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Journal of Psychiatric and Mental Health Nursing, 2010, 17, 335–341

Patients’ perceptions of patient education on


psychiatric inpatient wards: a qualitative study jpm_1530 335..341

H . H Ä T Ö N E N 1 r n m n s c , R . S U H O N E N 2 r n p h d , H . WA R R O 3 r n m n s c ,
A. PITKÄNEN4 rn mnsc & M. VÄLIMÄKI5 rn phd
1
Doctoral student, University of Turku, Department of Nursing Science/Municipality of Imatra, Hospital District
of South Carelia, 2Professor (acting), 3Ward manager, University of Turku, Department of Nursing Science,
4
Doctoral student, University of Turku, Department of Nursing Science/Pirkanmaa Hospital District, and
5
Professor, University of Turku, Department of Nursing Science/Hospital District of South-West Finland,
Turku, Finland

Keywords: patient education, Accessible summary


psychiatric hospital, qualitative
study • A number of patient education programmes have been developed and implemented
in psychiatric nursing care to support patients’ information receiving. There is still
Correspondence:
a lack of knowledge about how patients themselves perceive patient education
H. Hätönen
programmes when they have been used on psychiatric inpatient wards.
University of Turku
Department of Nursing Science • In this study, patients with schizophrenia or related disorders described how they
Municipality of Imatra perceived IT-based patient education, conventional patient education with leaflets or
Hospital District of South Carelia patient education according to standard care during their hospital stay. In addition,
Sinivuokonkatu 10 areas for improvement were identified.
55100 Imatra • Patients’ perceptions of patient education varied depending on which patient
Finland education group they had participated in.
E-mail: heli.hatonen@utu.fi • Structured and systematically conducted patient education programmes on psychi-
Accepted for publication: 9 November atric wards were reportedly useful. However, no simple educational method suits
2009 every patient and therefore a combination of different education methods should be
used to meet patients’ individual needs. Moreover, nurse–patient interaction is still
doi: 10.1111/j.1365-2850.2009.01530.x
an essential element of patient education whatever educational methods are used.

Abstract

This study describes patients’ perceptions of different types of patient education


interventions and areas where patient education should be improved on psychiatric
wards. Thematic interviews were conducted with 16 patients who had completed the
information technology (IT)-based patient education, conventional patient education
with leaflets or patient education according to ward standards during their hospital
stay. Data were analysed using inductive content analysis. Patients’ perceptions of
patient education varied depending on which patient education group they had par-
ticipated in. Patients participating in IT-based or conventional patient education per-
ceived education as a systematic and planned process. However, especially patients
in the patient education group applying ward standard education perceived patient
education as occasional information dissemination situations. To improve patient
education, patients suggested that it should be based on their individual needs and
offered with different methods systematically to all patients. The results indicate that
patients find structured and systematic patient education programmes useful. Different
educational methods should be used, not forgetting interaction between patient and
nurse, which was reportedly as an essential element of patient education.

© 2010 Blackwell Publishing 335


H. Hätönen et al.

study (RCT) with 311 patients randomly allocated to one


Introduction
of the three groups: (1) IT-based patient education; (2)
Schizophrenia is characterized by impaired ability to cope conventional patient education using standard leaflets; and
in daily life (Rossler et al. 2005). Together with medical (3) standard care. In the IT-based patient education group
treatment, patient education in addition to other psy- and conventional patient education group, five sessions
chosocial interventions is an essential method to support with staff were organized. In both groups, the sessions
patients’ capacity to manage their illness (Pekkala & Mer- focused on specific themes such as mental illness, treat-
inder 2002, Zygmunt et al. 2002). However, patients with ment, well-being, support and patients’ rights (Välimäki
schizophrenia in particular are dissatisfied with informa- et al. 2008).
tion provided during their treatment (Alexius et al. 2000, No patient education intervention itself is likely to
Ascher-Svanum et al. 2001). achieve positive outcomes if the education does not
A number of explanations have been proposed for respond to patients’ individual needs (Bodenheimer et al.
patients’ dissatisfaction with information provided. It has 2002). The key question that remains to be answered is
been assumed that the information offered by staff does not how patients themselves perceive the patient education
take account of patients’ individual needs (Feldmann et al. methods used on psychiatric wards. The aim of this quali-
2002, Sung et al. 2004). Moreover, there is a gap in the tative study to be reported here was to describe patients’
evidence supporting the benefits of tailored information for perceptions of different educational interventions and to
people with psychotic illness, because cognitive deficits due identify areas where patient education should be improved.
to schizophrenia and psychopharmaceutical medication
may impair patients’ capacity to receive and process new
information (Medalia & Lim 2004). In addition, various Method
other factors such as lack of insight (Aleman et al. 2006),
A descriptive qualitative approach was used to explore
motivation (Hill & Laugharne 2006) and support from
patients’ individual perceptions of what patient education
family members (Pharoah et al. 2006) have affected
contributes to patients (Clarke 2001, Grypdonck 2006).
patients’ information reception.
Qualitative research methods are appropriate when explor-
In general, patients desire information through diverse
ing social phenomena as perceived by individuals them-
methods together with discussions with staff (Proudfoot
selves (Malterud 2001).
et al. 2003). Patients themselves appreciate information on
illness and care in written format (Jorm et al. 2003).
However, written information alone with no chance to ask
Setting and sample
questions may confuse patients with cognitive deficits
(Strydom & Hall 2001). Thus, personal communication The data were collected at two psychiatric hospitals (nine
between patient and staff seems to be an important element study wards) in Southern Finland. The study population of
of patient education (Crowe et al. 2001). this qualitative study consisted of patients who had com-
More recently, patient education interventions using pleted the RCT study described above and its intervention
information technology (IT) have been used in mental (IT-based patient education, conventional patient educa-
health care (Lewis 2003) and patients have found them tion or standard care) while in hospital. Because the study
useful and convenient (Zabinski et al. 2004). IT-based sample consisted of patients from the RCT study, they
interventions offer patients self-paced learning, shorter- fulfilled the following inclusion criteria: age 18–65 years,
time involvement and more concise information com- able to speak Finnish and competent to give written
pared with face-to-face interventions (Jones et al. 2001, informed consent to participate in the study. All patients
Chou et al. 2004). They may also help compensate for had schizophrenia, schizotypal disorders or delusional dis-
cognitive deficits and enhance communication between orders (International Classification of Diseases – 10 criteria
patients and professionals (Bellucci et al. 2003, Ahmed & F20–29; WHO 1992).
Boisvert 2006). On the other hand, some patients have Convenience sampling was used to recruit patients dis-
reported deficiencies related to the individuality and cred- charged from psychiatric hospital during the middle period
ibility of information received by computer (Jones et al. of the RCT study (between August 2006 and January
2001). 2007). All eligible patients (n = 32) were systematically
This qualitative study is one part of a large research invited to participate in the study during data collection
project intended to generate information on IT use in period. They were contacted by letter and telephone and
mental health care. In this project, we implemented patient invited to participate in the interview about 3 months after
education programmes in a randomized controlled trial the patient education interventions.

336 © 2010 Blackwell Publishing


Patients’ perceptions of patient education

patient’s descriptions concerning ‘interaction’ were found


Patients interviewed
in the data set, a sentence or part of a sentence was coded
Out of the 32 eligible patients, seven were not reached and with a description of the thematic content characterizing
nine refused to participate in the study. Thus, 16 individu- the sentence. Subcategories were developed for these coded
als were willing to share their perceptions of patient edu- phrases by grouping together those with similar connota-
cation. Six patients had participated in IT-based patient tions. The set of main categories was established by group-
education, six in conventional patient education and four ing together subcategories with similar meaning (Silverman
in standard care. The patients interviewed were 11 men 2001). The analysis was carried out by the first author.
and 5 women, in the age range from 20 to 64 years (mean
35.7, SD 11.92). Half of the patients were on pension. The
duration of disorders varied between 1 month and 32 years Ethical considerations
(mean 12.3, SD 9.26).
The study procedure was evaluated by the local hospital
district’s ethics committee. Permission to conduct the study
Data collection was obtained from the organization’s directors. Written
The interviews were carried out by one researcher. Patients informed consent was obtained from each participant.
were interviewed at psychiatric outpatient clinics or public They received oral and written information about the
libraries. The individual interviews were conducted using purpose of the study and their rights as participants. It was
an open-ended thematic interview guide piloted with two emphasized that participation in the study was voluntary
interviews and not changed thereafter. The main themes and refusal would not affect their care. To ensure partici-
discussed were: (1) patients’ description of how education pants’ anonymity, the data were treated in confidence by
sessions were conducted and (2) suggestions for improving changing all identification data into numerical form during
patient education on the psychiatric ward. Each theme was the analysis (ETENE 2001, Declaration of Helsinki 2004).
followed up in the dialogue between patient and inter-
viewer (Silverman 2001). Interviews were tape-recorded
with patients’ permission. The duration of the interviews Findings
ranged between 8 and 29 min.
The key elements of patient education

Analysis The analysis of patients’ perceptions of patient education


formed five key elements identifying patient education:
The data were analysed in two phases using inductive (1) procedure; (2) interaction; (3) educational method; (4)
qualitative content analysis (Denzin & Lincoln 2000). In environment; and (5) benefits.
the first phase, the aim was to explore how patients Procedure for patient education described the structure
described patient education. The transcribed interviews and content of how patient education was conducted on
were read through to get a general picture of the material as psychiatric wards. Interaction of patient education was
a whole. Primary observations from the whole data set described through perceptions of communication and the
were then coded. Where the primary observations shared nurse–patient relationship. Educational method included
the same properties they were allocated to the same cat- descriptions of using educational methods as a part of
egory (Silverman 2001). This served to reveal the following patient education and possible additional support for
five key elements describing patient education identified receiving information. Environment was described in terms
from the data: (1) procedure; (2) interaction; (3) educa- of physical environment possibly affecting patients’ infor-
tional method; (4) environment; and (5) benefits. These mation receiving. Further, benefits described patients’ per-
elements were used as a framework for second analysis ceptions of the advantages of the patient education for
phase. everyday coping with their illness.
In the second analysis phase, the aim was to describe
patients’ perceptions in different educational groups (IT-
based patient education, conventional patient education,
Patients’ perceptions of patient education methods
standard care) and to explore patients’ suggestions for
improvements in patient education. The analysis was per- The five key elements of patient education were used as a
formed separately for each patient education group to framework to describe patients’ perceptions of IT-based
examine how each of the five key elements of patient patient education, conventional patient education and
education was described in the data. For example, when a patient education according to the standard care.

© 2010 Blackwell Publishing 337


H. Hätönen et al.

IT-based patient education Yes there was it [patient education] sometimes. I do not
The procedure for IT-based patient education was remember details right now.
described by patients in terms of systematic patient educa- Some patients reported that they did not receive any
tion sessions. This meant that the timing and content of information at all.
patient education were planned in advance and it was a The nurse–patient interaction reportedly lacked discus-
step-by-step process as stated in following quotation: sions on patients’ situation. Some patients reported that the
We had a schedule and in each session a specific topic interaction lacked appropriate respect and individuality.
was discussed. They felt that their information receiving was not sup-
The nurse–patient interaction was described in terms of ported with any educational method and the patients did
individual discussions when the content of patient educa- not mention if the environment had any effect on how they
tion was integrated into the patient’s life situation through received information. Considering the benefits of patient
cooperative discussions. By contrast, interaction was education, patients reported that the information received
described as mechanical information dissemination when was mainly meaningless to them.
it was perceived as delivery of information from nurse to
patient rather than a process responding to patients’ needs.
Suggestions for the further development of
The use of a computer was perceived to give additional
patient education
support to patients’ information receiving, but some
patients were concerned if the use of computer affected the The key elements of patient education were used as a
confidentiality. Patients described an environment that was framework to describe patients’ suggestions for improving
peaceful and suitable for the purpose as supportive for IT-based patient education, conventional patient education
information receiving while an environment with interrup- and patient education according to the standard care.
tions and disturbances was perceived to hinder patients’
information receiving. Considering the benefits of patient IT-based patient education
education, some patients thought that the focus was on Patients’ suggestions related to the development of pro-
patients’ independent coping with illness. However, some cedure were described in terms of individual planning
patients considered the information received to be impor- and more extensive content of patient education. Patients
tant, but useless for everyday coping. reported that their individual situation should be consid-
ered in planning patient education as described in the fol-
Conventional patient education
lowing quotation:
Patients who participated in the conventional patient
In what situation someone is, it is important. If someone
education described the procedure of patient education
is very tired or something, there should be a change to
in terms of planned patient education sessions with the
rest before those sessions.
content based on leaflets as described by one patient:
More extensive content meant including more examples
We had several sessions where we had certain time to go
of patients descriptions in the content.
through those leaflets.
To develop the educational method, patients suggested
The nurse–patient interaction was described by some
that the options of IT should be utilized more widely. This
patients as helpful. This meant open and confidential dis-
meant using more pictures, voice clips and interactive tasks
cussions. By contrast, some patients in this group reported
in the portal. Environment for patient education should be
that interaction was rather passive, a one-way informing
peaceful and undisturbed. Moreover, having computers on
situation. The use of the leaflets was perceived to give
the ward was suggested to support patients’ independent
additional support to patients’ information receiving.
information seeking. No suggestions on interaction or
Patients reported that it was useful to recap information
benefits were mentioned by patients in this group.
received independently from leaflets. The patients did not
mention any effect of the environment on receiving infor-
Conventional patient education
mation. Regarding the benefits of patient education, some
Regarding procedure, patients’ suggestions included
patients thought that the information received was useful
involving patients in planning, recapping of content and
for their independent coping with illness, while some
detailed information. Patients reported that involving them
patients reported that the information seemed rather super-
in the planning of the patient education integrates this into
ficial to them.
their life situations.
Standard care Nurses should actively offer this [patient education] and
The procedure of patient education was described as occa- ask if the patient is ready for it. Then it is easier to
sional informing sessions as one patient put it: participate and think about those different topics.

338 © 2010 Blackwell Publishing


Patients’ perceptions of patient education

Patients perceived it as useful that the content of the the impact of organizational factors, professional values
previous patient education session should be recapped at and skills on successful patient education (Deccache &
the beginning of the new session, and requested more Aujoulat 2001).
detailed information. In order to support patients to receive information in
Patients noted that interaction could be improved by psychiatric care, guidelines have been developed to enhance
creating active interaction through open communication the integration of patient education into treatment (NICE
and clearing up issues about which patients may be con- 2002, APA 2004, Duodecim 2008). However, the use of
cerned. They suggested that different educational materials standardized treatment procedures has emerged as a
should be used to support their information receiving. No concern about the loss of individuality (Miller & Kearney
suggestions for improving the environment and benefits 2004), which may put patients in a passive role. This is an
were made. important aspect in psychiatric care, where patients often
have problems in actively participating in their own treat-
Standard care ment (Hill & Laugharne 2006). In this study, patients
Patients’ suggestions for improving patient education pro- perceived interaction to be passive if information was
cedure were described in terms of systematic individual delivered to them through one-way mechanical sessions. As
practices. The patients were of the opinion that patient other studies have shown, interaction between patient and
education should be offered systematically to all patients nurse is an essential element of patient education (Crowe
taking into account their individual situation. Development et al. 2001, Pollock et al. 2004). Building a unique, thera-
of interaction included descriptions of individual interac- peutic and trusting relationship with each patient is crucial
tion. Patients considered that nurses should be active in in nursing (McQueen 2000). Therefore, staff’s skills in
creating respectful communication based on patients’ indi- providing systematic patient education through patient-
vidual situations. centred communication demands attention (Maguire &
To develop educational methods, patients wanted to Pitcheathly 2002).
receive information from different sources such as leaflets In this study, patients mentioned a need to use different
and the Internet as stated by one patient: patient education methods to support their information
And more different leaflets and new technology could receiving. This has already been found to be an effective
be used. (Murray et al. 2005, Haynes et al. 2008) and accepted
Patients also wanted to receive information from differ- method among patients (Jorm et al. 2003, Chou et al.
ent professionals and from other patients to get different 2004). IT especially as a part of patient education is quite
viewpoints. Patients in this group did not provide sugges- new in the field of psychiatric care (Lewis 2003). In good
tions for development of environment and benefits. hands the use of IT may shift the role of the patient from
that of a passive recipient to that of an active consumer of
health information. Therefore, it is important that health
Discussion
professionals are ready for this transformation and have
Patients’ perceptions of the patient education intervention the skills to guide patients to use the health information
varied depending on whether they had participated in available on the Internet safely (Mc Mullan 2006).
IT-based patient education, conventional patient educa- Regarding the limitations of this study, the number of
tion or standard care. Earlier studies have also shown that patients who refused to participate in this study was high
patients’ experiences of patient education vary (Feldmann (50%). Thus, the patient selection may have been biased
et al. 2002). In the present study, patients participating in that less motivated and incompetent patients were
in IT-based or conventional patient education perceived excluded from the study. Participants were also younger
education as a systematic and planned process. However, than patients in psychiatric hospitals in general (National
especially patients in the patient education group applying Research and Development Centre for Welfare and Health
standard care perceived patient education as occasional 2008) and age-related computer literacy might contribute
information dissemination situations. These results may be to the successful realization of IT-based patient education
signs of psychiatric illness and poor insight (Zygmunt et al. (Or & Karsh 2009). These results might therefore give too
2002). On the other hand, our study showed that patients positive impression of patient education methods used in
with similar psychiatric illness in the same patient educa- this study. Additionally, the length of the interviews varied
tion group perceived patient education differently. We may a lot, potentially affecting the quality and depth of data.
therefore assume that there are aspects, other than the Patients with schizophrenia may also have severe manifes-
illness itself, affecting patients’ perceptions of patient edu- tations of psychiatric illness affecting their responses in the
cation. This is also supported by literature mentioning interviews. However, to ensure the quality of the data, the

© 2010 Blackwell Publishing 339


H. Hätönen et al.

interviews were carried out by one research assistant with Bodenheimer T., Lorig K., Holman H., et al. (2002) Patient self-
extensive experience in psychiatric nursing and trained in management of chronic disease in primary care. The Journal of
the American Medical Association 288, 2469–2475.
data collection. The analysis was carried out by the first
Chou M.H., Lin M.F., Hsu M.C., et al. (2004) Exploring the
author, which may affect the results because of an emphasis self-learning experiences of patients with depression participat-
on the researchers’ own perceptions. To overcome this, the ing in a multimedia education program. Journal of Nursing
results were read by all members of the research group and Research 12, 297–306.
analysis was corroborated with quotations from the origi- Clarke A. (2001) Evaluation research in nursing and health care.
nal data. Because of these limitations, the findings remain Nurse Researcher 8, 4–14.
Crowe M., O’Malley J. & Gordon S. (2001) Meeting the needs of
tentative. Despite the limitations, the results still provide
consumers in the community: a working partnership in mental
valuable knowledge about the elements and the variations health in New Zealand. Journal of Advanced Nursing 35,
in patients’ perceptions of patient education carried out on 88–96.
psychiatric wards. Deccache A. & Aujoulat I. (2001) A European perspective:
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Conclusions Declaration of Helsinki (2004) Ethical principles for medical
research involving human subjects. Available at: http://
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useful. Different educational methods should be used not Research. SAGE Publications, London.
ETENE (2001) Shared values in health care, common goals and
forgetting interaction between patient and nurse, which
principles. ETENE – publications 3. Available at: http://
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tion. However, one educational method alone may not be 2009).
sufficient for every patient and therefore different educa- Feldmann R., Hornung W.P., Prein B., et al. (2002) Timing of
tion methods should be used according to patients’ indi- psychoeducational psychotherapeutic interventions in schizo-
vidual needs. phrenic patients. European Archives of Psychiatry and Clinical
Neuroscience 252, 115–119.
Grypdonck M.H.F. (2006) Qualitative health research in the era
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