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PedsQL Publications
Peer Reviewed Journal Publications
Varni, J. W., Delamater, A.M., Hood, K.K., Raymond, J.K., Chang, N.T., Driscoll, K.A., Wong,
J.C., Yi-Frazier, J.P., Grishman, E.K., Faith, M.A., Corathers, S.D., Kichler, J.C., Miller, J.L.,
Doskey, E.M., Heffer, R.W., & D. P. Wilson (in press). PedsQL 3.2 Diabetes Module for children,
adolescents, and young adults: Reliability and validity in type 1 diabetes. Diabetes Care.
Varni, J.W., Delamater, A.M., Hood, K.K., Raymond, J.K., Driscoll, K.A., Wong, J.C., Adi, S.,
Yi-Frazier, J.P., Grishman, E.K., Faith, M.A., Corathers, S.D., Kichler, J.C., Miller, J.L., Doskey,
E.M., Aguirre, V.P., Heffer, R.W., & Wilson, D.P. (in press). Diabetes symptoms predictors of
health-related quality of life in adolescents and young adults with type 1 or type 2 diabetes.
Quality of Life Research.
Varni, J.W., Delamater, A.M., Hood, K.K., Driscoll, K.A., Wong, J.C., Adi, S., Yi-Frazier, J.P.,
Grishman, E.K., Faith, M.A., Corathers, S.D., Kichler, J.C., Miller, J.L., Raymond, J.K., Doskey,
E.M., Aguirre, V.P., Heffer, R.W., & Wilson, D.P. (in press). Diabetes management mediating
effects between diabetes symptoms and health-related quality of life in adolescents and young
adults with type 1 diabetes. Pediatric Diabetes.
Nutakki, K., Varni, J.W., & Swigonski, N.L. (2018). PedsQL Neurofibromatosis Type 1 Module
for children, adolescents and young adults: Feasibility, reliability, and validity. Journal of Neuro-
Oncology, 137, 337–347.
Varni, J.W., Shulman, R.J., Self, M.M., Saeed, S.A., Zacur, G.M., Patel, A.S., Nurko, S., Neigut,
D.A., Franciosi, J.P., Saps, M., Denham, J.M., Dark, C.V., Bendo, C.B., & Pohl, J.F. (2018).
Perceived medication adherence barriers mediating effects between gastrointestinal symptoms
and health-related quality of life in pediatric inflammatory bowel disease. Quality of Life
Research, 27, 195–204.
Modi, A.C., Junger, K.F., Mara, C., Kellermann, T., Barrett, L., Wagner, J., Mucci, G. A., Bailey,
L., Almane, D., Guilfoyle, S.M., Urso, L., Hater, B., Hustzi, H., Smith, G., Herrmann, B., Perry,
M.S., Zupanc, M., & Varni, J.W. (2017) Validation of the PedsQL™ Epilepsy Module: A pediatric
epilepsy-specific health-related quality of life measure. Epilepsia, 58, 1920–1930.
Varni, J.W., Shulman, R.J., Self, M.M., Saeed, S.A., Patel, A.S., Nurko, S., Neigut, D.A., Saps,
M., Zacur, G.M., Dark, C.V., Bendo, C.B., & Pohl, J.F. (2017). Patient health communication
mediating effects between gastrointestinal symptoms and gastrointestinal worry in pediatric
inflammatory bowel disease. Inflammatory Bowel Diseases, 23, 704–711.
Varni, J.W., Shulman, R.J., Self, M.M., Nurko, S., Saps, M., Saeed, S.A., Patel, A.S., Dark, C.V.,
Bendo, C.B., & Pohl, J.F. (2017). Gastrointestinal symptoms predictors of health-related quality
of life in pediatric patients with functional gastrointestinal disorders. Quality of Life Research,
26, 1015-1025.
Nutakki, K., Varni, J.W., Steinbrenner, S., Draucker, C.B., & Swigonski, N.L. (2017).
Development of the Pediatric Quality Of Life Inventory Neurofibromatosis Type 1 Module items
for children, adolescents and young adults: Qualitative methods. Journal of Neuro-Oncology,
132, 135–143.
Varni, J.W., Shulman, R.J., Self, M.M., Saeed, S.A., Patel, A.S., Nurko, S., Neigut, D.A., Saps,
M., Franciosi, J.P., Denham, J.M., Zacur, G.M., Dark, C.V., Bendo, C.B., & Pohl, J.F. (2016).
Gastrointestinal symptoms predictors of health-related quality of life in patients with
inflammatory bowel disease. Journal of Pediatric Gastroenterology & Nutrition, 63, e186-e192.

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Junger, K.F., Mann, K.A., Guilfoyle, S.M., Morita, D.A., Varni, J.W., & Modi, A.C. (2016).
Development of the PedsQL™ Epilepsy Module: Focus group and cognitive interviews.
Epilepsy & Behavior, 62, 115-120.
Varni, J.W., Franciosi, J.P., Shulman, R.J., Saeed, S., Nurko, S., Neigut, D.A., Bendo, C.B., Patel,
A.S., Self, M.M., Saps, M., Zacur, G.M., Denham, J., Dark, C.V., & Pohl, J.F. (2015). PedsQL™
Gastrointestinal Symptoms Scales and Gastrointestinal Worry Scales in pediatric patients with
inflammatory bowel disease in comparison to healthy controls. Inflammatory Bowel Diseases,
21, 1115-1124.
Varni, J.W., Shulman, R.J., Self, M.M., Nurko, S., Saps, M., Saeed, S., Bendo, C.B., Patel, A.S.,
Dark, C.V., Zacur, G.M., & Pohl, J.F. (2015). Symptom profiles in patients with irritable bowel
syndrome or functional abdominal pain compared to healthy controls. Journal of Pediatric
Gastroenterology & Nutrition, 61, 323-329.
Varni, J.W., Nurko, S., Shulman, R.J., Self, M.M., Saps, M., Bendo, C.B., Dark, C.V., & Pohl, J.F.
(2015). Pediatric functional constipation gastrointestinal symptom profile compared to healthy
controls. Journal of Pediatric Gastroenterology & Nutrition, 61, 424-430.
Varni, J.W., Bendo, C.B., Shulman, R.J., Self, M.M., Nurko, S., Franciosi, J.P., Saps, M., Saeed,
S., Zacur, G.M., Dark, C.V., & Pohl, J.F. (2015). Interpretability of the PedsQL™ Gastrointestinal
Symptoms Scales and Gastrointestinal Worry Scales in pediatric patients with functional and
organic gastrointestinal diseases. Journal of Pediatric Psychology, 40, 591-601.
Varni, J.W., Bendo, C.B., Denham, J., Shulman, R.J., Self, M.M., Neigut, D.A., Nurko, S., Patel,
A.S, Franciosi, J.P., Saps, M., Yeckes, A., Langseder, A., Saeed, S., & Pohl, J.F. (2015).
PedsQL™ Gastrointestinal Symptoms Scales and Gastrointestinal Worry Scales in pediatric
patients with functional and organic gastrointestinal diseases in comparison to healthy controls.
Quality of Life Research, 24, 363–378.
Varni, J.W., Bendo, C.B., Nurko, S., Shulman, R.J., Self, M.M., Franciosi, J.P., Saps, M., & Pohl,
J.F. (2015). Health-related quality of life in pediatric patients with functional and organic
gastrointestinal diseases. Journal of Pediatrics, 166, 85-90.
Desai, A. D., Zhou, C., Stanford, S., Haaland, W., Varni, J.W., & Mangione-Smith, R.M. (2014).
Validity and responsiveness of the Pediatric Quality of Life Inventory (PedsQL) 4.0 Generic Core
Scales in the pediatric inpatient setting. JAMA Pediatrics, 68, 1114-1121.
Varni, J.W., Bendo, C.B., Denham, J., Shulman, R.J., Self, M.M., Neigut, D.A., Nurko, S., Patel,
A.S., Franciosi, J.P., Saps, M., Verga, B., Smith, A., Yeckes, A., Heinz, N., Langseder, A., Saeed,
S., Zacur, G.M., & Pohl, J.F. (2014). PedsQL™ Gastrointestinal Symptoms Module: Feasibility,
reliability, and validity. Journal of Pediatric Gastroenterology & Nutrition, 59, 347–355.
Lawitschka, A., Güclü, E.D., Varni, J.W., Putz, M., Wolff, D., Pavletic, S., Greinix, H., Peters, C.,
& Felder-Puig, R. (2014). Health-related quality of life in pediatric patients after allogeneic SCT:
Development of the PedsQL™ Stem Cell Transplant Module and results of a pilot study. Bone
Marrow Transplantation, 49, 1093–1097.
Panepinto, J.A., Torres, S., Bendo, C.B., McCavit, T.L., Dinu, B., Sherman-Bien, S., Bemrich-
Stolz, C., & Varni, J.W. (2014). PedsQL™ Multidimensional Fatigue Scale in sickle cell disease:
Feasibility, reliability and validity. Pediatric Blood & Cancer, 61, 171–177.
Varni, J.W., Curtis, B.H., Abetz, L.N., Lasch, K.E., Piault, E.C., & Zeytoonjian, A.A. (2013).
Content validity of the PedsQL™ 3.2 Diabetes Module in newly diagnosed patients with Type 1
Diabetes Mellitus ages 8-45. Quality of Life Research, 22, 2169–2181.

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Panepinto, J.A., Torres, S., Bendo, C.B., McCavit, T.L., Dinu, B., Sherman-Bien, S., Bemrich-
Stolz, C., & Varni, J.W. (2013). PedsQL™ Sickle Cell Disease Module: Feasibility, reliability and
validity. Pediatric Blood & Cancer, 60, 1338–1344.
Varni, J. W., Beaujean, A., & Limbers, C. A. (2013). Factorial invariance of pediatric patient self-
reported fatigue across age and gender: A multigroup confirmatory factor analysis approach
utilizing the PedsQL™ Multidimensional Fatigue Scale. Quality of Life Research, 22, 2581-
2594.
Franciosi, J.P., Hommel, K.A., Bendo, C.B., King, E.C., Collins, M.H., Eby, M.D., Marsolo, K.,
Abonia, J.P., von Tiehl, K.F., Putnam, P.E., Greenler, A.J., Greenberg, A.B., Bryson, R.A., Davis,
C.M., Olive, A.P., Gupta, S.K., Erwin, E.A., Klinnert, M.D., Spergel, J.M., Denham, J.M.,
Furuta, G.T., Rothenberg, M.E., & Varni, J.W. (2013). PedsQL™ Eosinophilic Esophagitis
Module: Feasibility, reliability and validity. Journal of Pediatric Gastroenterology & Nutrition,
57, 57-66.
Nutakki, K., Hingtgen, C.M., Monahan, P., Varni, J.W., & Swigonski, N.L. (2013). Development
of the adult PedsQL™ Neurofibromatosis Type 1 Module: Initial feasibility, reliability and
validity. Health and Quality of Life Outcomes, 11:21, 1-9.
Eiser, C., & Varni, J.W. (2013). Health related quality of life and symptom reporting: Similarities
and differences between children and their parents. European Journal of Pediatrics, 172, 1299-
1304.
Uzark, K., King, E., Cripe, L., Spicer, R., Sage, J., Kinnett, K., Wong, B., Pratt, J., & Varni, J.W.
(2012). Health-related quality of life in children and adolescents with Duchenne Muscular
Dystrophy. Pediatrics, 130, e1559-1566.
Varni, J.W., Kay, M.T., Limbers, C.A., Franciosi, J.P., & Pohl, J.F. (2012). PedsQL™
Gastrointestinal Symptoms Module item development: Qualitative methods. Journal of Pediatric
Gastroenterology & Nutrition, 54, 664-671.
Varni, J.W., Handen, B.L., Corey-Lisle, P.K., Guo, Z., Manos, G., Ammerman, D.K., Marcus,
R.N., Owen, R., McQuade, R.D., Carson, W.H., Mathew, S., & Mankoski, R. (2012). Effect of
Aripiprazole 2 to 15 mg/d on health-related quality of life in the treatment of irritability
associated with Autistic Disorder in children: A post hoc analysis of two controlled trials. Clinical
Therapeutics, 34, 980-992.
Panepinto, J.A., Torres, S., & Varni. J.W. (2012). Development of the PedsQL™ Sickle Cell
Disease Module items: Qualitative methods. Quality of Life Research, 21, 341-357.
Franciosi, J. P., Hommel, K. A., Greenberg, A. B., Debrosse, C. W., Greenler, A. J., Abonia, J. P.,
Rothenberg, M. E., & Varni, J. W. (2012). Development of the Pediatric Quality of Life
Inventory™ Eosinophilic Esophagitis Module items: Qualitative methods. BMC
Gastroenterology, 12:135, 1-8.
Varni, J.W., Globe, D.R., Gandra, S.R., Harrison, D.J., Hooper, M., & Baumgartner, S. (2012).
Health-related quality of life of pediatric patients with moderate to severe plaque psoriasis:
Comparisons to four common chronic diseases. European Journal of Pediatrics, 171, 485-492.
Varni, J.W., Limbers, C.A., Bryant, W.P., & Wilson, D.P. (2012). Assessment of fatigue in
pediatric patients with short stature utilizing the PedsQL™ Multidimensional Fatigue Scale.
Children's Health Care, 41, 162-181.
Varni, J.W., Limbers, C.A., Sorensen, L.G., Neighbors, K., Martz, K., Bucuvalas, J.C., & Alonso,
E.M. (2011). PedsQL™ Cognitive Functioning Scale in pediatric liver transplant recipients:
Feasibility, reliability and validity. Quality of Life Research, 20, 913–921.

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Varni, J.W., Limbers, C.A., Neighbors, K., Schulz, K., Lieu, J.E.C., Heffer, R.W., Tuzinkiewicz,
K., Mangione-Smith, R., Zimmerman, J.J., & Alonso, E.M. (2011). The PedsQL™ Infant Scales:
Feasibility, internal consistency reliability and validity in healthy and ill infants. Quality of Life
Research, 20, 45-55.
Limbers, C.A., Ripperger-Suhler, J., Heffer, R.W., & Varni, J.W. (2011). Patient-reported
Pediatric Quality of Life Inventory™ 4.0 Generic Core Scales in pediatric patients with
Attention-Deficit/Hyperactivity Disorder and comorbid psychiatric disorders: Feasibility,
reliability and validity. Value in Health, 14, 521-530.
Limbers, C.A., Ripperger-Suhler, J., Boutton, K., Ransom, D., & Varni, J.W. (2011). A
comparative analysis of health-related quality of life and family impact between children with
ADHD treated in a general pediatric clinic and a psychiatric clinic utilizing the PedsQL™.
Journal of Attention Disorders, 15, 392-402.
Weissberg-Benchell, J., Zielinski, T.E., Rodgers, S., Greenley, R.N., Askenazi, D., Goldstein,
S.L., Fredericks, E.M., McDiarmid, S., Williams, L., Limbers, C.A., Tuzinkiewicz, K., Lerret, S.,
Alonso, E.M., & Varni, J.W. (2010). Pediatric health-related quality of life: Feasibility, reliability
and validity of the PedsQL™ Transplant Module. American Journal of Transplantation, 10, 1677-
1685.
Davis, S.E., Hynan, L.S., Limbers, C.A., Andersen, C.M., Greene, M.C., Varni, J.W., &
Iannaccone, S.T. (2010). The PedsQL™ in pediatric patients with Duchenne Muscular
Dystrophy: Feasibility, reliability, and validity of the Pediatric Quality of Life Inventory™
Neuromuscular Module and Generic Core Scales. Journal of Clinical Neuromuscular Disease,
11, 97-109.
Varni, J.W., Limbers, C.A., Bryant, W.P., & Wilson, D.P. (2010). The PedsQL™
Multidimensional Fatigue Scale in pediatric obesity: Feasibility, reliability, and validity.
International Journal of Pediatric Obesity, 5, 34-42.
Seid, M., Limbers, C.A., Driscoll, K.A., Opipari-Arrigan, L.A., Gelhard, L.R, & Varni, J.W.
(2010). Reliability, validity, and responsiveness of the Pediatric Quality of Life Inventory™
(PedsQL™) Generic Core Scales and Asthma Symptoms Scale in vulnerable children with
asthma. Journal of Asthma, 47, 170-177.
Newman, D.A., Limbers, C.A., & Varni, J.W. (2010). Factorial invariance of child self-report
across English and Spanish language groups in a Hispanic population utilizing the PedsQL™ 4.0
Generic Core Scales. European Journal of Psychological Assessment, 26, 194-202.
Iannaccone, S.T., Hynan, L.S., Morton, A., Buchanan, R., Limbers, C.A., & Varni, J.W. (2009).
The PedsQL™ in pediatric patients with Spinal Muscular Atrophy: Feasibility, reliability, and
validity of the Pediatric Quality of Life Inventory™ Generic Core Scales and Neuromuscular
Module. Neuromuscular Disorders, 19, 805-812.
Limbers, C.A., Heffer, R.W., & Varni, J.W. (2009). Health-related quality of life and cognitive
functioning from the perspective of parents of school-aged children with Asperger's Syndrome
utilizing the PedsQL™. Journal of Autism and Developmental Disorders, 39, 1529-1541.
Limbers, C.A., Newman, D.A., & Varni, J.W. (2009). Factorial invariance of child self-report
across race/ethnicity groups: A multigroup confirmatory factor analysis approach utilizing the
PedsQL™ 4.0 Generic Core Scales. Annals of Epidemiology, 19, 575-581.
Varni, J.W., Limbers, C.A., Bryant, W.P., & Wilson, D.P. (2009). The PedsQL™
Multidimensional Fatigue Scale in Type 1 diabetes: Feasibility, reliability, and validity. Pediatric
Diabetes, 10, 321-328.

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Varni, J.W., & Limbers, C.A. (2009). The PedsQL 4.0 Generic Core Scales young adult
version: Feasibility, reliability and validity in a university student population. Journal of Health
Psychology, 14, 611-622.
Marcus, S.B., Strople, J.A., Neighbors, K., Weissberg-Benchell, J., Nelson, S.P., Limbers, C.A.,
Varni, J.W., & Alonso, E.M. (2009). Fatigue and health-related quality of life in pediatric
inflammatory bowel disease. Clinical Gastroenterology and Hepatology, 7, 554-561.
Steele, M.M., Steele, R.G., & Varni, J.W. (2009). Reliability and validity of the PedsQL™ Oral
Health Scale: Measuring the relationship between child oral health and health-related quality of
life. Children’s Health Care, 38, 228-224.
Varni, J.W., & Limbers, C.A. (2009). The Pediatric Quality of Life Inventory: Measuring
pediatric health-related quality of life from the perspective of children and their parents. Pediatric
Clinics of North America, 56, 843-863.
Varni, J.W., Limbers, C.A., & Newman, D.A. (2009). Using factor analysis to confirm the
validity of children's self-reported health-related quality of life across different modes of
administration. Clinical Trials: Journal of the Society for Clinical Trials, 6, 185-195.
Varni, J.W., Limbers, C.A., Newman, D.A., & Seid, M. (2008). Longitudinal factorial invariance
of the PedsQL™ 4.0 Generic Core Scales child self-report version: One year prospective
evidence from the California State Children's Health Insurance Program (SCHIP). Quality of Life
Research, 17, 1153-1162.
Varni, J.W., Limbers, C.A., Burwinkle, T.M., Bryant, W.P., & Wilson, D.P. (2008). The
ePedsQL™ in Type 1 and Type 2 diabetes: Feasibility, reliability, and validity of the Pediatric
Quality of Life Inventory™ Internet administration. Diabetes Care, 31, 672-677.
Limbers, C.A., Newman, D.A., & Varni, J.W. (2008). Factorial invariance of child self-report
across age subgroups: A confirmatory factor analysis of ages 5 to 16 years utilizing the PedsQL™
4.0 Generic Core Scales. Value in Health, 11, 659–668.
Varni, J.W., & Limbers, C.A. (2008). The PedsQL Multidimensional Fatigue Scale in young
adults: Feasibility, reliability and validity in a university student population. Quality of Life
Research, 17, 105-114.
Limbers, C.A., Newman, D.A., & Varni, J.W. (2008). Factorial invariance of child self-report
across healthy and chronic health condition groups: A confirmatory factor analysis utilizing the
PedsQL™ 4.0 Generic Core Scales. Journal of Pediatric Psychology, 33, 630-639.
Goldstein, S.L., Graham, N., Warady, B.A., Seikaly, M., McDonald, R., Burwinkle, T.M.,
Limbers, C.A., & Varni, J.W. (2008). Measuring health-related quality of life in children with
ESRD: Performance of the Generic and ESRD-Specific Instrument of the Pediatric Quality of
Life Inventory™ (PedsQL™). American Journal of Kidney Diseases, 51, 285-297.
Uzark, K., Jones, K., Slusher, J., Limbers, C.A., Burwinkle, T.M., & Varni, J.W. (2008). Quality
of life in children with heart disease as perceived by children and parents. Pediatrics, 121, e1060-
e1067.
Limbers, C.A., Newman, D.A., & Varni, J.W. (2008). Factorial invariance of child self-report
across socioeconomic status groups: A multigroup confirmatory factor analysis utilizing the
PedsQL™ 4.0 Generic Core Scales. Journal of Behavioral Medicine, 31, 401-411.
Varni, J.W., Limbers, C.A., & Newman, D.A. (2008). Factorial invariance of the PedsQL™ 4.0
Generic Core Scales child self-report across gender: A multigroup confirmatory factor analysis
with 11,356 children ages 5 to 18. Applied Research in Quality of Life, 3, 137-148.

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Varni, J.W., Limbers, C.A., & Burwinkle, T.M. (2007). How young can children reliably and
validly self-report their health-related quality of life?: An analysis of 8,591 children across age
subgroups with the PedsQL™ 4.0 Generic Core Scales. Health and Quality of Life Outcomes,
5:1, 1-13.
Varni, J.W., Limbers, C.A., & Burwinkle, T.M. (2007). Parent proxy-report of their children’s
health-related quality of life: An analysis of 13,878 parents’ reliability and validity across age
subgroups using the PedsQL™ 4.0 Generic Core Scales. Health and Quality of Life Outcomes,
5:2, 1-10.
Palmer, S.N., Meeske, K.A., Katz, E.R., Burwinke, T.M., & Varni, J.W. (2007). The PedsQL™
Brain Tumor Module: Initial reliability and validity. Pediatric Blood and Cancer, 49, 287-293.
Varni, J.W., Limbers, C.A., & Burwinkle, T.M. (2007). Impaired health-related quality of life in
children and adolescents with chronic conditions: A comparative analysis of 10 disease clusters
and 33 disease categories/severities utilizing the PedsQL™ 4.0 Generic Core Scales. Health and
Quality of Life Outcomes, 5:43, 1-15.
Varni, J.W., Burwinkle, T.M., & Seid, M. (2006). The PedsQL™ 4.0 as a school population health
measure: Feasibility, reliability, and validity. Quality of Life Research, 15, 203-215.
Varni, J.W., Burwinkle, T.M., Berrin, S.J., Sherman, S.A., Artavia, K., Malcarne, V.L., &
Chambers, H.G. (2006). The PedsQL™ in pediatric cerebral palsy: Reliability, validity, and
sensitivity of the Generic Core Scales and Cerebral Palsy Module. Developmental Medicine and
Child Neurology, 48, 442-449.
Chan, K.S., Mangione-Smith, R., Burwinkle, T.M., Rosen, M., & Varni, J.W. (2005). The
PedsQL: Reliability and validity of the Short-Form Generic Core Scales and Asthma Module.
Medical Care, 43, 256-265.
Varni, J.W., Burwinkle, T. M., & Seid, M. (2005). The PedsQL™ as a pediatric patient-reported
outcome: Reliability and validity of the PedsQL™ Measurement Model in 25,000 children.
Expert Review of Pharmacoeconomics and Outcomes Research, 5, 705-719.
Varni, J.W., Burwinkle, T.M., & Szer, I.S. (2004). The PedsQL Multidimensional Fatigue Scale
in pediatric rheumatology: Reliability and validity. Journal of Rheumatology, 31, 2494-2500.
Varni, J.W., Burwinkle, T.M., Rapoff, M.A., Kamps, J.L., & Olson, N. (2004). The PedsQL in
pediatric asthma: Reliability and validity of the Pediatric Quality of Life Inventory Generic
Core Scales and Asthma Module. Journal of Behavioral Medicine, 27, 297-318.
Varni, J.W., Burwinkle, T.M., Seid, M., & Skarr, D. (2003). The PedsQL 4.0 as a pediatric
population health measure: Feasibility, reliability, and validity. Ambulatory Pediatrics, 3, 329-
341.
Varni, J.W., Burwinkle, T.M., Jacobs, J.R., Gottschalk, M., Kaufman, F., & Jones, K.L. (2003).
The PedsQL in Type 1 and Type 2 diabetes: Reliability and validity of the Pediatric Quality of
Life Inventory Generic Core Scales and Type 1 Diabetes Module. Diabetes Care, 26, 631-637.
Uzark, K., Jones, K., Burwinkle, T.M., & Varni, J.W. (2003). The Pediatric Quality of Life
Inventory in children with heart disease. Progress in Pediatric Cardiology, 18, 141-148.
Varni, J.W., Burwinkle, T.M., Katz, E.R., Meeske, K., & Dickinson, P. (2002). The PedsQL  in
pediatric cancer: Reliability and validity of the Pediatric Quality of Life Inventory Generic
Core Scales, Multidimensional Fatigue Scale, and Cancer Module. Cancer, 94, 2090-2106.

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Varni, J.W., Seid, M., Knight, T.S., Burwinkle, T.M., Brown, J., & Szer, I.S. (2002). The
PedsQL in pediatric rheumatology: Reliability, validity, and responsiveness of the Pediatric
Quality of Life Inventory Generic Core Scales and Rheumatology Module. Arthritis and
Rheumatism, 46, 714-725.
Varni, J.W., Seid, M., Knight, T.S., Uzark, K., & Szer, I.S. (2002). The PedsQL 4.0 Generic
Core Scales: Sensitivity, responsiveness, and impact on clinical decision-making. Journal of
Behavioral Medicine, 25, 175-193.
Varni, J.W., Seid, M., & Kurtin, P.S. (2001). PedsQL 4.0: Reliability and validity of the
Pediatric Quality of Life Inventory Version 4.0 Generic Core Scales in healthy and patient
populations. Medical Care, 39, 800-812.
Varni, J.W., Seid, M., & Rode, C.A. (1999). The PedsQL: Measurement model for the Pediatric
Quality of Life Inventory. Medical Care, 37, 126-139.
Additional Publications
Listing, M., Mönkemöller, K., Liedmann, I., Niewerth, M., Sengler, C., Listing, J., Foell, D.,
Heiligenhaus, A., Klein, A., Horneff, G., Ganser, G., Haas, J.P., Klotsche, J., & Minden, K. (in
press). The majority of patients with newly diagnosed juvenile idiopathic arthritis achieve a
health-related quality of life that is similar to that of healthy peers: Results of the German
multicenter inception cohort (ICON). Arthritis Research & Therapy.
Anderson, B.J., Laffel, L.M., Domenger, C., Danne, T., Phillip, M., Mazza, C., Hanas, R.,
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Rainone, N., Chiodi, A., Lanzillo, R., Magri, V., Napolitano, A., Morra, V.B., Valerio, P., & Freda,
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Mozzillo, E., Zito, E., Maffeis, C., De Nitto, E., Maltoni, G., Marigliano, M., Zucchini, S.,
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Bilgiç, A., Işık, Ü, Sivri Çolak, R., Derin, H., & Çaksen, H. (2018). Psychiatric symptoms and
health-related quality of life in children with epilepsy and their mothers. Epilepsy & Behavior,
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Mpundu-Kaambwa, C., Chen, G., Russo, R., Stevens, K., Petersen, K.D., & Ratcliffe, J. (in
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Dwivedi, R., Ramanujam, B., Chandra, P.S., Sapra, S., Gulati, S., Kalaivani, M., Garg, A., Bal,
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Tsiros, M.D., Samaras, M.G., Coates, A.M., & Olds, T. (in press). Use-of-time and health-related
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Yu, Y.R., Carpenter, J.L., DeMello, A.S., Keswani, S.G., Cass, D.L., Olutoye, O.O., Vogel, A.M.,
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extracorporeal membrane oxygenation survivors using the pediatric quality of life inventory
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Rowe, P.C., Marden, C.L., Flaherty, M.A.K., Jasion, S.E., Cranston, E.M., Fontaine, K.R., &
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Bhatt, N.S., Brazauskas, R., Tecca, H.R., Vogel, J., Mattila, D., Lee, S.J., Horowitz, M.M., Rizzo,
J.D., & Shaw, B.E. (in press). Female sex is associated with poor health-related quality of life in
children at 12 months post-hematopoietic cell transplantation. Journal of Pediatric
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Yi-Frazier, J.P., Cochrane, K., Whitlock, K., Rosenberg, A.R., Pascual, M., Beauregard, N.,
Mitrovich, C., Panlasigui, N., & Pihoker, C. (2018). Trajectories of acute diabetes-specific stress
in adolescents with type 1 diabetes and their caregivers within the first year of diagnosis. Journal
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Lee, C.T., Lin, C.Y., Strong, C., Lin, Y.F., Chou, Y.Y., & Tsai, M.C. (2018). Metabolic correlates
of health-related quality of life among overweight and obese adolescents. BMC Pediatrics,
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Thorsteinsdottir, H., Diseth, T.H., Lie, A., Tangeraas, T., Matthews, I., Åsberg, A., & Bjerre, A.
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Saoji, N., Palta, M., Young, H.N., Moreno, M.A., Rajamanickam, V., & Cox, E.D. (in press). The
relationship of Type 1 diabetes self-management barriers to child and parent quality of life: A US
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Lion, K.C., Wright, D.R., Spencer, S., Zhou, C., Del Beccaro, M., & Mangione-Smith, R. (in
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Novak, Z., Aglipay, M., Barrowman, N., Yeates, K.O., Beauchamp, M.H., Gravel, J., Freedman,
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Lifland, B.E., Mangione-Smith, R., Palermo, T.M., & Rabbitts, J.A. (in press). Agreement
between parent proxy- and child self-report of pain intensity and health-related quality of life
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Hardy, S.J., Bills, S.E., Wise, S.M., & Hardy, K.K. (in press). Cognitive abilities moderate the
effect of disease severity on health-related quality of life in pediatric sickle cell disease. Journal
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Valovich McLeod, T., Bay, R.C., Lam, K.C., & Snyder Valier, A.R. (in press). The association
between length of recovery following sport-related concussion and generic and specific health-
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Kamran, S.C., Goldberg, S.I., Kuhlthau, K.A., Lawell, M.P., Weyman, E.A., Gallotto, S.L., Hess,
C.B., Huang, M.S., Friedmann, A.M., Abrams, A.N., MacDonald, S.M., Pulsifer, M.B., Tarbell,
N.J., Ebb, D.H., & Yock, T.I. (in press). Quality of life in patients with proton-treated pediatric
medulloblastoma: Results of a prospective assessment with 5-year follow-up. Cancer.
Bazzano, A.N., Anderson, C.E., Hylton, C., & Gustat, J. (in press). Effect of mindfulness and
yoga on quality of life for elementary school students and teachers: Results of a randomized
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Morsberger, J.L., Short, H.L., Baxter, K.J., Travers, C., Clifton, M.S., Durham, M.M., & Raval,
M.V. (in press). Parent reported long-term quality of life outcomes in children after congenital
diaphragmatic hernia repair. Journal of Pediatric Surgery.
Wang-Hall, J., Li, B.U.K., & Tarbell, S.E. (in press). Family health-related quality of life in
pediatric cyclic vomiting syndrome. Journal of Pediatric Gastroenterology and Nutrition.
Otto, C., Steffensen, B.F., Højberg, A.L., Barkmann, C., Rahbek, J., Ravens-Sieberer, U.,
Mahoney, A., Vry, J., Gramsch, K., Thompson, R., Rodger, S., Bushby, K., Lochmüller, H., &
Kirschner, J. (in press). Predictors of health-related quality of life in boys with Duchenne
muscular dystrophy from six European countries. Journal of Neurology.
Lynch, M.K., Barnes, M.J., Dimmitt, R.A., Martin, L., Rothenberg, M.E., & Goodin, B.R. (2018).
Disease-related predictors of health-related quality of life in youth with eosinophilic esophagitis.
Journal of Pediatric Psychology, 43, 464-471.
Erbilgin Gün, S., & Kilincaslan, A. (in press). Quality of life among children and adolescents
with Tourette Disorder and comorbid ADHD: A clinical controlled study. Journal of Attention
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Petek, T., Hertiš, T., & Marčun Varda, N. (2018). Health-related quality of life in paediatric
arterial hypertension: A cross-sectional study. BMC Pediatrics, 18(1):146.
Smith, L.B., Liu, X., Johnson, S.B., Tamura, R., Elding Larsson, H., Ahmed, S., Veijola, R.,
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Lycett, K., McNamara, C., Mensah, F.K., Burgner, D., Kerr, J.A., Muller, J., & Wake, M. (in
press). Associations of mental health with cardiovascular risk phenotypes and adiposity in
adolescence: A cross-sectional community-based study. Journal of Paediatrics and Child Health.
Shinnar, R.C., Shinnar, S., Hesdorffer, D.C., O'Hara, K., Conklin, T., Cornett, K.M., Miazga, D.,
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year follow-up: Results from the FEBSTAT study. Epilepsy & Behavior.
Psihogios, A.M., Daniel, L.C., Tarazi, R., Smith-Whitley, K., Patterson, C.A., & Barakat, L.P.
(2018). Family functioning, medical self-management, and health outcomes among school-aged
children with sickle cell disease: A mediation model. Journal of Pediatric Psychology, 43, 423-
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Ghezzi, A., Bianchi, A., Baroncini, D., Bertolotto, A., Malucchi, S., Bresciamorra, V., Lanzillo,
R., Milani, N., Martinelli, V., Patti, F., Chisari, C., Rottoli, M., Simone, M., Paolicelli, D., &
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reported quality of life in adolescent multiple sclerosis patients self-administering interferon-β1a
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Cardoso, A.M.R., de Medeiros, M.M.D., Gomes, L.N., Martins, M.L., Padilha, W.W.N., &
Cavalcanti, A.L. (in press). Factors associated with health and oral health-related quality of life of
children and adolescents with cerebral palsy. Special Care in Dentistry.
Barrera, M., Atenafu, E., Nathan, P.C., Schulte, F., & Hancock, K. (in press). Depression and
quality of life in siblings of children with cancer after group intervention participation: A
randomized control trial. Journal of Pediatric Psychology.
Gopinath, B., Liew, G., Burlutsky, G., Baur, L.A., & Mitchell, P. (2018). Health-related quality of
life in adolescents and the retinal microvascular structure. Scientific Reports, 8(1):3068.
Sorensen, L.G., Neighbors, K., Hardison, R.M., Loomes, K.M., Varni, J.W., Ng, V.L., Squires,
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first year after pediatric acute liver failure. Journal of Pediatrics.
Trevizoli, I.C., Pinedo, C.S., Teles, V.O., Seixas, R.B.P.M., & de Carvalho, E. (in press).
Autoimmune hepatitis in children and adolescents: Effect on quality of life. Journal of Pediatric
Gastroenterology and Nutrition.
Radcliff, Z., Weaver, P., Chen, R., Streisand, R., & Holmes, C. (2018). The role of authoritative
parenting in adolescent type 1 diabetes management. Journal of Pediatric Psychology, 43, 185-
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Splinter, A., Tjaden, L.A., Haverman, L., Adams, B., Collard, L., Cransberg, K., van Dyck, M.,
Van Hoeck, K.J., Hoppe, B., Koster-Kamphuis, L., Lilien, M.R., Raes, A., Taylan, C.,
Grootenhuis, M.A., & Groothoff, J.W. (in press). Children on dialysis as well as renal
transplanted children report severely impaired health-related quality of life. Quality of Life
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Mirchi, A., Pelletier, F., Tran, L.T., Keller, S., Braverman, N., Tonduti, D., Vanderver, A., Pizzino,
A., Dilenge, M.E., Poulin, C., Shevell, M., Majnemer, A., Sébire, G., Srour, M., Osterman, B.,
Boucher, R.M., Vanasse, M., Rossignol, E., Mitchell, J., Venkateswaran, S., Pohl, D., Kauffman,
M., Schiffmann, R., Goizet, C., Moutton, S., Roncarolo, F., & Bernard, G. (in press). Health-
related quality of life for patients with genetically determined leukoencephalopathy. Pediatric
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Polack, S., Adams, M., O'banion, D., Baltussen, M., Asante, S., Kerac, M., Gladstone, M., &
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challenges, and caregiver quality of life. Developmental Medicine and Child Neurology.
Dahlmann-Noor, A., Tailor, V., Abou-Rayyah, Y., Adams, G., Brookes, J., Khaw, S.P.T., Bunce,
C., & Papadopoulos, M. (in press). Functional vision and quality of life in children with
microphthalmia/anophthalmia/coloboma: A cross-sectional study. Journal of American
Association for Pediatric Ophthalmology and Strabismus.
Connell, T., Paterson, J., Roberts, R.M., Raghavendra, P., Sawyer, M., & Russo, R.N. (in press).
Clinician modifiable factors associated with better quality of life in children with acquired brain
injury undergoing rehabilitation. Brain Injury.
Caçola, P., & Killian, M. (2018). Health-related quality of life in children with Developmental
Coordination Disorder: Association between the PedsQL and KIDSCREEN instruments and
comparison with their normative samples. Research in Developmental Disabilities, 75, 32-39.
Mangione-Smith, R., Zhou, C., Corwin, M.J., Taylor, J.A., Rice, F., & Stout, J.W. (2017).
Effectiveness of the spirometry 360 quality improvement program for improving asthma care: A
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Yang, P., Chen, G., Wang, P., Zhang, K., Deng, F., Yang, H., & Zhuang, G. (in press).
Psychometric evaluation of the Chinese version of the Child Health Utility 9D (CHU9D-CHN): A
school-based study in China. Quality of Life Research.
Manning, A.M., Duggins, A.L., Tiemeyer, K.A., Mullen, L.A., Crisalli, J.A., Cohen, A.P., &
Ishman, S.L. (in press). Characterizing decisional conflict for caregivers of children with
obstructive sleep apnea without tonsillar hypertrophy. Journal of Clinical Sleep Medicine.
Aceves, S.S., King, E., Collins, M.H., Yang, G.Y., Capocelli, K.E., Abonia, J.P., Atkins, D.,
Bonis, P.A., Carpenter, C.L., Dellon, E.S., Eby, M.D., Falk, G.W., Gonsalves, N., Gupta, S.K.,
Hirano, I., Kocher, K., Krischer, J.P., Leung, J., Lipscomb, J., Menard-Katcher, P., Mukkada,
V.A., Pan, Z., Spergel, J.M., Sun, Q., Wershil, B.K., Rothenberg, M.E., & Furuta, G.T. (in press).
Alignment of parent- and child-reported outcomes and histology in eosinophilic esophagitis
across multiple CEGIR sites. Journal of Allergy and Clinical Immunology.
Hedlund, E.R., Lundell, B., Söderström, L., & Sjöberg, G. (in press). Can endurance training
improve physical capacity and quality of life in young Fontan patients? Cardiology in the Young.
Zheng, D.J., Lu, X., Schore, R.J., Balsamo, L., Devidas, M., Winick, N.J., Raetz, E.A., Loh,
M.L., Carroll, W.L., Sung, L., Hunger, S.P., Angiolillo, A.L., & Kadan-Lottick, N.S. (in press).
Longitudinal analysis of quality of life outcomes in children during treatment for acute
lymphoblastic leukemia: A report from the Children's Oncology Group AALL0932 trial. Cancer.
Li, J., Jones, J.T., Donnelly, C., Cunningham, N., Kashikar-Zuck, S., & Brunner, H.I. (in press).
Pain predicts poorer health-related quality of life in childhood-onset systemic lupus
erythematosus: A cohort study. Journal of International Medical Research.
Whitaker, B.N., Fisher, P.L., Jambhekar, S., Com, G., Razzaq, S., Thompson, J.E., Nick, T.G., &
Ward, W.L. (2018). Impact of degree of obesity on sleep, quality of life, and depression in youth.
Journal of Pediatric Health Care, 32:e37-e44.
Gopakumar, K.G., Bhat, K.G., Baliga, S., Joseph, N., Mohan, N., & Shetty, A.K. (2018). Impact
of care at foster homes on the health-related quality of life of HIV-infected children and
adolescents: A cross-sectional study from India. Quality of Life Research, 27, 871-877.
Allen, T.M., Anderson, L.M., Rothman, J.A., & Bonner, M.J. (2017) Executive functioning and
health-related quality of life in pediatric sickle cell disease. Child Neuropsychology, 23, 889-906.
Al Hayek, A.A., Robert, A.A., & Al Dawish, M.A. (in press). Evaluation of FreeStyle Libre flash
glucose monitoring system on glycemic control, health-related quality of life, and fear of
hypoglycemia in patients with type 1 diabetes. Clinical Medicine Insights. Endocrinology and
Diabetes.
Chordiya, K., Katewa, V., Sharma, P., Deopa, B., & Katewa, S. (in press). Quality of life (QoL)
and the factors affecting it in transfusion-dependent thalassemic children. Indian Journal of
Pediatrics.
Huang, I.C., Brinkman, T.M., Mullins, L., Pui, C.H., Robison, L.L., Hudson, M.M., & Krull, K.R.
(in press). Child symptoms, parent behaviors, and family strain in long-term survivors of
childhood acute lymphoblastic leukemia. Psycho-oncology.
Duramaz, A., Yılmaz, S., Ziroğlu, N., Bursal Duramaz, B., & Kara, T. (in press). The effect of
deformity correction on psychiatric condition of the adolescent with adolescent idiopathic
scoliosis. European Spine Journal.
Yetwin, A.K., Mahrer, N.E., John, C., & Gold, J.I. (in press). Does pain intensity matter? The
relation between coping and quality of life in pediatric patients with chronic pain. Journal of
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Moola, F.J., Garcia, E., Huynh, E., Henry, L., Penfound, S., Consunji-Araneta, R., & Faulkner,
G.E.J. (in press). Physical activity counseling for children with cystic fibrosis. Respiratory Care.
Limperg, P.F., Haverman, L., Maurice-Stam, H., Coppens, M., Valk, C., Kruip, M.J.H.A.,
Eikenboom, J., Peters, M., & Grootenhuis, M.A. (in press). Health-related quality of life,
developmental milestones, and self-esteem in young adults with bleeding disorders. Quality of
Life Research.
Halvorsen, J.F., Sund, A.M., Zeltzer, L., Ådnanes, M., Jensberg, H., Eikemo, T.A., Lund, B.,
Hjemdal, O., & Reinfjell, T. (in press). Health-related quality of life and psychological distress in
young adult survivors of childhood cancer and their association with treatment, education, and
demographic factors. Quality of Life Research.
Chavez, L.J., Grannis, C., Dolce, M., & Chisolm, D.J. (in press). Benefits of medical home care
reaching beyond chronically ill teens: Exploring parent health-related quality of life. Academic
Pediatrics.
Zou, Y., Szczesniak, R., Teeters, A., Conard, L.A.E., & Grossoehme, D.H. (in press).
Documenting an epidemic of suffering: Low health-related quality of life among transgender
youth. Quality of Life Research.
Perez, K.M., Patel, N.J., Lord, J.H., Savin, K.L., Monzon, A.D., Whittemore, R., & Jaser, S.S.
(2017). Executive function in adolescents with type 1 diabetes: Relationship to adherence,
glycemic control, and psychosocial outcomes. Journal of Pediatric Psychology, 42, 636-646.
Switzer, G., Bruce, J., Pastork, G., Kiefer, D., Koyusingye, H., Drexler, R., Besser, R., Confer, D.,
Horowitz, M., King, R., Shaw, B., van Walraven, S., Wiener, L., Packman, W., Varni, J.W., &
Pulsipher, M. (in press). Parent versus child donor perceptions of the bone marrow donation
experience. Bone Marrow Transplantation.
Self, M.M., Fobian, A., Cutitta, K., Wallace, A., & Lotze, T.E. (2018). Health-related quality of
life in pediatric patients with demyelinating diseases: Relevance of disability, relapsing
presentation, and fatigue. Journal of Pediatric Psychology, 43, 133-142.
Snyder Valier, A.R., Welch Bacon, C.E., Bay, R.C., Molzen, E., Lam, K.C., Valovich McLeod,
T.C. (in press). Reference values for the Pediatric Quality of Life Inventory and the
Multidimensional Fatigue Scale in adolescent athletes by sport and sex. American Journal of
Sports Medicine.
Lu, P.L., Koppen, I.J.N., Orsagh-Yentis, D.K., Leonhart, K., Ambeba, E.J., Deans, K.J., Minneci,
P.C., Teich, S., Diefenbach, K.A., Alpert, S.A., Benninga, M.A., Yacob, D., & Di Lorenzo, C. (in
press). Sacral nerve stimulation for constipation and fecal incontinence in children: Long-term
outcomes, patient benefit, and parent satisfaction. Neurogastroenterology and Motility.
Orr, S.L., Christie, S.N., Akiki, S., & McMillan, H.J. (in press). Disability, quality of life, and
pain coping in pediatric migraine: An observational study. Journal of Child Neurology.
Bazi, A., Sargazi-Aval, O., Safa, A., & Miri-Moghaddam, E. (in press). Health-related quality of
life and associated factors among Thalassemia Major patients, Southeast of Iran. Journal of
Pediatric Hematology/Oncology.
Omura, J., Fuentes, M., & Bjornson, K. (in press). Participation in daily life: Influence on quality
of life in ambulatory children with cerebral palsy. PM&R: The Journal of Injury, Function, and
Rehabilitation.
Hiscock, H., Quach, J., Paton, K., Peat, R., Gold, L., Arnup, S., Sia, K.L., Nicolaou, E., & Wake,
M. (in press). Impact of a behavioral sleep intervention on new school entrants' social emotional
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Dempster, N., Cua, C.L., Wernovsky, G., Caris, E., Neely, T., Allen, R., & Butz, C. (in press).
Children with hypoplastic left heart syndrome have lower quality of life than healthy controls and
children with other illnesses. Cardiology in the Young.
Höfel, L., Eppler, B., Storf, M., Schnöbel-Müller, E., Haas, J.P., & Hügle, B. (2018). Successful
treatment of methotrexate intolerance in juvenile idiopathic arthritis using eye movement
desensitization and reprocessing - treatment protocol and preliminary results. Pediatric
Rheumatology Online Journal, 16(1):11.
Racine, N.M., Khu, M., Reynolds, K., Guilcher, G.M.T., & Schulte, F.S.M. (2018). Quality of life
in pediatric cancer survivors: Contributions of parental distress and psychosocial family risk.
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Pederiva, F., Khalil, B., Morabito, A., & Wood, S.J. (in press). Impact of short bowel syndrome
on quality of life and family: The patient's perspective. European Journal of Pediatric Surgery.
Fiume, A., Deveber, G., Jang, S.H., Fuller, C., Viner, S., & Friefeld, S. (in press). Development
and validation of the pediatric stroke quality of life measure. Developmental Medicine and Child
Neurology.
Vanz, A.P., van de Sande Lee, J., Pinheiro, B., Zambrano, M., Brizola, E., da Rocha, N.S.,
Schwartz, I.V.D., de Souza Pires, M.M., & Félix, T.M. (2018). Health-related quality of life of
children and adolescents with osteogenesis imperfecta: A cross-sectional study using PedsQL™.
BMC Pediatrics, 18(1):95.
Dickerson, J.F., Feeny, D.H., Clarke, G.N., MacMillan, A.L., & Lynch, F.L. (in press). Evidence
on the longitudinal construct validity of major generic and utility measures of health-related
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Manzoni, G.M., Rossi, A., Marazzi, N., Agosti, F., De Col, A., Pietrabissa, G., Castelnuovo, G.,
Molinari, E., & Sartorio, A. (2018). Feasibility, validity, and reliability of the Italian Pediatric
Quality of Life Inventory Multidimensional Fatigue Scale for adults in inpatients with severe
obesity. Obesity Facts, 11:25-36.
Zhang, L., Gao, T., & Shen, Y. (in press). Quality of life in children with retinoblastoma after
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Stokes, M.A., Kornienko, L., Scheeren, A.M., Koot, H.M., & Begeer, S. (in press). A comparison
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McNally, K.A., Patrick, K.E., LaFleur, J.E., Dykstra, J.B., Monahan, K., & Hoskinson, K.R. (in
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Bojanić, K., Grizelj, R., Vuković, J., Omerza, L., Grubić, M., Ćaleta, T., Weingarten, T.N.,
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Eyüboglu, M., Kalay, I., & Eyüboglu, D. (in press). Evaluation of adolescents diagnosed with
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Torres-Andres, F., Fink, E.L., Bell, M.J., Sharma, M.S., Yablonsky, E.J., & Sanchez-de-Toledo, J.
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Ranasinghe, N., Devanarayana, N.M., Rajindrajith, S., Perera, M.S., Nishanthinie, S,
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Katz, S.L., MacLean, J.E., Barrowman, N., Hoey, L., Horwood, L., Bendiak, G.N., Kirk, V.G.,
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sleep-disordered breathing on quality of life in children with obesity. Journal of Clinical Sleep
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Ma, J.L., Sheng, N., Ding, W.W., & Zhang, Y. (2018). Impact of transition readiness on quality of
life in children with chronic diseases. Zhongguo dang dai er ke za zhi (Chinese journal of
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Amedro, P., Tahhan, N., Bertet, H., Jeandel, C., Guillaumont, S., Mura, T., & Picot, M.C. (in
press). Health-related quality of life among children with Turner syndrome: Controlled cross-
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Domany, K.A., Hantragool, S., Smith, D.F., Xu, Y., Hossain, M., & Simakajornboon, N. (in
press). Sleep disorders and their management in children with Ehlers-Danlos Syndrome referred
to sleep clinics. Journal of Clinical Sleep Medicine.
Cipolletta, S., Spina, G., & Spoto, A. (in press). Psychosocial functioning, self-image, and quality
of life in children and adolescents with neurofibromatosis type 1. Child: Care, Health and
Development.
Baron Nelson, M., Riley, K., & Arellano, K. (in press). Adding a parent to the brain tumor team:
Evaluating a peer support intervention for parents of children with brain tumors. Journal of
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Eadie, P., Conway, L., Hallenstein, B., Mensah, F., McKean, C., & Reilly, S. (in press). Quality of
life in children with developmental language disorder. International Journal of Language &
Communication Disorders.
Pan, C.W., Wu, R.K., Wang, P., Li, J., & Zhong, H. (in press). Reduced vision, refractive errors
and health-related quality of life among adolescents in rural China. Clinical & Experimental
Optometry.
Aspesberro, F., Fesinmeyer, M.D., Zhou, C., Zimmerman, J.J., & Mangione-Smith, R. (2016).
Construct validity and responsiveness of the Pediatric Quality of Life Inventory 4.0 Generic Core
Scales and Infant Scales in the PICU. Pediatric Critical Care Medicine, 17(6), e272-e279.
Brandow, A.M., Nimmer, M., Simmons, T., Casper, T.C., Cook, L.J., Chumpitazi, C.E., Scott,
J.P., Panepinto, J.A., & Brousseau, D.C. (in press). Impact of emergency department care on
outcomes of acute pain events in children with sickle cell disease. American Journal of
Hematology.
Younossi, Z.M., Stepanova, M., Schwarz, K.B., Wirth, S., Rosenthal, P., Gonzalez-Peralta, R.,
Murray, K., Henry, L., & Hunt, S. (in press). Quality of life in adolescents with Hepatitis C
treated with Sofosbuvir and Ribavirin. Journal of Viral Hepatitis.
Kosola, S., McCarthy, M.C., McNeil, R., Orme, L.M., Drew, S., & Sawyer, S.M. (in press). Early
education and employment outcomes after cancer in adolescents and young adults. Journal of
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Taminskiene, V., Vaitkaitiene, E., Valiulis, A., Turner, S., Hadjipanayis, A., Stukas, R., & Valiulis,
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Collins, L., Collis, B., Trajanovska, M., Khanal, R., Hutson, J.M., Teague, W.J., & King, S.K. (in
press). Quality of life outcomes in children with Hirschsprung disease. Journal of Pediatric
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Ghotra, S.K., Johnson, J.A., Qiu, W., Newton, A.S., Rasmussen, C., & Yager, J.Y. (in press).
Health-related quality of life and its determinants in paediatric arterial ischaemic stroke survivors.
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Magee, C.A., Robinson, L., & Keane, C. (2017). Sleep quality subtypes predict health-related
quality of life in children. Sleep Medicine, 35, 67-73.
Lee, Y.C., Yang, H.J., Lee, W.T., & Teng, M.J. (in press). Do parents and children agree on rating
a child's HRQOL? A systematic review and meta-analysis of comparisons between children with
attention deficit hyperactivity disorder and children with typical development using the
PedsQL™. Disability and Rehabilitation.
Richardson, K.L., Watson, R.S., & Hingorani, S. (in press). Quality of life following
hospitalization-associated acute kidney injury in children. Journal of Nephrology.
Kim, K.W., Wallander, J.L., Peskin, M., Cuccaro, P., Elliott, M.N., & Schuster, M.A. (in press).
Associations between parental SES and children's health-related quality of life: The role of
objective and subjective social status. Journal of Pediatric Psychology.
González, R., Bustinza, A., Fernandez, S.N., García, M., Rodriguez, S., García-Teresa, M.Á.,
Gaboli, M., García, S., Sardón, O., García, D., Salcedo, A., Rodríguez, A., Luna, M.C.,
Hernández, A., González, C., Medina, A., Pérez, E,, Callejón, A., Toledo, J.D., Herranz, M.,
&López-Herce, J. (in press). Quality of life in home-ventilated children and their families.
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Gu, X., Keller, M.J., Weiller-Abels, K.H., & Zhang, T. (in press). The roles of physical activity
and sedentary behavior on Hispanic children’s mental health: A motor skill perspective. Quality
of Life Research.
Rasmussen, H.M., Svensson, J., Thorning, M., Pedersen, N.W., Overgaard, S., & Holsgaard-
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children with cerebral palsy. Acta Orthopaedica.
Ozkan, Y. (in press). Child's quality of life and mother's burden in spastic cerebral palsy: A
topographical classification perspective. Journal of International Medical Research.
Tobin, J., Miller, K.A., Baezconde-Garbanati, L., Unger, J.B., Hamilton, A.S., & Milam, J.E.
(2018). Acculturation, mental health, and quality of life among Hispanic childhood cancer
survivors: A latent class analysis. Ethnicity & Disease, 28, 55-60.
Britton, P.N., Khandaker, G., Khatami, A., Teutsch, S., Francis, S., McMullan, B.J., & Jones, C.A.
(in press). High prevalence of developmental concern amongst infants at 12 months following
hospitalised parechovirus infection. Journal of Paediatrics and Child Health.
Diederen, K., Haverman, L., Grootenhuis, M.A., Benninga, M.A., & Kindermann, A. (in press).
Parental distress and quality of life in pediatric inflammatory bowel disease: Implications for the
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Baek, H.S., Park, K.S., Ha, I.S., Kang, H.G., Cheong, H.I., Park, Y.S., Lee, J.H., Cho, H.Y., &
Cho, M.H. (in press). The impact of end-stage renal disease in children on their parents.
Nephrology.
Limperg, P.F., Joosten, M.M.H., Fijnvandraat, K., Peters, M., Grootenhuis, M.A., & Haverman,
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with health-related quality of life in children and adolescents with congenital bleeding disorders.
Haemophilia.
Weaver, M., Wichman, C., Darnall, C., Bace, S., Vail, C., & MacFadyen, A. (in press). Proxy-
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Wei, Y., Speechley, K.N., Zou, G., & Campbell, C. (in press). The relationship between quality of
life and health-related quality of life in young males with Duchenne muscular dystrophy.
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Hedgecock, J.B., Dannemiller, L.A., Shui, A., Rapport, M.J., & Katz, T. (in press). Associations
of gross motor delay, behavior, and quality of life in young children with autism. Physical
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Shen, Y., King, C.H., Binder, S., Zhang, F., Whalen, C.C., Evan Secor, W., Montgomery, S.P.,
Mwinzi, P.N.M., Olsen, A., Magnussen, P., Kinung'hi, S., Phillips, A.E., Nalá, R., Ferro, J.,
Aurelio, H.O., Fleming, F., Garba, A., Hamidou, A., Fenwick, A., Campbell, C.H. Jr, & Colley,
D.G. (2017). Protocol and baseline data for a multi-year cohort study of the effects of different
mass drug treatment approaches on functional morbidities from schistosomiasis in four African
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Guardabassi, V., Mirisola, A., & Tomasetto, C. (in press). How is weight stigma related to
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Anderson, Y.C., Wynter, L.E., Treves, K.F., Grant, C.C., Stewart, J.M., Cave, T.L., Wouldes, T.A.,
Derraik, J.G.B., Cutfield, W.S., & Hofman, P.L. (2017). Assessment of health-related quality of
life and psychological well-being of children and adolescents with obesity enrolled in a New
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Menon, S.C., Al-Dulaimi, R., McCrindle, B.W., Goldberg, D.J., Sachdeva, R., Goldstein, B.H.,
Seery, T., Uzark, K.C., Chelliah, A., Butts, R., Henderson, H., Johnson, T., & Williams, R.V. (in
press). Delayed puberty and abnormal anthropometry and its associations with quality of life in
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Atz, A.M., Zak, V., Mahony, L., Uzark, K., D'agincourt, N., Goldberg, D.J., Williams, R.V.,
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Sander, H.H., Eckeli, A.L., Costa Passos, A.D., Azevedo, L., Fernandes do Prado, L.B, & França
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with restless legs syndrome/Willis-Ekbom disease. Sleep Medicine.
Farajpour Kh, M., PishgahRoodsari, M., Salehiniya, H., & Soheilipour, F. (in press). The
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Ejaz, R., Chen, S., Isaacs, C.J., Carnevale, A., Wilson, J., George, K., Delatycki, M.B., Perlman,
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with Friedreich Ataxia. Journal of Child Neurology.
Warady, B.A., Barcia, J., Benador, N., Jankauskiene, A., Olson, K., Podracka, L., Shavkin, A.,
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Al-Gamal, E., & Long, T. (in press). The psychometric properties of an Arabic version of the
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Oh, Y., Joung, Y.S., Jang, B., Yoo, J.H., Song, J., Kim, J., Kim, K., Kim, S., Lee, J., Shin, H.Y.,
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Hancock, H.S., Pituch, K., Uzark, K., Bhat, P., Fifer, C., Silveira, M., Yu, S., Welch, S., Donohue,
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Helin, N., Kolho, K.L., Qvist, E., Mäkelä, M., & Merras-Salmio, L. (in press). Gastrointestinal
symptoms of food challenge-proven non-Ige cow's milk allergy are dissipated by early school
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Nkwata, A.K., Zalwango, S.K., Kizza, F.N., Sekandi, J.N., Mutanga, J., Zhang, M., Musoke,
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unaffected school-aged and adolescent Ugandan children: A multi-dimensional assessment of
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Kamody, R.C., Berlin, K.S., Rybak, T.M., Klages, K.L., Banks, G.G., Ali, J.S., Alemzadeh, R.,
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A comparison between a charity hospital in Honduras and a tertiary care center in the United
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Vikhareva, E.G., Viniarskaia, I.V., Khan, M.A., Tretiakova, T.V., & Chernikov, V.V. (in press). On
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Fantaguzzi, C., Allen, E., Miners, A., Christie, D., Opondo, C., Sadique, Z., Fletcher, A., Grieve,
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Petersen, K.D., Chen, G., Mpundu-Kaambwa, C., Stevens, K., Brazier, J., & Ratcliffe, J. (in
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Lucendo, A.J., Arias-González, L., Molina-Infante, J., & Arias, Á. (in press). Systematic review:
Health-related quality of life in children and adults with eosinophilic oesophagitis-instruments for
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Gizli Çoban, Ö, Sürer Adanır, A., & Özatalay E. (in press). Post-traumatic stress disorder and
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Mitchell, T.B., & Steele, R.G. (2017). Bidirectional associations between disordered eating and
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Hovsepian, S., Qorbani, M., Motlagh, M.E., Madady, A., Mansourian, M., Gorabi, A.M., &
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children and adolescents: The Weight Disorders Survey of the CASPIAN-IV study. Journal of
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Schwartz, C.E., Grover, S.A., Powell, V.E., Noguera, A., Mah, J.K., Mar, S., Mednick, L.,
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Li, L., Lin, P., & Gao, X. (in press). Health-related quality of life in children and adolescents
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Chan, K.L., Chen, M., Chen, Q., Ip, P. (2017). Can family structure and social support reduce the
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Wong, M., Olds, T., Gold, L., Lycett, K., Dumuid, D., Muller, J., Mensah, F.K., Burgner, D.,
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Atay, C., Kaya Mutlu, E., Taskiran, H., & Ozgen, I.T. (in press). Comparison of hand function
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Nunes, M.D.R., Jacob, E., Bomfim, E.O., Lopes-Junior, L.C., de Lima, R.A.G., Floria-Santos,
M., & Nascimento, L.C. (2017). Fatigue and health related quality of life in children and
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Draucker, C.B., Nutakki, K., Varni, J.W., & Swigonski, N.L. (in press).The health-related quality
of life of children, adolescents, and young adults with Neurofibromatosis Type 1 and their
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Monteiro, F.P., Solé, D., & Wandalsen, G.F. (2017). Quality of life of asthmatic children and
adolescents: Portuguese translation, adaptation and validation of the questionnaire Pediatric
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Warners, M.J., Hindryckx, P., Levesque, B.G., Parker, C.E., Shackelton, L.M., Khanna, R.,
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Hambly, J.L., Francis, K., Khan, S., Gibbons, K.S., Walsh, W.J., Lambert, B., Testa, C., &
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Shaw, B.E., Brazauskas, R., Millard, H.R., Fonstad, R., Flynn, K.E., Abernethy, A., Vogel, J.,
Petroske, C., Mattila, D., Drexler, R., Lee, S.J., Horowitz, M.M., & Rizzo, J.D. (in press).
Centralized patient-reported outcome data collection in transplantation is feasible and clinically
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Sahin, N., Kasap, B., Kirli, U., Yeniceri, N., & Topal, Y. (in press). Assessment of anxiety-
depression levels and perceptions of quality of life in adolescents with dysmenorrhea.
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Girabent-Farres, M., Monne-Guasch, L., Bagur-Calafat, C., & Fagoaga, J. (in press). Spanish
translation and validation of the neuromuscular module of the Pediatric Quality of Life Inventory
(PedsQL): Evaluation of the quality of life perceived by the parents of 2-4-year-old children with
neuromuscular diseases. Revista de Neurologia.
Veldhuijzen van Zanten, S.E.M., El-Khouly, F.E., Jansen, M.H.A., Bakker, D.P., Sanchez Aliaga,
E., Haasbeek, C.J.A., Wolf, N.I., Zwaan, C.M., Vandertop, W.P., van Vuurden, D.G., & Kaspers,
G.J.L. (in press). A phase I/II study of gemcitabine during radiotherapy in children with newly
diagnosed diffuse intrinsic pontine glioma. Journal of Neuro-Oncology.
Kessel, A., Farkas, H., Kivity, S., Veszeli, N., Kőhalmi, K.V., & Engel-Yeger, B. (in press). The
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Sandheinrich, T., Wondmeneh, S.B., Mohrmann, C., Gettinger, K., Henry, J., & Hayashi, R.J. (in
press). Knowledge and perceptions of infertility in female cancer survivors and their parents.
Supportive Care in Cancer.
Tuysuz, G., & Tayfun, F. (in press). Health-related quality of life and its predictors among
transfusion-dependent Thalassemia patients. Journal of Pediatric Hematology/Oncology.
Sparks, T.N., Thao, K., & Norton, M.E. (in press). Mosaic trisomy 16: What are the obstetric and
long-term childhood outcomes? Genetics in Medicine.
Russell, K., Selci, E., Chu, S., Fineblit, S., Ritchie, L., & Ellis, M. (in press). Longitudinal
assessment of health-related quality of life following adolescent sports-related concussion.
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Lam, K.C., & Markbreiter, J.G. (in press). The impact of knee injury history on health-related
quality of life in adolescent athletes. Journal of Sport Rehabilitation.
Ataeinia, B., Montazeri, A., Tavakol, M., Azizi, G., Kiaee, F., Tavakolinia, N., Negahdari, B.,
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Ingram, D.G., & Churchill, S.S. (in press). Sleep problems in children with agenesis of the corpus
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Looman, W.S., Hullsiek, R.L., Pryor, L., Mathiason, M.A., & Finkelstein, S.M. (in press). Health-
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Baek, H.S., Kang, H.G., Choi, H.J., Cheong, H.I., Ha, I.S., Han, K.H., Kim, S.H., Cho, H.Y.,
Shin, J.I., Park, Y.S., Lee, J.H., Lee, J., Ahn, C., & Cho, M.H. (in press). Health-related quality of
life of children with pre-dialysis chronic kidney disease. Pediatric Nephrology.
Joo, B., Lee, Y.M., Kim, H.D., & Eom, S. (in press). An analysis of a novel, short-term
therapeutic psychoeducational program for children and adolescents with chronic neurological
illness and their parents; Feasibility and efficacy. Frontiers in Neuroscience.
Heath, J., Norman, P., Christian, M., & Watson, A. (in press). Measurement of quality of life and
attitudes towards illness in children and young people with chronic kidney disease. Quality of
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Yeh, E.A., Grover, S.A., Powell, V.E., Alper, G., Banwell, B.L., Edwards, K., Gorman, M.,
Graves, J., Lotze, T.E., Mah, J.K., Mednick, L., Ness, J., Obadia, M., Slater, R., Waldman, A.,
Waubant, E., & Schwartz, C.E. (2017). Impact of an electronic monitoring device and behavioral
feedback on adherence to multiple sclerosis therapies in youth: Results of a randomized trial.
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Landfeldt, E., Mayhew, A., Straub, V., Lochmüller, H., Bushby, K., & Lindgren, P. (in press).
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Akkerman, M., Mouton, L.J., Dijkstra, F., Niemeijer, A.S., van Brussel, M., van der Woude,
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Chan, S.F., Connelly, M., & Wallace, D.P. (2017). The relationship between pain characteristics,
peer difficulties, and emotional functioning among adolescents seeking treatment for chronic
pain: A test of mediational models. Journal of Pediatric Psychology, 42, 941-951.
Elias, M.D., Achuff, B.J., Ittenbach, R.F., Ravishankar, C., Spray, T.L., Fuller, S., Montenegro,
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Lina, P., & Rūta, P. (in press). Chronobiological types, duration of sleeping and psycho-emotional
condition of teenagers. Acta Medica Lituanica.
Quach, J., Nguyen, C., O'Connor, M., & Wake, M. (2017). The cumulative effect of health
adversities on children's later academic achievement. Academic Pediatrics, 17, 706-714.
Laraja, K., Sadhwani, A., Tworetzky, W., Marshall, A.C., Gauvreau, K., Freud, L., Hass, C.,
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Mollerup, P.M., Nielsen, T.R., Bøjsøe, C., Kloppenborg, J.T., Baker, J.L., & Holm, J.C. (in press).
Quality of life improves in children and adolescents during a community-based overweight and
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Xu, F., Xing, H., Yu, W., Chen, S., & Li, H. (2017). Health-related quality of life and influencing
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Switzer, G.E., Bruce, J., Kiefer, D.M., Kobusingye, H., Drexler, R., Besser, R.M., Confer, D.L.,
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Hornsby, B.W.Y., Gustafson, S.J., Lancaster, H., Cho, S.J., Camarata, S., & Bess, F.H. (2017).
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Rosenberg, A.R., Orellana, L., Ullrich, C., Kang, T., Geyer, J.R., Feudtner, C., Dussel, V., &
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Vieira, E Neto, Maia HS Filho, Monteiro CB, Carvalho LM, Tonon T, Vanz AP, Schwartz IVD,
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Amaya-Arias, A.C., Alzate, J.P., & Eslava-Schmalbach, J.H. (in press). Construct and criterion
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Calder, P., Shaw, S., Roberts, A., Tennant, S., Sedki, I., Hanspal, R., & Eastwood D. (2017). A
comparison of functional outcome between amputation and extension prosthesis in the treatment
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Wallace, E.R., Collett, B.R., Heike, C.L., Werler, M.M., & Speltz, M.L. (in press). Behavioral-
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Lah Tomulic, K., Mestrovic, J., Zuvic, M., Rubelj, K., Peter, B., Bilic Cace, I., & Verbic, A. (in
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Wojtowicz, A.A., Plevinsky, J.M., Poulopoulos, N., Schurman, J.V., & Greenley, R.N. (in press).
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Kikuchi, R., Mizuta, K., Urahashi, T., Sanada, Y., Yamada, N., Onuma, E., Ono, M., Endo, M.,
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Selveindran M.N., Syed Zakaria, S.Z., Jalaludin, M.Y., & Rasat, R. (in press). Quality of life in
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Raja, K., Parikh, A., Webb, H., & Hothi, D. (in press). Use of a low-dose prednisolone regimen to
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Uzark, K., Zak, V., Shrader, P., McCrindle, B.W., Radojewski, E., Varni, J.W., Daniels, K.,
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Fontan operation. Journal of Pediatrics.
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assessment and effects of therapeutic intervention. Pediatric Nephrology.
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Chevignard, M., Francillette, L., Toure, H., Brugel, D., Meyer, P., Vannier, A.L., Opatowski, M.,
& Watier, L. (in press). Academic outcome, participation and health-related quality of life
following childhood severe traumatic brain injury: Results of a prospective longitudinal study:
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Barat, P., Meiffred, M.C., Brossaud, J., Fuchs, D., Corcuff, J.B., Thibault, H., & Capuron, L.
(2016). Inflammatory, endocrine and metabolic correlates of fatigue in obese children.
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Abecassis, I.J., Nerva, J.D., Barber, J., Rockhill, J., Ellenbogen, R.G., Kim, L.J., & Sekhar, L.N.
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Aslan, C., Olgun, Z.D., Ertas, E.S., Ozusta, S., Demirkiran, G., Unal, F., & Yazici, M. (2017).
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Montaño-Velázquez, B.B., Nolasco-Renero, J., Parada-Bañuelos, J.E., Garcia-Vázquez, F.,
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Parmar, A., Vandriel, S.M., & Ng, V.L. (in press). Health related quality of life after pediatric liver
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Agrawal, S., Krishnamurthy, S., & Naik, B.N. (2017). Assessment of quality of life in children
with nephrotic syndrome at a teaching hospital in South India. Saudi Journal of Kidney Diseases
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Aabom, A., Nguyen, D., Fisker, N., & Bygum, A. (2017). Health-related quality of life in Danish
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Jagnoor, J., Prinja, S., Christou, A., Baker, J., Gabbe, B., & Ivers, R. (2017). Health-related
quality of life and function after paediatric injuries in India: A longitudinal study. International
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Fazelniya, Z., Najafi, M., Moafi, A., & Talakoub, S. (2017). The impact of an interactive
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Medyńska, A., Zwolińska, D., Grenda, R., Miklaszewska, M., Szczepańska, M., Urzykowska, A.,
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Bozzini, A.B., Neder, L., Silva, C.A., & Porta, G. (in press). Decreased health-related quality of
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Sarria, E.E., Mundstock, E., Machado, D.G., Mocelin, H.T., Fischer, G.B., Furlan, S.P.,
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with bronchiolitis obliterans. Jornal de Pediatria.
Rajindrajith, S., Devanarayana, N.M., & Benninga, M.A. (2016). Fecal incontinence in
adolescents is associated with child abuse, somatization, and poor health-related quality of life.
Journal of Pediatric Gastroenterology & Nutrition, 62, 698-703.
Bradley-Hewitt, T., Dantin, A., Ploutz, M., Aliku, T., Lwabi, P., Sable, C., & Beaton, A. (in press).
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Vedantam, A., Hansen, D., Briceño, V., Brayton, A., & Jea, A. (in press). Patient-reported
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Lampela, H., Pakarinen, M.P., Jahnukainen, T., Jalanko, H., & Kosola, S. (in press). Quality of
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Orhan, C., Kaya Kara, O., Kaya, S., Akbayrak, T., Kerem Gunel, M., & Baltaci, G. (in press). The
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Bell, B., Butler, L., Mills, J., Stutz, C., Ezaki, M., & Oishi, S. (in press). "On-top plasty" for
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Mann, K., Tsao, E., & Bjornson, K.F. (2016). Physical activity and walking performance:
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Ryerson, A.B., Wasilewski-Masker, K., Border, W.L., Goodman, M., Meacham, L., Austin, H.,
Marchak, J.G., & Mertens, A.C. (2016). Pediatric quality of life in long-term survivors of
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Kobayashi, K., Nakagami-Yamaguchi, E., Hayakawa, A., Adachi, S., Hara, J., Tokimasa, S.,
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with acute lymphoblastic leukemia during and after chemotherapy. Pediatrics International.
Cushing, C.C., Martinez-Leo, B., Peña, A., Bischoff, A., Hall, J., Helmrath, M., Dickie, B.H.,
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Klug, C., Schreiber-Katz, O., Thiele, S., Schorling, E., Zowe, J., Reilich, P., Walter, M.C., &
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Kaczmarek, M., & Trambacz-Oleszak, S. (in press). HRQoL impact of stressful life events in
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Goldstein, B.H., Urbina, E.M., Khoury, P.R., Gao, Z., Amos, M.A., Mays, W.A., Redington, A.N.,
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in adolescent and young adult Fontan survivors. Journal of the American Heart Association.
Serkel-Schrama, I.J., de Vries, J., Nieuwesteeg, A.M., Pouwer, F., Nyklíček, I., Speight, J., de
Bruin, E.I., Bögels, S.M., & Hartman, E.E. (2016). The association of mindful parenting with
glycemic control and quality of life in adolescents with type 1 diabetes: Results from Diabetes
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Silva, L.L., Castelar. M., & Matos, M.A. (2016). Quality of life in pediatric patients with
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Phadnis, S., & Kar, A. (in press). The impact of a haemophilia education intervention on the
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Armbrust, W., Lelieveld, O.H., Tuinstra, J., Wulffraat, N.M., Bos, G.J., Cappon, J., van Rossum,
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Hsieh, R.L., Hsieh, W.H., & Lee, W.C. (2016). Short-term family-centered workshop for children
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Prasad, M., Hicks, R., MacKay, M., Nguyen, C.T., & Campbell, C. (2016). Developmental
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Brinkman, T.M., Cheung, Y.T., Pui, C.H., Hudson, M.M., & Krull, K.R. (in press). Functional
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Hsueh, Y.M., Chen, W.J., Lee, C.Y., Chien, S.N., Shiue, H.S., Huang, S.R., Lin, M.I., Mu, S.C., &
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Mikkelsen, R., Rødevand, L.N., Wiig, U.S., Zahl, S.M., Berntsen, T., Skarbø, A.B., Egge, A.,
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Annunziato, R.A., Lee, S.G., Galici, E., & Arnon, R. (in press). Children with hepatitis C: The
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Ranasinghe, N., Devanarayana, N.M., Benninga, M.A., van Dijk, M., & Rajindrajith, S. (in
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Simon, S.L., & Stark, L.J. (2016). Health-related quality of life in a community sample of
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Mitchell, H.R., Lu, X., Myers, R.M., Sung, L., Balsamo, L.M., Carroll, W.L., Raetz, E., Loh,
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Dhirar, N., Khandekar, J., Bachani, D., & Mahto, D. (in press). Thalassemia major: How do we
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Kobayashi, K., Nakagami-Yamaguchi, E., Hayakawa, A., Adachi, S., Hara, J., Tokimasa, S.,
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Beachamp, M., & Anderson, V.A. (in press). Prediction of multidimensional fatigue after
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Veloso, L.A., Mello, M.J., Ribeiro Neto, J.P., Barbosa, L.N., & Silva, E.J. (2016). Quality of life,
cognitive level and school performance in children with functional lower urinary tract
dysfunction. Jornal Brasileiro de Nefrologia, 38, 234-244.
Dupuis, L.L., Lu, X., Mitchell, H.R., Sung, L., Devidas, M., Mattano, L.A. Jr., Carroll, W.L.,
Winick, N., Hunger, S.P., Maloney, K.W., & Kadan-Lottick, N.S. (2016). Anxiety, pain, and
nausea during the treatment of standard-risk childhood acute lymphoblastic leukemia: A
prospective, longitudinal study from the Children's Oncology Group. Cancer, 122, 1116-1125.
Patel, B.J., Lai, L., Goldfield, G., Sananes, R., & Longmuir, P.E. (in press). Psychosocial health
and quality of life among children with cardiac diagnoses: Agreement and discrepancies between
parent and child reports. Cardiology in the Young.
Butwicka, A., Fendler, W., Zalepa, A., Szadkowska, A., Zawodniak-Szalapska, M., Gmitrowicz,
A., & Mlynarski, W. (in press). Psychiatric disorders and health-related quality of life in children
with type 1 diabetes mellitus. Psychosomatics.
van der Holst, M., Steenbeek, D., Pondaag, W., Nelissen, R.G., Vliet Vlieland, T.P. (in press).
Neonatal brachial plexus palsy in children aged 0 to 2.5 years; Parent-perceived family impact,
quality of life, and upper extremity functioning. Pediatric Neurology.
Ryan, J.L., McGrady, M.E., Guilfoyle, S.M., Follansbee-Junger, K., Peugh, J.L., Loiselle, K.A.,
Arnett, A.D., & Modi, A.C. (in press). Quality of life changes and health care charges among
youth with epilepsy. Journal of Pediatric Psychology.
Carney, N.A., Petroni, G.J., Luján, S.B., Ballarini, N.M., Faguaga, G.A., du Coudray, H.E.,
Huddleston, A.E., Baggio, G.M., Becerra, J.M., Busso, L.O., Dikmen, S.S., Falcone, R., García,
M.E., González Carrillo, O.R., Medici, P.L., Quaglino, M.B., Randisi, C.A., Sáenz, S.S., Temkin,
N.R., & Vanella, E.E. (in press). Postdischarge care of pediatric traumatic brain injury in
Argentina: A multicenter randomized controlled trial. Pediatric Critical Care Medicine.
Mohammad, S., Kaurs, E., Aguirre, V.P., Varni, J.W., & Alonso, E.M. (2016). Health related
quality of life in infants with chronic liver disease. Journal of Pediatric Gastroenterology &
Nutrition, 62, 751-756.
Beverung, L.M., Bemrich-Stolz, C., Torres, S., & Panepinto, J.A. (in press). Health-related
quality of life in infants with sickle cell disease. Journal of Pediatric Hematology/Oncology.
Wiggs, L., Sparrowhawk, M., & Barnett< A.L. (2016). Parent report and actigraphically defined
sleep in children with and without developmental coordination disorder: Links with fatigue and
sleepiness. Frontiers in Pediatrics, 4:81.
Houston, M.N., Bay, R.C., Valovich, & McLeod, T.C. (in press). The relationship between post-
injury measures of cognition, balance, symptom reports and health-related quality-of-life in
adolescent athletes with concussion. Brain Injury.
Caris, E.C., Dempster, N., Wernovsky, G., Butz. C., Neely, T., Allen, R., Stewart, J., Miller-Tate,
H., Fonseca, R., Texter, K., Nicholson, L., & Cua, C.L. (in press). Anxiety scores in caregivers of
children with hypoplastic left heart syndrome. Congenital Heart Disease.
Pierce, L., Hocking, M.C., Schwartz, L.A., Alderfer, M.A., Kazak, A.E., & Barakat, L.P. (in
press). Caregiver distress and patient health-related quality of life: Psychosocial screening during
pediatric cancer treatment. Psycho-Oncology.
Teksoz, E., Bilgin, I., Madzwamuse, S.E., & Oscakci, A.F. (in press). The impact of a creative
play intervention on satisfaction with nursing care: A mixed-methods study. Journal for
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Mevada, S.T., Al Saadoon, M., Zachariah, M., Al Rawas, A.H., & Wali, Y. (in press). Impact of
burden of thalassemia major on health-related quality of life in Omani children. Journal of
Pediatric Hematology/Oncology.
Hoytema van Konijnenburg, E.M., van der Lee, J.H., Teeuw, A.H., Lindeboom, R., Brilleslijper-
Kater, S.N., Sieswerda-Hoogendoorn, T., van Goudoever, J.B., & Lindauer, R.J. (in press).
Psychosocial problems of children whose parents visit the emergency department due to intimate
partner violence, substance abuse or a suicide attempt. Child: Care, Health and Development.
Cook, A.K., Kerins, C.A., & Heppner, C.E. (2016). Dental impacts on health-related quality of
life of children with orofacial clefts. Pediatric Dentistry, 38, 218-223.
Green, J.L., Sciberras, E., Anderson, V., Efron, D., & Rinehart, N. (in press). Association between
autism symptoms and functioning in children with ADHD. Archives of Disease in Childhood.
Matziou, V., Vlachioti, E., Megapanou, E., Ntoumou, A., Dionisakopoulou, C., Dimitriou, V.,
Tsoumakas, K., Matziou, T., & Perdikaris, P. Perceptions of children and their parents about the
pain experienced during their hospitalization and its impact on parents' quality of life. Japanese
Journal of Clinical Oncology.
Liu, W., Lin, R., Liu, W., Guo, Z., Xiong, L., Li, B., Cheng, K.K., Adab, P., & Pallan, M. (2016).
Relationship between weight status and health-related quality of life in Chinese primary school
children in Guangzhou: A cross-sectional study. Health and Quality of Life Outcomes, 14(1):166.
Yates, M.T., Ishikawa, T., Schneeberg, A., & Brussoni, M. (2016). Pediatric Canadian triage and
acuity scale (PaedsCTAS) as a measure of injury severity. International Journal of Environmental
Research and Public Health, 13(7).
Roland, L., Fischer, C., Tran, K., Rachakonda, T., Kallogjeri, D., & Lieu, J. (in press). Quality of
life in children with hearing impairment: Systematic review and meta-analysis. Otolaryngology--
Head and Neck Surgery.
Abdul-Zahra, H.A., Hassan, M.K., & Ahmed, B.A. (in press). Health-related quality of life in
children and adolescents with β-Thalassemia Major on different iron chelators in Basra, Iraq.
Journal of Pediatric Hematology/Oncology.
Mitchell, T.B., & Steele, R.G. (2016). The effect of body mass index, negative affect, and
disordered eating on health-related quality of life in preadolescent youth. Journal of Pediatric
Psychology, 41, 768–776.
Kikuchi, R., Mizuta, K., Urahashi, T., Sanada, Y., Yamada, N., Onuma, E., Ono, M., Endo, M.,
Sato, I., & Kamibeppu, K. (in press). Development of the Japanese version of the PedsQL™
Transplant Module. Pediatrics International.
Lukács, A., Sasvári, P., Török, A., & Barkai, L. (in press). Generic and disease-specific quality of
life in adolescents with type 1 diabetes: Comparison to age-matched healthy peers. Journal of
Pediatric Endocrinology & Metabolism.
Nouraei, S.A., Mucmur, E., Dias, A., Butler, C.R., Nandi, R., Eliott, M.J., & Hewitt, R. (in press).
Validation of the airway-dyspnoea-voice-swallow (adv) scale and patient-reported outcome
measure (PROM) as disease-specific instruments in paediatric laryngotracheal stenosis. Clinical
Otolaryngology.
Mandrell, B.N., Baker, J., Levine, D., Gattuso, J., West, N., Sykes, A., Gajjar, A., & Broniscer, A.
(in press). Children with minimal chance for cure: Parent proxy of the child's health-related
quality of life and the effect on parental physical and mental health during treatment. Journal of
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Southerland, J.L., Wang, L., & Slawson, D.L. (in press). Weight misperception and health-related
quality of life in Appalachian adolescents in the United States. Maternal and Child Health
Journal.
Hyndman, B., Benson, A.C., Lester, L., & Telford, A. (in press). Is there a relationship between
primary school children. Health Promotion Journal of Australia.
Morano, M., Rutigliano, I., Rago, A., Pettoello-Mantovani, M., & Campanozzi, A. (in press). A
multicomponent, school-initiated obesity intervention to promote healthy lifestyles in children.
Nutrition.
Clowtis, L.M., Kang, D.H., Padhye, N.S., Rozmus, C., & Barratt, M.S. (2016). Biobehavioral
factors in child health outcomes: The roles of maternal stress, maternal-child engagement,
salivary cortisol, and salivary testosterone. Nursing Research, 65, 340-351.
Lin, C.Y., Kumar, S., & Pakpour, A.H. (2016). Rasch analysis of the Persian version of PedsQL™
Oral Health Scale: Further psychometric evaluation on item validity including differential item
functioning. Health Promotion Perspectives, 10, 145-151.
Johansson, H., Norlander, K., Janson, C., Malinovschi, A., Nordang, L., & Emtner, M. (in press).
The relationship between exercise induced bronchial obstruction and health related quality of life
in female and male adolescents from a general population. BMC Pulmonary Medicine.
Feldman, A.G., Neighbors, K., Mukherjee, S., Rak, M., Varni, J.W., & Alonso, E.M. (in press).
Impaired physical function following pediatric liver transplantation. Liver Transplantation.
Eken, M.M., Houdijk, H., Doorenbosch, C.A., Kiezebrink, F.E., van Bennekom, C.A., Harlaar, J.,
& Dallmeijer, A.J. (in press). Relations between muscle endurance and subjectively reported
fatigue, walking capacity, and participation in mildly affected adolescents with cerebral palsy.
Developmental Medicine and Child Neurology.
Grimaldi Capitello, T., Fiorilli, C., Placidi, S., Vallone, R., Drago, F., & Gentile, S. (2016). What
factors influence parents' perception of the quality of life of children and adolescents with
neurocardiogenic syncope? Health and Quality of Life Outcomes, 14(1):79.
Frederick, N.N., Kenney, L., Vrooman, L., & Recklitis, C.J. (in press). Fatigue in adolescent and
adult survivors of non-CNS childhood cancer: A report from project REACH. Supportive Care in
Cancer.
Hansen, D., Vedantam, A., Briceño, V., Lam, S.K., Luerssen, T.G., & Jea, A. (in press). Health-
related quality of life outcomes and level of evidence in pediatric neurosurgery. Journal of
Neurosurgery. Pediatrics.
Buratti, S., Ryberg, C., Broberg, M., & Sunnegårdh, J. (2016). Do self- and proxy reports of
cognitive problems reflect intellectual functioning in children and adolescents with congenital
heart defects? Frontiers in Pediatrics, 4:127.
Vandekerckhove, K., Coomans, I., De Bruyne, E., De Groote, K., Panzer, J., De Wolf, D., Boone,
J,, & De Bruyne, R. (in press). Evaluation of exercise performance, cardiac function, and quality
of life in children after liver transplantation. Transplantation.
Minooei, M.S., Ghazavi, Z., Abdeyazdan, Z., Gheissari, A., & Hemati, Z. (2016). The effect of
the family empowerment model on quality of life in children with chronic renal failure:
Children's and parents' views. Nephro-Urology Monthly, 8(4):e36854.
Samardzic, M., Tahirovic, H., Popovic, N., & Popovic-Samardzic, M. (in press). Health-related
quality of life in children and adolescents with type 1 diabetes mellitus from Montenegro:
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Anixt, J.S., Vaughn, A.J., Powe, N.R., & Lipkin, P.H. (in press). Adolescent perceptions of
outgrowing childhood attention-deficit hyperactivity disorder: Relationship to symptoms and
quality of life. Journal of Developmental and Behavioral Pediatrics.
Gopinath, B., Flood, V.M., Burlutsky, G., Louie, J.C., Baur, L.A., & Mitchell, P. (in press). Dairy
food consumption and health-related quality of life in boys: Preliminary findings from a 5-year
cohort study. Journal of the American College of Nutrition.
Toussaint, L.C., van der Cammen-van Zijp, M.H., Janssen, A.J., Tibboel, D., van Heijst, A.F., &
IJsselstijn, H. (in press). Perceived motor competence differs from actual performance in 8-year-
old neonatal ECMO survivors. Pediatrics.
Morou, Z., Lyrakos, G.N., Papadopoulos, N.G., Douladiris, N., Tatsioni, A., & Dimoliatis, I.D.
(2016). Translation, adaptation and initial validation of food allergy quality of life questionnaire:
Child form in Greek. Health Psychology Research, 4(1):4624.
Carpenter, J.L., Wiebe, T.L., Cass, D.L., Olutoye, O.O., & Lee, T.C. (in press). Assessing quality
of life in pediatric gastroschisis patients using the Pediatric Quality of Life Inventory survey: An
institutional study. Journal of Pediatric Surgery.
Neuvonen, M.I., Kyrklund, K., Rintala, R.J., & Pakarinen, M.P. (in press). Bowel function and
quality of life after transanal endorectal pull-through for Hirschsprung Disease: Controlled
outcomes up to adulthood. Annals of Surgery.
Limbers, C., Young, D., Jernigan, S., Bryant, W., & Stephen, M. (in press). Comparison between
objective measures and parental behavioral rating scales of memory and attention in pediatric
endocrinology patients. Applied Neuropsychology. Child.
Casey, M., Harvey, J., Telford, A., Eime, R., Mooney, A., & Payne, W. (in press). Patterns of time
use among regional and rural adolescent girls: Associations with correlates of physical activity
and health-related quality of life. Journal of Science and Medicine in Sport.
Kogon, A.J., Matheson, M.B., Flynn, J.T., Gerson, A.C., Warady, B.A., Furth, S.L., & Hooper,
S.R. (in press). Depressive symptoms in children with chronic kidney disease. Journal of
Pediatrics.
Rocca, F.L., Finotti, E., Pizza, F., Ingravallo, F., Gatta, M., Bruni, O., & Plazzi, G. (in press).
Psychosocial profile and quality of life in children with type 1 narcolepsy: A case-control study.
Sleep.
Karaman, S., Ozkan, B., Gok, M., Karakaya, I., Kara, O., Altintas, O., & Altintas, L. (in press).
Effect of eye trauma on mental health and quality of life in children and adolescents. International
Ophthalmology.
Prodeus, A., Niborski, V., Schrezenmeir, J., Gorelov, A., Shcherbina, A., & Rumyantsev, A. (in
press). Fermented milk consumption and common infections in children attending day-care
centers. A randomized trial. Journal of Pediatric Gastroenterology and Nutrition.
Kilicoglu, A.G., Bahali, K., Canpolat, N., Bilgic, A., Mutlu, C., Yalçın, Ö, Pehlivan, G., & Sever,
L. (in press). Impact of end stage renal disease on psychological status and quality of life.
Pediatrics International.
Limbers, C.A., & Larson, M. (in press). A systematic review of psychometric properties of the
Pediatric Quality of Life Inventory™ 4.0 Generic Core Scales in pediatric cancer patients and
survivors. Expert Review of Quality of Life in Cancer Care.
Nascimento Fagundes, S., Azevedo Soster, L., Lebl, A.S., Rodrigues Pereira, R.P., Tanaka, C.,
Pereira, R.F., Ferreira de Mattos Silvares, E., & Koch, V.H. (in press). Impact of a

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multidisciplinary evaluation in pediatric patients with nocturnal monosymptomatic enuresis.


Pediatric Nephrology.
Wong, C., Gerson, A., Hooper, S.R., Matheson, M., Lande, M., Kupferman, J., Furth, S., Warady,
B., & Flynn, J. (in press). Effect of elevated blood pressure on quality of life in children with
chronic kidney disease. Pediatric Nephrology.
Uzark, K., Smith, C., Donohue, J., Yu, S., Afton, K., Norris, M., & Cotts, T. (in press).
Assessment of transition readiness in adolescents and young adults with heart disease. Journal of
Pediatrics.
Kamath, B.M., Chen, Z., Romero, R., Fredericks, E.M., Alonso, E.M., Arnon, R., Heubi, J.,
Hertel, P.M., Karpen, S.J., Loomes, K.M., Murray, K.F., Rosenthal, P., Schwarz, K.B., Subbarao,
G., Teckman, J.H., Turmelle, Y.P., Wang, K.S., Sherker, A.H., Sokol, R.J., & Magee, J.C. (in
press). Quality of life and its determinants in a multicenter cohort of children with Alagille
Syndrome. Journal of Pediatrics.
Sherry, D.D., Brake, L., Tress, J.L., Sherker, J., Fash, K., Ferry, K., & Weiss, P.F. (in press). The
treatment of juvenile fibromyalgia with an intensive physical and psychosocial program. Journal
of Pediatrics.
Coghill, D., & Hodgkins, P. (in press). Health-related quality of life of children with attention-
deficit/hyperactivity disorder versus children with diabetes and healthy controls. European Child
& Adolescent Psychiatry.
Maher, C., Crettenden, A., Evans, K., Thiessen, M., Toohey, M., Watson, A., & Dollman, J. (in
press). Fatigue is a major issue for children and adolescents with physical disabilities.
Developmental Medicine and Child Neurology.
Jones, J.T., Cunningham, N., Kashikar-Zuck, S., & Brunner, H.I. (in press). Pain, fatigue and
psychological impact on health-related quality of life in childhood-onset Lupus. Arthritis Care &
Research.
Routes, J., Costa-Carvalho, B.T., Grimbacher, B., Paris, K., Ochs, H.D., Filipovich, A.,
Hintermeyer, M., de Melo, K.M., Workman, S., Ito, D., Ye, X., Bonnet, P., & Li-McLeod, J. (in
press). Health-related quality of life and health resource utilization in patients with primary
immunodeficiency disease prior to and following 12 months of immunoglobulin G treatment.
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Jalali-Farahani, S., Amiri, P., & Chin, Y.S. (in press). Are physical activity, sedentary behaviors
and sleep duration associated with body mass index-for-age and health-related quality of life
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Yun YJ, Shin YB, Kim SY, Shin MJ, Kim RJ, Oh TY. (2016). A study of the development of the
Korean version of PedsQL(TM) 3.0 cerebral palsy module and reliability and validity. Journal of
Physical Therapy Science, 28, 2132-2139.
Redouane, B., Cohen, E., Stephens, D., Keilty, K., Mouzaki, M., Narayanan, U., Moraes, T., &
Amin, R. (in press). Parental perceptions of quality of life in children on long-term ventilation at
home as compared to enterostomy tubes. PLoS One.
Zhang, H., Wang, L., Quan, M., Huang, J., Wu, P., Lu, Q., & Fang, Y. (in press). Health-related
quality of life in children with chronic immune thrombocytopenia in China. Health and Quality of
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Hsieh, R.L., Lee, W.C., & Lin, J.H. (in press). The impact of short-term video games on
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Taylan, C., Schlune, A., Meissner, T., Ažukaitis, K., Udink Ten Cate, F.E., & Weber, LT. (2016).
Disease control via intensified lipoprotein apheresis in three siblings with familial
hypercholesterolemia. Journal of Clinical Lipidology, 10(6):1303-1310.
Messina, S., Vita, G.L., Sframeli, M., Mondello, S., Mazzone, E., D'Amico, A., Berardinelli, A.,
La Rosa, M., Bruno, C., Distefano, M.G., Baranello, G., Barcellona, C., Scutifero, M., Marcato,
S., Palmieri, A., Politano, L., Morandi, L., Mongini, T., Pegoraro, E., D'Angelo, M.G., Pane, M.,
Rodolico, C., Minetti, C., Bertini, E., Vita, G., & Mercuri, E. (in press). Health-related quality of
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Kalyva, E., Abdul-Rasoul, M., Kehl, D., Barkai, L., & Lukács, A. (in press). A cross-cultural
study on perceived health-related quality of life in children and adolescents with type 1 diabetes
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Michels, N., Susi, K., Marques-Vidal, P.M., Nydegger, A., & Puder, J.J. (in press). Psychosocial
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International Journal of Behavioral Medicine.
Jelenova, D., Prasko, J., Ociskova, M., Karaskova, E., Hunkova, M., Kolarova, J., Vydra, D.,
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inflammatory bowel disease and their parents - comparison with healthy controls. Neuro
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Lee, Y.C., Yang, H.J., Chen, V.C., Lee, W.T., Teng, M.J., Lin, C.H., & Gossop, M. (2016). Meta-
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Lai, J.S., Haertling, T., Weinstein, J., Rademaker, A.W., & Goldman, S. (in press). A cross-
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Jelenova, D., Prasko, J., Ociskova, M., Latalova, K., Karaskova, E., Hruby, R., Kamaradova, D.,
& Mihal, V. (2016). Quality of life and parental styles assessed by adolescents suffering from
inflammatory bowel diseases and their parents. Neuropsychiatric Disease and Treatment, 12:665-
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Ranganathan, K., Shapiro, D., Carlozzi, N.E., Baker, M., Vercler, C.J., Kasten, S.J., Warschausky,
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measure of quality of life among children with cleft lip and palate. Plastic and Reconstructive
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Santos, S., Crespo, C., Canavarro, M.C., Fernandes, A., Batalha, L., de Campos, D., & Pinto, A.
(2016). Psychometric study of the European Portuguese version of the PedsQL 3.0 Cancer
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Feeney, R., Desha, L., Khan, A., & Ziviani, J. (in press). Contribution of speech and language
difficulties to health-related quality-of-life in Australian children: A longitudinal analysis.
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Cousins, L.A., Cohen, L.L., & Venable, C. (2015). Risk and resilience in pediatric chronic pain:
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de Vries, M., & Geurts, H. (in press). Influence of autism traits and executive functioning on
quality of life in children with an Autism Spectrum Disorder. Journal of Autism and
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Mitchell, H.R., Lu, X., Myers, R.M., Sung, L., Balsamo, L.M., Carroll, W.L., Raetz, E., Loh,
M.L., Mattano, L.A., Winick, N.J., Devidas, M., Hunger, S.P., Maloney, K., & Kadan-Lottick,
N.S. (in press). Prospective, longitudinal assessment of quality of life in children from diagnosis
to three months off treatment for standard risk (SR) acute lymphoblastic leukemia (ALL): Results
of Children's Oncology Group study AALL0331. International Journal of Cancer.
Garetz, S.L., Mitchell, R.B., Parker, P.D., Moore, R.H., Rosen, C.L., Giordani, B., Muzumdar, H.,
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Pediatrics.
Öztop, D.B., Taşdelen, B.İ., PoyrazoğLu, H.G., Ozsoy, S., Yilmaz, R., Şahın, N., Per, H., &
Bozkurt, S. (in press). Assessment of psychopathology and quality of life in children and
adolescents with migraine. Journal of Child Neurology.
Momani, T.G., Hathaway, D.K., & Mandrell, B.N. (in press). Factors affecting health-related
quality of life in children undergoing curative treatment for cancer: A review of the literature.
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O'Hare, D., Helmes, E., Reece, J., Eapen, V., & McBain, K. (in press). The differential impact of
Tourette's syndrome and comorbid diagnosis on the quality of life and functioning of diagnosed
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Yıldız Kabak, V., Yakut, Y., Çetin, M., & Düger, T. (in press). Reliability and validity of the
Turkish version of PedsQL 3.0 Cancer Module for 2 to 7 year old and PedsQL 4.0 Generic Core
Scale for 5 to 7 year old: The Hacettepe University Experience. Turkish Journal of Haematology.
Baytan, B., Aşut, Ç, Çırpan, Kantarcıoğlu, A., Sezgin Evim, M., & Güneş A.M. (in press). Health
related quality of life, depression, anxiety and self-image in acute lymphocytic leukaemia
survivors. Turkish Journal of Haematology.
Li, S., Sun, Q.L., Zhou, Y., Zhang, Y., Hu, X.J., Hong, W.S., & Ji, G.P. (2016). Factors
influencing the quality of life of 104 children with phenylketonuria in Anhui Province, China.
Chinese Journal of Contemporary Pediatrics, 18, 702-706.
Schmitt, F., Riquin, E., Beaumesnil, M., Dinomais, M., Topart, P., Weil, D., Malka, J., Coutant,
R., Podevin, G, & Bouhours-Nouet, N. (in press). Laparoscopic adjustable gastric banding in
adolescents: Results at two years including psychosocial aspects. Journal of Pediatric Surgery.
Landfeldt, E., Lindgren, P., Bell, C.F., Guglieri, M., Straub, V., Lochmüller, H., & Bushby, K. (in
press). Health-related quality of life in patients with Duchenne muscular dystrophy: A
multinational, cross-sectional study. Developmental Medicine and Child Neurology.
Pinto, S., McCrone, S., & Shapiro, A.L. (in press). Perceptions of asthma quality of life in
children and parent dyads in two rural counties in West Virginia. Journal of School Nursing.
Bratt, E.L., Luyckx, K., Goossens, E., Budts, W., & Moons, P. (in press). Patient-reported health
in young people with congenital heart disease transitioning to adulthood. Journal of Adolescent
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John, B., Bellipady, S.S., & Bhat, S.U. (in press). Sleep promotion program for improving sleep
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Chiriboga, C.A., Swoboda, K.J., Darras, B.T., Iannaccone, S.T., Montes, J., De Vivo, D.C.,
Norris, D.A., Bennett, C.F., & Bishop, K.M. (in press). Results from a phase 1 study of
nusinersen (ISIS-SMNRx) in children with spinal muscular atrophy. Neurology.
Rahman, M., Afroz, S., Ali, R., & Hanif, M. (2016). Health related quality of life in children with
nephrotic syndrome in Bangladesh. Mymensingh Medical Journal, 25, 703-709.
Ryan, J.L., McGrady, M.E., Guilfoyle, S.M., Junger, K., Arnett, A.D., & Modi, A.C. (2015).
Health care charges for youth with newly diagnosed epilepsy. Neurology, 85, 490-497.
Kim, J.H., Lee, C., & Sohn, W. (in press). Urban natural environments, obesity, and health-related
quality of life among Hispanic children living in inner-city neighborhoods. International Journal
of Environmental Research and Public Health.
Newcombe, P.A., Sheffield, J.K., Petsky, H.L., Marchant, J.M., Willis, C., & Chang, A.B. (in
press). A child chronic cough-specific quality of life measure: Development and validation.
Thorax.
Dupuis, L.L., Lu, X., Mitchell, H.R., Sung, L., Devidas, M., Mattano, L.A. Jr., Carroll, W.L.,
Winick, N., Hunger, S.P., Maloney, K.W., & Kadan-Lottick, N.S. (in press). Anxiety, pain, and
nausea during the treatment of standard-risk childhood acute lymphoblastic leukemia: A
prospective, longitudinal study from the Children's Oncology Group. Cancer.
Dean, P.N., Gillespie, C.W., Greene, E.A., Pearson, G.D., Robb, A.S., Berul, C.I., & Kaltman,
J.R. (in press). Sports participation and quality of life in adolescents and young adults with
congenital heart disease. Congenital Heart Disease.
Grover, S.A., Aubert-Broche, B., Fetco, D., Collins, D.L., Arnold, D.L., Finlayson, M., Banwell,
B.L., Motl, R.W., & Yeh, E.A. (in press). Lower physical activity is associated with higher
disease burden in pediatric multiple sclerosis. Neurology.
Kalapurakkel, S., Carpino, E.A., Lebel, A., & Simons, L.E. (2015). “Pain Can’t Stop Me”:
Examining pain self-efficacy and acceptance as resilience processes among youth with chronic
headache. Journal of Pediatric Psychology, 40, 926-933.
Chandler, H.K., Teppa, B., Johnson, K.A., McCracken, C., Fortenberry, J.D., & Paden, M.L. (in
press). Determining comorbidities and quality of life among pediatric survivors of extracorporeal
life support. Journal of Critical Care.
Ghotra, S.K., Johnson, J.A., Qiu, W., Newton, A., Rasmussen, C., & Yager, J.Y. (in press). Age at
stroke onset influences the clinical outcome and health-related quality of life in pediatric ischemic
stroke survivors. Developmental Medicine and Child Neurology.
Mills, S.A., Hofman, P.L., Jiang, Y., & Anderson, Y.C. (2015). Health-related quality of life of
Taranaki children with Type 1 diabetes. New Zealand Medical Journal, 128, 25-32.
Stinson, J.N., Jibb, L.A., Nguyen, C., Nathan, P.C., Maloney, A.M., Dupuis, L.L., Gerstle, J.T.,
Hopyan, S., Alman, B.A., Strahlendorf, C., Portwine, C., & Johnston, D.L. (in press). Construct
validity and reliability of a real-time multidimensional smartphone app to assess pain in children
and adolescents with cancer. Pain.
Jafari, P., Allahyari, E., Salarzadeh, M., & Bagheri, Z. (in press). Item-level informant
discrepancies across obese-overweight children and their parents on the PedsQL™ 4.0
instrument: An iterative hybrid ordinal logistic regression. Quality of Life Research.
Doostfatemeh, M., Ayatollahi, S.M., & Jafari, P. (in press).Testing parent dyad interchangeability
in the parent proxy-report of PedsQL™ 4.0: A differential item functioning analysis. Quality of
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Lee, H., Choi, J., Hwang, J.H., & Park, J.H. (in press). Psychometric evaluation of the scoliosis
research society-22 revised questionnaire among adolescents with idiopathic scoliosis. Journal of
Pediatric Orthopedics. Part B.
Bal, H.S., Sen, S., Karl, S., Mathai, J., & Thomas, R.J. (in press). An assessment of quality of life
of operated cases of esophageal atresia in the community. Journal of Indian Association of
Pediatric Surgeons.
Splinter, K., Niemi, A.K., Cox, R., Platt, J., Shah, M., Enns, G.M., Kasahara, M., & Bernstein,
J.A. (in press). Impaired health-related quality of life in children and families affected by
methylmalonic acidemia. Journal of Genetic Counseling.
Yock, T.I., Bhat, S., Szymonifka, J., Yeap, B.Y., Delahaye, J., Donaldson, S.S., MacDonald, S.M.,
Pulsifer, M.B., Hill, K.S., DeLaney, T.F., Ebb, D., Huang, M., Tarbell, N.J., Fisher, P.G., &
Kuhlthau, K.A. (in press). Quality of life outcomes in proton and photon treated pediatric brain
tumor survivors. Radiotherapy and Oncology.
Mutlu, E.K., Mutlu, C., Taskiran, H., & Ozgen, I.T. (in press). Association of physical activity
level with depression, anxiety, and quality of life in children with type 1 diabetes mellitus.
Journal of Pediatric Endocrinology & Metabolism.
Brulé, D., Gillmeister, B., Lee, M., Alexander, S., Gassas, A., Hendershot, E., Zupanec, S.,
Dupuis, L., & Sung, L. (in press). A feasibility pilot trial of individualized homeopathic treatment
of fatigue in children receiving chemotherapy. Integrative Cancer Therapies.
Stish, B.J., Ahmed, S.K., Rose, P.S., Arndt, C.A., & Laack, N.N. (in press). Patient-reported
functional and quality of life outcomes in a large cohort of long-term survivors of Ewing
sarcoma. Pediatric Blood & Cancer.
Looi, V., Lee, Z.Z., & Loo, J.H. (in press). Quality of life outcomes for children with hearing
impairment in Singapore. International Journal of Pediatric Otorhinolaryngology.
Shapiro, D.R., & Malone, L.A. (in press). Quality of life and psychological affect related to sport
participation in children and youth athletes with physical disabilities: A parent and athlete
perspective. Disability and Health Journal.
Alpaslan, A.H., Ucok, K., Coşkun, K.Ş., Genc, A., Karabacak, H., & Guzel, H.I. (in press).
Resting metabolic rate, pulmonary functions, and body composition parameters in children with
attention deficit hyperactivity disorder. Eating and Weight Disorders.
Ward, T.M., Yuwen, W., Voss, J., Foell, D., Gohar, F., & Ringold, S. (in press). Sleep
fragmentation and biomarkers in juvenile idiopathic arthritis. Biological Research for Nursing.
Wilmot, I., Cephus, C.E., Cassedy, A., Kudel, I., Marino, B.S., & Jefferies, J.L. (in press). Health-
related quality of life in children with heart failure as perceived by children and parents.
Cardiology in the Young.
Ananworanich, J., Melvin, D., Amador, J.T., Childs, T., Medin, G., Boscolo, V., Compagnucci,
A., Kanjanavanit, S., Montero, S., & Gibb, D.M. (in press). Neurocognition and quality of life
after reinitiating antiretroviral therapy in children randomized to planned treatment interruption.
AIDS.
Khoshkhui, M., Jafari, P., Afrasiabi, M. Orooj, M., & Kashef, S. (in press). Level of agreement
between children with asthma and their parents on quality of life. Iranian Journal of Medical
Sciences.
Hwang, J.H., Varte, L., Kim, H.W., Lee, D.H., & Park, H. (2016). Salvage procedures for the
painful chronically dislocated hip in cerebral palsy. Bone & Joint Journal, 98-B(1):137-43.

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Tran, S.T., Jastrowski Mano, K.E., Hainsworth, K.R., Medrano, G.R., Khan, K.A., Weisman, S.J.,
& Davies, W.H. (2015). Distinct influences of anxiety and pain catastrophizing on functional
outcomes in children and adolescents with chronic pain. Journal of Pediatric Psychology, 40,
744-755.
Bull, K.S., Liossi, C., Peacock, J.L., Yuen, H.M., & Kennedy, C.R. (in press). Screening for
cognitive deficits in 8 to 14-year old children with cerebellar tumors using self-report measures of
executive and behavioral functioning and health-related quality of life. Neuro-Oncology.
Telo, G.H., Volkening, L.K., Butler D.A., & Laffel, L.M. (2015). Salient characteristics of youth
with type 1 diabetes initiating continuous glucose monitoring. Diabetes Technology &
Therapeutics, 17, 373-378.
Czosek, R.J., Kaltman, J.R., Cassedy, A.E., Shah, M.J., Vetter, V.L., Tanel, R.E., Wernovksy, G.,
Wray, J., & Marino, B.S. (in press). Quality of life of pediatric patients with long QT syndrome.
American Journal of Cardiology.
Cohen, S., Ter Stege, J.A., Weijsenfeld, A.M., van der Plas, A., Kuijpers, T.W., Reiss, P.,
Scherpbier, H.J., Haverman, L., & Pajkrt, D. (in press). Health-related quality of life in
perinatally HIV-infected children in the Netherlands. AIDS Care.
Ringel-Kulka, T., Kotch, J.B., Jensen, E.T., Savage, E., & Weber, D.J. (in press). Randomized,
double-blind, placebo-controlled study of synbiotic yogurt effect on the health of children.
Journal of Pediatrics.
Spanaki, A., O'Curry, S., Winter-Beatty, J., Mead-Regan, S., Hawkins, K., English, J., Head, C.,
Ridout, D., Tome-Esteban, M.T., Elliott, P., & Kaski, J.P. (in press). Psychosocial adjustment and
quality of life in children undergoing screening in a specialist paediatric hypertrophic
cardiomyopathy clinic. Cardiology in the Young.
Hiscock, H., Sciberras, E., Mensah, F., Gerner, B., Efron, D., Khano, S., & Oberklaid, F. (in
press). Impact of a behavioural sleep intervention on symptoms and sleep in children with
attention deficit hyperactivity disorder, and parental mental health: Randomised controlled trial.
British Medical Journal.
Biagetti, C., Gesuita, R., Gatti, S., & Catassi, C. (in press). Quality of life in children with celiac
disease: A paediatric cross-sectional study. Digestive and Liver Disease.
Winger, A., Kvarstein, G., Wyller, V.B., Ekstedt, M., Sulheim, D., Fagermoen, E., Småstuen,
M.C., & Helseth, S. (2015). Health related quality of life in adolescents with chronic fatigue
syndrome: A cross-sectional study. Health and Quality of Life Outcomes, 13(1):96.
Ilmer, E.C., Lambregts, S.A., Berger, M.A., de Kloet, A.J., Hilberink, S.R., & Roebroeck, M.E.
(in press). Health-related quality of life in children and youth with acquired brain injury: Two
years after injury. European Journal of Paediatric Neurology.
Sritipsukho, P., Satdhabudha, A., & Nanthapisal, S. (2015). Effect of allergic rhinitis and asthma
on the quality of life in young Thai adolescents. Asian Pacific Journal of Allergy and
Immunology, 33, 222-226.
Crowell, M.D., Murphy, T.B., Levy, R.L., Langer, S.L., Kunin-Batson, A., Seburg, E.M., Senso,
M., & Sherwood, N.E. (2015). Eating behaviors and quality of life in preadolescents at risk for
obesity with and without abdominal pain. Journal of Pediatric Gastroenterology & Nutrition, 60,
217-223.
Yau, M., Vogiatzi, M., Lewkowitz-Shpuntoff, A., Nimkarn, S., & Lin-Su, K. (in press). Health-
related quality of life in children with congenital adrenal hyperplasia. Hormone Research in
Pædiatrics.

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Kruszewski, P.G., Russo, J.M., Franciosi, J.P., Varni, J.W., Platts-Mills, T.A.E., & Erwin, E.A. (in
press). Prospective, comparative effectiveness trial of cow’s milk elimination and swallowed
fluticasone for pediatric eosinophilic esophagitis. Diseases of the Esophagus.
Sheikh, F., Akinkuotu, A., Clark, S.J., Zamora, I.J., Cass, D.L., Olutoye, O., & Lee, T.C. (in
press). Assessment of quality of life outcomes using the Pediatric Quality of Life Inventory
survey in prenatally diagnosed congenital diaphragmatic hernia patients. Journal of Pediatric
Surgery.
Ng, J., Ford, K., Dalton, S., McDowell, S., Charlesworth, P., & Cleeve, S. (in press). Transanal
irrigation for intractable faecal incontinence and constipation: Outcomes, quality of life and
predicting non-adopters. Pediatric Surgery International.
Maher, C.A., Toohey, M., & Ferguson, M. (in press). Physical activity predicts quality of life and
happiness in children and adolescents with cerebral palsy. Disability and Rehabilitation.
Miller, J.R., Boston, U.S., Epstein, D.J., Henn, M.C., Lawrance, C.P., Kallenbach, J., Simpson,
K.E., Canter, C.E., & Eghtesady, P. (in press). Pediatric quality of life while supported with a
ventricular assist device. Congenital Heart Disease.
Mianowska, B., Fendler, W., Tomasik, B., Młynarski, W., & Szadkowska, A. (in press). Effect of
insulin dilution on lowering glycemic variability in pump-treated young children with
inadequately controlled type 1 diabetes. Diabetes Technology & Therapeutics.
Rabbitts, J.A., Groenewald, C.B., Tai, G.G., & Palermo, T.M. (2015). Presurgical psychosocial
predictors of acute postsurgical pain and quality of life in children undergoing major surgery. The
Journal of Pain, 16, 226-234.
Kovacic, K., Sood, M.R., Mugie, S., Di Lorenzo, C., Nurko, S., Heinz, N., Ponnambalam, A.,
Beesley, C., Sanghavi, R., & Silverman, A.H. (2015). A multicenter study on childhood
constipation and fecal incontinence: Effects on quality of life. Journal of Pediatrics, 166, 1482-
1487.
Viecili, M.A., & Weiss, J.A. (2015). Reliability and validity of the Pediatric Quality of Life
Inventory with individuals with intellectual and developmental disabilities. American Journal on
Intellectual and Developmental Disabilities, 120, 289-301.
Bugescu, N., Alioto, A., Segal, S., Cordova, M., & Packman, W. (2015). The neurocognitive
impact of Fabry disease on pediatric patients. American Journal of Medical Genetics Part B:
Neuropsychiatric Genetics, 168, 204–210.
Darezzo Rodrigues Nunes, M., Jacob, E., Adlard, K., Secola, R., & Nascimento, L. (2015).
Fatigue and sleep experiences at home in children and adolescents with cancer. Oncology
Nursing Forum, 42, 498-506.
Nicola, K., & Watter, P. (2015). Health-related quality of life from the perspective of children
with severe specific language impairment. Health and Quality of Life Outcomes, 13(1):127.
Boogerd, E.A., Damhuis, A.M, van Alfen-van der Velden, J.A., Steeghs, M.C., Noordam, C.,
Verhaak, C.M., & Vermaes, I.P. (in press). Assessment of psychosocial problems in children with
type 1 diabetes and their families: The added value of using standardised questionnaires in
addition to clinical estimations of nurses and paediatricians. Journal of Clinical Nursing.
Sulkowski, J.P., Nacion, K.M., Deans, K.J., Minneci, P.C., Levitt, M.A., Mousa, H.M., Alpert,
S.A., & Teich, S. (in press). Sacral nerve stimulation: A promising therapy for fecal and urinary
incontinence and constipation in children. Journal of Pediatric Surgery.

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Mulcahey, M.J., Haley, S.M., Slavin, M.D., Kisala, P.A., Ni, P., Tulsky, D.S., & Jette, A.M. (in
press). Ability of PROMIS pediatric measures to detect change in children with cerebral palsy
undergoing musculoskeletal surgery. Journal of Pediatric Orthopedics.
Caferoğlu, Z., İnanç, N., Hatipoğlu, N., & Kurtoğlu, S. (in press). Health-related quality of life is
associated with metabolic control in children and adolescents with type 1 diabetes mellitus.
Journal of Clinical Research in Pediatric Endocrinology.
de Kloet, A.J., Lambregts, S.A., Berger, M.A., van Markus, F., Wolterbeek, R., & Vliet Vlieland,
T.P. (in press). Family impact of acquired brain injury in children and youth. Journal of
Developmental and Behavioral Pediatrics.
Turan, E., Kandemir, H., Yeşilova, Y., Ekinci, S., Tanrıkulu, O., Kandemir, S.B., & Gurel, M.S.
(in press). Assessment of psychiatric morbidity and quality of life in children and adolescents
with cutaneous leishmaniasis and their parents. Postȩpy Dermatologii i Alergologii.
Boonchooduang, N., Louthrenoo, O., Choeyprasert, W., & Charoenkwan, P. (in press). Health-
related quality of life in adolescents with Thalassemia. Pediatric Hematology and Oncology.
Sluys, K.P., Lannge, M., Iselius, L., & Eriksson, L.E. (in press). Six years beyond pediatric
trauma: child and parental ratings of children's health-related quality of life in relation to parental
mental health. Quality of Life Research.
Moreira, J.M., Bouissou Morais Soares, C.M., Teixeira, A.L., Simões, E. Silva, A.C., & Kummer,
A.M. (in press). Anxiety, depression, resilience and quality of life in children and adolescents
with pre-dialysis chronic kidney disease. Pediatric Nephrology.
Place, A.E., Stevenson, K.E., Vrooman, L.M., Harris, M.H., Hunt, S.K., O'Brien, J.E., Supko,
J.G., Asselin, B.L., Athale, U.H., Clavell, L.A., Cole, P.D., Kelly, K.M., Laverdiere, C., Leclerc,
J.M., Michon, B., Schorin, M.A., Welch, J.J., Lipshultz, S.E., Kutok, J.L., Blonquist, T.M.,
Neuberg, D.S., Sallan, S.E., & Silverman, L.B. (in press). Intravenous pegylated asparaginase
versus intramuscular native Escherichia colil-asparaginase in newly diagnosed childhood acute
lymphoblastic leukaemia (DFCI 05-001): A randomised, open-label phase 3 trial. Lancet.
Oncology.
Mulligan, K., Wedderburn, L.R., & Newman, S. (2015). The experience of taking methotrexate
for juvenile idiopathic arthritis: Results of a cross-sectional survey with children and young
people. Pediatric Rheumatology, 13(1):58.
Fawley, J.A., Peterson, E.L., Christensen, M.A., Rein, L., & Wagner, A.J. (in press). Can
omphalocele ratio predict postnatal outcomes? Journal of Pediatric Surgery.
Luyckx, K., Rassart, J., Goossens, E., Apers, S., Oris, L., & Moons, P. (in press). Development
and persistence of depressive symptoms in adolescents with CHD. Cardiology in the Young.
Spirkova, A., Dusatkova, P., Peckova, M., Kolouskova, S., Snajderova, M., Obermannova, B.,
Stechova, K., Hrachovinova, T., Mares, J., Cinek, O., Lebl, J., Sumnik, Z., & Pruhova, S. (in
press). Treated autoimmune thyroid disease is associated with a decreased quality of life among
young persons with Type 1 Diabetes. International Journal of Endocrinology.
Khalil, M. (in press). Long-term health-related quality of life for patients with Hirschsprung's
disease at 5 years after transanal endorectal pull-through operation Quality of Life Research.
Malheiros, C.D., Lisle, L., Castelar, M., Sá, K.N., & Matos, M.A. (in press). Hip dysfunction and
quality of life in patients with sickle cell disease. Clinical Pediatrics.

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Bosch, A.M., Burlina, A., Cunningham, A., Bettiol, E., Moreau-Stucker, F., Benmedjahed, K., &
Regnault, A. (in press). Assessment of the impact of phenylketonuria and its treatment on quality
of life of patients and parents from seven European countries. Orphanet Journal of Rare Diseases.
Murray, C., Holmbeck, G., Ros, A., Flores, D., Mir, S., & Varni, J.W. (2015). A longitudinal
examination of health-related quality of life in children and adolescents with spina bifida. Journal
of Pediatric Psychology, 40, 419-430.
Vassilyadi, M., Macartney, G., Barrowman, N., Anderson, P., & Dube, K. (in press). Symptom
experience and quality of life in children after sport-related head injuries: A cross-sectional study.
Pediatric Neurosurgery.
Dalton, A.G., Smith, C., Dalton, W.T., & Slawson, D.L. (in press). Examining general versus
condition-specific health-related quality of life across weight categories in an adolescent sample.
Journal of Pediatric Health Care.
Valier, A.R., Welch Bacon, C.E., Bay, R.C., Houston, M.N., Valovich McLeod, T.C. (in press).
The validity of single-item patient-rated outcomes in concussed adolescent football athletes.
Archives of Physical Medicine and Rehabilitation.
Johansen, H., Dammann, B., Øinæs Andersen, L, & Andresen, I.L. (in press). Children with
congenital limb deficiency in Norway: Issues related to school life and health-related quality of
life. A cross-sectional study. Disability and Rehabilitation.
Shah, P., Rahman, S.A., McElroy, S., Gilbert, C., Morgan, K., Hinchey, L., Senniappan, S., Levy,
H., Amin, R., & Hussain, K. (in press). Use of long-acting somatostatin analogue (Lanreotide) in
an adolescent with diazoxide-responsive congenital hyperinsulinism and its psychological impact.
Hormone Research in Pædiatrics.
Anderson, K., Ritchie, K., Chorney, J.M., Bezuhly, M., & Hong, P. (in press). The impact of
septoplasty on health-related quality of life in paediatric patients. Clinical Otolaryngology.
Loh, D.A., Moy, F.M., Zaharan, N.L., & Mohamed, Z. (in press). Disparities in health-related
quality of life among healthy adolescents in a developing country - the impact of gender,
ethnicity, socio-economic status and weight status. Child: Care, Health and Development.
Arnold, L.M., Bateman, L., Palmer, R.H., & Lin, Y. (2015). Preliminary experience using
milnacipran in patients with juvenile fibromyalgia: lessons from a clinical trial program. Pediatric
Rheumatology Online Journal, 26; 13(1):27.
Rao, S., Elkon, B., Flett, K.B., Moss, A.F., Bernard, T.J., Stroud, B., & Wilson, K.M. (in press).
Long-term outcomes and risk factors associated with acute encephalitis in children. Journal of the
Pediatric Infectious Diseases Society.
Steenbruggen, T.G., Hoekstra, S.J., & van der Gaag, E.J. (2015). Could a change in diet revitalize
children who suffer from unresolved fatigue? Nutrients, 7, 1965-1977.
Caicedo, C. (in press). Health and functioning of families of children with special health care
needs cared for in home care, long-term care, and medical day care settings. Journal of
Developmental and Behavioral Pediatrics.
Blair, J., Gregory, J.W., Hughes, D., Ridyard, C.H., Gamble, C., McKay, A., Didi, M.,
Thornborough, K., Bedson, E., Awoyale, L., Cwiklinski, E., & Peak, M. (2015). Study protocol
for a randomised controlled trial of insulin delivery by continuous subcutaneous infusion
compared to multiple daily injections. Trials, 16(1):163.

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Gandhi, P.K., Revicki, D.A., & Huang, I.C. (2015). Adolescent body weight and health-related
quality of life rated by adolescents and parents: The issue of measurement bias. BMC Public
Health, 15(1):1192.
Sehlo, M.G., & Kamfar, H.Z. (2015). Depression and quality of life in children with sickle cell
disease: The effect of social support. BMC Psychiatry, 15(1):78.
Sheikh, F., Akinkuotu, A., Olutoye, O.O., Pimpalwar, S., Cassady, C.I., Fernandes, C.J., Ruano,
R., Lee, T.C., & Cass, D.L. (in press). Prenatally diagnosed neck masses: Long-term outcomes
and quality of life. Journal of Pediatric Surgery.
Lim, C.S., Gowey, M.A., Silverstein, J., Dumont-Driscoll, M., & Janicke, D.M. (in press).
Depressive symptoms, ethnic identity, and health-related quality of life in obese youth. Journal of
Pediatric Psychology.
Van Heest, A.E., Bagley, A., Molitor, F., & James, M.A. (2015). Tendon transfer surgery in
upper-extremity cerebral palsy is more effective than botulinum toxin injections or regular,
ongoing therapy. Journal of Bone and Joint Surgery, 97, 529-536.
Jiang, X., Ren, X., Liu, H., Tian, J., Du, C., Luo, H., Cheng, Y., & Shang, L. (in press). Health-
related quality of life among children with adenoid hypertrophy in Xi'an, China. International
Journal of Pediatric Otorhinolaryngology.
Hurrell, R.A., Fullwood, C., Keys, J., Dickson, A.P., Fishwick, J., Whitnall, B., & Cervellione,
R.M. (in press). Psychosocial screening at paediatric BEEC clinics: A pilot evaluation study.
Journal of Pediatric Urology.
Sorensen, L.G., Katie Neighbors, K., Zhang, S., Limbers, C.A., Varni, J.W., Ng, V.L., Squires,
R.H., & Alonso, E.M. (2015). Neuropsychological functioning and health-related quality of life:
Pediatric Acute Liver Failure Study Group results. Journal of Pediatric Gastroenterology &
Nutrition, 60, 75–83.
Guilfoyle, S.M., Monahan, S., Wesolowski, C., & Modi, A.C. (2015). Depression screening in
pediatric epilepsy: Evidence for the benefit of a behavioral medicine service in early detection.
Epilepsy & Behavior, 44C, 5-10.
Lord, J.H., Rumburg, T.M., & Jaser, S.S. (2015). Staying positive: Positive affect as a predictor of
resilience in adolescents with Type 1 diabetes. Journal of Pediatric Psychology, 40, 968-977.
He, K., Shen, C., Chen, X., Han, L., Xi, Z., Zhou, T., Zhang, J., & Xia, Q. (2015). Health-related
quality of life and sleep among Chinese children after living donor liver transplantation. Pediatric
Transplantation, 19, 547-554.
Monaghan, M., Clary, L., Stern, A., Hilliard, M.E., & Streisand, R. (2015). Protective factors in
young children with Type 1 diabetes. Journal of Pediatric Psychology, 40, 878-887.
Abo-Haded, H.M. (2015). Radiofrequency ablation changes the quality of life of children with
supraventricular tachycardias. Archives of Disease in Childhood, 100, 754–757.
Versteegh, H.P., van den Hondel, D., IJsselstijn, H., Wijnen, R.M., Sloots, C.E., & de Blaauw, I.
(in press). Cloacal malformation patients report similar quality of life as female patients with less
complex anorectal malformations. Journal of Pediatric Surgery.
Silverman, A.H., Berlin, K.S., Di Lorenzo, C., Nurko, S., Kamody, R.C., Ponnambalam, A.,
Mugie, S., Gorges, C., Sanghavi, R., & Sood, M.R. (in press). Measuring health-related quality of
life with the parental opinions of pediatric constipation questionnaire. Journal of Pediatric
Psychology.

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Kilicoglu, A.G., Mutlu, C., Bahali, M.K., Adaletli, H., Gunes, H., Metin Duman, H., Toz, H.I., &
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Kulkarni, A.A., Swinburn, B.A., & Utter, J. (in press). Associations between diet quality and
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D’Annunzio, G., Gialetti, S., Carducci, C., Rabbone, I., Lo Presti, D., Toni, S., Zito, E., Bolloli,
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association with overweight and health-related quality of life among adolescents in selected high
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Rhee, M.A., Chung, K.M., Lee, Y., Choi, H.K., Han, J.W., Kim, H.S., Kim, S.H., Shin, Y.J., &
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Macartney, G., Vandenkerkhof, E, Harrison, M.B., & Stacey, D. (in press). Symptom experience
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Casey, M.M., Harvey, J.T., Telford, A., Eime, R.M., Mooney, A., & Payne WR. (2014).
Effectiveness of a school-community linked program on physical activity levels and health-
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Vella, S.A., Cliff, D.P., Magee, C.A., & Okely, A.D. (2014). Sports participation and parent-
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Heitink-Pollé, K.M., Haverman, L., Annink, K.V., Schep, S.J., de Haas, M., & Bruin, M.C. (in
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McCabe, M., & Branowicki, P. (2014). Fatigue in the acute care and ambulatory setting. Journal
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Brands, M.M., Güngör, D., van den Hout, J.M., Karstens, F.P., Oussoren, E., Plug, I., Boelens,
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Mellion, K., Uzark, K., Cassedy, A., Drotar, D., Wernovsky, G., Newburger, J.W., Mahony, L.,
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Klotsche, J., Minden, K., Thon, A., Ganser, G., Urban, A., & Horneff, G. (2014). Improvement in
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Lim, Y., Velozo, C., & Bendixen, R.M. (2014). The level of agreement between child self-reports
and parent proxy-reports of health-related quality of life in boys with Duchenne muscular
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Andersen, M.N., Dore-Stites, D., Gleit, R., Lopez, J., & Fredericks, E.M. (2014). A pilot study of
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Silva, G.E., Goodwin, J.L., Vana, K.D., Vasquez, M.M., Wilcox, P.G., & Quan, S.F. (2014).
Restless legs syndrome, sleep, and quality of life among adolescents and young adults. Journal of
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Alonso, E., Martz, K., Wang, D., Yi, M., Neighbors, K., Varni, J.W, & Bucuvalas, J. (in press).
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Seid, M., Huang, B., Niehaus, S., Brunner, H.I., & Lovell, D.J. (2014). Determinants of health-
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Katz, M.L., Volkening, L.K., Butler, D.A., Anderson, B.J., & Laffel, L.M. (2014). Family-based
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visual analogue scale and the pediatric quality of life inventory for measuring health-related
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Nelson T.D., Kidwell, K.M., Hoffman, S., Trout, A.L., Epstein, M.H., & Thompson, R.W. (2014).
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Kocova, H., Dvorackova, O., Vondracek, P., & Haberlova, J. (2014). Health-related quality of life
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Children of non-Western origin with end-stage renal disease in the Netherlands, Belgium and a
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Kim J, Chung H, Amtmann D, Salem R, Park R, Askew RL. (2014). Symptoms and quality of life
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Hilliard, M.E., Mann, K.A., Peugh, J.L., & Hood, K.K. (2013). How poorer quality of life in
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Johnson, S.R., Cooper, M.N., Davis, E.A., & Jones, T.W. (2013). Hypoglycaemia, fear of
hypoglycaemia and quality of life in children with Type 1 diabetes and their parents. Diabetic
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Riordan, A., Kelly, E.H., Klaas, S.J., & Vogel, L.C. (in press). Psychosocial outcomes among
youth with spinal cord injury by neurological impairment. Journal of Spinal Cord Medicine.
Piyasil, V., Thammawasi, T., Tasri, L., Chaiyakun, P., Ketumarn, P., Pityaratsatian, N.,
Sitdhiraksa, N., & Ularntinon, S. (2014). Quality of life and happiness of the students in the
disaster area: 6 years after the Tsunami at Takua Pa District, Phang Nga, Thailand. Journal of the
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Parent, J.J., Sterrett, L., Caldwell, R., Darragh, R., Schamberger, M., Murphy, D., & Ebenroth, E.
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Ryan, J.L., Mellon, M.W., Junger, K.W., Hente, E.A., Denson, L.A., Saeed, S.A., & Hommel,
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Teixeira, C.G., Duarte, M.D., Prado, C.M., Albuquerque, E.C., & Andrade, L.B. (in press).
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Paulo, L.T., Len, C.A., Hilario, M.O., Pedroso, S.A., Vitalle, M.S., Terreri, M.T. (in press).
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Kuburovic, N.B., Pasic, S., Susic, G., Stevanovic, D., Kuburovic, V., Zdravkovic, S., Janicijevic,
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Ferreira, P.L., Baltazar, C.F., Cavalheiro, L., Cabri, J., & Gonçalves, R.S. (2014). Reliability and
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Petersen, S., Swinburn, B., Mavoa, H., Fotu, K., Tupoulahi-Fusimalohi, C., Faeamani, G., &
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MaCartney, G., Harrison, M.B., Vandenkerkhof, E., Stacey, D., & McCarthy, P. (2014). Quality of
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Carlson, M.J., Moore, C.E., Tsai, C.M., Shulman, R.J., & Chumpitazi, B.P. (2014). Child and
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functional gastrointestinal disorders. Journal of the Academy of Nutrition and Dietetics, 114, 403-
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Al-Hayek, A.A., Robert, A.A., Abbas, H.M., Itani, M.B., Al-Saeed, A.H., Juhani, A.E., Al-
Goudah, H.S., & Al-Sabaan, F.S. (2014). Assessment of health-related quality of life among
adolescents with type 1 diabetes mellitus in Saudi Arabia. Saudi Medical Journal, 35, 712-717.
Rastogi, R., Rastogi, D., & Silver, E.J. (2014). Quality of life among urban children with obesity
and asthma. Journal of Health Care for the Poor and Underserved, 25, 683-693.
Nwenyi, E., Leafman, J., Mathieson, K., & Ezeobah, N. (2014). Differences in quality of life
between pediatric sickle cell patients who used hydroxyurea and those who did not. International
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Gopinath, B., Louie, J.C., Flood, V.M., Burlutsky, G., Hardy, L.L., Baur, L.A., & Mitchell, P.
(2014). Influence of obesogenic behaviors on health-related quality of life in adolescents. Asia
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Pennison, M.C., Mednick, L., Rosoklija, I., Grant, R., Price, D., Huang, L., Ziniel, S., & Borer,
J.G. (2014). Health related quality of life in patients with bladder exstrophy: A call for targeted
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Uçer, O., & Gümüş, B. (in press). Quantifying subjective assessment of sleep quality, quality of
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Functional capacity, strength, and quality of life in children and youth with familial
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Mendonça, T.M., Terreri, M.T., Silva, C.H., Neto, M.B., Pinto, R.M., Natour, J., & Len, C.A. (in
press). Effects of Pilates exercises on health-related quality of life in individuals with juvenile
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Kunin-Batson, A., Kadan-Lottick, N., & Neglia, J.P. (in press). The contribution of
neurocognitive functioning to quality of life after childhood acute lymphoblastic leukemia.
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Jaser, S.S, Whittemore, R., Chao, A., Jeon, S., Faulkner, M.S., & Grey, M. (2014). Mediators of
12-month outcomes of two Internet interventions for youth with Type 1 diabetes. Journal of
Pediatric Psychology, 39, 306–315.
Gilban, D., Alves Junior, P., & Beserra, I. (2014). Health related quality of life of children and
adolescents with congenital adrenal hyperplasia in Brazil. Health and Quality of Life Outcomes,
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Hesapçıoğlu, S.T., Tural, M.K., & Kandil, S. (2014). Quality of life and self-esteem in children
with chronic tic disorder. Turkish Archives of Pediatrics, 49, 323-332.
Smith, A.W., Bellizzi, K.M., Keegan, T.H., Zebrack, B., Chen, V.W., Neale, A.V., Hamilton, A.S.,
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adult patients with cancer in the United States: The Adolescent and Young Adult Health
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Medrano, G.R., Berlin, K.S., & Davies, W.H. (2013). Utility of the PedsQL™ Family Impact
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Chiang, H.M., & Wineman, I. (2014). Factors associated with quality of life in individuals with
autism spectrum disorders: A review of literature. Research in Autism Spectrum Disorders, 8,
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Gulati, R., Radhakrishnan, K.R., Hupertz, V., Wyllie, R., Alkhouri, N., Worley, S., & Feldstein,
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Kumar, R., Rodriguez, V., Matsumoto, J.M., Khan, S.P., Weaver, A.L., McBane, R.D., Beebe,
T.J., & Heit, J.A. (in press). Health-related quality of life in children and young adults with post-
thrombotic syndrome: Results from a cross-sectional study. Pediatric Blood & Cancer.
Jensen, C.D., Cushing, C.C., & Elledge, A.R. (2014). Associations between teasing, quality of
life, and physical activity among preadolescent children. Journal of Pediatric Psychology, 39, 65-
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Suppiej, A., Cainelli, E., Casara, G., Cappellari, A., Nosadini, M., & Sartori, S. (2014). Long-
term neurocognitive outcome and quality of life in pediatric acute disseminated
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Sato, I., Higuchi, A., Yanagisawa, T., Mukasa, A., Ida, K., Sawamura, Y., Sugiyama, K., Saito, N.,
Kumabe, T, Terasaki, M., Nishikawa, R., Ishida, Y., & Kamibeppu, K. (in press). Cancer-specific
health-related quality of life in children with brain tumors. Quality of Life Research.
Niu, X., Poon, J.L., Riske, B., Zhou, Z.Y., Ullman, M., Lou, M., Baker, J., Koerper, M., Curtis,
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Daniel, L.C., Brumley, L.D., & Schwartz, L.A. (2013). Fatigue in adolescents with cancer
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Bansal, M., Sharma, K.K., Bakhshi, S., & Vatsa, M. (in press). Perception of Indian parents on
health-related quality of life of children during maintenance therapy of acute lymphoblastic
leukemia: A comparison with siblings and healthy children. Journal of Pediatric
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Kelly, M.M. (in press). Assessment of life after prematurity in 9- to 10-year-old children. MCN.
The American Journal of Maternal Child Nursing.
Levy-Zaks, A., Pollak, Y., & Ben-Pazi, H. (2014). Cerebral palsy risk factors and their impact on
psychopathology. Neurological Research, 36, 92-94.
Vogtle, L.K., Malone, L.A., & Azuero, A. (2014). Outcomes of an exercise program for pain and
fatigue management in adults with cerebral palsy. Disability and Rehabilitation, 36, 818-825.
Johnson, S.R., Cooper, M.N., Davis, E.A., & Jones, T.W. (in press). Hypoglycaemia, fear of
hypoglycaemia and quality of life in children with Type 1 diabetes and their parents. Diabetic
Medicine.
Joffe, N.E., Lynch-Jordan, A., Ting, T.V., Arnold, L.M., Hashkes, P.J., Lovell, D.J., Passo, M.H.,
Powers, S.W., Schikler, K.N., & Kashikar-Zuck, S. (in press). The utility of the PedsQL™
Rheumatology Module as an outcome measure in juvenile fibromyalgia. Arthritis Care &
Research.
Abdul-Sattar, A.B., Elewa, E.A., El-Shahawy, E.E., & Waly, E.H. (in press). Determinants of
health-related quality of life impairment in Egyptian children and adolescents with juvenile
idiopathic arthritis: Sharkia Governorate. Rheumatology International.
Sand, P., Kljajić, M., & Sunnegårdh, J. (2013). The reliability of the Pediatric Quality of Life
Inventory 3.0 Cardiac Module for Swedish children with congenital heart defects. Nordic
Psychology, 65, 210-223.
Sundaram, S.S., Alonso, E.M., Haber, B., Magee, J.C., Fredericks, E., Kamath, B., Kerkar, N.,
Rosenthal, P., Shepherd, R., Limbers, C.A., Varni, J.W., Robuck, P., & Sokol, R.J. (2013). Health
related quality of life in biliary atresia patients surviving with their native liver. Journal of
Pediatrics, 163, 1052-1057.
Mak, G.Z., Speaker, C., Anderson, K., Stiles-Shields, C., Lorenz, J., Drossos, T., Liu, D.C., &
Skelly, C.L. (2013). Median arcuate ligament syndrome in the pediatric population. Journal of
Pediatric Surgery, 48, 2261-2270.
Mazaheri, M.M., Rae-Seebach, R.D., Preston, H.E., Schmidt, M., Kountz-Edwards, S., Field, N.,
Cassidy, S., & Packman, W. (2013). The impact of Prader–Willi syndrome on the family’s quality
of life and caregiving, and the unaffected siblings’ psychosocial adjustment. Journal of
Intellectual Disability Research, 57, 861–873.
Grey, M., Whittemore, R., Jeon, S., Murphy, K., Faulkner, M.S., Delamater, A. (2013). Internet
psycho-education programs improve outcomes in youth with Type 1 diabetes. Diabetes Care, 36,
2475–2482.
Garcia Guerra, G., Joffe, A.R., Robertson, C.M., Atallah, J., Alton, G., Sauve, R.S., Dinu, I.A.,
Ross, D.B., & Rebeyka, I.M. (in press). Health-related quality of life experienced by children
with chromosomal abnormalities and congenital heart defects. Pediatric Cardiology.
Su, C.T., Wang, J.D., & Lin, C.Y. (2013). Child-rated versus parent-rated quality of life of
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Gumidyala, A.P, & Greenley, R.N. (2014). Correlates of health-related quality of life in pediatric
inflammatory bowel disease: A cumulative risk model approach. Journal of Pediatric Psychology,
39, 55–64.
Brinksma, A., Tissing, W.J., Sulkers, E., Kamps, W.A., Roodbol, P.F., & Sanderman, R. (2014).
Exploring the response shift phenomenon in childhood patients with cancer and its effect on
health-related quality of life. Oncology Nursing Forum, 41, 48-56.
Hong, S.S., Park, H.R., Kim, K.S., & Choi, S.H. (2014). Late effects, social adjustment, and
quality of life in adolescent survivors of childhood leukemia. Journal of Korean Academy of
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Gowey, M.A., Lim, C.S., Clifford, L.M., & Janicke, D.M. (2014). Disordered eating and health-
related quality of life in overweight and obese children. Journal of Pediatric Psychology, 39, 552–
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Schneider, C., Hidalgo, E.T., Schmitt-Mechelke, T., & Kothbauer, K.F. (in press). Quality of life
after surgical treatment of primary intramedullary spinal cord tumors in children. Journal of
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Haverman, L., van Rossum, M.A.J., van Veenendaal., M., van denBerg, J.M., Dolman, K.M.,
Swart, J., Kuijpers, T.W., & Grootenhuis, M.A. (2013). Effectiveness of a web-based application
to monitor health-related quality of life. Pediatrics, 131, e533–e543.
Barrera, M., Hancock, K., Rokeach, A., Atenafu, E., Cataudella, D., Punnett, A., Johnston, D.,
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improved quality of life and reduced psychosocial risk in Canadian families with a child newly
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Sigurdardottir, A.O., Svavarsdottir, E.K., Rayens, M.K., & Gokun, Y. (in press). The impact of a
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Freeman, K.A., Smith, K., Adams, E., Mizokawa, S., & Neville-Jan, A. (2013). Is continence
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Furudate, N., Komada, Y., Kobayashi, M., Nakajima, S, & Inoue, Y. (in press). Daytime
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Akber, A., Portale, A.A., & Johansen, K.L. (in press). Use of pedometers to increase physical
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Ezon, D.S., Khan, M.S., Adachi, I., Jeewa, A., Morris, S.A., Nagy, C.Z., Morales, D.L., & Heinle,
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Eagleson, K.J., Justo, R.N., Ware, R.S., Johnson, S.G., & Boyle, F.M. (in press). Health-related
quality of life and congenital heart disease in Australia. Journal of Paediatrics and Child Health.
Lynch, F., Owen-Smith, A., Bent, S., Coleman, K., Yau, V., Pearson, K., Crawford, P., Massolo,
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Akdemir, D., Uzun, O., Pehlivantürk Özsungur, B, & Topçu, M. (in press). Health-related quality
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Soee, A.B., Skov, L., Skovgaard, L.T., & Thomsen, L.L. (in press). Headache in children:
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Hornsby, B.W., Werfel, K., Camarata, S., & Bess, F.H. (in press). Subjective fatigue in children
with hearing loss: Some preliminary findings. American Journal of Audiology.
Hilliard, M.E., Lawrence, J.M., Modi, A.C., Anderson, A., Crume, T., Dolan, L.M., Merchant,
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difference scores of the Pediatric Quality of Life Inventory in children, adolescents, and young
adults with Type 1 and Type 2 diabetes. Diabetes Care, 36, 1891–1897.
Kulkarni, A.V., Piscione, J., Shams, I, & Bouffet, E. (in press). Long-term quality of life in
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Idorn, L., Jensen, A.S., Juul, K., Overgaard, D., Nielsen, N.P., Sørensen, K., Reimers, J.I., &
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based study. International Journal of Cardiology.
Lu, P.L., Teich, S., Di Lorenzo, C., Skaggs, B., Alhajj, M., & Mousa, H.M. (2013). Improvement
of quality of life and symptoms after gastric electrical stimulation in children with functional
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with special health care needs. Journal of Pediatric Psychology.
Demirdas, S., Maurice-Stam, H., Boelen, C.C., Hofstede, F.C., Janssen, M.C., Langendonk, J.G.,
Mulder, M.F., Rubio-Gozalbo, M.E., van Spronsen, F.J., de Vries, M., Grootenhuis, M.A., &
Bosch, A.M. (in press). Evaluation of quality of life in PKU before and after introducing
tetrahydrobiopterin (BH4): A prospective multi-center cohort study. Molecular Genetics and
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van Litsenburg, R.R., Huisman, J., Pieters, R., Verhaak, C., Kaspers, G.J., & Gemke, R.J. (in
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Jacob, E., Chan, V.W., Hodge, C., Zeltzer, L., Zurakowski, D., & Sethna, N.F. (in press). Sensory
and thermal quantitative testing in children with sickle cell disease. Journal of Pediatric
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Hao, W., Chorney, J.M., Bezuhly, M., Wilson, K., & Hong, P. (in press). Analysis of health-
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Barrera, M., Hancock, K., Rokeach, A., Cataudella, D., Atenafu, E., Johnston, D., Punnett, A.,
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External validity and reliability of the psychosocial assessment tool (PAT) among Canadian
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cyclic vomiting syndrome: A comparison with published data on youth with irritable bowel
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Jansen, P.W., Mensah, F.K., Clifford, S., Nicholson, J.M., & Wake, M. (in press). Bidirectional
associations between overweight and health-related quality of life from 4-11 years: Longitudinal
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Angeles-Han, S.T., McCracken, C., Jenkins, K., Myoung, E., Stryker, D., Ponder, L., Stevens,
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youngsters' eyesight on quality of life as a measure of uveitis activity, visual function and vision
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Johnston, D.L., Nagarajan, R., Caparas, M., Schulte, F., Cullen, P., Aplenc, R., & Sung, L. (2013).
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Lukács, A., Varga, B., Kiss-Tóth, E., Soós, A., & Barkai, L. (in press). Factors influencing the
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Pieper, P., & Garvan, C. (2014). Health-related quality of life in the first year following a
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Ferracini, G.N., Dach, F., & Speciali, J.G. (2014). Quality of life and health-related disability in
children with migraine. Headache, 54, 325-334.
Sritipsukho, P., & Mahasup, N. (2014). Correlations between gross motor functions and health-
related quality of life in Thai children with spastic diplegia. Journal of the Medical Association of
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Wang, C., Shang, L., Zhang, Y., Tian, J., Wang, B., Yang, X., Sun, L., Du, C., Jiang, X., & Xu, Y.
(2013) Impact of functional constipation on health-related quality of life in preschool children
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Har, A.F., Rescorla, F.J., & Croffie, J.M. (2013). Quality of life in pediatric patients with
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Maskell, J., Newcombe, P., Martin, G., & Kimble, R. (in press). Psychosocial functioning
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Khetani, M.A., Collett, B.R., Speltz, M.L., & Werler, M.M. (in press). Health-related quality of
life in children with hemifacial microsomia: Parent and child Perspectives. Journal of
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Kashikar-Zuck, S., Zafar, M., Barnett, K.A., Aylward, B.S., Strotman, D., Slater, S.K., Allen, J.R.,
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Burke, A. (2014). Zen Shiatsu: A longitudinal case study measuring stress reduction in a child
with Autism Spectrum Disorder. International Journal of Therapeutic Massage & Bodywork, 2;
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Pratt, K.J., Lazorick, S., Lamson, A.L., Ivanescu, A., & Collier, D.N. (2013). Quality of life and
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Olesen JD, Kiddoo DA, Metcalfe PD. (2013). The association between urinary continence and
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Lyon, M.E., Jacobs, S., Briggs, L., Cheng, Y.I., & Wang, J. (in press). A longitudinal, randomized,
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Saffari, M., Gholamrezaei, A., Saneian, H., Attari, A., & Bruni, O. (in press). Linguistic
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Grano, C., Bucci, S., Aminoff, D, Lucidi, F., & Violani, C. (in press). Quality of life in children
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Ringold, S., Ward, T.M., & Wallace, C. (2013). Disease activity and fatigue in juvenile idiopathic
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Tham, S.W., Holley, A.L., Zhou, C., Clarke, G.N., & Palermo, T.M. (2013). Longitudinal course
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Okano, Y., Kobayashi, K., Ihara, K., Ito, T., Yoshino, M., Watanabe, Y., Kaji, S., Ohura, T.,
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Terer, C.C., Bustinduy, A.L., Magtanong, R.V., Muhoho, N., Mungai, P.L., Muchiri, E.M., Kitron,
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Sanchez, S.E., McAteer, J.P., Goldin, A.B., Horslen, S., Huebner, C.E., & Javid, P.J. (2013).
Health-related quality of life in children with intestinal failure. Journal of Pediatric
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Harder, L.L., Holland, A.A., Frohman, E., Graves, D., & Greenberg, B.M. (2013). Cognitive
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Abdul-Sattar, A., Magd, S.A., & Negm, M.G. (in press). Associates of school impairment in
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Nascimento Moraes, A., Ramos Ascenção Terreri, M.T., Esteves Hilário, MO, & Len, C.A.
(2013). Health related quality of life of children with rheumatic heart diseases: Reliability of the
Brazilian version of the Pediatric Quality of Life Inventory™ Cardiac Module scale. Health and
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Smith, T.F., Russell, H.F., Kelly, E.H., Mulcahey, M.J., Betz, R.R., & Vogel, L.C. (in press).
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Bianchini, J.A., da Silva, D.F., Nardo, C.C., Carolino, I.D., Hernandes, F., & Nardo Junior, N.
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different according to adolescent gender and age and parent gender. European Journal of
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Petersen, S., Moodie, M., Mavoa, H., Waqa, G., Goundar, R., & Swinburn, B. (in press).
Relationship between overweight and health-related quality of life in secondary school children
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Azar, M., Reuveny, R., Yalon, M., Koren, A., & Constantini, N. (in press). The effect of physical
activity on the mental and physical health of childhood cancer survivors. British Journal of Sports
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Al-Uzri, A., Matheson, M., Gipson, D.S., Mendley, S.R., Hooper, S.R., Yadin, O., Rozansky, D.J.,
Moxey-Mims, M., Furth, S.L., Warady, B.A., & Gerson, A.C. (in press). The impact of short
stature on health-related quality of life in children with chronic kidney disease. Journal of
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Carroll, D., Duffy, T., & Martin, C.R. (in press). Assessment of the quality of life of vulnerable
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Kiliś-Pstrusińska, K., Wasilewska, A., Medyńska, A., Bałasz-Chmielewska, I., Grenda, R.,
Kluska-Jóźwiak, A., Leszczyńska, B., Olszak-Szot, I., Miklaszewska, M., Szczepańska, M.,
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Ainuddin, H.A., Loh, S.Y., Chinna, K., Low, W.Y., & Roslani, A.C. (in press). Psychometric
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Lepeytre, C., De Lagausie, P., Merrot, T., Baumstarck, K., Oudyi, M., & Dubus, J.C. (in press).
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Snyder Valier, A.R., Swank, E.M., Lam, K.C., Hansen, M.L., & Valovich McLeod, T.C. (2013).
Comparison of patient and proxy reporting of health-related quality of life in adolescent athletes
who suffer a sports-related injury and require orthopedic consultation. Journal of Sport
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Broder, H.L., Norman, R.G., Sischo, L., & Wilson-Genderson, M. (in press). Evaluation of the
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Isa, S.N., Aziz, A.A., Rahman, A.A., Ibrahim, M.I., Ibrahim, W.P., Mohamad, N., Othman, A,
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parent health-related quality of life and family functioning in Kelantan and its associated factors.
Journal of Developmental and Behavioral Pediatrics.
Johansen, H., Dammann, B., Andresen, I.L., & Fagerland, M.W. (in press). Health-related quality
of life for children with rare diagnoses, their parents' satisfaction with life and the association
between the two. Health and Quality of Life Outcomes.
Ruccione, K., Lu, Y., & Meeske, K. (in press). Adolescents' psychosocial health-related quality of
life within 6 months after cancer treatment completion. Cancer Nursing.
Lukács, A., Kiss-Tóth, E., Varga, B., Soós, A., Takác, P., & Barkai, L. (in press). Benefits of
continuous subcutaneous insulin infusion on quality of life. International Journal of Technology
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Jalali-Farahani, S., Chin, Y.S., Amiri, P., & Mohd Taib, M.N. (in press). Body mass index (BMI)-
for-age and health-related quality of life (HRQOL) among high school students in Tehran. Child:
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Puder, J., Pinto, A.M., Bonvin, A., Bodenman, P., Munsch, S., Kriemler, S., & Marques-Vidal, P.
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Smith, A.W., Bellizzi, K.M., Keegan, T.H.M., Zebrack, B., Chen, V., Neale, A.V., Hamilton, A.S.,
Shnorhavorian, M., & Lynch. C.F. (in press). Health-related quality of life of adolescent and
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Hu, J., Jiang, L., Hong, S., Cheng, L., Kong, M., & Ye, Y. (2013). Reliability and validity of the
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Snyder, A.R., Swank, E.M., Lam, K.C., Hansen, M.L., & Valovich McLeod, T.C. (in press).
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who suffer a sports-related injury and require orthopaedic consultation. Journal of Sport
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Song, B., Schulze, M., Goldschmidt, I., Haux, R., Baumann, U., & Marschollek, M. (2013).
Home monitoring and decision support for international liver transplant children. Studies in
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Lam KC, Valier AR, Bay RC, McLeod TC. (2013). A unique patient population? Health-related
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Flanagan, A., Kelly, E.H., & Vogel, L.C. (2013). Psychosocial outcomes of children and
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Ezzahri, M., Amine, B., Rostom, S., Rifay, Y., Badri, D., Mawani, N., Gueddari, S., Shyen, S.,
Wabi, M., Moussa, F., Abouqal, R., Chkirate, B., & Hajjaj-Hassouni, N. (in press). The uveitis
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Aldaqal, S.M., & Sehlo, M.G. (in press). Self-esteem and quality of life in adolescents with
extreme obesity in Saudi Arabia: The effect of weight loss after laparoscopic sleeve gastrectomy.
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Atilola, O., & Stevanovic, D. (in press). PedsQL™ 4.0 Generic Core Scales for adolescents in the
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Knibb, R.C., & Hourihane, J.O. (in press). The psychosocial impact of an activity holiday for
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Wallander, J.L., Kerbawy, S., Toomey, S., Lowry, R., Elliott, M.N., Escobar-Chaves, S.L.,
Franzini, L., & Schuster, M.A. (in press). Is obesity associated with reduced health-related quality
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Tupper, S.M., Rosenberg, A.M., Pahwa, P., & Stinson, J.N. (2013). Pain intensity variability and
relationship with quality of life in youth with juvenile idiopathic arthritis. Arthritis Care &
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Green, L., Godfrey, C., Soo, C., Anderson, V., & Catroppa, C. (2013). A preliminary investigation
into psychosocial outcome and quality-of-life in adolescents following childhood traumatic brain
injury. Brain Injury, 27, 872-877.
Arslan, F.T., Basbakkal, Z., & Kantar, M. (2013). Quality of life and chemotherapy-related
symptoms of Turkish cancer children undergoing chemotherapy. Asian Pacific Journal of Cancer
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Abu-Saad Huijer, H., & Sagherian, K., & Tamim, H. (2013). Quality of life and symptom
prevalence as reported by children with cancer in Lebanon. European Journal of Oncology
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Ezzahri, M., Amine, B., Rostom, S., Badri, D., Mawani, N., Gueddari, S., Shyen, S., Wabi, M.,
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Yürümez, E., & Kiliç, B.G. (in press). Relationship between sleep problems and quality of life in
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Kurbet, S.B., Prashanth G.P., Patil, M.V., & Mane, S. (2013). A retrospective analysis of early
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Ul-Haq, Z., Mackay, D.F., Fenwick, E., & Pell, J.P. (in press). Meta-analysis of the association
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Rivara, F.P., Vavilala, M.S., Dennis, D.R., Temkin, N.R., Wang, J., O'Connor, S., Koepsell, T.,
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Uzark, K., King, E., Spicer, R., Beekman, R., Kimball, T., & Varni, J.W. (2013). The clinical
utility of health-related quality of life assessment in pediatric cardiology outpatient practice.
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Colville, G.A., & Pierce, C.M. (2013). Children's self-reported quality of life after intensive care
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Lin, C.Y., Luh, W.M., Cheng, C.P., Yang, A.L., Su, C.T., & Ma, H.I. (2013). Measurement
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Tsai, M.H., Hsu, J.F., Chou, W.J., Yang, C.P., Jaing, T.H., Hung, I.J., Liang, H.F., Huang, H.R., &
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Greenley, R.N., Kunz J.H., Schurman, J.V., & Swanson, E. (2013). Abdominal pain and health
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Hoffman, S., Lambert, M.C., Nelson, T.D., Trout, A.L., Epstein, M.H., & Pick, R. (in press).
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Menezes, A.S., Len, C.A., Hilário, M.O., Terreri, M.T., & Braga, J.A. (2013). Quality of life in
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Neul, S.K., Minard, C.G., Currier, H., & Goldstein, S.L. (2013). Health-related quality of life
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O'Donnell, C.M., & Harvey, A.R. (in press). An outpatient low-intensity locomotor training
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the PedsQL™ 4.0 Generic Core Scales in early adolescents in Sri Lanka. Health and Quality of
Life Outcomes, 10:105.
Poon, J.L., Zhou, Z.Y., Doctor, J.N., Wu, J., Ullman, M.M., Ross, C., Riske, B., Parish, K.L., Lou,
M., Koerper, M.A., Gwadry-Sridhar, F., Forsberg, A.D., Curtis, R.G., & Johnson, K.A. (in press).
Quality of life in Haemophilia A: Hemophilia Utilization Group Study Va (HUGS-Va).
Haemophilia.
Pohl, J.F., Limbers, C.A., Kay, M., Harman, A., Rollins, M., & Varni, J.W. (2012). Health-related
quality of life in pediatric patients with long-standing pancreatitis. Journal of Pediatric
Gastroenterology & Nutrition, 54, 657-663.
Franciosi, J.P., Hommel, K.A., DeBrosse, C.W., Greenberg, A.B., Greenler, A.J., Abonia, J.P.,
Rothenberg, M.E., & Varni, J.W. (2012). Quality of life in paediatric eosinophilic esophagitis:
What is important to patients? Child: Care, Health & Development, 38, 477-483.
Schlenz, A.M., Schatz, J., McClellan, C.B., & Roberts, C.W. (2012). Responsiveness of the
PedsQL to pain-related changes in health-related quality of life in pediatric Sickle Cell Disease.
Journal of Pediatric Psychology, 37, 798-807.
Mahrer, N.E., Montaño, Z., & Gold, J.I. (2012). Relations between anxiety sensitivity,
somatization, and health-related quality of life in children with chronic pain. Journal of Pediatric
Psychology, 37, 808-816.
Pratt, K.J., Lamson, A.L., Swanson, M.S., Lazorick, S., & Collier, D.N. (2012). The importance
of assessing for depression with HRQOL in treatment seeking obese youth and their caregivers.
Quality of Life Research, 21, 1367–1377.
Quach, J., Hiscock, H., & Wake, M. (in press). Sleep problems and mental health in primary
school new entrants: Cross-sectional community-based study. Journal of Paediatrics and Child
Health.
Beri, A., & Rajendran, V. (2012). Reliability of PedsQL Neuromuscular module in assessing
health related quality of life in children with Down syndrome. International Journal of Therapies
and Rehabilitation Research, 1, 6-11.
Chaudhry, Z., & Siddiqui, S. (2012). Health related quality of life assessment in Pakistani
paediatric cancer patients using PedsQL™ 4.0 Generic Core Scale and PedsQL™ Cancer
Module. Health and Quality of Life Outcomes, 18; 10(1):52.
Demuth, S.K., Knutson, L.M., & Fowler, E.G. (in press). The PEDALS stationary cycling
intervention and health-related quality of life in children with cerebral palsy: A randomized
controlled trial. Developmental Medicine and Child Neurology.
Ardon, M.S., Selles, R.W., Roebroeck, M.E., Hovius, S.E., Stam, H.J., & Janssen, W.G. (in
press). Poor agreement on health-related quality of life between children with congenital hand
differences and their parents. Archives of Physical Medicine and Rehabilitation.
Sato, I., Higuchi, A., Yanagisawa, T., Mukasa, A., Ida, K., Sawamura, Y., Sugiyama, K., Saito, N.,
Kumabe, T., Terasaki, M., Nishikawa, R., Ishida, Y., & Kamibeppu, K. (in press). Factors
influencing self- and parent-reporting health-related quality of life in children with brain tumors.
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Czosek, R.J., Bonney, W.J., Cassedy, A., Mah, D.Y., Tanel, R.E., Imundo, J.R., Singh, A.K.,
Cohen, M.I., Miyake, C.Y., Fawley, K., & Marino, B.S. (in press). Impact of cardiac devices on
the quality of life in pediatric patients. Circulation. Arrhythmia and Electrophysiology.
Peterson, C.C., Cousino, M.K., Donohue, J.E., Schmidt, M.L., & Gurney, J.G. (2012). Discordant
parent reports of family functioning following childhood neuroblastoma: A report from the
Children's Oncology Group. Journal of Psychosocial Oncology, 30, 503-518.
Oriel, K.N., Marchese, V.G., Shirk, A., Wagner, L., Young, E., & Miller, L. (2012). The
psychosocial benefits of an inclusive community-based aquatics program. Pediatric Physical
Therapy, 24, 361-367.
Klaassen, R.J., Blanchette, V., Burke, T.A., Wakefield, C., Grainger, J.D., Gaedicke, G.,
Riedlinger, A., Dufort, G., Citrin, E., Reguerre, Y., Pellier, I., Curtis, C., & Young, N.L. (in press).
Quality of life in childhood immune thrombocytopenia: International validation of the kids' ITP
tools. Pediatric Blood & Cancer.
Robert, R.S., Paxton, R.J., Palla, S.L., Yang, G., Askins, M.A., Joy, S.E., & Ater, J.L. (in press).
Feasibility, reliability, and validity of the Pediatric Quality of Life Inventory™ Generic Core
Scales, Cancer Module, and Multidimensional Fatigue Scale in long-term adult survivors of
pediatric cancer. Pediatric Blood & Cancer.
Castro, T.M., Marinho, D.R., & Cavalcante, C.C. (2013). The impact of environmental factors on
quality of life and symptoms of children with allergic rhinitis. Brazilian Journal of
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Dolgun, E., Yavuz, M., Celik, A., & Ergün, M.O. (2013). The effects of constipation on the
quality of life of children and mothers. Turkish Journal of Pediatrics, 55, 180-185.
Buck, D. (2012). The PedsQL™ as a measure of parent-rated quality of life in healthy UK
toddlers: Psychometric properties and cross-cultural comparisons. Journal of Child Health Care,
16, 331-338.
Kashikar-Zuck, S., Ting, T.V., Arnold, L.M., Bean, J., Powers, S.W., Graham, T.B., Passo, M.H.,
Schikler, K.N., Hashkes, P.J., Spalding, S., Lynch-Jordan, A.M., Banez, G., Richards, M.M., &
Lovell, D.J. (2012). Cognitive behavioral therapy for the treatment of juvenile fibromyalgia: A
multisite, single-blind, randomized, controlled clinical trial. Arthritis and Rheumatism, 64, 297-
305.
Ihara, E.S., Wolf-Branigin, M., & White, P. (2012). Quality of life and life skill baseline measures
of urban adolescents with disabilities. Social Work in Public Health, 27, 658-670.
Bendixen, R.M., Senesac, C., Lott, D.J., & Vandenborne, K. (2012) Participation and quality of
life in children with Duchenne muscular dystrophy using the international classification of
functioning, disability, and health. Health and Quality of Life Outcomes, 30:10,43.
Shikako-Thomas, K., Dahan-Oliel, N., Shevell, M., Law, M., Birnbaum, R., Rosenbaum, P.,
Poulin, C., & Majnemer, A. (in press). Play and be happy? Leisure participation and quality of
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Sritipsukho, P., Wisai, M., & Thavorncharoensap, M. (in press). Reliability and validity of the
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Tarakci, E., Baydogan, S.N., Kasapcopur, O., & Dirican, A. (in press). Cross-cultural adaptation,
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Stevens, M.W., Hainsworth, K.R., Weisman, S.J., & Layde, P.M. (2012). Health-related quality of
life in pediatric minor injury: Reliability, validity, and responsiveness of the Pediatric Quality of
Life Inventory in the emergency department. Archives of Pediatrics & Adolescent Medicine, 166,
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Sumpter, R., Dorris, L., Brannan, G., & Carachi, R. (2012). Quality of life and behavioural
adjustment in childhood hydrocephalus. Scottish Medical Journal, 57, 18-25.
Biaukula, V.L., Tikoduadua, L., Azzopardi, K., Seduadua, A., Temple, B., Richmond, P., Robins-
Browne, R., Mulholland, E.K., & Russell, F.M. (in press). Meningitis in children in Fiji: Etiology,
epidemiology, and neurological sequelae. International Journal of Infectious Diseases.
Duan, X., Zhang, S., & Xiao, N. (in press). Reliability and validity of the PedsQL™ Generic
Core Scales 4.0 for Chinese children with epilepsy. Epilepsy and Behavior.
Bendo, C. B., Paiva, S.M., Viegas, C.M., Vale, M.P., & Varni, J.W. (2012). The PedsQL™ Oral
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Tavernor, L., Barron, E., Rodgers, J., & McConachie, H. (in press). Finding out what matters:
Validity of quality of life measurement in young people with ASD. Child: Care, Health and
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de Kloet, AJ., Berger, M.A., Verhoeven, I.M., van Stein Callenfels, K., & Vliet Vlieland, T.P. (in
press). Gaming supports youth with acquired brain injury? A pilot study. Brain Injury.
Karakaya, I., Sismanlar, S.G., Atmaca, H., Gök, U., & Sarlak, A.Y. (in press). Outcome in early
adolescent idiopathic scoliosis after deformity correction: Assessed by SRS-22, psychometric and
generic health measures. Journal of Pediatric Orthopaedics.
Stevanovic, D. (in press). Impact of emotional and behavioral symptoms on quality of life in
children and adolescents. Quality of Life Research.
Tantilipikorn, P., Watter, P., & Prasertsukdee S. (in press). Feasibility, reliability and validity of
the Thai version of the Pediatric Quality of Life Inventory 3.0 Cerebral Palsy Module. Quality of
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Stasiak, K., Hatcher, S., Frampton, C., & Merry, S.N. (in press). A pilot double blind randomized
placebo controlled trial of a prototype computer-based cognitive behavioural therapy program for
adolescents with symptoms of depression. Behavioural and Cognitive Psychotherapy.
Tahirović, E., Begić, H., Tahirović, H., & Varni, J.W. (2012). Health-related quality of life and
metabolic control in children with type 1 diabetes mellitus in Bosnia and Herzegovina. Collegium
Antropologicum, 36, 117–121.
Mackenzie, H., Roberts, G., Van Laar, D., & Dean, T. (in press). A new quality of life scale for
teenagers with food hypersensitivity. Pediatric Allergy and Immunology.
Sheldrick, R.C., Neger, E.N., Shipman, D., & Perrin, E.C. (2012). Quality of life of adolescents
with autism spectrum disorders: Concordance among adolescents' self-reports, parents' reports,
and parents' proxy reports. Quality of Life Research, 21, 53–57.
Madderom, M.J., Gischler, S.J., Duivenvoorden, H., Tibboel, D., & Ijsselstijn, H. (in press).
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Sumpter, R., Brunklaus, A., McWilliam, R., & Dorris, L. (in press). Health-related quality-of-life
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Davis, I.D., Greenbaum, L.A., Gipson, D., Wu, L.L., Sinha, R., Matsuda-Abedini, M.,
Emancipator, J.L., Lane, J.C., Hodgkins, K., Nailescu, C., Barletta, G.M., Arora, S., Mahan, J.D.,
& Rosen, C.L. (in press). Prevalence of sleep disturbances in children and adolescents with
chronic kidney disease. Pediatric Nephrology.
Huang, J.B., Cao, Y.T., Liang, J., & Lv, X.D. (2012). Quality of life after children undergo a
radical arterial switch operation at an older age. Heart Surgery Forum, 15, E103-7.
Chang, A.B., Robertson, C.F., Van Asperen, P.P., Glasgow, N., Mellis, C.M., Masters, I.B., Teoh,
L., Tjhung, I., Morris, P.S., Petsky, H.L., Willis, C., & Landau, L.I. (in press). A multi-centre
study on chronic cough in children: burden and etiologies based on a standardized management
pathway. Chest.
Akber, A., Portale, A.A., & Johansen, K.L. (in press). Pedometer-assessed physical activity in
children and young adults with CKD. Clinical Journal of the American Society of Nephrology.
Stevanovic, D., Jancic, J., & Lakic, A. (in press). The impact of depression and anxiety disorder
symptoms on the health-related quality of life of children and adolescents with epilepsy.
Epilepsia.
Zafar, A.B., Ness, J., Dowdy, S., Avis, K., & Bashir, K. (in press). Examining sleep, fatigue, and
daytime sleepiness in pediatric multiple sclerosis patients. Multiple Sclerosis Journal.
Tacke, C.E., Haverman, L., Berk, B.M., van Rossum, M.A., Kuipers, I.M., Grootenhuis, M.A., &
Kuijpers, T.W. (in press). Quality of life and behavioral functioning in Dutch children with a
history of Kawasaki Disease. Journal of Pediatrics.
Khodaverdi, F., Bahram, A., & Jafarabadi, M.A. (2012). Quality of life, motor ability, and weight
status among school-aged children of Tehran. Iranian Journal of Public Health, 41, 97-102.
Cloonan, Y.K., Collett, B.R., Speltz, M.L., Anderka, M., & Werler, M.M. (in press). Psychosocial
outcomes in children with and without non-syndromic craniosynostosis: Findings from two
studies. Cleft Palate-Craniofacial Journal.
Steele, R.C., Aylward, B.S., Jensen, C.D., Cushing, C.C, Davis, A.M., & Bovaird, J.A. (2012).
Comparison of a family-based group intervention for youths with obesity to a brief individual
family intervention: A practical clinical trial of Positively Fit. Journal of Pediatric Psychology,
37, 53–63.
Caocci, G., Efficace, F., Ciotti, F., Roncarolo, M.G., Vacca, A., Piras, E., Littera, R., Dawood
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Health related quality of life in Middle Eastern children with beta-thalassemia. BMC Blood
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Seburg, E.M., Horvath, K.J., Garwick, A.W., McMorris, B.J., Vehe, R.K., & Scal, P. (2012).
Complementary and alternative medicine use among youth with Juvenile Arthritis: Are youth
using CAM, but not talking about it? Journal of Adolescent Health, 51, 200-202.
Uygun, V., Tayfun, F., Akcan, M., Karasu, G.T., Kupesiz, A., Hazar, V., & Yeşilipek, A. (in press).
Quality of life assessment in hematopoietic stem cell transplantation performed on Thalassemia
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Parsons, S.K., Fairclough, D.L., Wang, J., & Hinds, P.S. (in press). Comparing longitudinal
assessments of quality of life by patient and parent in newly diagnosed children with cancer: The
value of both raters’ perspectives. Quality of Life Research.
Lacy, K.E., Allender, S.E., Kremer, P.J., de Silva-Sanigorski, A.M., Millar, L.M., Moodie, M.L.,
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Pound, C.M., Clark, C., Ni, A., Athale, U., Lewis, V., & Halton, J.M. (in press). Corticosteroids,
behavior, and quality of life in children treated for acute lymphoblastic leukemia: A multicentered
trial. Journal of Pediatric Hematology/Oncology.
Yağc-Küpeli, B., Akyüz, C., Küpeli, S., & Büyükpamukçu, M. (2012). Health-related quality of
life in pediatric cancer survivors: A multifactorial assessment including parental factors. Journal
of Pediatric Hematology/Oncology, 34, 194-199.
Jafari, P., Bagheri, Z., Ayatollahi, S. M. T., & Soltani, Z. (2012). Using Rasch rating scale model
to reassess the psychometric properties of the Persian version of the PedsQL™ 4.0 Generic Core
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Green, L., Godfrey, C., Soo, C., Anderson, V., & Catroppa, C. (in press). Agreement between
parent-adolescent ratings on psychosocial outcome and quality-of-life following childhood
traumatic brain injury. Developmental Neurorehabilitation.
Chang, S.C., Lin, C.K., Tung, L.C., & Chang, N.Y. (2012). The association of drooling and
health-related quality of life in children with cerebral palsy. Neuropsychiatric Disease and
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Sciberras, E., Fulton, M., Efron, D., Oberklaid, F., & Hiscock, H. (in press). Managing sleep
problems in school aged children with ADHD: A pilot randomised controlled trial. Sleep
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Moorthy, L., Saad-Magalhães, C., Sato, J.O., Len, C., Vasco, M.B., Appenzeller, S., Marini, R.,
Oliveira, S.F., Rodrigues, M., Sztajnbok, F., Almeida, R.G., Jesus, A.A., Campos, L., Silva, C.,
Peterson, M., Hassett, A., Weiss, E., Verma, S., Dahodwala, M., & Lehman, T. (in press).
Validation of the Portuguese simple measure of impact of lupus erythematosus in youngsters
(SMILEY) in Brazil. Lupus.
Brunklaus A., Dorris, L., & Zuberi, SM. (in press). Comorbidities and predictors of health-related
quality of life in Dravet syndrome. Epilepsia.
Vinney, L.A., Grade, J.D., & Connor, N.P. (2012). Feasibility of using a handheld electronic
device for the collection of patient reported outcomes data from children. Journal of
Communication Disorders, 45, 12-19.
Goretti, B., Portaccio, E., Ghezzi, A., Lori, S., Moiola, L., Falautano, M., Viterbo, R., Patti, F.,
Vecchio, R., Pozzilli, C., Bianchi, V., Cappiello, S., Comi, G., Trojano, M., & Amato, M. (in
press). Fatigue and its relationships with cognitive functioning and depression in paediatric
multiple sclerosis. Multiple Sclerosis.
Ramstad, K., Jahnsen, R., Skjeldal, O.H., & Diseth, T.H. (in press). Mental health, health related
quality of life and recurrent musculoskeletal pain in children with cerebral palsy 8-18 years old.
Disability and Rehabilitation.
Damnjanović, M., Lakić, A., Stevanović, D., Jovanović, A., Jancić, J., Jovanović, M., &
Leposavić, L. (2012). Self-assessment of the quality of life of children and adolescents in the
child welfare system of Serbia. Vojnosanitetski Pregled, 69, 469-474.
Gheissari, A., Farajzadegan, Z., Heidary, M., Salehi, F., Masaeli, A., Mazori, A., Varni, J.W.,
Fallah, Z., & Mazori, A. (2012). Validation of Persian version of PedsQL™ 4.0 Generic Core
Scales in toddlers and children. International Journal of Preventive Medicine, 3, 37-46.

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Yam, P.S., Morrison, R., Penpraze, V., Westgarth, C., Ward, D.S., Mutrie, N., Hutchison, P.,
Young, D., & Reilly, J.J. (in press). Children, parents, and pets exercising together (CPET)
randomised controlled trial: Study rationale, design, and methods. BMC Public Health.
Fredericks, E.M., Dore-Stites, D., Calderon, S.Y., Well, A., Eder, S.J., Magee, J.C., & Lopez, M.
(2012). The relationship between sleep problems and health related quality of life among
pediatric liver transplant recipients. Liver Transplantation, 18, 707-715.
Bernstein, K., D'Angelo, L.J., & Lyon, M.E. (in press). An exploratory study of HIV+
adolescents' spirituality: Will you pray with me? Journal of Religion and Health.
Yik, Y.I., Ismail, K.A., Hutson, J.M., & Southwell, B.R. (2012). Home transcutaneous electrical
stimulation to treat children with slow-transit constipation. Journal of Pediatric Surgery, 47,
1285-1290.
Lin, C.Y., Luh, W.M., Yang, A.L., Su, C.T., Wang, J.D., & Ma, H.I. (2012). Psychometric
properties and gender invariance of the Chinese version of the self-report Pediatric Quality of
Life Inventory Version 4.0: Short Form is acceptable. Quality of Life Research, 21, 177-182.
Amiri, P., Eslamian, G., Mirmiran, P., Shiva, N., Jafarabadi, M.A., & Azizi, F. (2012). Validity
and reliability of the Iranian version of the Pediatric Quality of Life Inventory™ 4.0 (PedsQL™)
Generic Core Scales in children. Health and Quality of Life Outcomes, 10:3, 1-9.
Dibiasio, P.A., & Lewis, C.L. (in press). Exercise training utilizing body weight-supported
treadmill walking with a young adult with cerebral palsy who was non-ambulatory. Physiotherapy
Theory and Practice.
Gazini, C.C., Reimão, R.N., Rossini, S.R., Centeville, M., Mazzola, T.N., Vilela, M.M., & Silva,
M.T. (2012). Quality of sleep and quality of life in adolescents infected with human
immunodeficiency virus. Arquivos de Neuro-Psiquiatria, 70, 422-427.
Oren, A., Benoit, M.A., Murphy, A., Schulte, F., & Hamilton, J. (in press). Quality of life and
anxiety in adolescents with differentiated thyroid cancer. Journal of Clinical Endocrinology &
Metabolism.
Lyon, M.E., Garvie, P., He, J., Malow, R., McCarter, R., & D'Angelo, L.J. (in press). Spiritual
well-being among HIV-infected adolescents and their families. Journal of Religion and Health.
Appleton, R., Jones, A., Gamble, C., Williamson, P., Wiggs, L., Montgomery, P., Sutcliffe, A.,
Barker, C., & Gringras, P. (2012). The use of melatonin in children with neurodevelopmental
disorders and impaired sleep: A randomised, double-blind, placebo-controlled, parallel study
(MENDS). Health Technology Assessment, 16, 1-239.
González-Gil, T., Mendoza-Soto, A., Alonso-Lloret, F., Castro-Murga, R., Pose-Becerra, C., &
Martín-Arribas, M.C. (in press). The Spanish version of the health-related quality of life
questionnaire for children and adolescents with heart disease (PedsQL™). Revista Española de
Cardiología.
Ardon, M.S., Janssen, W.G., Hovius, S.E., Stam, H.J., & Selles R.W. (2012). Low impact of
congenital hand differences on health-related quality of life. Archives of Physical Medicine and
Rehabilitation, 93, 351-357.
Shipman, D.L., Sheldrick, R.C., & Perrin EC. (2011). Quality of life in adolescents with Autism
Spectrum Disorders: Reliability and validity of self-reports. Journal of Developmental and
Behavioral Pediatrics, 32, 85-89.

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Kelly, E.H., Klaas, S.J., Garma, S., Russell, H.F., & Vogel, L.C. (2012). Participation and quality
of life among youth with spinal cord injury. Journal of Pediatric Rehabilitation Medicine, 5, 315-
325.
de Souza, F.M., Molina, J., Terreri, M.T., Hilário, M.O., & Len, CA. (2012). Reliability of the
Pediatric Quality of Life Inventory - Healthcare Satisfaction Generic Module 3.0 version for the
assessment of the quality of care of children with chronic diseases. Journal of Pediatrics (Rio J),
88, 54-60.
Tomlinson, D., Hinds, P.S., Bartels, U., Hendershot, E., & Sung, L. (2011). Parent reports of
quality of life for pediatric patients with cancer with no realistic chance of cure. Journal of
Clinical Oncology, 29, 639-645.
Sung, L., Yanofsky, R., Klaassen, R.J., Dix, D., Pritchard, S., Winick, N., Alexander, S., &
Klassen, A. (2011). Quality of life during active treatment for pediatric acute lymphoblastic
leukemia. International Journal of Cancer, 128, 1213-1220.
Tomlinson, D., Hendershot, E., Bartels, U., Maloney, A.M., Armstrong, C., Wrathall, G., & Sung,
L. (2011). Concordance between couples reporting their child's quality of life and their decision
making in pediatric oncology palliative care. Journal of Pediatric Oncology Nursing, 28, 319-325.
Aviel, Y. B., Stremler, R., Benseler, S.M., Cameron, B., Laxer, R.M., Ota, S., Schneider, R.,
Spiegel, L., Stinson, J.N., Tse, S.M., & Feldman, B.M. (2011). Sleep and fatigue and the
relationship to pain, disease activity and quality of life in juvenile idiopathic arthritis and juvenile
dermatomyositis. Rheumatology, 50, 2051-2060.
Pieper, P., & Bear, M. (2011). Child and proxy perspectives of the child's health-related quality of
life 1 month after a mild traumatic brain injury. Journal of Trauma Nursing, 18, 11-17.
Rivara, F.P., Koepsell, T.D., Wang, J., Temkin, N., Dorsch, A., Vavilala, M.S., Durbin, D., &
Jaffe, K.M. (2011). Disability 3, 12, and 24 months after traumatic brain injury among children
and adolescents. Pediatrics, 128, e1129–e1138.
Anderson, B.J., Edelstein, S., Abramson, N.W., Katz, L.L., Yasuda, P.M., Lavietes, S.J., Trief,
P.M., Tollefsen, S.E., McKay, S.V., Kringas, P., Casey, T.L., & Marcus, M.D. (2011). Depressive
symptoms and quality of life in adolescents with Type 2 diabetes: Baseline data from the TODAY
study. Diabetes Care, 34, 2205-2207.
Wilfley, D.E. & The TODAY Study Group (2011). Binge eating, mood, and quality of life in
youth with Type 2 diabetes. Diabetes Care, 34, 858–860.
Sawyer, M.G., Harchak, T., Wake, M., & Lynch, J. (in press). Four-year prospective study of
BMI and mental health problems in young children. Pediatrics.
Kunz, J.H., Greenley, R.N., & Howard, M. (2011). Maternal, paternal, and family health-related
quality of life in the context of pediatric inflammatory bowel disease. Quality of Life Research,
20, 1197–1204.
Wakimizu, R., Hiraga, N., Furuya, K., Fukushima, T., Tsuchida, M., Koike, K., & Yamamoto, T.
(2011). Depression and health-related quality of life after discharge and associated factors in
childhood cancer patients in Japan. Bioscience Trends, 5, 264-272.
Awasthi, S., Agnihotri, K., Chandra, H., Singh, U., & Thakur, S. (2012). Assessment of health-
related quality of life in school-going adolescents: Validation of PedsQL instrument and
comparison with WHOQOL-BREF. National Medical Journal of India, 25, 74-79.

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Rayens, M.K., Svavarsdottir, E.K., & Burkart, P.V. (2011). Cultural differences in parent-
adolescent agreement on the adolescent's asthma-related quality of life. Pediatric Nursing, 37,
311-321.
Sawyer, M.G., Harchak, T., Wake, M., & Lynch, J. (2011). Four-year prospective study of BMI
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Huang, I.C., Leite, W.L., Shearer, P., Seid, M., Revicki, D.A., & Shenkman, E.A. (2011).
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Ji, Y., Chen, S., Li, K., Xiao, N., Yang, X., Zheng, S., & Xiao, X. (2011). Measuring health-
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Jafari, P., Forouzandeh, E., Bagheri, Z., Karamizadeh, Z., & Shalileh K. (2011). Health related
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Kobayashi, K, & Kamibeppu, K. (2011). Quality of life reporting by parent-child dyads in Japan,
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Gordijn M.S., Cremers, E.M., Kaspers, G.J., & Gemke R.J. (in press). Fatigue in children:
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Damnjanovic, M., Lakic, A., Stevanovic, D., & Jovanovic, A. (2011). Effects of mental health on
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Danansuriya, M.N., Rajapaksa, L.C., & Varni, J.W. (2011). Reliability and validity of the Sinhala
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Roy K.M., & Roberts, M.C. (2011). Peanut allergy in children: Relationships to health-related
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Knez, R., Francisković, T., Samarin, R.M., & Niksić, M. (2011). Parental quality of life in the
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Erickson, J.M., Beck, S.L., Christian, B.R., Dudley, W., Hollen, P.J., Albritton, K.A., Sennett, M.,
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adolescents receiving chemotherapy. Journal of Pediatric Hematology/Oncology, 33, e17-e25.
Sears, S.F., Hazelton, A.G., Amant, J.S., Matchett, M., Kovacs, A., Vazquez, L.D., Fairbrother,
D., Redfearn, S., Hanisch, D., Dubin, A., Cannon, B.C., Fishbach, P., Kanter, R., & Bryant, RM.
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Tsuji, N., Kakee, N., Ishida, Y., Asami, K., Tabuchi, K., Nakadate, H., Iwai, T., Maeda, M.,
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K., Kamibeppu, K., & Matsushima, E. (2011). Validation of the Japanese version of the Pediatric
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Jacka, F.N., Kremer, P.J., Berk, M., de Silva-Sanigorski, A.M., Moodie, M., Leslie, E.R., Pasco,
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Cronk, C.E., Hoffmann, R.G., Mueller, M.J., Zerpa-Uriona, V., Dasgupta, M., & Enriquez F.
(2011). Effects of a culturally tailored intervention on changes in body mass index and health-
related quality of life of Latino children and their parents. American Journal of Health Promotion,
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Yang, X., Xiao, N., & Yan, J. (2011). The PedsQL™ in pediatric cerebral palsy: Reliability and
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Tzischinsky, O., & Shochat, T. (2011). Eveningness, sleep patterns, daytime functioning, and
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Cialone, J., Adams, H., Augustine, E.F., Marshall, F.J., Kwon, J.M., Newhouse, N., Vierhile, A.,
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press). Females experience a more severe disease course in batten disease. Journal of Inherited
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Lindenfelser, K.J., Hense, C., & McFerran, K. (in press). Music therapy in pediatric palliative
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McManus, B.M., Robert, S.A., Albanese, A., Sadek-Badawi, M., & Palta, M. (in press). Racial
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with and without cerebral palsy. Developmental Medicine and Child Neurology.
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Sandella, D.E., O'Brien, L.M., Shank, L.K., & Warschausky SA. (2011). Sleep and quality of life
in children with cerebral palsy. Sleep Medicine, 12, 252-256.
Dalton, W.T., Schetzina, K.E., Pfortmiller, D.T., Slawson, D.L., & Frye, W.S. (2011). Health
behaviors and health-related quality of life among middle school children in Southern
Appalachia: Data from the Winning with Wellness Project. Journal of Pediatric Psychology, 36,
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Murphy, N., Caplin, D.A., Christian, B.J., Luther, B.L., Holobkov, R., & Young, P.C. (in press).
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Woodard, G.A., Encarnacion, B., Peraza, J., Hernandez-Boussard, T., & Morton, J. (2011). Halo
effect for bariatric surgery: Collateral weight loss in patients' family members. Archives of
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Geyer, R., Lyons, A., Amazeen, L., Alishio, L., & Cooks, L. (2011). Feasibility study: The effect
of therapeutic yoga on quality of life in children hospitalized with cancer. Pediatric Physical
Therapy, 23, 375-379.
Yao, D.F., Weinberg, A.C., Penna, F.J., Huang, L., Freilich, D.A., Minnillo, B.J., Shoag, J., Retik,
A.B., & Nguyen, H.T. (in press). Quality of life in children with vesicoureteral reflux as
perceived by children and parents. Journal of Pediatric Urology.
van Litsenburg, R.R., Huisman, J., Hoogerbrugge, P.M., Egeler, R.M., Kaspers, G.J., & Gemke,
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acute lymphoblastic leukemia: An exploratory study. Health and Quality of Life Outcomes,
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Viira, R., & Koka, A. (in press). Health-related quality of life of Estonian adolescents: Reliability
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Weintraub, N., Rot, I., Shoshani, N., Pe'er, J., & Weintraub, M. (2011). Participation in daily
activities and quality of life in survivors of retinoblastoma. Pediatric Blood & Cancer, 56, 590-
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Caocci, G., Efficace, F., Ciotti, F., Roncarolo, M.G., Vacca, A., Piras, E., Littera, R., Dawood
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Prospective assessment of health related quality of life in pediatric beta-thalassemia patients


following hematopoietic stem cell transplantation. Biology of Blood and Marrow Transplantation.
Marlais, M., Fishman, J.R., Köglmeier, J., Fell, J.M., & Rawat, D.J. (2010). Reduced quality of
life in children with Gastro-oesophageal reflux disease. Acta Paediatrica, 99, 418–421.
Gharaibeh, H.F., & Gharaibeh, M.K. (in press). Factors influencing health-related quality of life
of thalassaemic Jordanian children. Child: Care, Health and Development.
Bilgic, A., Bilgic, O., Akış, H.K., Eskioğlu, F., & Kılıç, E.Z. (in press). Psychiatric symptoms and
health-related quality of life in children and adolescents with psoriasis. Pediatric Dermatology.
Bolduc, M.E., DU Plessis, A.J., Sullivan, N., Khwaja, O.S., Zhang, X., Barnes, K., Robertson,
R.L., & Limperopoulos, C. (in press). Spectrum of neurodevelopmental disabilities in children
with cerebellar malformations. Developmental Medicine and Child Neurology.
Thissen, D., Varni, J.W., Stucky, B.D., Liu, Y., Irwin, D.E., & DeWalt, D.A. (2011). Using the
PedsQL™ 3.0 Asthma Module to obtain scores comparable with those of the PROMIS Pediatric
Asthma Impact Scale (PAIS). Quality of Life Research, 20, 1497-1505.
Limbers, C.A., Neighbors, K., Martz, K., Bucuvalas, J.C., Webb, T., Varni, J.W., & Alonso, E.M.
(2011). Health-related quality of life in pediatric liver transplant recipients compared to other
chronic disease groups. Pediatric Transplantation, 15, 245-253.
Reyes, M.L., Hernández, M., Holmgren, L.J., Sanhueza, E., & Escobar, R.G. (in press). High-
frequency, low-intensity vibrations increase bone mass and muscle strength in upper limbs,
improving autonomy in disabled children. Journal of Bone and Mineral Research.
Kwon, E.N., Mussatto, K., Simpson, P.M., Brosig, C., Nugent, M., & Samyn, M.M. (2011).
Children and adolescents with repaired tetralogy of fallot report quality of life similar to healthy
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Brandow, A.M., Brousseau, D.C., Pajewski, N.M., & Panepinto, J.A. (2010). Vaso-occlusive
painful events in sickle cell disease: Impact on child well-being. Pediatric Blood & Cancer, 54,
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Haneef, Z., Grant, M.L., Valencia, I., Hobdell, E.F., Kothare, S.V., Legido, A., & Khurana, D.
(2010). Correlation between child and parental perceptions of health-related quality of life
in epilepsy using the PedsQL.v4.0 measurement model. Epileptic Disorders, 12, 275-282.
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(in press). Changes in body mass index and health related quality of life from childhood to
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Bilgiç, O., Bilgiç, A., Akiş, H.K., Eskioğlu, F., & Kiliç, E.Z. (in press). Depression, anxiety and
health-related quality of life in children and adolescents with vitiligo. Clinical and experimental
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Hamidah, A., Wong, C.Y., Tamil, A.M., Zarina, L.A., Zulkifli, Z.S., & Jamal, R. (in press).
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Stephen, M.D., Varni, J.W., Limbers, C.A., Yafi, M., Heptulla, R.A., Renukuntla, V.S., Bell, C.S.,
& Brosnan, P.G. (2011). Health-related quality of life and cognitive functioning in pediatric short
stature: Comparison of growth hormone naive, growth hormone treated, and healthy samples.
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Jafari, P., Ghanizadeh, A., Akhondzadeh, S., & Mohammadi, M.R. (2011). Health-related quality
of life of Iranian children with attention deficit/hyperactivity disorder. Quality of Life Research,
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Gohar, S.F., Comito, M., Price, J., & Marchese, V. (2011). Feasibility and parent satisfaction of a
physical therapy intervention program for children with acute lymphoblastic leukemia in the first
6 months of medical treatment. Pediatric Blood & Cancer, 56, 799-804.
Coker, T.R., Elliott, M.N., Wallander, J.L., Cuccaro, P., Grunbaum, J.A., Corona, R., Saunders,
A.E., & Schuster, M.A. (2011). Association of family stressful life-change events and health-
related quality of life in fifth-grade children. Archives of Pediatrics and Adolescent Medicine,
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Ratheesh, A., Srinath, S., Reddy, Y.C., Girimaji, S.C., Seshadri, S.P., Thennarasu, K., & Hutin, Y.
(2011). Are anxiety disorders associated with a more severe form of bipolar disorder in
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Sharifah, W.W., Nur, H.H., Ruzita, A.T., Roslee, R., & Reilly, J.J. (2011). The Malaysian
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Sherman-Bien, S., Malcarne, V.L., Roesch, S., Varni, J.W., & Katz, E.R. (2011). Quantifying the
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Amiri, P., Ardakani, E.M., Jalali-Farahani, S., Hosseinpanah, F., Varni, J.W., Ghofranipour, F.,
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Stevanović, D., Lakić, A., & Damnjanović, M. (in press). Some psychometric properties of the
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Wade, T.J., & Guo, J.J. (2010). Linking improvements in health-related quality of life to
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Naiboğlu, B., Külekçi, S., Kalaycık, C., Sheidaei, S., Toros, S.Z., & Egeli, E. (2010).
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Tahirović, E., Begić, H., Tahirović, H., & Varni, J.W. (2011). Quality of life in children after
cardiac surgery for congenital heart disease. Collegium Antropologicum, 35, 1285-1290.
Marciano, R.C., Bouissou Soares, C.M., Diniz, J.S., Lima, E.M., Silva, J.M., Canhestro, M.R.,
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Kalyva, E., Malakonaki, E., Eiser, C., & Mamoulakis, D. (2011). Health-related quality of life
(HRQoL) of children with type 1 diabetes mellitus (T1DM): Self and parental perceptions.
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Schurman, J.V., Cushing, C.C., Carpenter, E., & Christenson, K. (2011). Volitional and accidental
nonadherence to pediatric inflammatory bowel disease treatment plans: Initial investigation of
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Bulder, M.M., Hellmann, P.M., van Nieuwenhuizen, O., Kappelle, L.J., Klijn, C.J., & Braun K.P.
(2011). Measuring outcome after arterial ischemic stroke in childhood with two different
instruments. Cerebrovascular Diseases, 32, 463-470.
Umansky, A.M., Jeffe, D.B., & Lieu, J.E. (2011). The HEAR-QL: Quality of life questionnaire
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Ingerski, L.M., Laffel, L., Drotar, D., Repaske, D., & Hood, K.K. (2010). Correlates of glycemic
control and quality of life outcomes in adolescents with type 1 diabetes. Pediatric Diabetes, 11,
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Lau, J.T., Yu, X.N., Chu., Y., Shing, M.M., Wong, E.M., Leung, T.F., Li, C.K., Fok, T.F., & Mak,
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Collett, B.R., Cloonan, Y.K., Speltz, M.L., & Anderka, M. (in press). Psychosocial functioning in
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Surapolchai, P., Satayasai, W., Sinlapamongkolkul, P., & Udomsubpayakul, U. (2010).
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Penn, A., Shortman, R.I., Lowis, S.P., Stevens, M.C., Hunt, L.P., McCarter, R.J., Curran, A.L., &
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Kuhlthau, K., Orlich, F., Hall, T.A., Sikora, D., Kovacs, E.A., Delahaye, J., & Clemons, T.E.
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Collett, B., Cloonan, Y., Speltz, M., Anderka, M., & Werler, M. (in press). Psychosocial
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Gabbe, B.J., Simpson, P.M., Sutherland, A.M., Palmer, C.S., Butt, W., Bevan, C., & Cameron,
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Edmond, K., Dieye, Y., Griffiths, U.K., Fleming, J., Ba, O., Diallo, N., & Mulholland, K. (2010).
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Dunaway, S., Montes, J., Montgomery, M., Battista, V., Koo, B., Marra, J., De Vivo, D.C., Hynan,
L.S., Iannaccone, S.T., & Kaufmann P. (2010). Reliability of telephone administration of the
PedsQL™ Generic Quality of Life Inventory™ and Neuromuscular Module™ in spinal muscular
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Klaassen, R.J., Krahn, M., Gaboury, I., Hughes, J., Anderson, R., Grundy, P., Ali, S.K., Jardine,
L., Abla, O., Silva, M., Barnard, D., & Cappelli M. (2010). Evaluating the ability to detect
change of health-related quality of life in children with Hodgkin disease. Cancer, 116, 1608-1614.
Klaassen, R.J., Barr, R.D., Hughes, J., Rogers, P., Anderson, R., Grundy, P., Ali, S.K., Yanofsky,
R., Abla, O., Silva, M., Carret, A.S., & Cappelli, M. (2010). Nurses provide valuable proxy
assessment of the health-related quality of life of children with Hodgkin disease. Cancer, 116,
1602-1607.
Alonso, E.M., Limbers, C.A., Neighbors, K., Martz, K., Bucuvalas, J.C., Webb, T., & Varni, J.W.
(2010). Cross-sectional analysis of health-related quality of life in pediatric liver transplant
recipients. Journal of Pediatrics, 156, 270-276.
Ingerski, L.M., Modi, A.C., Hood, K.K., Pai, A.L., Zeller, M., Piazza-Waggoner, C., Driscoll,
K.A., Rothenberg, M.E., Franciosi, J.F., & Hommel, K.A. (2010). Health-related quality of life
across pediatric chronic conditions. Journal of Pediatrics, 156, 639-644.
Mowry, E.M, Julian, L.J, Im-Wang, S., Chabas, D., Galvin, A.J., Strober, J.B., & Waubant, E.
(2010). Health-related quality of life is reduced in pediatric multiple sclerosis. Pediatric
Neurology, 43, 97-102.
Dampier, C., Lieff, S., Lebeau, P., Rhee, S., McMurray, M., Rogers, Z., Smith-Whitley, K., &
Wang, W. (2010). Health-related quality of life in children with sickle cell disease: A report from
the Comprehensive Sickle Cell Centers Clinical Trial Consortium. Pediatric Blood & Cancer, 55,
485-494.
Langley, R.G., Paller, A.S., Hebert, A.A., Creamer, K., Weng, H.H., Jahreis, A., Globe, D., Patel,
V., & Orlow, S.J. (in press). Patient-reported outcomes in pediatric patients with psoriasis
undergoing etanercept treatment: 12-week results from a phase III randomized controlled trial.
Journal of the American Academy of Dermatology.
Baggott, C.R., Dodd, M., Kennedy, C., Marina, N., Matthay, K.K., Cooper, B., & Miaskowski C.
(in press). An evaluation of the factors that affect the health-related quality of life of children
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Pogorzala, M., Styczynski, J., Kurylak, A., Debski, R., Wojtkiewicz, M., & Wysocki, M. (2010).
Health-related quality of life among pediatric survivors of primary brain tumors and acute
leukemia. Quality of Life Research, 19, 191–198.
Roumelioti, M.E., Wentz, A., Schneider, M.F., Gerson, A.C., Hooper, S., Benfield, M., Warady,
B.A., Furth, S.L., & Unruh, M.L. (2010). Sleep and fatigue symptoms in children and adolescents
with CKD: A cross-sectional analysis from the Chronic Kidney Disease in Children (CKiD)
Study. American Journal of Kidney Diseases, 55, 269-280.
Gerson, A.C., Wentz, A., Abraham, A.G., Mendley, S.R., Hooper, S.R., Butler, R.W., Gipson,
D.S., Lande, M.B., Shinnar, S., Moxey-Mims, M.M., Warady, B.A., & Furth S.L. (2010). Health-
related quality of life of children with mild to moderate chronic kidney disease. Pediatrics, 125,
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Howard, K., Lo, E., Sheppard, S., Stargatt, R., & Davidson, A. (2010). Behavior and quality of
life measures after anesthesia for tonsillectomy or ear tube insertion in children. Paediatric
Anaesthesia, 20, 913-923.
Sato, I., Higuchi, A., Yanagisawa, T., Mukasa, A., Ida, K., Sawamura, Y., Sugiyama, K., Saito, N.,
Kumabe, T., Terasaki, M., Nishikawa, R., Ishida, Y., & Kamibeppu, K. (2010). Development of
the Japanese version of the Pediatric Quality of Life Inventory™ Brain Tumor Module. Health
and Quality of Life Outcomes, 8:38, 1-14.
de Wit, M., Delemarre-van de Waal, H.A., Bokma, J.A., Haasnoot, K., Houdijk, M.C., Gemke,
R.J., & Snoek, F.J. (2010). Follow-up results on monitoring and discussing health-related quality
of life in adolescent diabetes care: Benefits do not sustain in routine practice. Pediatric Diabetes,
11, 175-181.
Anthony, S.J., Hebert, D., Todd, L., Korus, M., Langlois, V., Pool, R., Robinson, L.A., Williams,
A., Pollock-Barziv, S.M. (2010). Child and parental perspectives of multidimensional quality of
life outcomes after kidney transplantation. Pediatric Transplantation, 14, 249–256.
Panepinto, J.A., Hoffmann, R.G., & Pajewski, N.M. (2010). The effect of parental mental health
on proxy reports of health-related quality of life in children with sickle cell disease. Pediatric
Blood & Cancer, 55, 714–721.
Lloyd, A., Swinburn, P., Boye, K.S., Curtis, B., Sarpong, E., Goldsmith, K., Bode, B., & Aronoff,
S. (2010). A valuation of infusion therapy to preserve islet function in type 1 diabetes. Value in
Health, 13, 636-642.
Wen, G., McKean-Cowdin, R., Varma, R., Tarczy-Hornoch, K., Cotter, S.A., Borchert, M., &
Azen. S. (in press). General health-related quality of life in preschool children with strabismus or
amblyopia. Ophthalmology.
McManus, B.M., Robert, S.A., Albanese, A., Sadek-Badawi, M., & Palta, M. (in press).
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Bray P., Bundy, A.C., Ryan, M.M., North, K.M., & Everett, A. (in press). Health-related quality
of life in boys with Duchenne Muscular Dystrophy: Agreement between parents and their sons.
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Schurman, J.V., Wu, Y.P., Grayson, P., & Friesen, C.A. (2010). Pilot study to assess the efficacy
of biofeedback-assisted relaxation training as an adjunct treatment for pediatric functional
dyspepsia associated with duodenal eosinophilia. Journal of Pediatric Psychology, 35, 837–847.
Punpanich, W., Boon-Yasidhi, V., Chokephaibulkit, K., Prasitsuebsai, W., Chantbuddhiwet, U.,
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children with HIV infection: A comparison of the Thai Quality of Life in Children (ThQLC) with
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McDonald, C.M., McDonald, D.A., Bagley, A.M., Sienko-Thomas, S., Buckon, C., Henricson, E.,
Nicorici, A., & Sussman, M.D. (in press). Relationship between clinical outcome measures and
parent proxy reports of health-related quality of life in ambulatory children with Duchenne
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Seid, M., Varni, J.W., Gidwani, P., Gelhard, L.R, & Slymen, D.J. (2010). Problem-solving skills
training for vulnerable families of children with persistent asthma: Report of a randomized trial
on health-related quality of life outcomes. Journal of Pediatric Psychology, 35, 1133-1143.
Nyame, Y.A., Ambrosy, A.P., Saps, M., Adams, P.N., Dhroove, G.N., & Suresh, S. (2010).
Recurrent headaches in children: An epidemiological survey of two middle schools in inner city
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Xu, C., Jackson, M., Scuffham, P.A., Wootton, R., Simpson, P., Whitty, J., Wolfe, R., &
Wainwright, C.E. (in press). A randomized controlled trial of an interactive voice response
telephone system and specialist nurse support for childhood asthma management. Journal of
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Gabbe, B.J., Simpson, P.M., Sutherland, A.M., Palmer, C.S., Williamson, O.D., Butt, W., Bevan,
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pediatric trauma. Journal of Trauma.
Ab Rahman, A., Ariffin, N.H., Musa, K.I., Wan Ibrahim, W.P., Ibrahim, M.I., Othman,
A., Abd Aziz, A., Harith, S., Abd Rahman, N., & Van Rostenberghe H. (2011). A preliminary
study on the reliability of the Malay version of the Quality of Life Inventory ™ Version 4.0
(PEDSQL) Generic Core Scales among children with disabilities in Kelantan, Malaysia: Parent-
proxy report. International Journal of Collaborative Research on Internal Medicine & Public
Health, 3, 588-596.

Ab Rahman, A. Mohamad, N., Musa, K.I., Ibrahim, W.P.W., Othman, A., Harith, S., Ibrahim,
M.I., Ariffin, N.H., & Van Rostenberghe, H. (2011). A preliminary study on the reliability of the
Malay version of PedsQL™ Family Impact Module among caregivers of children with
disabilities in Kelantan, Malaysia. Malaysian Journal of Medical Science, 18, 62-67.
Garma, S.I., Kelly, E.H., Daharsh, E.Z., & Vogel, L.C. (2011). Health-related quality of life after
pediatric spinal cord injury. Journal of Pediatric Psychology, 36, 226-236.
Moon, R.J., Sutton, T., Wilson, P.M., Kirkham, F.J., & Davies, J.H. (in press). Pituitary function
at long-term follow up of childhood traumatic brain injury. Journal of Neurotrauma.
Gorzkowski, J.A., Kelly, E.H., Klaas, S.J., & Vogel, L.C. (in press). Girls with spinal cord injury:
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Boyle, S.E., Jones, G.L., & Walters, S.J. (in press). Physical activity, quality of life, weight status
and diet in adolescents. Quality of Life Research.
Clarke, S.A., Skinner, R., Guest, J., Darbyshire, P., Cooper, J., Shah, F., Roberts, I., & Eiser, C.
(in press). Health-related quality of life and financial impact of caring for a child with
Thalassaemia Major in the UK. Child: Care, Health and Development.
Kobayashi, K., & Kamibeppu, K. (2010). Measuring quality of life in Japanese children:
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Natesan, P., Limbers, C.A., & Varni, J.W. (2010). Bayesian estimation of graded response
multilevel models using Gibbs sampling: Formulation and illustration. Educational and
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Lima, L., Guerra, M.P., & de Lemos, M.S. (2010). The psychological adjustment of children with
asthma: Study of associated variables. Spanish Journal of Psychology, 13, 353-363.
Irwin, D.E., Stucky, B.D., Thissen, D., DeWitt, E.M., Lai, J.S., Yeatts, K., Varni, J.W., & DeWalt,
D.A. (2010). Sampling plan and patient characteristics of the PROMIS pediatrics large-scale
survey. Quality of Life Research, 19, 585-594.
Kistler, K.D., Molleston, J., Unalp, A., Abrams, S.H., Behling, C., & Schwimmer, J.B. (2010).
Symptoms and quality of life in obese children and adolescents with nonalcoholic fatty liver
disease. Alimentary Pharmacology & Therapeutics, 31, 396–406.
Thurston, S., Paul, L., Loney, P., Wong, M., & Browne, G. (in press). The quality of life of a
multidiagnosis group of special needs children: Associations and costs. International Journal of
Pediatrics.
Berkes, A., Pataki, I., Kiss, M., Kemény, C., Kardos, L., Varni, J.W., & Mogyorósy, G. (2010).
Measuring health-related quality of life in Hungarian children with heart disease: Psychometric
properties of the Hungarian version of the Pediatric Quality of Life Inventory™ 4.0 Generic Core
Scales and the Cardiac Module. Health and Quality of Life Outcomes, 8:14, 1-12.
Malone, L.A., & Vogtle, L.K. (in press). Pain and fatigue consistency in adults with cerebral
palsy. Disability and Rehabilitation.
Kernick, D., Reinhold, D., Campbell, J.L. (in press). Impact of headache on young people in a
school population. British Journal of General Practice.
O'Neil, M.E., Shewokis, P.A., Falkenstein, K.K., Delago, C.W., Smith, S.A., Vaughn, N., &
Costigan, T.E. (in press). Psychosocial factors and health perceptions in parents and children who
are overweight or obese. Obesity.
Peng, Y.F., & Cheng, Q. (2010). Validity and reliability of the Chinese version of Pediatric
Quality of Life Inventory Version 3.0 Asthma Module. Zhongguo Dang Dai Er Ke Za Zhi, 12,
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Moorthy, L.N., Peterson, M.G., Hassett, A., Baratelli, M., & Lehman, T.J. (in press). Impact of
lupus on school attendance and performance. Lupus.
Svavarsdottir, E.K., Burkhart, P.V., Rayens, M.K., Orlygsdottir, B., & Oakley, M.G. (in press).
Icelandic and United States families of adolescents with asthma: predictors of health-related
quality of life from the parents' perspective. Journal of Clinical Nursing.
Ostbye, T., Malhotra, R., Wong, H.B., Tan. S.B., & Saw, S.M. (in press). The effect of body mass
on health-related quality of life among Singaporean adolescents: Results from the SCORM study.
Quality of Life Research.
Das, S., Mukherjee, A., Lodha, R., & Vatsa, M. (in press). Quality of life and psychosocial
functioning of HIV infected children. Indian Journal of Pediatrics.
Cummings, A.J., Knibb, R.C., Erlewyn-Lajeunesse, M., King, R.M., Roberts, G., & Lucas, J.S.
(2010). Management of nut allergy influences quality of life and anxiety in children and their
mothers. Pediatric Allergy and Immunology, 21, 586-594.
Noyes, J.P., Williams, A., Allen, D., Brocklehurst, P., Carter, C., Gregory, J.W., Jackson, C.,
Lewis, M., Lowes, L., Russell, I.T., Rycroft-Malone, J., Sharp, J., Samuels, M., Tudor Edwards,

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R., & Whitaker, R. (in press). Evidence into practice: evaluating a child-centred intervention for
diabetes medicine management The EPIC Project. BMC Pediatrics.
Xu, T., Wu, Z., Yan, Z., Rou, K., & Duan, S. (2010). Measuring health-related quality of life in
children living in HIV/AIDS-affected families in rural areas in Yunnan, China: Preliminary
reliability and validity of the Chinese version of PedsQL 4.0 Generic Core Scales. Journal of
Acquired Immune Deficiency Syndromes, 53, Suppl 1:S111-115.

Holterman, A.X., Browne, A., Tussing, L., Gomez, S., Phipps, A., Browne, N., Stahl, C., &
Holterman, M.J. (2010). A prospective trial for laparoscopic adjustable gastric banding in
morbidly obese adolescents: An interim report of weight loss, metabolic and quality of life
outcomes. Journal of Pediatric Surgery, 45, 74-79.
Soyupek, F., Aktepe, E., Savas, S., & Askin, A. (in press). Do the self-concept and quality of life
decrease in CP patients? Focusing on the predictors of self-concept and quality of life. Disability
and Rehabilitation.
Pek, J.H., Chan, Y.H., Yeoh, A.E., Quah, T.C., Tan, P.L., & Aung. L. (2010). Health-related
quality of life in children with cancer undergoing treatment: A first look at the Singapore
experience. Annals of the Academy of Medicine, Singapore, 39, 43-6.
Laaksonen, C.B., Aromaa, M.E., Asanti, R.E., Heinonen, O.J., Koivusilta, L.K., Koski, P.J.,
Suominen, S.B., Vahlberg, T.J., & Salanterä, S. (in press). The change of child self-assessed and
parent proxy-assessed Health Related Quality of Life (HRQL) in early adolescence (age 10-12).
Scandinavian Journal of Public Health.
Paulsen, E.K., Friedman, L.S., Myers, L.M., & Lynch, D.R. (2010). Health-related quality of life
in children with Friedreich ataxia. Pediatric Neurology, 42, 335-337.
McCarty, R.L., Weber, W.J., Loots, B., Breuner, C.C., Vander Stoep, A., Manhart, L., & Pihoker,
C. (in press). Complementary and alternative medicine use and quality of life in pediatric
diabetes. Journal of Alternative and Complementary Medicine.
Cotton, S., Humenay Roberts, Y., Tsevat, J., Britto, M.T., Succop, P., McGrady, M.E., & Yi, M.S.
(2010). Mind-body complementary alternative medicine use and quality of life in adolescents
with inflammatory bowel disease. Inflammatory Bowel Diseases, 16, 501–506.
Norris, J.M., Moules, N., Pelletier, G., & Culos-Reed, S.N. (in press). Families of young pediatric
cancer survivors: A cross-sectional survey examining physical activity behavior and health-
related quality of life. Journal of Pediatric Oncology Nursing.
Areemit, R.S., Katzman, D.K., Pinhas, L., & Kaufman, M. (in press). The experience of siblings
of adolescents with eating disorders. Journal of Adolescent Health.
Berkes, A., Varni, J.W., Pataki, I., Kardos, L., Kemény, C., & Mogyorósy, G. (2010). Measuring
health-related quality of life in Hungarian children attending a cardiology clinic with the Pediatric
Quality of Life Inventory. European Journal of Pediatrics, 169, 333–347.
Tahirović, E., Begić, H., Nurkić, M., Tahirović, H., & Varni, J.W. (2010). Does the severity of
congenital heart defects affect disease-specific health-related quality of life in children in Bosnia
and Herzegovina? European Journal of Pediatrics, 169, 349–353.
Looman W.S., Thurmes, A.K., & O'Conner-Von, S.K. (2010) Quality of life among children with
velocardiofacial syndrome. Cleft Palate-Craniofacial Journal, 47, 273-283.
Strieper, M., Leong, T., Bajaj, T., Huckaby, J., Frias, P., & Campbell, R. (2010). Does ablation of
supraventricular tachycardia in children with a structurally normal heart improve quality of life?
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Yamada, T., Hatt, S.R., Leske, D.A., & Holmes, J.M. (in press). Health-related quality of life in
parents of children with intermittent exotropia. Journal of the American Association for Pediatric
Ophthalmology and Strabismus.
Knapp, C.A., Madden, V.L., Curtis, C.M., Sloyer, P., & Shenkman, E.A. (2010). Family support
in pediatric palliative care: How are families impacted by their children’s illnesses? Journal of
Palliative Medicine, 13, 1-6.
Thavorncharoensap, M., Torcharus, K., Nuchprayoon, I., Riewpaiboon, A., Indaratna, K., & Ubol,
B.O. (2010). Factors affecting health-related quality of life in Thai children with thalassemia.
BMC Blood Disorders, 10:1, 1-10.
Xu, T., Wu, Z., Rou, K., Duan, S., & Wang, H. (2010). Quality of life of children living in
HIV/AIDS-affected families in rural areas in Yunnan, China. AIDS Care, 22, 390-396.
Rivas, M.B.V., & Gómez-Maqueo, M.E.L (2010). Psychometric properties of the Paediatric Life
Quality Inventory, versión 4.0, in Mexican adolescents. Psicología y Salud, 20, 5-12.
Postans , N., Wright , P., Bromwich, W., Wilkinson , I., Farmer , S.E., & Swain, I. (2010). The
combined effect of dynamic splinting and neuromuscular electrical stimulation in reducing wrist
and elbow contractures in six children with cerebral palsy. Prosthetics and Orthotics International,
34, 10-19.
Simons, L., Logan, D., Chastain, L., & Stein, M. (2010). The relation of social functioning to
school impairment among adolescents with chronic pain. Clinical Journal of Pain, 26, 16-22.
Erickson, S.J., Montague, E.Q., & Gerstle, M.A. (2010). Health-related quality of life in children
with moderate-to-severe traumatic brain injury. Developmental Neurorehabilitation, 13,175-81.
Bomba, M., Nacinovich, R., Oggiano, S., Cassani, M., Baushi, L., Bertulli, C., Longhi, D.,
Coppini, S., Parrinello, G., Plebani, A., & Badolato R. (2010). Poor health-related quality of life
and abnormal psychosocial adjustment in Italian children with perinatal HIV infection receiving
highly active antiretroviral treatment. AIDS Care, 22, 858-865.
Boles, R.E., Scharf, C.S., & Stark, L.J. (2010). Developing a treatment program for obesity in
preschool-age children: Preliminary data. Children’s Health Care, 39, 34–58.
Lyon, M.E., Garvie, P.A., Briggs, L., He, J., Malow, R., D’Angelo, L.J., & McCarter, R. (2010).
Is it safe? Talking to teens with HIV/AIDS about death and dying: A 3-month evaluation of
Family Centered Advance Care (FACE) planning – Anxiety, depression, quality of life HIV/AIDS
- Research and Palliative Care, 2, 27–37.
Modi, A.C., Lim, C.S., Driscoll, K.A., Piazza-Waggoner, C., Quittner, A.L., & Wooldridge, J.
(2010). Changes in pediatric health-related quality of life in cystic fibrosis after IV antibiotic
treatment for pulmonary exacerbations. Journal of Clinical Psychology in Medical Settings, 17,
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Chandra, A., Lara-Cinisomo, S., Jaycox, L.H., Tanielian, T., Burns, R.M., Ruder, T., & Han, B.
(2010). Children on the homefront: The experience of children from military families. Pediatrics,
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Klatchoian, D.A., Len, C.A., Terreri, M.T., & Hilário, M.O. (2010). Quality of life among
children from São Paulo, Brazil: The impact of demographic, family and socioeconomic
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Poeta, L.S., Duarte, Mde. F., & Giuliano, Ide. C. (2010). Health-related quality of life of obese
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D.S., Ollis, S., Thomas, N.E., & Baker. J.S. (2010). The influence of a high intensity physical
activity intervention on a selection of health related outcomes: an ecological approach. BMC
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Lee, G.H., McGrath, C., Yiu, C.K., & King, N.M. (in press). A comparison of a generic and oral
health-specific measure in assessing the impact of early childhood caries on quality of life.
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Dinomais, M., Gambart, G., Bruneau, A., Bontoux, L., Deries, X., Tessiot, C., & Richard, I.
(2010). Social functioning and self-esteem in young people with disabilities participating in
adapted competitive sport. Neuropediatrics, 41, 49-54.
Becker, E., & Dusing, S. (2010). Participation is possible: A case report of integration into a
community performing arts program. Physiotherapy Theory and Practice, 26, 275-280.
Hatt, S.R., Leske, D.A., & Holmes, J.M. (in press). Comparison of quality-of-life instruments in
childhood intermittent exotropia. Journal of the American Association for Pediatric
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Tahirović, E., Begić, H., Sutović, A., & Tahirović H. (2010). Impact of the family socioeconomic
status on health related quality of life in children operated on for congenital heart defects. (Article
in Croatian). Acta Medica Croatica, 64, 9-16.
Krishna, Y.R., Yachha, S.K., Srivastava, A., Negi, D., Lal, R., & Poddar, U. (2010). Quality of
life in children managed for extrahepatic portal venous obstruction. Journal of Pediatric
Gastroenterology and Nutrition, 50, 531-536.
Huang, I.C., Shenkman, E.A., Madden, V.L., Vadaparampil, S., Quinn, G., & Knapp, C.A. (2010).
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Huang, I.C., Thompson, L.A., Chi, Y.Y., Knapp, C.A., Revicki, D.A., Seid, M., & Shenkman,
E.A. (2009). The linkage between pediatric quality of life and health conditions: Establishing
clinically meaningful cutoff scores for the PedsQL™. Value in Health, 12, 773-781.
Macallister, W.S., Christodoulou, C., Troxell, R., Milazzo, M., Block, P., Preston, T.E., Bender,
H.A., Belman, A., & Krupp, L.B. (2009). Fatigue and quality of life in pediatric multiple
sclerosis. Multiple Sclerosis, 15, 1502-1508.
Izquierdo, R., Morin, P.C., Bratt, K., Moreau, Z., Meyer, S., Ploutz-Snyder, R., Wade, M., &
Weinstock, R.S. (2009). School-centered telemedicine for children with Type 1 diabetes mellitus.
Journal of Pediatrics, 155, 374-379.
Dodson, J.L., Cohn, S.E., Cox, C., Hmiel, P.S., Wood, E., Mattoo, T.K., Warady, B.A., & Furth,
S.L. (2009). Urinary Incontinence in the CKiD cohort and health related quality of life. Journal of
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Petersen, S., Hägglöf, B.L., & Bergström, E.I. (2009). Impaired health-related quality of life in
children with recurrent pain. Pediatrics, 124, e759-e767.
Manlhiot, C., Knezevich, S., Radojewski, E., Cullen-Dean, G., Williams, W.G., & McCrindle,
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Montpetit, K., Hamdy, R.C., Dahan-Oliel, N., Zhang, X., & Narayanan, U.G. (2009).
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lower limb deformities. Journal of Pediatric Orthopedics, 29, 920-926.

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Gorton, G.E., Abel, M.F., Oeffinger, D.J., Bagley, A., Rogers, S.P., Damiano, D., Romness, M., &
Tylkowski, C. (2009). A prospective cohort study of the effects of lower extremity orthopaedic
surgery on outcome measures in ambulatory children with cerebral palsy. Journal of Pediatric
Orthopedics, 29, 903-909.
Hamdy R.C., Montpetit, K., Raney, E.M., Aiona, M.D., Fillman, R.R., MacKenzie, W.,
McCarthy, J., Chafetz, R.S., Thomas, S.S., Tamayo, C.M., Littleton, A.G., Ruck-Gibis, J.,
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Chen, Y.M., He, L.P., Mai, J.C., Hao, Y.T., Xiong, L.H., Chen, W.Q., & Wu, J.N. (2008). Validity
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Oeffinger, D., Bagley, A., Rogers, S., Gorton, G., Kryscio, R., Abel, M., Damiano, D., Barnes, D.,
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Fullerton, G., Tyler, C., Johnston, C.A., Vincent, J.P., Harris, G.E., & Foreyt, J.P. (2007). Quality
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Gurney, J.G., Tersak, J.M., Ness, K.K., Landier, W., Matthay, K.K., & Schmidt, M.L. (2007).
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Holterman, A.X., Browne, A., Dillard, B.E., Tussing, L., Gorodner, V., Stahl, C., Browne, N.,
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Varni, J.W., Burwinkle, T.M., Limbers, C.A., & Szer, I.S. (2007). The PedsQL™ as a patient-
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Varni, J.W., Limbers, C.A., & Burwinkle, T.M. (2007). Literature review: Health-related quality
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Vetter, T.R. (2007). A primer on health-related quality of life in chronic pain medicine. Anesthesia
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Majnemer, A., Shevell, M., Rosenbaum, P., Law. M., & Poulin, C. (2007). Determinants of life
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Abresch, R.T., McDonald, D.A., Widman, L.M., McGinnis, K., & Hickey, K.J. (2007). Impact of
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Murphy, H.R., Wadham, C. Rayman, G., & Skinner, T.C. (in press). Approaches to integrating
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Damiano, P.C., Tyler, M.C., Romitti, P.A., Momany, E.T., Jones, M.P., Canady, J.W., Karnell,
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Cakin Memik, N., Agaoglu, B., Coskun, A.S., Uneri, O., & Karakaya, I. (2007) The validity and
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Packman, W., Henderson, S.L., Mehta, I., Ronen, R. Danner, D., Chesterman, B., & Packman, S.
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Chung, P.J., Garfield, C.F., Elliott, M.N., Carey, C., Eriksson, C., & Schuster, M.A. (2007). Need
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Hankins, J., Hinds, P., Day, S., Carroll, Y., Li, C.S., Garvie, P., & Wang, W. (2007). Therapy
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Hiscock, H., Canterford, L., Ukoumunne, O.C., & Wake, M. (2007). Adverse associations of
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Laaksonen, C., Aromaa, M., Heinonen, O.J., Suominen, S., & Salantera, S. (2007). Pediatric
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Ingerski, L.M., Janicke, D.M., & Silverstein, J.H. (2007). Quality of life in overweight youth: The
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Hughes, A.R., Farewell, K., Harris, D., & Reilly, J.J. (2007). Quality of life in a clinical sample of
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Makari, J., Zaborskis, A., Labanauskas, L., & Rageliene, L. (2007). The quality of life of children
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Lai, J.S., Cella, D., Kupst, M.J., Holm, S., Kelly, M.E., & Bode, R.K. (2007). Measuring fatigue
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de Wit, M., Delemarre-van de Waal, H.A., Pouwer, F., Gemke, R.J., & Snoek, F.J. (2007).
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Tyler, C., Johnston, C.A., Fullerton, G., & Foreyt, J.P. (2007). Reduced quality of life in very
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Klaassen, R.J., Blanchette, V.S., Barnard, D., Wakefield, C.D., Curtis, C., Bradley, C.S., Neufeld,
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Young, H.K., Lowe, A., Fitzgerald, D.A., Seton, C., Waters, K.A., Kenny, E., Hynan, L.S.,
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Simenoni, M.C., Schmidt, S., Muehlan, H., Debensason, D., & Bullinger, M. (2007). Field testing
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Oeffinger, D., Gorton, G., Bagley, A., Nicholson, D., Barnes, D., Calmes, J., Abel, M., Damiano,
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Russo, R.N., Crotty, M., Miller, M.D., Murchland, S., Flett, P., & Haan, E. (2007). Upper-limb
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Chak, M.H., Rahi, J.S., & Bccig, B.C. (2007). The quality of life of children with congenital
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Hutchings, H.A., Upton, P., Cheung, W.Y., Maddocks, A., Eiser, C., Williams, J., Russell, I.,
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& Sadler, B.L. (2004). Evaluation of the built environment at a Children’s Convalescent Hospital:
Development of the Pediatric Quality of Life Inventory Parent and Staff Satisfaction Measures
for pediatric health care facilities. Journal of Developmental and Behavioral Pediatrics, 25, 10-
25.
Crabtree, V.M., Varni, J.W., & Gozal, D. (2004). Health-related quality of life and depressive
symptoms in children with suspected sleep-disordered breathing. Sleep, 27, 1131-1138.
Poretti, A., Grotzer, M.A., Ribi, K., Schonle, E., & Boltshauser, E. (2004). Outcome of
craniopharyngioma in children: Long-term complications and quality of life. Developmental
Medicine and Child Neurology, 46, 220-229.
Brunner, H.I., Klein-Gitelman, M.S., Miller, M.J., Trombley, M., Baldwin, N., Kress, A.,
Johnson, A.L., Barron, A.C., Griffin, T.A., Passo, M.H., & Lovell, D.J.. (2004). Health of children
with chronic arthritis: Relationship of different measures and the quality of parent proxy
reporting. Arthritis Care and Research, 51, 763-773.
Sawyer, M.G., Whitham, J.N., Roberton, D.M., Taplin, J.E., Varni, J.W., & Baghurst, P.A. (2004).
The relationship between health-related quality of life, pain, and coping strategies in juvenile
idiopathic arthritis. Rheumatology, 43, 325-330.
Powers, S.W., Patton, S.R., Hommel, K.A., & Hershey, A.D. (2004). Quality of life in pediatric
migraine: Characterization of age-related effects using PedsQL 4.0. Cephalalgia, 24, 120-127.
Friefeld, S., Yeboah, O., Jones, J.E., & DeVeber, G. (2004). Health-related quality of life and its
relationship to neurological outcome in child survivors of stroke. CNS Spectrums, 9, 465-475.
Packman, W., Fine, J., Chesterman, B., vanZutphen, K., Golan, R., & Amylon, M.D. (2004).
Camp Okizu: Preliminary investigation of a psychological intervention for siblings of pediatric
cancer patients. Children’s Health Care, 33, 201-216.
De Clercq, B., De Fruyt, F., Koot, H.M., & Benoit, Y. (2004). Quality of life in children surviving
cancer: A personality and multi-informant perspective. Journal of Pediatric Psychology, 29, 579-
590.
Windle, M., Grunbaum, A., Elliott, M., Tortolero, S.R., Berry, S., Gilliland, J., Kanouse, D.E.,
Parcel, G.S., Wallander, J., Kelder, S., Collins, J., Kolbe, L., & Schuster, M. (2004). Healthy
Passages: A multilevel, multimethod longitudinal study of adolescent health. American Journal of
Preventive Medicine, 27, 164-172.
Eiser, C., Eiser, J.R., & Greco, V. (2004). Surviving childhood cancer: Quality of life and parental
regulatory focus. Personality and Social Psychology Bulletin, 30, 123-133.

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Curran, A.L., Miller, H.E., McCarter, R.J. et al. (2004). Health related quality of life and its
determinants in head injured children 1 and 6 months after injury. Archives of Disease in
Childhood, 89, A21.
Seid, M., Sobo, E.J., Gelhard, L.R., & Varni, J.W. (2004). Parents’ reports of barriers to care for
children with special health care needs: Development and validation of the Barriers to Care
Questionnaire. Ambulatory Pediatrics, 4, 323-331.
Sawyer, M.G., Reynolds, K.E., Couper, J.J., French, D.J., Kennedy, D., Martin, J., Staugas, R.,
Ziaian, T., & Baghurst, P.A. (2004). Health-related quality of life of children and adolescents with
chronic illness: A two year prospective study. Quality of Life Research, 13, 1309-1319.
Schwimmer, J.B., Burwinkle, T.M., & Varni, J.W. (2003). Health-related quality of life of
severely obese children and adolescents. JAMA (Journal of the American Medical Association),
289, 1813-1819.
Powers, S.W., Patton, S.R., Hommel, K.A., & Hershey, A.D. (2003). Quality of life in childhood
migraines: Clinical impact and comparison to other chronic illnesses. Pediatrics, 112, e1-e5.
Mansour, M.E., Kotagal, U., Rose, B., Ho, M., Brewer, D., Roy-Chaudhury, A., Hornung, R.W.,
Wade, T.J., & DeWitt, T.G. (2003). Health-related quality of life in urban elementary
schoolchildren. Pediatrics, 111, 1372-1381.
Hallstrand, T.S., Curtis, J.R., Aitken, M.L., & Sullivan, S.D. (2003). Quality of life in adolescents
with mild asthma. Pediatric Pulmonology, 36, 536-543.
Bucuvalas, J.C., Britto, M., Krug, S., Ryckman, F.C., Atherton, H., Alonso, M.P., Balistreri, W.F.,
& Kotagal, U. (2003). Health-related quality of life in pediatric liver transplant recipients: A
single-center study. Liver Transplantation, 9, 62-71.
Robinson, R.F., Nahata, M.C., Hayes, J.R., Rennebohm, R. Higgins, G. (2003). Quality of life
measurements in juvenile rheumatoid arthritis patients treated with Etanercept. Clinical Drug
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assessing quality of life in survivors of childhood cancer. Child: Care, Health & Development,
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youth with Type 1 diabetes. Journal of Pediatrics, 142, 409-416.
Laffel, L.M.B., Connell, A., Vangsness, L., Goebel-Fabbri, A., Mansfield, A., & Anderson B.J.
(2003). General quality of life in youth with Type 1 diabetes: Relationship to patient management
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Utilities Index (HUI) compare to the Pediatric Quality of Life measure (PedsQL)? Archives of
Disease in Childhood, 88, A24.
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low-income mothers and emotional and social functioning in their preschool children.
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Iannaccone, S.T. (2002). Outcome measures for pediatric spinal muscular atrophy. Archives of
Neurology, 59, 1445-1450.
Seid, M., Varni, J.W., Olson Bermudez, L., Zivkovic. M., Davodi Far, M., Nelson, M., & Kurtin,
P. S. (2001). Parent’s perceptions of primary care: Measuring parents’ experiences of pediatric
primary care quality. Pediatrics, 108, 264-270.
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technology: A guide for health care decision makes. Journal of Clinical Outcomes Management,
6, 33-40.

PedsQL™ Pediatric Pain Questionnaire


PedsQL™ Present Functioning Visual Analogue Scales
Pediatric Pain Coping Inventory™
Peer Reviewed Publications
Pacey, V., Tofts, L., Adams, R.D., Munns, C.F., & Nicholson, L.L. (2015). Quality of life
prediction in children with joint hypermobility syndrome. Journal of Paediatrics and Child
Health, 51, 689-695.
Vetter, T.R., McGwin, G., Bridgewater, C.L., Madan-Swain, A., & Ascherman, L.I. (2013).
Validation and clinical application of a Biopsychosocial Model of Pain intensity and functional
disability in patients with a pediatric chronic pain condition referred to a subspecialty clinic. Pain
Research and Treatment.
Aviel, Y. B., Stremler, R., Benseler, S.M., Cameron, B., Laxer, R.M., Ota, S., Schneider, R.,
Spiegel, L., Stinson, J.N., Tse, S.M., & Feldman, B.M. (2011). Sleep and fatigue and the
relationship to pain, disease activity and quality of life in juvenile idiopathic arthritis and juvenile
dermatomyositis. Rheumatology, 50, 2051-2060.
Vetter, T.R. (2008). A clinical profile of a cohort of patients referred to an anesthesiology-based
pediatric chronic pain medicine program. Anesthesia and Analgesia, 106, 786-794.
Eisen, S.L., Ulrich, R.S., Shepley, M.M., Varni, J.W., & Sherman, S. (2008). The stress-reducing
effects of art in pediatric health care: Art preferences of healthy children and hospitalized
children. Journal of Child Health Care, 12, 173-190.
Barakat, L.P., Daniel, L.C., Patterson, C.A., & Dampier, C. (2008). Quality of life among
adolescents with sickle cell disease: Mediation of pain by internalizing symptoms and parenting
stress. Health and Quality of Life Outcomes, 6:60.
Simons, L.E., Claar, R.L., & Logan, D.L. (2008). Chronic pain in adolescence: Parental
responses, adolescent coping, and their impact on adolescent’s pain behaviors. Journal of
Pediatric Psychology, 33, 894-904.
Sherman, S.A., Eisen, S., Burwinkle, T.M., & Varni, J.W. (2006). The PedsQL™ Present
Functioning Visual Analogue Scales: Preliminary reliability and validity. Health and Quality of
Life Outcomes, 4:75, 1-10.
Degotardi, P.J., Klass, E.S., Rosenberg, B.S., Fox, D.G., Gallelli, K.A., & Gottlieb, B.S. (2006).
Development and evaluation of a cognitive-behavioral intervention for juvenile fibromyalgia.
Journal of Pediatric Psychology, 31, 714-723.

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Oddson, B.E., Clancy, C.A., & McGrath, P.J. (2006). The role of pain in reduced quality of life
and depressive symptomology in children with spina bifida. Clinical Journal of Pain, 22, 784-789.
Sobo, E.J., Eng, B. & Kassity-Krich, N. (2006). Canine visitation (pet) therapy: Pilot data on
decreases in child pain perception. Journal of Holistic Nursing, 24, 51-57.
Engel, J.M., Jensen, M.P., & Schwartz, L (2006). Coping with chronic pain associated with
cerebral palsy. Occupational Therapy International, 13, 224-233.
Sawyer, M.G., Carbone, J.A., Whitham, J.N., Roberton, D.M., Taplin, J.E., Varni, J.W., &
Baghurst, P.A. (2005). The relationship between health-related quality of life, pain, and coping
strategies in juvenile arthritis: A one year prospective study. Quality of Life Research, 14, 1585-
1598.
Powell, M., Seid, M., & Szer, I.S. (2005). Efficacy of custom foot orthotics in improving pain and
functional status in children with juvenile idiopathic arthritis: A randomized trial. Journal of
Rheumatology, 32, 943-950.
Clancy, C.A., McGrath, P.J., & Oddson, B.E. (2005). Pain in children and adolescents with spina
bifida. Developmental Medicine and Child Neurology, 47, 27-34.
Konijnenberg, A.Y. et al. (2005). Children with unexplained chronic pain: Substantial impairment
in everyday life. Archives of Disease in Childhood, 90, 680-686.
Sawyer, M.G., Whitham, J.N., Roberton, D.M., Taplin, J.E., Varni, J.W., & Baghurst, P.A. (2004).
The relationship between health-related quality of life, pain, and coping strategies in juvenile
idiopathic arthritis. Rheumatology, 43, 325-330.
Varni, J.W., Burwinkle, T.M., & Katz, E.R. (2004). The PedsQL in pediatric cancer pain. A
prospective longitudinal analysis of pain and emotional distress. Journal of Developmental and
Behavioral Pediatrics, 25, 239-246.
Sandstrom, M.J. and Schanberg, L.E. (2004). Peer rejection, social behavior, and psychological
adjustment in children with juvenile rheumatic disease. Journal of Pediatric Psychology, 29, 29-
34.
Rapoff, M.A. (2003). Pediatric measures of pain: The Pain Behavior Observation Method, Pain
Coping Questionnaire (PCQ), and Pediatric Pain Questionnaire. Arthritis Care & Research, S5,
S90-S95.
Eccleston, C. et al. (2003). Chronic pain in adolescents: Evaluation of a programme of
interdisciplinary cognitive behaviour therapy. Archives of Disease in Childhood, 88, 881-885.
Foster, R.L. & Varni, J.W. (2002). Measuring the quality of children’s postoperative pain
management: Initial validation of the child/parent Total Quality Pain Management (TQPM)
instruments. Journal of Pain and Symptom Management, 23, 201-210.
Chambliss, C.R. et al. (2002). The assessment and management of chronic pain in children.
Pediatric Drugs, 4, 736-746.
Schanberg, L.E., Anthony, K.K., Gil, K.M. et al. (2001). Family pain history predicts child health
status in children with chronic rheumatic disease. Pediatrics, 108(3)/e47, 1-7.
Graumlich, S.E., Powers, S.W., Byars, K.C. et al. (2001). Multidimensional assessment of pain in
pediatric sickle cell disease. Journal of Pediatric Psychology, 26, 203-214.
Varni, J.W., Rapoff, M.A., Waldron, S.A., Gragg, R.A., Bernstein, B.H., & Lindsley, C.B. (1996).
Chronic pain and emotional distress in children and adolescents. Journal of Developmental and
Behavioral Pediatrics, 17, 154-161.

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Thastum, M., Zachariae, R., Scholer, M., & Herlin, T. (1999). A Danish adaption of the pain
coping questionnaire for children: Preliminary data concerning reliability and validity. Acta
Paediatricia, 88, 132-138.
Varni, J.W., Waldron, S.A., Gragg, R.A., Rapoff, M.A., Bernstein, B.H., Lindsley, C.B., &
Newcomb, M.D. (1996). Development of the Waldron/Varni Pediatric Pain Coping Inventory.
Pain, 67, 141-150.
Varni, J.W., Rapoff, M.A., Waldron, S.A., Gragg, R.A., Bernstein, B.H., & Lindsley, C.B. (1996).
Effects of perceived stress on pediatric chronic pain. Journal of Behavioral Medicine, 19, 515-
528.
Gragg, R.A., Rapoff, M.A., Danovsky, M.B., Lindsley, C.B., Varni, J.W., Waldron, S.A., &
Bernstein, B.H. (1996). Assessing chronic musculoskeletal pain associated with rheumatic
disease: Further validation of the Pediatric Pain Questionnaire. Journal of Pediatric Psychology,
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Benestad, B., Vinje, O., Veierod, M.B., & Vandvik, I.H. (1996). Quantitative and qualitative
assessments of pain in children with juvenile chronic arthritis based on the Norwegian version of
the Pediatric Pain Questionnaire. Scandinavian Journal of Rheumatology, 25, 293-299.
Walco, G.A., Varni, J.W., & Ilowite, N.T. (1992). Cognitive-behavioral pain management in
children with juvenile rheumatoid arthritis. Pediatrics, 89, 1075-1079.
Varni, J.W. (1992). Evaluation and management of pain in children with juvenile rheumatoid
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Ilowite, N.T., Walco, G.A., & Pochaczevsky, R. (1992). Assessment of pain in patients with
juvenile rheumatoid arthritis: Relation between pain intensity and degree of joint inflammation.
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Varni, J.W., & Bernstein, B.H. (1991). Evaluation and management of pain in children with
rheumatic diseases. Rheumatic Disease Clinics of North America, 17, 985-1000.
Walco, G.A. & Dampier, C.D. (1990). Pain in children and adolescents with sickle cell disease: A
descriptive study. Journal of Pediatric Psychology, 15, 643-658.
Varni, J.W., Wilcox, K.T., Hanson, V. & Brik, R. (1988). Chronic musculoskeletal pain and
functional status in juvenile rheumatoid arthritis: An empirical model. Pain, 32, 1-7.
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