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Epidemiologic Reviews Vol.

25, 2003
Copyright © 2003 by the Johns Hopkins Bloomberg School of Public Health Printed in U.S.A.
All rights reserved DOI: 10.1093/epirev/mxg010

Injury Surveillance

John M. Horan1 and Sue Mallonee2

1 Division of Applied Public Health Training, Epidemiology Program Office, Centers for Disease Control and Prevention, Atlanta, GA.
2 Injury Prevention Service, Oklahoma State Department of Health, Oklahoma City, OK.

Received for publication July 24, 2002; accepted for publication April 23, 2003.

Abbreviations: CDC, Centers for Disease Control and Prevention; EMS, emergency medical services; ICD, International
Classification of Diseases; NEISS, National Electronic Injury Surveillance System; NHTSA, National Highway Traffic Safety
Administration.

INTRODUCTION priorities, support prevention activities, and evaluate preven-


tion efforts. While there have been substantial advances in
Public health surveillance is the ongoing, systematic
injury surveillance in recent years, there are still many chal-
collection, analysis, interpretation, and dissemination of data
lenges and needs. In this paper, focusing primarily on the
on health-related events for use in public health action to
United States, we provide an overview of current injury
reduce morbidity and mortality and to improve health (1).
surveillance data sources and systems, and we review their
More simply put, surveillance is about translating informa-
use for surveillance of major categories of injury. We also
tion into action. In the United States, much of the focus of
present several new developments in injury surveillance and
public health surveillance has traditionally been on preven-
comment on some of the new challenges facing injury
tion and control of infectious diseases, an area where surveil-
surveillance in an era of rapidly changing information tech-
lance has been used to identify outbreaks, monitor emerging
nology and growing recognition of the need for effective
problems, and assess the impact of prevention measures (2–
integration of information systems.
5). Another essential role of public health surveillance is
monitoring causes of death, including premature mortality.
In that context, injuries clearly emerge as a major public DATA SOURCES AND SURVEILLANCE SYSTEMS
health problem. In 1999, unintentional injuries were the fifth
leading cause of death in the United States and were the The book Principles and Practice of Public Health
leading cause for persons in the age group 1–34 years (6). Surveillance identifies three sources of health-related infor-
Unintentional injury, together with homicide and suicide, mation: individuals, health care providers, and other entities
accounted for nearly 60 percent of all deaths among persons (9). All three make important contributions to injury surveil-
aged 1–34 years (6). lance. Through telephone surveys or other means, individ-
Following Congressional authorization in 1983, the uals are a source of data on injury incidence, risk-taking
National Research Council and the Institute of Medicine behaviors, and use of preventive measures. Health care
(National Academy of Sciences) produced the 1985 report providers at different levels of the medical care system are a
Injury in America (7), which documented the burden of source of data on outcomes of injury events, including the
injury and became a major impetus for developing support terminal event of injury-related mortality. Additionally, a
for research and programs to address this important problem. variety of agencies and institutions that collect data for other
A 1988 review of public health surveillance in the United purposes, such as police reports on traffic crashes and
States (8) noted that recognition of intentional and uninten- crimes, fire department records, insurance claims, and
tional injuries as major public health problems had led to the worker’s compensation files, are sources of important infor-
need for developing systems of public health surveillance for mation on the circumstances and sequelae of injury events.
injuries. Additionally, as injury research and prevention The primary responsibility for public health surveillance
programs have evolved, so has the need for surveillance data in the United States resides at the state level. Within state
to identify populations at risk, determine programmatic health departments, injury prevention has struggled for

Correspondence to Dr. John M. Horan, Mailstop D-18, Division of Applied Public Health Training, Epidemiology Program Office, Centers for
Disease Control and Prevention, Atlanta, GA 30333 (e-mail: jhoran@cdc.gov).

24 Epidemiol Rev 2003;25:24–42


Injury Surveillance 25

recognition as a critical component of public health practice. example, computerized systems or records may include data
Development of injury surveillance capacity has been vari- that are unavailable on death certificates, such as the dece-
able across states. Even in states with relatively advanced dent’s alcohol and drug use, the premise of injury, the type of
capacity, surveillance priorities have not been consistently firearm involved, a description of injuries incurred, and a
based on public health criteria such as premature mortality narrative on the circumstances resulting in death (15).
and preventable morbidity; they have also depended on the Physician-oriented medical examiner systems began replacing
level of popular and political interest in bringing certain the older, more political lay coroner systems around 1950, but
conditions under surveillance. The need for a coordinated this trend stalled; currently, only 18 states have a centralized,
approach to state-based injury surveillance served as the statewide medical examiner’s office (16), and not all of these
motivation to form an injury surveillance work group in states have computerized data systems. In addition, compara-
1998. This cooperative undertaking by state, federal, and bility among states or even among counties within states is
academic injury prevention organizations produced the problematic because there is no standardized, national coding
Consensus Recommendations for Injury Surveillance in system for medical examiner or coroner data.
State Health Departments (10). This document recom-
mended putting 14 injuries and injury risk factors under
surveillance by all states. Basic surveillance of most of the Morbidity data
14 recommended conditions is achievable through the use of Hospital inpatient records. Hospital discharge records are
data sets that are present in most states. To begin imple- important sources for injury morbidity data because they
menting the recommendations, 12 states contributed to the include injuries severe enough to warrant hospitalization,
first State Injury Indicators Report, a summary report of and when linked to vital statistics data or medical examiner
1997 and 1998 data for 12 of the recommended conditions data, they provide a more complete picture of serious
(11). The second annual summary report, based on 1999
trauma. Forty-four states collect hospital inpatient data for
data, is expected to include more than 20 states, with even-
various purposes through voluntary or mandatory health
tual expansion to include all US states and territories within
reporting requirements (17). These data are usually collected
several years.
from hospital records that are intended primarily to serve
The capacity for national-level injury surveillance has
administrative and management purposes (such as billing
grown in recent decades. For example, in a 1998 review of
files). Moreover, collection of hospital discharge data varies
national data systems useful for firearm-related injury
across states and within states over time, and most state
surveillance, Annest and Mercy (12) noted that seven of the
systems exclude federal (military and Indian Health Service)
13 systems they reviewed either did not exist or did not have
facilities. A 1997 survey showed that 36 states and the
the capacity to capture information on firearm-related inju-
District of Columbia were routinely collecting data on
ries 10 years previously. In 1996, the federal Centers for
Disease Control and Prevention (CDC) published the Inven- external causes of injury in their statewide hospital discharge
tory of Federal Data Systems in the United States for Injury data systems (18), yet the completeness of external-cause
Surveillance, Research, and Prevention Activities (13). coding in hospital discharge data has been shown to vary
These systems cover a broad range, including mortality, substantially among states (11). To use these data for injury
morbidity, risk factors, and preventive factors. incidence surveillance, it is necessary to avoid double-
Brief summaries of various data sources and systems for counting patients transferred from one facility to another and
surveillance of injury mortality, morbidity, and risk factors patients readmitted for the same injury. Adding an additional
are presented below. Sources and systems that are related to field in hospital discharge systems that reflects readmission
specific causes of injury (traffic injury, occupational injury, for a previous injury, a transfer from another hospital, and
violence, etc.) are described in later sections of the paper. the date of injury has been recommended to improve this
data source (19). Thus, while these systems can be very
useful for injury surveillance, they have limitations, and their
Mortality data data elements may have limited relevant information. To
Vital records. In the United States, state laws require promote and improve the use of hospital discharge data, the
completion of death certificates for all deaths. State offices State Injury Prevention Directors’ Association, in collabora-
of vital records maintain death certificate files and provide tion with partner organizations, published recommendations
regular summary reports based on these data. Through coop- for using hospital discharge data for injury surveillance (20).
eration between all 50 states, the territories, the District of At the national level, data are available through the
Columbia, and the CDC, death certificate data are compiled National Hospital Discharge Survey, which is conducted by
into the National Vital Statistics System (http:// the CDC (http://www.cdc.gov/nchs/about/major/hdasd/
www.cdc.gov/nchs/nvss.htm) (14), which produces public nhds.htm). Begun in 1965, the survey collects information
access data tapes that enumerate deaths for the United States from a probability sample of discharges from nonfederal
by state, county, and Metropolitan Statistical Area (US short-stay hospitals with six or more beds in the United
Census). All injury deaths are assigned codes indicating the States. While these data specify types of injuries, external-
nature of the injury and the external cause of the injury. cause coding for injuries in the National Hospital Discharge
Medical examiner and coroner records. Medical exam- Survey is limited but improving; in 2000, 70 percent of
iner and coroner systems offer a rich source of data on injury discharges with a principal injury diagnosis had at least one
deaths that are complementary to vital statistics data. For external-cause-of-injury code.

Epidemiol Rev 2003;25:24–42


26 Horan and Mallonee

Trauma registries. Forty-four US states collect either National Hospital Ambulatory Medical Care Survey began
statewide or regional trauma registry data (21). The Amer- in 1992. The survey comprises a national probability sample
ican College of Surgeons established the National Trauma of visits to emergency and outpatient departments of general,
Data Bank as a national repository of trauma data in 1994; nonfederal hospitals (http://www.cdc.gov/nchs/about/major/
over 430,000 records from 130 trauma centers in 28 states ahcd/ahcd1.htm). Data included in the survey include
and US territories were voluntarily submitted between 1994 alcohol- and drug-relatedness and, for injury-related visits,
and 2001 (22). Trauma registry data provide detailed infor- codes for reason for the visit, up to three diagnoses and
mation on the nature and severity of the injury, the treatment, external causes, and place and intent of injury. The National
and the outcome upon discharge from the hospital. While Health Interview Survey has collected self-reported informa-
trauma registries are a potential part of the data needed for tion from approximately 38,000–40,000 US household inter-
comprehensive injury surveillance, the data are collected views annually since 1957 (http://www.cdc.gov/nchs/
primarily to monitor and evaluate trauma care, and they have nhis.htm). The survey provides estimates of injuries and
limitations (23, 24). Most state or regional trauma registries poisonings for which medical attention was obtained within
are limited to trauma center hospitals and are not population- 3 months of the interview date. The National Health Inter-
based (25); few are statewide, and few include all hospitals view Survey was redesigned in 1997; it now includes
(26). In addition, the case criteria of most trauma registries detailed injury-specific questions for all members of the
exclude some causes of injury (i.e., same-level falls, poison- family as part of the core survey.
ings, drownings, etc.), include only severely injured persons Emergency medical services records. Most states collect
(persons with “major trauma” or persons hospitalized for
emergency medical services (EMS) data for persons who are
more than 24 or 48 hours, etc.), and exclude prehospital
transported to a hospital by an ambulance. These data have
deaths (25). Thus, trauma registries may be incomplete and
been utilized for injury surveillance (30) or integrated into
nonrepresentative sources of injury surveillance data (27).
existing categorical injury surveillance systems (31, 32).
Outpatient care records and reports. Surveillance based
While the National Highway Traffic Safety Administration
on outpatient records can address the substantial proportion
(NHTSA) has developed a set of 81 uniform prehospital data
of injuries severe enough to require medical care but not
elements (33), EMS systems vary in their ability to collect
resulting in hospitalization. Seventeen states currently
and use injury-related data. In over 90 percent of states,
collect emergency department data, and an additional seven
states are actively planning to collect emergency department complete EMS data are missing at the regional or state level
encounter data within the next 2 years (17). In addition, (34). EMS systems within cities, regions, and states should
several states are collecting ambulatory surgical data from continue to refine and systematize data collection (35). The
hospitals and free-standing clinics. These data have limita- National Association of State EMS Directors is working
tions for injury surveillance similar to those of inpatient with the NHTSA and the Trauma/EMS Systems program of
records. the Health Resources and Services Administration to
The National Electronic Injury Surveillance System develop a national EMS database (36).
(NEISS) obtains data on all consumer product-related injury Post-acute-care data. Data systems describing the dura-
cases from a nationally representative sample of approxi- tion of rehabilitative care and outcomes beyond hospital
mately 100 hospital emergency departments mortality and morbidity are rare (37). It has been recom-
(http://www.cpsc.gov/CPSCPUB/PUBS/3002.html). The mended that more efforts be made to extend trauma regis-
NEISS was started in the early 1970s by the Consumer tries to determine long-term outcomes and to develop norms
Product Safety Commission. In 1999, the Institute of Medi- for these outcomes (19). The Uniform Data System for
cine recommended expanding the system to include all Medical Rehabilitation was developed with support from the
nonfatal injuries (19), and in July 2000 the NEISS All Injury National Institute of Disability and Rehabilitation to capture
Program was initiated to collect data on all types and causes the severity of patient disability and the outcomes of rehabil-
of treated injuries in a nationally representative subset of 65 itation (19). Registries such as Model Systems of Care,
of the NEISS hospital emergency departments (28). These established for the treatment of traumatic brain injury (38)
data may be accessed through the World Wide Web-based and spinal cord injuries (39), have collected data on patients
Injury Statistics Query and Reporting System (29). through rehabilitation, community reintegration, and long-
Several national surveys conducted by the CDC collect term follow-up. However, these registries are costly, are
data on outpatient care that are useful for injury surveillance. labor-intensive, and only follow select patient groups after
The National Ambulatory Medical Care Survey was begun specialized care; thus, findings cannot be interpreted widely.
in 1973 and has been conducted annually since 1989 (http:// The CDC has funded population-based surveillance of trau-
www.cdc.gov/nchs/about/major/ahcd/ahcd1.htm). The sur- matic brain injury outcomes in two states and the National
vey is based on sampling of patient visits to non-federally- Study on Costs and Outcomes of Trauma Care. The latter
employed office-based physicians who are primarily will examine the relation between treatment and outcome for
engaged in direct patient care. Each participating physician up to 12 months postinjury (40). There is a need for further
is randomly assigned to a 1-week reporting period, during development of outcome registries, including practical tools
which data are recorded for a systematic random sample of that can be applied routinely at low cost, effective and effi-
visits. The patient record form includes fields for informa- cient patient tracking systems, and standardized guidelines
tion on injury-related visits. Annual data collection for the for developing and maintaining such registries (19).

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Injury Surveillance 27

Risk factor data the data include not only the nature or type of injury (e.g.,
fracture, poisoning) but also the external cause or mecha-
Surveillance of preinjury risk or protective factors (e.g., nism of injury (e.g., motor vehicle crash, unintentional
bicycle helmet or seat-belt use, prevalence of smoke detec- ingestion). Standard codes and definitions are required for
tors, etc.) can be a timely, efficient approach to providing accurate comparison of state, local, or international data
data for injury prevention. Two systems that provide state- regarding the magnitude and distribution of injuries as a
level data on risk factors are the Behavioral Risk Factor public health problem.
Surveillance System and the Youth Risk Behavior Surveil- Mortality data on death certificates are coded using the
lance System. The Behavioral Risk Factor Surveillance International Classification of Diseases (ICD). The Ninth
System, established by the CDC in 1984, is a random-sample Revision of the ICD (ICD-9), the common standard since
household telephone survey that monitors self-reported 1979, was replaced in the United States by the Tenth Revi-
health behaviors in all 50 states, the District of Columbia, sion (ICD-10) in 1999. In the ICD-9, coding of external
and three territories (http://www.cdc.gov/brfss/). The causes of death was done with a supplementary set of codes
number of injury-specific risk and protective behaviors commonly known as E-codes, and all deaths resulting from
about which all adult respondents are asked is limited, but an external cause of injury were assigned an E-code. The
states can add injury-specific modules. Data from the survey external cause is the mechanism causing death (e.g., a motor
have proven useful for identifying and highlighting a broad vehicle traffic crash), and the injuries resulting from the
range of national and state-level injury prevention issues external cause (e.g., fractures, open wounds, etc.) are listed
(41–45). The Youth Risk Behavior Surveillance System, as contributing causes on the death certificate. In the ICD-
developed by the CDC in 1989, includes national, state, terri- 10, external causes are classified under a series of alpha-
torial, and local school-based surveys of US students in numeric codes, V01–Y98 (55).
grades 9–12 regarding risk behaviors associated with leading Morbidity data, for example, data in hospital discharge
causes of morbidity and mortality (http://www.cdc.gov/ and emergency department medical records, are currently
nccdphp/dash/yrbs). Survey topics include behaviors related coded in the United States using the clinical modification of
to injury risk, such as lack of seat-belt use, drinking and the ICD-9 (ICD-9-CM). Coding of external causes has been
driving, weapon-carrying, and suicide attempts (46). Youth considerably less complete for morbidity data, and this has
Risk Behavior Surveillance System data are a source both limited the usefulness of sources such as hospital discharge
for summary national-level reports (46) and for targeted records for injury surveillance. A 1997 survey showed that,
investigations on state issues (47, 48). on average, states with laws requiring E-coding had a higher
Several systems are currently being used in the United percentage of E-coded hospital discharges; however, it was
States for national surveillance of injury risk factors. The possible to achieve a high level without such a law (18).
Motor Vehicle Occupant Safety Survey and the National LeMier et al. (56) have recently shown a high level of accu-
Survey of Drinking and Driving Attitudes and Behavior are racy of computerized E-code data in Washington State for
nationally representative telephone surveys (49, 50). The reporting of injury mechanism and intent. The ICD-9-CM
National Occupant Protection Use Survey is a nationally system is expected to be replaced by the clinical modifica-
representative observational survey that provides estimates tion of the ICD-10 (ICD-10-CM) in the next few years.
of shoulder belt and motorcycle helmet use and data on the Although major revisions such as the change from the
characteristics of belt users (51). The Injury Control and ICD-9 to the ICD-10 pose challenges for temporal compari-
Risk Survey was a random digit dialing telephone survey sons of data, in general the ICD coding systems enhance
sponsored by the CDC in 1994 for collection of injury risk comparability and consistency in mortality and morbidity
factor and demographic data from a nationally representative statistics, helping decrease the costs of collecting, linking,
sample of adult respondents (52–54). The Injury Control and and using data. Similar benefits are potentially available
Risk Survey was a single survey, not an ongoing system of from standards for recording other essential health-related
surveillance. A subsequent similar survey, Injury Control information. In recent years, standards development work
and Risk Survey 2, is currently under way. These and other has been under way in several areas of injury surveillance.
surveys are valuable sources of national-level estimates, but The Data Elements for Emergency Department Systems
they cannot provide state- or local-level data. (57), designed to conform to established formats for patient
The widespread use of data from these various systems data, is a recommended set of specifications for information
and surveys is an indication of the importance and value of entered in emergency department records. Data Elements for
surveillance that focuses on preinjury factors. However, the Emergency Department Systems is not intended as a
diversity of these systems also reflects the absence of a mandated essential or minimum data set; rather, it is
systematic, coordinated approach to addressing this issue. intended to foster uniformity among individual data
elements that are chosen for use. Similarly, recommended
CODES AND STANDARDS FOR INJURY SURVEILLANCE uniform data elements have been developed for firearm-
related injury surveillance (58, 59) and central nervous
In order for information about injury mortality, morbidity, system injuries (60); definitions and recommended data
and risk factors to be efficiently accessed and used for elements for surveillance of intimate partner violence (61)
surveillance, it needs to be categorized under standard codes have been developed and are being pilot-tested.
and definitions. For injury prevention, the usefulness of Just as standards for recording data can facilitate collec-
information being collected and coded is greatly enhanced if tion and analysis, standards for presentation can better

Epidemiol Rev 2003;25:24–42


28 Horan and Mallonee

enable data dissemination and display. Development and uninjured, injured, and killed persons, and these data provide
publication of the Recommended Framework for Presenting a more comprehensive assessment of the consequences of
Injury Mortality Data (62) has provided a widely accepted safety behaviors (e.g., use of belts and helmets) and counter-
systematic approach for the display of standard ICD-9 E- measures (e.g., air bags) (70). At least 26 states have
code groupings in a matrix of mechanism/cause by manner/ received funding from the Crash Outcome Data and Evalua-
intent; a similar framework has been developed for tion System for numerous applications through 1999 (32).
morbidity data (63). In addition, the International Collabora- In addition to measuring the magnitude of the problem,
tive Effort on Injury Statistics has recently developed and injury surveillance systems have been instrumental in docu-
published an injury diagnosis matrix, known as the Barell menting the effects of state legislation in reducing the burden
Matrix, as a recommended approach for displaying data on of transportation-related injuries and in measuring adverse
the nature of the injury (fracture, amputation, burn, etc.) by consequences of safety measures. Some types of legislation
body region (head and neck, torso, etc.) (64). that have been evaluated include: establishing 21 years as the
minimum age for the purchase of alcoholic beverages (74,
SURVEILLANCE OF MAJOR CATEGORIES OF INJURIES
75); safety-belt primary enforcement laws (76, 77); child
safety seat laws (78); sobriety checkpoints (79); graduated
Transportation injuries licensing of teenage drivers (80, 81); and administrative
license revocation and lower blood alcohol concentration
According to the National Vital Statistics System, trans- laws (75, 82, 83). Analysis of a combination of data from
portation-related injuries are the leading cause of injury- risk factor surveillance systems and survey data has also
related death in the United States, accounting for over been used to show relations that have policy implications
46,000 deaths in 1999 (14). Transportation injuries were the (84).
leading cause of all deaths for persons of every age from age Determining unanticipated adverse outcomes of preven-
4 years to age 33 years (65). The NHTSA provides the most tion strategies is an important use of surveillance. Motor
comprehensive surveillance system for transportation- vehicle injury surveillance documented the adverse conse-
related injuries in the United States. Detailed data regarding quences (including death from air bags) that have occurred
the circumstances of transportation fatalities are collected in among unrestrained children under age 13 years, small-
the Fatality Analysis Reporting System in all 50 states and statured adults, and infants in rear-facing car seats in the
the District of Columbia (66). The Fatality Analysis vehicle front seat (85, 86). In addition, an insurance-based
Reporting System is a powerful tool for uncovering new crash and injury database demonstrated significant injury risks
epidemiologic information on crashes and injury risks (67). associated with restraining young children (age 2–5 years) in
Since 1988, crash and injury statistics have been based on regular seat belts as compared with child restraint systems
data from the General Estimates System. The General Esti- (87); these data have led to educational efforts and policy
mates System is a probability-based sample of police- changes throughout the country. Efforts in utilizing surveil-
reported crashes from 60 locations across the country, gener- lance systems to support and evaluate motor-vehicle-related
ating national estimates of crashes and injuries (68). In 2000, safety legislation and policies should serve as a model for
there were an estimated 6,394,000 police-reported traffic supporting and evaluating policy for other causes of injury.
crashes resulting in 41,821 deaths and over three million
injuries (69). Vehicle occupants accounted for nearly 90
Residential injuries
percent (over 36,000) of these deaths, followed by 4,739
pedestrians and nearly 700 pedal cyclists (69). Burn and fire-related injuries. Per capita, the fire problem
Until late 1991, the NHTSA’s 19-city survey was used to in the United States, including fatal injuries due to fire, is one
track national use of seat belts. In 1991, the 19-city survey of the worst in the industrialized world. Injuries from fire
was replaced with an aggregate of individual statewide and burns are the seventh leading cause of injury death in the
observational surveys weighted by each state’s population United States, accounting for 3,910 deaths in 1999 (14).
(70). In addition to the state belt-use surveys, the National According to the National Health Interview Survey, over one
Occupant Protection Use Survey has conducted observation million burn injuries are reported annually in the United
surveys since 1994, using a multistage probability sample to States (88); this number of injuries has declined significantly
estimate occupant protection in the United States (70); the from the two million annual injuries estimated in the first
prevalence of seat-belt use in 1998 was found to be 68.9 report of the National Health Interview Survey, drawn from
percent (71). 1957–1961 data.
The Crash Outcome Data and Evaluation System is a state- In 2000, public fire departments responded to nearly two
based surveillance system initially funded by the NHTSA in million fires in the United States, according to estimates
seven states to determine the benefits of use of seat belts and based on data received by the National Fire Protection Asso-
motorcycle helmets in motor vehicle crashes (72). The ciation from fire departments responding to the 2000 annual
system utilizes a probabilistic computer algorithm (73) to National Fire Experience Survey; these fires resulted in over
link crash data from police reports, medical data from EMS, 4,000 and 22,000 civilian deaths and injuries, respectively,
hospital emergency department, and discharge files, and and over $11 billion in property loss (89). In 2000, residen-
claims data from third-party payors to evaluate injuries and tial fires accounted for approximately 80 percent of the fire
their associated costs from motor vehicle crashes. A strength injury problem, including nearly 400,000 residential fires,
of the linked system is that person-level data are available for 3,445 civilian deaths, 17,400 injuries, and almost $6 billion

Epidemiol Rev 2003;25:24–42


Injury Surveillance 29

in direct property damage (89). The National Fire Incident Occupational injuries
Reporting System is a voluntary reporting system that has
been overseen by the US Fire Administration (Federal Emer- The International Labor Organization has estimated that
gency Management Agency) since 1976. This database work-related injuries kill approximately 335,000 persons
collects information on one million fires (approximately one annually, resulting in a worldwide rate of 14.0 deaths per
half of all reported fires) from 14,000 fire departments in 42 100,000 workers, with developing nations having the highest
states and the District of Columbia (90), including data on injury fatality rates (101, 102). In the United States, occupa-
causes, locations, and temporal and geographic trends in tional injury deaths are routinely reported by three sources.
fires and injuries. The National Safety Council has estimated work-related
deaths and injuries for the US population since 1933 (103).
An important risk factor for death or serious injury during
The CDC’s National Institute for Occupational Safety and
a residential fire is the lack of a functioning smoke alarm
Health, utilizing death certificates from all 50 states and the
(31, 91). According to surveillance for smoke-alarm owner- District of Columbia (104), has collected data in the National
ship in US households conducted by the Behavioral Risk Traumatic Occupational Fatalities Surveillance System
Factor Surveillance System, the prevalence of smoke alarms since 1980. In 1992, the Bureau of Labor Statistics devel-
in the United States is nearly 94 percent (42); however, in- oped a federal-state partnership, the national Census of Fatal
home surveys by the Consumer Product Safety Commission Occupational Injuries, in all 50 states and the District of
and others have shown that 25–30 percent of household Columbia that cross-references multiple sources of data (i.e.,
smoke alarms are not functional (92–94). death certificates, medical examiner certificates, worker’s
The utility of linking (manually or electronically) popula- compensation records, and federal and state agency reports)
tion-based morbidity data (fire/burn injury surveillance (105). Fatality counts from the Census of Fatal Occupational
systems, emergency department or hospital discharge data, Injuries have exceeded those of the National Traumatic
ambulance run reports), mortality data (medical examiner, Occupational Fatalities Surveillance System annually by
vital statistics, and coroner data), and fire department data in approximately 20 percent (104, 106).
determining risk factors and high-risk populations and in Discrepancies between the different reporting sources
evaluating targeted interventions has been demonstrated (31, occur because of differences in methods of case identifica-
95, 96). However, published reports to date have only linked tion and case definition (107, 108). Although existing
these data on a community, city, or county basis rather than systems are discrepant and may undercount the number of
on a statewide basis. The Federal Fire Partnership—the US deaths (108–110), these surveillance systems have docu-
Fire Administration, the Consumer Product Safety Commis- mented a large public health problem, high-risk occupations,
sion, and the CDC—has set a goal of eliminating residential and temporal trends (102) and have greatly improved the
fire-related deaths by 2020 (Christine Branche, CDC, availability of data in the United States. This has led to
personal communication, 2002). State efforts to achieve this expanded research on and policy changes regarding newly
goal could benefit from systematic data linkage to enhance recognized issues such as prevention of workplace violence
surveillance capacity. (111, 112). Other surveillance systems around the world
Fall injuries. Falls were the fourth leading cause of injury have noted similar surveillance problems (113) and
death in the United States in 1999 (14) and the leading cause improvements in surveillance data (114).
of medically attended injuries, accounting for 11.3 million There is no single surveillance system capable of
fall episodes (97), including eight million emergency depart- capturing the majority of nonfatal occupational injuries in
ment visits (98). Age-specific rates of hospital-treated falls the United States (115). The Survey of Occupational Injuries
are highest in the youngest and oldest populations, but the and Illnesses is a federal/state program in which private-
proportions of these falls that require hospitalization are very sector employer reports are collected and processed by state
different (3 percent in persons aged less than 25 years vs. 33 agencies in collaboration with the Bureau of Labor Statistics
percent for person aged 75 years or older) (98). Elderly (116). This system underestimates nonfatal injuries nation-
persons have the highest fall mortality rates (99). ally, since it excludes the self-employed, farms with fewer
State or local surveillance for falls is typically based on than 11 employees, private households, and federal, state,
existing E-coded systems such as emergency department or and local agencies (109, 116). Surveillance of nonfatal occu-
hospital discharge data systems. While data on patient pational injuries by the Bureau of Labor Statistics’ annual
descriptive factors (age, sex, race/ethnicity, etc.) are avail- survey and state-based worker’s compensation systems
able in these systems, external-cause coding only offers a provides general estimates of the burden of nonfatal injuries
description that the person slipped or tripped or fell on the in states but lacks detail for characterizing injuries beyond
same level or at a distance. The data often do not provide broad diagnostic classifications and the number of workdays
specific details about how the fall occurred (98), and E-codes lost. Additionally, national data are collected for injuries
do not provide sufficient detail regarding risk factors (envi- serious enough to be treated at a hospital emergency depart-
ronmental hazards, medication use, etc.) (100). With an ment in the NEISS and the National Hospital Ambulatory
aging US population, fall rates appear to be increasing, and Medical Care Survey (115, 117, 118); however, self-
prevention efforts could benefit substantially from expanded reporting from the National Health Interview Survey has
surveillance systems that collect more detailed information suggested that only 34 percent of persons with occupational
on the causes and outcomes of fall injuries. injuries are treated in an emergency department (119).

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30 Horan and Mallonee

State-based occupational surveillance systems are impor- reported in the United States has been fairly stable for
tant for determining state and local patterns and priorities for decades, but there are important differences by age, sex,
prevention. Many state surveillance systems have reported race/ethnicity, and region (138–141). In 1999, The Surgeon
state-specific mortality data and trends (120–122). State General’s Call to Action to Prevent Suicide (142) proposed
population-based surveillance systems for nonfatal occupa- a national suicide prevention strategy, with a series of
tional injuries are incomplete and fragmented. There are recommendations for a nationwide collaborative effort to
several factors that restrict data collection. First, there are no reduce suicidal behaviors and premature deaths due to
multiple case-level data systems that can be linked at the suicide.
state level (i.e., labor, worker’s compensation, hospital One of the strongest predictors for suicide is a previous
emergency department or discharge data). Second, external- attempt (143). Thus, local or state surveillance of nonfatal
cause coding of hospital data does not separately identify suicidal behavior can play a key role in prevention. The
“injury at work” (123). Third, using worker’s compensation recent expansion of the NEISS offers the potential to
coding as the source of payment on hospital data under- generate national estimates of suicide attempts requiring
counts work-related injuries (124). The Alaska Trauma emergency medical treatment (144). The Youth Risk
Registry is a rare example of a system capable of assessing Behavior Surveillance System has also been used to provide
all occupational injuries involving admission to an acute- national and state-level estimates of suicidal thoughts and
care hospital (125). behavior among youth in schools (145, 146). Together with
Trade-specific analyses of surveillance systems have been vital statistics, data from these systems can provide informa-
found to be useful in determining potential areas for further tion on a range of suicidal behaviors, from thoughts to
work-based prevention programs (126–128). Other popula- completion. Continued and improved suicide surveillance
tion-based systems have utilized worker’s compensation using these data will be important in measuring the impact of
claims (129), telephone surveys (130), trauma registry data the National Strategy for Suicide Prevention.
(131), and police and employers’ reports (132). Finally, Homicide. In 1999, there were nearly 17,000 reported
comprehensive company-wide injury surveillance systems, homicides in the United States (99). For surveillance of
such as those implemented by the Ford Motor Company homicides, death certificate information from the National
(Dearborn, Michigan), have proven useful for occupational Vital Statistics System provides basic information on the
injury prevention activities (133). underlying cause of death, the injuries sustained, and the
Surveillance for occupational injury in the United States date and place of occurrence (147). However, death certifi-
has improved substantially in the past two decades, but it cate data generally do not report important details, such as
could be improved further (107). The use of free text anal- the decedent’s relationship to the perpetrator or other key
ysis as a source of case-finding and improving surveillance information—for example, for firearm-related deaths, the
data has been demonstrated to be promising by the National type of firearm involved. That information is included in the
Traumatic Occupational Fatalities Surveillance System and supplemental homicide reports that are part of the Federal
other surveillance systems (133–136). Surveillance at the Bureau of Investigation’s Uniform Crime Reporting
state level needs considerable attention and improvement. Program. These reports include information on the relation-
State-level hospital data collection systems could enhance ship between the victim and the offender, the circumstances
the utility of such data for injury surveillance for the more surrounding the incident, the type of weapon used, and the
severe injuries by mandating a field denoting injury at work demographics of victim and offender. The supplemental
(123). States could also add collection of work-related inju- homicide report data are used in the Bureau of Justice Statis-
ries to the statewide Behavioral Risk Factor Surveillance tics’ publication Homicide Trends in the United States (148).
System. The collection of case-level data from multiple A recent summary report on surveillance of intimate partner
sources (including labor, worker’s compensation, hospital, homicides (149) used supplemental homicide report data to
and vital statistics data) that could be linked, in a manner document a steady decrease in rates of intimate partner
similar to data on transportation-related injuries in some homicide during 1981–1998; these decreases were noted to
states (32), should be explored. be temporally associated with social programs and legal
measures implemented to curb intimate partner violence. To
Injuries related to violence and firearms
provide more comprehensive and detailed crime statistics,
the Bureau of Justice Statistics and the Federal Bureau of
In 1999, violent deaths from suicide and homicide Investigation have designed the National Incident Based
combined accounted for approximately 29,000 deaths Reporting System to supplant the Uniform Crime Reporting
among persons aged 1–44 years in the United States, ranking Program (150).
as the second leading cause of death in this age group behind Child Fatality Review teams, first formed in Los Angeles
unintentional injuries (29). For the age groups 15–24 years County, California, in 1978 (151), are an important source of
and 25–34 years, suicide and homicide ranked as the second data on child homicides. An estimated 2,000 child deaths
or third leading causes of death after unintentional injury due to abuse and neglect occur in the United States annually;
(29). the majority of victims are younger than age 5 years (152).
Suicide and suicidal behavior. The National Vital Statis- Local Child Fatality Review teams generally include
tics System is the major source for national surveillance data members from coroners’ offices and from law enforcement,
on suicide (137), documenting more than 29,000 suicide child protective services, and public health agencies. Varia-
deaths in 1999 (99). The overall age-adjusted rate of suicide tion in definitions and data elements used by different teams

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Injury Surveillance 31

limits the current potential for national surveillance, but state Surveillance System, are additional potential sources of
and local teams can provide information to promote effective important data on nonfatal violence (158).
child health and safety policies (153). In 1995, the National Institute of Justice and the CDC
National Violent Death Reporting System. The 1999 Insti- sponsored the National Violence Against Women Survey
tute of Medicine report, Reducing the Burden of Injury, (159). The survey estimated annual intimate partner victim-
noted that “an ongoing federally sponsored system of ization rates higher than those reported in the National Crime
surveillance for all intentional injuries (homicides and Victimization Survey; however, there were important meth-
suicides) is conspicuously absent from the array of data odological differences between these surveys (160). Subse-
systems available on a national level” (19, p. 73). The report quently, in 1998, the Department of Health and Human
recommended development of a fatal intentional injury Services and the Department of Justice sponsored a work-
surveillance system for collection of data on all homicides shop, “Building Data Systems for Monitoring and
and suicides. In 2001, Congress appropriated $1.5 million to Responding to Violence Against Women” (161). The
the CDC to begin implementing the National Violent Death summary report recommended using uniform definitions to
Reporting System. In collaboration with federal and state define and measure violence against women, and it identi-
partners, the CDC has produced an outline for the National fied the need for guidelines for intimate partner violence
Violent Death Reporting System that proposes the develop- surveillance on local levels. In recent years, the CDC has
ment of state-based systems to routinely link data already supported several states in developing pilot projects on
being collected by four sources: death certificates, medical surveillance of intimate partner violence (162), and it is
examiner or coroner reports, police reports, and crime labo- currently developing a pilot project for possible ongoing
ratory reports. Death certificates indicate the cause of periodic national surveys.
death and whether the death was work-related. The Surveillance of firearm-related injury. From the late 1960s
medical examiner/coroner data include information on the through the early 1990s, the number of firearm-related
decedent’s blood alcohol level and other toxicology deaths in the United States increased by more than 50
screening; police reports include data on the victim- percent, and in 1991, firearms equaled or surpassed motor
perpetrator relationship and other circumstances of the vehicle crashes as the leading cause of injury death in seven
event; and crime laboratory reports provide detailed infor- states and the District of Columbia (163). With growing
mation on the type of firearm used in firearm-related deaths awareness of this public health issue, the capacity for
surveillance of firearm-related injuries and risk factors has
(e.g., caliber, barrel length, type). In the proposed system,
improved. In the early 1990s, Massachusetts implemented
each state health department would collect and link data
the first statewide reporting system for gunshot wounds
from these sources in a state-level system, and together the
resulting in death, hospitalization, or emergency department
states’ data would form the basis for national surveillance
treatment (164). National surveillance for nonfatal injuries
(154).
was enhanced in 1992 by the addition of firearm-related
Surveillance of nonfatal violence. For every death due to injuries to the data collected in the NEISS (165). To further
homicide, it has been estimated that there are over 100 advance development of state-level firearm-related injury
nonfatal injuries due to violence (155). National data on surveillance, in 1994 the CDC provided funding for seven
nonfatal violence are collected in two systems administered states to develop, implement, and evaluate systems (166).
by the US Department of Justice. The Uniform Crime These projects demonstrated both the feasibility and the
Reporting Program, operated by the Federal Bureau of value of state-level surveillance for firearm-related injuries.
Investigation, collects law enforcement reports on violent They also illustrated several important challenges, including
crimes, including rape and aggravated assault. Reporting by the resource-intensive nature of the endeavor (167). The
local enforcement agencies is voluntary, but participation is experience gained and lessons learned from these projects
widespread, and the program has been estimated to represent have provided important context for the development of the
over 95 percent of the US population (156). The Bureau of National Violent Death Reporting System (see above),
Justice Statistics’ National Crime Victimization Survey is an which is envisioned as the future basis of state- and national-
ongoing nationally representative sample survey of house- level surveillance of firearm-related mortality.
holds that collects data on rape, assault, and other crimes.
The Uniform Crime Reporting Program and the National
Other major categories
Crime Victimization Survey are complementary systems
with different strengths and limitations. Uniform Crime Poisoning. In 1995, poisoning ranked as the third leading
Reporting Program reports can provide national, regional, cause of injury mortality in the United States, following
state, and local data based on incidents reported to law deaths from motor vehicle traffic injuries and firearm inju-
enforcement authorities. The National Crime Victimization ries (168). The number of poisoning deaths increased 24
Survey includes incidents that may have gone unreported to percent from 1995 (n = 16,307) to 2000 (n = 20,230) (29).
authorities; however, the data are self-reported and the Several surveillance systems address different aspects of
system is designed to provide only national estimates. poisoning morbidity and mortality. Virtually all poison
Recent expansion of the NEISS to include surveillance of all control centers in the United States participate voluntarily in
injuries may provide an opportunity to improve national- the Toxic Exposure Surveillance System maintained by the
level surveillance for these conditions (157). Other survey- American Association of Poison Control Centers (169). The
based surveillance systems, such as the Youth Risk Behavior annual reports of the Toxic Exposure Surveillance System

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32 Horan and Mallonee

are published each year in the American Journal of Emer- CM that will allow the identification of deaths from ter-
gency Medicine; the report for 2000 includes over 2.1 rorism reported on death certificates through the National
million poison exposure cases (170). In addition, data from Vital Statistics System, as well as the identification of inju-
individual poison control centers can help in identifying and ries and illnesses from terrorism reported in medical rec-
characterizing problems at a state or local level (171). ords (http://www.cdc.gov/nchs/about/otheract/icd9/terrorism_
The Drug Abuse Warning Network, sponsored by the code.htm; also see reference 250). In addition, a recent (April
Substance Abuse and Mental Health Services Administra- 2003) ad hoc working group was convened by the National
tion, is an ongoing drug abuse data collection system that Center for Injury Prevention and Control to develop stan-
provides data on morbidity and mortality from abuse of dardized data collection tools and methods for bombings or
illegal drugs or use of legal drugs for nonmedical purposes. explosions. Finally, it has been recommended that experi-
Recent evaluation and redesign of the Drug Abuse Warning enced public health disaster surveillance teams, similar to
Network system has produced several reporting changes, National Transportation Safety Board investigators in the
including semiannual reports of morbidity data, annual United States, be established and rapidly deployed to assist
reports of mortality data, and periodic short publications communities experiencing disasters (187).
(The DAWN Report) on selected topics (172). The Patient safety. Although injuries related to medical care
Hazardous Substances Emergency Events Surveillance have not traditionally been included in public health surveil-
system is maintained by the Agency for Toxic Substances lance of injuries, some investigators have commented that
and Disease Registry to provide information for partici- iatrogenic injuries may account for more deaths than all
pating states with which to reduce morbidity and mortality other accidents combined (188). The Institute of Medicine
from releases of hazardous substances. Sixteen state health addressed the issue of injuries related to medical care and
departments participate in the Hazardous Substances Emer- medications in its report To Err Is Human: Building a Safer
gency Events Surveillance system; annual summary reports Health System (189), which called for a comprehensive
are available on the World Wide Web (173). approach to improving patient safety. In response to the
Disaster events. During the last quarter of the 20th recommendations of the Institute of Medicine, the federal
century, natural disasters such as floods, earthquakes, hurri- government’s Quality Interagency Coordination Task Force
canes, tornadoes, fires, and volcanic eruptions claimed issued a report in February 2000 (190) that proposed the
approximately three million lives worldwide and adversely establishment of error reporting systems in all states. The
affected the lives of another 800 million persons (174). In report proposed to foster an environment of support for these
addition, disasters may be caused by deliberate or uninten- systems by implementing mandatory reporting in Depart-
tional human actions (175). Terrorism throughout the world ment of Defense medical facilities. It also proposed to imple-
is widely reported in the media, and events in the United ment a voluntary reporting system nationwide in Veterans
States (176–179) and abroad (180–182) have suggested that Administration hospitals and to integrate federal voluntary
mass casualties associated with domestic and international systems with data collection activities by states and private
terrorism among US citizens and military personnel are organizations. Concurrently, the CDC is developing the
increasing. In fact, in the United States alone, from 1988 to National Healthcare Safety Network for reporting of infor-
1997, the number of actual and attempted bombings mation on patient and health care worker safety. The patient
increased by 127 percent (183). safety component focuses on infectious and noninfectious
Disaster surveillance can help determine the magnitude adverse events associated with health care delivery, and the
and nature of health/injury problems, identify groups at high health care worker component focuses on adverse events
risk for adverse health effects, optimize relief responses, associated with vaccines, vaccine-preventable diseases, and
evaluate the effectiveness of relief efforts, and recommend exposure to bloodborne pathogens (e.g., from needlestick
ways of decreasing the consequences of future disasters injuries).
(184). Public health surveillance for disasters presents many Traumatic central nervous system injuries. Traumatic brain
challenges: 1) data must be collected under highly adverse injury has been estimated to cause 50,000 deaths, over
conditions; 2) multiple sources of information must be inte- 200,000 hospitalizations, and one million emergency depart-
grated in a cohesive fashion; 3) circumstances and forces ment visits annually in the United States (191–193). Among
may exist that impede surveillance (incomplete documenta- survivors of traumatic brain injury, over 80,000 people per
tion of adverse effects, restricted or prohibited access to year are left with subsequent disabilities (194). The age-
records); and 4) data collection and postdisaster action must specific incidence of traumatic spinal cord injury is highest
be completed rapidly, accurately, and repeatedly in order to among adolescents and young adults, and some of the most
rescue persons at risk or prevent further adverse conse- common causes are potentially preventable (195, 196). To
quences (185). support state-based surveillance of traumatic brain injury
Standardized reporting methods, including case defini- and traumatic spinal cord injury, the CDC has developed the
tions, reporting procedures, and standardized data collection Guidelines for Surveillance of Central Nervous System
tools that could be easily modified to determine disaster- Injury (60) and has provided financial support to some states
related injuries and deaths, do not exist and should be devel- to conduct surveillance of the incidence, risk factors, and
oped (185–187). After the World Trade Center attack of Sep- causes of these injuries. States have used this surveillance for
tember 11, 2001, the National Center for Health Statistics highlighting urban-rural differences in rates of traumatic
convened an ad hoc working group and developed a set of brain injury (197) and risk factors or risk groups specific to a
new codes within the framework of the ICD-10 and ICD-9- state (198). However, evaluation of traumatic spinal cord

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Injury Surveillance 33

injury surveillance has demonstrated a positive predictive fragmented approach to surveillance and the development
value below 70 percent for diagnoses from hospital over time of a collection of poorly coordinated systems that
discharge data (196, 199). Furthermore, vital records evolved in response to various needs. They proposed that a
systems have low sensitivity for detecting traumatic spinal comprehensive public health surveillance system be struc-
cord injury. Recognizing the importance and difficulty of tured as a network of compatible health information systems
conducting surveillance for traumatic spinal cord injury, linked electronically and readily accessible to public health
representatives of the State and Territorial Injury Prevention practitioners. Major efforts have begun to reorganize public
Directors’ Association, the Council of State and Territorial health surveillance along such lines. In 1994, the Council of
Epidemiologists, and the CDC have begun planning a State and Territorial Epidemiologists called for the creation
working group to develop pragmatic approaches for trau- of a national public health surveillance system to expand,
matic spinal cord injury surveillance by state health depart- coordinate, prioritize, and standardize approaches to public
ments. health surveillance (207). Subsequently, the CDC, in
collaboration with the Council of State and Territorial Epide-
miologists and other key partners, began the development
IMPROVING INJURY SURVEILLANCE—LINKAGE,
and implementation of the National Electronic Disease
INTEGRATION, EVALUATION
Surveillance System to promote the use of information
Data linkage system and data standards for integrated surveillance at the
local, state, and national levels (208). Thus far, progress is
Linking data elements from more than one data set has real but slow. Although the concept of integration is compel-
many advantages over the use of a single data set. Many ling, functional implementation is proving to be an expen-
types of databases have been linked for public health surveil- sive and difficult task that may take many additional years to
lance and found to be useful in understanding injury risk complete.
factors and outcomes. The Crash Outcome Data and Evalua-
tion System funded by the NHTSA is an example of the
utility and application of linking multiple data sets (traffic Evaluation
collision, EMS, hospital discharge, and vital statistics data) In 1963, Alexander Langmuir observed that “good surveil-
at the state and national levels (32). The Crash Outcome lance does not necessarily ensure the making of the right
Data and Evaluation System has allowed states to more decisions, but it reduces the chances of wrong ones” (209, p.
accurately assess the occurrence, costs, and outcomes of 191). Thus, surveillance has limitations, even when done
transportation-related injuries and to evaluate the efficacy well. Assessing surveillance systems’ performance can be
and cost savings associated with highway safety initiatives. accomplished through periodic evaluations. In 1988, the
By aggregating these data from multiple states, policy- CDC published a set of guidelines for evaluating surveil-
makers can be provided with extensive scientific informa- lance systems (210). The guidelines focused on basic, prac-
tion for their consideration regarding public safety and tical issues such as the public health importance of the
health care cost containment (72). condition(s) under surveillance and the usefulness and costs
Police and traffic collision reports have also been linked to of a surveillance system. These guidelines have been widely
trauma registries or death certificates to demonstrate the accepted and used in public health practice. An updated
association of type, severity, and outcome of injury with version published in 2001 (1) reiterates the original approach
crash type, to advance the understanding of crash biome- and principles and also addresses several issues of growing
chanics and the design of vehicle occupant protection importance, including integration of information systems,
systems (200), and to evaluate current recommendations on establishment and use of data standards, and protection of
the use of seat belts during pregnancy (201). Other examples confidentiality in the electronic exchange of health data.
include linking driver’s license data with trauma registry Evaluations of injury surveillance systems have proven
data to compare police assessment of alcohol use with blood useful in identifying important strengths and shortcomings.
alcohol measurements (202) or with hospital discharge data Results from evaluation of a pediatric injury surveillance
to examine the possibly decreased ability to drive following system in Canada indicated that data from the system might
traumatic brain injury (203). Linkage of hospital discharge be representative of “general youth injury patterns” in the
data with death certificate data has shown that discharge country, even though the system was not originally designed
status has limitations as an outcome measure among injured to include a nationally representative sample (211). Evalua-
persons (204) and that death certificate cause-of-death tions of newspapers as a potential source for injury surveil-
coding is sometimes incompatible with the main conditions lance have found that a substantial proportion of fatal cases
of decedents while hospitalized (205). Thus, linking data sets and cases requiring hospitalization are not identified by
used for surveillance can facilitate prevention research and newspaper reports (110, 212). In 1994, the CDC sponsored
permit evaluation of existing data sources. the development and evaluation of several state-based
firearm injury surveillance systems. Summary reports
Integration of surveillance systems included both surveillance data and system evaluations, thus
providing a fuller picture of the strengths, limitations, bene-
Surveillance of injuries should be viewed as one compo- fits, and costs of these systems (166). Evaluation of the
nent of the larger system of public health surveillance. A quality of injury surveillance data is necessary if prevention
1994 report by Thacker and Stroup (206) commented on the activities based on the data are to be appropriate and effec-

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34 Horan and Mallonee

tive (213). Assessing the usefulness of surveillance systems resource for surveillance information on specific injury
is a key element in evaluation; reports demonstrating the conditions (223). In Australia, the National Injury Surveil-
practical use of data (26, 95, 214) provide examples that the lance Unit of the Australian Institute of Health and Welfare
systems are serving their intended purposes. In general, the uses mortality statistics and hospital discharge data to
time and effort spent in evaluation can provide information produce reports on major causes of injury morbidity and
assuring that the resources being put into surveillance are mortality (224, 225), and the National Injury Surveillance
well invested. Unit has worked in conjunction with injury surveillance and
prevention practitioners in Australia to develop a set of
INTERNATIONAL INJURY SURVEILLANCE
national data standards for injury surveillance. In addition,
Australia recently developed the National Coroners Informa-
Injuries are a major cause of mortality worldwide, causing tion System, an Internet-based data storage and retrieval
more than five million deaths each year (215). As in many system for coroner cases (226). A state-based system, the
other areas of public health, major differences exist in coun- Victorian Injury Surveillance and Applied Research System,
tries’ capacities for injury surveillance, generally corre- accesses data from death certificates, coroner records,
sponding to their overall economic development. A hospital admissions, and emergency department visits to
comprehensive review of injury surveillance in countries conduct statewide surveillance of injury mortality and
other than the United States is beyond the scope of this morbidity (227, 228). In New Zealand, the Injury Prevention
report. We present instead several examples to illustrate the Research Unit was established in 1990 (229). The Injury
spectrum of injury surveillance activities internationally. In Prevention Research Unit uses data files on deaths and
addition, the World Wide Web page of the CDC-sponsored public hospital discharges from the National Minimum Data
International Collaborative Effort on Injury Statistics Set compiled by the New Zealand Health Information
provides access to information on many countries’ injury Service to publish fact sheets and results of descriptive and
prevention programs and injury surveillance activities (http: evaluative studies on priority injury prevention issues (230–
//www.cdc.gov/nchs/about/otheract/ice/links.htm). 234). The Injury Prevention Research Unit also maintains
the National Injury Query System, an Internet-accessible,
menu-driven source of information on injury mortality and
Injury surveillance in some developed countries
morbidity statistics (235).
The European Union’s Home and Leisure Accident Comparability across national borders is important for
Surveillance System was designed for use in emergency effective international surveillance. The International
departments for collection of data on the causes of home and Collaborative Effort on Injury Statistics is a multinational
leisure injuries, including consumer products involved in effort, sponsored by the CDC, to improve the quality and
those injuries. Approximately 85 hospital emergency depart- comparability of international injury data. Participants
ments in all but three European Union countries participate include representatives from the World Health Organization,
in the Home and Leisure Accident Surveillance System. from countries in Western Europe and North America, and
Germany, Luxembourg, and Spain participate through from Australia, New Zealand, and Israel. The International
household surveys that use the same key variables as the Collaborative Effort on Injury Statistics has investigated
emergency department recording system. The data are used international differences in injury mortality rates (236) and
for generating national summary statistics (216) as well as has held symposia to identify problems and propose solu-
for highlighting specific injury issues (217, 218). In the tions for international injury statistics (237). A major current
Netherlands, a key participant in the Home and Leisure project in which members of the International Collaborative
Accident Surveillance System, the Dutch Consumer Safety Effort on Injury Statistics are participating is the Interna-
Institute has conducted emergency department-based tional Classification of External Causes of Injury, a multi-
surveillance for home and leisure injuries since 1984. In axial classification system for coding data on external
1997, the Dutch Injury Surveillance System was initiated in causes, developed in response to a perceived need for more
a sample of hospital emergency departments for ongoing detailed information about injury circumstances than is
surveillance of injuries from all causes (219). The Dutch available through the ICD classification system. The first
Injury Surveillance System provides a basis for priority- version of the International Classification of External Causes
setting in injury control in the Netherlands (220), for of Injury was released in 2001 and is presently undergoing
obtaining information on the direct medical costs of injury the requisite procedures for acceptance in the World Health
(221), and for identifying research priorities. Organization family of international classifications. A short
In Canada, the Canadian Hospitals Injury Reporting and version intended for use in emergency department-based
Prevention Program (222) collects and analyzes data on inju- surveillance has been pilot-tested in the United States (238).
ries and poisonings from the emergency departments of 10
children’s hospitals and five general hospitals across Injury surveillance in developing and underdeveloped
Canada. The primary focus is on children and adolescents. countries
Data collection is accomplished using standard forms that
are forwarded to the Injury Section at Health Canada for In The Global Burden of Disease, Murray and Lopez noted
computer entry into the database of the Canadian Hospitals that “still very little is reliably known about causes of death
Injury Reporting and Prevention Program. The program in much of the developing world” (239, p. 191). Although
serves as a valuable source of summary statistics and a injury mortality and morbidity have been identified as major

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Injury Surveillance 35

problems in some underdeveloped countries (240), injury acknowledge that “even if the system is simple and flexible,
surveillance is problematic because of the dearth of sustainability will be difficult to achieve” (249, p. 246).
resources for public health activities in general. The World
Health Organization and the CDC have recently developed a CONCLUSIONS
manual to help design, establish, and maintain injury surveil-
lance systems, aimed in particular at persons working in In recent decades, great strides have been made in injury
settings with severe constraints on the capacity to keep surveillance. The systematic collection and use of data on
records or assemble data into statistics (215). risk factors, incidence, severity, outcomes, and costs has
In Asia, some countries have begun or are beginning to assisted practitioners and researchers in identifying popula-
establish national systems for injury surveillance. In other tions at risk, implementing and evaluating prevention
countries without such systems, surveys and studies have programs, and formulating and evaluating policy. These
used existing data sets to describe and quantify data on efforts have already improved the health of the population,
important injury issues. The People’s Republic of China has and they will continue to do so.
developed a sentinel system of disease surveillance points in In the United States, surveillance for the leading cause of
lieu of a nationwide system of vital records and public health injury fatality, motor vehicle-related injuries, has included
surveillance. The disease surveillance points system covers linking multiple data sets in which data were collected for
approximately 10 percent of the population (241). Disease disparate purposes. This has supported innovative public
surveillance points data have been used to estimate the health applications, such as evaluation of the effectiveness of
overall injury mortality rate in China and to identify leading state and national legislation or regulations. In some
causes and high-risk groups (241, 242). Thailand initiated a respects, motor vehicle-related injury surveillance has been
provincial injury surveillance system in 1993, with reporting further advanced than surveillance for other classes of
from five large hospitals located in Bangkok and four injury, but important developments are under way in other
regions of the country. The data have been useful in docu- areas. Surveillance systems are being designed for major
menting the large proportion of injuries from transport acci- issues in injury such as violent death and patient safety. Stan-
dents and the large proportion of deaths occurring prior to dards are being developed and used to facilitate consistency
hospitalization. The latter may indicate a need for improved and comparability in data collection and dissemination.
prehospital transport and care. Hospital-based sentinel Federal, state, and academic partners are collaborating to
promote and improve state-level injury surveillance
surveillance is being considered for a larger national injury
capacity. Progress in injury surveillance can be fostered by
surveillance system for the country (243). In Vietnam, which
developing systematic approaches to the access and use of
does not have a formal national system of injury surveil-
existing data sources, as has recently been done in the
lance, the Vietnam Multi-center Injury Survey was
Consensus Recommendations for Using Hospital Discharge
conducted in 2001. This nationally representative survey of
Data for Injury Surveillance (20).
over 127,000 respondents demonstrated that injuries are the
The growth and development of injury surveillance also
leading cause of years of potential life lost. Drowning was
presents important challenges. With more systems that can
the leading cause of years of potential life lost nationally,
provide more data, there is a greater need for integration.
and road traffic injury was second. The high prevalence of Integration of information systems is a multidimensional
personal transportation via motorcycle rather than via auto- issue encompassing data on risk factors, morbidity, and
mobile or bicycle has important implications for the inci- mortality for both intentional and unintentional injuries,
dence and prevention of transport-related injuries (244). involving local, state, national, and international levels, and
In some underdeveloped countries in Africa and other areas, including systems that are intended to serve not only public
monitoring causes of death has been done by “verbal autopsy” health but also clinical, administrative, and other functions.
interviews of the deceased person’s relatives or associates. In addition, injury surveillance and public health surveil-
Trained field-workers can perform these interviews, with lance in general face the challenge of integration during a
subsequent review by clinicians to assign a cause of death time of increasing capacity for electronic access to and trans-
(245). The latter step can be costly, and a study in Ghana and mission of health-related information. The tools and systems
Tanzania using computer algorithms in lieu of physician at our disposal provide tremendous opportunity, but they
review to assign cause-of-death diagnoses demonstrated that also require responsible use, including the provision of data
this might be an effective and less expensive alternative (246). security and the protection of confidentiality.
Hospital-based surveillance can provide data on injury Finally, a continuing challenge for injury surveillance is
morbidity, although it does not identify the many patients who making effective use of the data. No matter how important
do not seek formal medical care (247). While acknowledging the condition under surveillance, data collection is not an end
this important limitation, a study in Uganda demonstrated the in itself, as reflected in the observation by former CDC
feasibility of a hospital-based system using a minimum data Director William H. Foege: “The reason for collecting,
set and a simple standard index of injury severity (248). The analyzing, and disseminating information on a disease is to
Caribbean Epidemiology Center of the World Health Organi- control that disease. Collection and analysis should not be
zation is working with several member countries to develop allowed to consume resources if action does not follow.”
emergency department-based injury surveillance. Recog- This is true for injury surveillance as well as disease surveil-
nizing the limited resources (money, personnel, etc.) avail- lance. In that context, the public health investment in surveil-
able, the designers have emphasized simplicity, but they lance—whether it be in continuing or enhancing existing

Epidemiol Rev 2003;25:24–42


36 Horan and Mallonee

systems, developing new ones, or committing effort and 16. Hanzlick R, Combs D. Medical examiner and coroner sys-
resources to systems integration—needs to be service- tems: history and trends. JAMA 1998;279:870–4.
oriented, supporting programs by providing data for deci- 17. National Association of Health Data Organizations. State-based
sions and information for action. emergency department data system profiles. Washington, DC:
National Association of Health Data Organizations, 2002. (http://
www.nahdo.org/eddcmod/consolidated%201.pdf).
18. Annest JL, Fingerhut LA, Conn JM, et al. How states are col-
lecting and using cause of injury data. A survey on state-based
ACKNOWLEDGMENTS injury surveillance, external cause of injury coding practices,
The authors acknowledge Lois Fingerhut, Dawn Castillo, and coding guidelines in the 50 states, the District of Colum-
bia, and Puerto Rico. A report of the Data Committee, Injury
and Drs. Lee Annest, Jim Mercy, and David Sleet for their
Control and Emergency Health Services Section, American
comments and feedback. They thank Diana Lambert for Public Health Association. Atlanta, GA: Centers for Disease
assistance in preparing the manuscript. Control and Prevention, 1998. (http://www.tf.org/tf/injuries/
aphabk98.pdf).
19. Bonnie R, Fulco C, Liverman C. Reducing the burden of
injury: advancing prevention and treatment. Committee on
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