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Case Report

A
family-centered approach has been promoted for
several years in the practice arena of early interven-
Occupational Therapy in tion and occupational therapy (Anderson & Hin-
ojosa, 1984; Day, 1982; Friedman, 1982). Lawlor and
Early Intervention: Mattingly (1998) recently discussed various problems
embedded in family-centered care, such as defining the
Applying Concepts From client, the professional role, and the nature of work within
a family-centered approach. Problems involving collabora-
Infant Mental Health tion, trust, and equality of decision making can occur when
the therapist shifts from an intervention that focuses on the
child to one that incorporates the family. Lawlor and
Mattingly also presented concerns regarding cultural con-
flicts and service fragmentation. Hence, the occupational
Winifred Schultz-Krohn, Elizabeth Cara
therapist working within early intervention is required to
shift focus on many levels: intrapersonal, interpersonal, cul-
Key Words: child rearing (parenting) tural, and theoretical.
developmental therapy motherchild This article focuses on the challenges of shifting to a
family-centered approach. Current problems in early inter-
relations vention from an occupational therapy perspective are dis-
cussed. The field of infant mental health has much to offer
early intervention occupational therapy. A therapeutic
approach that incorporates concepts from infant mental
health practice into early intervention occupational thera-
py is proposed (Emde, 1987; Lieberman & Pawl, 1993;
Zeanah, 1993). A description of infant mental health prac-
tice that illustrates how ideas from this approach can be
blended into early intervention occupational therapy prac-
tice is provided. Finally, a case study is presented to demon-
strate the application of this blended approach in practice.
Current Occupational Therapy Practice in
Early Intervention
Occupational therapists in pediatric practice demonstrate
a wide but disparate range of family-centered care prac-
tices (Brown, Humphry, & Taylor, 1997; Humphry,
Gonzales, & Taylor, 1993). Brown et al. (1997) identified
a seven-level hierarchy of familytherapist involvement.
These levels represent a progressive shift in therapeutic
intervention from defining the client as an individual to
defining the client as a member of a family. At the same
time, the levels also shift from the clinician acting as the
director of the intervention plan to the family serving as
the coordinator of the intervention plan. Although this
hierarchy identifies a means to engage the family as an
Winifred Schultz-Krohn, MA, OTR, BCP, FAOTA, is Assistant active member of the intervention plan, the focus of occu-
Professor, Occupational Therapy, San Jose State University, One pational therapy service continues to be on the individual
Washington Square, San Jose, California 95192-0059;
client rather than on the family.
winifred@email.sjsu.edu.
Overall, the delivery of family-centered practice with-
Elizabeth Cara, MA, OTR, MFCC, is Assistant Professor, in the field of occupational therapy lacks coherence
Occupational Therapy, San Jose State University, San Jose, (Lawlor & Mattingly, 1998). Even when occupational
California. therapy literature embraces the concepts of family-cen-
tered intervention, the presumed outcome is still identi-
This article was accepted for publication September 24, 1999.
fied in terms of the individual child and not in terms of
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the family function (Brown et al., 1997; Humphry et al., Psychoanalytic intervention consists of two strategies
1993). This is in contrast to a family systems approach for intervention (Lieberman & Pawl, 1993; Seligman,
that identifies the recipient of service as the family in total 1994). First, the therapist provides comments that help
(DeMuth, 1994; Dunst, Trivette, & Thompson, 1994). parents become aware of how they may be reenacting their
The family systems approach focuses on the changing own traumatic childhood experiences with their infants.
roles of the family as an evolving entity (Bronfenbrenner, Questions posed to a parent such as Why is it important
1986). Several authors have suggested the need to adopt a for the infant to eat an entire bowl of cereal? may reveal a
family systems approach in pediatric occupational therapy traumatic experience that a parent had regarding eating.
intervention (Crowe, VanLeit, Berghmans, & Mann, Explicitly identifying these experiences allows the parents
1997; Humphry, 1989). Humphry (1989) called for pedi- to examine the childs behavior in a new light. Second, a
atric occupational therapists to consider not only the therapeutic relationship is established between the therapist
childs developmental skills, but also the parentchild rela- and parent to disrupt the negative influence the parents
tionship as part of the intervention plan. Contemporary prior relationships has on current parentchild interaction.
infant mental health practice provides a framework for The therapist mirrors positive aspects of parentchild inter-
occupational therapy to incorporate a family systems action back to the parent in the form of comments. For
model into an intervention plan (Emde, 1987). example, a therapist will remark that a childs glances at the
parent are signals of love.
Infant Mental Health Practice Concepts Nondidactic developmental guidance is a method of
Infant mental health is a field composed of various profes- providing developmental information that assumes par-
sionals, such as developmental psychologists, psychiatrists, ents are best able to use information about their children
social workers, and early intervention educators when the relational aspects and affective dynamics are con-
(Bretherton, 1992; Emde, 1987; Zeanah, 1993). The goal sidered (Lieberman & Pawl, 1993; Seligman, 1994).
of infant mental health practice is to assist an infant under Instead of giving advice, a therapist might ask the parent
3 years of age to achieve the necessary socioemotional skills what he or she thinks or observes about a childs experi-
and psychological development to function in his or her ence. The therapist encourages the parent to view the
immediate environment (Lieberman & Pawl, 1993). infants behavior from alternate perspectives, thus inter-
Historically, infant mental health intervention was directed rupting the current view of the behavior that stems from
toward an infant when the parents had a mental illness. the parents own prior negative experiences. This approach
Currently, infant mental health practice focuses on the supports parental self-exploration and a change in behav-
dynamic relationship between the child and parents or ior. A change in parental behavior may produce a change
caregivers, who may or may not have a mental illness. in the infant and, consequently, in the parentchild inter-
The evaluation process in infant mental health requires action. An example may be an infant who has eaten
the clinician to use observational skills and introspection enough but has also dropped food on the floor around the
(Lieberman & Pawl, 1993). Information on the high chair. The parent is convinced that the infant rejects
parentinfant relationship is gathered by observing how the the food and does not eat enough. The therapist might ask
parent and child interact, how the child functions develop- the parent how much food a 16-month-old infant needs
mentally and emotionally, and how the parent experiences or might remark on the ability of the child to distinguish
the child. At the same time, the infant mental health thera- what he wants to eat while learning to use utensils. The
pist must assess his or her own threshold for forming an reframing of parental observations does not negate the
alliance with parents who may have a mental illness or have original observations but provides an alternate explanation
been rejected by a bureaucratic system. Families seen in an for the parent to consider.
infant mental health program often have a history of dys- Direct support and advocacy includes any activity that
function and frequently are disadvantaged economically and directly bolsters the caregiving relationship (Lieberman &
socially. Parents may have had prior negative experiences Pawl, 1993; Seligman, 1994). Direct support provides a
with health services, and these experiences may be trans- model of a caring relationship that can be translated into a
ferred to the therapist, clouding perceptions of the current caring parentchild dyad. It can include referrals to public
treatment program. housing agencies, social services, or practical assistance with
Infant mental health practice consists of three core everyday tasks such as shopping or laundry. Often, these
interventions operating simultaneously: infantparent psy- concrete interventions provide needed relief and supply
chotherapy or psychoanalytic intervention, nondidactic some measure of hope to the family.
developmental guidance, and direct support and advocacy Providing these core interventions simultaneously in
(Fraiberg, 1980, 1982; Fraiberg, Adelson, & Shapiro, the home can be a challenge for the therapist because the
1975; Lieberman & Pawl, 1993; Seligman, 1994). These usual professional boundaries of a clinical environment are
interventions integrate psychoanalysis, developmental psy- nonexistent. However, providing family-centered care
chology, and social work. requires working on these complex levels.
The American Journal of Occupational Therapy 551
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Early Intervention Occupational Therapy and of direct support and advocacy strategies enables the thera-
Infant Mental Health pist to address multiple dimensions of therapy (Lawlor &
Infant mental health practice has core intervention strate- Mattingly, 1998). This aspect of service includes activities
gies that can be adapted for use in pediatric occupational that directly bolster the parentchild relationship and,
therapy (Fraiberg, 1980, 1982; Fraiberg et al., 1975; Lieb- therefore, the services provided for the child. These con-
erman & Pawl, 1993; Seligman, 1994). By adapting these crete interventions often provide needed relief so that par-
intervention strategies, many of the recently acknowledged ents will be able to devote other time and emotional suste-
challenges to providing family-centered occupational ther- nance toward the child.
apy may be resolved (Lawlor & Mattingly, 1998). In summary, adapting the interventions of infant men-
Additionally, a new model of pediatric occupational thera- tal health to early intervention occupational therapy offers
py can be formed that will clarify the role and the delivery practical strategies that address the challenges of using a
of occupational therapy service using a family-centered family-centered approach (Lawlor & Mattingly, 1998). The
approach. use of interventions based on clinical reasoning, nondidac-
The goal of pediatric occupational therapy, like the goal tic guidance, and concrete support may ameliorate the
of infant mental health practice, is to assist the client to problems faced by the occupational therapist providing
achieve satisfactory function socially, emotionally, and psy- family-centered intervention.
chologically in a natural environment (Lieberman & Pawl, Case Illustration
1993). However, infant mental health practice is focused on
The following case illustrates the use of infant mental
the infants impact on the parent and their relationship; the
health care approaches in home-based early intervention
client is identified as the parent and child and their rela-
occupational therapy. The occupational therapist, one of
tionship. Although pediatric occupational therapists do not
the authors, is and speaks limited Spanish.
typically address the issue of transference, they use clinical
The family consisted of a 19-year-old mother, whom
reasoning skills to observe and actively search for ways to
we will refer to as Maria, a 2 1/2-year-old daughter and a
enter into alliances or develop rapport (Fleming, 1991; 16-month-old son. Maria, originally from a Caribbean
Mattingly, 1991; Neistadt, 1996; Rogers, 1982). island but now living in Connecticut, spoke Spanish and
An infant mental health approach offers a framework English. Marias family had returned to the place of birth
for identifying the strengths and vulnerabilities of the parents but she chose to remain in Connecticut with her children.
and infants and provides a focus for treatment (Lieberman & Although an aunt lived in Connecticut, Maria had limited
Pawl, 1993). The treatment observations, along with the contact with her. Maria was unemployed, living in a subsi-
desires and needs of the parents, dictate the structure and dized housing project, and unable to attend school because
place of treatment or who is present for the sessions (Cara, of her childrens needs.
1997). Clearly, pediatric occupational therapy contributes Both children had been identified as eligible for early
special skills regarding child evaluation, but the parent does intervention services under the Individuals With
not always direct how those skills will be used. Therefore, by Disabilities Education Act of 1990 (Public Law 101476).
adapting the infant mental health framework and respond- Her daughter had developmental delays in the area of lan-
ing to the wishes of the parent about structure, direction, and guage and received home-based services from an early
place of treatment, the issue of treatment collaboration is intervention educator weekly. The interventionist who pro-
addressed (Lawlor & Mattingly, 1998). This framework also vided services for the daughter said that Maria would often
addresses the interacting cultural worlds of the practitioner leave the room during the weekly visits and did not appear
and family. The occupational therapist is quickly able to interested in completing the suggested home exercises.
learn about the everyday life of the familytheir habits, rou- Marias son had cerebral palsy and a seizure disorder. He
tines, values, idiosyncrasies, or unique rituals embedded in had been evaluated by an early intervention identification
daily encounters. team and referred for weekly occupational therapy and
Recognizing that both child and caregiver are recipi- physical therapy services.
ents of service expands the concept of what constitutes At the time that occupational therapy services were ini-
early intervention occupational therapy service. Applying tiated, Maria had a limited understanding of the role of
intervention strategies from the field of infant mental occupational therapy services for her son. The therapist
health practice equips occupational therapists with the reviewed the focus of occupational therapy with Maria and
tools to meet the demands of this expanded practice. asked her to help develop the treatment plan for her son.
Nondidactic developmental guidance supports a self-right- Maria responded by indicating that the therapist was the
ing tendency of the parentchild system (Seligman, 1994). expert and should develop the care plan. Maria appeared
This strategy supports the idea that the caregiver and child both intimidated by the therapist and resistant to partici-
have strengths and attributes that can be used for positive pating in the development of an intervention plan. When
change along with the special expertise of the therapist. Use asked how other medical professionals interacted with her,
552 September/October 2000, Volume 54, Number 5
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Maria reported that the physicians gave her pills for her son methods and then asking the mother to evaluate the effec-
and the nurse told her how to feed him. Her past experi- tiveness of these methods.
ences with medical professionals gave her the impression At the second appointment, Maria reported how suc-
that they were authorities, and she believed that they acted cessful the suggested techniques had been to promote feed-
disrespectfully toward her. This teenage mother seemed ing skills with her son. Maria then asked the therapist to
angry that the medical professionals did not approach her watch how well her son was eating. Maria said that she
as an adult. She appeared to transfer that anger toward the wanted to introduce textured foods to her son and asked for
therapist and assumed that the therapist would act in a sim- additional techniques that were then provided by the occu-
ilarly disrespectful manner. pational therapist. These new techniques represented direct
Although the son was the identified client, a family support toward Marias goal of improving her sons feeding
systems approach was used to engage Maria in the decision- skills. Maria was developing her role as the director of the
making process for her sons care. The focus of the occupa- care plan for her son. She, herself, had identified additional
tional therapy services was to foster developmental gains in needs for her son instead of relying on the therapist.
the boy through the endorsement of Marias role as an During subsequent home appointments, Maria was
authority in the care of her children. This represents a shift very engaged in activities with her son and appeared eager
from defining the client as the child to defining the client to learn new techniques to help him develop functional
as the family. skills. Activities were designed to meet Marias needs in car-
During the initial visit to the home, two of Marias ing for her children and the childrens need to interact with
friends were present and were overheard asking her for each other. These needs, addressed through support and
advice regarding boyfriends, family issues, and pregnancy. advocacy, were identified by Maria as a priority for family
This mother apparently had a position of authority in her function. Specific support was provided by informing her
peer group because of her life experiences and her demon- of parenting groups held without cost, connecting her with
strated ability to care for two children with special needs. parental support groups in the area, and discussing respite
There was an apparent discrepancy in her occupational care as an option. The therapist did not make the arrange-
roles: a voice of authority with her friends and a passive ments for these services but encouraged Maria to use them.
recipient of authority with early interventionists. In this role, the therapist facilitated Marias directive role
An attempt was made to engage Maria in developing within the family. The other early interventionists com-
the care plan for her son by acknowledging her as the mented that she had begun to take a more active role with
expert regarding what activities her son could and could her son and daughter. Services were continued for an addi-
not perform. Maria was then asked to prioritize which tional 8 weeks and then Maria decided to move back to her
activities were most important within the context of her birthplace to be with her family.
family life. The occupational therapist elicited Marias per-
ceptions of her sons strengths and challenges, engaging her Discussion
through the process of interactive and narrative clinical rea- Occupational therapy services were provided to foster
soning (Mattingly, 1991). Essentially, the therapist asked developmental abilities in the son using a family-centered
Maria to tell her own story about her son and did not rely approach that recognized both child and caregiver as recip-
solely on previous medical evaluations. The treatment plan ients of therapy. Instead of the occupational therapist serv-
was developed by asking Maria to evaluate her sons func- ing as the expert, the strengths of the mother were facilitat-
tion and role within the family system rather than using a ed. It was evident that this mother had begun to establish
standardized instrument that would compare her sons a position of expertise with her peers regarding child care;
skills with typical development. The therapist chose not to those already established skills were incorporated into the
ask Maria what parenting tasks were difficult for her, a intervention plan. The occupational therapist demonstrat-
question that would have placed her in a position of admit- ed an ability to enter the cultural world of this family.
ting lacking parenting skills instead of developing her role Instead of delegating the mother to a role of helping in the
as an authority regarding her children. Maria identified dif- occupational therapy program, she directed the program.
ficulties her son had in eating and moving his arms. He was The focus of occupational therapy intervention was on
only able to eat pureed foods because of poor oral-motor strengthening family roles. The mothers developing role as
control. Marias unique knowledge of her son was used to an expert in the care for her children was recognized and
develop the care plan, and her concerns dictated the course fostered within the intervention plan. The family system,
of therapy. particularly the motherinfant relationship and the moth-
Toward the end of the first home visit, specific feeding ers role in the family, appeared to be strengthened by this
techniques were presented in a framework similar to home approach, which then facilitated changes in the son.
exercises but with a distinct difference. The techniques The goal of occupational therapy intervention was to
were not prescribed; instead, nondidactic developmental improve the sons developmental skills and was achieved
guidance was used in first providing suggested feeding through the use of a family-as-client approach. In this case
The American Journal of Occupational Therapy 553
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report, we attempted to illustrate the effectiveness of a ence between principle and practice. In C. J. Dunst, C. M. Trivette, &
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