs have forged the Blue MedicinedClinical Terms6 or Unified Medical Lan-
Button for the American collaborative with the goal of guage System, across settings enables a common un-
having any consumer, regardless of setting, be able to derstanding of what is meant, easy comparison and
view, download, and share personal health data from measurement, and the ability to quantify the numbers
any data holder. Many organizations are signing a and types of problems and interventions. Standardized
voluntary Blue Button pledge to make health informa- terminologies are necessary for the interoperability of
tion available on demand to their members and patients data, and using standardized languages to code
and to help them manage their health. nursing actions provides a way to evaluate the value
Timely provider/patient/caregiver team decisions and importance of nursing care.
enhance patient/caregiver engagement, safety, and One way to capture nursing assessment and inter-
other key outcomes over time. Team interactions that vention data in a standardized electronic format is
include the patients and caregivers rely on efficient through the routine use of recognized standardized
access to additional health information such as test terminologies. Nursing-specific terminologies such as
results and medication lists. Patients and caregivers the Omaha System, the Clinical Care Classification,
are eager for efficient access to health information that North American Nursing Diagnosis Association,
they can use to stay well, manage chronic illnesses or Nursing Interventions Classification, and Nursing Out-
symptoms, and prevent complications. For example, comes Classification used individually or in
patients using warfarin at home need to be aware of combination describe patient problems, nursing in-
avoidable complications, such as stroke or bleeding terventions, and outcomes essential for communica-
related to laboratory values that are out of therapeutic tion, quality measurement, decision support, research,
range. These preventable complications can occur if and reimbursement. Although there has been some
tests are not completed and results are not reviewed in
6
a timely manner and if appropriate dosage changes are Systematized Nomenclature of MedicinedClinical Terms is a
reference terminology with mappings to all of the nursing clas-
not made through effective communication with pa-
sification systems accepted by the American Nurses Association.
tients and/or their caregivers. Patient and caregiver use
It is also one of the standards for meaningful use. It will be ad-
of PHRs and access to key health information (e.g., vantageous to use the Systematized Nomenclature of
medication list and laboratory work data) as part of MedicinedClinical Terms mappings when structuring nursing
PHRs can help to reduce avoidable errors during verbal data in any electronic format.
482 Nurs Outlook 61 (2013) 475e489

progress in the past 2 decades to describe and link health. Extensive efforts to build trust and ensure pri-
nursing actions to reference terminologies, we are vacy of HIE promise to enhance consumer and provider
reminded of the gravity of this work proffered by Dr. adoption of HIE at all levels.
Norma Lang that if we cannot name it, we cannot Long-term post-acute care, growing faster than
control it, finance it, teach it, research it, or put it into acute care, serves persons with complex conditions.
public policy (Clark and Lang, 1992). Over time, research The need for improved efficiency, effective transitions,
that links particular types of patient problems with in- and the ability to prevent the duplication of care can be
terventions that are associated with quality outcomes achieved, in part, through longitudinal coordination of
will yield evidence to build decision support and show care. The exchange of data at transitions can mitigate
the nurses contribution to high-quality, high-value the risks posed by the lack of support of electronic re-
care. There is a growing need for and interest of nurse cords; it can also improve efficiency by focusing the
scientists to use and contribute to standardized termi- essential clinical data from various sources to provide
nologies in their respective areas of research. safe and appropriate care. The ONCs Standards &
Interoperability Longitudinal Coordination of Care
Workgroup and its subgroups aim to overcome the
HIE challenges restraining the clinical data standards for
transitions of care (S&I Framework, 2013).
The LTPAC Health IT Collaborative has created a
The electronic exchange of information is a founda- road map that includes prioritizing technologies to
tional element to the communication of data beyond promote care coordination and the continuity of
boundaries of a single provider, institution, or health care (2012). Home care providers as well as nursing
system. Automated data exchange needs to address homes and inpatient rehabilitation facilities are
semantic differences among health care providers. The already required to electronically transmit patient
use of standardized data sets allows data to be assessment information using standardized in-
exchanged electronically and communicate in struments. However, a significant limitation is that
commonly understood terms. Electronic exchange also these instruments do not yet conform to the same
relieves administrative burdens traditionally associ- standards for data exchange, thus preventing the
ated with communication among other providers, efficient reuse of data across providers and settings.
payers, and patients. Fully executing effective care The adoption of the CCDA across settings could
coordination includes closing many communication improve the communication of assessment infor-
feedback loops well suited for the use of HIT. mation; however, standardized content (e.g., the
HIE providers are offering services that facilitate same evidence-based assessment scales and
communication with referring providers (e.g., response sets) mapped to standardized terminol-
requesting services or results delivery); share relevant ogies is also needed to ensure semantic interopera-
information for retrieval by any other provider at any bility and data reuse. The CMS is supporting a
time; provide clinical care summaries for referrals and Continuity Assessment Record and Evaluation that
at care transitions; provide two-way connectivity for aims to move this goal forward.
providers with patients, families, and caregivers; Transformational new technology used by con-
automate review and updating of complex files such as sumers, such as smart phones and PHRs, also may
medication records; generate provider and patient enhance the coordination of care. With the increase in
alerts; offer tools for chronic care management and near-patient testing and telehealth devices in the
immunization reporting; and ensure information is home, patients and caregivers can communicate
accessible in the event of the need for emergency care. health data via their PHR, their cell phone, or other
Achieving HIE can broaden the reach of the hospital- mobile devices to their primary care providers and
centric system of EHRs. Without interoperability be- other team members to facilitate care management
tween a primary care providers EHR and associated and self-care. Additional potential features of PHRs
hospital systems EHRs, the patient and provider may that patients and caregivers value include direct e-mail
have incomplete and/or conflicting information. As with providers, appointment requests, prescription
patients and their caregivers seek access to a common management, and access to educational tools (e.g.,
EHR or one that is extensive, some mechanism to self-care including symptom management). However,
navigate the contents will be necessary. Most organi- it is important to consider how these data are inte-
zations provide patients with only limited access to a grated into the EHR, PHR, and LPC.
small amount of data, without patients having been
involved in determining the portions to which they Involving Expert Clinicians in Designing HIT
have access. As the public demands more transparency to Support Care Coordination
in the future, critical personal health information such
as that related to care transitions must be accessible.
Eventually, the availability of data about large pop- Nurses and other professionals who carry out care
ulations of patients will enable review and analysis of coordination and transitional care activities have a
trends that can inform ways to improve population critical role in defining the content and designing the
Nurs Outlook 61 (2013) 475e489 483

functionality of HIT systems that support care coordi- patient teaching. An excellent, successful working
nation. The volume and depth of nurse-collected pa- example of such a system is the work led by the
tient-centered data and information are significant, Canadian Nurses Association and Canada Health
affording an opportunity to maximize the use of data Infoway (2009) called the Health Outcomes for Better
for communications, quality measurement, decision Information and Care. The Health Outcomes for Better
support, research, and reimbursement. For example, Information and Care introduces standardized ques-
upon admission to any health care settingdbe it acute, tions into assessments about the following: functional
home, or long-term carednurses are often the first status, therapeutic self-care, pain, nausea, fatigue,
point of contact for patients and their families. The dyspnea, pressure ulcers, and falls. These assessments
admission assessment information, collected pre- are repeated over time, giving a longitudinal record of
dominantly by nurses and augmented by the other progress or decline in important functional areas.
disciplines, forms the foundation for developing the Nurse-collected information about the human
single patient-centered LPC. response to illness enriches our understanding from
the patients perspective and assists in setting collab-
Recommendation 2 orative patient-centered goals. The Canadian project
uses the International Classification for Nursing Prac-
To ensure an adequate diversity of perspectives, HHS, tice and is working toward inclusion in electronic
the ONC, the NQF, CMS, and the Agency for Healthcare systems.
Research and Quality should appoint a greater number
of nurses and other health care professionals who are
carrying out or researching care coordination and Quality Measurement and Reporting
transitional care activities to decision-making bodies
that will determine the frameworks, standards, and
electronic measures (eMeasures) for care coordination The implementation of the provisions of the American
activities and effectiveness. Broader input is needed to Recovery and Reinvestment Act of 2009 is expected to
address the following: improve the quality of care by promoting adoption and
supporting meaningful use of EHRs (CMS, 2012b). The
1. Technical expert panels developing care coordina- American Recovery and Reinvestment Act requires
tion concepts and specifications for eMeasures that hospitals and health care providers show mean-
require the expertise of nurses and others delivering ingful use of EHRs through the following mechanisms:
these services directly to patients sand families as (a) use of a certified EHR; (b) facilitation of care coor-
well as those with relevant research expertise. dination and quality by participating in the exchange
2. Data elements required for effective care coordina- of electronic health information; and (c) submission of
tion that are built into HIT systems must capture data for quality reporting. On the national level, a
actions of all care providers; number of initiatives aim to provide the informatics
3. Data elements for care coordination and transitional platform needed for automated quality reporting.
care must articulate patient and caregiver prefer- These initiatives seek to drive improved processes and
ences and needs across patient settings and profes- outcomes in general and specifically processes related
sional groups; to care transitions. For example, the NQF appointed the
HIT Expert Panel to establish a set of building blocks to
HIT systems should contain the range of physical, move the U.S. health care system away from manual
functional, emotional, cognitive, and social data ele- data abstraction and performance measurement ap-
ments required for comprehensive care planning and proaches toward automation. The set of tools devel-
care coordination. These systems should incorporate oped by the HIT Expert Panel, including the Quality
evidence-based assessment tools to measure cogni- Data Model (NQF, 2012b) and the Measure Authoring
tion, functional status, social support, and psycholog- Tool (NQF, 2012a), provide a standard and consistent
ical status such as depression. By using evidence-based way to describe concepts across all quality measures.
tools across care settings, providers and patients can Several Quality Data Model categories proposed for
more easily recognize improvement or decline over 2013 are relevant for care coordination and transitions,
time, and providers can activate best practices as well including a focus on developing formal definitions for
as correlate patient behavior or therapeutic in- the concepts of care goal, communication, and trans-
terventions to the response. For example, functional fer. Consistent electronic representation of quality
status is commonly assessed upon admission, but measure data will provide a means to automate mea-
when there is no requirement for reassessment, subtle surement and to deliver real-time decision support to
changes can be overlooked. A high-value HIT system improve transition processes, leading to improved
could prompt providers to assess critical aspects such quality and cost outcomes. In addition, the CCDA is
as functional status at specified intervals and provide specified by Meaningful Use Stage 2 as the standard
summaries in text or graphic form for use in research, archetype to be exchanged electronically with pro-
quality improvement, referral decision making, or viders upon transition of care. The CCDA includes the
484 Nurs Outlook 61 (2013) 475e489

Figure 2 e The building blocks of interoperable informatics infrastructure.


Nurs Outlook 61 (2013) 475e489 485

core set of data and information needed by both pro- 3. Develop and advance a research agenda to the
viders and patients to support quality transitions (HL7, AHRQ, the NIH, the CMS, and the National Library of
2012), including closing the referral loop. The com- Medicine to secure funding for:
posite of building blocks for an interoperable infor-
a. Research studies and quality improvement ini-
matics infrastructure outlined in Figure 2 will
tiatives that analyze care coordination data el-
transform the use of EHRs and health information.
ements and show the relationship between
The urge to customize clinical information systems
structures, processes, and outcomes;
to meet local norms should be restrained. Custom-
b. Research studies that identify standardized data
ization removes the standardization of data between
elements leading to the rapid identification of
systems and can lead to interoperability and semantic
individuals in subpopulations who will benefit
operability challenges even when working within the
from care coordination and transitional care
same vendor system. For example, if a measure con-
interventions (e.g. those with multiple chronic
tains the pick list choices of excellent, good, fair, and
or comorbid conditions);
poor, to customize the system to excellent, very
c. Coordination and transition intervention stu-
good, good, average, and poor creates a different scale
dies;
and incongruence for the exchange of information for
d. Usability testing of HIT across venues of care;
research and clinical care.
e. Development and testing of personal health re-
A variety of private and public groups are advancing
cords content, utilization, and impact;
the use of HIT to improve care coordination. Their ef-
f. Electronic CDS for coordination and transitional
forts range from regulatory initiatives to improve the
care interventions;
infrastructure for exchange of information vital to care
g. Development and testing of e-measures for care
transitions, initiation of quality measures that
coordination and transitions.
encourage widespread standardization, and use of care
coordination approaches and tools. Appendix 1 in-
To use this rich data resource to answer clinical and
cludes examples of these national efforts.
translational research questions central to nursing will
require attention to data and their meaning at the
conceptual, implementation, organization, and policy
Building the Evidence Base levels. If data are to be valid and reliable, a continued
and concerted effort must be given to the selection of
data to be included in the EHR, particularly the concepts
HIT has produced a flood of available information with most relevant to clinical nursing. Nomenclature, ter-
vast potential for its use in the research needed to minology, vocabulary, and data representation used to
advance the science of health, including diagnosis and record data (Lobach & Detmer, 2007) related to nursing
treatment of symptoms and diseases, service planning, (Thede, 2008) and nurse-led care coordination activities
delivery and evaluation, and public health. However, will be critical. In many instances, the evidence base for
there has been less data and information useful to nurses current measures of these important concepts is
about nursing care. Although the emphasis for HIT has limited, resulting in challenges in EHR utilization for
been on reaping the benefits in better patient care and research. Likewise, future endorsed electronic mea-
health outcomes through improvements in patient safety sures of care coordination and transitional care must be
and the use of decision support, significant opportunities structured to include data elements reflecting nursing
also exist for research that will produce the evidence base and other disciplines care contributions.
needed to develop effective treatment approaches and The results of secondary analyses of data acquired
efficient health services that are both discipline specific through the use of HIT are already affecting health care
and across team-based care. Emphasis has also been on decisions and priorities selection at the agency, regional,
data required for payment and public reporting. national, and international levels. If used as proposed,
these decisions and priorities will significantly affect the
Recommendation 3 practices and resources of nurses. Much of the emphasis
in the use of HIT as it relates to nursing care to date has
The AAN together with the American Nurses Associa- been on determining compliance with prescribed treat-
tion, other national nursing organizations, and nurse ments and safety protocols. Limited attention has been
leaders must do the following: given to the use of HIT in creating the evidence base
needed to develop and evaluate clinical care provided by
1. Articulate the data elements that describe nurses nurses and other disciplines. For example, there has not
actions and shared activities of care coordination been systematic attention to the use of the EHR data to
and transitional care to be captured in EHRs that will understand nursing questions/problems or the clinical
build the evidence base for these actions. decisions that nurses make and the impact of those de-
2. Stipulate the inclusion of care coordination and cisions on patient outcomes. By not leveraging the
transitional care data elements be part of the content research potential of the EHR, nursing is denied oppor-
in electronic CISs as a requirement for purchase. tunities for scientific advances and inhibited from
486 Nurs Outlook 61 (2013) 475e489

making visible nursing contributions to individual pa- to fill critical gaps have been identified by the AAN
tient care, health care, and health policy. (2012), the NQF (2012), and the Measure Application
With the shift to team-based care, HIT enables the Partnership (2012). Clinical information systems and
sharing of information among caregivers within an EHRs must accommodate current measures and
organization and across practice settings. As interpro- anticipate the inclusion of new ones. The design and
fessional team practice becomes mainstream, as capacity of HIT must support central features of care
characterized by team-based principles and values coordination and transitional care. Such data capture,
(Mitchell et al., 2012), research about team perfor- interpretation, and reporting are extremely chal-
mance is necessary to evaluate the knowledge, abili- lenging activities.
ties, approaches, and impact of disciplines Approaches to improve care coordination and
contributing to care. One of the significant areas ripe traditional care performance measurement should
for investigation is the effectiveness of team actions on include the following features:
care coordination, individually and collectively. Data
entry, capture, and analytics of elements describing 1. Patient and family centered: HIT must support pa-
team actions will be essential to perform such evalu- tient and family participation in a single, integrated,
ation research. evolving plan of care that is accurate, complete, and
available to relevant providers as well as a patients or
families in real time. In addition, HIT must allow for
The Need for Improved Measures of Care discipline-specific components of the plan of care for
Coordination dissemination and synthesis by all interprofessional
team members.
2. Outcomes focused: the development of HIT will need
HIT capacity is an essential component of performance to anticipate and address new domains for outcome
measurement for both internal performance im- measures, such as quality of life and functional
provement and external public reporting. Numerous status, with potential requirements for risk adjust-
U.S. government agencies and organizations engaged ment and other reporting features.
in activities related to performance measurement and 3. Team-based care: HIT must reflect team-based care
HIT have work groups that are exploring the features processes that cross multiple settings and providers,
and readiness of HIT needed to support care coordi- including those within the traditional health care
nation and transitional care performance measures. system, community, and alternative systems. Capture
Many of the issues under discussion by these groups of team-based care and mechanisms for transfer of
are significant to the capture and reporting of care co- data and protections for confidentiality are essential.
ordination measures relevant to nurses showing their 4. Workforce concerns: HIT should address prepara-
contribution to coordination and transitional care tion of the workforce and staffing for care coordi-
outcomes across service delivery models and settings. nation or transitional care delivery. The potential
addition of new structural measures of care coordi-
Recommendation 4 nation and transitional care must be considered.

Measure developers must create a broader array of Although a number of emerging care coordination
performance e-measures to evaluate effective care and transitional care models document these re-
coordination across teams and settings. Attention quirements for HIT systems, the capacity and readi-
should focus on measure topics that are most relevant ness of current systems to support them has not been
to public reporting of outcomes, quality improvement, evaluated in detail. This work is under way by a num-
and value-based payments. It is further expected that ber of groups, including the Care Coordination HIT
(a) data capture and reporting are automatic as a Critical Paths Technical Expert Panel convened by the
byproduct of clinical documentation; (b) data elements NQF (2012c) in 2012. There are significant opportunities
in the EHR and CDS must describe the patient-centered to influence the design and implementation of HIT
LPC, transitional activities, and outcomes relevant to systems to support capture, synthesis, and reporting of
nursing practice and coordination of care; (c) structural care coordination and transitional care performance
measures are included to evaluate the HIT infrastruc- measures. Technical models are emerging whereby
ture as well as the workforce capacity and competence data from multiple systems are aggregated to an in-
in care coordination and transitional care that telligence platform and then parsed to reporting ap-
contribute to outcomes; and (d) process and outcomes plications for cross continuum care coordination, thus
measures are included to illuminate best practices for enhancing quality measure reporting.
at-risk populations that will identify indications for
transition to an appropriate care setting and prevent Attribution and Shared Accountability across the
adverse events. Team
At present, the set of endorsed performance mea-
sures for care coordination and transitional care is Data captured in the EHR during care coordination for
limited in scope and size. Priorities for new measures quality measurement also informs the best evidence-
Nurs Outlook 61 (2013) 475e489 487

based practice and health care team characteristics. better care coordination including transitions through
The data captured at the point of care should include the the effective and efficient use of HIT.
actions of each individual on the care team. These data
will inform the best mix of clinicians, roles, and the right
staffing for specific stratified populations. Thus, the EHR
becomes a learning system7 to inform health care references
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Nurs Outlook 61 (2013) 475e489 489

Appendix 1. Groups Working on HIT-Enabling Care Coordination and Related Regulations

National Quality Forum 1. Care Coordination Steering Committee: Focus has been to
(1) conduct an environmental scan of current care coordi-
nation measures; (2) review commissioned paper on care
coordination and HIT capabilities; (3) issue call for and re-
view new care coordination measures; and (4) establish
priorities for future care coordination measurement.
Web link: http://www.qualityforum.org/Projects/c-d/Care_
Coordination_Endorsement_Maintenance/Care_
Coordination_Endorsement_Maintenance.aspx
2. Care Coordination HIT Critical Paths Technical Expert Panel
(TEP): Assesses the ability of the existing HIT infrastructure
to support quality measurement related to transitions of
care and communication of the patient plan of care.
Web link: http://www.qualityforum.org/HIT/Critical_Paths/
Care_Coordination.aspx
ONC Standards and Interoperability wiki workgroups LTPAC:
http://ltpachitcollaborative.wikispaces.com/
http://wiki.siframework.org/
LTPACCareTransitionsSWG20120319
LCC LTPAC Transition: http://wiki.siframework.org/
LCCLTPACCareTransitionSWG
LTPAC LCC Longitudinal Care Planning: http://wiki.
siframework.org/LCCLongitudinalCarePlanSWG
LTPAC Longitudinal Care CoordinationdCMS OCSQ CARE
Tool: http://wiki.siframework.org/
LongitudinalCoordinationofCareWG
ONC Policy Committee-Sponsored Work Patient Consumer/Patient Engagement Power Team:
Engagement http://www.healthit.gov/policy-researchers-implementers/
consumerpatient-engagement-power-team
Quality Measures Workgroups Care Coordination Tiger
Team (no current meetings scheduled)dSubworkgroup#2
Patient Engagement (PFE):
http://healthit.hhs.gov/portal/server.pt?
open512&objID1472&mode2 (see Past and Future
Meetings for Workgroup#2 PFE presentations)
ONC Policy Committee, Meaningful Use Care Subworkgroup#3 Care Coordination (Click on Past and Future
Coordination Meetings for Workgroup#3 presentations):
http://healthit.hhs.gov/portal/server.pt?
open512&objID1472&mode2
ONC Policy Committee, Quality Measures Workgroup Quality Measures Workgroup evaluates quality measures in
the National Quality Strategy Priority Areas including care
coordination:
http://healthit.hhs.gov/portal/server.pt?
open512&mode2&objID3079 (Click on Past and Future
Meetings for Documents Including Recommended Care
Coordination Measures)
CMS EHR Incentive Program, Stage 2 Final Rules
http://www.cms.gov/Regulations-and-Guidance/
Legislation/EHRIncentivePrograms/Stage_2.html
American Nurses Association Tipping Point Project The Tipping Point (TP) initiative began in 2009 to promote the
development and endorsement of patient-sensitive quality
measures for incorporation into Meaningful Use (MU)
projects promulgated through the Office of the National
Coordinator of Health Information Technology (ONC) and
the Centers for Medicare & Medicaid Services (CMS).
HL7 International HL7 Consolidated Clinical Document Architecture:
http://www.hl7.org/implement/standards/product_brief.
cfm?product_id258

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