Learning Disability Partnership Board

Wednesday 13 December 2017, 11am – 3pm

Papworth Village Hall, Ermine St (South)
Papworth Everard CB23 3UY
Minutes

1.0 People at the

meeting
Neil Adams Speak Out Leader,
Young People, Co-Chair
Claire Bailey Service Manager, LDP
North & Fenland, Locality
Lead
Debbie Drew Carer Representative

Cllr Adela Costello County Councillor

Tracy Gurney Head of LD Partnership,

LDPB Co-Chair
Russell Henke Speak Out Council Leader,
High Support Needs
Committee
Elspeth Jones Speak Out Spectrum
Leader

Fen House, Fen Road, Cambridge, CB4 1UN

Tel: 0300 111 2301 Email:admin@cambridgeshirealliance.org.uk
Registered Charity No. 1132290 Company limited by guarantee No 06861653
Bill Jones Speak Out Leader,
City & South
Graham Lewis Development Officer, CAIL

Siobhan MacBean 0-25 Service, CCC

Michelle Mansfield Speak Out Leader,

Fenland
Sean Nightingale Speak Out Council Leader,
Hunts and East Cambs.
Amanda Roach Access to Resources, CCC

Joseph Simon Carer Representative

DCI Neil Sloan Cambridgeshire Police

Chris Swarbrick Speak Out Council

Coordinator, VoiceAbility
Lorna Weston Thera

1. Welcome, introductions and apologies

People who said they could not come: Jill Johnson,
Amrita Grewal, Mark Hill
2.0 Speak Out Leaders Reports
2.1 General Michelle said the Speak Out Council didn’t
happen due to venue booking issues. For general news
see the PPT.

2.2 City and South

 Bill did 6 drop ins
 There are 2 new Safe Places: Addenbrookes and
the Owl Centre
Questions and Answers

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  Tracey asked Speak Out leaders about
consultations in the area.
 Neil has a consultation at Cambridge Regional
College about staying safe in the home.
 Michelle gave feedback from the meeting in
March about staying safe.
 Chris talks about responses on staying safe in the
home for service users, especially in First Aid
training. This is especially important for younger
people and their safety.
 Debbie talked about the need for First Aid training
for service users and carers
 Debbie offered to collect service users’ questions
and answers on stranger danger.
 Chris will do the same
 Debbie reminded the Board about the ABC team
at Dhiverse on internet safety
 Siobhan offered to distribute questions about
stranger danger
 Chris – care homes are heavily reliant on support
workers. There is not a “What If” plan

3.0 Carers Feedback

3.1 The Sexual Assault Referral Centre (SARC) was
not a good service. It has learned from the recent case.
3.2 Fairer Contributions consultation
 Debbie talked about DLA and return of payments
with regard to the Financial Contributions
assessment. It is a 15 page policy and it is hard to
access the survey.
 Joseph said the consultation closes on 23

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 February. It is unclear and unfair as people on
ESA are exempt
 Debbie said there had been a £27 increase in
care. There has been £140 reduction in income
per month for DLA. People needing respite pay
£122. In the long term the carer has to give up
respite due to cost. In-house care will be charged.
There is a decrease in accessible funds. You
have to pay someone £12.50 per week to manage
money.
 Siobhan – 1 April this will be put into practice. She
is following the consultation
 Tracy – the results of the consultation go to the
Adults Committee
 Debbie is worried about this
 Heather talks about the impact of the changes not
being obvious. Can Healthwatch do something to
make the information clear and accessible?
 GL – an Easy Read version would improve
accessibility
 Cllr Costello will take it back to the Council
 Siobhan asked how people find out about the
consultation
 GL – the first consultation is today. The letters
have gone out
 Heather spoke as a parent carer not as a
Healthwatch representative. She said she had not
had a letter. The Council knows she manages her
daughter’s money
 Debbie – the Huntingdon meeting is on 31
January
 Elspeth hasn’t received a letter either but has only

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 recently been told she has to make a contribution
Action: Tracy will feedback to Graham

Break
4.0 Safeguarding
Michelle said there are people going to houses in the
Fens pretending to be from Purple Bricks Estate Agent.
Purple Bricks knows about this. She is concerned for
vulnerable people.

5.0 Locality updates

5.1 Total Transport project in East Cambs. Claire
asked the Board if they wanted someone to come and
talk about this.
Action: Graham will invite a speaker on Total
Transport project

5.2 FACT/ HACT – Claire has some concerns. There

are some problems about money. The Council is
working with both charities to sort this out.
Elspeth – is Dial-a-Ride involved too?
Clair – the contract is being reviewed.
Neil - do the drivers have badges? Are they provided?
Michelle – we have asked about that before and will
ask again.

5.3 Trading Standards and cold calling. Claire said it is

time to look at this again.

5.4 Huntingdon LD Partnership is still looking to employ

more people. The difficulty in the Fens regarding
transport is that people quit.

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Claire explained there are 2 Localities 1/Fenland and
Huntingdon; 2/ Cambridge, East Cambs and South
Cambs.
Fenland has had its first Provider Forum with Charlotte
Querin.
There is a pilot called Neighbourhood Cares. This
follows on from the Transforming Lives work.
6.0 Police, DCI Neil Sloan
Debbie – what can be done to improve the process for
reporting sexual offences?
Michelle – and hate crime?
Joseph – also autistic related hate crime

DCI Neil asked which part of the process Debbie was

talking about. Partnership and police structures will be
used to raise the complaint.
Debbie – the SARC unit is failing. There was a 20 hour
delay in collecting evidence.
DCI Neil – collecting evidence is very important. There
is an increase in reporting of sexual offences. There is
a clear process. The police have to have difficult
conversations about asking people not to shower and
to keep the clothing worn at the time of the assault.

Debbie – can more than person be seen at a time at

the SARC unit?
DCI Neil said he would have to check this.

Claire- there is a safeguarding process which should

have been followed. There was a huge delay in seeing
the victim who has a learning disability. The delay
meant that the parents couldn’t speak to the victim

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about what had happened so as not to affect the
evidence or statements. The case was dealt with by the
adult MASH. The safeguarding issue was closed as it
took so long.
DCI Neil says he can’t comment without seeing the
case file.
Tracy - some people with a learning disability have
difficulty remembering things. There is an issue with
this delay. Can reasonable adjustment be made? Can
we do things to help the process?
DCI Neil – there is a need to understand and assess
needs and identify support. There is also a need to look
at the information presented.
Michelle said the police don’t take people with learning
disabilities who report a crime seriously.
DCI Neil was shocked. The constabulary used to run a
hate crime forum. This could be talked about at that
meeting.
Action: Follow this up

Chris – when people have reported incidence they

have been told it is a civil matter and not a crime.
Claire – is training and support received and can we
help to influence it?
Debbie asked DCI Neil if he had had any training on
learning disabilities.
He said as he was not a frontline constable he had not
had training.
Debbie talked about using an intermediary. There are
only 12 – 15 intermediaries in the country. Why don’t
we use local resources?
DCI Neil – this is because of the need for training and

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accreditation. Accreditation is needed to stand up in
court. It needs to be a credible piece of evidence which
means the evidence had to be collected in the right
way.
Chris and Siobhan ask to attend training.
DCI Neil – can ask for this.
Action: Chris will follow up about attending training.

Neil A – giving evidence in court is scary.

DCI Neil – special things can be done to help like using
a screen so that the accused can’t be seen.
Claire – as soon as an event is reported there are
safeguarding steps that can be taken.
Lunch Break

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7.0 ‘Safe and Secure’- long term planning, Lorna
Weston, Thera
 Lorna introduced the book called “Safe and
Secure”. It has been written by carers and parents
with lived experience. It is also comes in Easy
Read format.
 More launch events can be done
 Lorna talked about Circles of Support
Action: The Board will talk about this in future.

Neil said he was worried about his parents’ wellbeing.

His parents cared for him and he wants to do the same.
Heather – there will be a Pinpoint conference on1
February and Lorna will be there.
Siobhan has leaflets about the conference
Action: GL will tell Sally that Thera would like to go to
the Carers Partnership Board.

8.0 Good News

 Bill has passed his theory test. Congratulations!
 Michelle said Speak Out Council feedback has
been positive.
9.0 Feedback from other meetings
 Graham – Adult Social Care Forum wants
consultations on Fairer Contributions. CAIL will
promote
 Independent board members of all the Partnership
Boards have said they want to talk together about
common issues. Graham and Sally are working
on it.
 Next Wheelchair Users Forum (WUF) Graham

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 said no date yet. WUF will be formalised. The
CCG has asked Provide to attend the last WUF
but they did not. Wheelchair users told the CCG
they were very keen to take part in the tender
process. This starts in April 2018.
Siobhan – who leads on this at the CCG?
Heather – this is the problem. Sandy Smith will meet
the CCG and raise the wheelchair issue.
Graham – various issues about Provide were raised at
the ASCF. Helen Duncan was made aware as delays
can isolate a person and lead to a need for more social
care. It is like ‘Robs Peter to give to Paul’.
 Heather – the NHS has developed an Accessible
Information Standard. Healthwatch is looking at
how this is working.
 Terms of Reference (ToRs): This is the Board’s
governing document and it is in Easy Read. It
must be reviewed by June 2018. Amanda and
Graham have organised a task and finish group
on 18 January, 10am – 12pm at CAIL’s office. All
are welcome. It is about what works and what
actually happens at the Board. There will be
feedback at the next meeting.
Action: Graham will organise transport for Michelle.
Claire also wants to be involved.
Break

10.0 Health Sub Group update

 Michelle – we need professionals in the relevant
areas to attend so they can answer questions.
Action: Amanda and Tracy will discuss this

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  Amanda – tenders have gone out for residential
support living frameworks. This does not affect
current tenders. Potential providers answer
questions online and new contracts start in May.
Michelle – there is supposed to be no change for
service users.
Amanda – there is no change for service users.
Elspeth – is there a phone number? Not everyone (on
the spectrum) likes phone calls.
There is support for people on this.

 Michelle speaks about Mark Hall and

Transforming Care. She feels this is the only thing
being dealt with.
Claire supports this, feels the subgroup needs to be
broader.
Amanda asks them to make expectations clearer and
give a wider view.
Michelle – no one from CCG attends so what is the
point of the group?
Graham agrees. CCG attendance is important. What is
health and what is social is a big thing and not so
separate.
Claire agrees on the ToRs. Perhaps for all subgroups
there should just be one.
Chris said the High Support Needs group is part of
Speak Out Council.
Heather echoes Graham’s statement and said it goes
much wider than the CCG issue.
Michelle – the date is set and then it changes.
Tracy – have the ToR changed?
Michelle – not changed and it was agreed the subgroup
continue.

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Tracy asked to attend the subgroup. She asked about
healthchecks.
Michelle – these are part of LDPB subgroup.
Claire – there is NHS guidance on involving patients in
the process.
Action: encourage Mark Hall to come to task and finish
group.
Action: Tracy will follow this up.

11.0 Minutes, Action Log and Matters Arising

P9 of minutes to read Dew not Dukes
Minutes agreed

Action Log

No 44 close; new action log item about Terms of

Reference for the locality networks

No 47 close; Joseph noted that the length of meetings

(4 hours) made it difficult for parents to attend.

No 51 close

No 53 first draft by March 2018

No 58 close

No 59 close

No 60 close

No 61 Claire Bailey to send Graham a contact name

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No 62 Graham to find out what happened

No 63 close; new action log item to invite speaker on

‘end of life’

No 64 for a future meeting

No 65 for a future meeting

No 66 Debbie to email Chris at Voiceability

No 67 change from Mark Hall to member of the LDP

12.0 Any other business

 Lorna Weston - Feedback from Circle of Support
Scotland
 Tracy and Cllr Costello on consultation of financial
situation
Next meetings:
21 March 2018, 11am – 3pm Orchard Park
Community Centre, Central Ave, Orchard Park,
Cambridge CB4 2EZ

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