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H U
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A II R
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Kenya
AIDS
WATCH
How grassroots women’s groups in 12 urban & rural
communities across Kenya are managing the HIV/AIDS pandemic.
Community AIDS Watch was an initia- The overall objective of the Commu- From June 3 to July 23, 2004, twelve
tive of GROOTS Kenya to document nity AIDS Watch was to showcase the students from the United Sates
the work of grassroots groups and community-driven, women-led ap- joined six Kenyan students and
their communities around the coun- proaches to the HIV/AIDS pandemic. community leaders to meet with
try. The project was coordinated by It also documented the challenges community groups, make home vis-
GROOTS Kenya in collaboration with communities face in doing this work its, meet with local government rep-
the Huairou Commission, GROOTS and the resources they require to resentatives and learn about the
International, AFRUS AIDS and New fight the pandemic. While working to basic conditions facing the communi-
School University in America. It fo- find out from community people ties throughout Kenya. the fifth and
cused on people in 12 urban and what they think their priorities are, final day as spent in a community
rural communities across Kenya who the Watch also sought out factors workshop, in which members of each
are responding to the HIV/AIDS pan- that helped and/or hindered their of the groups came together to ver-
demic with or without financial sup- ability to effectively respond to HIV/ ify the information collected and to
port. AIDS. network.
GROOTS KENYA friends and neighbors. The primary the HIV positive as one of their most
activities of the groups are resource important jobs. One woman they
sharing (particularly in widows’ care for is Liz. She has lost both her
The majority of the groups are groups), home-based care, orphan husband and her three young chil-
members of GROOTS Kenya, al- support, stigma reduction and com- dren to AIDS. She also has found her-
though there were also several part- munity education. self unable to work due to the ill-
ner groups, not all of which are pro- ness. When she becomes very sick,
filed here. GROOTS Kenya is an um- Liz is almost entirely dependent
brella organization which coordi- upon her home-based caregiver, with
nates the activities of and acts as a
voice for its member groups, working COMMUNITIES whom she has developed a very close
relationship. Since this caregiver has
with the knowledge that by banding begun visiting regularly, Liz reports
together, grassroots organizations
Urban Slums (June 14- that she is feeling better. She is now
can have a stronger influence on able to travel to the local well to get
national and international policies. 18) water and her mental health has also
GROOTS Kenya provides training in improved. She attributes her high
home-based care, prevention of spirits to her caregiver.
mother to child transmission and Mathare is the second largest slum
information on anti-retrovirals to its in Nairobi. The area is overpopulated
member groups. and the people are generally impov-
erished, have poor housing, sanita-
Those who attend trainings are tion and limited access to clean wa-
trainers of trainers (TOTs) and often ter. The majority generate income
hold workshops upon returning to by running small roadside businesses,
their home areas to enlarge their selling secondhand clothes, food or
group and strengthen community sundries. Other laborers do casual
capacity for responding to AIDS. day work either inside Mathare or
GROOTS Kenya also works as a net- elsewhere in Nairobi.
working facilitator, conducting peer-
to-peer exchanges in order for grass- Formed in 1996 after the formation
roots women to give support and of GROOTS Kenya, GROOTS Mathare
share knowledge with each other. is one of the oldest and most suc-
cessful groups under the GROOTS GROOTS Mathare has a great influ-
Kenya umbrella. It is a network of 26 ence in their community and its
women’s self-help groups within the members have involved themselves
Mathare slums. GROOTS Mathare has in many aspects of life there.
a main office in settlement, which
also serves as their Mother/Day Care One of their greatest accomplish-
Center. The group collaborates with ments has been in partnering with
a number of community-based or- youth groups, who often take the
ganizations, NGOs, health institu- lead in education, stigma-reduction
tions, youth groups, schools and and awareness raising. YSAFE (Youths
churches in empowering and improv- in Slums Aiming for Excellence) is
ing the lives of those living in one group that has been particularly
Mathare. successful. Founded by a young
member of GROOTS Mathare (who
Over 100 members of GROOTS was also a valuable member of the
Mathare have been trained in home- Community AIDS Watch team). its
A HUAIROU WATCH REPORT FEBRUARY 2005 2
H U A I R O U
aim is to fill the gap in knowledge prevalence of communicable dis- KCBHC. She has been bedridden ever
and awareness about HIV/AIDS in ease. Since their beginning, they since she began taking ARVs, which
local youth. The fifteen members of have founded a school, Faith Inte- were provided by a Catholic group
YSAFE use poems, skits and songs to gration Centre, and a support group that members of KCBHC work closely
create awareness about AIDS. They for those giving and receiving home- with, Medical Mission Sisters. She
travel to schools, churches and other based care. Six members of KCBHC hopes the medicine will help her feel
youth groups within and outside of are trained in home-based care and better soon. When she has the en-
Mathare. they currently care for eight HIV ergy, she sells secondhand clothes to
positive people and ten orphans. support herself and her four chil-
The group is encouraged by positive dren. She used to have her own ki-
responses and see the importance of osk, but it was torn down to make
creating a space that allows for free Elizabeth, in her early thirties, is room for a power-line. This type of
and open peer exchange-with and HIV positive and is being cared for by eviction is a common threat for
without adults. The members of YS- home-based caregivers in KCBHC. those who live in Nairobi’s informal
AFE have seen positive changes in Although often bedridden, she is the settlements. Katherine told her visi-
themselves as well as the youths only source of support for three chil- tors that even though her caregivers
they target, and feel encouraged by dren, her youngest brother, a niece do not usually have much material
this to continue spreading their mes- and a nephew. Because the children support for her, they boost her mo-
sage. are not her own, her husband has rale and encourage her to talk
left her. The only support Elizabeth openly about her status with her
The host of the AIDS Watch, GROOTS receives is from the members of children and to warn them of the
Kenya is a network of grassroots KCBHC who visit her to provide both risks of HIV. The visits and support
women belonging to self-help groups moral support and physical care. She she receives from KCBHC raise her
across Kenya. Founded in 1995, to- is a member of the support group spirits.
day the network has more than 2000 run by the caregivers. The three
women members. Its objective is to children attend Faith Integration
"ensure that grassroots women are Centre. It is unclear what will hap-
masters of their own destiny through pen to these orphans once Elizabeth
their direct participation in decision dies, but it is fortunate that they are
making processes." connected to KCBHC.
It is a member of GROOTS Interna-
tional and the Huairou Commission. Nyanza & Western
www.groots.org/member.htm Provinces (June 21-25)
Korogocho is Nairobi’s third largest
Kisumu, the third largest city in
informal settlement, with a popula-
Kenya, lies on the shores of Lake
tion of approximately 150,000. It is
Victoria in the Nyanza Province. The
also one of the poorest, most over-
dominant tribe here is Luo and cul-
crowded slums in the city, with an
tural practices have proven espe-
average of 5-6 people living in each
cially harmful since the advent of
room. Residents of Korogocho live
Also HIV positive, Pamela is a foun- the AIDS epidemic. The Luo are po-
with harsh poverty, open sewage
der and the current president of lygamous and have traditionally
drains and an adjacent dump. Nearly
KCBHC. After she tested positive practiced wife inheritance, in which
every household is caring for at least
and fell ill, Pamela moved back to a woman whose husband has died
one orphan whose parents have died
her home area near Lake Victoria to marries her brother-in-law. Although
from AIDS-related causes. Because
be cared for by her family. There this practice grew as a means of
each household is so burdened, or-
were advantages to living in a rural supporting a woman and her chil-
phans are no longer thought of as a
area, such as a clean environment, dren, it is now a method of rapidly
community problem, as they gener-
the care of family and the preva- spreading HIV through a community.
ally are in the rural areas. Instead,
lence of homegrown, nutritious food A woman who has been infected by
the duty of caring for these children
However, she did not feel that she her husband and then is forced to
is left to individual families.
was receiving the support there that marry her brother-in-law often in-
Stigma and miseducation are also she did in Korogocho as a member of fects him, and he then spreads the
high in Korogocho. The dominant KCBHC. She returned. Now, although virus to his other wives.
population is of the Luo tribe, which she is often sick and weak and has
has traditionally ascribed the symp- her own children to care for, Pamela
toms of AIDS to an ancient curse works daily, caring for the children
called chira. at Faith Integration Centre, visiting
others who are bedridden and acting
The host group was Korogocho Com- as a guiding force behind KCBHC.
munity Based Health Care (KCBHC),
which was founded in 1995 by com- Katherine also receives home-
munity members concerned with the based care from the members of
A HUAIROU WATCH REPORT FEBRUARY 2005 3
H U A I R O U
currently has 21 members who offi- community who are less well off
cially care for six people. than they are.