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N EON ATAL, PAED I ATRI C AN D C H I LD H EALT H NU R S I NG

Next steps: towards child-focused nursing


Duncan Randall *
Nursing and Physiotherapy, School of Health and Population Sciences, College of Medical and Dental Sciences, University of Birmingham
52 Pritchatts Road, Edgbaston, Birmingham, B15 2TT, UK

Ailsa Munns
Lecturer, School of Nursing and Midwifery, Curtin University, Nurse Researcher, Child and Adolescent Health Service Perth, WA, Australia

Linda Shields
Professor of Nursing — Tropical Health, Tropical Health Research Unit, Townsville Health District and James Cook University,
and Honorary Professor, Medical School, The University of Queensland, QLD, Australia

*Corresponding author

Abstract
Family-centred care (FCC) is widely promoted as a model for children’s health care in many countries throughout the world and
in all spheres of children’s nursing education, management, policy and practice. However, research has failed to show that clinical
practice uses the partnership model, central to FCC. In this paper we suggest that, in part, the failure of FCC, as a project, is due to
the lack of attention paid to the cultural, social and political context in which children’s health care is delivered. We propose that
while the concepts of cultural safety and ethical symmetry may not replace that of FCC, they can be used to locate child-centred
care within the complexity of children’s lives, as lived with illness.
Keywords: Family-centred nursing, cultural diversity, ethical relativism, nurse–patient relations.

What is known about this topic What this paper adds


• 
Family-centred care (FCC) is a widely acknowledged Cultural safety and ethical symmetry are discussed as
• 
professional concept but evidence that nurses enact it in starting places to critically examine how nurses interact
practice has been difficult to substantiate The philosophy with children. Considering cultural aspects and the
of FCC has been the focus of much of the literature rather sociology of childhood can allow nurses to take account of
than evidence of its effects on care or health outcomes. cultural, social and temporal differences in the childhoods
FCC has been developed in a social and cultural vacuum, and the effect these differences have on the child's health.
implying that it applies irrespective of cultures, societies
and history. • A critical approach is suggested, recognising the potential
challenges to these approaches and suggesting the
rigour of empirical research is required to see if cultural
safety and ethical symmetry are useful adjuncts to FCC.

Declarations Introduction
Competing interests Nil known. Family-centred care (FCC) is ubiquitous in health services
Funding This work was supported by a 2008–09 Channel 7 around the world. At its centre is the concept that parents
Telethon Fellowship (Western Australia) and made possible and family members are the centre of the child’s life, and that
by a Universitas 21 travel fellowship from the University of care should be planned around the whole family, not just the
Birmingham. ill child. However, this model is untested by rigorous research,
Ethical approval Not required. while qualitative studies are highlighting increasing concerns
Guarantor DR. with it.
Contributorship Conception of idea, supporting funding, This paper discusses FCC and its problems, while presenting
drafted paper — DR; developed ideas, found supporting two other models, cultural safety and ethical symmetry.
literature, helped draft paper — AM; helped development These may not be replacements for FCC, but could provide
of ideas, drafting paper, funding support — LS. All authors us with ways to critically examine FCC and rethink our ways
were responsible for the final writing and editing of the of caring for children and their families, taking account of the
manuscript. cultures in which they live and understanding of children and
Acknowledgements childhoods derived from the sociology of childhood.
This work was supported by a 2008–09 Channel 7 Telethon
Fellowship (Western Australia) and made possible by Background
a Universitas 21 travel fellowship from the University of Research into delivery of FCC in various geographical
Birmingham. and psychosocial environments has demonstrated that

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its successful implementation has been impacted upon behaviour, and were expected to behave to fit the nurses’
by differing parental and nursing staff expectations and perceptions of what constituted good behaviour2,12. Chinese
perceptions of care, parental social demographics and cultural parents13 found they had to demand to be allowed to stay
backgrounds1,2. FCC is integral to many hospitals’ policies and with their child during a painful or stressful procedure,
practices, designed to plan care around the whole family, while American parents of children with cancer felt they
not just the individual child, while recognising that all family had no choice but to trust their physician14. Similarly to
members are recipients of care3. The concept of physical Shields et al.15, concepts of ownership of the child influenced
and emotional safety is explored by Leape et al.4, where all communication between parents and health professionals in
members of the family are deemed to be part of the health this study. Problems with FCC emerged early in the Nordic
care process, not merely visitors to the patient. However, countries, where parents had to use strategies to have their
further commentary and research has demonstrated a lack needs met16.
of evidence about whether or not FCC works, or if it can be
shown to be an effective model of nursing care5, which can In an Iranian hospital11, parents felt they had no choice
accommodate the social and cultural contexts of children’s but to undertake much of the nursing care, and their
lives, along with a child-focused approach. Children’s feelings communication with nurses was suboptimal, while nurses
of wellbeing in hospital are directly related to their capacity felt they had little choice but to delegate both basic and
to feel engaged, and for their needs and their family’s needs complex tasks to parents because of low staffing levels. Poor
to be anticipated and supported6. The literature, and rhetoric, working conditions and staffing levels were found to affect
of FCC seems to have largely neglected how care delivered communication between parents and staff in a Tanzanian
by nurses might be underpinned by ideas and concepts that study17 of an intervention to facilitate parental involvement.
engage children by relating to the cultural and social context This was also influenced by lack of support from hospital
of their lives. FCC has been developed in a cultural and management and perceptions that nurses were of lower
social vacuum; the assumptions and values are portrayed as status than other staff members in the hospital.
socially neutral. FCC, it is assumed, applies to all families, in all
Canadian health professionals18 are concerned about the
cultures and communities
shifting of responsibility of care and care management from
This paper explains the current state of play of FCC as a model staff to parents, similarly to Shields' call for a re-examination
of care, and proposes two models which, if not replacements, of FCC as a model of care8,10. Problems with FCC are not
could possibly provide frameworks for improvements in restricted to paediatric environments and hospitals. Parents in
its implementation. These are cultural safety and ethical a community, non-specialist hospital in Australia19 felt hostility
symmetry. towards the nurses because of their (the parents) perception
Family-centred care of powerlessness when their child was hospitalised, echoing
Throughout the literature, the descriptive nature of FCC Darbyshire’s7 exhortation that FCC is a wonderful ideal, but
has highlighted its philosophical rather than its evidence difficult to implement because the parents feel they are
base, which brings into question its efficacy7-9. Shields10 “parenting in public”, that is, in front of nurses, while the
has supported Darbyshire7 in emphasising that nurses nurses (giving care before parents) feel they are “nursing in
and hospital management need to be aware that FCC is, public”. It is this dilemma which is at the core of the problems
in principle, the optimum ideal, but one that is almost of effective implementation of FCC, a model which, with
impossible to implement, thus indicating the need to review its injunction that the family remain at the core of care for
new ways of delivering care to children. Effective client- children, is, instinctively, necessary.
centred care is essential in order to not only deliver high-
Coyne and Cowley2 have argued in a similar vein that the
quality clinical care but to encourage a partnership approach
social worlds of children, parents and nurses come together
in developing health literacy and self-care skills. While any
in the social world of “the ward”. They also call for more
child-focused health professional might intuitively think that
consideration of cultural and social aspects of nursing
FCC provides such a model, qualitative research over the last
children. In this paper we use the concepts of cultural safety
decade demonstrates that all is not well with it.
and ethical symmetry to do, as Coyne and Cowley suggest2,
Much research is being done in a variety of countries, so and attempt to integrate these concepts with that of FCC.
this cannot be said to be a model that is applicable to only
Western, wealthy nations. However, there is a misconception Cultural safety
held by many in the West, that hospitals in the majority world The concept of cultural safety was first developed by
nations are “very good at FCC, because the parents always Ramsden20, who reviewed the ability of nurses in New
accompany their child to hospital”. It is true that parents and Zealand to deliver improved health outcomes for Maori
family commonly accompany their children to hospital, but people through culturally responsive nursing care. This has
this is most often a necessity rather than a conscious hospital since been expanded by researchers and health practitioners
policy — in countries with few resources and limited nursing who have reviewed the meaning of cultural security in
staff, hospital patients are cared for by their family10,11. differing hospital and community environments worldwide.
That aside, several themes arise from qualitative research It is widely accepted as being an essential component of
about FCC over the last five years, from a range of countries. health services21-24, with developmental steps towards cultural
In the UK and Ireland, reports of parents being punished security needing to be explored prior to incorporation into
when they do not fit nurses’ stereotypes of ‘good’ parental any health environment.

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Cultural awareness is the first step, where health professionals health systems impact on feelings of empowerment or
are able to learn about other cultures and cultural diversity. disempowerment in terms of participation and taking action,
Secondly, an understanding of cultural sensitivity is reached, with dominant cultural practices tending to invalidate the
necessitating reflection on self-knowledge and clinical importance of cultural foundations that support health and
practice. Cultural safety is the highest attainment level and wellbeing26,28. There is, therefore, a demonstrated need for
is based on individuals and families feeling safe in health negotiated, sensitive planning of care with children and
care interactions25. It is the most challenging to achieve families, within frameworks of safe health care practices
and involves respect, trust, negotiation and a partnership which recognise cultural psychosocial impacts and influences.
approach to care21,26. The ability to engage with individuals, Working in partnership with families using highly developed
families and communities is strengthened by reflective communication skills is central to this approach.
practice, recognising personal values, communication styles Exploring the notion of cultural safety in children’s health care
and professional respect. A strengths-based approach is delivery in the hospital environment poses questions around
needed, along with an understanding that achievement of how it is assimilated into models of nursing care. Emerging
cultural awareness, security and safety in clinical environments research about FCC in a range of countries, and reported
is an ongoing process. problems with it10,11,17-19, leads us to question if FCC is designed
Support for the health and wellbeing of children and their to incorporate elements of a social model of health which, in
families is linked with the availability of culturally appropriate turn, includes social determinants and cultural considerations
models of clinical care. The issues of social justice and cultural of health. By implication, FCC needs to accommodate features
consensus in health care delivery are integral to ongoing of culturally secure models of nursing care.
relevance of care in all population sectors, with cultural safety
As a framework of care, cultural safety could provide
and security being integral to positive health outcomes for
engagement with children and their families, facilitating a
individuals, families and communities22,27. This is highlighted
sense of control over their health care provision. Cultural
in the impact of culture on people’s health beliefs, attitudes,
safety acknowledges the experiences of the recipients of
behaviours, motivation and decision making28. Culture also
care, along with the nurses’ personal attitudes to the health
influences the social construction of children, childhoods
care interactions25. Evidence-based models of care based
and parenting29,30; thus cultural safety relates to how nurses
on cultural safety have emerged, incorporating holistic
deliver care to children and their parents. Eckermann et al.31
perspectives of health21,23.
stipulated that cultural conflict can occur when understanding
and decision making are not based on mutually agreed belief Critical examination of FCC in children’s health care is needed,
systems. This is particularly relevant when various population with a view to incorporating a culturally secure paradigm, in
groups consider that the definitions and meanings attributed order to fully engage in the complexities of children’s lives
to health and wellbeing are too narrow or deficient within and the communities in which they live. This will also assist in
their scope of cultural or ecological considerations32. facilitating an appropriately constructed partnership in care.
Cultural safety is viewed as an important health protective
The World Health Organization33 considers the definition of
factor36, which strengthens the debate around the need for
health as being “a state of complete physical, mental and social
cultural competence for health professionals, particularly for
well-being and not merely the absence of disease or infirmity”.
nurses caring for children and their families.
This concept of viewing health beyond a biomedical model is
supported by Talbot and Verrinder26, highlighting the need Organisational support for culturally safe practice is
to consider issues such as power and control, socioeconomic imperative, including capacity building and resourcing
status, ethnicity, gender and the environment. Cultural beliefs for nursing, reviews of polices which identify structural
are central to the meaning of health, and are reflected in the support and resources for policies on social justice strategies,
beliefs of many differing ethnic groups, such as the approach admission and discharge procedures, health promotion,
to achieving health taken by Australian Aboriginal peoples. family support and ethnic liaison. Culturally competent
The National Aboriginal Health Working Party34 describes nurses working with children and their families can create a
health as not just the physical wellbeing of the individual, climate of culturally secure, family-focused care.
but the social, emotional and cultural wellbeing of the Ethical symmetry
whole community, incorporating a whole of life view. Health,
Between cultures, and within cultures, sociologists point
therefore, needs to be understood from a total social model
to the asymmetries which exist in and between societies37.
of health perspectives, accommodating individual, family and
“Asymmetries” refers to how people are treated differently
community belief systems.
in communities; where there is no symmetry in the life
Social determinants of health such as social disadvantage, chances they enjoy, this can be presented as a social
kinship systems, culture and cultural dislocation are integrally gradient. Although health care professionals might aspire
linked to the ability of individuals and families to give meaning to treat everyone equally, and often espouse this aspiration,
to the concept of health, along with their opportunities people are not treated equally and this affects their health37.
to access and make positive contributions to their health Children receiving health care are also subject to these social
outcomes35. asymmetries. To address these asymmetries or inequalities
Risk and protective factors, including physical, behavioural, and to promote more equal treatment of children, it is
psychosocial and cultural domains influence their proposed the concept of ethical symmetry can be applied
health decision making and resilience. Culturally secure to FCC.

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Ethical symmetry is a concept which was proposed as a influenced by the cultures in which they live and to which
response to the ethical complexity of researching with children they are exposed.
by Christensen and Prout38. They noted that new theoretical Most of the assumptions made about children’s abilities
perspectives emerging from the sociology of childhood had are premised on psychological models of development.
changed how researchers understood children’s abilities to However, many of these models have been challenged42 as
participate in research, and in health care, how professionals’ has the concept of a universal developmental psychology29. A
understanding about children as “users” of health care critical stance pertaining to their own assumptions and those
has been influenced by the public, patient involvement expressed by others involved in delivering and receiving care
agenda39 and arguably by the same shifts in the sociology would allow health care workers to focus on the abilities
of childhood40. This new view of children as active social of individual children. By challenging assumptions, a space
agents poses ethical difficulties as much for the researcher can be opened in which practitioners take their cue from
as it does for health care professionals. Christensen and the child, listening and observing the child and adapting
Prout38 recognised that the relationships between children their interventions to suit the individual child. Although this
and adults are changing and developing all the time. Ethical may suggest an individualistic approach, the quote above
symmetry as an approach is then a set of values, or principles from Christensen and Prout38 should be borne in mind. It
upon which to base reflexive practices, not a recipe to be is also useful to consider Christensen’s work on “culture of
followed to the letter. communication”43. Health care workers can take their cue
Christensen and Prout38 draw on the ideas of Bauman41 and from the child and also have a range of strategies which they
apply them to children. Bauman41 suggests a central aspect have developed over time and which have proven useful,
of postmodern ethics is how individuals take responsibility honouring the diversity of children’s communication while
for “the other”, or marginalised groups while Christensen recognising common ways in which children communicate.
and Prout38 suggest children can be seen as an example Secondly, there should be symmetry to the way in which health
of “the other”. Bauman41 makes a distinction between care workers treat children and the way they treat adults.
taking responsibility away from minority groups and taking However, ethical symmetry is not ethical parity; children are
responsibility for such groups, and Christensen and Prout38 not the same as adults. Christensen and Prout38 recognise this
suggest that taking responsibility away from children and suggest that when justifying the differences between the
characterises a paternalistic relationship. Such paternalism treatment of children and that of adults, the social, cultural
is often found in the relationships between health care and political context of children’s lives need to be considered.
professionals and children40. In contrast, taking responsibility This aspect of ethical symmetry has parallels with cultural
for children reflects an ethical symmetry between the sensitivity and safety. Nurses need not only to be sensitive
treatment of adults and that of children. to the cultural context of children’s lives and the meanings
Christensen and Prout38 argue that Bauman’s41 work on of illness, but also take account of the cultural expectation of
“the other” is of particular interest because he points out children, parents, families and communities.
that the other, in this case children, should not be treated A starting question could be: “Would I treat an adult in this
as the same as the majority (adults), nor can one reduce way?” This question applied to clinical situations normally
children to a set of general characteristic, such as age-related gives rise to a number of arguments as to why children
developmental cognitive abilities. Rather Christensen and should be treated differently. However, starting with this
Prout38 suggest that taking responsibility for children involves question can lead to a critical approach which questions
“… entering a dialogue that recognizes commonality but why children are treated differently, and whether ethically
also honours difference.”38, p. 480. Thus, ethical symmetry needs or morally they should be treated differently. Arguing that
to be understood as a contextual, ongoing relationship children should be treated differently may be fully justified.
between practitioners, children and the communities or There are often good physical, social, cultural and political
social networks in which children live. There are two principles reasons for treating children differently to adults. The power
which can guide this ongoing relationship between health difference between children and adults may mean that to
care workers and children. treat children the same as adults could place children at risk
The first requires a critical examination of the assumptions that of harm. For example, health care workers might advise an
health care workers themselves may hold about children and adult with mental health problems which are exacerbated by
childhood. Health care workers, children, their parents and a difficult relationship within their household, to move out. A
other carers will all have views on what being a child means child’s options for moving out of the household may be very
and what children at different ages are capable of; these limited, and the alternatives, such as living on the street, are
views are socially constructed and temporal29. Childhood fraught with danger.
is a part of the structure of communities, but childhood It is less certain that children should be treated differently
also changes over time (temporality). Consequently, for based on cognitive abilities or age-related developmental
health care workers, their own childhood experience will rationale. Again taking the cue from the abilities of children
be different from that of the next generation, who they are rather than having set responses based on age would seem
looking after. They need to understand about how childhood to be a safer approach. The rationale of treating children
is being experienced by children now. This principle could be differently because, say, for argument’s sake, “six-year-olds
compared to the stage in cultural safety of self-awareness (see would not understand” is difficult to defend. Some six-year-
above) as nurses' understanding of children and childhood is olds may be able to understand the concepts very well. If one

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is taking one’s cue from the child the question is “can this child sense and reflection about the ethics of cultural constructs
understand these concepts?”. is required. If a family in a hospital comes from a culture in
The ethical symmetry approach could be used to critically which cannibalism is the norm, it is highly unlikely that such
examine other asymmetries that apply to children living dietary requirements will be respected by the food services
with illness. Similar arguments as those advanced above for department. Or to furnish a less flippant example, female
the asymmetrical treatment of children and adults could be genital mutilation, which is accepted by some societies, but
applied to the symmetry between health and illness, poor not in most, in a family health service, is unacceptable, and
and rich, ethnic minorities and majorities. Assumptions are often illegal, as it violates young women’s rights.
often made by health care workers in these areas too, and For ethical symmetry similar but different dilemmas exist. The
the asymmetrical treatment of children along these lines empowerment of children through the critical approach used
is also socially constructed and to some extent temporal. in ethical symmetry may be seen as desirable by health care
The question “would I treat a well, rich child from the workers, but this view may not be shared by the communities
majority community in this way?” would be as valid. Critically in which children live. Further, it is unclear how health care
examining these reasons for treating children differently and workers who “take responsibility” for children ensure that
the assumptions which inform them would be equally useful. they avoid imposing their own cultural or social values on
Ethical symmetry provides a principled approach to the children and their families. Ethical symmetry focuses on the
critical evaluation of the symmetries and asymmetries of relationship between children and health care workers, what
relationships between children and health care workers. needs further consideration is how this dyad of child–nurse
These relationships do not occur in a social, cultural or relates to other important relationship in children’s lives, such
political vacuum; rather ethical symmetry requires clinicians as those with their parents or other family members.
to engage in the complexities of the lives of children as they None of the approaches discussed in this paper take account
are lived within family and community contexts. of children’s health status. Illness as a factor and its effect on
Conclusion the care of children, the relationships and ethical and moral
dynamics in health care is absent. This would seem to be a
We present here the idea that FCC, while ubiquitous in health
systems around the world, is untested, problematic and may major oversight and one which should be rectified in future
be an ideal too difficult to reach. We question the ethics of work to develop the approaches of cultural safety and ethical
continuing to pursue it as a model of care for children using symmetry.
health services. However, it is difficult to argue that a model While neither cultural safety nor ethical symmetry may be
which has, at its core, the parents and family as the centre replacements for FCC, they are potential adjuncts. It is only
of the child’s life, is possibly flawed, unless we can suggest by implementing and evaluating these approaches will we
viable, appropriate alternatives. These are difficult to find. know which works and which does not. As even FCC itself
Cultural safety, a concept devised by nurses in New Zealand, remains untested by rigorous research, much work has to be
is now widely used across all government entities in New done to devise, evaluate and promote the best way of caring
Zealand. It may provide a way of viewing the family as for children and their families during an encounter with a
a whole during a child’s hospital admission, while at the health service.
same time ensuring that the power relationships within the References
hospital encounter are safe for parents and child, and that
1. Shields L. The delivery of family-centred care in hospitals in Iceland,
their needs — emotional, social and physical — are all met Sweden and England. A Report for the Winston Churchill Memorial
in a fashion that supports them and helps them feel secure. Trust; 2000. [cited 2011 Mar 25]. Available from: http://www.
Ethical symmetry is a concept that sees the child at the centre churchilltrust.com.au/site_media/fellows/Shields_Linda_2000.pdf
of every interaction with health professionals, and similarly 2. Coyne I, Cowley S. Challenging the philosophy of partnership with
parents: A grounded theory study. Int J Nurs Stud. 2007;44(6):893–
to cultural safety, addresses the power relationships inherent
904.
in any health care interaction. By learning to ask questions
3. Shields L, Pratt J, Hunter J. Family-centred care: a review of qualitative
about one’s interactions with children, one can learn to studies. J Clin Nurs. 2006;15(10):1317–1323.
ensure the relationship has a symmetry which will ensure the 4. Leape L, Berwick D, Clancy C, Conway J, Gluck P, Guest J, Lawrence D.
child’s human needs are met. Transforming healthcare: a safety imperative. Qual Saf Health Care.
2009;18(6):424–428.
Both of these models are not without their detractions as
alternatives to FCC. Firstly, any model with a catchy title, be 5. Shields L, Pratt J, Davis L, Hunter J. Family-centred care for children
in hospital. Cochrane Database Syst Rev. 2007;1,CD004811, DOI:
it “family-centred care”, “cultural safety” or “ethical symmetry” 10.1002/14651858.CD004811.pub2.
stands in danger of becoming a sacred cow. Health care
6. Bishop K. Through the eyes of children and young people: The
delivery is awash with such sacred cows, many as untested components of a supportive hospital environment. Neonatal,
as FCC. It would be unwise to replace FCC with something Paediatric and Child Health Nursing Journal. 2010;13(2):17–25.
equally unproven. 7. Darbyshire P. Living with a sick child in hospital: The experiences of
parents and nurses. London: Chapman and Hall; 1994.
Cultural safety has its own inherent problems. Any model 8. Shields L. Editorial: Family-centred care-points to ponder. Neonatal,
buttressed by cultural differences brings into relief the Paediatric and Child Health Nursing Journal. 2010;13(1):1–2.
concept of cultural relativism. Respecting cultural constructs 9. Jolley J. Family-centred care — RIP: An invited commentary.
in all societies is all very well, but a degree of common Neonatal, Paediatric and Child Health Nursing. 2010;13(1):5–6.

Volume 16 Number 2 – July 2013 19


N E ON ATA L , PA ED IAT R IC A ND CH ILD H EALTH NU RSING

10. Shields L. Questioning family centred care. J Clin Nurs. 2010;19:2629– 25. Nguyen HT. Patient centred care. Cultural safety in Indigenous
2638 DOI: 10.1111/j.1365-2702.2010.03214.x health. Aust Fam Physician. 2008;37(12):990–992.
11. Aein F, Alhani F, Mohammadi E, Kazemnejad A, Anoshirvan K. 26. Talbot L, Verrinder G. Promoting health. The primary health care
Parental participation and mismanagement: a qualitative study of approach. 4th ed. Sydney: Elsevier; 2010.
child care in Iran. Nurs Health Sci. 2009;11:221–227. 27. Department of Health, Western Australia. Improving Maternity
12. Coyne IT. Disruption of parent participation: nurses’ strategies to Services: working together across WA. A policy framework. Perth:
manage parents on children’s wards. J Clin Nurs. 2008;17:3150– Health Policy and Clinical Reform; 2007.
3158. 28. McMurray A. Community health and wellness. A sociological
13. Lam LW, Chang AM, Morrisey J. Parents’ experiences of participation approach. 3rd ed. Marrickville NSW: Mosby; 2007.
in the care of hospitalised children: A qualitative study. Int J Nurs 29. James A, Jenks C, Prout A. Theorizing childhood. Cambridge: Polity
Stud. 2006;43:535–45. Press; 1998.
14. Pyke-Grimm KA, Stewart JL, Kelly KP, Degner LF. Parents of children 30. Mayall B. Towards a sociology for childhood: thinking from children’s
with cancer: factors influencing their treatment decision making lives. Birmingham: Open University Press; 2002.
roles. J Pediatric Nurs. 2006;10:350–361. 31. Eckermann A, Dowd T, Chong E, Nixon L, Gray R, Johnson S. Binan
Goonj: Bridging Cultures in Aboriginal Health. 2nd ed. Sydney:
15. Shields L, Kristensson-Hallström I, Kristjánsdóttir G, Hunter J. Who
Elsevier; 2006.
owns the child in hospital? A preliminary discussion. J Adv Nurs.
2003;41:213–222. 32. Naidoo J, Wills J. Health promotion. Foundations for practice 2nd ed.
Edinburgh: Baillière Tindall; 2000.
16. Kristensson-Hallström I, Elander G. Parents’ experience of
hospitalization: different strategies for feeling secure. Pediatric Nurs. 33. World Health Organization. World Health Organization Constitution;
1948. [cited 2011 Mar 25]. Available from: www.who.int/governance/
1997;23:361–376.
eb/who_constitution_en.pdf
17. Manongi RN, Nasuwa FR, Mwangi R, Reyburn H, Poulsen A, Chandler
34. National Aboriginal Health Working Party. A National Aboriginal
CI. Conflicting priorities: evaluation of an intervention to improve
health Strategy. Canberra: National Aboriginal Health Working
nurse parent relationships on a Tanzanian paediatric ward. Hum
Party; 1989.
Resour Health. 2009;7:50. [cited 2011 Mar 25]. Available from: http://
35. Purdie N, Dudgeon P, Walker R, editors. Working together: Aboriginal
www.human-resources-health.com/content/pdf/1478-4491-7-50.
and Torres Strait Islander mental health and wellbeing principles
pdf
and practice. ACT, Australia: Commonwealth of Australia; 2010.
18. MacKean GL, Thurston WE, Scott CM. Bridging the divide between
36. Hetzel D, Page A, Glover J, Tennant S. Inequality in South Australia:
families and health professionals’ perspectives on family-centred
Key determinants of wellbeing. Volume 1: The Evidence. Adelaide:
care. Health Expectations. 2005;8:74–85. Department of Health (SA); 2004.
19. Roden J. The involvement of parents and nurses in the care of 37. Marmot M. Fair society, healthy lives: Marmot Review. London:
acutely ill children in a non-specialist paediatric setting. J Child University College London; 2010.
Health Care. 2005;9:222–240.
38. Christensen P, Prout A. Working with ethical symmetry in social
20. Ramsden I. Teaching and cultural safety. N Z Nurs J. 1992;8(3):21–23. research with children. Childhood 2002;9(4):477–497.
21. Coffin J. Rising to the challenge in Aboriginal health by creating 39. Department of Health, UK. Listening, hearing and responding.
cultural security. Aborig Isl Health Work J. 2007;31(3):22–24. London: The Stationery Office; 2002.
22. Syme V, Browne A. ‘Cultural safety’ and the analysis of health policy 40. Coad J, Shaw K. Is children’s choice in health care rhetoric or reality?
affecting Aboriginal people. Nurse Researcher. 2002;9(3):42–56. A scoping review. J Adv Nurs. 2008;64(4):318–327.
23. Campinha-Bacote J. The process of cultural competence in the 41. Bauman Z. Postmodern Ethics. Oxford: Blackwell; 1993.
delivery of healthcare services: A model of care. J Transcult Nurs. 42. Chandler MJ. Piaget on Piaget. Br J Psychol. 2009;100:225–228.
2002;13(3):181–184. 43. Christensen PH. Children’s participation in ethnographic research:
24. De D, Richardson J. Cultural safety: an introduction. Paediatric Nurs. issues of power and representation. Children and Society.
2008;20(2):39–43. 2004;18(2):165–176.

The call for abstracts is now open.


Key dates:
Now! — Call for abstracts opens
31 January 2013 — Call for abstracts closes
14 March 2013 — Notification of acceptance
SAVE THE DATE 30 June 2013 — Early bird registration closes
ACCYPN Conference 2013; in association with the For more information:
4th International Congress in Paediatric Nursing http://www.accypnconf.com.au

CONNECTING in children and young people's health care


24–27 August 2013, Melbourne Convention & Exhibition Centre
The theme of the ACCYPN Conference is CONNECTING in children and young people’s health care. The conference programme will explore
innovative strategies to promote excellence in children and young people’s nursing across the continuum of care; advance nursing practice
in clinical care, education, management and research using innovation, new technologies and evaluation; and create an international forum
for the exchange of evidence-based practices and solutions among nurse researchers, clinicians, educators, policy makers and managers.

20 Volume 16 Number 2 – July 2013

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