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American Journal of Hospice and Palliative

Medicine
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The Meaning of the Music: The Role of Music in Palliative Care Music Therapy as Perceived by
Bereaved Caregivers of Advanced Cancer Patients
Lucanne Magill
AM J HOSP PALLIAT CARE 2009 26: 33 originally published online 1 December 2008
DOI: 10.1177/1049909108327024

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American Journal of Hospice
& Palliative Medicine1
Volume 26 Number 1

The Meaning of the Music: The Role of February/March 2009 33-39


# 2009 Sage Publications
10.1177/1049909108327024
Music in Palliative Care Music Therapy http://ajhpm.sagepub.com
hosted at

as Perceived by Bereaved Caregivers of http://online.sagepub.com

Advanced Cancer Patients


Lucanne Magill, DA, MT-BC

In an earlier qualitative research study exploring the caregivers are presented, including a review of themes and
meaning of preloss music therapy to bereaved caregivers associated narrations that illustrated its significance. The
who participated in sessions through a home-based hos- caregivers described these aspects of music in sessions to
pice program, various narrative accounts revealed the sig- have memorable and lasting effects as follows: music is a
nificance of music in music therapy sessions. In this conduit, music gets inside us, live music makes a
study, the role of music in palliative care music therapy difference, and music is love. Findings support the
is examined and representatively summarized, followed benefits of preloss music therapy for bereaved caregivers.
by a review of strategies provided by this author to home
hospice patients and their caregivers. The reported Keywords: music; music therapy; palliative care;
perceptions of the meaning of music to 7 bereaved hospice; cancer; patients; caregivers; meaning

Introduction therapists to help mitigate suffering and address


issues and needs, is a health care treatment modality
The impact of advanced cancer on patients and care- commonly offered within multidisciplinary palliative
givers has been an area of concern worldwide.1 Such and integrative services.11 It has become widely incor-
diagnoses often result in complex trials for all those porated into such programs around the world,12,13
involved in the life and supportive care of the patient, and it is known to address multiple symptoms and
each of whom may contend with the challenges of issues related to malignant and end-of-life disease14
multiple life adjustments2; and there is associated while improving overall well being through suppor-
stress due to potential losses, including the death tive and ongoing measures.15
of a loved one.3,4 These multifaceted trials can result In an earlier qualitative research project exploring
in an upheaval in life and living and erode overall the meaning of preloss music therapy to bereaved
well being, influencing quality of life and resulting caregivers who participated in sessions through a
in existential crises and grief.5 Reactions vary accord- home-based hospice program,16 various narrative
ing to personal factors, such as disease issues, life accounts revealed the significance of music in music
stressors, sense of burden, coping mechanisms, and therapy sessions. In this study, the role of music in
spiritual concerns.6-10 music therapy in palliative care is examined and
Music therapy in palliative care, the use of per- representatively summarized, followed by a review
sonalized strategies by skilled and certified music of strategies provided by this author to home hospice
patients and their caregivers. Furthermore, the
From the University of Windsor, Windsor, Ontario, Canada. reported perceptions of the meaning of music to 7
surviving caregivers are presented, including a review
Address correspondence to: Lucanne Magill, Assistant Professor,
1671 Victoria Ave, Windsor, ON, Canada N8X 1P6; phone: (519) of themes and associated narrations that illustrated
560-1442; e-mail: lucannem@uwindsor.ca. its significance.

33

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34 American Journal of Hospice & Palliative Medicine1 / Vol. 26, No. 1, February/March 2009

The Role of Music in Palliative Care Music Therapy Strategies Used in


Home-based Hospice Care
Music is intricately woven into the fabrics of life and
takes on deeper significance during times of loss and To help conceptually generalize the findings in this
grief.17 It is an art form that is universally valued,18 focused study, it is important to review the music
and it plays a major role in cultural and spiritual life, therapy program from which the data were collected.
as it is personally linked to specific events, rituals, Therefore, the following is a description of common
and traditions.19-24 strategies used by this music therapist author in
In working with patients and caregivers receiving sessions. These strategies are patient centered and
palliative care, music therapists strive to comprehend are actualized within the context of a supportive
the perceived meaning of illness and dying, and the and therapeutically based patientcaregivertherapist
specific implication of music.23,25 Likewise, they seek relationship and setting. Strategies are spontaneously
to learn prior and current relationships with music to adapted and implemented according to the astute
help participants incorporate personalized music- and ongoing music therapy assessments and are
based coping mechanisms into their illnesses. For provided to address moment-to-moment patient and
example, patients and families generally have devel- caregiver needs, wishes, and emergent issues. Strate-
oped affiliations with music, such as prior instrument gies are aimed to enhance sense of control, feelings
performance, favorite styles and recordings, or mem- of comfort, and sense of life meaning.
ories of selections that are intimately linked with life As part of the family unit of care, caregivers are
events.26 During illness, they generally benefit from invited and encouraged to be present in sessions as
accessing the music that in some way holds significance often as appropriate. They commonly assist their loved
or value for them. As a music therapist encourages the ones in singing, selecting songs, and participating in
use of their preferred music in strategies as a means for the lyrical and musical interactions. Through such
coping,26-34 patients and caregivers are noted to find expressive strategies, patients and caregivers often
improved quality of life through enhanced communi- find resolution and relationship completion.30,49,50
cation and greater sense of inner fulfillment.16,35 Likewise, they generally find comfort in witnessing
Music therapists face challenges when working with and partaking in creative interactions that lead to
those from diverse origins, however, as cultural val- moments of intimacy and restored connectedness.16
ues and styles are embedded in musical preferences. Common strategies are as follows:
They therefore recognize the need for having an
insightful, holistic understanding of cultural back- 1. Use of precomposed songs: Songs are expressive
grounds, life experiences, spiritual perspectives, and mediums that enhance interrelatedness and the
sharing of difficult-to-express thoughts, feelings,
views regarding the familiar and preferred use of
and pertinent messages.49 Through songs, patients
music in their lives.23 In oncologic and palliative care
and caregivers may engage in reminiscence and
music therapy, the specific role of music is generally life review due to the associative nature of song
considered within the qualitative context of the content. In addition, emotionally fragile persons
music therapy process and therapeutic relationship. tend to benefit from the structure of lyrics, as the
Although there is an abundance of literature per- lyrics can serve to guide thoughts.
taining to the biopsychosocial effects of music36-38 2. Lyric improvisation and song composition: Lyrics
and literature relating to the mediating and transcen- within songs are often spontaneously adapted to
dent aesthetics of music as communicator and hea- meet individual patient and caregiver situations.15
ler39-43 as well as the role of music in the New songs are composed from familiar melodies
alleviation of pain and suffering,14,26,31,38,44-48 there and may include participants words and life stor-
is little literature describing the significance of music ies. Lyric improvisation is often used as a way to
personalize sessions and to assist them in articu-
in music therapy as perceived by surviving caregivers
lating feelings, needs, and accomplishments. Song
of patients with advanced cancer who received pallia- composition is also a technique that enhances
tive hospice care. Therefore, the aim of this study is to sense of personal value, as the lyrics are usually
review some of the caregiver themes and narrations selected to represent stories, attributes about self,
that emerged regarding one area of focus in a broader or messages to significant others. Participants
qualitative study,16 specifically the perceived meaning commonly find meaning and resolution as they
of music in preloss sessions. partake in life review within lyric and song

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Role of Music in Palliative Care Music Therapy / Magill 35

improvisation. Audio-recorded song compositions had participated in preloss sessions through a home-
with spoken narrations are often shared with each based hospice program and were invited by this music
other as gifts. therapist researcher to partake in this study as
3. Imagery in music: This strategy is helpful when approved by the hospice administrations Research
patients are isolated or nonverbal or if they have Review Board.16 As the purpose of the original study
episodic pain, anxiety, or disturbing symptoms
was to discover and describe the meaning of the music
such as nausea and dyspnea. With the support
of the music therapist, patients and caregivers
therapy sessions offered before the death of a loved
may select images that instill peace, security, one,16 the method and analysis were based on natur-
comfort, and pleasure. Words are accompanied alistic inquiry, an approach that involves the use of
by chants or improvised melodies adapted to the natural setting as source of information, as the
meet moods and needs. context it provides is fundamental to the implication
4. Music listening: Patients and caregivers often of the findings.53,54
request to listen to live music in sessions, and, In the original study, participant selection followed
when appropriate in terms of emotional stability, naturalistic inquiry procedures and incorporated pur-
may benefit from the use of preferred songs or posive sampling to increase the scope or range of data
instrumental pieces. Listening to familiar music exposed . . . as well as the likelihood that the full array
naturally stimulates association with memorable of multiple realities will be uncovered.53(p40) Care-
moments. Patients tend to request to hear
givers were recruited from the hospice database of
specific selections to go back in time and restore
connection with transformative events in life.
approximately 50 caregivers who had witnessed
During such process, the compassionate presence music therapy sessions prior to the death of their
of music therapist may enhance exploration and loved one, 30 of whom had expressed reference to
communication within a space of trust, accep- the meaning of sessions. Purposive sampling
tance, encouragement, and creativity. Persons with provided for the opportunity to study the research
emotional fragility often benefit from improvised questions and therefore gain deeper understanding
music with satisfying dynamics. and knowledge of the topic of interest. The partici-
pants were 7 adult caregivers of 7 different patients
Another factor involved in music listening, as well with advanced cancer who were followed by a home-
as other strategies, is transcendence, the process of based hospice program and who had been present
taking one beyond the self to an enlightened focus in music therapy sessions with their loved ones
and interest in others and the world through which prior to death. The mode of inquiry was through
[one is] led to a greater knowledge and capacity to one-on-one interviews, which were audio-recorded,
love.51 As described by Aldridge, music enables end- transcribed, recursively analyzed, inductively coded,
of-life patients to transcend, to extend beyond the and sorted into groups based on shared ideas. Data
immediate context to achieve new perspectives. . . consisted of interview transcriptions and the
when they are encouraged to maintain a sense of researchers field notes and journal entries.
well-being in the face of imminent biological and The results of the original study revealed several
social loss.17(p107) In music therapy, it is common themes. Caregivers conveyed the significance of
for patients and caregivers to report the transporting music therapy in helping to enhance feelings of
and inspirational effects of music, as the associative joy, empowerment, connectedness, remembrance,
and aesthetic qualities of music can instill calmness, and hope.55 In addition, various narrative accounts
serenity, and sentiments of connectedness.52 revealed the significance of music in music therapy
sessions as a salient finding.16
This present focused study examined those
Method narrations that referred to the significance of the role
of music in sessions, as there were recurring state-
This study reviews and examines the themes pertain- ments in which they described its importance within
ing to caregiver perceptions regarding the particular the context of the overall music therapy process.
meaning of music in sessions, a finding that emerged Sometimes caregivers referred to the longer-term
as one of the themes in an earlier qualitative research role of music in their lives as they pondered life
project.16 The original study explored the meaning stages and events. Other times they characterized
of preloss music therapy to bereaved caregivers who prominent attributes of music in the sessions.

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36 American Journal of Hospice & Palliative Medicine1 / Vol. 26, No. 1, February/March 2009

Pertinent comments were recursively reviewed and Music Gets Inside Us


inductively coded according to the naturalistic inquiry
The caregivers often referred to specific attributes of
methodologies.54 As themes emerged, they were
music concerning the direct influences they per-
sorted into the following 4 prominent categories.
ceived it having on them and others. Often these
comments focused on the neurophysiological effects
Results and Discussion of music. Caregivers sometimes referred to its stimu-
lating and energizing nature, for example, during
It was so helpful to see his peace and calm. The periods of restored awareness and communication.
music brought him there . . . Likewise, they referred to this aspect of music that
it seemed to lift him and carry him. reaches and helps soothe and relax during times of
Music is the key that can bring joy and serenity distress.
during times when really
there would be no reason to have joy. It transported
her, and me, It was just the sound, that is so beautiful, that it gets
to a place where we all felt happy. . .happy into your heart, your mind, into your skin, love,
words of a spouse after the death of a loved one everything. Music affects us very much. It is liberat-
ing and the sounds, I think the sounds are a vibration
inside and are also soothing, helping us relax too.
The following 4 themes emerged in caregiver narrative And in a way, the singing is vibration as I noticed
reflections.16 The themes are presented with a sum- my body was full of vibration when we sang together
marized discussion regarding the aspects of music with him. Music just gets inside us, into a different
therapy potentially relevant to these themes, along part of the brain it seems. It affected him and me
with the representative caregiver narrations. in positive ways.

Music is a Conduit
The power of music to lift, transport, and engage Live Music Makes a Difference
attention and response, as well as to help put on a
track, was described by the caregivers as being an The caregivers referred to their thoughts concerning
important aspect of the music in sessions. The word the form of musical presentation. They spoke about
conduit, that is, a channel or vehicle, describes the the use of songs and live music in sessions versus
views of several of the participants and is an aspect recorded music. In particular, they commented on
of music that embodies the process of transcen- the beneficial presence of live music, the use of
dence. The caregivers often referred to the role of familiar songs, and the involvement of the voice.
music in facilitating a bringing back and to in
sessions, often reawakening memories of times of When someone comes in and sings and plays the
meaning, places of beauty and peace, and moments guitar, it makes a big difference. . . with you, Mark
[patient] never said no. He loved the music. It was
of feeling the presence of remembered loved ones.
our music. Knowing they [the songs] were coming
Caregivers also described this potential of music as it after fifty years of being just inside him, and noticing
attributed to opportunities for meaningful moments he was also left more alive after singing. . . so the
of communication. effect was lasting also. The music always affects
me, especially when the presence of voice singing
The music was the conduit to bring Patty [patient] nearby is involved. . . and we were able to adjust the
back to something sweet. When you came and sang, songs in the moment too. Mark sang too when we are
she opened her eyes and she sang and her voice got all using our voices around him together.
strong. . .she was there and I could sing with her.
These songs and words that are repeated over and
over during a lifetime can take someone to, and are
bringing one back to another consciousness. It is Music is Love
immediately connecting to that track and Patty knew
that would take her to a beautiful place. The music The caregivers referred to the tendency for music to
helps lead to that place . . . The words and the music inspire, touch, and bring the feelings of love. This was
are the path to imaging. a salient theme and common sentiment throughout

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Role of Music in Palliative Care Music Therapy / Magill 37

the interviews. Caregivers had lasting impressions of populations in that therapy offered prior to death
the love-filled verbal, nonverbal, and musical com- could possibly serve to positively affect grief and
munications experienced in sessions. Each of the transform time in bereavement. Music therapists
caregivers found the quality of music as love to be may consider these findings when designing clinical
important to them as they reflected on the overall approaches for patients and caregivers in the pallia-
meaning of music therapy. The spirit of this theme tive care setting. Future research could help further
was prevalent throughout each of the interviews, explore the meaning of the more specific as well as
often more in the context of the overall meaning of global elements of music with patients and caregivers
the experiences than in verbal descriptions of music. prior to loss as well as with caregivers after death.
For example, there were many times in sessions
when the music therapist researcher witnessed
loving sentiments and compassionate expressions, Summary and Conclusion
words and gestures between patients and caregivers,
The meaning of music for the caregivers represented
and these memories resonated in caregivers as they
a range of ideas. The themes focused on the quality
reminisced during interviews. Thus, music as love,
in essence, describes the overall qualitative and of music as a conduit, a vehicle through which peo-
ple could travel to times and places of beauty, hap-
contextual aspects of the music therapy sessions.
piness, life meaning, and inspiration. The caregivers
also reflected on the potential for music to get inside
The music brought love back. I felt that love between
us when I heard the music. Music brought us love. . .
us, particularly the neurophysiological attributes of
and joy. Its so beautiful, that it gets into your heart, music to bring soothing vibrations that enhance
into love, everything. Her eyes were filled with so expression and relaxation. They also referred to the
much love when we sang and we could all be close format of music, specifically to the helpful features
together again. At times she had seemed so far away of live music and songs. Finally, they conveyed the
and it meant so much to us all to be close and to have unique significance of music as music is love.
that love between us like that again. Overall, music seemed to play a vital role in helping
motivate and inspire love in each of the caregivers
during the course of music therapy and during
bereavement.
Implications of the Study Music therapy in palliative care strives to pro-
Caregiver narrations indicated the potential signifi- mote well being and quality of life for patients and
caregivers. Within an interactive process between
cance of the role of music in palliative care. Although
music therapist and participants, specialized and
the presence of music in this setting has been well
individualized strategies are introduced to address
documented to have multifaceted biopsychosocial
emergent needs and reflect personal backgrounds
and spiritual effects,55-59 the meaning of preloss
music to caregivers, especially during times of and life experiences. Thus, music therapy sessions
are generally replete with moments of meaningful
bereavement, has been less understood. It is evident
that music served as an aesthetic channel, inspiring explorations. Although the presence of the music
therapist is fundamental to the qualitative and
patients and family members toward cherished
moments of love and renewed communication, dynamic nature of sessions, the medium of music
contributes an important mobilizing and inspira-
memories that managed to help sustain caregivers
through the difficult days and weeks following the tional dimension. Times in music therapy can
provide caregivers with moments of intimacy and
death of their loved one. The relevance of these sen-
meaning, leading to memorable sentiments of love,
timents is profound when considered in the context
contentment, and healing.
of bereavement, as caregivers are generally left with
images and thoughts reminiscent of life and living
again in lieu of suffering and remorse. It is under-
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