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Perceived Control: How Is It Related to Daily Occupation

in Patients With Mental Illness Living in the Community?

Mona Eklund

KEY WORDS Perceived control is of significance in occupational therapy, as revealed in empirical research and suggested
• community in practice models. This study investigated the relationship between perceived control and occupational per-
• mental illness formance in persons with long-term mental illness. The 177 participants were assessed regarding perceived
control (locus of control and self-mastery) and occupational performance (activity level and satisfaction with
• occupation
daily occupations). Subgroups with respect to diagnosis and having gainful employment or not were also
• schizophrenia explored concerning the targeted association. The results indicated relationships between perceived control
and occupational performance in the sample as a whole and in all subgroups except that representing people
engaged in gainful employment or education. The latter was a surprising result, considering that the impor-
tance of perceived control was originally identified in the work science area. The results strongly supported that
perceived control should be included in the clinical reasoning of occupational therapists working in mental
health care.

Eklund, M. (2007). Perceived control: How is it related to daily occupation in patients with mental illness living in the com-
munity? American Journal of Occupational Therapy, 61, 535–542.

Mona Eklund, PhD, OT (reg), is Professor, Department erceived control, a belief that outcomes in life are the consequences of one’s own
of Health Sciences, Division of Occupational Therapy and
Gerontology, Lund University, PO Box 157, SE-221 00
P actions, has attracted attention in various research fields. Originally, interest in
perceived control was evoked in the work science area, because perceived control
Lund, Sweden; mona.eklund@med.lu.se.
was found to be vital for satisfaction with work (Aronsson, 1989; Jackson, 1989;
Karasek & Theorell, 1990). More recently, Bengtsson-Tops (2004) suggested that
perceived control was an important indicator of empowerment for people with
severe mental illness, and it has been shown to be important for their well-being,
quality of life, and functioning (Bengtsson-Tops, 2004; Eklund, Bäckström, &
Hansson, 2003; Hansson et al., 1999; Rosenfield, 1992). A sense of control, in
terms of perceived self-mastery, is an indicator of pervasive recovery, beyond
reduced symptomatology (Buist-Bouwman, Ormel, de Graaf, & Vollebergh, 2004;
Fava et al., 2001). Thus, perceived control has been shown to be related to health,
well-being, empowerment, and recovery, all of which constitute important treat-
ment goals in mental health care. Moreover, a recent study showed that perceived
control mediated the relationship between psychopathology and self-rated health
in persons with severe mental illness (Eklund & Bäckström, 2006). This finding
indicates that perceived control could be one missing link in explaining why
improvements on a symptomatic level often are not followed by improvements in
subjective well-being. Perceived control might thereby be a potential mediator
between therapeutic interventions that affect psychopathology and the subjective
feeling of health and should be explored further in the context of mental health
care.
Perceived control has been proposed to be an important determinant of human
occupation in occupational therapy models (Kielhofner, 1985, 1995). In the struc-
The American Journal of Occupational Therapy 535
ture “personal causation,” which is part of the motivational might mislead clinical practice. These were the reasons for
and intentional subsystem “volition” of the Model of Human the current study, further reinforced by the fact that no
Occupation (MOHO), the individual’s sense of control has empirical study seems to have specifically addressed the
been emphasized as important (Kielhofner, 1995). The question of how perceived control is related to occupational
model presupposes that perceived control is the main ingre- performance. Occupational performance may be studied
dient in an individual’s sense of efficacy, which, together with from different perspectives, one of which is satisfaction with
knowledge of capacity, forms personal causation. Thus, per- daily occupations, reflecting an experiential aspect of occu-
ceived control, regarded as a trait-like variable, is one of the pation. Another aspect is the individual’s activity level,
determinants of occupational performance (Henry & Coster, which has to do with actual doing. Experiential aspects of
1997; Kielhofner, 1995). In the most recent version of the occupation and actual doing have been shown to be differ-
MOHO (Kielhofner, 2002), locus of control and sense of ently associated with health and well-being in a recent study
efficacy have been replaced by self-efficacy, and control is used (Eklund & Leufstadius, in press), supporting the proposal
in the sense of self-control and control over one’s emotions that they constitute different aspects of occupation.
and actions. However, this article focuses on perceived con- Thus, previous research has distinguished perceived
trol as introduced by Rotter (1966) and adopted in the ear- control as a vital factor for recovery, health, and well-being
lier versions of the MOHO (Kielhofner, 1985, 1995), denot- among persons with mental disorders. Its role in relation to
ing the belief that outcomes in life are the consequences of daily occupation, both subjectively perceived aspects and
one’s own actions and control (internal locus of control) as actual doing, should be studied to gain knowledge of its rel-
opposed to being dependent on the initiative of others, luck, evance for clinical practice and for occupational therapy
faith, or other types of external control (external locus of con- theory. However, some factors need to be considered
trol). because they may influence the nature of these relation-
A literature search revealed few studies that had empiri- ships. Cognitive functions tend to be affected in persons
cally investigated the role of perceived control in occupa- with psychosis (Green, 1996; Green, Kern, Braff, & Mintz,
tional performance. In a study of persons with schizophrenia, 2000; Palmer et al., 2002); therefore, the relationships
Bengtsson-Tops (2004) showed that perceived control, in between perceived control and occupational performance
terms of self-mastery, was negatively related to unmet needs might look different in patients with psychosis compared
for care and support in areas such as daytime activities. with patients with other conditions. Whether persons have
Moreover, findings from a recent study indicated that both gainful employment also may be important for these rela-
locus of control and self-mastery were related to occupational tionships. Gainful employment has been shown to be
engagement in persons with schizophrenia (Bejerholm & related to perceived control in one sample of persons with
Eklund, 2007). Lederer, Kielhofner, and Hawkins Watts mental illness (Eklund, Hansson, & Bejerholm, 2001) but
(1985) found no differences in locus of control between not in another (Eklund, Hansson, & Ahlqvist, 2004).
delinquents and nondelinquents, but this nonfinding may The main aim of this study was to investigate the rela-
have been due to a small sample size. tionship between perceived control and occupational per-
Because perceived control is indicative of pervasive formance in persons with mental illness. A further aim was
recovery (Fava et al., 2001), its role in relation to daily occu- to elucidate these relationships with respect to subgroups—
pations should be explored. This proposed research may patients with psychosis versus patients with conditions
generate knowledge about how much attention should be other than psychosis, and patients engaged in gainful
paid to this phenomenon when devising occupational ther- employment or education versus patients who were unem-
apy interventions and methods of assessment, which are ployed or on sick leave.
important tasks in occupational therapy practice. Treatments
have been developed that specifically address perceived con-
trol, in terms of self-mastery (Gunatilake, Ananth, Methods
Parameswaran, Brown, & Silva, 2004; Starkey & Flannery, This study was based on two previously collected data sets
1997), and this type of intervention might be a potential from projects investigating the influence of daily occupa-
supplement to existing occupational therapy practices. Fur- tion on health and well-being in persons with mental illness
thermore, the significance of perceived control must be (Eklund et al., 2001, 2004).
investigated to validate occupational therapy models, such
as the MOHO (Kielhofner, 1995). Occupational therapy Participants
models should be tested for validity in empirical research Both projects were carried out in urban areas in southern
(Kielhofner, 2004; Mosey, 1986) because faulty models Sweden, and both included patients of working age with
536 September/October 2007, Volume 61, Number 5
severe mental illness. The first data set was generated from Those with gainful employment—defined as paid,
a sample selected from an outpatient unit for patients with open-market work—represented a variety of vocations. Sev-
severe mental illness (Eklund et al., 2001). Only patients enteen percent were unskilled workers or had service jobs
with schizophrenia or related disorders were chosen for that that did not require special education, such as stockroom
project. Consecutive sampling was used, and 74 patients worker or nurse assistant, whereas 27% were skilled work-
agreed to participate. ers or had service jobs that required special education, such
The second data set (Eklund et al., 2004) was collected as metalworker or nurse. Nineteen percent were trained in
in a sample from another outpatient unit for persons with a profession requiring a university degree, such as civil engi-
severe mental illness. The study by Eklund et al. (2001) neer or physician. For 37% of the employed participants,
showed that having gainful employment was of some the type of vocation was not known.
importance for satisfaction with daily occupations. There-
fore, a wider diagnostic criterion, “persistent mental illness,” Instruments
was used in this second sample (Eklund et al., 2004) to Perceived control was measured using two instruments, the
include a larger proportion of persons engaged in gainful Locus of Control (LOC) Scale (Rotter, 1966) and the Mas-
employment or education. Persistent mental illness was tery Scale (Pearlin, Menaghan, Lieberman, & Mullan,
defined in accordance with Ruggeri, Leese, Thornicroft, 1981). The LOC scale measures the extent to which an
Bisoffi, and Tansella (2000) as 2 years of contact with the individual perceives reinforcement to be a function of his or
psychiatric services. A randomized procedure was used for her own actions (internal control) or externally determined
the selection of participants. In all, 103 patients partici- (external control). A 4-point scale is used, in which a higher
pated in this project. value represents more external locus of control. The present
Informed consent was integrated in both sampling pro- study used a short form (8 items) of the Swedish version of
cedures, and the local research ethics committee approved the instrument (Eisemann, Perris, Palm, Palm, & Perris,
both projects. The participation rate was 62% in the 2001 1988). The LOC scale has fair internal consistency and
sample and 60% in the 2004 sample, which is comparable test–retest reliability (Rotter, 1966). The Mastery Scale
to or better than other studies on similar samples (e.g., measures self-mastery, defined as “the extent to which people
Bengtsson-Tops et al., 2005). Analyses comparing partici- see themselves as being in control of the forces that impor-
pants and nonparticipants indicated no differences in med- tantly affect their lives” (Pearlin et al., 1981, p. 340). The
ical condition, age, or gender, except in the 2004 sample Mastery Scale has 7 items, consisting of statements where
where the nonparticipants were marginally older than the control and influencing factors are addressed, and the
participants and the proportion of women was somewhat respondent rates how strongly he or she disagrees with those
greater among the nonparticipants. statements. For example, the first statement says: “There is
The two samples differed in definition of diagnosis and really no way I can solve some of the problems I have.” Each
proportion of participants engaged in gainful employment or statement is rated on a 4-point scale, from agree completely
education. However, for the purposes of this study, compar- to disagree completely, and a higher value indicates a higher
isons between the samples were not warranted, and further level of self-mastery. The Mastery Scale has been found to
on they are treated as a single study group. Some character- have good construct, predictive validity, and internal con-
istics of the study group as a whole can be found in Table 1, sistency (Marshall & Lang, 1990).
showing that patients diagnosed as having illnesses other Occupational performance was studied X not in its full
than psychosis and engaged in gainful employment or edu- complexity (Law et al., 1996) but from two aspects—satis-
cation formed minority groups. However, the numbers in faction with daily occupations and activity level. Both
these subgroups were large enough to detect moderate effect aspects were generated from the pilot version of the Satis-
sizes at p < .05 with 80% power (Altman, 1993). faction with Daily Occupations (SDO) instrument (Eklund
et al., 2001). The instrument comprises 7 items regarding
Table 1. Characteristics of the Participants (N = 177) the activity areas of work (4 items: being employed, being
Sociodemographic Variables Descriptive Statistics engaged in work during the past 2 months, participating in
Gender
work rehabilitation, and participation in community-based
Men 105
Women 72 activity centers), leisure activities (2 items: organized activi-
Mean age 40.3 years ties and individually enjoyed leisure), and domestic tasks (1
Married/cohabitating 58
Living with own children 41 item). Each item consists of a two-part question. The first
Number of participants working/studying 52 part queries whether the participant is performing that kind
Diagnosis of psychosis 134
of activity at the moment. The response format is yes/no.
The American Journal of Occupational Therapy 537
The second asks the participant to rate his or her satisfaction and occupational performance and the Mann–Whitney U
on a 7-point scale; that is, a person who performs domestic test for investigating group differences. To test whether the
tasks rates his or her satisfaction with being involved in such patients with conditions other than psychosis and those
activities, and a participant without involvement in domes- gainfully employed or studying formed separate or overlap-
tic tasks rates that condition. Two activity indexes can be cal- ping groups, a chi-square test was performed. To identify
culated from this scale. The first index reflects the level of the group affiliation of greatest importance to perceived
engagement in daily activities and is based on the first part control, a univariate analysis of variance was also used, with
of each question. In this index a maximum of 7 points can the group variables as fixed factors. The software used was
be obtained, 1 point for each activity that is presently per- SPSS 11.5, and the level of significance was set at p < .05.
formed. The second index concerns satisfaction with daily
activities and is expressed as a mean of the satisfaction rat-
ings. The final SDO has satisfactory content and construct Results
validity and good internal consistency (Eklund, 2004). The The levels of locus of control and self-mastery in the group
pilot version used in this study has exhibited good internal as a whole and in the subgroups are presented in Table 2.
consistency (Eklund et al., 2001) and, according to an anal- Group comparisons did not indicate any statistically signifi-
ysis made specifically for the present study, it correlates cant differences in self-mastery, but there was a tendency
strongly, rs = .98, with the final SDO. toward a higher level of perceived self-mastery in the sub-
group engaged in gainful employment or education. Regard-
Procedures ing locus of control, the subgroup without psychosis had a
Data collection was performed at the outpatient units over significantly lower value than the group with psychosis, indi-
6 months. Two occupational therapists were trained on the cating more internal locus of control, and the subgroup
interviews, one at each unit. They administered the instru- engaged in gainful employment or education scored signifi-
ments based on self-ratings and assisted the participants if cantly lower than those not working or studying.
necessary by reading the questions out loud. The collection In the sample as a whole, statistically significant rela-
of data took between 2 hr and 4 hr, usually split on two tionships were found between both measures of perceived
occasions. The interrater agreement was satisfactory con- control and the occupational performance estimates (see
cerning assessments that built on the interviewers’ ratings, Table 3). Significant correlations between these factors also
but no such data were analyzed for the present study. The were found for the subgroups representing patients with
psychiatrists in charge diagnosed the patients. In the 2001 psychosis and patients not engaged in work or education.
sample (Eklund et al., 2001), diagnoses were made accord- Regarding the patient group with conditions other than
ing to the DSM-IV system (American Psychiatric Associa- psychosis, the pattern of correlations found was similar,
tion, 1994), and in the 2004 sample (Eklund et al., 2004), except that a fairly strong relationship was found between
the diagnoses were based on the ICD-10 system (World self-mastery and satisfaction with daily occupations and
Health Organization, 1993). Different diagnostic systems that the association between locus of control and activity
were used because the clinical routines differed in this level was not significant. In the group engaged in gainful
respect between the two units. employment or education, no statistically significant rela-
tionships were found between perceived control and occu-
pational performance.
Data Analysis The chi-square analysis showed an overlap between
Because the instruments used were based on ordinal scales, belonging to the group without psychosis and the group
mainly nonparametric tests were used: Spearman correla- engaged in work or education. The expected value for this
tions for testing for associations between perceived control combination of groups identities was 12.6, and the observed

Table 2. Levels of Locus of Control and Self-Mastery in the Sample as a Whole and in Subgroups
Psychosis Nonpsychosis Working Not Working
Aspect of Perceived Control (n = 134) (n = 43) P Value (n = 52) (n = 125) P Value
Locus of control
Mean (SD)a 19.4 (4) 17.4 (3.7) .004 18 (3.2) 19.3 (4.2) .025
Self-mastery
Mean (SD)b 18.8 (4.4) 19.7 (4.4) .353 19.9 (4) 18.7 (4.6) .075
a
Higher values indicate more external locus of control.
b
Higher values indicate greater self-mastery.

538 September/October 2007, Volume 61, Number 5


Table 3. Correlations Between Estimates of Perceived Control in self-mastery than those diagnosed with a schizoaffective
and Occupational Performance Factors disorder. There were differences regarding locus of control
Occupational
Performance Factors
between subgroups based on both diagnosis and engage-
ment in work or education. However, the fact that the two
Satisfaction
Activity With Daily measures of control yielded different findings is not surpris-
Perceived Control Level Occupations ing, because they have been shown to be only moderately
Sample as a whole (N = 177) related (Eklund et al., 2001).
Self-mastery .33** .35**
Locus of control –.34** –.28** Significant associations were found in the sample as a
Patients with psychosis (n = 134) whole and in most of the subgroups between perceived con-
Self-mastery .33** .28**
trol and occupational performance, although the correla-
Locus of control –.34** –.22*
Patients without psychosis (n = 43) tions found were moderate or low. Strangely enough, espe-
Self-mastery .35* .57** cially when considering that the significance of perceived
Locus of control –.21 –.35*
Patients working/studying (n = 52) control was first acknowledged in studies of working life,
Self-mastery .18 .28 there were no statistically significant relationships between
Locus of control –.07 –.15
the measures of perceived control and occupational perfor-
Patients not working/studying (n = 125)
Self-mastery .33** .35** mance in the working and studying group. This lack of sig-
Locus of control –.36** .25** nificance could not be attributed to lack of statistical power,
*p < .05; **p < .001. because the correlations were low per se; nor could it be the
result of low variation in the perceived control variables, as
value was 22 (χ2 = 13, df = 1, p < .001). A univariate anal- indicated by the standard deviations given in Table 2.
ysis of variance (ANOVA) resulted in a significant model Checking the variation in the occupational perfor-
regarding locus of control (R 2 = .064, p = .01). Having a mance variables also indicated a high degree of variability.
psychosis was the most important variable in explaining Indeed, it seems that perceived control in the working/
locus of control, and no interaction between the group vari- studying group was not related to the participants’ activity
ables was indicated. The corresponding analysis for self- level or satisfaction with daily occupations; however, the
mastery yielded nonsignificant findings. reason for this remains obscure. A tentative explanation
could be inferred from results from previous studies on
locus of control and sick leave, showing that people who
Discussion returned to work exhibited a more external locus of control
The results of this study mainly supported the idea that per- than those who remained on sick leave (Hansen, Edlund, &
ceived control is important for people’s occupational per- Henningsson, 2006; Hansen Falkdal, 2005). The explana-
formance, as suggested in the MOHO (Kielhofner, 1995, tion given was that working people have to take heed of
2002). There was a difference between the working/study- employers and workmates, in turn being explained as an
ing subgroup and the others, indicating more external locus adaptive cognitive style that probably makes their locus of
of control in the subgroup not working or studying. This control develop in the external direction. Thus, participat-
finding also is in accordance with the results of a recent ing in gainful employment leads to demands on consider-
study on locus of control and sick leave in a diagnostically ing the will of other people and of compromising, which
heterogeneous group (Hansen, Edlund, & Bränholm, might lead to some consequences that trigger the individ-
2005). The findings showed that persons who were on sick ual’s internal locus of control and some that reinforce exter-
leave exhibited more external locus of control than a nal locus of control. This is merely a hypothesis, however,
healthy reference sample. The study by Hansen et al. was which should be tested in future research.
based on the 40-item version of the locus of control instru- The studies within work science that have demon-
ment, but the scores obtained in the present study indicated strated the importance of control for work satisfaction and
more external control among these psychiatric patients than well-being have been performed on healthy, working popu-
in the heterogeneous sample on sick leave. lations, and the relationship might look different in samples
No differences were found between subgroups based of persons with a disability. That such differences may exist
on medical conditions or engagement in work/education was the reason the associations between perceived control
regarding self-mastery. This result is in contrast to the study and occupational performance were analyzed separately in
by Bengtsson-Tops (2004), who found differences between the different subgroups. However, the deviant result pattern
subgroups of patients with schizophrenia and showed that in the working/studying group—lower correlations than in
patients diagnosed with residual schizophrenia scored lower the other subgroups—was unexpected. Perhaps working
The American Journal of Occupational Therapy 539
conditions should not be too heterogeneous when studying (1998) showed that persons with schizophrenia had more
the impact of control, because different jobs probably difficulties in daily occupations than persons with other
require varying degrees of external locus of control, depend- medical conditions. The severity of the illness may be more
ing on the degree of work autonomy. Grouping together important than the diagnosis for people’s occupational life,
people representing different vocations, as in this study and however, and Brown (1998) and Nagle and associates
in the studies by Hansen and colleagues (2005, 2006), may (Nagle, Valiant Cook, & Polatajko, 2002) showed that per-
obscure possible relationships. The unexpected results and sons with schizophrenia performed fewer meaningful occu-
the nonfindings of this study and previous research regard- pations when their illness became worse. Thus, fluctuations
ing perceived control and occupational aspects (Erlandsson in stage of illness might explain inconsistent findings
& Eklund, 2003; Hansen et al., 2006) suggest that the role regarding the significance of diagnosis for occupational per-
of perceived control should be further explored both in the formance. Moreover, the severity of the illness may be con-
occupational therapy context and in work science. tingent on an individual’s opportunity to lead a meaningful
Interestingly, perceived control was related to both activ- and active life, suggesting that the relationship between par-
ity level and satisfaction with daily occupations. Otherwise, ticipation in meaningful occupation and illness severity is
locus of control and self-mastery are variables closely related dynamic (Emerson, Cook, Polatajko, & Segal, 1998).
to the self (Eklund et al., 2003), and their associations to the
satisfaction aspect of occupation might therefore have been Study Limitations
more prominent. The strongest association found was Regarding the analyses performed in this study, one could
between self-mastery and satisfaction with daily occupations, argue that nonparametric tests should have been used in all
but the prevailing pattern among the relationships was that cases, and a logistic regression analysis could have been an
activity level was as consistently related to perceived control alternative to the univariate ANOVA. However, a logistic
as was satisfaction with daily occupations. This finding sup- regression analysis requires a dichotomous dependent vari-
ports the notion that perceived control seems as important able, and dichotomization would have violated the variance
for the actual doing as for how the doing is perceived, which in the variables used to assess perceived control. Thus, a uni-
is in contrast to studies investigating relationships between variate ANOVA was chosen.
occupation and health, where findings indicate a more con- Another methodological problem of this study is the
sistent relationship between experiential aspects of occupa- fairly large proportion of nonparticipants. Although com-
tion and health (Aubin, Hachey, & Mercier, 1999; Eklund parable to the average participation rate in data collection
et al., 2001, 2004; Goldberg, Britnell, & Goldberg, 2002; on this target group (Bengtsson-Tops et al., 2005), the
Strong, 1998) than between actual doing and health (Eklund validity of the findings of this study should be discussed.
& Leufstadius, in press). The nonparticipants did not differ in any important way
Both diagnosis and employment were of importance from the participants regarding the variables considered
for the pattern of relationships that emerged between per- (diagnosis, age, and gender), but they probably represented
ceived control and occupational performance. The chi- an intermediate group with respect to severity of illness.
square analysis indicated an overlap between belonging to The more ill patients were probably more apt to decline
the group without psychosis and being engaged in gainful participation, and the more healthy ones were not included
work or education. To ascertain the relative importance of in the 2001 sample because of the selection procedure of
these influences, a univariate ANOVA was used. The result choosing persons who recently visited the unit. Moreover,
was nonsignificant for self-mastery and, therefore, could some demographic variables of potential importance for the
not reveal any primary influence. However, concerning relationships between perceived control and occupation
locus of control, the analysis suggested that having a psy- were not considered in this study, such as having children or
chosis was more important than not being engaged in work not, and living single or not.
or education for perceiving external locus of control. Con-
sidering that the majority of those with a psychosis had Theoretical Implications
schizophrenia, this result is in line with Starkey and Flan- In line with suggestions from occupational therapy theorists
nery (1997), who stated that loss of control is one of the (Kielhofner, 2004; Mosey, 1986) emphasizing the impor-
main characteristics of schizophrenia, expressed in terms of tance of empirical testing of occupational therapy models,
hallucinations and delusions. this study investigated the assumption inherent in the per-
Regarding diagnosis as a determinant of capacity for sonal causation structure of the MOHO, that perceived
work and other daily occupations, previous research has control is one of the determinants of people’s occupational
yielded inconsistent results. Haglund, Thorell, and Wålinder performance. This study could not reveal the direction of
540 September/October 2007, Volume 61, Number 5
such a relationship, but the results strongly support its exis- American Psychiatric Association. (1994). Diagnostic and statisti-
tence and thus validate the significance of one aspect of the cal manual of mental disorders (4th ed., rev.). Washington,
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