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MAGAZINE

Fall 2015

California
Passes
Death With
Dignity!

Support Grows
to End Unwanted
Medical Treatment

PLUS
Our 2015
Annual
Report

Labor Leader &


Civil Rights Activist

Dolores
Huerta
Answers Our Five Questions
contents Fall 2015
Vol. 14 / No. 3

FEATURES
06 Golden Victory
VICTORY!
California passes an aid-in-dying law, our biggest win yet!

End of Life Option 08 One Activist’s Story


Act Becomes Law
Compassion & Choices of Washington’s Robb Miller
in California! builds a legacy.

06
Make yours a
12 Living Every Minute
A dying doctor realizes the harm in fearing death.

31 2015 Annual Report

DOUBLE
Together we made truly incredible progress over the
past twelve months.

24 08
DEPARTMENTS

02 Inside View

03 Words & Pictures


Announcing an extraordinary opportunity for
Compassion & Choices and supporters like you! 04 Keeping Count 12
A generous donor has offered to match your contribution 05 Words to Live (and Die) By
dollar for dollar. Double your impact on the movement for
choice and care at the end of life by giving today. Use the 11 Rx for Peace at Life’s End
Compassion & Choices is the nation’s oldest and largest
envelope in the center of this magazine or donate online by
14 Five Questions for Dolores Huerta nonprofit organization working to improve care and expand
December 31 at CompassionAndChoices.org/double. choice at the end of life. We:
17 National Programs Update Support patients and families
Educate the public and professionals
Advocate across the nation
24 Advocacy in Action
Advancing death with dignity since 1980. Learn more at
CompassionAndChoices.org.
30 State Spotlight: New York
inside view words & pictures
MAGAZINE

Miles to Go Chief Editor


Sonja Aliesch

Art Director
“After [Brittany] Maynard’s death in November, “Ten years ago, [Terri] Schiavo—a severely brain-
Bhavna Kumar
Every fall I reflect on the year lawmakers in more than 20 states and the District damaged Florida woman—became a national symbol
soon to end. And often I’ve President — backed by advocates Compassion & Choices … for how not to die in America,” wrote Time Magazine
Barbara Coombs Lee
taken pride in the steady introduced end-of-life legislation,” wrote The Wash- in March.
accumulation of Compassion Chief External Affairs Officer ington Post in its first editorial endorsing such laws,
Nick Simmonds “Jeb Bush … signed ‘Terri’s Law’ in 2003 to reinsert
& Choices’ victories and ad- published June 23. The endorsement mentioned
her feeding tube after courts had ordered it taken out.”
vances. But 2015 was really Senior National Director of three leading advocates who have worked with C&C:
something else. Communications & Marketing Brittany Maynard, her mother, Debbie Ziegler, and “‘There was a spike in national interest in written
Gwen Fitzgerald NPR radio talk show host Diane Rehm. advance directives,’” noted Compassion & Choices
Momentum, begun last October Contributors President Barbara Coombs Lee. “’… that was the
“Death-with-dignity laws need to be carefully
with Brittany Maynard’s advo- Jane Sanders Jeanne Duncan first time people realized how intrusive government
Sean Crowley Katie Wingo thought out, written and monitored. Oregon and the
cacy, grew steadily throughout Anne Singer Beth Davidson could actually be.’”
states that followed its example show that such care
the year. Allies like you joined our movement by the thousands, and
Advertising, Rights & Permission
is possible. We hope the rest of the nation catches
together we pushed on, higher and harder than ever before. The
CompassionAndChoices.org up with this humane option for life’s end.”
heights of visibility and progress we’ve attained — including passing
Magazine@CompassionAndChoices.org
a death-with-dignity law in California — would have astounded us
National office:
just a few years ago. 1001 Connecticut Avenue, NW, Suite 522
Washington, D.C. 20036

On top of the momentous win in California, more states introduced The Economist published both a cover story about
Postmaster
aid-in-dying legislation than ever before. More media voices featured Send address changes to: Compassion & Choices medical aid in dying and an editorial endorsing
our stories and backed our mission. Ideas demonized as “death PO Box 101810, Denver, CO 80250 Popular online news journal Daily Kos praised Com- the option in June, saying it’s “an idea whose time
Bulk postage paid at Denver, CO,
panels” a few years ago gained real traction. More Americans joined and additional mailing offices.
passion & Choices’ website in August – specifically has come.”
forces to empower people in ownership of their end-of-life pathways. In the normal course of business, Compassion
our new End-of-Life Information Center.
The story quotes Barbara Coombs Lee on death-
& Choices regularly exchanges mailing lists with
other like-minded organizations. If you would “They cover much of the information that anyone with-dignity laws: “We are finally reaching a point
In this issue of Compassion & Choices Magazine, we share just how like to have your name removed from these where we not only have data to back up that this law
needs to know, and it’s well worth at least reading
remarkable 2015 has been. We also spell out some strategies to exchanges, please notify us in writing, including
your name and address. We will honor your wish through,” the piece states after itemizing the many works, but we have decades of experience with a
build on this tremendous momentum. Because just as our greatest upon receipt of your request. state that allows aid in dying.”
resources available for download through the Center.
successes have come through years of determined steps, through
Photo/Illustration Credits
stalls and setbacks, those ahead will require the same steady,
cover, p. 14-15: J. Emilio Flores
tenacious pace. p. 2, 23: Owen Carey
MEDIA
p. 6-7, 19, 24-25, 32: Cindy Hegger
I thank you for all you have done to bring the end-of-life choice p. 8-9: courtesy of Robb Miller
p. 12: James O’Brien Watch Brittany Maynard Commemorative Video at:
movement this far ­— such a heroic distance! Even more, I’m p. 16: Harvey Richards Media Archive / TheBrittanyFund.org
enormously grateful to have you with us for the climb ahead. © Paul Richards
p. 17, 18, 22, 34: Zoeica Images C&C’s campaign with Brittany
p. 20: Sandy Huffaker (top) Maynard started with a video that
p. 24: courtesy of Brittany Maynard
You can check out the best Compassion went viral in October 2014. C&C
p. 27: Trenton Photographers (top) commemorated the anniversary
p. 27: Richard Greene (bottom) & Choices news clips of 2015 here:
with a new video featuring never-
Barbara Coombs Lee p. 32: © Harpo, Inc. / George Burns (bottom) CompassionAndChoices.org/newsclips before-seen footage of Brittany as
PA, FNP, JD, President p. 33: courtesy of Rep. Dan Zwonitzer
p. 35: Jennifer Bishop
well as a series of events across the
country urging legislative action on
IBC: Leo Howard Lubow; lubowphotography.com death-with-dignity bills.

2 COMPASSION & CHOICES MAGAZINE / FALL 2015 CompassionAndChoices.org 3


keeping count words to live (and die) by

One GIANT
Tireless effort at every level of the organization and Whether you are running for office, trying to change consumer behavior
your dedicated activism made 2015 a year of exceptional or working to get new laws passed, you need a campaign to succeed.

Year for C&C


growth for Compassion & Choices and the end-of-life Here are three tested communications tactics campaigners live by …
choice movement. Look what we’ve done together!

VIRAL VIDEO:
The # of people our More than

400,000
More than 100,000 hours of video are uploaded to YouTube
End-of-Life Consulation every day, but a viral video is one so powerful, people
program served sharing it via e-mail and social media make it exponentially

doubled
popular, earning it millions of views in a short time.
new supporters
 Brittany Maynard’s October 6, 2014, video was
joined our movement viewed three million times in its first three days.

EXCLUSIVE:
A mutually beneficial arrangement in which an important
news outlet gets first rights to publish valuable information
or a “scoop” provided by a person or group, and agrees to
coordinate the publication time so the person or group can
strategically plan for it. Other news outlets can cover the
story subsequently.
 C&C gave People Magazine online the exclusive on
Brittany’s story and first video.

Over the states We achieved a


in the nation considered
death-with-dignity legislation 500%
jump in news
MICROSITE:
Individual webpages or a small collection of pages that
media coverage deliver a single, uncluttered message and can also be more
easily found through search engines because of their narrow
focus. Microsites usually link to a main or parent website.
 TheBrittanyFund.org is the microsite C&C launched
on October 6 for journalists, new supporters and
volunteers to visit and learn about this amazing
young woman.
4 COMPASSION & CHOICES MAGAZINE / FALL 2015 CompassionAndChoices.org 5
Read Governor Brown’s contemplative signing statement, noting the “heartfelt pleas”
of Brittany Maynard and Archbishop Desmond Tutu, at bit.ly/GovBrownDWD.

We trained 1,060 volunteers, made 1,329 legislative have the choice of aid in dying as one of their end-
visits and held 465 events. I’ve worked on many of-life options,” she said. “No more worrying that
campaigns, and I’d never seen anything like this.” they will suffer great physical and emotional pain at
the end of their life, when they have already suffered
Another game-changer: the powerful California painfully for so long.”
Medical Association (CMA) — which had for decades
opposed death-with-dignity bills — adopting a neutral Dan Diaz, Brittany Maynard’s widower, added, “My wife
position. During the special session, C&C staffers was an extraordinarily loving individual who tried to

GOLDEN VICTORY
worked with the CMA to modify the bill to include make a difference for the rest of us, even while she was
safeguards sufficient to deter potential opponents battling persistent pain and discomfort at the end of
in the bill’s final language. her life. Working with the talented staff and volunteers
at Compassion & Choices, Brittany was able to spread
Compassion & Choices’ Biggest Win in Two Decades At the heart of this effort were the 122 storytellers her message and help get this vital piece of legisla-
C&C staff identified and supported. The stories they tion into law. I feel an immense pride in Brittany and
told made death with dignity about people, not C&C for what we were able to accomplish this year.”
process. They met with legislators and reporters, and
In a historic moment for terminally ill adults and their and legitimate medical practice in California within rallied support for the End of Life Option Act, self-
loved ones in the Golden State — and a hard-fought five years. Thanks to a savvy, multi-pronged effort lessly giving energy, passion and time — of which many
victory for Compassion & Choices activists and sup- fueled by generous C&C supporters, we achieved had precious little left — to amplify the campaign’s
porters — California Governor Jerry Brown signed that goal in just 24 months. cry: California can’t wait.
the End of Life Option Act into law on October 5.
C&C’s experienced strategists were prepared to wage One storyteller not just amplified but personified that
The California Senate and Assembly approved this this campaign on several fronts: in the legislature, in theme, to our collective grief. Jennifer Glass, battling
landmark statute, which authorizes adults with six municipal chambers and courtrooms, and potentially advanced lung cancer, was one of the movement’s
months or less to live to request a doctor’s prescrip- on the 2016 ballot. But as we pursued that varied most spirited advocates — testifying in Sacramento,
tion for life-ending medication, on bi-partisan votes. It strategy, the world’s unequivocal embrace of California producing motivational videos, blogging, writing
was authored by Assemblymember Susan Talamantes native Brittany Maynard in the fall of 2014 motivated op-eds and more. Heartbreakingly, Jennifer passed
Eggman and coauthored by Senate Majority Leader legislators to move more quickly. away in August, just one week before our redoubled
Christy O’Donnell with her daughter, Bailey, in front of a California state
Bill Monning and Senate Majority Whip Lois Wolk. push to pass the End of Life Option Act during the symbol, the grizzly bear, at the Capitol building
“The minute Brittany’s story broke, legislators began special session.
“We applaud Governor Brown for listening to his calling us,” said Compassion & Choices California
constituents — 75 percent of whom support this Political Director Charmaine Manansala. “This complex While this incredible victory heralds a more humane
law — and giving terminally ill Californians the right issue now had a face. People understood that no day for terminally ill Californians, our fight is far from
to die peacefully and painlessly,” said Compassion one should have to uproot herself from her home, over. C&C will be prepared to defend the law in
& Choices President Barbara Coombs Lee. “Today’s especially when dying.” court or at the ballot. We’ll also work with physicians
indisputable triumph truly honors Brittany Maynard, to fully integrate aid in dying into California’s medical
Jennifer Glass, and every storyteller and supporter C&C has long tried to pass aid-in-dying legislation in system to ensure that aid in dying becomes what the
who made this issue so urgent and personal to California. So why did we succeed this time, during law intends: open and accessible.
people across America.” a high-stakes special session, no less? Organization
and communication, said Manansala. “This time, Christy O’Donnell, a 47-year-old single mom from
This stunning achievement — the biggest since C&C had the resources to really push this campaign, Santa Clarita dying from cancer and one of C&C’s The late Jennifer Glass speaks out in support of the End of Life Option
Oregon’s Death With Dignity Act was approved by from the grasstops to the grassroots. We had an most vocal advocates, celebrated this remarkable Act. Pictured from left to right: Sen. Majority Whip Lois Wolk, Sen. Dr.
voters in 1994 — emanated from C&C’s public 2013 on-the-ground California communications team Ed Hernandez, Dan Diaz (obscured), Sen. Majority Leader Bill Monning,
moment. “I’m overjoyed for all the terminally ill in Assemblymember Christina Garcia, Jennifer Glass, Debbie Ziegler,
pledge to make aid in dying an open, accessible talking to voters, physicians, legislators and media. California who can now relax knowing they finally Dr. Robert Olvera and Assemblymember Susan Talamantes Eggman

6 COMPASSION & CHOICES MAGAZINE / FALL 2015 CompassionAndChoices.org 7


ONE
ACTIVIST’S . . . Robb Miller builds a legacy would die at home and to help him die when he
could no longer walk. Randy was receiving hospice

STORY Few have done more to build the movement for end-of-life
choice than Robb Miller, who stepped down as executive
director of Compassion & Choices of Washington in April,
care, but it could not manage his extreme pain.
“I asked his hospice provider how we could honor
Randy’s wish and shorten the dying process. They
one month after the 15th anniversary of his joining us. were completely unhelpful. ‘Sorry, that isn’t what we
do,’ they said.”

In 1996, after Randy’s death, Robb began his own


An admired and beloved leader, “We were a small nonprofit called I was diagnosed with HIV, which end-of-life planning in order to avoid the needless
Robb helped turn C&C of Wash- Compassion in Dying when Robb in 1994 was a terminal diagnosis.” suffering his partner had endured. That’s when he
ington into the third-largest choice- joined us, and his arrival began to learned about Compassion & Choices. Here was an
in-dying organization in the country. lay the foundation for our move- His story parallels the early organization that could have eased Randy’s pain at
His legacy includes passage of ment’s professional evolution and death-with-dignity movement in the end of life — yet his caregivers had withheld
Initiative 1000 in 2008, which explosive growth,” says Compas- Washington, which emerged from information about it.
made Washington the second sion & Choices President Barbara the movement to improve care for
state to authorize aid in dying. Coombs Lee. “Many times Robb’s people with AIDS. “The number Hospice “made a conscious choice to deny us
keen mind, clear voice and impec- of people who were dying from information that could have reduced or eliminated
Robb with his partner, Randy
cable integrity have guided us. AIDS and the manner in which Randy’s immeasurable suffering,” he says. “This
He is a steady, bright light illumi- they were dying — alone, some of made me very angry. I have always carried that
nating the path to human dignity them violently, at their own hands anger and desire for justice for Randy and
at life’s end.” — compelled a few compassionate others who died in ways that were
activists to provide counseling abhorrent to them.”
Robb was drawn to the cause and presence at the time of
through personal experience. death,” Robb says. “I was living Robb became a client of
“In 1994, we found out that my that experience.” C&C of Washington’s
partner, Randy, was dying from End-of-Life Consultation
complications related to AIDS,” As his illness progressed, Randy Service; but as he
Robb says. “Shortly after that, asked Robb to promise that he planned for his death,

Robb Miller
Executive Director
of C&C Washington
2000 - 2015
8 COMPASSION & CHOICES MAGAZINE / FALL 2015
The doctors in our movement
are heroes. Their courage
“If I did anything as executive director, and altruism help make
it was to carve a place at the table for end-of-life options possible.
C&C among the organizations seeking to
improve end-of-life care in Washington.”
– Robb Miller

he also began to take a new kind of medication. By the time voters approved Initiative 1000 in 2008,
Robb’s health started to improve dramatically. Don Robb had turned C&C of Washington into a power-
Cook, Robb’s case manager and one of the founders house of advocacy and political change. The campaign
of Compassion in Dying, suggested he be classified was a high point in a career of highs. “It felt like
as inactive. “That was a good day,” Robb recalls. justice for me, for Randy, for all those people who Dr. Jeannie Juster

for
“Like graduating. It doesn’t happen often.”But that had to die miserably, violently or alone,” he says.
was just the beginning of Robb’s relationship with “It is my belief that passage of this law changed the Dr. Jeannie Juster, an emergency room physician for 33

PEACE
Compassion & Choices. He continued to follow and paradigm of end-of-life care in Washington.”
years, recently signed on as a medical director for Compassion
support the organization, and in 2000, applied for
the job of executive director of C&C of Washington. Robb could take a lot of credit for that — but he & Choices Oregon. A windsurfer and outdoors enthusiast,
is quick to deflect praise. Instead, he points to the at Life’s End she’s been a supporter of C&C since its founding.
“Nothing in my background indicated that I would courage of those who started Compassion in Dying.
go in this direction,” he says. A classically trained “I am a direct beneficiary of the pioneers who went


P
trumpet player, Robb held a degree in music perfor- out on a limb for people like me,” he says.
atient autonomy has always been a major part interventions (see story on page 17). Procedures
mance and theory. After playing with orchestras, he
of my outlook. Philosophically it’s an issue were reimbursed, but talking wasn’t. Now there will
changed careers, earned a degree in kinesiology and Last year, Robb and his current partner got married.
that I felt was very important even in medical be more of a balance.
became an athletic director. “All these wonderful things have happened since
school; it was my generation of new doctors that
I should have died,” he says. “If not for C&C, I am
really started thinking about it. Medicine has since Even young people have to ask themselves what
But Randy’s death — and that of Robb’s father, who pretty sure I wouldn’t still be here, and I know I
veered away from being a very patriarchal type of they would want. It’s so hard to visualize oneself in
died of cancer in 1995 — ignited in Robb a burning wouldn’t feel that my life has had the meaning that
enterprise with the physician telling the patient what major decline, but eventually we’re all going to face
desire for change. This, plus sharp administrative skills it’s had. I am one of the very few people who can
was best for him. Now patients can really engage as it. You don’t have to dwell on your own mortality,
and more than his fair share of personal charisma, say if I died tomorrow, I would die fulfilled.” n
equals with their physician, talking about what they but it’s a comfort to have the dialogue and have it
made Robb the ideal leader for a group poised to
want and how together they can effect that. It’s been out in the open so no one is blindsided.”
break into the mainstream. Honor Robb Miller’s legacy by completing your
a massive transformation.
own advance directive and, if you become seriously
When Robb was hired, C&C of Washington was little ill, a POLST. Visit CompassionAndChoices.org/
But it’s not perfect yet, and part of it is generational.
more than a one-person shop. information to find a variety of end-of-life
Some people still expect their physician to tell them
planning tools.
what is best for them instead of starting a dialogue PASS IT ON!



But things began to change with Robb at the helm.
about what, ideally, they want and what’s possible
Over the next few years, Robb pushed to make Spread the word about the end-of-life choice
at what cost. And physicians are restricted time-wise
end-of-life care a priority for healthcare providers. movement by giving this issue to friends,
In September 2015, C&C Washington changed because there’s so much emphasis on productivity,
He was an early advocate of Washington’s adoption co-workers or your doctor. Request more at
its name to End of Life Washington and now and it takes a long time to have these conversations.
of the Physician Orders for Life Sustaining Treatment operates independently of C&C. Going forward, info@CompassionAndChoices.org
So I’m really pleased at the emphasis Medicare has
(POLST) and promoted widespread use of advance Compassion & Choices and End of Life Washington
placed on reimbursing physicians for having these
directives. Robb formed alliances with other health- are committed to fostering a strong, collaborative
important discussions because medicine had gotten
care organizations that would make C&C of Washington relationship around our shared goals.
a little bit away from making time for communicative
a leader in the community.

10 COMPASSION & CHOICES MAGAZINE / FALL 2015 CompassionAndChoices.org 11


As I sat in my hospital bed following my second round Professionally, I understand in a deeper way that
of intensive consolidation chemo and seven days of death is not a medical event. It is a central life cycle
neutropenic fever, the infectious disease (ID) attend- event that we will all successfully complete, no
ing shared that I likely had a viral infection that my matter how much medical care we get or don’t get,
returning white count should take care of. However, or how healthfully we live or don’t live our lives.
there was a small chance I had PCP pneumonia, and Death is a process to be lived not a problem to be
if that was the case, then without treatment I would solved. Yet literally every clinician Annalu and I have
die. The best way to be certain I didn’t have the interacted with is more afraid of death than we are;
lethal PCP pneumonia was to have a bronchoscopy. they focus on solving the problems of our illness with
He then asked me, “What do you want to do?” I little awareness of how we want to live our lives. It is
smiled to myself as I considered his question. First, a paradox. The clinician is focusing on “treating” the
I was in no shape to decide much of anything given illness that threatens life, but the “life” of the person
how muddled my mind was by both sickness and who is ill is invisible. It is critical for clinicians to embrace
grief. But the answer arose from within my inner self. death as a normal part of life, so they can accompany
“I don’t want to do anything that would make me and guide the patients and families they serve
feel worse. I feel a bit better now than when I came through the sacred process of living until death.
into the hospital. I want to wait and see if I continue
to improve. There is a very small chance I have PCP As I gaze into mortality, love sits in the center of my
pneumonia and a very large chance I have a virus consciousness. Love is the inspiration that creates my

Living Every Minute


that will get better. If I’m wrong, I am at peace with courage to move forward as a caregiver to my wife,
the consequences, including death.” Much to my a patient receiving care, a father accepting support
surprise the ID attending said, “That is the same from my children, and a human simultaneously living
choice I would make.” and inevitably dying in the miracle of this world.

by Stuart Farber, MD I was dumbfounded. Every word he shared led me As I sit with my medical caregivers, I see fear of
Department of Family Medicine, University of Washington, Seattle to think he wanted to do a bronchoscopy. I am con- failure at the center of their consciousness, with death
vinced that almost every patient who participated in being the ultimate defeat. These professionals actively,
On Halloween 2013, I went to the emergency room The fundamental lesson I have learned as a profes- the same discussion would opt for a bronchoscopy. albeit unconsciously, convey that living longer is
with chest pain and shortness of breath. Thus began sional patient is that clinicians and patients/families How can this be? It is craziness. Yet it is repeatedly always preferable to dying, but they fail to appreciate
our odyssey with acute myelogenous leukemia (AML). inhabit two entirely different worlds. Unfortunately, our experience. How to integrate these two worlds that the most important act is to support living in
I say ‘‘our’’ because this journey has emphasized how the medical world is the one that holds dominion. into one shared world is the critical challenge. harmony with a narrative thread. It is another of the
I live within a network of relationships that includes The surging currents of medicine sweep everyone many paradoxes that I live within. I leave my insights
self, family, community and colleagues. Much to my down a river rushing toward life-prolonging treat- So what have I learned from my new friend Leukemia? as a legacy for others to reflect upon and use as they
surprise, I chose to undergo eight months of aggres- ment as inevitably as the tides follow the moon. The Personally, I always knew that I was going to die. I just see fit for the benefit of themselves and all those
sive chemotherapy and at the time was in ‘‘cytologic fallacy that I am an autonomous individual who can didn’t believe it. Now I get it to my core. Knowing they touch.
remission.’’ and should make treatment decisions based on the I am mortal is a sacred knowledge that makes each
medical facts provided by my clinicians continues to moment an awesome gift filled with opportunity for Editors’ Note: Dr. Farber died peacefully at home with hospice
Four months into our journey, Annalu, my wife and confront Annalu and me at every medical crisis point. love, joy, and peace. It has transformed how I live on February 27, 2015. Getting this article published was an
important part of his legacy work, and it contributed greatly to
caregiver, also was diagnosed with AML. She chose Discussions focus on treatments to prolong life and my life. If I know I am mortal, then what is important? his meaning and purpose knowing that he may not live to see
to undergo the same aggressive chemotherapy. make invisible the very life we are living. This medical Sharing love and joy within my relationships: with it in print. He will be missed by all.
No surprise to us, physical suffering is the foundation model protects clinicians from having to make tough myself, my wife, my family, my grandchildren, my
of the worst but medicalization of our lives is a decisions and having to engage with their patients friends, my colleagues, and the community in this This is an edited version of an article that originally appeared in
close second. and families on an intensely personal level. very moment we are living. Journal of Pain and Symptom Management Vol. 49 No. 4, Apr.‘15.

12 COMPASSION & CHOICES MAGAZINE / FALL 2015 CompassionAndChoices.org 13


Five Questions for
Dolores Huerta
Legendary labor leader and activist Dolores Huerta has fought
for civil rights most of her life. From launching the National Farm
Workers Association with César Chávez in 1962 to creating the
Dolores Huerta Foundation in 2002, she continues, at 85, to
tenaciously advocate for social justice. Most recently, she joined
Compassion & Choices’ efforts to pass California’s aid-in-dying law.

Q: You have a phenomenal background in


human rights activism, persisting through
difficult, even dangerous, situations. Why
are you willing to take on such tough work?

Dolores Huerta celebrating her


85th birthday at La Plaza de
Cultura y Artes in Los Angeles
A: Because of the need. I first saw the great
necessity due to the poverty and discrimina-
tion some people suffered. Then once I
learned how to organize, I knew that the
way they could overcome it was by coming
together, by organizing, by finding the power
in their own person to start challenging the
issues they had to live with — empowering
them to advocate for themselves.

14 COMPASSION & CHOICES MAGAZINE / FALL 2015 CompassionAndChoices.org 15


National Programs Update
Q: Can the average person create significant
change?
Praise for New Bipartisan Legislation to
A: Absolutely. Everybody needs to be engaged Prevent Unwanted Medical Treatment
and informed about what’s going on in the
world, especially about laws that are being Below are excerpts from a widely pub- and space to do so thoughtfully, before a crisis and
passed. But it’s not just about passing laws lished op-ed written by Daniel Wilson, when the patient can advocate for herself.
that are helpful to people. It’s also important outgoing director of federal programs
to elect candidates to our city councils, at Compassion & Choices The Care Planning Act will go a long way toward
school boards, state legislatures and U.S. ensuring that once a Medicare recipient has deter-
Congress who are really going to help the Roughly 25 million Americans have been subjected mined and documented their treatment preferences,
people and are not just there for their own to unwanted medical treatment at some point in those preferences go with them. It brings in the
Dolores Huerta holds a sign that says “Strike” in Spanish at the beginning opportunistic gain. We have to vote for their lives, and that means we have a healthcare patient’s family members, friends, religious figures and
of the Delano, Calif., grape strike in 1965
people who work for the common good. system that is not listening to patients. We all say their health care team to create a larger community
we believe in more patient-centered healthcare, and of individuals who will understand and support the

Q: Q:
now we have a bill in the U.S. Congress that would choices the patient makes. It even allows for training
Social issues move slowly, and the obsta- Does the end-of-life choice movement put our money where our mouths are. Literally. of people in the patient’s inner circle of family and
cles can be discouraging. Did you ever parallel any of the other issues on which caregivers in how to help implement their plan when
want to quit? you’ve worked? the time comes.

A: A:
Senators Mark Warner (D-VA) and Johnny Isakson
Not really. There were times it became It’s probably most similar to rights for women (R-GA) have introduced legislation that would make
sure Medicare recipients and their doctors know how We are so proud to support the Care Planning Act
difficult. But when you do this kind of work and reproductive rights. People have to
much or how little treatment those patients would of 2015, alongside a growing list of organizations
you always have setbacks, so it’s just know- understand it’s a personal choice. We should
want as they approach the end of life. The Care Plan- including the American Academy of Family Physicians
ing that if you have a setback you can’t quit, have the right to make these decisions for
ning Act of 2015 would specifically create a Medicare and the American Geriatrics Society. It gets us closer
because if you quit, you lose. You have to ourselves, and other people shouldn’t interfere.
benefit for people facing grave illness to work with to the patient-centered care everyone supports, and
keep organizing until you achieve your goals. There’s a quote by a great Mexican president with its bipartisan sponsorship, there is every reason
Setbacks only make you stronger, because their doctor to define, articulate and document their
named Benito Juárez. He said, “Respect for it to pass and give Americans more power in our
you’re not going to make the same mistakes. personal goals for treatment. Doctors will be rewarded
for the rights of others means peace.” This healthcare system.
And you need to have hope, faith in your- with reimbursement for helping patients make very
is another issue that fits into the realm of
self, faith in the people that you’re working important end-of-life decisions when there is time
human rights. People should be able to
with and faith in the cause that you’re decide what they want at the end of life.
working on. If they are in pain and are going to die The Campaign to End Unwanted Medical Treatment, of
anyway, they should be able to make any which C&C is a collaborator, hosted a Capitol Hill briefing

Q:
choice they want. where Sen. Mark Warner (D-VA) discussed The Care Planning
For decades you’ve devoted yourself Act of 2015, which he introduced with Sen. Johnny Isakson
to important causes. When do you plan (R-GA). Warner is known for working across the aisle and
called his bipartisan bill the kind of “common ground”
to retire?

A:
solution that can pass Congress. It is smart legislation that
I don’t intend to! As long as I have the involves a broad range of health providers in helping seriously
energy and the health to keep on working, ill patients determine and document their treatment goals.
I’m going to continue.

16 COMPASSION & CHOICES MAGAZINE / FALL 2015 CompassionAndChoices.org 17


national programs update

Campaign to End Unwanted Medical Treatment In the Courts


Names Amy Berman Honorary Spokesperson Compassion & Choices’ legal advocacy is one of the strat-
egies used to authorize aid in dying across America and
she helps advance the conversation and the fight to
ensure patients receive the care they want — nothing
ensure availability of a full range of end-of-life options.
less, nothing more.
California
The Campaign also released a compendium of C&C filed a lawsuit (O’Donnell v. Harris) on behalf of three Californians
policy briefs reflecting some of the best thinking on with terminal or advanced diseases and a physician. On July 24, a San
healthcare at the end of life, written by policy experts Diego County Superior Court judge dismissed the case, which asserts
at the National Academy of Social Insurance. The the California constitution and existing state law allow terminally ill
first paper updates readers on the legislative and adults the option of medical aid in dying. An appeal is underway.
regulatory environment in which the Campaign to Terminally ill lead plaintiff Christy O’Donnell spoke to reporters after
End UMT seeks to effect policy changes. The second the judge’s decision, issued on her 47th birthday, saying, “This is not
paper covers the presentation made at the Campaign’s the outcome I had prayed for, but as a lawyer, I am confident the appeals
inaugural lunch briefing by Dr. Bernard “Bud” court will see our case in a different light.”
Amy Berman, keynote speaker at the End UMT campaign’s
April luncheon in Washington, D.C. Hammes, who directs the pioneering, successful
and effective advance care planning programs across New Mexico
the Gundersen Health System in La Crosse, Wis. On August 11, a New Mexico appeals court reversed a 2014 district
Plaintiffs Elizabeth Wallner and Christy
The Campaign to End Unwanted Medical Treatment There are also papers describing Campaign lunch court ruling that aid in dying is a “fundamental liberty interest” under O’Donnell after the California court hearing

(UMT) welcomes its first honorary spokesperson, briefings by former Obama Administration health the New Mexico Constitution. While the decision is disappointing, the
Amy Berman. As keynote speaker at the End UMT policy expert Chris Dawe on hospice usage, and by ruling was fractured ­— with three judges writing three different opinions.
campaign’s April luncheon, Berman awed the audi- Charles Sabatino of the American Bar Association’s The New Mexico Supreme Court will hear the case on October 26,
ence describing how she empow- 2015. C&C is committed to continuing a vibrant community presence
ered herself to make informed The reason I’m doing so well is because my until terminally ill New Mexicans and their loved ones have the comfort
and reassurance of legally authorized aid in dying. Our physician
healthcare decisions that allow her
to actively live her life ­— a vibrant
decisions are being honored, and I am not outreach and public education initiatives continue during the appeal.
life — with stage IV cancer. Her receiving care that would not help me.
nursing background helps her Tennessee
make care choices, but she cites quality of life as her Commission on Law and Aging discussing the trend C&C is providing litigation support in a suit filed in Davidson County
“true north,” choosing the options that will help her toward consumer-directed advance planning. Chancery Court on behalf of John Jay Hooker, a two-time gubernatorial
“live until I can’t.” She feels healthy and strong, works, nominee who has terminal metastatic cancer, and three physicians
and travels. The next scheduled lunch briefing features U.S. who want to provide the option of medical aid in dying to terminally
Senator Mark Warner of Virginia, co-sponsor of the ill adults. The suit urged the judge to declare that the state constitution
“The reason I’m doing so well is because my deci- Care Planning Act of 2015. The Campaign is ramping and existing state law allow medical aid in dying. The case was dismissed
on September 29, 2015, and counsel is reviewing options for an appeal. John Jay Hooker and Kevin Díaz at the
sions are being honored, and I am not receiving care up its efforts in Washington, finding growing support Tennesse courthouse
that would not help me,” Berman said. The Campaign in the federal health policy community and on
to End UMT is honored to partner with Berman as Capitol Hill. Follow its progress at EndUMT.org. Learn more about our legal initiatives by visiting
CompassionAndChoices.org/courts

>> To watch Amy’s presentation, visit EndUMT.org.

18 COMPASSION & CHOICES MAGAZINE / FALL 2015 CompassionAndChoices.org 19


national programs update

Doctors for Dignity Take Legal Action C&C Seeks to Strengthen Medicare Proposal to
Dr. Lynette Cederquist, a practicing physician in Pay Doctors for End-of-Life Care Conversations
La Jolla, Calif., is taking her expertise to court to
improve end-of-life options in California. In May, When the Centers for Medicare and Medicaid Services their treatment options, recognize the need to plan
Compassion & Choices filed a lawsuit on behalf of (CMS) asked for public comments on its proposal to ahead for the care they choose, avoid unwanted
Dr. Cederquist and three Californians with terminal or make doctor-patient conversations about advance medical treatment and better ensure their end-of-life
advanced diseases that would protect physicians who care planning a separate, reimbursable service under healthcare wishes are carried out if they are unable
honor a patient’s request for medical aid in dying. Medicare, C&C offered two key recommendations to speak for themselves.” The CMS policy changes
to improve the plan. First, the initial conversation would take effect in 2016.
“As a physician who has spent the last 20 years with a patient regarding their treatment preferences
caring for terminally ill patients, I’ve seen many cases should take place during the standard “Welcome to In the legislative arena, reimbursement is also central
where suffering was unnecessarily prolonged that Medicare” visit so these conversations can happen to the Care Planning Act of 2015, sponsored by U.S.
could have been alleviated if people had more options before diagnosis of a terminal illness. Second, CMS Senators Mark Warner (D-VA) and Johnny Isakson
at the end of their lives,” she said. Dr. Cederquist should give physicians the flexibility and autonomy (R-GA), which Compassion & Choices supports. This
was named “Top Doctor” by the San Diego County to engage in additional conversations as needed: at bipartisan bill would create a Medicare benefit for
Medical Society six of the last nine years. She is Lynette Cederquist, MD
least once a year as part of a patient’s annual medical people facing grave illness to work with their doctor
board certified in internal medicine with additional review, and more often if necessary given each indi- to define, articulate and document their personal
board certification in hospice and palliative medicine. vidual patient’s unique disease diagnosis, prognosis goals for treatment.
She has been a member of the San Diego County Interested in becoming a doctor for dignity? and trajectory.
Medical Society since 2006. Learn more at CompassionAndChoices.org/doctors. You can send a letter urging your member
In submitting these suggestions, Compassion & of Congress to pass the Care Planning Act of
Choices Chief Program Officer Kim Callinan wrote: 2015 by visiting CompassionAndChoices.org/
“These conversations can help patients understand careplanningact.

C&C Hosts White House Conference on Aging Watch Party


The former White House the issues facing older Americans for the next decade,
Welcome, Sarah Brownstein! medical symposiums and other large forums. Sarah
comes to C&C with extensive legislative knowledge,
correspondent for Gannett including caring for older loved ones. having most recently worked as a policy analyst and
Compassion & Choices is delighted to introduce
News Service, Deborah legislative aide to a Texas state senator. Sarah joined
our new national volunteer manager, Sarah Brown-
Mathis, spoke at a Compas- In that spirit, the Obama administration launched C&C for several reasons: “Professionally, I have
stein. This summer, our dedicated volunteer base
sion & Choices watch party Aging.gov to help older Americans and their families, always prioritized work that has a broad and positive
reached a staggering number, surpassing 3,000
in Washington, D.C., during friends, and caregivers find local services and resources impact. Personally, I have aging parents, one of whom
volunteers nationwide. From advocating for pending
the July White House Con- in their communities, such as long-term care. has multiple sclerosis and lives in a state where there
bills to speaking with community members about
ference on Aging hosted are no legal protections for aid in dying. Her situation
Deborah Mathis end-of-life issues, volunteers fuel Compassion &
by President Obama. Aging.gov complements Compassion & Choices’ puts this issue in perspective, and gives an urgency
Choices’ success.
End-of-Life Information Center (CompassionAnd- and timeliness to the work.”
This year marks the 50th anniversary of Medicare, Choices.org/information). This one-stop locale for
Sarah will recruit, train and deploy volunteers for
Medicaid and the Older Americans Act, and the advance healthcare planning, end-of-life information It’s easy and rewarding to become a volunteer:
Compassion & Choices. She will also build C&C’s
80th anniversary of Social Security. The conference and forms features our Good-to-Go Toolkit and the email volunteer@CompassionAndChoices.org or
National Speakers Bureau, a new initiative to increase
recognized the importance of these programs and dementia provision, which are exclusive to C&C. call us at 800.247.7421.
our outreach and impact at national conferences,

20 COMPASSION & CHOICES MAGAZINE / FALL 2015 CompassionAndChoices.org 21


national programs update

C&C Hires Three Senior Staffers Crucial Planning Made Easy


Compassion & Choices has successfully recruited three Compassion & Choices is pleased to share the newest
talented senior staff members to help the organization addition to CompassionAndChoices.org … our
meet its rapidly expanding agenda of end-of-life issues. End-of-Life Information Center! It’s your one-stop
advance healthcare planning resource. You will find
extensive material to share your end-of-life priorities
Nicholas Simmonds, previously She works collaboratively with the
with your physician and family, including our Good-
CEO/president of Providence organizational management team
to-Go Guide and Toolkit, downloadable state-by-state
Health Foundation, signed on to develop the vision, set the
advance directives, dementia provision, advocacy
as chief external affairs officer. strategic program priorities, and
materials, and more.
direct the design and manage-
He oversees all development, ment of all C&C programming.
Visit and explore this valuable resource today
marketing and communications That includes overseeing 1) the
at CompassionAndChoices.org/information.
from C&C’s Washington, D.C., development of C&C’s federal
As always, you can also request information by
office. Simmonds is a former policy agenda and C&C’s involve-
calling 800.247.7421.
president of the Washington, ment in the Campaign to End
D.C., Metro Chapter of Associa- Unwanted Medical Treatment, 2)
tion of Fundraising Professionals C&C’s political and field teams,
(AFP), was named its Outstanding 3) the strategic direction of C&C’s
Fundraising Professional in 2007 innovative legal advocacy and 4)
and led a program that won the the End of Life Resource Center.
Campbell & Company AFP Award
for Excellence in Fundraising “I look forward to leveraging
in 2001. C&C’s powerful network of more Remembering a Gentle Hero
than 500,000 supporters with the
“I want to help Compassion & ultimate goal of implementing Compassion & Choices honors the noble life and
Choices expand its reach and policies to ensure that patients benevolent work of EOLC consultant Mark Ferguson.
engage new audiences to match get the medical care that they top to bottom: Nick Simmonds, Mark died of cancer on August 21, 2015, peacefully
the demand for autonomy at the want at the end of their life ­— Kim Callinan, Corrine A. Carey
at home with his husband, Fred Beal, their four dogs,
end of life,” said Simmonds. nothing more and nothing less,” his brother Don and a hospice nurse by his side.
said Callinan. “The forthright support our consultants give dying
Kimberly Callinan, most recently death with dignity in Albany. State people and their loved ones forms the roots from
general manager and senior vice Corinne A. Carey, former assis- Senators Diane Savino (IDC), Brad which all our other work grows. Principles of human
president of health communica- tant legislative director for the Hoylman (D) and John Bonacic dignity, self-determination and nonabandonment
tions and programming at IQ New York Civil Liberties Union, (R), and Assemblymembers Amy rise from these roots to spread through every part
Solutions, where she managed a was hired as C&C’s New York Paulin (D) and Linda Rosenthal (D) of C&C. Mark’s work fed the trunk, branches and
125-person team that worked state campaign director. She will have all introduced bills this year. leaves of our own giving tree,” said President Barbara
across the Department of Health lead the organization’s advocacy Coombs Lee. “He did this daily, quietly, without
and Human Services, and a former campaign for death-with-dignity “As we connect with voters, ad- fanfare or angst.”
executive director of the Maryland legislation in the state. vocates and legislators, I’m con-
Democratic Party is C&C’s new chief fident that New York will become Mark’s brave and compassionate spirit lives on in his
program officer, also in C&C’s Her hiring coincides with unprec- the next state to authorize death colleagues, C&C volunteers and all who are devoted
D.C. office. edented bipartisan progress on with dignity,” said Carey. to easing the suffering of others.

22 COMPASSION & CHOICES MAGAZINE / FALL 2015


Advocacy in Action
How Brittany Maynard Changed the Landscape:
Death-With-Dignity Bills Spread Across the States C&C California Political Director Charmaine Mansala
takes her turn beside other citizens voicing support
“Brittany’s Momma,” Debbie Ziegler, speaking at a California press conference for death with dignity in Sacramento

above: The now-iconic image of Brittany


Maynard from 2013, before her cancer
diagnosis

right: Brittany’s widower, Dan Diaz,


testifying in the California legislature

It is impossible to talk about the transformative To mark the one-year anniversary of her first video, time she had remaining, she would work to enact A YEAR AGO THIS OCTOBER …
campaign that 29-year-old Brittany Maynard C&C issued a new video on October 6 with footage death-with-dignity laws across the country.
C&C’s campaign with Brittany Maynard started with a
launched without first talking about the rare privilege of Brittany Maynard the public had not yet seen.
video that went viral in October 2014. C&C commemo-
it was to know her. No one at Compassion & Choices There is also a series of face-to-face events for Brittany always said she could never have made it to
rated the anniversary with a new video featuring
will ever be the same, inspired as they were by activists to lobby lawmakers for state-level aid in Oregon without the love and support of her husband,
never-before-seen footage of Brittany and a series
Brittany’s wisdom and generosity. C&C’s campaigns dying laws and local resolutions supporting them. Dan Diaz, and mother, Debbie Ziegler. Before she
of events across the country urging legislative action
to pass death-with-dignity laws will never be the Supporters are also writing letters-to-the-editor and died, she asked them to continue her campaign
on death-with-dignity bills. Watch Brittany Maynard’s
same, either. On what would have been Brittany’s sharing with their online networks about Brittany — and they have. Dan, Debbie and other family
commemorative video at TheBrittanyFund.org
30th birthday, November 19, 2014, C&C issued its and her family’s unyielding commitment to make members focused their efforts on legislation in
nationwide call to make aid in dying available to death with dignity an option in every state. California. Both appeared alongside the lawmakers
residents of every state. One year later, the progress introducing California’s End of Life Option Act at
is astounding: aid-in-dying legislation passed in After being diagnosed with terminal brain cancer and Sacramento press conferences. Both testified, spoke the second state, after Vermont, to originate, debate
California and has been introduced in 26 states plus researching her treatment options, Brittany Maynard at organizing events and talked with the media and pass a death-with-dignity law in the legislature.
the District of Columbia, with more than 215 elected made the decision to relocate from California to numerous times. And both were there on the historic Now the 12 percent of Americans who live in California
lawmakers as primary or co-sponsors. Oregon so that she could access its Death With day in September when the full legislature passed will have the peace of mind that access to aid in
Dignity Act. Believing that no one should have to go the bill during a special session. Two weeks later, the dying provides.
C&C is commemorating that campaign with a series to such lengths to access a medical option everyone bill was transmitted to Governor Jerry Brown, who
of activities that elevate the issue in the media and deserves, Brittany contacted C&C the summer signed it into law on October 5. The significance >> See page 6 to read more about our California
keep legislative progress moving in the states. before she died and offered her partnership. In what of the bill’s passage is profound. It makes California victory.

24 COMPASSION & CHOICES MAGAZINE / FALL 2015 CompassionAndChoices.org 25


advocacy in action NH
VT
NH See the map for the status of your state!
VT
C&C needs citizen lobbyists to meet with state
lawmakers, organize grassroots support in their
MA
own communities, and write to legislators and
MA NH
VT RI media outlets expressing their support – and
RI CT demand – for more end-of-life options.
CT NJ
NJ DE MA
TO GET INVOLVED…
DE
MD Visit us at:
MD RI
DC CompassionAndChoices.org/get-involved
DC CT The sticker worn by dozens of C&C activists attending a hearing

**
Send us an email: in the New Jersey legislature
NJ
volunteer@compassionandchoices.org
DE
Send a letter to your local lawmaker at:
MD
CompassionAndChoices.org/state-action-center
DC DID YOU KNOW
Connect online:
* Like us on Facebook and C&C also protects access to aid in dying in states where
follow us on Twitter @compandchoices it is authorized. C&C is actively working with medical
or Call: 800.247.7421 communities and conducting public education to expand
access in Oregon, Washington, Montana, New Mexico,
Vermont and now California.

* A decision overturning the authorization


of aid in dying is under appeal in New Mexico.

Aid in Dying Authorized The family’s availability for high-profile media inter- one vote shy of passing the Senate on its first try. written down in a newspaper op-ed, delivered in
C&C Campaigns Underway views and low-profile lobbying across the country C&C also dispatched staffers to Wyoming and legislative testimony or shared at a community
has had immeasurable impact on progress in other Rhode Island to testify and support legislative efforts. event, these stories educate lawmakers and help
Organized Grassroots Initiatives
states, too. Here are a few highlights. An aid-in-dying them understand the urgent need to pass death-
C&C Staff Locations
bill passed the New Jersey Assembly on a bipartisan This year, C&C is expanding into several additional with-dignity laws now.
States with Aid-in-Dying Bills in the Legislature in 2015 vote 12 days after Brittany’s death, and C&C is now states, including Delaware, Florida, Hawaii, Illinois,
States with Legislative Action in 2015 shepherding it through the Senate. A new bill in Iowa, Maine, Minnesota, New Hampshire and
New York is on track to its first hearing (see State Pennsylvania even as campaigns continue in
Spotlight story on page 30). Fifty legislators signed Massachusetts, Connecticut, New York, New
A packed hearing room where Maine’s Health & Human Services
Committee heard testimony on aid-in-dying legislation on to co-sponsor a death-with-dignity bill in Mary- Jersey, Maryland, Colorado and the District of
land, where hearings were held in both the Senate Columbia.
and the House of Delegates for The Richard E. Israel
and Roger “Pip” Moyer Death With Dignity Act, So much of this progress is thanks to the women and
which comes back before the legislature this winter. men across the country who were inspired by Brittany
Montana’s five-year-old Baxter ruling authorizing to come out and tell their stories … people facing
medical aid in dying survived three legislative efforts their own fears about how they might die from
to repeal or erode it, thanks to bipartisan support. cancer that riddles their bodies, people who have
Vermont’s two-year-old aid-in-dying law survived seen loved ones die peacefully using aid in dying,
repeal efforts and became permanent. C&C sprang and those who have witnessed painful, drawn-out Delegate Shane Pendergrass, sponsor of Maryland’s
death-with-dignity bill in the House, speaks at a press conference
into action in Maine where a bill ultimately fell just deaths where aid in dying is not available. Whether

26 COMPASSION & CHOICES MAGAZINE / FALL 2015 CompassionAndChoices.org 27


advocacy in action

How Death-With-Dignity Bills Become ++++++

Law: A Case Study From Vermont 2011 FEBRUARY – H.274 and S.103, both An Act Relating to Patient Choice
and Control at the End of Life, are introduced in the Vermont House
It was 18 years from the time an early version of what became Vermont’s death-with- and Senate respectively; neither advance.
dignity law was first introduced to its enactment. This timeline offers a snapshot of the
often-lengthy legislative process by which residents of a state come to have access ­— ++++++
and preserve access — to this compassionate end-of-life option.

2013 JANUARY – Senate Health and Welfare Committee holds a public


hearing on S.77, the Patient Choice at the End of Life Act, in the well

1995... The first death-with-dignity bill in Vermont was introduced 20 years


ago. House Bill 335, The Rights of Terminally Ill Patients, was intro-
of the House.

duced in 1995, and again in 1997 (H.109) and 1999 (H.493). FEBRUARY – S.77 is introduced in the Vermont Senate, followed by
three readings and four roll-call votes. There is one reading of the bill
++++++ in the House.

2004 MAY – 78 Vermont lawmakers ask their Legislative Council to examine


the Oregon Death With Dignity Act and report findings to the legislature.
APRIL – There are two readings and five roll call votes in the House.

VICTORY! MAY – S. 77 passes the Vermont House and the Senate, and is sent to
DECEMBER – The Vermont Legislative Council publishes a report VT DWD bill the governor after one reading and seven roll-call votes in the House,
becomes law
detailing the positive outcomes and efficacy of Oregon’s Death With and four roll-call votes in the Senate. Governor Peter Shumlin signs
Dignity Act. the Patient Choice at the End of Life Act (now officially Act 39) into
law, making Vermont the first state to authorize medical aid in
++++++ dying through the legislative process.

2007 JANUARY – H.44 and S.63, both An Act Relating to Patient Choice
and Control at the End of Life, are introduced in the Vermont House
++++++

and Senate respectively; fizzles in the Senate but gets a House hearing
and vote. 2014 OCTOBER – After battling cancer, Annette Vachon becomes the first
Vermonter to self-administer aid-in-dying medication as authorized by
Act 39.
MARCH – H.44 was defeated 82 to 63 in a House floor vote following
successful committee votes. ++++++

++++++
2015 MARCH – The Vermont Senate votes down proposal to repeal Act 39;
makes permanent some protections originally scheduled to sunset in 2016.

2009 APRIL – S.144 and H.455, both An Act Relating to Patient Choice
and Control at the End of Life, are introduced in the Vermont Senate APRIL – The Vermont House votes down efforts to repeal Act 39; makes
and House respectively; both go nowhere. permanent some protections originally scheduled to sunset in 2016.

++++++ MAY – Governor Peter Shumlin signs the revisions to Act 39,
Patient Choice and Control at End of Life Act, into law making some

2010 OCTOBER – Democratic gubernatorial candidate Peter Shumlin promises


to make signing a death-with-dignity law a top priority as governor.
protections permanent.

28 COMPASSION & CHOICES MAGAZINE / FALL 2015 CompassionAndChoices.org 29


Annual Report 2015
state spotlight

New York
C&C is harnessing popular demand for expanded
WHAT A YEAR!
Decades of dedicated work
end-of-life freedom and reaping results in the Empire
State. Within months of launching a campaign for
death with dignity in all 50 states on November 19,

paid great dividends through-


2014, three separate bills authorizing aid in dying
were introduced in the New York legislature. C&C is
mobilizing around the New York End of Life Options

out 2015. With your support,


Act sponsored by Senator Diane Savino, an indepen-
dent Democrat from Staten Island. As Savino and her
team develop a unified legislative strategy, C&C is

Compassion & Choices caught


working in the Capitol and across the state to secure
the votes to pass the bill.

C&C’s citizen lobbyists pose with State Senator Diane Savino (center
C&C rallied 21 supporters for a Lobby Day in Albany

the nation’s attention like never


with red coat), sponsor of the New York End of Life Options Act,
in May, meeting with 18 legislators and identifying between visits with other legislators in the Capitol on May 13, 2015
more co-sponsors for an Assembly bill. C&C’s
aggressive media strategy includes placing op-eds in
key outlets. One standout was Amanda Avery’s piece
in the Albany Times Union describing the death of
her 29-year-old partner, Chrissi, to cancer. Also pow-
In August, C&C’s New York campaign director came
on board. Corinne Carey’s extensive experience
before, generating a surge of
momentum that propelled the
erful was Reverend Paul Smith writing in the Brooklyn working on civil rights and healthcare issues in
Eagle that counseling and comforting dying people Albany allowed her to hit the ground running.
informs his advocacy for death with dignity: “When
If you live in New York —
­ or any state — go to

end-of-life choice movement


dying persons have alternatives — a final measure
of control — they feel a sense of comfort and peace CompassionAndChoices.org/state-action-center
that allows them to truly live during their last days. for an easy tool to send an email directly to your
This is the greatest gift we can grant our dying state representatives telling them you support
friends and loved ones.” death with dignity.
to new heights. Read on to see
what we have achieved.
30 COMPASSION & CHOICES MAGAZINE / FALL 2015
Annual Report 2015
annual report

26+
5
states now authorize aid in dying:
Oregon, Washington, Montana,
Vermont and California. A decision
overturning the authorization of aid
states plus D.C. considered aid-in-dying laws: Dr. in dying is under appeal in the New
Robert Olvera, an East Los Angeles physician who Mexico Supreme Court.
lost his 25-year-old daughter Emily Rose to leukemia
in April, joined C&C to help pass the End of Life

217
Option Act in California. His family’s experience
convinced him that terminally ill people need the Dr. Olvera holding a photo of his daughter Emily
at a Sacramento press conference
option of a gentle death on their own terms.

lawmakers sponsored or co-sponsored


aid-in-dying bills: Wyoming Represen-
tative Daniel Zwonitzer, (R-Cheyenne),

500%
learned from working in the auction
and estate sale business that too many
terminally ill people in Wyoming take
their lives violently, such as with a gun.
The death-with-dignity bill he sponsored
is under interim study.
increase in media coverage: Prolific
and outspoken champions of the right Rep. Daniel Zwonitzer
to aid in dying such as Brittany Maynard,
Christy O’Donnell, Barbara Mancini and

3,000+
Jennifer Glass appeared on magazine
covers, talk shows and the web, sharing
their painful stories to bring attention
to the issue and motivate supporters.
volunteers now fill C&C’s ranks: Barbara
Davis of Newark brings a news clip to
Oprah Winfrey interviews Dan Diaz, Brittany Maynard’s widower, for her show legislators during New Jersey
Oprah Winfrey Network program, “Where Are They Now?”
Lobby Week.

32 COMPASSION & CHOICES / ANNUAL REPORT 2015 CompassionAndChoices.org 33


Annual Report 2015
annual report

x2
500,000
C&C has amassed nearly half a million
supporters: Tennessee civil rights
champion John Jay Hooker, suffering
from stage 4 metastatic cancer, part-
nered with C&C to take his plea for
end-of-life autonomy to the courtroom.

+1,000%
“It is the ultimate civil right,” Hooker

74%
said, “to be able to die with dignity,
while you still have some choice in The number of people served by
the matter.” C&C’s End-of-Life Consultation Service
doubled: Aris T. Allen Jr. — son of the
John Jay Hooker at the Memphis courthouse first African-American chair of the Mary-
land Republican party, who ended his increase in traffic to CompassionAnd-
life violently after contracting terminal Choices.org and over one million visitors
of Americans polled in a Harris survey
cancer in 1991 — ­ recalls how frank talks to the website TheBrittanyFund.org,
last November agreed that: “Individuals
about end-of-life preferences eased which C&C launched for our campaign
who are terminally ill, in great pain and
sorrow after his father’s death. “I would with Brittany Maynard.
who have no chance for recovery have
the right to choose to end their own life.” recommend that everyone have ‘the
Support cut across all generations and conversation’ and talk with their loved
educational groups, both genders, and ones about what they want and don’t
even political affiliation. want, as well as complete an advance

5
directive so their wishes are known.”

In collaboration with with 18 organizations,


the Campaign to End Unwanted Medical
Treatment published a collection of five
policy briefs written by experts at the
National Academy of Social Insurance.
256%
increase in Faceook fans, putting our
The briefs provide useful insight into issues messages in front of an ever-broader
around advance care planning and end-of- audience on the preeminent social
Aris T. Allen Jr. standing with his father’s statue
life healthcare. media network.

34 COMPASSION & CHOICES / ANNUAL REPORT 2015 CompassionAndChoices.org 35


Annual Report 2015
annual report

Combined Statement of Financial Position Combined Statement of Activities & Changes in Net Assets
June 30, 2015 For the Year Ended June 30, 2015

ASSETS Revenue and Other Support:


Current Assets:
Contributions 15,373,419
Membership fees 207,355
Cash and cash equivalents: Foundation Revenue 135,000
Operating 2,037,237 Investment income, net of expenses 389,624
Investments 2,588,649 Realized and unrealized loss on investments (261,571)
Pledges receivable-current portion 2,621,000 Other Income 525,589
Investments 16,219,146
Prepaid expenses 147,429 Total revenue and other support 16,369,416
Beneficial interest in charitable remainder trusts 168,984
Other current assets 7,421 Expenses:
Total current assets 23,789,866 Programs 12,849,683
General and administrative 1,836,558
Property, Equipment and Improvements, at Cost:
Fundraising 1,012,582
Total expenses 15,698,823
Furniture, fixtures and equipment 456,744
Leasehold improvements 62,446 Increase in net assets 670,593
519,190
Less accumulated depreciation and amortization 315,671
Net Assets:
Total net assets, beginning, 22,202,290
Total property, equipment and improvements 203,519
Net assets, ending 22,872,883

Other Assets:
Pledges receivable net of current portion 137,000
Intangible assets 15,764
Deposits 30,875
Total other assets 183,639
TOTAL ASSETS 24,177,024

Costs for the Year Ending June 30, 2015:


LIABILITIES AND NET ASSETS
Current Liabilities:
Current portion of obligations under capital leases
Accounts payable
14,717
456,899
PROGRAM COSTS ALL COSTS
Accrued payroll and vacation 340,677
Accrued expenses 1,500
Total current liabilities 813,793

Long-term Liabilities:
Gift annuity payments due 490,348
Total long-term liabilities 490,348
Total liabilities 1,304,141

Net Assets:
Unrestricted:
Operating 22,686,452
Net investments in property, equipment and improvements 186,431
Total net assets 22,872,883
TOTAL LIABILITIES AND NET ASSETS 24,177,024

36 COMPASSION & CHOICES / ANNUAL REPORT 2015 CompassionAndChoices.org 37


Annual Report 2015
annual report

Board of Directors Thank You to All Our Donors


Compassion & Choices is always profoundly grateful to the many thousands of donors who give so
generously to our mission. In 2015, we received over 57,000 donations ranging from $1 to grants in the
millions. Each and every gift is vital to our success —
­ and future. While space limitations only allow us to
list donors of $1,000 or more here, Compassion & Choices appreciates every single gift we receive.
Through your commitment to our work, you provide a solid foundation on which to build going forward.
Totals are for gifts made in FY 2015 (July 1, 2014 – June 30, 2015)
* Deceased
Nancy Hoyt Claire Jacobus Jaren Ducker Karen Pye, MPH Betsy Van Dorn
Chair Vice Chair Treasurer Secretary Development Chair
Circle of Choice Circle of Comfort Circle of Dignity
($50,000+) ($25,000+) ($15,000+)
Anonymous (6) Anonymous (2) Anonymous (2)
Mr. and Mrs. William Biggs Mr. Dan Busemeyer Ms. Evelyn Beekman
Ms. Emily C. Bond* Richard A. Busemeyer Atheist The Barbara R. Bergmann Revocable
Coon Revocable Family Trust* Foundation Trust, Hon. Barbara R. Bergmann, PhD*

Earth and Humanity Foundation The Congdon Family Fund Mrs. Irma A. Bixby*
Mr. and Mrs. Thomas E. Congdon Mr. Ronald Blum
Ignacio Castuera, Rev. Dr. David N. Cook, MTh, JD Debbi Gibbs Charlie Hamlin, M.D. Stephen Hut Fidelity Charitable Gift Fund
Ms. Friedericka A. Dalbey* The John G. Bolos Charitable Gift Fund
Lisa and Douglas Goldman Fund
Denver Foundation Mr. and Mrs. Gordon Dipaolo
Dr. Robert Holzapfel
Doctors Norman C. and Donors Trust
Mr. and Mrs. Joseph F. Horning
Gilda M. Greenberg
Patricia Stryker Joseph The H. B. B. Foundation
Head Family Charitable Foundation
The Kate Cashel Fund of the Dr. Virginia Kanick
Ms. Kathryn Head
Community Foundation for the Ms. Elizabeth T. Kirkpatrick
Greater Capital Region Jewish Community Federation and
Kenneth and Frayda Levy
Endowment Fund
Mrs. Jan Perry Mayer Ms. Linda M. Lutes
Ms. Barbara J. Meislin
Open Society Institute Ms. Lynne R. Malina
Samantha Sandler Sharon Shaffer Thomas J. White, PhD Irene Wurtzel Ms. Jane Orans
Raymond James Charitable Mrs. Margot Mazeau
Endowment Fund Ms. Margot Copeland Pyle
Dr. Thomas M. Neal
Ex-Officio Members San Francisco Foundation Ms. Jerri Lea Shaw and
Mr. Raymond H. Johnson Mr. and Mrs. Aryieh Neier
Samantha B. and Mark J. Sandler
Margaret L. Stevens Foundation The Quinette Family Fund
Schwab Charitable Fund
Mrs. Margaret L. Stevens Clinton H. and Wilma T. Shattuck
Ms. Louise M. Stoney Charitable Trust
Walter Van Dorn and
Stupski Foundation Betsy Nimitz Van Dorn William B. Wiener Jr. Foundation
Mrs. Joyce L. Stupski Mr. William Wiener
Mr. Frank W. Wells*
Richard Arthur Unger Trust
Vanguard Charitable Endowment
Barbara Coombs Lee Marcia Campbell Mickey MacIntyre
PA, FNP, JD, President CPA, CFO Chief Strategic Officer Ms. Merla Zellerbach* and
Mr. Lee Munson
Ms. Min Zidell

38 COMPASSION & CHOICES / ANNUAL REPORT 2015 CompassionAndChoices.org 39


Annual Report 2015
annual report

Circle of Care The Deikel Family Foundation Mr. Daniel S. Grossman Ms. Ann K. Laurilliard JaMel and Tom Perkins Family Dr. and Mrs. Robert V. Stachnik
Mr. and Mrs. Theodore Deikel Foundation Fund, Mr. and Mrs.
($5,000+) Gruber Family Foundation Mr. Steven U. Leitner
Thomas Perkins
Morgan Stanley Global Impact
Denison Family fund of the Mrs. Celeste C. Grynberg Ms. Maryel F. Locke Funding Trust Inc.
Anonymous (7) Oregon Community Foundation Ms. Sue Perkins Ms. Joan Staple
Mr. and Mrs. William Guensche Mr. and Mrs. Harold Logan
Mr. Scott Adams Ms. Harriet Denison Dr. Joseph G. Perpich and Mr. Richard Strachan
Leo S. Guthman Fund Ms. Shirley J. Lynn
Hester K. Diamond Ms. Cathy J. Sulzberger
Ms. Sophie Alweis and Ms. Joan Haberman Mrs. Tina MacIntyre Dr. and Mrs. Daniel W. Stroock
Mr. Lance Grebner Mary and Bob Dodge Mr. Benjamin L. Pick
Ms. Kathleen Hagen Mr. and Ms. John P. McBride Ms. Christine Suppes
American Endowment Foundation Ray and Dagmar Dolby Family Fund Ms. Catherine H. Podell
Dr. and Mrs. Charles Hamlin Ms. Joan C. McCormick Ms. Barbara Swartz*
Arkay Foundation Mrs. Dagmar Dolby Ravida K. Preston*
Mrs. Francis W. Hatch & Neil and Amelia McDaniel Ms. Roselyne C. Swig
AYCO Charitable Foundation Jaren and Bruce Ducker Mr. and Mrs. Laurence A. Price
Mr. Whitney Hatch Charitable Trust Tapper Charitable Foundation
Mr. L. E. Bassler Mrs. Constance G. Eagle Princeton Area Community
Hawksglen Foundation Mr. and Mrs. Rick McDonald The Thompson Family Foundation Inc.
The Eccola Foundation Trust Foundation, Inc.
Ms. Nancy Belcher Mr. Jim Heerwagen The Katherine K. & Henry R. McLean Ms. Angela Thompson
Mr. Bill Falik and Ms. Diana Cohen Ruth C. Putter Revocable Trust
The Benevity Community Impact Fund Mr. Merrit Heminway Charitable Trust* U.S. Charitable Gift Trust
Zalec Familian & Lilian Levinson Karen and David Pye
Ms. Eloise Bouye Ms. Tamisie Honey Jerome Medalie Esq. and H. van Ameringen Foundation
Foundation Ms. Beth Lowd Ms. Judith Queen Mr. Henry van Ameringen
Hon. Sen. Bill Bradley and Mr. David Hopkins
Dr. Betty Sue Flowers Mr. Edward J. Filer* Ms. Gurdon H. Metz Mr. and Mrs. Joe L. Randles* Vradenburg Foundation
Mr. and Mrs. Robert Hoyt
Dr. Ernestine Schlant Bradley Ms. Evelyn Findl* Mr. Christian Folger Miller Arthur and Toni Rembe Rock Mr. and Mrs. George A. Vradenburg
Humanist Fund
Ms. Barbara K. Brown FJC The Max Minsky & Florence Minsky Rhino Digital Mrs. Pam Wald
Ms. Arlene Inch
Mrs. Erika Brunson Ms. Linda Flanagan Goldstein Family Foundation Ms. Carey Roberts Dr. Lucy R. Waletzky
J. B. S. International
Dr. and Mrs. Dixon Butler Ms. Helen W. Ford* Dr. Robert I. Misbin and Mr. and Mrs. William M. Rosen Mr. Dougin Walker and
Claire R. and David P. Jacobus Ms. Audrey Pendergast Ms. Elizabeth H. Bromley
Mr. and Mrs. Oliver Cameron Foundation Source Mrs. Ritta G. Rosenberg
Penny Jar Charitable Funding James Starr Moore The Wechsler Foundation, Inc.
Mr. William J. Charlton Ms. Barbara L. Franjevic Mrs. Lynne G. Rosenthal
Jewish Federation Memorial Foundation Weeden Foundation
Ms. Kathleen Cheevers Susan and Peter Friedes Mr. and Mrs. Howard Rossman
of Metropolitan Chicago Ms. Sandra Jo Moss
Friedman Family Foundation Harold Rubenstein Family Mr. and Mrs. David Wegmann
Mr. David Chelimer Jewish Community Foundation
Ms. Valerie Friedman and The Community Foundation for the Charitable Foundation Mr. and Mrs. Robert C. Weiss
Chicago Community Trust San Diego National Capital Region
Mr. Frank Adams The Shelley & Donald Rubin Ms. Ellen Westheimer
Chicago End-of-Life Care Coalition Jewish Communal Fund Thomas M. Neal Foundation Trust
Mr. and Mrs. Robert Friese Foundation Inc., Mr. and Mrs. Dr. George B. Whatley*
Louis R. Cohen Esq. and Ms. Lindsay Joost Dr. Leslie C. Newman Donald Rubin
Mr. David J. Froba Dr. Thomas J. White
The Hon. Bonnie R. Cohen Kaplen Brothers Fund
Mrs. Sally Y. Froelich Noble Foundation Mr. Gerald E. Rupp
Mr. Donald A. Collins and Mr. Alexander Kaplen Ms. Doris White*
Mr. Gordon Gamm Ms. Nancy J. Novick* Sandler Foundation of the Jewish
Mrs. Sarah Gamble Epstein Kautz Family Foundation Mrs. Daphne Tewksbury Whitman
Prof. and Mrs. Roger Nussbaum Community Endowment Fund,
Mr. and Mrs. Edward Connors Ms. Rebecca Gaples Walter G. Wiederkerr Estate
Mr. and Mrs. Terry R. Kay Mr. Herbert Sandler
Richard P. Garmany Fund of The Mr. Stephen K. Oka and
Mr. David Corkery Ms. Ginni Keith Alice and Thomas Schelling Mrs. Diane Dow Wilsey
Hartford Foundation for Public Giving Ms. Candace E. Walker
Ms. Joan Walkup Corrigan Ms. Susan M. Kennedy Ms. Lois Schnitzer Mrs. Susan N. Wilson
Ms. Debbi Gibbs Oregon Jewish Community Foundation
Ms. Cora Sue Cronemeyer Ms. Wendy Keys Mr. and Mrs. Joseph Schoenberg Mary Wohlford Foundation
Mrs. Phyllis M. Girvetz Oregon Community Foundation
Prof. K. Patricia Cross Ms. Margaretta C. Kildebeck Dr. and Mrs. Wagner Schorr Mrs. Anita Wornick
Mr. and Mrs. John Goldman Mr. Michael and Mrs. Ann Parker
Mr. and Mrs. Terry Dale Dr. and Mrs. Samuel C. Klagsbrun Mr. and Mrs. Charles R. Schwab Mr. and Mrs. Peter M. Wright
Mr. and Mrs. Brad Gordon The Paulus Foundation
The Darwin Foundation Kovler Family Foundation Prof. Oliver Shanks The Wyss Foundation
Mr. Lance Grebner and Ms. Marian Penn
Davies/Weeden Fund Mr. Peter and Dr. Judy Kovler Mrs. Judith Wyss
Ms. Sophie Alweis Mr. Arthur R. Silverberg
Mrs. Karen Dean Ms. Marjorie Kundiger*

40 COMPASSION & CHOICES / ANNUAL REPORT 2015 CompassionAndChoices.org 41


Annual Report 2015
annual report

Circle of Love Ms. Nancy Davies Mr. Rob Nimmo and Ms. Linda Jensen Mr. Matthew Nelson and Mr. and Mrs. Charles J. Swindells Ms. Sally V. Allen
Mr. Kip Beardsley
($2,500+) Ms. Sally Davis and Community Foundation of New Jersey Ms. Margaret Taliaferro Mr. Bill Anderson
Mr. Stephen C Birdlebough Samuel S. Johnson Foundation Nussbaum Charitable Trust Mr. and Mrs. Tad Taube Ms. Penny Andrews
Anonymous (3) Mr. and Mrs. Henry F. Davis Ms. Deborah Perry and Mr. Thomas R. Oliver Taube Philanthropies Mrs. Patricia Vaughn Angell
Ms. Joann W. Aalfs Ms. Shirley Ross Davis Mr. William Kanarek Mr. and Mrs. Bernard Osher Mr. Vo Tran Ms. Patricia Angell
Dr. and Mrs. Henry J. Aaron Dr. Andrew Griswold Dean Ms. Naneen Karraker Bernard A. Osher Trust United Health Group Mrs. Beth L. Armsey
Mr. and Mrs. Peter Adams Hon. John O. Despres and Ms. Sara Katz Mr. Jonathan Palan Mr. Jorge A. Uribe Dr. George E. Arnstein
Adams Legacy Foundation Mrs. Despres Ms. Helen A. Kay People Magazine Mrs. Marcia S. Vincent Ms. Hilda Aronson
Ms. Susan W. Agger Ms. Laurie T. Dewey Ms. Linda L. King The Jay and Rose Phillips Ms. Barbra D. Vogen Ms. Nancy Arseneault
Ms. Catherine Alden Pat and Jerry Dodson Ms. Jane King Family Foundation, Ms. Jeanne
Harvey and Leslie Wagner Foundation Ms. Nancy Ayres
Mrs. Edgar Dresner Phillips and Mr. Walter Harris
Mrs. George Venable Allen Mr. Mike Kittross Ms. Leslie K. Wagner Ms. Marianne Baldrica
Ms. Carol J. Duvall Mr. Charles A. Pilgrim
Mr. David Putzolu and Samuel & Francine Klagsbrun Mr. Stephen Weinroth Mr. Neil D. Baldwin
Ms.Christine Armer Mr. and Mrs. Martin K. Eby Foundation Mr. and Mrs. William R. Poland
Mrs. Arlene C. Weintraub Mr. and Mrs. Robert S. Ball
Mrs. Bernadette Augustinack Ms. Delia F. Ehrlich Mr. Willis M. Kleinenbroich The T. Rowe Price Program for
Weissman Family Foundation Mr. and Mrs. Ned Bandler
Charitable Giving
Nancy and Joachim Bechtle Foundation Lynda and Skip Everitt Mr. Timothy J. Lee Mr. Daniel M. Weissman
Ramsay Family Foundation Mr. and Mrs. Hancock Banning II
Mr. and Mrs. Joachim Bechtle Ms. Rachel Everitt Ms. Lillian Lessler Dr. and Mrs. Van Zandt Williams
Raynie Foundation Mr. Steedman Bass
Ms. Carolyn Belgrad Fidelity Brokerage Services LLC Mr. and Mrs. Peter Lindman Mr. John B. Winston, Esq.
Ms. Joy Gail Raywid Ms. Nancy C. Bean
Mr. Michael Berman Mr. and Mrs. William Fisher Oliver Living Trust Hon. Sen. Timothy Endicott Wirth and
Mrs. Janet Reilly Ms. Pam Beardsley
Mr. John Bernstein Mr. and Mrs. Charles La Follette Mr. Fred Levin and Mrs. Wren Devereux Winslow Wirth
Mr. Mark M. Rich and Mr. Jim Beneventi
The Brach Family Fund of the Mr. Morris F. Friedell Ms. Nancy Livingston Mr. Paul R. Q. Wolfson and
Community Foundation of New Jersey Ms. Kathrin Engisch Mr. Neil W. Cohen Mr. Allan Berenstein
Mr. and Mrs. Michael Peter Giannini Lynn and Jack Loacker
Ms. Betsy Brach, Prof. Darshan Brach, Mr. and Mrs. Morton I. Rosen Mrs. Anne Robinson Woods Mr. and Mrs. Robert G. Bergman
Mr. Ramon E. Gilsanz Dr. W. Charles and Dr. Gretchen Lobitz
Mr. Peter Brach, Dr. Tara Brach Ms. Barbara Rosenberg Berman Family Foundation
Dr. and Mrs. Theodore Loewenthal Ms. Charlene Zidell
Big Heart Pet Brands Mr. and Mrs. Harvey W. Glasser
Mr. Saul Rosenthal Drs. Leonard and Jane Bernstein
Mr. and Mrs. Terry Golden Mr. and Mrs. George H. Lohrer
Mr. and Mrs. James Bready Mr. Donald R. Royer Capt. David Bernstein
Mr. and Mrs. Johan L. Lotter
Dr. and Mrs. Arthur M. Breipohl Ms. Margaret Goldman
Mr. John Sampson and Circle of Hope Mr. John W. Berresford
Dr. and Mrs. Herbert J. Louis
Ms. Toni Broaddus Google Inc.
Dr. Dwight Moore and
Mrs. Sharon L. Litsky ($1,000+) Mr. and Mrs. Edward Betts
Mr. and Mrs. Wesley A. Brown Jill and Brad Gordon Family Foundation San Antonio Area Foundation
Ms. Marie MacWhyte Mr. and Ms. John J. Biggs
Mrs. Ruth Hale Buchanan Mr. Jeremy A Green and Mr. Peter Schaffer Anonymous (15)
Mr. B. Thomas Mansbach Mr. Bruce Bittan and
Ms. Yvonne M Adams Drs. Sophia and Marc F. Abramson
The Burch-Safford Foundation, Inc. Mr. Jay J. Scheldorf, Sr. Ms. Marina C. Crispo
Ms. Dorothy D. Gregor The Mansbach Foundation
Mr. Sherman Carll Vanguard Voyager Services Mrs. Margaret M. Ackerman Ms. Kathy Black
Ms. Julie B. Harkins Ms. Victoria E Marone
Mr. Robert C. Cheek Mr. Harlan Seymour Mr. Richard Adelaar Mrs. Audrey W. Bloch
Ms. Harriet Hayes Mr. and Mrs. William C. McGehee
Christoval Foundation Ms. Linda L. Le Shanna The Adelaar Foundation Blum-Kovler Foundation
Col. and Mrs. Wayne Herkness II Medtronic
Ms. Kate F. Coan and Mr. Russel Shon Adler Family Foundation Ms. Monique Bondeux and
Mrs. Joyce D. Homan Mr. Jerome Meislin Mr. and Mrs. James Barron Adler
Mr. Donald A. Hofmann The Byron T. Shutz Foundation Dr. Robin Petty
Hot Pepper, Inc. Mrs. Alice P. Melly Ms. Ioe Adler
Ms. Phoebe Cowles Mr. Daniel Stone Mr. and Mrs. Garrett Boone
Mr. and Mrs. A. Stephen Hut Mr. and Mrs. Christopher Meyer Adler-Jarach Fund
Mr. and Mrs. R. Dougal Crowe Dr. Howard Denison Stowe Christiane de Bord
Ms. Marge L. Jackson Ms. Nina Miness Ms. Madelon S. Affeld
Dr. Nancy S. Crumpacker and Doctors Michael and Molly Strauss Mr. and Mrs. James C. Borg
Dr. Rick Bayer Ms. Susan Jacobson Rev. and Mrs. Frank H. Moss III Mr. Erwin J. Alexy
Ms. Patricia A. Sullivan Boston Foundation
Ms. Susan Cummings Ms. Morynne Motley

42 COMPASSION & CHOICES / ANNUAL REPORT 2015 CompassionAndChoices.org 43


Annual Report 2015
annual report

The Community Foundation Mr. and Mrs. Bertram J. Cohn Dixon and Carol Doll Family Foundation Dr. Robert F. Foran and Ms. Anne W. Hammond Ms. Karen C. Ingwersen
Boulder County Ms. Elizabeth Cole and Ms. Carol Doll Dr. Carole Foran Mr. Grant A. Hanessian and Ms. Jazzmyn Inisis
Ms. Frances F. Bowes Mr. Peter Newman Ms. Anna Dombrowski Dr. Alexandra Fraser Ms. Anne Schwartz Mr. Edward N. Jacobson
Ms. Caroline C. Bramhall Mr. David M. Collins and Ms. Judith Don and Dr. Ralph Frerichs Mr. and Mrs. Earl K. Hanna Adler Jarach Fund of the
Ms. Frish Brandt Ms. Stephanie Garber Mr. Mitch Bayersdorfer Mr. Sam Friedenberg and Dr. Maren Hansen Equity Foundation
Sanford and Jane Brickner Mr. Brian Collins Ms. Debra Morgan Dooley Ms. Sandra Tetzloff Ms. Martha Hansen Ms. Margaret K. Jarvis
Advised Fund of Santa Fe Ms. Anne Cooke Dopkin-Singer-Dannenberg Foundation Mrs. Laurel E. Friedman Ms. Jan S. Harden The JCT Foundation
Community Foundation Mr. Richard Cotter Mr. Redmond L. Dougherty and Dr. Judith Friedman Mr. Leo Harris and Ms. Ann Simms Ms. Christina Jennings
Bridgewood Fieldwater Foundation Mr. Charles L. Courdy and Mrs. Christina Doughtery Mr. and Mrs. Donny Friend Mr. and Mrs. David F. Hart Mr. and Mrs. Michael D. Johnson
Mr. Burnett Britton Ms. Elaine Burdell Ms. Elizabeth L. Dovenbarger* Mr. Earl J. Funk Dr. and Mrs. Everett T. Hart Sharon Johnson
Ms. Gertrude S Brown Phoebe Cowles Revocable Trust Mr. Robert B. Dowse Ms. Paula Gambs Mr. Phil Harvey Mrs. Cynthia C. Jones
Dr. Carl Brownsberger Ms. Joan W. Cox Mr. Justin Draeger GE Foundation Ms. Gina Hattenbach Jones Family Trust
Mr. Neal Buchalter The Coxhead California Rabbi George B. Driesen, JD and Cindy and Robert Gelber Mr. Eric Heit Mr. John H. Jordon*
Ms. Susie Buell Charitable Fund Mrs. Sue Dreisen
Hon. and Mrs. Henry Geller Mrs. Janet J. Hemming Mr. William B. Joy and
Mr. Terry E. Burgess Mr. Michael Cross Miriam Dubin
Ron & Catherine Gershman Foundation Ms. Laura Henderson Ms. Susanne Marie Stegmiller
Ms. Dorothy H. Burnett Mr. Jay A. Dackman Mr. Jack O. Duncan
Mr. and Mrs. Charles R. Gibbs Ms. Barbara L. Hennig Ms. Emily G. Kahn
Ms. Katrina C. Bush Mrs. Laura Gardner Dale Dr. Linda E. Durham
Ms. LaVeta Gibbs Ms. Carolen Herst Mr. Stephen S. Kaloyanides
Mrs. Joann Bush Ms. Nan Dale Mr. Steffan Dye
Mr. Dale H. Gieringer Mr. and Mrs. Harold Hestnes Ms. Marjorie L. Keely
Ms. Julia Butters Ms. Arville Damner Dr. Dean Edell and Dr. Sharon Edell
Mr. and Mrs. Arnold B. Glimcher Mr. and Mrs. William Hillig Dr. Vance C. Kennedy
Ms. Pamela H Byatt Mr. John A. D’Angelo Mr. Jon B. Eisenberg and
Mrs. Helen R. Golden Ms. Georgie M. Hitson Mr. and Mrs. Douglas Kinney
Mrs. Margery Dannenberg Ms. Linda Hillel
Mr. James Call and Leila and Steven M. Gompertz Ms. Nancy Kivelson
Mr. Bob Ellis Mrs. Donald Hoagland
Ms. Kris Conquergood Ms. Rachel Dardis Donor Advised Fund in Memory
Mr. Raymond S. Hockedy Ms. Jody Kleinman
Ms. Natalie B. Campbell Mr. and Mrs. Gerald Daugherty Mr. and Mrs. Edwin Engelhaupt of Michael Gompertz
Ms. Jeannette B. Hofer Ms. Jan Ellen Kliger
Dr. Phyllis and Mr. Joseph Caroff Ms. Jamini Vincent Davies Mr. Barry Ensminger Mr. Robert Gondelman
Mr. Steven J. Hoffman Ms. Virginia M. Knapp
Foundation for the Carolinas Mr. and Mrs. Richard S. Dawson Jr. Equity Foundation Mr. and Mrs. David M. Goodman
Mr. Peter J. Holden Mr. and Mrs. Herbert S. Koch
Mr. and Mrs. Richard Casey Mrs. Elizabeth Gretchen De Baubigny Ms. Lyn M. Erickson Ms. Lorraine Graves Grace*
Ms. Nanci Hollas Drs. Jan and Diane Koch-Weser
Mr. William R Cate Ms. Linda Van Winkle Deacon Ms. Lorre Erlick Greater Kansas City
Janice and Maurice Holloway Ms. Blossom J. Krakauer*
Mr. and Mrs. Ronald Cease Mrs. Zyla Deane Mr. Russell Ewert Community Foundation
Ms. Barbara Shaw Holme Ms. Elise Kroeber
Cedar Fund of the Princeton Mr. Edward E. Demartini Mr. and Mrs. James R. Falender Mr. Neal Green
Mr. and Mrs. Irwin Holzman Mr. Steven Kronheim and
Area Community Foundation Mrs. Patricia Dennis Ms. Mary B. Fell Dr. Robert A. Greene and
Ms. Marcia Bond
Mr. Rick Cermak Mr. and Mrs. Paul Filseth Mrs. Susan E. Presberg-Greene Mr. Jay Holzman
Mr. Joseph T. Derry Mr. Carlton W. Laird
Prof. Kathy L. Cerminara Mr. Roger W. Findley Ms. Linda Joyce Greenhouse Pam Woodley Household
Mr. and Mrs. Lyle A. Dethlefsen Mr. and Mrs. Michael Lambert
Mr. Robert Chambers Ms. Ruth Fischer and Mr. Richard Lugg Mr. Philip R. Gula Mr. Warren M. Howe and
Dr. Patricia DeYoung Ms. Neuritsa Lancaster
Mr. and Mrs. Mark D. Hagen Ms. Janet S. Karon
Ms. Eleanor Chandler Shelia DiDonato Namm, RN, JD and Dodd and Nancy Fischer
Ms. Linda Huber Mrs. Carol S. LaPierre
Chicago Community Foundation Pietro DiDanato Mr. and Mrs. Richard A. Fish The Jon L. Hagler Foundation
Mr. George Hume Ms. Sylvia A. Law
Mr. and Mrs. James E. Childs Mr. Richard E. Dillon Ms. Nolie Fishman Ms. Alice Wiley Hall and Mr. Peter Hall
Mr. and Mrs. Donald F. Hunt Mr. and Mrs. William Lawrence
Ms. Anne M. Clark Ms. Jennifer A. Dobbs Ms. Frannie Fleishhacker Ms. Bobbie Hallig
Mr. Dan and Mrs. Irene Hunter Mr. Wesley Lawrence
Mr. Robert T. Coffland Ms. Shirley Doell Mr. Stewart Florsheim and Mr. and Mrs. Roland L. Halpern
Mr. and Mrs. Philip H. Ingber Ms. Esty D. Lawrie
Ms. Carole A. Cohen Ms. Judith Rosloff Ms. Sigrid J. Hammond

44 COMPASSION & CHOICES / ANNUAL REPORT 2015 CompassionAndChoices.org 45


Annual Report 2015
annual report

Ms. Tina Lear and Ms. Elena Terrone McConnell Family Fund Charitable Trust, Dr. and Mrs. Mr. Robert Petersen and Mr. Jonas Roever Dr. Herb Silverman and
Mr. and Mrs. Gordon Leavitt Mr. John W. McDonald Arthur Nielsen Dr. Veronica Petersen Dr. and Mrs. Peter Rogatz Ms. Sharon Fratepietro

Mrs. Maureen S. Lee Ms. Carolyn Mehran Mr. J. Christopher Nielsen Mr. and Mrs. Darold D. Peterson Mr. Marc Rosen Stephen A. and Bonnie W. Simon

Mr. Robert Leech Mr. and Mrs. Donald Melville Mrs. Susan Bay Nimoy Mr. and Mrs. Gary Malick Pfeiffer Ms. Dee Roth Esther Simon Charitable Trust

Ms. Louise Lees Ms. Nancy S. Mercure Ms. Kay F. Noble Joy F. Sabl, PhD Ms. Becky Rozman Mr. and Mrs. Jim Sims

Mrs. Linda Leffert Mr. Paul M. Mershon Mr. and Mrs. Bruce Nordstrom Prof. John J. Pikulski Mr. Brian Ruder and Ms. Sandra Sizer

Mr. Peter Leffman Dr. and Mrs. Craig E. Messersmith Ms. Wilda Northrop Mr. Philip Plant and Ms. Michael H. James Peggy Skornia
Mr. and Mrs. David P. Norton Ms. Barbara Schraeger Mr. James A. Rupke Ms. Barbara A. Sloop
Mr. Rodney Lehman Mr. Francis Meyler
Ms. Ellen S. Nusblatt Ms. Ann Hochschild Poole and Mr. Paul Sack and Ms. Shirley Davis Dr. Michael S. Smith
Dr. Diane Leresche Carol Yanowitz and Bruce Miller
Mr. Rooney Poole
Dr. and Mrs. Alexander H. Levi Ms. Bette Boyce Miller Ms. Virginia G. Nyhart Dr. Peter F. Salomon and Ms. Barbara Smith
Ms. Sue D. Porter Mrs. Patricia Morgan
Prof. and Mrs. Roger K. Lewis Mr. Virgil V. Miller Obermayer Foundation Inc. Mr. and Mrs. Peter Snow
Doctors Judith H. and Mr. James Posner and Ms. Jill J. Prosky Santa Barbara Foundation
Peter & Mary Fran Libassi Foundation Ms. Tollie Miller Mr. and Mrs. Robert Sockolov
Arthur Obermayer Posner-Wallace Foundation Community Foundation
Linde-Sande Family Fund The Minneapolis Foundation Freedom Fund of Sonoma County
Ms. Colleen O’Callaghan Mrs. Diana Hitt Potter Santa Cruz County
Mr. and Mrs. Barry Lipman Ms. Sandra Earl Mintz Mr. and Mrs. Max M. Sovell
Mr. Kurt Oetiker Ms. Nancy B. Pyburn Santa Fe Community Foundation
Mr. and Mrs. Robert Lipsig Mr. Perry Mitchell and Dr. Wesley E. Sowers and
Mr. Ryan O’Grady R. B. C. Community Foundation of Dr. Sara Hamel
Ms. R. Gisela Lloyd Ms. Pamela S. Woodley
Ms. Kathryn O’Keefe Ms. Helen Hilton Raiser Sarasota County, Inc.
Ms. Helen Mitchell Ms. Luella N. Spadaro
Lockheed Martin Employees Mrs. Claire K. Sargent
Ms. Leslie O’Loughlin Mr. Mike Rakeshaw and Mr. John Speicher
Political Action Commitee Ms. Lynn Mitchell
Dr. Robert Olvera Ms. Susan Benner Mrs. Judith Schaefer
Ms Susan Loesser Mr. Stephen W. Modzelewski and Mr. Sterling K. Speirn
Ms. Thelma C. Ordonez Mr. and Mrs. Bruce Ramsay Ms. Elizabeth Schlosser
Mr. and Mrs. John Loose Mrs. Deborah Sze Mr. Jesse L Spurgeon
Ormsbee Family Fund Mrs. Nonie B. Ramsay Mr. Fred Schreiber
Mr. Harry M. Lowd Ms. Elizabeth B. Monagle Mr. Barrett Stambler and
Ms. Ann N. Ott Ms. Ruth Drake Reed M. Scott & Aroline P. Chapin Ms. Bobbie Regan
LY Mr. and Mrs. Arthur Cotton Moore
Mr. and Mrs. John A. Reeves Family Trust
Ms. Barbara C. Moore Dr. and Mrs. David Otto Ms. Nancy E. Stanley
Dr. and Mrs. Peter B. Lyon Ms. Melinda B. Scrivner
Ms. Jean P. Owens Dr. Monique Regard Dr. David D. Stein and
Mr. Daniel A. Lyons Mr. Ricardo Moran
Reliable Credit Association Inc. Mr. and Mrs. Michael J. Seaman Dr. Phyllis A. Kempner
Mrs. Katharine B. Morgan Mr. Harold L. Parker
Earl M. and Margery C. Chapman Ms. Patricia Sehnert
Mrs. Margaret P. Parker Renaissance Charitable Foundation, Inc. Ms. Patricia C. Stein
Foundation Ms. Viola Moritz
Mrs. Rachel Resnikoff S. E. I. Giving Fund Mr. John H. Steinberg and
William A. Shapiro M.D. Ms. Irene Morris Mrs. Gertrud Parker
Anita B. and Howard S. Richmond Ms. Susan M. Severo Ms. Jill Pliskin
The Maggie & Waggie Foundation, Ms. Maryanne Mott Mr. and Mrs. Clifford Pash
Foundation, Inc Mr. and Mrs. Peter H. Shattuck Ms. Betsey L. Stevens
A Donor Advised Fund of Renaissance Mr. George Mrus Ms. Laurel Patrick
Charitable Foundation Prof. Alan Ritter and Mr. John N. Shepherd and Dr. Michael P. Stevens
Mr. and Mrs. Terry H. Mullin Ms. Jane Peattie
Prof. Eileen Silverstein Ms. Katharine Gale Mr. John T. Stewart
Mr. John F. Manfredi Mr. Leonard R. Pellettiri and
Laura and Jim Murray Ms. Gay A. Roane Ms. Nancy L. Shepherd
Manloy Heritage Foundation Inc. Ms. Mary B. Rose Ms. Karen Stewart
Prof. John F. Nagle Ms. Shaunagh R. Robbins Mr. Dan Shia and Ms. Hui-Yun Yuan
Ms. Pamela Mann Mrs. Mary R Pellettiri Mr. Daniel Stone
National Philanthropic Trust Dr. John H. Roberts Mr. Daniel Shia
Mr. Lou Marchello Mr. Thomas Pentecost Mr. and Mrs. Donald Strauber
Mr. and Mrs. Irvin S. Naylor Dr. and Mrs. Charles W. Robertson Ms. Laura Shlien
Marin Community Foundation Ms. Gladys Perez-Mendez* Mrs. Helen Studley
Naylor Family Foundation Mrs. Jeanne Robertson Ms. Mary J. Shor
Mr. Joseph Marino Ms. Margot Birmingham Perot Mr. and Mrs. John Sullivan
Ms. Carolyn Neketin Mr. and Mrs. Peter M. Robinson Mr. Herman Siegelaar
Ms. Veronica Marshall Perot Foundation Dr. and Mrs. Edwin S. Sved
Ms. Joyce Newstat Ms. Mary Leonard Robinson Silicon Valley Community Foundation
Mr. Stephen May and Mr. Joseph Perta Ms. Iva M. Swayne
Arthur C. Nielsen Jr. Family
Mr. Edward Casson

46 COMPASSION & CHOICES / ANNUAL REPORT 2015 CompassionAndChoices.org 47


annual report The Champions Circle monthly giving
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Ms. Carolyn Titus evaluator of nonprofits. Only 5
The Harold Widom Fund at Community
Tornquist Family Foundation percent of the more than 8,000
Ftn Santa Cruz County, Mr. Harold
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charities they rate achieve that
Ms. Ama Torrance
status — the highest level they
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Dr. and Mrs. Daniel Vapnek Mr. and Mrs. Joseph Yasgur
Ms. Joan Vivaldo Mrs. Jacqueline L. Young
Ms. Betsy Vobach Mr. and Mrs. Milton Zaitlin I live life according to
Mr. & Mrs. Isidor Wachstein &
Sons Julius & Thau Family Fund
Ms. Jeanne E. Zasadil
my own terms. The end of
Ms. Cici Zellerbach
Mr. Frederick E. Wadsworth
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Mr. Bill Wagner Mr. Gary Holmes It gives me great pleasure to
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quarterly gifts help make that
happen for people in more and
more states in the meantime.”

– Jay Dackman and his dog Buddy, Maryland


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