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▪ Object-oriented Model
• “Big Data”
o A magnification or expansion of the amount,
types, and level of detail of data that is
collected and stored.
o Involves high volumes of data compiled
from traditional, ordinary business activities,
as well as newer, nontraditional sources such
as social media.
• Outcome of Data Warehousing
o Data Mining
▪ The process of selecting, exploring,
and modeling large amounts of data
to discover previously unknown
relationships that can support
decision making.
▪ Data-mining software searches
through large amounts of data for
meaningful patterns of information.
o Online Analytical Processing
▪ Applications that respond to
commands by composing tables to
analyze different dimensions of
multidimensional data.
o Financial Data
▪ Primarily public and private
insurance claims.
▪ Managed care plans, hospital
discharge datasets, and revenue
cycle management organizations.
▪ Released by Department of Health
and Human Services (HHS).
o Logistic Data
▪ Pertaining to several aspects of
patient care.
▪ Care-team composition and staffing
metrics.
▪ Resource Utilization
• Service metrics (e.g.,
inpatient, outpatient, and
emergency department o Advantages of Patient Surveys
visits). ▪ Captures types of information for
• Medication usage. which patients are the best source.
• Performed diagnostic tests ▪ Well-established methods for
and procedure. survey design and administration.
o Quality Assessment ▪ Easy for consumers to understand
▪ Performance analyses of the service and relate to survey results.
providers (i.e., reviews of clinician
performance).
▪ Patient satisfaction surveys.
▪ Hospital quality measures.
o Advantages of Administrative Data
▪ Available electronically.
▪ Less expensive than obtaining
medical record data.
▪ Available for an entire population
of patients and across payers.
▪ Fairly uniform (and improving)
coding systems and practices.
o Challenges of Administrative Data o Challenges of Patient Surveys
▪ Limited clinical information. ▪ Cost of survey administration.
▪ Questionable accuracy for public ▪ Possibility of misleading results.
reporting because the primary • Questions are worded
purpose is billing. poorly.
▪ Completeness. • Survey administration
▪ Timeliness. procedures are not
• Patient Medical Records standardized.
o A patient's medical history and care. • Sampling bias.
o Increased the accessibility of patients’ files. • Response bias.
o To improve the ease and cost of using this • Comments from Individual Patients
information for quality measurement and o Anecdotal information, include any type of
reporting. information on health care quality that is
gathered informally as private Web sites
make it possible for health care consumers
to share their personal experiences with
health plans, hospitals, and, most
prominently, physicians.
o Advantages of Patient Comments
▪ Compelling to consumers to read
about other people’s experiences.
▪ Efficient means for conveying
information and influencing
people’s decisions and behavior.
o Challenges of Patient Comments
▪ Not an impartial assessment of
health care quality.
o Advantages of Patient Medical Records ▪ Not representative of the patient
▪ Rich in clinical detail. population.
▪ Viewed by providers as credible. ▪ Likely to have an undue influence
o Challenges of Patient Medical Records on people’s health care decision
▪ Cost, complexity, and time required making.
to compile data. • Standardized Clinical Data
▪ Trained staff must manually o Detailed information about the status of each
abstract information. patient at set time intervals
• Patient Surveys o The Minimum Data Set (MDS), the required
o Self-reported information from patients information for nursing homes, and the
about their health care experiences. Outcome and Assessment Information Set
o Reports on the care, service, or treatment (OASIS), the data required by Medicare for
received and perceptions of the outcomes of certified home health agencies, store the data
care. used in quality measures for these provider
types.
o Advantages of Standardized Clinical Data • Demographic Data
▪ Uses existing data sets. o Intrinsic
▪ Characterizes facility performance ▪ Physiological Characteristics:
in multiple domains of care. • Age
o Challenges of Standardized Clinical Data • Sex
▪ May not address all topics of • Height
interest. • Weight (to some extent)
Other Types of Health Data • Ethnicity
▪ May also include less obvious
characteristics, such as allergies:
food or medications.
o Extrinsic
▪ Often characteristics derived from
an individual’s environment and
lifestyle.
▪ May include:
• Address
• Marital Status
• Religion
• Employment (type,
location, and salary)
• Insurance Plan
• Wellness Data
o Commonly associated with fitness tracker.
o More recently: mHealth (mobile health).
o Electronic Medical Records
• Omics Data
o Broadly defined.
o Represents the study of information
contained within an individual’s genome and
the biological derivatives of these genes.
o Includes:
▪ Genes (Genomics)
▪ Gene Expression and RNA
(Transcriptomics).
▪ Proteins (Proteomics)
▪ Metabolites (Metabolomics)
▪ Lipids (Lipidomics)
o Pharmacogenomics has explored how omics
data can be utilized to identify the treatment
efficacy of various medications and
medication dosages for a particular
individual. • Clinical Data
o Diagnoses
▪ MIMIC provides two forms of
diagnosis information: ICD
Diagnosis and Diagnostic Related
Groups (DRG)
▪ ICD Diagnosis
• All codes are in the ICD-9
Standard.
• Ordered by priority.
o CPT Codes
▪ 5 digit codes.
▪ Diagnosis Related Groups (DRG) ▪ Three categories.
• Classification based on ▪ Category I
clinical factors and • Five-digit codes have
utilization of resources. descriptors which
• Two Types: All Payers correspond to a procedure
and Healthcare Financing or service.
Administration (CMS • Codes range from 00100-
DRGs) 99499.
• Patient classification ▪ Category II
scheme which provides a • Alphanumeric tracking
means of relating the type codes.
of patients a hospital treats • Used for execution
to the costs the hospital measurement.
incurs. • Often optional.
• Consist of classes of ▪ Category III
patients that are similar • Provisional codes for new
clinically and in terms of and developing
their consumption of technology, procedures,
hospital resources. and services.
• The All Patient DRGs • Codes were created for
(AP-DRGs) are an data collection and
expansion of the basic assessment of new
DRGs to be more services and procedures.
representative of non-
Medicare populations such
as pediatric patients.
• Each Base APR-DRG is
divided into 4 subclasses.
• Two types of subclasses:
Severity of Illness (SOI)
and Risk of Mortality
(ROM)
▪ Diagnosis codes are billing codes. anything put into a patient’s
o Medications medical charts.
▪ Extensive information is provided ▪ Include:
for the medications offered to • Patients’ Routine Vital
patients: Signs
• Dosage and Unit (1500 • Ventilator Setting
mg) • Code Status
• Form and Form Unit (3 • Mental Status
TAB) • Small things like bed
• Route (IV or PO) adjustments, etc.
o Same Drugs, Different Names o Tracking a Patient
▪ Since there are many forms of the ▪ Patients
same drug, MIMIC provides: • Every unique patient in
• Generic Sequence Number the database.
(GSN) ▪ Admissions
• National Drug Code • Every unique
(NDC) hospitalization for each
▪ RxNorm: platform which helps to patient.
map these ingredients. ▪ Icustays
o Clinical Notes • Every unique ICU stay in
▪ MIMIC provides detailed clinical the database.
notes across a range of categories: ▪ Services
• ECG • Clinical service under
• Respiratory which a patient is
• Radiology registered.
• Discharge Summary ▪ Transfers
• Rehab Services • Patient movement from
• Nursing/Other bed to bed within the
• Nutrition hospital, including ICU
• Pharmacy admission and discharge.
• Social Work ▪ Callout
• Case Management • Information regarding
• Physician when a patient was cleared
• Consult for ICU discharge and
o Microbiology and Lab Results when the patient was
▪ Contains both in-hospital actually discharged.
laboratory measurements and out of Data Quality in Healthcare
hospital laboratory measurements
from clinics which the patient has
visited.
▪ Contains:
• Value (can be non-
numeric)
• Unit (if appropriate)
• Flag (indicates whether
the value is considered
abnormal, using pre-
defined thresholds)
▪ Microbiology results capture data
from various cultures.
• Specimen which is tested
for bacterial growth.
• Organism that grew (none,
i.e. negative culture). • The Characteristics of Quality Healthcare Data
• Antibiotic testing. o Data Accuracy
o Chart Events ▪ Data that reflect correct, valid
▪ This is by far the largest table in values are accurate.
MIMIC and contains an immense ▪ Typographical errors in discharge
array of information, reflective of summaries and misspelled names
are examples of inaccurate data.
o Data Accessibility o Data Currency
▪ Data that are not available to the ▪ Many types of health care data
decision makers needing them are become obsolete after a period of
of no value to those decision time.
makers. ▪ A patient’s admitting diagnosis is
often not the same as the diagnosis
recorded on discharge.
o Data Definition
▪ Clear definitions of data elements
must be provided so that current
and future data users will
understand what the data mean.
o Data Granularity
▪ Sometimes referred to as data
atomicity.
▪ Individual data elements are
“atomic” in the sense that they
cannot be further subdivided.
o Data Comprehensiveness
▪ All of the data required for a
particular use must be present and
available to the user.
▪ Even relevant data may not be
useful when they are incomplete.
o Data Precision
▪ Precision often relates to numerical
data.
▪ Precision denotes how close to an
actual size, weight, or other
standard a particular measurement
is.
▪ Some health care data must be very
precise.
o Data Consistency o Data Relevancy
▪ Quality data are consistent. ▪ Data must be relevant to the
▪ Use of an abbreviation that has two purpose for which they are
different meanings is a good collected.
example of how lack of consistency o Data Timeliness
can lead to problems. ▪ Timeliness is a critical dimension
in the quality of many types of
health care data.