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Main Concerns:
- She has so many needs, takes a lot of people to meet them
- OT, PT, Music therapy
- Not a lot of time to develop cognitive (School is short)
- Wants to give extra opportunities to allow Amy to learn and grow
Routine:
7:00- Turn off the overnight pump for extra fluids, Start daily medicine (seizure)
(Does not have a regular sleep pattern… if she is awake, start getting her dressed,
change diaper etc.)
8:30- Breakfast- G-tube (Doesn’t have to be awake for this)- usually laying down
11:15-20- bus picks her up- Get her ready, in wheelchair, get on bus.
- Para rides with Amy and tells mom how school went (new para starting Mon 22)
- Medicine and lunch at school
2:30- Returns home on bus
After school- 5:00 Therapy (2 hrs. OT 2 hrs. PT 45min PT (30 min each at school)
-MWTH (TH- aqua therapy T- activity days F- music therapy (in home))
Nurse comes in (TWTHF nights)- feeds Amy, chest percussions, breathing activities, getting
ready for bed, nightly medicines (7:30).
9:00-10:00- Start bedtime routing (10:00 Melatonin)- Different time asleep every night.
10:30- last feeding
12:00- last medicine
12:30 Turn on nightly fluid pump
- If she knows the routine, she will be more alert. Make the routines familiar. 3 rd time
should understand more.
- “Amy’s brain is like a floppy disk, she is on for one thing and off for another”
- The more engaging and interactive the nurses are, the more she will respond to them
- Longer possessing time than usual “Do you want more” “Raise your hand if you want
more” touch hand then say, “Raise your hand if you want more.
- If you have a familiar thing you do every time she sees you, she will know you
Goals:
- Make activities fun and exciting- socialization