SOCIAL MEDIA POLICY:

The purpose of this document is to outline the guidelines by which the LGS Foundation must
abide when using our social media accounts. The goals of our social media accounts should
align with our company’s mission. As we want to work to improve the lives of LGS patients
through research, programs, and educations, our social media should clearly reflect these
sentiments. Our social media should be primarily used as a communication tool to update our
publics about what we are doing, reach out to out to our patients, and generate donations in
creative manners.

Here at LGSF, we expect to meet the following goals when using our social media platforms:

● TRANSPARENCY. We commit to always remaining truthful, no matter the situation

when representing our brand.
● ACCURACY. As one of the only organizations dedicated to LGS, we must inform the
public with strictly fact checked information from credible sources.
● RESPONSIBILITY. We understand that the internet is a public space, and any
information we post can reach billions of people. We commit to post content that aligns
with our brand values.
● RESPECT. We commit to only posting personalized content with the consent of related
parties (patients, doctors, families, etc.). We will not post any confidential or distasteful
content.

POLICIES:

The following policies are applicable to all LGS social media accounts. Specifically, these
include Facebook, LinkedIn, Twitter, Instagram, and YouTube. These principles are also
applicable to our personal website and blog.

● Branding:
○ While font selection is restricted on social media, LGSF should use DIN 2014
Regular in any post when the font can be customized (i.e. on our own website
and for social media graphics).
○ Our logo should be used on all social media graphics and press materials.
Several versions of the logo exist, and use your judgement as to which is
appropriate according to the situation.
 ○ Our standard colors are represented in four boxes at the bottom of our logo. We
intend to use the colors when creating graphics and website posts to stay
consistent with our brand representation. Please use the color matching tool in
design applications to match these exact colors when creating new content.

● Engagement and Participation:

○ Remember that we are aiming to mitigate pain points for LGS patients and their
families. Our tone should reflect sincerity and hope. Although we would like to
generate donations, our tone should not come off as a sales pitch.
○ Our content should reflect our company’s mission statement. We want to
advocate for LGS by educating publics and fundraising in creative ways.
○ Two-way communication is highly encouraged. We care about our patients, their
families, our doctors, and our donors, so we must remain in touch with these
groups to show our compassion.
○ All LGSF social media content will be monitored through the Executive Director,
Christina SanInocencia until a PR coordinator or social media manager joins the
LGSF team. All inquiries about our social media should be directed toward her as
well. If there is ever a published mistake, either on our website or social media,
we will ensure to alert all publics through new social media posts in the form of
correction boxes. Additionally, all erroneous information will be corrected.

● Personal Use
○ The LGS Foundation’s social media accounts are strictly maintained for business
purposes. LGSF staff members are encouraged to manage their own social
media accounts to post personal content. At the same time, all personal social
media accounts belonging to LGSF staff members must be appropriate, and
must serve as efficient reflections of the character embodied by the LGS
Foundation.

● Business Use
○ The data collected on social media platforms will be monitored through Google
Analytics, meaning there will be a constant record of user statistics. This
information will remain private, unless it becomes relevant to the kind of content
we produce. All social media content will be measured in hopes to understand
what works for our publics and what they want to see from us.

● Acceptable Use
○ The LGSF social media accounts should be used to educate about LGS,
spotlight patients (with their consent), advertise for events, and create donor
campaigns. Our goal is to educate about LGS and increase funds, but through
campaigns, rather than sales pitches. Our hope is to incentivize donations by
partnering with other companies who value giving back to the community.

● Legal Concerns
 ○ LGSF and its publics should be aware of the Family and Medical Leave Act
(FMLA), which required covered employers to provide employees with job-
protected leave for qualified medical and family reasons. Parents of LGS patients
should understand their rights, and know that LGSF is there for support during
their leave. As our goal is to help improve the lives of these patients, we need to
ensure that they have present support systems.

● Content Creators
○ Anyone at the LGS Foundation can create social media content, but it will be
monitored before posting. Any social media post should apply to the organization
as a whole, and this should be taken into account before posting any content.
During a time of crisis, the Executive Director will be the only LGSF staff member
with access to the organization’s social media, as these are high-risk times with a
lot at stake. During these times, the LGS Foundation will be held accountable for
disclosing the situation and remaining transparent about the issue at hand.

● Regulatory
○ Posts must be approved by Executive Director Christina SanInocencio. The LGS
Foundation’s social media accounts can be accessed by any LGSF staff
members; however, they can only post with the consent of Christina. She will
also answer any questions about access and content creation.

Please note that this social media policy is in place for the general welfare of the LGS
Foundation, its constituents, and its publics. We aim for greatness in all aspects of our brand,
and we must ensure that our social media reflects that. Please email
christina@lgsfoundation.org with any inquiries.