Вы находитесь на странице: 1из 12

35

jhn
This Too Shall Pass:
A Grounded Theory Study of Journal of Holistic Nursing
American Holistic Nurses Association
Filipino Cancer Survivorship Volume 31 Number 1
March 2013 35-46
© The Author(s) 2012
Allan B. de Guzman, PhD, Benito Christian B. Jimenez, RN, 10.1177/0898010112462066
Kathlyn P. Jocson, RN, Aileen R. Junio, RN, http://jhn.sagepub.com

Drazen E. Junio, RN, Jasper Benjamin N. Jurado, RN,


and Angela Bianca F. Justiniano, RN
University of Santo Tomas, Manila, Philippines

Considering the paucity of studies dealing with the holistic aspect of the cancer experience, this
grounded theory study seeks to conceptualize the process of cancer survivorship among Filipinos.
Twenty-seven Filipino cancer survivors were purposively selected, and a two-part instrument, specifi-
cally robotfoto and focus group interviews, was used to gather data. The Glaserian method of grounded
theory analysis was used, and extended texts were analyzed inductively via a dendrogram. Member
checking and correspondence were observed to validate the surfacing stages, leading to the conceptu-
alization of a theoretical model termed as the Ribbon of Cancer Survivorship. The said model describes
the trifling (living before), transfusing (accepting the reality), transforming (being strong), and tran-
scending (living beyond) phases of cancer survivorship. Ten interesting substages were also identified,
namely: tainting, desolating, disrupting, and embracing for the transfusing phase; tormenting, distress-
ing, awakening, and transfiguring for the transforming phase, and trembling and enlivening for the
transcending phase. The resulting theoretical model has clearly and successfully described the entire
process of cancer survivorship among Filipinos. It is hoped that the model be used as a reference for
future studies about cancer survivorship and as a guide for nurses in providing a more empathetic care
among cancer patients.

Keywords:  Philippines; cancer; cancer survivorship; grounded theory

Cancer is a leading cause of death worldwide, concerted efforts, it is projected that the number of
accounting for 7.6 million or around 13% of all cancer survivors will increase up to 3% every year
deaths in 2008 (World Health Organization, 2008). (Maddams et al., 2009).
However, the number of cancer survivors is increas- Cancer is perceived both as a bodily reflection
ing, primarily because of the technological advances and a human experience (Vivar, Whyte, & Mcqueen,
in early detection and treatment. In fact, cancer is 2009), encompassing a dynamic and lifelong process
now being viewed as a chronic disease that can be termed as “cancer survivorship” (Rasmussen, Hansen,
effectively treated and controlled (Mattioli, Montanaro, & Elverdam, 2010). It is described by Hewitt,
& Romito, 2010), as evidenced by the emergence of Greenfield, and Stovall (2006) as a distinct phase of
early detection techniques, efficacious therapies, cancer that follows primary treatment and lasts until
and screening programs for various cancers (Sant
et al., 2009). Top-of-the-line primary cancer thera- Authors’ Note: Please address correspondence to Allan B. de
pies are now being made available, with various Guzman, PhD, College of Nursing, College of Education, The
Graduate School, Cluster on Cultural, Educational and Social
advances currently aimed toward secondary and Issues, University of Santo Tomas, Manila 1015, Philippines;
comorbid cancer management. As a result of these e-mail: abdeguzman@mnl.ust.edu.ph.

Downloaded from jhn.sagepub.com at NANYANG TECH UNIV LIBRARY on June 2, 2015


36  Journal of Holistic Nursing / Vol. 31, No. 1, March 2013

recurrence or end of life. The definition of “survivor” Research Sample and Instrumentation
was later expanded to include family, friends, and
The researchers purposively recruited 27 respond-
voluntary caregivers who are affected by the diagno-
ents to participate in study. Eligibility criteria for
sis in any way (National Cancer Institute, 2006).
selection include the following: (a) cancer survivor
However, despite the increased importance of the
for at least 6 months, (b) 40 years and older, and
process of survivorship in the development of
(c) able to follow oral and written directions.
patients’ quality of life beyond cancer, systematic
Respondents were excluded from the study if they
studies concerned with this matter of contention are
(a) have difficulties in communication and compre-
limited in nature (Bjordal, Mastekaasa, & Kaasa,
hension and (b) have a coexisting chronic condition,
1995; Mols, Coebergh, & van de Poll-Franse, 2007;
such as diabetes.
Rao & Demark-Wahnefried, 2006). Additionally,
The researchers used a two-part instrument to
studies on cancer survivorship are not yet well-
surface the process of acceptance, fortitude, and
developed and findings about cancer outcomes are
recovery among adult cancer survivors. The first
poor and insufficient (Mattioli et al., 2010). The
part, as shown in Table 1, is the subject’s robotfoto,
impact of cancer does not end after treatment and
a Dutch term defined as “a cartographic sketch of
that current approaches fail to address the full range
the subject” (Kelchtermans & Ballet, 2002) to estab-
of physical, psychological, social, spiritual, and
lish the baseline characteristics of the cancer survi-
financial needs that cancer survivors may have after
vors under study. It consists of circles and blank
treatment (Feuerstein, Hansen, Calvio, Johnson, &
spaces to obtain needed information. The second
Ronquillo, 2007; Vivar et al., 2009), further empha-
part is a focus group interview intended to elicit the
sizing the need to fully understand what these can-
respondents’ own experiences with regard to their
cer survivors go through as they undergo the process
path to recovery, guided by key interview questions
toward cancer survivorship. Hence, this article seeks
from the aide memoir. Three separate sessions were
to conceptualize the struggles of Filipino cancer
conducted to complete the total number of partici-
survivors with the acceptance of their condition and
pants: one for the 13 respondents previously diag-
their fortitude in dealing with its demands, ulti-
nosed with breast cancer, another for the 11 who
mately leading to the development of a theoretical
had colon cancer, and a third for the remaining 3
model that explains the process of survivorship
participants.
among these patients.

Data Collection and


Method Ethical Considerations
Beguiling the process of the phenomena, a trian-
Research Design gulation of data collection strategy was used. Prior
This qualitative investigation used the grounded to the data collection procedure, the participants
theory design. It is considered as a powerful means were asked to sign an informed consent and were
for collecting and analyzing qualitative research given a full explanation of the purpose and design of
data and is inductively derived from the study of the paper. On the permission of the participant to be
the phenomenon it represents (Allan, 2003; Glaser included in the study, focus group interviews were
& Strauss, 1967; Vijayan, 2009). Most grounded conducted based on the date and time of their avail-
theory studies undergo four stages of analysis, ability. Interview locations were also chosen by the
starting with coding or the identification of anchors participants themselves, with the assumption that
that represent salient points of the data being they will be more honest and comfortable in a famil-
studied. The resulting codes will then be subjected iar environment (de Guzman et al., 2009). It also
to concept grouping, and the emerging concepts aims to establish better rapport and to create an
will be classified according to distinct categories. emotionally stimulating environment between the
The final step in conducting grounded theory participants and the researchers. A semistructured
research is the formulation of a theory that explains interview was enforced in order to create a free-
the underlying process of the phenomenon being flowing conversation without any alterations in the
studied. focus and direction of the interview. Although most

Downloaded from jhn.sagepub.com at NANYANG TECH UNIV LIBRARY on June 2, 2015


Filipino Cancer Survivorship / de Guzman et al.  37

Table 1.  Demographic Profile key questions are in the aide memoir, follow-up
of the Respondents (n = 27) questions were also raised to further probe into the
n % participants’ responses during the interview. Each
Age (years)
interview was video-recorded and lasted for 1 to
41-50 5 18.5 2 hours. Respondents were assured of their confiden-
51-60 13 48.1 tiality and were reminded of their right not to answer
61-70 6 22.2
71-80 2 7.4 any question or to stop the interview at any time.
≥81 1 3.7
Gender
Male 4 14.8 Mode of Analysis
Female 23 85.2
Civil status
Single 3 11.1
In this investigation, data and information
Married 15 55.6 yielded from the robotfoto were analyzed descrip-
Separated 1 3.7 tively. Data from the focus group interviews were
Widowed 8 29.6
Type of cancer transcribed verbatim into field text for the purpose
Breast 13 48.1 of undergoing analyses required for grounded theory
Colon 11 40.7
Endometrial 1 3.7 research. Field texts were intensively read and reread
Ovarian 1 3.7 to facilitate identification of significant statements
Synovial 1 3.7
What stage or anchors through the process of cutting and sort-
I 6 22.2 ing. These significant statements then were sub-
II 12 44.4
III 5 18.5 jected into the Glaserian method of ground theory
IV 4 14.8 analysis. It involves the inductive grouping of related
Year of diagnosis
Earlier than 1996 1 3.7 codes via a dendrogram to facilitate theory develop-
1996-2000 7 25.9 ment (Glaser, 1992, 1998, 2004). Common state-
2001-2005 15 55.6
2006-2010 4 14.8 ments were clustered into categories, wherein 4
Treatment(s) received phases with 10 substages emerged from the various
Surgery 19 70.4
Radiotherapy 11 40.7 categories. These phases established a deeper under-
Chemotherapy 17 63.0 standing of the process of survivorship being experi-
Religion
Catholic 26 96.3 enced by cancer survivors. These phases were further
Non-Catholic 1 3.7 subjected into a series of member checking and cor-
Current living condition
Alone 1 3.7 respondence procedures to establish the trustwor-
With own family 26 96.3 thiness of the data collected, leading to the unfolding
Seek medical management
Yes 21 77.8 of the lebenswelt of the process of cancer survivor-
No 6 22.2 ship among Filipinos.
Occupation
Accountant 1 3.7
Business executive 2 7.4
Dentist
Driver
1
2
3.7
7.4
Findings
Employee 3 11.1
None 13 48.1 From the richness and thickness of the descrip-
Professor 1 3.7
Vendor 4 14.8 tions given by the respondents, a distinct and inter-
Monthly family income esting set of phases has emerged, dubbed as the
(pesos)
<25,000 12 44.4 Ribbon of Cancer Survivorship. It describes the pro-
25,000-49,999 7 25.9 cess of trifling, transfusing, transforming, and tran-
50,000-74,999 2 7.4
75,000-99,999 2 7.4 scending among Filipino cancer survivors, as seen
≥100,000 4 14.8 in their individual and collective experiences and
Family orientation
Nuclear 6 22.2
discernments.
Extended 21 77.8
Support system
Parents 9 33.3 Trifling Phase: Living Before Cancer
Siblings 16 59.3
Friends 17 63.0 Looking back, participants reflected on their ear-
Relatives 15 55.6
Spouse 17 63.0 lier lives before they were diagnosed of having can-
Children 8 29.6 cer, termed as the trifling phase of cancer survivorship.

Downloaded from jhn.sagepub.com at NANYANG TECH UNIV LIBRARY on June 2, 2015


38  Journal of Holistic Nursing / Vol. 31, No. 1, March 2013

It encompasses their moments of indifference and When I heard that it was cancer, of course your
negligence toward their health before they were diag- initial reaction, you would be crying.
nosed. Life for them was easy and some have even
verbalized that the only thing that preoccupied them I couldn’t get up from bed, and I used to lie all the
back then was work. As one participant enunciated, time. Then, I suddenly lost hope in life.
“Life for me was easy; I was busy with my work.”
Another one articulated, “Our lives were just normal. Each day that passes, they experienced certain
We’re working on our jobs.” Some of the participants bodily changes, reflecting the severity of the disease
have also recalled that they used to be hyperactive in condition. As one participant expressed, “I was terri-
a sense that they indulge themselves into their work fied, and I couldn’t even feel any sensation. Why was
too much. Majority of the participants have also it like that?” This period in the process of accept-
described their former selves as someone who was ance, known as the tainting stage, binds the partici-
healthy and cheerful, while one participant put it as pants together in their journey through cancer. One
being a happy-go-lucky person. On the other hand, respondent had mentioned, “It was as if heaven and
some have admitted that they are negligent in terms Earth collided unto me.” During these trying times,
of their health as one participant verbalized, dark clouds always seem to hover above their heads
while being blanketed by sorrow and hopelessness.
I was abusive when it comes to my body. I was a Some of them responded,
drunkard, I was a driver then I would work for about
It was more than “Ondoy” [a strong typhoon in the
24 hours driving a taxi. I would drink myself to sleep
Philippines]. It was devastating.
and then I would eat barbeques. I didn’t even know
that was bad for my health.
We were sure we’re going to die.

Another participant also shared, “Formerly, After surpassing this gloomy moment in their
I used to go against the flow” in a sense that she lives, the participants gradually moved on to the
does not even follow advice from other people in next state called the desolating stage. In this
terms of her health. stage, they portray a depressing disengagement.
In the beginning, they keep to themselves, not
Transfusing Phase: uttering words that might hint to others that they
Accepting the Reality of Cancer had cancer, as one of the survivors expressed, “At
first, I just kept it to myself, and before, I was
The process of acceptance in one’s journey hesitant to join others.” For most participants, it
toward cancer survivorship is marked as the transfus- was not very easy to accept the reality, and they
ing phase in the Ribbon of Cancer Survivorship. A felt an overwhelming uproar of thoughts and emo-
person is said to be experiencing a so-called “trans- tions. Most of them turned to prayer and com-
fusion” once the unfortunate event of being diag- pletely submitted themselves to God. They had
nosed with cancer happens, resulting to an asked Him why such thing happened to them,
overwhelming amount of stress and emotional upset and when all their efforts seemed to have gone to
dealt on the person. One can be observed to be waste, they resorted to bargaining, as reflected by
instilled with shock, denial, and negativity in the their responses:
initial stages of finding out about their condition,
but then struck with sanguinity, as they slowly move I’m still too young to die.
toward acceptance.
It is interesting to note that the participants had It is hard to accept. Actually, I asked the Lord,
undergone different stages in the process of accept- “Why me?”
ing the reality that they indeed were suffering from
cancer. They had never thought that they would ever I bargained and said, “Lord, I want to believe that
be diagnosed with the disease, so they were all very my mission is already done, but I’m still young; I can
shocked at first. Some participants shared their ini- still do a lot of things. Give me another chance to
tial responses: serve You.”

Downloaded from jhn.sagepub.com at NANYANG TECH UNIV LIBRARY on June 2, 2015


Filipino Cancer Survivorship / de Guzman et al.  39

After some time, wallowing in their sadness, prayer and surrendered their lives to God, thanking
the participants transitioned into a somehow, more Him for each day that they are alive and for the
accepting state of mind called the disrupting state. opportunity to fulfill their mission in life.
This took place when they experienced bothersome
alterations in their everyday lives, and had to learn I lift it all up to the Lord. I lift up everything to Him.
how to deal with their insecurities. As most of them
verbalized, It’s prayer, what’s most important. Pray to Him
because He will really guide you and the ultimate
I really felt incomplete deep inside. pillar is God.

Let’s say I have a meeting at 1 p.m. I have to prepare We still have a mission on this Earth. Why do
while it’s still early because I have to tend to this I believe in that? It’s because He’s keeping me alive.
[colostomy].
I asked God, “Is it time to go?” And if it’s not time
It’s like there’s an abnormality with your movements. to go, that means You have something for me to do.
And if You want me to do something, I am deaf and
Finally, the embracing stage defines the last step blind. You drop it on my lap. That’s what He did,
of the participants’ experience of acceptance, where exactly.
their openness to disclose their condition to their
loved ones became more apparent and learned to Transforming Phase: Being
accept facts and face the truth that they have can-
Strong in the Midst of Cancer
cer. While developing an optimistic perspective
along the way, their readiness to embark on a new Eventually, one progresses from a state of denial,
chapter was typified by their tendency to share fear, and hopelessness to a state of acceptance and
their strategies in overcoming this overwhelming positivity. This phase is represented in the Ribbon of
battle against the disease with others. As shared by the Cancer Survivorship as the transforming phase. A
participants: cancer patient is assumed to be in the process of
“transformation” when he goes through a variety of
If you have a positive outlook, healing process will changes in his attitude toward cancer and life. This
hasten. phase takes into account four substages, namely tor-
menting, distressing, awakening, and transfiguring.
We just believe that we’re already healed. Then In the process of facing cancer, one of the most
you’ll find yourself very happy and contented. crucial stages one experiences is the overwhelming
sense of emotional torture. This burden was described
Interestingly, almost all the participants devel- to be unbearable and painful, as other aspects of
oped a kind of vigilance and awareness of the other their existence were affected by the drastic changes
aspects of their lives. They found themselves taking that their condition has brought on them as well as
more risks and becoming more appreciative of life. their families and friends. This point in the process
typifies the tormenting stage, for it lumbered down
We don’t take ourselves for granted anymore. We the lives of these unsuspecting individuals.
don’t think we’re Superman.
It is very hard for me to have this!
We eventually learned to accept it, and we feel that
we’re better people. We’re better women, because I am shouting because of pain!
we look at other things like, our love for our
children, our love for our spouses, and all the better I really refused chemotherapy. I don’t want to feel
things in life. We realized that we should be thankful miserable with how you feel.
for so many things.
When I was in the dark, thick walled room, I imagined
As shown, spirituality has become integral in the that I was already dead, and I was 6 feet under the
growing of ease of the participants. They turned to ground.

Downloaded from jhn.sagepub.com at NANYANG TECH UNIV LIBRARY on June 2, 2015


40  Journal of Holistic Nursing / Vol. 31, No. 1, March 2013

As a consequence of the tormenting phase, one sooner or later, one develops a more positive outlook
undergoes a state of isolation from society, mostly in life; and eventually, rebuilds oneself into a faith-
because of the social stigma that comes with cancer. fully strong person. This process may be described
Since most of the participants had external indica- as the transfiguring phase, wherein one undergoes
tors of their disease (mastectomies, colostomies), metamorphosis, from a confused person to a com-
they had a hard time accepting the fact that they are pletely ideal strong person. As some of the partici-
now incomplete, disrupting their body image, rela- pants verbalized,
tionship with society, and overall self-esteem. This
can be described as the distressing stage of cancer I did not take any medicine, I only took daily
survivorship because of the emotional and psycho- prayers! I started to rebuild myself! I became very
logical struggles that these people encounter. As happy again! I forgot being materialistic! In fact, it
shown in their articulations, was very easy for me to accept and let go when lots
of my expensive jewelries were stolen!
Imagine having only one breast! We feel we are not
females anymore. The only visible identity of women When I was operated I did not think that that would
is having breasts! be my last. It was nothing to me. I was not scared.
It didn’t enter my thoughts, that when I get home
Imagine you cannot wear fashion clothes anymore! from the hospital I might end up somewhere else.
No more plunging necklines! My faith was in God, I believed that when I get out
I’d be healthy!
A lot of people are saying, ‘That’s gross!

Imagine their insults! It is a very big shame for us! Transcending Phase:
Living Beyond Cancer
Over time, when one has imbibed the essence of The last facet of the Ribbon of Cancer
this painful experience, the distressing stage for- Survivorship is the transcending phase, which speaks
wards itself into an increasingly positive view toward of the extension of the person’s consciousness onto
the experience. The participants were enlightened in others, gathering their experiences about cancer and
a way that they have risen from their misery and going beyond themselves to help and inspire other
began reconnecting with others. They started to people currently suffering the condition. The partici-
change for the better as well as making amends with pants also shared the process that they have under-
their Creator. Thus, these moments in their lives are gone after learning about their full recovery from
collectively termed as the awakening stage. This cancer. Though they were assured that they were
described how they were struck with enlightenment, fully healed, the thought of possible recurrence was
and how it urged them to face their most challeng- always present in their minds, to the point that they
ing hurdle head-on. They bravely shared, feel they still suffer the condition. This is termed as
the trembling stage of cancer survivorship. While it
I believe that God forgave me and this is when I felt
can be seen in Figure 1 that this stage is part of the
at peace, when I accepted its totality.
transcending phase, it is also interesting to note its
placement in the model. It was positioned near the
As if God whispered to me and said, “Go back to
transfusing phase because of the cyclical nature of
who you used to be!”
cancer. A possible recurrence predisposes the person
I noticed that my one breast was bigger than the to “fall back” to the earlier stages of tainting, desolat-
other one, but that’s it. Life went on, and I still ing, disrupting, and embracing. Some respondents,
continued running my business! for instance, shared the following:

I cherished every minute that I spend with them Even though I’m a survivor now, my doctor reminded
[my family and friends] me that there is always a possibility of recurrence.
On other cases, I was told that it might attack a
Indeed, through faith, as one submits himself to different organ the next time around. It’s a scary
God, one’s strength as a person is being boosted; thought.

Downloaded from jhn.sagepub.com at NANYANG TECH UNIV LIBRARY on June 2, 2015


Filipino Cancer Survivorship / de Guzman et al.  41

Some of them also expressed the desire to share


their experiences with other cancer sufferers. As
they pointed out, one can truly become empathetic
if he has actually experienced the condition already.
They hope that through their stories and advices,
they can somehow touch the lives of these people, as
reflected in these statements:

For us survivors, the only people that can fully


understand what we’ve gone through are our
co-survivors.

All of us have experienced the disease already. There


Figure 1.  Ribbon of Cancer Survivorship may be slight differences, but it’s essentially the
same.

We compare notes, we compare what medicine that


Not only am I scared of experiencing the physical we took, and what is the reaction that we had. So we
pain, but I can’t stand the fact that we’ll have to empower them and make them understand that
spend a lot of money again. they are not alone in their fight.

However, it is also important to understand that However, it should also be noted that while they
because a person has already gone through the whole were cancer free, all of them showed their determi-
experience of having cancer, he will more likely be at nation to stay that way through healthy lifestyle
ease toward facing the disease the second or third modifications. Cancer, as they say, made them a bet-
time around. As one respondent exemplified, ter person physically, very much unlike the person
that they were before the diagnosis. Some of their
When I had my recurrence, of course I was scared, responses include the following:
but not as scared as before. I was surprised, but
I was more equipped with knowledge the second We’re very vigilant now. That why we’re careful with
time around. Plus, I have my family, my friends, and what we eat. We avoid stress, if we can.
my support group with me, so it was definitely easier
for me to accept and survive once again. We’re now more health conscious, especially when
it comes to food. If we feel something, we go to the
However, if one does not have a recurrence of doctor immediately.
his cancer, he eventually reaches the enlivening
stage, which talks about the extension of one’s life Last, it is also interesting to note that most of
beyond the cancer experience. Most of the respond- them shared a positive change in their outlook in
ents shared their joy in making new friends and life. As they journey to life beyond cancer, they feel
forming strong bonds with them. They consider it as that it is important to learn from that experience in
a “blessing in disguise” because it made their lives order to blossom into a new person. Because of this
worth living for, not just during the disease process, “new life” God has given them, they now accept this
but most important, beyond the horrors of cancer. mission to guide those suffering from cancer in trav-
For example, they fondly said thus: elling the road to recovery. These realizations from
them include,
It’s just the same. It’s as if nothing happened. I had
more friends though, like in the cancer association. What I can say about cancer is that you can easily
It’s a good feeling to have more acquaintances. fight it off, especially if you are not alone. That is
why I’ll always be available to help them.
It’s so nice to bond with your fellow survivors. We
know each other, we laugh together, we cry together. Don’t postpone anymore; do what you can do now.
We understand each other, and we share so much. Do not take things for granted.

Downloaded from jhn.sagepub.com at NANYANG TECH UNIV LIBRARY on June 2, 2015


42  Journal of Holistic Nursing / Vol. 31, No. 1, March 2013

I’ll forever thank God for giving me another chance As their condition progresses, they then move to
to live. I know that He gave me this opportunity to the next stage wherein they experience the conse-
inspire other people who are currently suffering just quences of cancer dampening their spirits, which
like me before, and I’m very much willing to accept runs parallel with Zabora, BrintzenhofeSzoc,
that mission. Curbow, Hooker, and Piantadosi’s (2001) findings
that about 29% to 43% of cancer survivors have
manifestations of clinical depression. Furthermore,
Discussion the study also agrees with Passik and Grummon
(1998) that experiences after medical procedures
Considering the dearth of nursing literature and related activities associated with the treatment
encompassing the entire cancer experience, this study of cancer have significant effects on the memories
explores the process of cancer survivorship among a and feelings of a survivor, especially toward the
select group of Filipinos in a holistic lens. This development of fear of relapse when he achieves
resulted to the surfacing of the Ribbon of Cancer remission. In response to the diagnosis and treat-
Survivorship that consisted of 4 phases and 10 sub- ment of cancer, a considerable number of cancer
phases pertaining to the experiences cancer survivors patients also show symptoms of psychological dis-
undergo as they journey toward accomplishing remis- tress, such as embarrassment, fear, sadness, anger,
sion and survival. The said model has successfully depression, and anxiety (Kim et al., 2011). The
provided a rich description of what commences on respondents attest to this as they shared stories
each phase. For instance, the trifling phase serves as wherein they encountered moments of anxiety, inse-
a starting point for these survivors, unlike past studies curity, and difficulty in dealing with life as a cancer
concerning the process of cancer survivorship that patient.
only starts from the point at which the participants It was also suggested by the findings as well as
only started to learn about their diagnosis (Eliott & previous studies (Schilling, 1993) that ending up
Oliver, 2002; Walton, 1999; Walton & Sullivan, alone, living with illness, or an altered health status,
2004). It is integral in the study of cancer patients can “leave people alone with their body.” Several
and survivors alike that their premorbid states be participants even felt abandoned and helpless as
clearly defined, for it may have crucial implications they faced this sad plight in their life in solitude.
to their prognosis, coping, and overall quality of life They chose to keep this predicament to themselves,
(Klastersky, Schimpff, & Senn, 1999). feeling that they were the only ones having this
It is also interesting to note that one’s attitude encounter, and that no one else could possibly save
changed drastically from the moment they found out them from this dreadful occurrence. Moreover, the
they have cancer. The process of acceptance in a participants opted to hide their condition from soci-
cancer survivor’s journey toward cancer survivorship ety with fear of being treated differently, the end
then starts, and is represented by the transfusing product of which is isolation from being singled out
phase. From the initial moments of learning about as different from the rest. This observation is in
their diagnosis, it was found that the participants accordance with other findings (Kelly, Pearce, &
had experienced astonishment and disbelief, fol- Mullhall, 2004) that stress the tendency of newly
lowed by extreme sadness and anxiety. This stage is diagnosed cancer patients to withdraw themselves
termed as such because the participants seemed like from society.
they are being instilled with this burden they never Survivors are often left with the physical remind-
asked for. In this study, several accounts from the ers as a result of cancer and its treatment, such as
participants’ shared stories were deemed significant pain, fatigue, sterility, and loss of sexual function.
as they revealed stressful moments that lead them to Indeed, the aftermath of treatment has been
describe their lives to be “falling into pieces.” As described as worse than the disease itself (Doyle,
defined by the National Comprehensive Cancer 2008). They became aware of the changes they went
Network (2008) of the United States, distress is a through, and thus, surfaced a sense of insecurity
multifactorial unpleasant emotional experience of a with their bodies. Counterintuitively, these individu-
psychological, social, and spiritual nature that may als were imparted with a ray of hope and started to
interfere with the ability to cope effectively with finally blossom their way out of that abyss. Amidst
cancer. their fears and hardships, they got back on their feet

Downloaded from jhn.sagepub.com at NANYANG TECH UNIV LIBRARY on June 2, 2015


Filipino Cancer Survivorship / de Guzman et al.  43

and chose to live anew. They eventually shared their reconstruction undertaken in response to the experi-
resentment, instead of facing their challenges alone. ence of cancer (Lewis et al., 2010).
They learned to accept reality and did not just bear One final feature of the theoretical model that
it in silence. warrants discussion is the emergence of the tran-
Meanwhile, it is in the transforming phase scending phase of cancer survivorship. To “tran-
where cancer patients experience transference of scend,” in colloquial terminology, means to “go
their attitude toward cancer from a negative to a beyond,” and it is further described by Immanuel
positive light. Similarly, Lewis, Mooney-Somers, Kant as knowing how to experience things as they
and Kerridge (2010) associated cancer to a trans- were meant to be experienced (Powell, 1990; Wood,
formative experience, a promoter of change in 2005). To achieve transcendence, according to him,
one’s outlook in life, and a provider of much- one must develop a synthesis between his experi-
needed wisdom and insight. In a similar vein, ence per se and his self-consciousness of the experi-
Doyle (2008) also mentioned that the opportunity ence. It can also be seen in a phenomenological
to redefine oneself does not occur often in life, but sense by examining one’s collection of noema and
a cancer diagnosis may be one of those occasions the formed noesis (Solomon, 1977). The entire tran-
that this opportunity comes up. This notion is scending phase exemplifies these establishing, for it
unanimously backed up by a wealth of literature serves both as a culmination and a pinnacle of the
attesting to the transformative potential of cancer entire survivorship process.
(Breaden, 1997; DeMarco, Picard, & Agretelis, To have a better grasp of how transcendence
2004; Leigh & Logan, 1991; Meraviglia, 2006; develops in a cancer survivor, a deeper analysis of
Vachon, Cerhan, Vierkant, & Sellers, 2001; Wallwork the entire process must be done first. As the partici-
& Richardson, 1994). pants start from the trifling phase, they advance to
In line with the tormenting and distressing sub- the process of accepting their situation, fulfilling the
stages in the study, wherein one experiences physi- “experience” requirement. A clearer understanding
cal and emotional agony as a response to the disease occurs within them as they go through the desolat-
process, numerous studies (Aziz & Rowland, 2003; ing and disrupting phases of accepting their situa-
Cheng, Thompson, Ling, & Chan, 2005; Dow, tion. Finally, they reach the embracing stage, where
2003; Mellon, Northouse, & Weiss, 2006) agree they integrate their past experiences of acceptance
that the negative aspects of being diagnosed with with their personhood in order to achieve self-
cancer are usually associated with biomedical issues, consciousness. This “subprocess” then repeats itself
such as depression, fatigue, pain, dyspnea, cognitive during the transforming phase, ultimately leading to
impairment, sterility, and loss of sexual function. these cancer survivors not only achieving self-
Moreover, fear of social isolation and loss of signifi- consciousness of what has transpired, but also con-
cant relationships or roles can have a great impact sciousness beyond their own, which is transcendence
on a person’s chances of surviving cancer, as affirmed in its purest form.
by past research (Deimling, Sterns, Bowman, & Interestingly, a substage termed as the trembling
Kahana, 2005; Mellon et al., Weiss, 2006; Vachon et stage surfaced as a part of the transcending phase,
al., 2001). primarily dealing with the most common fear among
Notably, as one surpasses the course of treat- cancer survivors: the fear toward recurrence (Passik
ment and endures the fight for survival, he experi- & Grummon, 1998). It is important to note that, as
ences an adjustment in his attitude and outlook in implied in the findings, this stage has a two-way
life. As evinced in the study, participants were driven path. Its proximity with the transfusing phase
from their wretchedness and began relating with emphasizes the potential of cancer survivorship to
others. Getting support from the people around become a cyclical process, should recurrences occur.
them and with a substantial faith in God, they However, it is also an imperative to understand that
develop a more positive viewpoint and, in due because of the awareness and support systems
course, transfiguring into a more resilient personal- formed during the first encounter with cancer, those
ity. This is embodied in the Ribbon of Cancer suffering from recurrences will generally have an
Survivorship as the awakening and transfiguring sub- easier time when dealing with the demands of their
phases. This metamorphosis is termed as biological disease condition. Another point to remember as
revisioning, which speaks of the process of identity health care providers when taking care of these

Downloaded from jhn.sagepub.com at NANYANG TECH UNIV LIBRARY on June 2, 2015


44  Journal of Holistic Nursing / Vol. 31, No. 1, March 2013

people is that this fear toward recurrence is usually theoretical model in the field. Nurse educators, stu-
permanent in nature, coinciding with the notion dents, and practitioners will also benefit from the
that survivorship is a lifelong process (Rasmussen study, because they can now identify the process of
et al., 2010). Whether they were warned by their recovery among their cancer patients in a holistic
physicians about the possibility of recurrence or not, manner, and not just the biomedical cancer staging
recurring thoughts about their past bouts with can- that nurses are more familiar with. A more empathetic
cer nevertheless prevail. nursing care will then be provided because of their
Meanwhile, if ever recurrence does not occur, a clearer understanding of their patients’ experiences.
cancer survivor will eventually reach the enlivening The utilization of the Glaserian grounded theory
phase of survivorship, wherein one uses his new- method allowed the researchers to inductively and
found strength and awareness in inspiring others creatively explore for phases of cancer survivorship.
who are currently battling the disease. The partici- This, in combination with the adequacy of the par-
pants themselves emphasized the major role of sup- ticipants, accounts for the richer description of the
port systems in one’s coping with cancer. It is very lebenswelt of Filipino cancer survivorship.
much natural for Filipinos to be social people, and As there was a preponderance of female partici-
this is especially evident during times of need or pants in the study, the researchers call for future
crises (Licuanan, 1988). They value the presence of grounded theory studies on cancer survivorship that
their support system as their “emotional sounding feature a more diverse gender mix in order to ade-
board,” especially when they know that these people quately capture the experiences of male respondents
have already experienced what they are currently as well. It is also suggested that further research be
going through. That is the reason most of the carried out covering other cancer types, as most of
respondents expressed their desire to fulfill their the participants in this study either had breast or
mission of inspiring others through their own experi- colon cancer. Last, it is recommended that applica-
ences. They believe that having concerned people to tions of this qualitative study be implemented on a
be with as one journeys through cancer can be ben- variety of demographic and cultural populations in
eficial in lessening the burden of the individual. This order to explore for additions or alterations in the
is backed up by past international studies (Ell, 1996; emerged theoretical model. Through these sugges-
Quittner, 1992; Wortman, 1984) stressing that tions, the researchers hope that this will all lead to a
meaningful cancer support systems has its place in better appreciation of the experiences of accept-
cancer management. ance, resilience, growth, and inspiration among
cancer survivors.

Conclusion
References
Corollary to the different issues concerning the
worldwide increase in the number of cancer survi- Allan, G. W. (2003). A critique of using grounded theory as
vors and its implications in cancer research, this a research method. Electronic Journal of Business Research
qualitative undertaking purported to describe the Methods, 2, 1-10.
process toward cancer survivorship among Filipinos. Aziz, N. M., & Rowland, J. H. (2003). Trends and advances
Four main phases emerged from the interviews done in cancer survivorship research: Challenge and opportu-
with the participants, namely, the trifling, transfus- nity. Seminars in Radiation Oncology, 13, 248-266.
ing, transforming, and transcending stages, providing Bjordal, K., Mastekaasa, A., & Kaasa, S. (1995). Self-
a greater understanding of how Filipino cancer sur- reported satisfaction with life and physical health in
long-term cancer survivors and a matched control group.
vivors go through the whole cancer experience, from
European Journal of Cancer Part B: Oral Oncology, 31B,
their lives before the disease to the point that they
340-345.
grow beyond the confines of their condition. This Breaden, K. (1997). Cancer and beyond: The question of
study introduces a theoretical model that will prove survivorship. Journal of Advanced Nursing, 26, 978-984.
to be integral in the development of nursing theory, Cheng, K. K. F., Thompson, D. R., Ling, W. M., &
research, and practice. The Ribbon of Cancer Chan, C. W. H. (2005). Measuring symptom prevalence,
Survivorship has its implications in future cancer severity and distress of cancer survivors. Clinical Effectiveness
survivorship studies by serving as a comprehensive in Nursing, 9, 154-160.

Downloaded from jhn.sagepub.com at NANYANG TECH UNIV LIBRARY on June 2, 2015


Filipino Cancer Survivorship / de Guzman et al.  45

de Guzman, A., Chua, V., Claudio, C. P., Consignado, C., 10th Global Conference on Making Sense of Health,
Consolacion, D. K., & Cordero, T. G. (2009). Filipino Illness & Disease, Oxford, England.
elderly’s sense of reminiscence, living disposition, and Licuanan, P. B. (1988). A moral recovery program: Building
end-of-life views. Educational Gerontology, 35, 610-633. a people—building a nation. In M. B. Dy (Ed.), Values in
Deimling, G. T., Sterns, S., Bowman, K. F., & Kahana, B. Philippine culture and education (pp. 35-54). Quezon
(2005). The health of older-adult, long-term cancer survi- City, Philippines: Ateneo de Manila University Press.
vors. Cancer Nursing, 28, 415-424. Maddams, J., Brewster, D., Gavin, A., Steward, J., Elliott, J.,
DeMarco, R. F., Picard, C., & Agretelis, J. (2004). Nurse Utley, M., & Moller, H. (2009). Cancer prevalence in the
experiences as cancer survivors: Part I-Personal. Oncology United Kingdom: Estimates for 2008. British Journal of
Nursing Forum, 31, 523-530. Cancer, 101, 541-547.
Dow, K. H. (2003). Challenges and opportunities in cancer sur- Mattioli, V., Montanaro, R., & Romito, F. (2010). The Italian
vivorship research. Oncology Nursing Forum, 30, 455-469. response to cancer survivorship research and practice:
Doyle, N. (2008). Cancer survivorship: Evolutionary concept Developing an evidence base for reform. Journal of Cancer
analysis. Journal of Advanced Nursing, 62, 499-509. Survivorship: Research and Practice, 4, 284-289.
Eliott, J., & Oliver, I. (2002). The discursive properties of Mellon, S., Northouse, L. L., & Weiss, L. (2006). A popula-
“hope”: A qualitative analysis of cancer patients’ speech. tion-based study of the quality of life of cancer survivors
Qualitative Health Research, 12, 173-193. and their family caregivers. Cancer Nursing, 29, 120-131.
Ell, K. (1996). Social networks, social support and coping Meraviglia, M. (2006). Effects of spirituality in breast cancer
with serious illness: The family connection. Social Science survivors. Oncology Nursing Forum, 31, 89-94.
& Medicine, 42, 173-183. Mols, F., Coebergh, J. W. W., & van de Poll-Franse, L. V.
Feuerstein, M., Hansen, J. A., Calvio, L. C., Johnson, L., & (2007). Health-related quality of life and health care utilisa-
Ronquillo, J. G. (2007). Work productivity in brain tumor tion among older long-term cancer survivors: A population-
survivors. Journal of Occupational and Environmental based study. European Journal of Cancer, 43, 2211-2221.
Medicine, 49, 803-811. National Cancer Institute. (2006). Estimated US cancer
Glaser, B. G. (1992). Basics of grounded theory analysis. Mill prevalence counts: Definitions. Retrieved from http://can-
Valley, CA: Sociology Press. cercontrol.cancer.gov/ocs/definitions.html
Glaser, B. G. (1998). Doing grounded theory: Issues and dis- National Comprehensive Cancer Network. (2008). NCCN
cussions. Mill Valley, CA: Sociology Press. distress management clinical Practice guidelines in oncol-
Glaser, B. G. (2004). Re-modelling grounded theory. Grounded ogy. Retrieved from http://www.nccn.org/professionals/
Theory Review, 4, 1-24. physician_gls/f_guidelines.asp
Glaser, B. G., & Strauss, A. L. (1967). The discovery of Passik, S. D., & Grummon, K. L. (1998). Posttraumatic
grounded theory: Strategies for qualitative research. Chicago, stress disorder. In J. C. Holland (Ed.), Psycho-oncology
IL: Aldine. (pp. 595-607). New York, NY: Oxford University Press.
Hewitt, M., Greenfield, S., & Stovall, E. (2006). From cancer Powell, C. (1990). Kant’s theory of self-consciousness. New
patient to cancer survivor: Lost in transition. Washington, York, NY: Oxford University Press.
DC: National Academies Press. Quittner, A. L. (1992). Re-examining research on stress and
Kelchtermans, G., & Ballet, K. (2002). The micropolitics of social support: The importance of contextual factors. In
teacher induction: A narrative bibliographical study on A. La Greca, L., Siegel, J. Wallander, & C. Walker (Eds.),
teacher socialization. Teaching and Teacher Education, Stress and coping in child health (pp. 85-115). New York,
18, 105-120. NY: Guilford Press.
Kelly, D., Pearce, S., & Mullhall, A. (2004). Being in the same Rao, A. V., & Demark-Wahnefried, W. (2006). Critical
boat: Ethnographic insights into an adolescent cancer unit. reviews in oncology and hematology, 60, 131-143.
International Journal of Nursing Studies, 41, 847-857. Rasmussen, D. M., Hansen, H. P., & Elverdam, B. (2010).
Kim, S. J., Rha, S. Y., Song, S. K., Namkoong, K., Chung, H. C., How cancer survivors experience their body encountering
Yoon, S. H., . . . & Kim, K. R. (2011). Prevalence and others. European Journal of Oncology Nursing, 14, 154-154.
associated factors of psychological distress among Korean Sant, M., Allemani, C., Santaquilani, M., Knijn, A., Marchesi, F.,
cancer patients. General Hospital Psychiatry, 33, 246-252. & Capocaccia, R. (2009). EUROCARE-4. Survival of
Klastersky, J., Schimpff, S. C., & Senn, H. J. (1999). cancer patients diagnosed in 1995-1999. Results and
Supportive care in cancer: A handbook for oncologists. commentary. European Journal of Cancer, 45, 931-991.
New York, NY: Marcel Dekker. Schilling, C. (1993). The body and social theory. London,
Leigh, S., & Logan, C. (1991). The cancer survivorship England: Sage.
movement. Cancer Investigation, 9, 571-579. Solomon, R. C. (1977). Husserl’s concept of the noema. In
Lewis, P., Mooney-Somers, J., & Kerridge, I. (2010, September). F. A. Elliston & P. McCormick (Eds.), Husserl Expositions
I just want to help people: Complicating young cancer survi- and appraisals (pp. 168-181). Notre Dame, IN: University
vors’ accounts of “being a better person.” Speech presented at of Notre Dame Press.

Downloaded from jhn.sagepub.com at NANYANG TECH UNIV LIBRARY on June 2, 2015


46  Journal of Holistic Nursing / Vol. 31, No. 1, March 2013

Vachon, C. M., Cerhan, J. R., Vierkant, R. A., & Sellers, T. A. Allan B. de Guzman handles pedagogy, management, and
(2001). Investigation of an interaction of alcohol intake research courses at both graduate and undergraduate levels in
and family history on breast cancer risk in the Minnesota the University of Santo Tomas. He has extensively published
Breast Cancer Family Study. Cancer, 92, 240-248. more than 75 articles in various ISI-listed journals and has
won national and international awards including the 2011
Vijayan, A. (2009). Grounded theory in cancer research.
Most Outstanding Teacher Award in higher education by the
Retrieved from https://sites.google.com/a/depaul.edu.in/
Metrobank Foundation.
de-paul-times/022009/020909
Vivar, C. G., Whyte, D. A., & Mcqueen, A. (2009). Again: The Benito Christian B. Jimenez graduated from the University of
impact of recurrence on survivors of cancer and family mem- Santo Tomas and currently a registered nurse.
bers. Journal of Clinical Nursing, 19(13-14), 2048-2056.
Wallwork, L., & Richardson, A. (1994). Beyond cancer: Kathlyn P. Jocson is is now a registered nurse and finished her
Changes, problems and needs expressed by adult lym- Bachelor of Science in Nursing degree from the University of
phoma survivors attending an out-patient clinic. European Santo Tomas.
Journal of Cancer Care, 3, 122-132.
Aileen R. Junio graduated Cum Laude from the University of
Walton, J. (1999). Spirituality of patients recovering from an Santo Tomas and presently a registered nurse.
acute myocardial infarction: A grounded theory study.
Journal of Holistic Nursing, 17, 34-53. Drazen E. Junio graduated from the University of Santo Tomas
Walton, J., & Sullivan, N. (2004). Men of prayer: Spirituality with a Bachelor of Science in Nursing degree and is at the
of men with prostate cancer: A grounded theory study. moment taking up Medicine at Pamantasan ng Lungsod ng
Journal of Holistic Nursing, 22, 133-151. Maynila.
Wood, A. (2005). Kant. Oxford, England: Blackwell.
Jasper Benjamin N. Jurado graduated Cum Laude from the
World Health Organization. (2008). Cancer fact sheet.
University of Santo Tomas and is now in his first year taking up
Retrieved from http://www.who.int/mediacentre/factsheets/
Medicine in the same university.
fs297/en/
Wortman, C. B. (1984). Social support and the cancer Angela Bianca F. Justiniano graduated from the University of
patient: Conceptual and methodologic issues. Cancer, 53, Santo Tomas and is currently a registered nurse.
2339-2362.
Zabora, J., BrintzenhofeSzoc, K., Curbow, B., Hooker, C.,
& Piantadosi, S. (2001). The prevalence of psycho-
logical distress by cancer site. Psychooncology, 10,
19-28.

Downloaded from jhn.sagepub.com at NANYANG TECH UNIV LIBRARY on June 2, 2015

Вам также может понравиться