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ORIGINAL ARTICLE
a
Programa de Pós-Graduação em Bioética, ética aplicada e saúde coletiva -PPGBIOS, Escola
Nacional de Saúde Pública Sérgio Arouca, Rio de Janeiro, RJ, Brasil
b
Faculté de philosophie, université Laval, Quebéc, Canada
KEYWORDS Summary Think of ergonomics to foster inclusion of people with disabilities in society, is to
Ergonomics; think ethically. It is important to highlight that schools do need to provide conditions for the
Child; inclusion of children with disabilities in mainstream education in such way that attitude, archi-
Disability; tectural, communication and other barriers will not prevent them from exercising their rights,
Ethics; thus leading to shunning social interaction and consequently lack of proper education and hopes
Education for the future. It seems to us that these disabled children as well as any other have a right to
treatment and opportunities in an equitable and ethical way. Therefore, as part of this process,
we consider the need of appropriate ergonomics with the intend to prevent barriers from being
a hindrance to intellectual development and emotional maturation of disabled children. The
article addresses the relationship between the principles of Universal Design and applied ethics,
or organization management, as it is called, and has the core matter the inclusion of persons
with disabilities in Brazilian schools. The methodology will be supported by a bibliography and
documents as well. The main discussion of this article is aligned with the goals of an egalitarian
and fair society aiming the social inclusion of children with disabilities into the mainstream
education by revealing that the regulation is extremely important but it’s not enough when
dealing with change of paradigm. Furthermore, it seems to us that effective participation of
society is also required to see the full potential development of disabled children despite of
their differences and limitations.
© 2018 Elsevier Masson SAS. All rights reserved.
∗ Corresponding author.
E-mail addresses: cbparaizo@gmail.com (C.B. Paraizo), Luc.Begin@fp.ulaval.ca (L. Bégin).
1 https://www.idea.ulaval.ca/cms/site/idea.
https://doi.org/10.1016/j.etiqe.2018.01.001
1765-4629/© 2018 Elsevier Masson SAS. All rights reserved.
Please cite this article in press as: Paraizo CB, Bégin L. Inclusive educational perspective: A reflection for a future that
is already present today. Éthique et santé (2018), https://doi.org/10.1016/j.etiqe.2018.01.001
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ETIQE-447; No. of Pages 6 ARTICLE IN PRESS
2 C.B. Paraizo, L. Bégin
MOTS CLÉS Résumé Il est important de souligner que les écoles doivent fournir des conditions favorisant
Ergonomie ; l’inclusion des enfants handicapés dans l’enseignement ordinaire, de manière à ce que les atti-
Enfants ; tudes, l’architecture, la communication et autres obstacles ne les empêchent pas d’exercer
Handicap ; leurs droits, Par conséquent, manque d’éducation et d’espoir pour l’avenir. Il nous semble
Éthique ; que ces enfants handicapés ainsi que tout autre ont droit au traitement et aux possibilités de
Éducation manière équitable et éthique. Par conséquent, dans le cadre de ce processus, nous consid-
érons la nécessité d’une ergonomie appropriée avec l’intention d’empêcher les obstacles au
développement intellectuel et à la maturation émotionnelle des enfants handicapés. L’article
traite de la relation entre les principes de la conception universelle et de l’éthique appliquée,
ou gestion de l’organisation, comme il est appelé, et à la question essentielle de l’inclusion des
personnes handicapées dans les écoles brésiliennes. La méthodologie sera également appuyée
par une bibliographie et des documents. La principale discussion de cet article est alignée
sur les objectifs d’une société équitable et égalitaire visant à l’inclusion sociale des enfants
handicapés dans l’enseignement ordinaire en révélant que la réglementation est extrêmement
importante, mais ce n’est pas suffisant lorsqu’il s’agit de changer de paradigme. En outre, il
nous semble qu’une participation effective de la société est également nécessaire pour voir
le plein développement potentiel des enfants handicapés, malgré leurs différences et leurs
limites.
© 2018 Elsevier Masson SAS. Tous droits réservés.
Please cite this article in press as: Paraizo CB, Bégin L. Inclusive educational perspective: A reflection for a future that
is already present today. Éthique et santé (2018), https://doi.org/10.1016/j.etiqe.2018.01.001
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ETIQE-447; No. of Pages 6 ARTICLE IN PRESS
Inclusive educational perspective 3
implementation of public policies that can fulfill the ethical It is understood that all children with disability shall have
demands of persons with disabilities. the right for full development as any other children. They
have potential to cooperate with the social, cultural and
economic development which will depend mainly upon the
chances they will be given. ‘‘The underestimation of the
Population and educational general data abilities of people with disabilities is a major obstacle to
their inclusion and to the provision of equal opportunities.’’
The players (educators, parents, societies, and the State) [3].
engaged in the educational process should keep in their
agendas the dialogue and concern with the integration of
children with disabilities by providing them social and eco- Legal approach
nomic conditions for their flourishing.
To accomplish such engagement satisfactorily much more The legal aspects are part of the political and legal frame-
than the parties’ goodwill is required; it is indispensable work of a State, and are designed to safeguard the equality
having a differentiated pedagogical expertise at schools, of rights to everyone, even if in practical terms, the belief of
guarantee the structural adjustments of environments, eco- all parties engaged therefrom is required for full compliance
nomic conditions for inclusion purposes, and above all the with the law, free of any bias.
certainty that all players will be open for new experiences Legal actions have been progressively developed for the
by breaking the physical, social and psychological barriers. inclusion and for the generation of areas that may avail
According to United Nations Organization (UN) (2016), the equity, the jure or the facto. In this article, some
10 percent of the world’s population live with some kind of rules of higher relevance for the matter concerned will be
disability, and they are the world’s largest minority. In this considered such as the Law 7853/1989 that sets out the
percentage, 80 percent of these persons with disabilities live ‘‘social integration’’ of persons with disability, and the Law
in developing countries, according to the UN Development 8069/1990 enacted by the virtue of the Statute of the Child
Program (PNUD). and Adolescent to ensure the priority of actions and pub-
According to the Organization for Economic Cooperation lic policies for prevention and protection of children with
and Development (OECD) [30], persons with disabilities are disability [22,26].
significantly higher among groups with lower educational The Law 9394/1996 intended to promote the inclusion of
level, and that disability incidence is reportedly higher children with disability into the regular schooling system as
among women than men. A comparative study on disability well as the support for its effectiveness thereof. The term
legislation showed that only 45 percent of countries have ‘‘intended’’ herein is used to explain that despite of the Law
anti-discrimination law (UN, 2016). and the efforts resulted-therefrom for its enforcement, the
Brazil has, 24 percent, around 45 million persons living society has faced a reality that precluded full enforcement
with some disabilities according to Population Census 2010 of the Law. The schools architecture was not suitable for
of Brazilian Institute of Geography and Statistics (IBGE). inclusion; the teachers were not qualified and trained to
From these 48.1 percent live with visual impairment; 27.1 teach special education, taught large size classes, and there
percent with physical disability; 16.6 percent with mental was no supportive staff available, and the society delivered
disability, and 8.2 percent with hearing impairment. the attitude and discriminatory barriers. In spite of passing
In Brazilian Population Census 2000, IBGE [1] found that the Law in 1996, and all ongoing and tireless efforts of the
33 percent of population, or 1/3 of illiterate population, State and the society, twenty years later this reality is still
or with less than 3 years of schooling were made of persons strong in Brazil.
with disabilities. It also showed that out of three million chil- In Brazil, these barriers started been hugely fought from
dren and adolescents with disabilities, only eighty thousand the enactment of Law 10048 of 8 November 2000, and Law
(80,000) were attending school. 10098 of 19 December 2000. Law 10048/2000 stipulates pri-
In 1998, from 200 thousand persons with disability ority service to persons with disabilities, elderly, pregnant
enrolled in basic education, 13% percent were studying in women, persons holding infants, and the Law 10098/2000
regular classes. In 2014, this percentage increased to 79 per- sets forth general and basic criteria for fostering the acces-
cent which stands for 900 thousand persons enrolled (Brazil sibility of persons with disability or under limited mobility.
Portal, published in March 2015 and modified in April 2015 On February 11, 2001, Brazilian Education Council signed
[2]). The Education Ministry has stated that investments in the Resolution no. 2, which stood for a great progress
this sector were made in order to enhance the teachers’ for the inclusion of children with disabilities in regular
qualification on special needs education, by making feasible schools, backed up by National Guidelines for Special Edu-
the multifunctional resources for accessibility, and deliver- cation in Basic Education. From that date onwards, several
ing resources for structural adjustments of the educational actions supported by Resolutions, Decrees and Laws were
areas. celebrated for the inclusion of children with disabilities in
The right of persons with disability to attend regular regular schools, also establishing the adjustments, support-
classes of regular education is set forth in Article 205 of Fed- ive measures, and specific qualification of teachers required
eral Constitution ‘‘Education, which is the right of all and for such purpose.
duty of the State and the family, shall be promoted and fos- The first Brazilian technical standard NBR 9050 [4] from
tered with the cooperation of society, with a view to the full Brazilian Association for Technical Standards (ABNT) on
development of the person, his preparation for the exercise accessibility was issued in 1985 [5], and was the basis for
of citizenship and his qualification for work’’ [25,26]. the implementation of universal design in Brazil. In 2004,
Please cite this article in press as: Paraizo CB, Bégin L. Inclusive educational perspective: A reflection for a future that
is already present today. Éthique et santé (2018), https://doi.org/10.1016/j.etiqe.2018.01.001
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4 C.B. Paraizo, L. Bégin
the universal design standard has become law upon Federal since it occurs exactly in the cooperation, reflection and
Decree 5.296. engagement [13]. According to Public Management Commit-
Currently, this movement has grown increasingly and tee (PUMA), an ethical structure is defined as the political
in diversified manner in both developed and developing engagement, an efficient legal aspect, efficient mechanisms
countries Concerning applicability, the legal scenario ranges of accountability, socialization mechanisms supported by
a lot and depends on the culture of each country, and the education, presence of a coordination body for ethical mat-
way each citizen is perceived within his society. ters, and a society made of citizens able to monitor the
governmental activities.
OECD [7] also states that synergy among several compo-
Ethical management nents of an ethical infrastructure will be based on cultural
traditions and political-administrative initiatives taken to
As indicated earlier, the rules and laws have been enacted promote the ethical behavior.
and updated over the years. However, considering the edu- A conduct that meets positively the social needs will be
cational scenario, and based on IBGE, PNUD, NU and other inseparable from an ethical behavior, thus being impossible
surveys, there is too much to be done. Each action requires not stress that ethics shall be considered as part of any kind
much more than a rule to govern it. To make the rule a of management, and as the basis for leadership [8].
reality, moral engagement and transparency by the parties In that consideration, education is the main tool for the
involved are lacking. Major condition required for action reduction of discrepancies involving the social and econom-
and reflective engagement to break and set forth new ical background of persons with disability, and as the means
paradigms, in addition to willingness of public government to enhance the inclusion, school shall be addressed as an
to provide legal support, is the need of having free and Institution guided by the possibility of an ethical manage-
independent moral agents. ment.
According to [14,15], ethics may be understood as the According to Bégin [8], ethical management is translated
analysis on the rule and value, ‘‘a normative speech analyzes as the respect among people, and integrity within personal
more the legal and axiological aspect of human action than and corporate practices. This author also stresses out that
the action itself’’ [29]. Ethics comes up as a possibility for ethical sense shall be an essential quality, and that this sense
solving the moral dilemmas that may arise in the institutions is part of the fulfillment of ethical principles, rules, values
and society. and competences, which are none other than the capacity
An irregular behavior of human action towards the to react to conflicts, and solve tensions from several number
respect to the other may, to a certain extent, be considered of possibilities. Actually, Bégin explains that competence is
as form of deviance. Understanding herein ‘‘irregular behav- not inserted in which is done, but exactly the manner some-
ior’’ as a synonym for lack of implementation of actions, thing is done. It is also said as the union of known, to know
normalized or not, to the benefit of the minority population. how to do, and to know to be in a community, and from the
Irregular is also understood as an inappropriate treatment, interaction of its participants.
the generation or permission of a non-egalitarian relation
between two groups socially labeled as unequal.
It is important to consider that the school, in addition Universal design
to being a place for learning and teaching, is also a com-
The purpose of Universal Design is the creation of spaces and
pany subordinated to the economic, social and cultural
means of communication to be used by all people, without
frameworks of the society where the school belongs to. To
discrimination of any kind. The idea in this concept herein is
understand the school as such means to assign the school
to foster spaces less adaptive and more inclusive for every-
features of an administration management, having orga-
one, irrespective their competences, so as to ensure they
nizational structure, work division, productivity, methods,
are naturally included in the environment without being
processes and technologies. The school has been seen as an
noticed by other people.
educative company tied to administration and reproduction
Flexibility and low physical effort are part of this
models so as to meet the demands from the labor market.
concept, as well as the intuitive manner it is presented
Alongside the interactive and participative practices thus
to enable the user to use it even without any previous
bringing up matters related to decentralization, participa-
experience.
tion and autonomy, as established in ethics management,
In Brazil, universal design is a concept whose potential
have been increasingly put into practice (OECD, 2009).
has to be further explored for fostering more responsible
According to Lacroix et al. [6,21], the ethics manage-
and engaged projects to be truly inclusive.
ment requires exactly the effort for availment of autonomy
Through the total of endless possibilities as for example:
and decentralization, so as all players will play participative
Use of non-slippery floor, installation of handrails, enough
and reflective roles. They also states that the complexity
space for wheelchairs, ramps and inclusive didactic materi-
and growing individualism in society may produce divergent
als will enable the creation of educational spaces to be used
standards and values, and believe that the right in its legal
for all [17].
aspect will give back to the community the need of reflective
action, and the claim for a new model of social organi-
zation targeting the dialogue, equality and perspective of Inclusive ergonomics
collectivity.
It is assessed if the ethical management may be used Ergonomics, or human factors is a discipline that deals with
as a strong tool to prevent from an inappropriate behavior, the comprehension of the interactions among human beings
Please cite this article in press as: Paraizo CB, Bégin L. Inclusive educational perspective: A reflection for a future that
is already present today. Éthique et santé (2018), https://doi.org/10.1016/j.etiqe.2018.01.001
+Model
ETIQE-447; No. of Pages 6 ARTICLE IN PRESS
Inclusive educational perspective 5
Please cite this article in press as: Paraizo CB, Bégin L. Inclusive educational perspective: A reflection for a future that
is already present today. Éthique et santé (2018), https://doi.org/10.1016/j.etiqe.2018.01.001
+Model
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6 C.B. Paraizo, L. Bégin
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Please cite this article in press as: Paraizo CB, Bégin L. Inclusive educational perspective: A reflection for a future that
is already present today. Éthique et santé (2018), https://doi.org/10.1016/j.etiqe.2018.01.001