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by
Copyright 2007
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“He, who by understanding, becomes converted to the gospel of service will serve
kindness so that brutality will perish… and he who is strong, will serve the weak that
they may become strong. He will devote his strength not to debasement and defilement
of his weaker fellows, but to making of opportunity for them to make themselves into
men rather than into slaves and beasts.”
“Mountains of Creation” image taken from NASA’s Spitzer Space Telescope of Cassiopeia galaxy’s
star-forming region. Courtesy of NASA/JPL-Caltech/L. Allen (Harvard-Smithsonian CfA)
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Dedication:
In Appreciation
Warmest thanks and appreciation are extended to my family: for the moral support of my
wife, Gloria, and my sister, Marilyn Graham, who provided both valuable writing and
editing assistance for sections of the work. Also, appreciation and thanks go out to
Duane Roy, Executive Director, Southern Colorado Developmental Disabilities, Inc.,
Trinidad, Colorado who has kept me busy for many years now. Appreciation is also
extended to Mrs. Nancy Le Doux, Assistant Director of Citizens for Developmentally
Disabled Persons in Raton, New Mexico, who sent along some fascinating material that
was included.
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Table of Contents
Introduction ……….…………….…….…………………………………………………..9
Introductory Activity: Stargazing & Wishing ………….……..…………………….11
I. Chapter One: Grounding Activities ………………………………………………....12
Introduction ……………………………………………..………………….……….12
A. Finding One’s Own Spots ……….……………………………………....12
B. Finding the Belonging Spots …….……………………………….……....14
C. Do Spots change? ……………….…………………………....…….….…15
D. It Starts with a Crawl……...…….…………………..…………...….…….16
E. How We Walk ………...….….….……………….………………….…….17
F. Making An Impression.…….……..………….…………………………...19
G. Taking a Step…………………….…………..…..………………………. 21
H. Moving from SPOT to SPOT……....………………...…………………...21
I. Moving as Expression …………...…….……..…………………………...22
J. Moving to Delight ………....…….….…………..…………………..…….23
K. Moving to Health …………………..…………………..…………………25
L. Tumbling Along ……...…….……….……..…………………………..…..27
M. The Dance is The Thing ………..…..…………………..…………….……28
N. The Laughing Earth ……………….………….…..……..………………...29
O. Let´s Get Started …………..………………………..………..……………30
P. Planning for the Hurdles………..….……….………..…………..….…….32
Introduction
The book started by asking the question, “What does a person need to make a
home, earn income, and to belong more fully to the community?” This question
led to an exploration of the meaning and realities of making a home, finding one’s
place in the community, and truly belonging. Rather than simply providing answers,
this book seeks to point out pathways to explore where individuals and families
might find their own answers. It will look at ways to grow, ways to be more fully
human, more fully alive to all possibilities.
As appropriate, these activities are at times further divided into those appropriate for
individuals with considerable independent-living skills, versus those requiring
assistance that is more direct, coaching and intervention by others. This is
expressed through headings which note the levels of Able, and Abler. By this
means, the hope is that this book will better meet the needs of a broader array of
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individuals seeking to be more fully alive, more fully at home, and more fully a
member of their community.
While will it will be often recognized that the book’s activities are most
appropriate for individuals with ability to verbalize their experiences, still the focus
remains on providing as full a range of learning experiences with as full an array of
learning modalities as possible. The goals of learning should be set only by the
individual, as it is all too clear that intrinsic motivation is a much more powerful
force than extrinsic motivation. The focus will be on direct, hands-on, applied
experience of the most concrete nature possible. This is clearly the most productive
path to pursue in exploring the community and making a home and income.
Whether you are only beginning the journey or are already making bold strides of
progress, the hope is that you will find this book to be friendly. While you may find
something to inspire you, as well, more than anything else it is hoped that you find
this book offers some fun and enjoyment along the way to growth. Let’s start it all
with a toast, here is to “CHEERS!” and “SALUD!” and have a Good Journey…
Bon Voyage! Buen Viaje!”
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Finding the Big Bear, the Big Dog and the Swan: The purpose of this activity is to
point out some major constellations and to look at interesting relationships between
stars. The purpose is also to encourage the development of a sense of wonder at the
way that pictures may be seen in the heavens. At the conclusion of the exercise, the
instructions will be to encourage each participant to “make a wish on a star about their
life in the coming year.” Participant(s) may choose to make a private, as well as a
public wish, as later they will be encouraged to develop a plan for acting on their wish.
This activity is best used with small groups of three or four per teacher or guide.
Materials Needed: If done in the colder seasons, a blanket, coat or sweater may come
in handy, a pair or multiple pairs of binoculars (70x50 binoculars offers a comparable
less expensive alternative to a beginner’s telescope), a simple star chart (see
www.stardate.org), a flashlight (red paper wrapped around the light end will be less
intrusive) to refer to the star chart, and a notebook with pen or pencil to make note of
wishes or observations.
Directions: The host will want to choose a mutually agreeable evening to meet as a
group. A clear and moonless night is best. You will want to avoid any city lights or
streetlights for the best view of the stars and allow several minutes for the eyes to adjust
fully to the darkness.
Guide each member of the group to locate the Big Bear (Ursa Major), the Big Dog
(Canis Major), and the Big Swan. (Note: in September in the northern hemisphere, Ursa
Major will be located above the northwestern horizon early in the evening. The bottom
of the dipper’s bowl will be parallel to the horizon and the tail will extend upward. The
bowl represents the bear’s hindquarters while the handle of the dipper represents its
tail.) You might tell the class that many different peoples and cultures over the ages
have seen these stars as a bear. For example, some North American tribes in the eastern
Canadian provinces believed that heavenly hunters would try to kill the bear each
autumn. This resulted in the bright colors of autumn and the bright coloring of some
birds. The Big Bear always managed to escape, however, and would return to his den
only to reawaken in the spring from the long winter’s rest. You may also wish to note
how the North Star contained in the dipper’s handle was the star of freedom and hope
for slaves fleeing north, which gave birth to the traditional spiritual song “Follow the
Drinking Gourd”. Explore these questions: “What stars have particular meaning or
importance to you?” “Why is that?” Talk about it and take the time to share star stories.
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Chapter 1
Grounding Activities
Introduction
The process of reaching beyond oneself begins with a sense of security about where
one is at now. In other words, a supportive home base is needed. The process of
venturing out is easily observed in the behavior of toddlers first learning to walk –
only after they assure themselves that they can stand with safety do they risk
launching out. The identification and recognition of these anchors or bases of safety
and strength is the first task at hand. This means that we will want to fully know
and recognize the places we safely enjoy – the places where we feel safe and are
confident in the mastery of tasks and skills that we have learned along the way. We
honor our strengths and then go farther by adding to and building on our strengths.
This chapter is then about pointing out the safe places, or spots, and the support
found there before starting to venture beyond.
This safe spot derives from a successful involvement between one’s own self and
the world at large. You might say that this serves as the ground on which we stand.
The questions to explore then are, “How safe do we feel?” How comfortably do we
stand our ground or place ourselves on it? How well are we connected to our
surroundings and environment? A healthy animal has found a home on earth, has
discovered the part they play, and is connected and in harmony with the
environment. In other words, they have found their spot. Therefore, the starting
point for our journey is with an activity called “finding one’s spot”. All of the
activities in this chapter have a similar objective of assuring that one, in fact, has
safe, favored places to be. One needs to be certain of this and fully aware that there
are such places and that they may be counted on to continue to play an import part
in the future day-to-day life and adventures in growth, as well.
Thoughts and Instructions: This activity attempts to identify the best places for
each participant(s). This may include places in both the home and community, as
well as the wider world. We are going to call these special places, SPOTS. One’s
spots are one’s places, and they are simply the best places to be. They are the
SPOTS where one feels most fully alive, most powerful, and happiest and safest.
Does having SPOTS mean that we might be in some strange way be a bit like a
leopard, or a spotted horse, an Appaloosa, or even a Dalmatian? Sound too strange?
Well, think about it. Explore the following questions with participant(s).
Do all of your spots have a name? Have you found them all? If not, try closing
your eyes and picturing all the places that leave you feeling the best. Say their
names aloud. Talk about them. What are they like? How does it feel to be there? If
you can’t find the right photo or picture, can you draw a picture of the place? Is
there a sign or mark that fits it well? Or, maybe, there is a sound or a texture that
reminds you of it) What is the sound? What is the feeling? Try and say it. Try and
draw it.
How well does the picture or drawing fit for you? Is it just right or does
something need to be changed to make it better? If so, do it. After you have finished
collecting all your spots, arrange them on the poster the way that looks best and
feels
best to you. Make it look just the way you want it. You may want to add a border
or other highlights. You may choose to later frame it and keep it near as a warming
reminder of all the best out there. If you would like, please share your thoughts on
what it is like to have all your spots in one place.
explore the question of importance and meaning and permanent affix the images
chosen.
The purpose of this activity is to find the best spot(s) for each individual involved. The
best spots will be called “the belonging spots.” This is a searching and deciding activity
that leads to making choices that are more permanent. This is expressed in the act of
affixing them to the poster. The importance of the spots is highlighted and the meaning
is further explored.
Thoughts and Instructions: Ask the participants to choose the one “best place to
be” from the several they identified in the first activity. If choosing only one place
is difficult for the individual, ask them to imagine that their best friend has just
pleaded with them to borrow all but one of their picture places to look over at their
leisure at their home. You don’t really know how long your friend will decide to
keep them. Now, which one of the pictures or photos do you choose to keep for
yourself?
After the first decision has been reached, ask the person to place it exactly where
they want it to be. In other words, find the best place for it on the poster, the place
where it really stands out. Then ask them to choose the next best, most important
spot for them. Then have them place that picture on the poster. When all of the
important spots are chosen and arranged, ask them to glue them all on the poster and
arrange less important pictures around them.
Again, you will want to try to make experience as meaningful as possible. Have
each person to point out the reasons for their decisions. Ask them to name the things
about the place that make it important and desirable and the feelings the places
bring out in the person. Continue the sharing experience until each participant has
had an opportunity to verbalize or somehow express the strength and safety felt in
the belonging spot. Talk about how the feelings of power and strength are there for
us inside each time we need them. They help us to have courage we need to take on
new places and try new things in life. You may wish to illustrate further the idea of
power spots by relating how early native people t used their power spots, their
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belonging spots, to renew their energy and recoup their strength. Another suggested
illustration would be that of a plant or vine that if placed in the window will grow
toward the source of light, the source of power, and growth they need.
The purpose of this activity is to guide each individual present toward an active
acceptance of the certainty of change. Introduce the activity by discussing our
common fear of the unknown. In other words, it arouses fear within us when we
don’t know what to expect about a place, or perhaps, even a person. As the future is full
of unknowns, it seems that the best way to lesson the fear of the unknown is by finding
out as much as we can ahead of time. In other words, knowledge is friendly. After all,
we are most fearful about things that we know the least about. This means that if we are
to feel the most at home in our favored SPOT in the future, we need to figure out how it
may change over time, given the way that most things are and the way they change.
Thoughts and Instructions: You might begin this activity by speaking matter-of-
factly about how things have changed in your life over the years. You will want to
use the illustration as a way of pointing out how you change and things change over
time, but at different rates and in different ways. Some things change by growing
and adding on to their size, changing colors as in the seasons, or simply weathering
away from the forces of nature and aging. Learning to accept the things that some
things can’t be changed is part of what it means to be human. However, pointing
out that some things may be changed is equally important. Seen from this view, it
makes good sense to expect that both you and your favorite spot(s) will be changing
over time.
The first question to ask and explore is “How might your favorite spot change
over time?” Try to get as many of the participants involved in the discussion as
possible, while allowing each person the option of not sharing with the group as a
whole, if they so choose. However, offer the option of discussing the matter in
private at a later chosen time. If so, make the arrangements as soon as possible.
Otherwise, record each response on the blackboard or writing pad.
As a follow-up question, ask: “Will the forces of nature and aging affect your
favorite place to be in the future?” You might offer the example that if your
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favorite place is on the top of a nearby hill, that hill is not going to be the exact
same place ten years from now. Explore how that hill is going to look after years of
rain and wind, and possibly ice.
Further explore the question of aging with the person. Ask, “How will aging affect
you, as well as the spot?” For example, if the mall is your favorite place and
spending the day shopping is your favorite activity, then are you going to have the
energy and desire that it takes to go shopping all day five years from now?
Another follow-up question would be “How will your wants and desires affect
it?” Do we always want the same things? Or, do want something new in our lives
from time to time? You may also wish to illustrate this point by pointing out how
one’s favorite spot today may not have been one’s favorite spot last year or five
years ago. Ask the participant to talk about how the personal meaning of the spot
has changed for them over time.
At the end of the activity, group the responses by cutting and pasting. In other
words, use a separate sheet of paper to group similar ideas and concepts. One
grouping per page is suggested with the top of the page labeled by a descriptor. This
will help to point out similarities in thinking and experience between the
participants.
The purpose behind this activity is to both energize the individual or group with a
crawling exercise and to review the fact and provide a reminder all that we all started
out by crawling first.
Thoughts and Instructions: Inform the individual or group that this activity is
designed to serve as a reminder of what it feels like when we were first starting out
in life --- we were all once down on our hands and knees, scuttling along quite
slowly. Remind them that it is where we all started, when we first started growing
and moving. Ask each participant to get down on the floor and try crawling in
different ways, trying to find the “best way to crawl.” After approximately five
minutes of time for experimentation, ask the group, “Just how many different ways
of crawling are there?” “What different speeds are possible?” “What are the limits
with crawling?” With a marker and large writing pad in front of the group, record
each of the answers to the above questions. If the participant(s) is reluctant to
participate, ask them simply to observe you or others doing the crawling and then
repeat the questions to consider all the lessons one might learn from crawling.
Instructions to the Guide or Teacher: Hopefully you will discover ways to have some
fun with this activity. While it offers a chance to celebrate the act of crawling, it also is
helpful in illustrating important points about the nature of progress and change. It may
serve as an important reminder to the individual and serve as a good starting point for
added explorations of movement found in this chapter. By simply pointing out the
differences found in crawling and the individual differences in methods used may produce
very similar results and outcomes.
This activity involves making plaster casts or moldings of the participant’s feet.
The focus is on learning more about the design of the foot and how it works in
supporting the body.
Materials Needed: Plastic bags to cover the feet while in the mold.
A small, plastic child’s swimming pool;
approximately a cubic yard of soil, sand, or clay
(whatever the chosen media might be). A one gallon
plastic bucket. Approximately five pounds of
modeling clay for each participant. An additional
sandbox to be filled with a layer of plaster.
gallon of Plaster of Paris in a one gallon bucket will be required. Gently pour the
mixture into each of the footprints. Allow sufficient time to dry (waiting overnight
is recommended). Subsequent footprints may be made using a variety of media,
e.g., such as by treading on clay and cooking dough or oven-baked clay (for more
information on types of clay available, see http://www.michaels.com/art/). Use the
diagram and information below from Wikipedia to learn and discuss more about the
human foot.
Human beings use their legs and feet for bipedal locomotion, also known as
walking. The structures of the human foot and hand are variations on the same basic
five-digit anatomy; in common with many other vertebrates, (the thumb and big toe
have two phalanges, while the other fingers and toes consist of three). They are also
the most complex, comprising half the bones in the body. The medical specialty
related to treatment of the feet is orthopedic foot and ankle subspecialty.
Footwear
This activity calls for the making of stepping stones, out of clay, plaster, and finally
concrete. While the evenness of the surface makes for a more practical and safe
surface for walking, the emphasis in this activity is upon individualizing and
personalizing the object. It may wind up on the person’s wall rather than being
included in a functional walkway out of doors.
Thoughts and Instructions: For making the clay stepping stones, an approximate
one square foot of one half inch thick slab clay is recommended. The foot squares of
clay are best prepared ahead of time and may be rolled out on wax paper with a
rolling pin with sheets of waxed paper separating the steps. Concerning the plaster
steps, a one-foot square mold of plaster or wood will be needed. The tops of the
steps may be inscribed, marked or personalized in any way the participant chooses.
Perhaps the individual may wish to add objects from nature, e.g., twigs, leaves,
small stones, or the participant(s) may wish to personalize it by embedding objects
of personal significance in the plaster.
Note: The participants will need to wear protective gloves when working with
concrete. Disposable plastic gloves work well, as do aprons and washable, cotton
work clothes.
Thoughts and Instructions: The activity begins with an introduction to the idea of
movement as locomotion; in other words, as the simplest way of getting from point
A to point B. This should be demonstrated visually by having big block letters of A
and B placed on the floor in front of the individual or group and having the
instructor move from one letter to the next. Then each participant will be handed
block letters of A and B and asked to place the letter “A” where they are now, under
their feet, and to place the letter “B” as where they want to be for the next few
minutes taken on the activity. Then have each participant place the letter B
wherever they may choose. Ask for then to move in any way they choose from their
present place to point B safely. They ask each person to label their home as their
typical point A and to identify what their most typical point B may be on each day
of the week. Then talk about all the different ways that are currently available to
them to move each day from Point A to Point B. Then ask and explore the
following questions:
Is walking an option?
Have they learned to drive a car or some type of cycle?
Is there public transportation they might use if they wanted?
What other movement choices do they have and now know how to use?
If the day arrived when they needed to find another way to get from Point
A to Point B, would they know how to do it?
If not, what type of movement do they need to learn more about?
What is the best way of learning what they need to know?
Abler: If interested, sign up for driving instruction classes or seek out a personal
coach to learn to use at least one alternative means of transportation, e.g. bus or
train.
Note: This activity is a simple demonstration of the practical side of movement and
an exploration of options. Depending upon the current needs of the individual, this
activity may be used to start planning for developing options they may need in the
future.
Materials Needed: Flash cards with the words “mad,” “sad,” glad,” and
“scared” printed boldly in block letters; a tape player;
recorded music
Thoughts and Instructions: The full range of emotions will be demonstrated to the
class: 1) anger or being mad could be demonstrated by raising the fists, grimacing of
the face, and stamping the feet; 2) sadness, by showing a drooping face and posture,
slumped shoulders and by wiping an imaginary tear or two; 3) gladness, with a broad
smiling face and arms reaching outwards or upwards; and 4) being scared by cowering
and withdrawing from the room or to a corner of the room. These emotions should be
expressed through pantomime by the guide or teacher without the addition of words and
after the individual(s) are first asked to guess what emotion is being expressed and
shown. The flash card naming the emotion will then be raised to confirm the answer. In
closing, point out how much information is sent simply by movement and without any
words being spoken, and there is more information communicated by movement and
expression and body language than there is through words for all communication.
Note: If the individual or group is receptive to the suggestion, they may choose to
volunteer to demonstrate a wider variety of ways there are to express each of the
emotions identified above as a supplement to the activity.
Abler: Sign up for a series of dance lessons at a local dance studio or purchase a set of
instructional dance videos for any type of dance that you would like to learn about at
home or with friends.
Note: This exercise is meant to be a simple display and celebration of the beauty of
physical movement. While the grace of movement is highlighted, the positive side of all
movement should also be highlighted. Any chosen movements are to be recognized aloud
and further encouraged through praise or applause. If it is in time to the music, then this
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Several studies have shown that the fitness levels of people with developmental
disabilities are significantly lower than the general population. It seems that this
outcome is largely due to a more an inactive lifestyle, regardless of the reason. As a
consequence, there is more likelihood that hypokinetic diseases will develop, such
as high blood pressure. Some experts consider physical inactivity a major health
risk among individuals with developmental disabilities. The following activities are
ways of introducing greater movement and activity in, hopefully, an enjoyable way.
Introduction to T’ai Chi: This activity consists of a set of three exercises that are both
meant to demonstrate a range of motion and to celebrate motion, generally. They are
simply some fundamental movements taken from the Chinese practice of T’ai Chi (tie-
chee). The health benefits of T’ai Chi are fully supported by medical research. T’ai chi
has been shown to reduce high blood pressure, improve balance and prevent falling,
reduce chronic pain, and stimulate the immune system. It is one pathway for building
greater strength, flexibility and coordination.
The form of the movements may be highlighted by turning them into dance movements
accompanied by music of your selection. Point out how good movement and exercise
are for each of us to maintain a healthy life and desired fitness. Note: An alternative
method of instruction is for the instructor to model a range of motion demonstration and
then leading the group in repeating the selected movements and motions in time with
the music. Suggestions for individualizing exercise programs for each participant are
discussed in the final section.
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Thoughts and Instructions: The first exercise consists of having each individual stand
up, as appropriate, and walk forward for ten steps. Ask each to count each step out loud.
Following this, ask each to do it again, but more slowly. Lift your right knee, set your foot
down, “one,” pause; lift your left knee, set your foot down, “two,” pause. Then ask them to
walk even slower. Ask if they noticed the difference in movement? Ask about how their
balance was, as “How slow were you able to go?”
The second exercise will be demonstrated by the instructor with a chalkboard, whiteboard
or writing pad in place. Ask the participants to imagine the same board in front of them.
Reach up and draw a number “1” as big as you can. Then do it again, but this time try to
coordinate your movement with you breathing. Inhale, as you lift your arm. Exhale as you
draw the number “1”. Ask the participants to follow your lead with their imaginary writing
board. Ask them not to stop and to keep going drawing as many numbers between one and
ten as they know. Then ask the group if their arms got tired and what they noticed about
their breathing. Is it quick and shallow or deep and slow? Ask how good their imagination
is? Ask them if they “see” the numbers they were drawing. You might reassure them that
not everyone is able to imagine visual images, so there is no cause for concern if they found
the experience difficult at first.
The third exercise combines the first two exercises. Ask the participant(s) to stand up,
take the T’ai Chi step (lift your knee, set your foot down). Inhale as you lift your arm.
Exhale as you “draw” a number “1”. Take another step. “Draw” a number “2”. Continue
stepping and “drawing” until you reach the number “10” or run out of numbers.
Following the movement period, ask “How did you do?” Ask if it was more difficult
keeping their balance with one foot forward in the stepping position? Ask if they could tell
what adjustments or changes their body was making in trying to help it balanced?
Instructions to the Guide or Teacher: Following completion of the three exercises tell
the group, “Congratulations! You know how to do T’ai Chi!” Doing movement as an art
form involves three parts: Moving your body, moving with your breath and letting your
movements follow your breathing, and doing something with your imagination --- drawing
or painting number shapes in the air. Tell them that as an art form you are able to express
your self, explore your limits, and be creative. Tell them they can individualize these
movements by letting their imaginary chalk travel with them, move between hands, to the
ceiling, to the floor, drawing numbers all around you, standing on one leg as you draw a
number, etc. Suggestions for individualizing an exercise program are found in Chapter 10.
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The Tumbleweed
It ever moves,
And never hurts,
It takes the blasts,
It scoots in spurts.
A wheeling bush,
Just balled up branch,
It trips across
Life’s endless ranch.
In tumbled turns
It lifts away,
To ride the wind,
To coast the way.
A nest of spin,
A rolled up home,
With gift of wind,
A world to roam.
Thoughts and Instructions: After first screening the individual to insure that
there are no health or safety issues involved in learning this activity, the instructor
places the mat in front of the group and demonstrates how by to do a simple
forward roll safely. Then note how tucking into a roll is a relatively safe way to
fall without being hurt. Then demonstrate how the form is exemplified in a
tumbleweed or in a beach ball. Invite only those to wish to participate to try and
copy the forward roll, and the activity leader will assist to ensure the complete
safety of the individual(s).
Abler: If interest is expressed for more tumbling instruction, see the guides
available for teaching beginner tumbling found at http://www.amazon.com and at
http://www.coachinggymnastics.com/ and http://www.humankinetics.com/
This section presents an opportunity for simply movements and keeping time to
the music. The purpose is to show how much enjoyment can be gained from
keeping a musical rhythm or beat.
If problems with keeping to the rhythm continue ask that the participants simply
start with their left foot and take simple steps forward and back as they feel the
beat. The activity leader may wish later to vary the beat for variety and should
first demonstrate before asking others to join. Also, for variety, participants may
be asked, if they choose, to volunteer to play solos, before bringing the other
instruments in for a full chorus of sounds.
This activity seeks to demonstrate the sights and sounds in our lives that make us happy. It
should begin by asking participants to name and describe the places they find especially
happy for them. Ask: “Do you find quiet places or places with movement to be happier?”
Then ask participants to identify what the happy sights and sounds are. They should then
be invited to act out any of the sights and sounds that give them happiness. After all have
had a chance to share, note how many of the sounds are like types of laughter, e.g., the
quacking of ducks. Then ask the group if they have ever heard other sounds in nature that
are like laughter, or possibly other sights that seemed like laughter. For example, flowers
might be described as one way that the earth laughs. To be kept in mind is that the
participants’ viewpoints should be drawn out during the course of this activity and shared to
the degree that it is comfortable.
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The Center for Disease Control has recommended a minimum of 30 minutes a day of
physical activity, preferably every day of the week. This activity is focused on giving each
individual involved some physical activity planning options to design their own basic and
minimum level activity program.
Thoughts and Instructions: First, have each person record their current level of physical
activity with a regular pencil or black marker on the calendar noting the length of time and
type of each activity. Then after adding them together, if the total time is three and one-half
hours or less per week, encourage each person to select one or more of the following
activities, according to their own color coding scheme (or the one provided), and add to
their program until they reach the goal of a total of 3 ½ hours per week.
Make walking trips to the store for needed groceries and household items.
(red)
Carry the groceries from the store and to the home. (pink)
Go on longer weekend hikes to a local park or recreational area. (green)
If you can walk to any daily destinations, do it. (yellow)
Walk regularly with friends (if available, walk through malls during the
winter months) (yellow-green).
Take the stairs at all times instead of the elevator. (dark blue)
Lift light weights (or soup cans if you don't have weights) while watching
television. (purple)
Do a regular exercise video that is not too strenuous. (orange)
Join a health club or community exercise program (light blue)
(Note: The Americans with Disabilities Act (ADA) states that recreational
buildings and programs should be accessible to people with disabilities.
Therefore, health clubs and other fitness centers must offer programs that
are appropriate for people with mental retardation, and they cannot add a
surcharge to that person's fees (unless every person is charged the same
fee).
Two major barriers to improving the fitness levels of persons with developmental
disabilities are motivation and opportunity. (Note: Many adults are not
encouraged by others to join health clubs or to exercise on their own. In addition,
most instructors in health clubs and other fitness programs do not understand how to
develop an appropriate exercise program for unique populations and consequently
are often reluctant to work with them). This is a brainstorming activity for the
purpose of trying to maximize both opportunities and motivation to become
physically active.
Thoughts and Instructions: Divide the board or writing pad vertically down the
middle and on one side note “OPPORTUNITIES” and on the other side note
“WAYS TO ENCOURAGE”. Ask each member of the group to come up with
as many ideas for activity opportunities as possible, and for each idea ask what is
the best way to motivate or encourage people to take advantage of the
opportunities noted. Tell the group that all ideas are welcomed. All ideas will be
listed. At the end of the time allotted, ask the group to pick the best ideas from
each list. Later, provide the information to all members present.
Chapter 2
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Making a Home
Introduction
This chapter looks at the elements that go into making a house feel like Home, the
place one truly belongs. It looks at food choices, food preparation, and
consideration of health and basic safety, as well as money management strategies
and planning needs. It also looks at taking the first steps in making both more and
better connections with others.
The following is a simple verse that celebrates freedom. Making a home is in its
own way a celebration of freedom. Read aloud and note the response. Perhaps
other individual(s) know or have other thoughts or verses about freedom that have
meaning to them that they might wish to share.
Taken from a common practice among early pioneers in North America, a bee was a special
group of neighbors, friends and family that formed for the purpose of getting something
done. For example, neighboring farmers might get together to raise a house or a barn,
harvest crops, or simply to sew warm clothes for the winter. While the practice has largely
disappeared, perhaps it shouldn’t. Perhaps it is time and there is need for the practice to be
renewed. It not only gets important work done, but it also sets the stage for bringing people
together, allows for the sharing of memories and stories and provides a chance to both
form, renew or cement ties and relationships within the community. The purpose for this
activity is to suggest a method for getting an individual and their belongings moved into
their own home and as a good way to start the settling process.
Thoughts and Instructions: Organization and coordination is needed to arrange for the
time, date and location for the selected persons to meet, divide up the tasks at hand, and
finish the task of moving into the home. This may be done informally by selecting and
recruiting the desired participants by telephone, or more formally through written
36
invitations with perhaps the added enticement of offering food and beverages for all
afterwards as both a reward and as a bread-breaking experience to share.
Learning to eat healthy is a need that most of us have. This is a simple educational activity
that allows for information sharing and discussion. After pointing out how it is important
to know all of the ingredients before making something that tastes good, similarly it is
important to know all the ingredients of good nutrition so we will be able to eat properly.
The question posed for discussion is, “What are all the ingredients to eating right?”
Thoughts and Instructions: Posing the question in a relaxed, non-threatening way will
help encourage full participation. Respect all ideas by noting the thoughts of the
participants. Then briefly discuss the six ingredients identified by nutritional authorities:
4. Oils (coded yellow) Advice: Limit solid fats like butter & shortening.
5. Milk and Dairy Products (coded blue) Advice: Go low fat or fat free
6. Meat and Beans (coded violet) Advice: Go lean on protein.
You may wish to refer to the U.S. Agriculture Department website for further
nutritional guidelines and tips for healthy eating (see www.mypyramid.gov) where
the above color-coding is used to provide more in-depth information.
Listening to the Pros. Grocery shopping for healthy foods can be a challenge,
especially if you are on a limited budget. Those who know best, sometimes called the
Pros, are the people you need to talk to learn how to make the most of your money at
the grocery store. This interviewing activity asks the participants to find out from
persons with experience, i.e., The Pros, the ways and means of making the most
from your food budget.
Thoughts and Instructions: The assignment is for each person to pick someone they
know who has experience in making their money stretch at the grocery store. Each person
38
is to interview the chosen person to learn at least three tips for making the most of their
money in shopping at the grocery store. At a follow-up meeting, the interviewers are to
share what they learned with everyone else.
Note: As a means of maximizing the learning from this activity, below is a brief listing of
tips (courtesy of www.extension.uiuc.edu) to compare and contrast the information gained:
Take the time to review newspaper ads, plan meals, and make a shopping
list. This way you are more likely to find the best buys, avoid impulse
purchases and eliminate extra trips for forgotten items.
Read grocery store ads in the newspaper and plan meals around healthy
foods that are on sale.
Clip coupons: by using coupons for coffee, prepared foods, cereals, flour and
flour mix products can save about 10% in most food budgets. (Caution: don’t
use a coupon to justify buying a food that your family doesn’t need or that costs
more than a store brand, even with the coupon savings.
If storage space permits, stock up on sale items used regularly
Note the fact that prices are usually lower in a large supermarket versus
local convenience stores.
Plan the use of leftovers. They can be used in casseroles, soups, and for
snacks or lunch boxes.
Most people learn to cook by joining their Mom or Dad in the kitchen and watching
and imitating what they do. In other words, they learn how to cook by example.
This activity uses this simple learning method to teach basic cooking methods and
skills. There are two steps to the activity: 1. observing the preparation of a simple
meal from start to end (It is suggested than the meal be prepared with fewer than
five ingredients.) and 2. giving the assignment of making a date with someone they
know to repeat the activity and apply the information gained earlier.
Thoughts and Instructions: All cooking utensils, including pots and pans, plus all
ingredients of the dish should be placed out in open view. All cooking items are to be
named and described prior to beginning the cooking activity. Then on a step-by-step basis,
slowly walk through the preparation process for the dish while participant(s) observe the
process. Allow time between each step to answer any questions the individual or group
member might have and repeat the directions for each step and summarize all the preceding
steps after each step is completed. Allow interested learners to participate in the process,
e.g., measuring, stirring, blending, and pouring of ingredients. When finished, share the
results with the participants and enjoy. When giving the assignment of making a cooking
date, the activity leader will try to facilitate the process in whatever way helpful while
leaving the initiative to the student. Have the group members share their experiences with
one another as a follow-up activity.
This activity looks at ways of simplifying the basics of cooking. Many of the ideas
shared in this exercise were drawn from an article by Kathie Snow, entitled “Home,
Sweet Home and Other Friendly, Welcoming Environments” or “Commonsense
Solutions #7 – Self-Sufficiency” available at the website
www.disabilityisnatural.com. This activity may be done individually or in a group
setting.
Thoughts and Instructions: Start by suggesting, “This is the age of fast food and
easy-to-do cooking, so let’s think of all the things we might do to make cooking as
simple as possible. Give me all your ideas and I will list them on the board so we
can share them.” The activity then becomes an exercise in brainstorming and
sharing.
2. Change the kitchen – Think of the changes you can make in the kitchen that
might make the difference between success and failure. For example, a step stool
might help to reach the stove, sink or pantry. An angled mirror behind the stove
can help someone who uses a wheelchair to see what’s bubbling in the pot on the
stove. A toaster oven on the counter is often easier to use than a traditional oven.
Or, cutting boards with a knife holder attached are helpful for persons who have
difficulty with cutting. (Note: Check kitchen stores, specialty stores, and catalogs,
often geared for “Seniors”, for other handy gadgets, appliances and devices.
G. What’s Entertaining?
Sharing a meal together with someone whose company you enjoy is a most pleasing
and bonding experience. This planning activity invites the participants to plan a
special meal that they have learned to cook and invite a friend or acquaintance over
for a special lunch or dinner.
markers.
Thoughts and Instructions: This is a mutual planning activity that starts with the
question: “What is the best way to plan and prepare for inviting a friend over to share a
special meal?” Encourage all participants to contribute to the discussion and honor all
ideas by noting and discussing them. After a step-by-step guide is completed and reviewed,
ask the group for other suggestions on how to make it an enjoyable occasion for all. Note
all these tips also on the board or writing pad. All the steps required and all the tips given
to make it a mutually enjoyable experience in entertaining a guest should be reviewed with
the group at the conclusion. Offer encouragement and support to complete the assigned
activity and to share their success and learning later with the group and others.
The next three activities center on minimizing the possibility of being lost or
misdirected while out in the community and maximizing safety during community
outings.
Movement Level: Minimal in introducing and concluding the exercise;
moderate in carrying out the exercise.
This activity looks at how best to both prepare for and avoid accidents and
misfortunes occurring while on community outings and involves making a
personalized safety kit, i.e., traveling bag.
Materials Needed: A safety kit may take several forms: 1. the size of a
lunch pail, i.e., a small metal or plastic box with a
carrying handle, 2. the size or shape of a briefcase or
small handbag, 3. the form of a backpack or
shoulder bag, or 4. the size of a fanny pack. The size
and shape will vary based on individual needs and
desires.
This activity has two components: 1. developing a safety plan of emergency safety
procedures, including those for fire, flood, power failure, vehicular accident, burglary,
and intruders, and 2. repeated practice and rehearsal of all applicable procedures,
accompanied by photo or video-recording of needed actions. Both activities, but
especially the first planning activity, will profit from the consultation and involvement of
a trusted friend, parent, guardian, significant other, or perhaps service agency resource
manager, program manager, or planning specialist. Step-by-step, simple concrete
procedures should be specified. The length of time required to complete the evacuation of
43
Thoughts and Instructions: While a written record of the plan should be made for
evaluation by concerned professionals or safety consultants, for it to be of most practical
value, the procedures for each type of emergency situation should be both video-recorded
and sequenced by snapshots and made available to the individual for regular viewing and
review.
The purpose of this activity is to promote positive relationships and connections with others
in the community by letting them know that you care about their safety. The activity both
identifies and plans for the best ways and means of best sharing the lessons learned from
the previous activity with others.
Thoughts and Instructions: First, identify the “key” lessons, or most important lessons
learned from the previous activity. Make a list on the board or pad in front of the group.
One example might be the directive, “In case of fire, drop to the floor and crawl away
from any smoke and toward an unblocked emergency exit. If the first planned exit is
blocked, choose the second one.” After a list is prepared, ask each person to identify at
least one person they know with whom they believe it might be helpful to share this new
information in the coming week. (Note: Point out how nearly everyone could profit from
44
reminders of good safety practices during emergencies; and reviewing action steps to take
is helpful to everyone involved, both the giver and sender of the messages.) Doing this
activity is also an opportunity to send the message to someone that you care about their
safety. Then as a homework assignment, have each person make a plan of how, what,
when, and with whom they plan to carry out this activity. As encouragement to follow
through with completing this activity, inform the participants of the plan to talk about the
results of this activity at an appointed time in the future.
Now that we have explored safe travel, it is time to find and explore the special places
most enjoyable to you as a person. This activity involves identifying places that you have
found most enjoyable in the past. It also encourages making plans to explore places in the
community you think you might enjoy getting to know more about.
Thoughts and Instructions: This sharing activity begins with the activity leader
modeling sharing by noting their favorite places that they enjoy the most in the community.
If pictures or photos of the special places are available, it will make the experience more
enjoyable for all participants by sharing them. After taking the lead in sharing favorite
places, ask those present to share their favorite places with the group and note what it is
about the place that makes it special. After everyone has had an opportunity to share, ask
the participants to talk about the places that they would like to know more about or return
to know better. At the end of this round of sharing, have each person make a plan for
visiting at least one of these places in the coming week and then report on the experience at
the next meeting of the group.
Sharing interests and pleasant experiences with others is a good way to build new friends
and new relationships. This activity builds on the experiences described from the previous
activity by having the participants identify common interests with others and then using
this shared interest as a bridge to developing plans for future joint outings and
expeditions. The purpose of the activity is to provide an opportunity for participants to
expand their circle of friends.
Thoughts and Instructions: Before beginning the sharing of experiences of new places
explored in the community from the previous activity, ask each member of the group to
listen carefully to the travel experiences and plans for future community trips and decide
which person in the group has interests in places most similar to their own. The activity
leader should then facilitate the identification of themes of interest expressed. Then assist
participants with the process of pairing off into small groups of two or three participants to
do joint planning for a community trip in the coming week. At the end of allowing
sufficient time for this shared planning activity, e.g., ten to fifteen minutes, ask the
participants to report back on any problems or issues they had while completing this
activity. Allow time for group coaching and problem solving, as needed and requested, at
the close of this activity. On closing, ask that each person bring back at least two souvenirs
from the outing, one which they will want to keep and one which they might like to give to
others.
The purpose of this activity is to provide each participant with a concrete experience of
giving to others after first giving it lots of thought, making a plan, and then following
through with the plan. The objective is to help strengthen relationships with others and to
help teach the value of giving and sharing.
Thoughts and Instructions: First ask the group to share their stories of the joint outing
they took the previous week, but to not mention any souvenir of the trip. On conclusion,
note the feelings that came from simply sharing stories of pleasant experiences with others.
Then compare those feelings with the feelings of sharing “real” gifts, i.e., both giving and
getting tangible gifts. How is it different? How is it similar? Then ask the group to think
about and make a silent plan as to the best way of giving one of their souvenirs from last
week’s trip to another member of the group. Suggest that they will need to consider such
questions as: Should it be wrapped it or not? Should they attach a card, a note, or something
else to the gift? When would it be best and where would it be best to present the gift? What
will they want to say when presenting the gift? After a silent plan has been completed by
each participant, ask each person to complete the gift-giving activity within the next week
and report back to the group about how it went and how it felt.
O. Giving of Yourself
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This activity suggests that you explore the possibility of service to others by doing any
needed peer mentoring or disability-adapted mentoring with people you know. (Refer to
the definitions provided below.)
Peer Mentoring may be defined as doing a type of coaching and support work for a person
close in age to his or her mentee. One may act as a sounding board for ideas and plans and
provide coaching, guidance and assistance in an informal manner.
Thoughts and Instructions: This activity simply involves exploring with the individual or
group the possibility of doing mentoring work with others they know. If interest is
expressed, follow-up assistance may be needed in identifying possible candidates in need of
such a service and perhaps assistance in developing a plan to make the first contact and
assistance, as needed and requested, in defining the relationship expectations.
P. Giving, But Not Planning: Doing Random Acts of Kindness and Senseless
Acts of Beauty
The purpose of this activity is to provide an experience of unplanned giving. The benefits
of both giving and receiving are discussed and an opportunity to perform a kind deed is
provided.
47
Thoughts and Instructions: To introduce this activity, have the participants share their
stories of giving and receiving from the previous week’s activity. How did it go? What did
it feel like? As a bridge to this activity share the Story of the Starfish (see Chapter 6) and
note the different types of giving involved. How are they similar and how are they
different? Ask if they know what nameless or anonymous gifts are? Have they heard about
that before? Do they know anyone who has received a nameless gift? Then ask the
participants to do something for someone or give something to someone in the coming
week without them knowing where the gift or act came from. In other words, ask them to
perform a random act of kindness in the coming week and then report on what happened
and what it felt like at the next group meeting. At the follow-up meeting, give the
participants an opportunity to discuss the experience and the feelings that were derived.
Give the group an opportunity to talk about how planned giving and unplanned giving are
similar and how they are different. (Note: An option in closing, is to mention that helping
professionals have used this activity as a way of helping people who are suffering from
depression, i.e., prolonged sadness in their lives.)
1. Adding a Personal Touch: This set of activities attempts to ensure feelings of being
“settled in” to one’s home by doing things to make it feel more like one’s own home by
doing simple home improvement activities. The first such activity has the objective of
making the home feel more unique and personal.
2. Adding Greenery - A Plant Growing Activity: The purpose of this activity is to help
make the home feel more alive by adding living plants or greenery to the interior. Of
course, if weather permits, this activity could be done outdoors in a selected space, as well.
While plants may be purchased at a store or plant nursery, this activity encourages greater
personalization by having selected seeds to be planted in a pot and nurtured over several
weeks.
Thoughts and Instructions: Encourage each participant to decide what kind of plant they
would like growing in their home and then explore the planting needs depending on the
seeds chosen. Planting directions are often provided directly on the seed packet, but further
research may be needed for other options. Consult with the staff at nurseries, with friends
who have interest and experience with growing plants, an agricultural extension agent or
for information available online, (e.g. http://gardening.about.com or
http://www.thegardenhelper.com/ if questions remain about how to best proceed.
3. What About the Light? The purpose of this activity is to explore the way that the
lighting in our home affects our daily lives. While proper lighting is needed to find the
things we need and do the things we need to, it also affects our feelings and moods.
49
Thoughts and Instructions: Ask the participants if they have ever noticed how much
better they feel when going outside on a sunny day after sitting in a darkened room, perhaps
watching television, for any length of time. Use this example to discuss how the amount
and type of lighting in the home affects not only our daily home-making tasks, but also
affects the way that we feel about things in general. Ask each participant to take notice of
the amount and type of lighting in each room of their home and how it makes them feel.
Then discuss any changes needed to make it better. You may keep the discussion going by
asking,
1. Do you have enough light in your home to find what you need to find
and do what you need to do when you need to do it? and
2. Does the amount and types of light help make your home a bright and
cheerful place to be?
(Note: For further information, see National Association for Visually Handicapped
website: http://www.navh.org/psycheff.html &
http://www.iesna.org/100/PDF/CenturySeries/JohnFlynn.pdf)
4. Colors Count: Colors affect our mood, our appetite, and our energy level. They are
able to bring out specific and sometimes strong responses. This instructional activity looks
at the effects of the colors in our homes and ways to use them to add to our positive
feelings about our home.
Thoughts and Instructions: This activity asks the participants to consider the colors in
their home after talking about the effects of color on our moods and feelings. After a brief
presentation of the informational material, ask “How happy are you with the colors in your
home or do you think that you might want to change or add to the colors?” The follow-up
question would be, “If you would like to make some changes to the colors in your home,
how would you go about making the changes? Use the remainder of the time to problem-
solve and develop ideas around these questions.
50
I. Warm Colors: The red, orange and yellow families are called "warm" colors since
they make us think of heat, fire or sunshine. As a result, they make us feel warm inside.
Red is a powerful color known to increase our blood pressure and heart rate. It may
produce feelings of closeness, energy, and passion. It also stimulates the appetite and is
often used in restaurants. So, it may be a good color to think about using in dining areas.
Orange warms a room but less so than red. It is more friendly and welcoming than a
fiery color and works well in living rooms, family rooms, and may be a good choice for
children’s bedrooms. Yellow grabs our attention and catches the eye like no other color.
In poorly lit entryways and hallways, yellow shows the way. In their bedrooms, elderly
people report that yellow lifts their mood. But bright yellow can be too strong and may
actually cause anxiety in infants, young children and the elderly.
II. Cool Colors: Blues, greens, and violets are considered cool colors because of their
references to country landscapes and ocean vistas. When we look at these colors, they
bring out feelings of peace, tranquility and relaxation. Blue is known to be soothing and
is an ideal bedroom color choice for adults and children. But that same blue that lulls us
to sleep may also reduce our appetites, possibly because there are very few naturally
blue foods. Green is the main color in nature. We are at home with green anywhere in
the house. Light greens work well in baths and living rooms; mid-range greens may add
a nice touch for kitchens and dining rooms. The calming effect of green makes it popular
in hospitals, schools and work settings. Violet is often a favorite color for children, but
many adults may dislike purples. Children's bedrooms and play areas may be good
places to try with this color.
5. Sharing Dreams of Home: This activity offers the individual an opportunity to share
their hopes and dreams for their home and what they would like to see it become. The
objective is to increase the clarity of the directions for growth in the future.
51
This activity involves planning a house warming party, a celebration of the recently
completed home improvements made. On a step-by-step basis, it is meant to give
participants an experience in group planning and problem solving connected with
hosting a party for friends.
Materials Needed: Large flash cards with the words “Who”, “What”,
“When” and “Where” prominently displayed; a large
writing pad and markers.
Thoughts and Instructions: The size of the planning group will depend on the total
number of activity participants. It is advisable that planning groups would best be limited
to no more than five individuals. If 5-10 people are involved with the activity, then the
option of planning two parties at the same time is open. The person hosting the party serves
as the group leader. If a group member has writing skills, you might ask that person to
make notes on plans made by the group for the party. Otherwise, consider tape recording
the meeting. Then start the planning session by asking the “Who” questions. In other
words, who will be hosting the party? Who will be invited to attend? Who is willing to help
the host/hostess to have a successful party? The “What” questions would be, what will the
guests be served as drinks and appetizers or snack items? What food and drink items will be
purchased versus what will be prepared? What decorations or party favors are needed?
What games or shared activities will be chosen? What music will be chosen? What are the
hours or limits to the party? The “When” questions include, when will the party be held?
When will invitations go out? When will the purchases of needed items be made? When
will future meetings and follow-up activities of the group be held? The “Where” questions
the group needs to consider includes, where exactly will the party be held? Where will
future planning meetings be held? After allowing the needed time for each group to answer
these questions, ask the group to summarize their planning efforts so that any missing
questions or actions might be added.
S. Let’s Go Shopping
In either completing plans and arrangements for a party, as suggested in the last activity, or
in meeting the needs for groceries and daily living items, we all need to go shopping at the
store eventually. This activity provides tips for shopping and the basic survival skills
needed.
Thoughts and Instructions: Introduce the activity by identifying the need for shopping
skills. Discuss with the individual or group the need for knowing how to act correctly and
make the best of the experience. Brainstorm for suggestions and list all ideas on the paper
or board. The tips and list of skills below may be used to supplement the information, as
needed.
Suggestions:
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1. Plan ahead - know what you need to buy in advance and have a good idea
about the cost so that you can be prepared for completing the purchase.
2. If it is an unordinary item or is expensive, you will want to ask around and
compare prices to get the best deal for your money. Comparing prices
and getting the best deal makes good sense for all your purchases.
3. On entering the store, greet the owner or attendant by looking at him or
her and simply saying, “Hello.” It is the polite thing to do.
4. Be careful of how you handle things. If you break something, you may be
asked to pay for it.
5. Prices are usually on the bottom of an object or on a tag or label.
6. If unsure, ask, “How much does this cost?”
7. In America, most prices are fixed. In other countries, people bargain for
the price usually.
8. If you remove an item from its place, it is best to put it back the way you
found it.
9. At most times, you will want to be quiet while in the store.
10. Say “thank you” as you leave the store if you do not purchase
something.
11. Make sure you have a receipt for your purchase.
This is a creative music-making and sing-along activity, suggested for use in either indoor
and/or outdoor settings, e.g., following an outdoor picnic in the park. It provides an
opportunity for expression of feelings about home through the media of music and dance.
Thoughts and Instructions: Introduce this activity by saying that songs about
home are found among both animals and humans. Examples from nature might
be those barking sounds that prairie dogs make to warn others when a potential
home intruder comes near or the tail-splashing sounds that beavers make to warn
others of possible enemies. Ancient legend has it that coyotes are said to be
calling out for their home at night with their piercing howls. Among humans,
songs about home are too numerous to count. Ask at this time if any members of
the group would like to share a song they know about home. If no volunteering
results, the leader may wish to start the music makers in keeping a simple beat
while leading the group in the words to any well-known song about home, e.g.,
54
“Home on the Range,” “Country Roads, Take Me Home,” etc. Following this
warm-up, ask any member of the group if they would like to compose a chant
about home. If no volunteering results, the leader might suggest the simple chant:
After repeating the refrain several times, invite the music makers to keep a beat to
the chant. Any simple repetitive refrain or rhyme might be used and only the
imagination might limit the possibilities. Above all, have fun with the activity.
Thoughts and Instructions: Divide the paper into two columns labeled, Good Things
and Bad Things, as a brief summary of the questions, “What are the good things about
having a pet?” and “What are the bad things about having a pet?” After encouraging full
participation, list all ideas presented. If the group members lack experiences with pets,
persons with experience in pet ownership outside of the group might be asked to contribute.
At the conclusion, summarize both columns and then ask about the needs for more
information. The information provided below should also be provided in a brief, summary
form (main elements are underlined). Then suggest that each person look at their own
circumstances and visit more with friends and family for guidance in answering any
remaining questions. (Note: Additional resource information on the proper care of pets and
their health needs are located near the end of Chapter 10, along with information
concerning how to find lost pets.)
Research has shown that heart attack victims who have pets live longer. Even
watching a tank full of tropical fish may lower blood pressure, at least temporarily.
A study of 92 patients hospitalized in coronary care units for angina or heart attack
found that those who owned pets were more likely to be alive a year later than those
who did not. The study found that only 6 percent of patients who owned pets died
within one year compared with 28 percent of those who did not own pets.
Unlike people, with whom our interactions may be quite complex and
unpredictable, animals provide a constant source of comfort and focus for attention.
Animals bring out our nurturing instinct. They also make us feel safe and
unconditionally accepted. We can just be ourselves around our pets.
Bringing a pet into a nursing home or hospital can boost peoples' moods and
enhance their social interaction
A study at UCLA found that dog owners required much less medical care
for stress-induced aches and pains than non-dog owners.
The only thing which matters is that the animal is of interest to you.
However, it is important that the pet you have selected fit your temperament,
living space and lifestyle. Otherwise it will be additional source of stress.
So, look over the pet and see whether it fits well with your needs and space
before you decide to adopt one.
Pets are enjoyable in so many ways. This group activity provides an opportunity for
participants to share their favorite animal and pet stories with others. The purpose is
56
simply one of mutual entertainment and enjoyment by sharing amusing stories. This
activity also helps to break down barriers and it may also be used as an activity to
strengthen relationships.
Thought and Instructions: Each of the photos shown below tells a story about a pet and
provides a good introduction to this activity. Share the first three photos below as examples
of visual pet stories that show how they may overdo things at times. Note how people often
overdo things at times, and pets are no exception. The fourth photo tells a story of unlikely
affection and companionship provided by animals. The fifth photo is a good example of pet
peculiarities, and cats fondness for enclosed, den-like spaces, while the last photo might be
used to illustrate both daring and boldness (on the part of the cat) and restraint and
discipline (on the part of the dogs). After the show-and-tell introduction, allow each person
to tell their own pet or animal story of those involving their friends or family.
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Chapter 3
Community-Making Activities
Introduction:
It is clear from the work of those that study and research these questions that
persons who are idle or who only report housework as an activity are much less
satisfied with their life when compared with those who are active, whether in paid
employment, schooling, and/or volunteer work (see
http://www.nationalrehab.org/website/pubs/vol66no3.html). The question then becomes, how
does one go about becoming active and involved with the community? This chapter
offers an exploration of that question.
Square dancing is not only a way to have fun, but an excellent means of teaching how our
movements affect others in trying to accomplish a basic task or recreational goal. It also
helps establish a sense of community, of partnering with another individual for a common
purpose, of belonging to a group, of sharing common interests and goals. As in the words
of the song, “Life’s a dance, you learn as you go,” one shouldn’t worry about immediate
mastery, as it may take some time. The activity is divided into basic and more advanced
sections. It’s worth a try and is one way to start sharing more in community life. Presented
below are the basic steps in learning to Square Dance.
Right and Left Grand, and Promenade with Partner. These ten moves are divided into two
sessions herein, but the teacher may wish to extend to three sessions. The teacher should
demonstrate each “call” prior to the students practicing the call and should stay with
each movement until it has been understood and accomplished by the students. It is
also suggested that after learning each movement, the teacher will play music and
practice the movement taught, adding all learned movements to the dance that have
been learned at that point.
1st Session:
The teacher will begin by explaining that the students will move to instructions given by
the teacher. This can be done to music so they get the feel of moving to music with
instructions. Students are paired with a member of the opposite sex and four couples are
taught to stand in a square facing the couple across the square. The person next to whom
they are standing is their “partner” for the dance. If necessary, an explanation of “partner”
might be needed. This is their “home” spot for the dance, and will return “home” when
instructed by the teacher. A drawing on a large pad in front of the room can show a square
box and the placement of each couple at each side of the square.
Circle Right and Left: The instructions are to join hands and make a circle. Keeping
hands joined, move to the left completely around the circle until each person gets back
home. Then, again holding hands, move to the right completely around the circle until
getting back home. If this is easily accomplished, add circle left and/or right in single file
until you get back home. This involves turning the body in the direction indicated, and just
walking around the circle, back to home. Once the students get this movement
accomplished, music is added, and the instructions are given several times to assure the
students understand the instructions and find their way back to their “home.” They will also
begin to get the feeling of moving to music with instructions of which way to go.
Forward and Back: With the teacher standing at the front of the room, the persons in the
square must first learn that there are always four couples in the square, and that they each
have a name. The couples with their backs to the teacher and the ones facing the teacher
are called “Heads;” the couples facing each other on the sides of the square are called
“Sides.”
When the teacher is certain the couples know what their names are, and understand that the
teacher will be referring to those names during the lesson, practice can begin with the
teacher telling the Head couples to move forward toward each other to the center, touch
hands, and then back up to their home spot. Then the Sides are told to move forward
toward each other to the center, touch hands, and back up to home. Learning this basic
movement can give them the idea of where their “home” spot is and they will return to this
home spot after each instruction. (An added instruction can be for Head ladies to move
forward and back, Side ladies forward and back. Then instruct Head and Side males to do
the same.) Once the students feel comfortable with this move, the first two lessons can be
put to music for a review of both.
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Dosado (Learning “corners”): The person to the female’s right is her “corner” and the
person to the male’s left is his “corner.” A review of the drawing of the square on a large
easel pad will show each that that person helps form the corner of the box where they are
standing. A Dosado is facing your corner and stepping around that person by passing right
shoulders, then moving back to back, passing left shoulders, and moving backward toward
home.
A person can also Dosado his partner. Face your partner and move around your partner
with right shoulders, back to back, pass left shoulders, and back into your place at home.
Time for practice to music!!
Arm Turns: Face your “corner.” Both persons stick out their left hands and place their
hands on the other’s arm about midway between hand and elbow. Step forward and walk
around a full circle and come back home. (This is called an Allemande Left, but for the
moment, we’re just doing Arm Turns.) Now try it with the right arms, walking around in
a full circle and returning home. Practice this for a few times after demonstration by the
teacher. Once the turns have been accomplished, explain that turning the corner by the left
arm is called an Allemande Left and is one of the main calls in square dancing. After
practice, try with music again.
The teacher might wish to end the first session at this point after practicing everything
learned to music. If the students have tired prior to this point, the session can end
earlier. It is important the students are enjoying the movements and that they
understand the basic moves to this point.
2nd Session:
Prior to beginning the second session instructions, a review of the movements learned
in the first session is necessary. The teacher should have the students “dance” to
music at the beginning, taking time to stop the music and review the formations if
needed.
Right and Left Stars: All males step forward and raise their right arms, touching hands in
the center of the square and walk a full turn to the right – or left – until they return home.
The females then practice the same movements.
Star Promenade: Instead of stopping at home when a full turn has been made by either
sex doing right or left stars, the persons turning in the middle of the square sticks out his
free arm to encircle the waist of the partner and “picks up” his partner as he approaches
home and completes another full circle before returning home. This can be done with
either sex in either direction.
Right and Left Grand: Usually, the beginning of the call is an “Allemande Left.” When
the person is returning to his partner at home, instead of stopping, the female puts out her
right hand to her partner. Her partner pulls the female past him, dropping her hand as she
passes. She then sticks out her left hand to the next male who is walking toward her, and
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he pulls her by with his left hand. The men are moving counter-clockwise while the
females are moving clockwise, passing each other with every other hand until all partners
have moved around the entire circle and has arrived back at home. At this point, the final
movement to be learned is taught.
Promenade with Partner: When arriving home from a Right and Left Grand, the partners
will be facing each other. At this point, the two join both hands, the female turns around in
the same direction as her partner, and they walk together around the circle with hands held
crossed in front until they get back home,
Thoughts and Instructions to the teacher: The accomplishment of learning the above
movements and “calls” can be extremely gratifying to the students. After the sessions, talk
to the students about how it feels to work with the group. Ask them how it feels to know
that others depend on them to do their part of the dance. Ask them how it feels to be part of
the group trying to accomplish a common goal.
Square Dance Basic calls, learned above, to music: Circle left; circle right back home;
all eight move to the center with a yell, and back out again. Dosado your corner;
come back and dosado your partner. Do an Allemande left, and a right and left
grand. Men move to the center to form a left-hand star, pass your partner once, and
on the second time around, pick up your partner and promenade home. Heads move
to the center and back right out. Sides move to the center and back right out. Turn
your corner by the left, turn your partner by the right. Bow to your partner, then
turn and bow to your corner. (The calls can be put together in any manner to fit the
music; the greatest benefit is movement and enjoyment of moving to the music.)
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B. Filling in Blanks
This activity provides some early work exploration activities and may also serve as a first
step in forming a regular work exploration group. It seeks to identify the passions, special
interests, and special people which may serve as starting points in looking at both jobs,
business development and volunteer opportunities in the community.
Thoughts and Instructions: Inform the individual or group that the next three activities
will explore and seek to find answers to fill in any blank spots they may have about how to
go about planning for the future and the paths and directions.
1.Note how being guided by the passions in our life is one way of helping us to make
decisions. One also needs to look at the real and the possible, but those questions will
come later. We will begin with looking closely at what are our interests, hobbies, or types
of work that we each love most to do. Ask, “If I asked you to fill in the blank in the
following sentences, what would you say?”
(Note: Record each person’s answers to these questions.)
2. Note that there may be some truth in the old joke about work, i.e., “Work is fascinating;
I could watch it all day.” In fact, certain jobs and certain people are more interesting for us
than others. Then ask the participants to fill in the blanks for each of the following
questions. (Note: Also record each person’s answers to these questions).
The kind of work that I most love to watch most is _____ (what?)
I also find it fascinating to watch ______ (what?)
I could watch all day whenever I see _____ (who?) doing ___ (what?)
When it comes to television, the type of program I enjoy most is ____?
Then ask and explore these questions: “What do these choices tell you about the work you
should know more about?” “What is the first thing you might do?”
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C. Shadowing a Leader
This activity builds on the previous activity and offers a means of testing and exploring
some earlier thoughts and beliefs.
Thoughts and Instructions: Based upon the possibilities revealed in the previous
activity, a group leader or key support person for each participant in the previous
activity will assist as needed in arranging for an hour shadowing experience. In
other words, make arrangements and confirm in advance permission to make a short
visit to a selected business or worksite. The purpose of this visit is to give the
individual an opportunity to observe and learn, in as non-intrusive a way as
possible, from some member of the community. Ask each person to keep their eyes
and ears open and pick at least one thing about this person’s work and surroundings
that they might wish to share with others on completion of the activity. If a tape
recorder is used, you will need to gain permission for its use in advance from the
manager of the selected site.
This exercise involves a four-step process for building dreams and, in the process,
growing a greater sense of community. Altogether, the steps include:
1. Having a dream and sharing it; 2. Finding the Community Environments Naturally
Supportive of this Dream; 3. Finding the People that may be Naturally Supportive of
this Dream; and 4. Identifying the Resources (materials, equipment and/or tools) critical
to working on the dream? The steps will be addressed individually and this activity must be
done on an individualized basis with two facilitators for each participants needed at times.
The main role of the subject participant is to be as actively involved in guiding and
directing the process as possible. Therefore, stressing self-determination in both goal-
setting and working through these steps will serve to enhance what is meant to be an
empowering experience. (Note: Prior to starting to work on the first step, inform the
participant about the planned dream-sharing activity and inform them that they may invite
anyone they wish to share in the planning process.)
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The goal for this step is to both make the dream as tangible, concrete and well-
detailed as possible, and to have the guests listen closely to its unfolding.
Thoughts and Instructions: As a way of introducing this activity, review the introductory
activity of wishing upon a star and have the participants recall their wish for the coming
year. Talk about how dreams and wishes are alike and ask if their dream or wish for the
coming year might grow to become a dream or wish they might have for their life as a
whole? If not, how are they different? Assist as needed with helping to make the
expressed life dream as concrete, specific and clear as possible. To help achieve this
objective, the leader or facilitator will want to mirror or reflect back to the individual what
was said along with how it was said, i.e., the emotional content of the message. This
method will hopefully yield richer details of the meaning of the dream to the individual.
During the process of sharing the dream, ask someone to act as a recorder of the session.
When the sharing is completed, review the recorded dream with the participant to check on
its accuracy.
Thoughts and Instructions: With the facilitator taking the lead in asking the
open-ended questions noted above and keeping the discussion focused, another
person may be charged with recording all possible answers. The subsequent
follow-up and exploration of possibilities noted may call for the direct
involvement, support and mentoring of either individuals, recreational centers,
or clubs, and community organizations that may be willing and able to provide
at least some needed support and encouragement.
3. Finding the People that may be Naturally Supportive of this Dream. This
step may be completed in conjunction with step #2 as it primarily focuses on a
thorough exploration and brainstorming by all participants present of all
possibilities in the community. The question explored is, “Who are potentially
supportive members of the community?” However, the full answer may only come
to be realized following the active community exploration process following step
#4.
Thoughts and Instructions: This steps tries to find answers to both the question of “Who
needs to understand this dream to help make it a reality?” and “Who are the individuals that
could block the process if they don’t understand the dream?” Once again, a full and
complete listing of all suggestions should be recorded and available to consider during Step
#4.
THE
DREAM
Who needs to
know?
What do I need
to make it
happen?
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This exercise serves the purpose of creating a permanent reminder of the dream explored in
the previous activity, as well as a conversational piece to aid in focusing the individual and
facilitating the process of sharing the dream with others.
Thoughts and Instructions: For safety reasons, do not allow food or drink to be in the
work area. Pre-cut ceramic tiles may be used to ensure greater safety, but at the cost of
project uniqueness. Closely follow each of these steps:
Step One: If it is decided not to use pre-cut ceramic tiles for the project, another option or
larger-sized projects is to wrap a ceramic dish or object in heavy cloth and hit it with a
hammer. A simpler alternative is to use tile nippers, a type of cutting pliers, to custom
make individual pieces. They are very easy to use; simply place the edge of the ceramic
object into the jaws of the nippers and squeeze. It will take repeated practice to get the line
of the cut to go where you want most of the time, so practice at first with discarded pieces.
Use a solid or plywood board as a base. Score the entire surface of the board every one-half
inch or so with crisscross lines with a knife to make a better holding surface for the tiles.
Next, prime the entire surface area of the board with a weak solution of white craft glue
(diluted about one part of glue to four or five parts of water to keep the grout from drying
too quickly). In the center of the board, with a soft leaded pencil, sketch an outline of the
object or symbol of the dream. (Note: The simpler the shape and design of the object, the
easier it is to create in mosaic.)
Step two: With the tile nippers, cut pieces of ceramic to the different sizes and shapes
needed. Here is where the choice of different colored pieces or design shapes will count.
Then use white craft glue or other tile adhesive to stick them on the board. If very small
pieces are being used, you may want to use a pair of tweezers for dipping them into the
glue and getting them properly placed. Consider the use of a border around the edges of the
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board to set off the design. (Note: The flatter the piece of ceramic, the stronger the
bonding will be to the board.)
Step three: After allowing time for the glue to completely dry, use a white cement-based
grout, though many hardware stores will carry grout in a variety of colors. It is a caustic
substance, so you need to wear gloves. Mix the powder with water to a creamy consistency,
then spread it on, making sure that it completely fills all gaps by firmly pressing down with
your fingers. With this step, you need to work as quickly as possible.
Step four: As the grout dries on the surface of the pieces, brush it off with an old
toothbrush. Take care not to dislodge grout from between the assembled pieces. A piece
of fine sandpaper may be used as a substitute. Allow the grout to harden overnight in a cool
area so that it may dry slowly. Go over it with a soft cloth to remove the remaining haze
and dust of grout. You may wish to further protect the surface by adding a clear
polyurethane coating. Finally, attach the mounting screws, connect them with the bag tie
and display prominently.
This activity is designed to serve as a supplement to step #4 above and teaches self-
reliance in managing the tasks and schedules of daily life while pursuing one’s dream. It
organizes the final plan of step #4 on a daily, weekly, and monthly basis to better insure
that the hoped for outcome from the previous activity will, in fact, become a reality.
Thoughts and Instructions: Five steps are needed: The first step is to review carefully the
plan for the individual identified from the previous activity. For the sake of illustration,
assume that the individual’s dream is to work with animals. As a result of Exercise B, a
plan was made with a local veterinarian for volunteer work three days per week as a way of
learning basic animal care and feeding skills. The second step is to chart the work days on a
calendar. For non-readers, small stickers or small images may note the workdays glued on
a home calendar. For the third step, assume that a job description, listing of tasks or
recording was made of the responsibilities involved, this step then looks at sequencing and
organizing the one-step tasks on a daily organizer, and then breaking down tasks involving
multiple steps in a concrete, visual way to teach the sequences involved in completing the
task. When compiling this material, ask:
The fourth step is to then record all the information on 3X5 cards, and depending on the
ability level of the individual, code the cards in either written or pictorial formats. They
may subsequently be attached by Velcro fasteners to sequential objects in the workplace to
aid task learning efforts. Finally, match the task-description cards and task sequences to the
daily and weekly schedules. The individual is encouraged to plan on some enjoyable way
of rewarding himself or herself, especially at first, for a job well done.
(Note: For additional resources to complete these steps, refer to the daily, weekly
organizers and monthly blank calendar available free online at www.do2learn.org or cut
and past suitable images from ClipArt or the internet, for a wealth of examples to choose
from, see http://en.wikipedia.org/wiki/Public_domain_image_resources)
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The following story may serve both as a respite from the detailed work involved with the
last activity, as well as possibly serving as an inspiration for further personal development
and growth.
Thoughts and Instructions: The following story of George serves as a notable example of
the range of possibilities that may develop from undertakings such as the one noted in the
previous activity. It will only require about five minutes of time to simply be read aloud by
the group facilitator or, if possible, by one of the participants present. Provide an
opportunity after its completion to allow those present to discuss their thoughts and feelings
about what happened to George. It is a true story taken from the website of the Tri-
Development Center of Aiken County, South Carolina (see
http://www.aikentdc.org/resources/jobcoach.htm). (It was reported to have first been told
by Lynne Elwell, a disability rights advocate from England, to Elizabeth Barnes, a friend of
the Director, Ralph Courtney, and former Tri-Development Center staff member.)
Lynne promotes by asking individuals with disabilities what they want to do instead
of placing them in jobs determined appropriate by others. On one occasion she
asked a gentleman named George what he would like to be. He had been influenced
by the television show "Upstairs, Downstairs," seen in the United States on the
Public Broadcasting System. George stated that he wanted to be a butler. All
involved were taken aback, but were determined to follow through on assisting him
in achieving his goal. They sent out many letters stating that they had a gentleman
who wished to be a butler and asked if there were any openings or where they might
find training. There were very few responses. All were negative.
When everyone was about to give up, they received a call from Buckingham Palace
(yep, the Queen of England’s residence). While they did not have an opening for
butler, which was described as a highly skilled job, there was an opening for a
footman. The caller stated that an application from George would be welcomed. An
application was made and an interview was granted. George did a great job of
interviewing the interviewers. When asked if he would like to be a footman, his
reply was "No, I want to be a butler."
After considerable discussion, George finally agreed to give the footman role a try.
There were several stipulations. He would have to live at the palace, and he would
receive on-the-job training and lots of supervision. There was to be NO MEDIA
COVERAGE!! An agreement was made.
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George is currently a footman at the palace. This is a true story of a gentleman with
mental retardation who is working toward his dream.
It may be a long and difficult road from the first-step experience of dreaming of what you
would love to do, and how you would love for your life to grow and what you would want
it to become, to the end step of actually making it happen. This visualization activity is
offered as another source of encouragement and support on the road to making one’s dream
happen.
Thoughts and Instructions: A facilitator or guide is required, at least the first time the
exercise is taught. Before beginning, ask each participant to take notice of exactly how
they are feeling at that moment and how much joy and happiness is present at the moment.
After allowing time for each person to complete this step, ask each participant to take
several deep breaths and slowly release the breath each time. Ask that with each breath
taken, the person allows for more and more relaxation. Tell them to simply relax and let go
of all tightness and tension they may be feeling. They are free to close their eyes, if they
would like. Then tell the participant(s) that you are asking them to pretend for a few
moments that the dream for their life has now fully happened. The last piece in the puzzle
of how to make their life turn out as they dreamed it has finally fallen smoothly into place
and the dream of their life is now a reality, i.e. it all happened just as they wished. Tell
them they are to now take all the time they want to enjoy the feelings. To do this fully, ask
the participant to take the time to imagine what the first day of triumph would be like from
morning to night. While imagining a day of dream success, ask them to notice how things
around them look, what sounds are present, what smells are there, and how they feel all
over as they enjoy a full day of dream arrival and a final hard-won victory. Allow sufficient
time for each person to have a full experience. As a minimum, allow ten to fifteen minutes
to complete the activity, but tell them they may open their eyes and return to the present
whenever they wish.
At the conclusion of the period, ask each participant to notice how they feel at the moment
and their level of personal happiness and joy. After noting the likely positive effects, ask
those willing to share what the experience was like and what the best memory of the event
was. Then tell them that whenever they feel discouraged and at risk of losing hope, to
simply repeat the exercise as often as they might need.
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This activity involves developing a personalized resource directory for the individual to
insure better success in community living. There are certain places in the community that
one will need to find when needed You will also need to have answers to questions about
who would help you, if you needed a helper. For example, if you needed to mail a package,
card or letter, would you know where to go? If you were sick and needed to see a doctor,
would you know how to get there? Who would be there to ask for support or assistance?
The objective of this activity is to first identify the important places and people you need to
know how to reach in the community, and then make a plan for doing so. The outcome of
the activity is a portable resource manual.
Thoughts and Instructions: This is a planning activity, and a facilitator or activity leader
is needed to provide guidance. First make a list of all the possible needs that might arise by
asking “what if” questions. For example, what if you needed to mail a package? What if
you were injured or had a health care emergency? While emergency actions were noted in
the safety plan developed in the last chapter, this activity should also consider non-
emergency but important daily living needs, such as shopping for food or clothing or
paying bills. Hopefully, a number of these places and people are easily reached and are
within walking distance. Regardless, a plan for meeting all daily contingency needs is
necessary and should be documented on a simple step-by-step basis.
For abler individuals, some of these tasks may simply be reviewed with the individual to
assure that they know what to do, where to go and how to get there. Also, the tasks may be
reviewed or taught by means of map-reading skills with a community map obtained from
the front of the local phone book, through a chamber of commerce office or online at
www.mapquest.com, or through such sites as:
www.lib.utexas.edu.Libs/PCL/MapCollection. The locations of important places and
important resource people could then be identified, color-coded and numbered on separate
maps, depending on the need identified.
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For persons who might require visual cues, photographs of the locations and steps in the
location process will need to be photographed, sequenced and compiled in the three-ring
binder. The divider tabs need to be color-coded and sequenced by numbers to ease the
location process. For example, a red divider could be used to file fire procedures, a blue tab
used for procedures related to needed medical care, etc. Resources needed should also be
included. For example, if a taxi may be needed, then emergency money should be placed in
an envelope in the book. The vital resource manual should then be permanently located in
an agreed upon place in the home. More than one copy will be needed in the event of loss
or damage to the original copy or in the event of disasters or unforeseen inability to access
the permanent location. This resource should be regularly reviewed and updated to assure
that it is current, valid, and complete.
This is an individualized activity with the objective of providing a trial rehearsal for all the
scenarios identified in the previous activity. Depending on the needs and strengths of the
individual, it could take a number of schedule trips spread out over several days to
complete. An activity guide or facilitating adult will be needed to check the accuracy of the
information in the resource guide.
Thoughts and Instructions: Prepare a summary checklist ahead of time that lists all the
needs previously identified and documented in the binder, as well as each action step noted
for meeting the need. To the right of each need and step, place a blank for the insertion of a
performance rating on, (e.g., very good, okay, needs some improvement, not okay), and
additional space for making comments and suggestions for improvement. After the actual
trial of each item and procedure in the binder, meet with the individual involved to get
their input as to what needs to be done to improve the resource manual. Revise the manual
according to the input received and the evaluation checklist completed. Then test the
changes by another plan rehearsal. Once finalized, it is also recommended that the manual
be shortened by use of the sequencing and color-coding to a pocket-sized edition with the
vital contact numbers entered into a cell phone with a speed dialing option, so only a one-
digit number would need to be pressed to put the individual into immediate contact with the
needed resource.
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The ATM machine is an integral part of our world today. If the goal is to enable the
individual to live independently, learning how the machine works and how it relates to
budgets and money matters is of utmost importance.
Instructions: Depending on the aptitude of the individual, the instructor may need to
begin with explanation of having a bank account in one’s own name. An explanation of
putting one’s money in the bank for safe keeping may be necessary, along with an
explanation of how to access that money when needed. A small session on writing a check
may preface learning about the ATM machine. A field trip to a bank to familiarize the
individuals with the physical aspect of the bank will likely be beneficial. The person
should learn that a “teller” is the person in the bank who will help them with their account,
telling them how much money they have, helping them with their money. At the same
time, the individual and instructor should visit the ATM machine outside the bank for the
purpose of learning how it operates.
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In the classroom, a picture of an ATM machine is posted at the front, with references to
their field visit. The person has by now learned that in order to obtain money from the
machine, the bank will present them with their very own card. At this time, cardboard
cards are distributed. Ask the learner to print their names on the cards, create a series of
numbers for the cards, and learn about the “expiration date”. They are told these are similar
to what the bank will give them to use at the ATM machine.
One additional item is needed before going further: a PIN number. Ask each person to
make up four numbers they wish to be known as their Personal Identification Number
(PIN). They might wish to write it down somewhere and keep it safe, as this will always be
what they need at the machine. It is important that they must tell no one about this number;
but if they lose their number, they can tell the bank teller, who will help them get a new
number. Have each person write their four-letter number on a piece of paper and safely put
it away.
Focus on the picture or model of the ATM machine. Explain how the machine will print
instructions in the window, similar to a TV screen. The machine will ask that they insert
their card in a card-shaped slot on the machine, and then enter their PIN number, hitting
ENTER after doing so. The screen will then ask them if they wish to “Deposit” or
“Withdraw” money. An explanation of Deposit and Withdraw may be necessary at this
point. Once they have indicated they wish to “withdraw” some money, the screen will ask
how much they wish. Provide an explanation of how most machines will only give money
in increments of $10 or $20 – no change or coins. Demonstrate how to enter the amount of
money desired or press an arrow beside the desired amount. Then point out where the
money will come out, and where a piece of paper showing the transaction, and their card
will return. (Make note of how two different procedures may be required for making a
withdrawal: some machines require you to either touch the screen or an arrow button to the
side of the amount of the withdrawal, while others have a keyboard displaying all numbers
from zero to ten available for entering the number of digits for withdrawals. If desiring
smaller amounts of money, you will usually enter only two numbers before the decimal
point followed by two zeroes after the decimal point. Once again, ENTER will be pressed
after the correct amount of the withdrawal flashes on the screen. For making deposits,
deposit envelopes are needed, but these may be completed with any needed assistance prior
to using the machine.
Some explanation may be needed for noting in advance how much money is available to
them for withdrawal at the ATM machine. Some may wish to use the machine only when
the bank is closed on weekends, holidays or after certain hours, while others may prefer to
use the machine at all times for the sake of convenience.
Make a second field trip to the bank’s ATM machine. The instructor will want to allow
each person the opportunity to practice withdrawing and depositing money in an account
which has been set up for this purpose. Permission should be obtained from the bank prior
to arrange for any needed special assistance.
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Thoughts and Instructions: As a follow-up to learning in this session, discuss the use of
ATM machines in general – why they are seen in grocery stores, retail stores, malls, etc.
An explanation may be necessary that each bank has its own ATM machines, and that the
person will need to identify in advance which machines serve their bank. To assess the
learning from this activity, ask the individual to explain to you how they will go about
withdrawing and depositing money when no one else is there. Then ask them to explain the
results of their action of withdrawing or depositing money will be. Based upon the answers,
repeat instructions as needed (Note: See the Supplemental Resources for further money
management skills)
This activity explores two leisure time projects based on community explorations and
outings. The purpose is to collect and preserve good memories and savor favorite places.
Thoughts and Instructions: These activities provide two alternatives for preserving a
season of memories:
1. Over a number of community outings, take along a pad of tracing paper and a small
assorted variety of stick pastels, crayons or charcoal. Place a collected leaf from a favorite
place, ribbed side up, on a flat surface and gently rub on the top of the paper until the leaf
print shows through. (Note: You may also wish to save photos, ticket stubs or other
memorabilia from the outing, as well.) During autumn, after completing several rubbings,
make a second collection of dry, fallen leaves. Crumble up the dry leaves and place them
in bowls. Then mount the chosen rubbings on a framed poster or bulletin board, along with
any photos or memorabilia from favorite places. Fix the rubbings, photos and memorabilia
onto the poster in any order or arrangement desired with the craft glue. Then use a small
brush or cotton swab to spread glue in the margins and along the borders. Sprinkle small
amounts of the dried leaves on top of the glue and, after allowing for drying, shake the
excess leaves off.
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2. More substantial souvenirs, tokens, photos, brochures and memorabilia may also be
collected from outings to favorite places. You may also wish to collect small glass or
ceramic objects from the outings, as well as pebbles or interesting small, flat rocks, if
available and of interest. After a number of items have been collected, arrange the
collection on a framed poster and fix them to the surface with craft glue. You may wish to
add a border of dried leaves or sequins as noted in the first option. As an alternative, you
may repeat the steps in making a mosaic described earlier and permanently mount the
chosen hard flat objects to a board and spread grout in the spaces between the objects.
(Note: refer to earlier exercise, entitled “Dream Sign” for details).
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This activity presents a review of the basic social skills needed for doing well in making
and keeping community relationships. Not “fitting in” or not “getting along” with co-
workers and customers is typically the top-ranked reason given by employers for letting an
employee go. Therefore, social skills are important. They involve basic social norms or
rules and expected behaviors for smooth relations with others. These expectations will vary
from culture to culture and should be adapted accordingly. (Note: These are directed
activities and will require a leader or guide with good basic social skills).
Thoughts and Instructions: There are three phases in this review, and each are
addressed in separate activities:
Before reviewing and discussing each of the nine skills listed below, ask each participant
to pick out which of the skills he/she sees that they may need to practice and work on
more later. It is recommended that this skill review and demonstration activity be divided
into smaller review units, perhaps spread out over two or three sessions of about thirty
minutes each. It is also recommended that these skills be taught in as natural of an
environment as possible. For this reason, use props or accessories that help make the
surroundings as close as possible to the actual environment where the skills will be used.
If possible, the second phase of skill demonstration by the participant and the third phase
of extended practice would hopefully be arranged to be conducted in the actual
environment where it will be used.
1. Getting in the Door: Ask participants about the doors they often enter and those
where they might enter at the same time as others. Talk about what makes for courteous
behavior and the need to apply it. For example, note the unspoken positive messages
received by others by showing courteous behavior. Then review each of the steps below as
general steps to follow:
After reviewing each step and briefly discussing any individual needs or possible
exceptions, ask for a volunteer to assist you with demonstrating the skill to others present
by entering and exiting the door to the room. Several repetitions of the skill are best.
2. Introducing Yourself: First, talk with the participants about the situations they have
been in when they have met someone for the first time and what it was like for them. Note
how the situation and occasion may call for some small changes to the steps below, for
example, depending whether or not your hands may be soiled. Then review each of the
steps listed below and the order in which they are done:
After listing and briefly discussing each step, talk about whether you may wish to wait in
extending your hand if the other person’s hands are full. Then demonstrate the skill by
introducing yourself several times to participants.
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3. Introducing Others: Discuss situations where you need to introduce someone new to
others, and situations in the future where you may need to do this. Then review each of the
steps below and the order in which they are done:
a. Decide who is the most important to you and introduce that person
first. For example, family and close friends would be introduced to
your new friend, co-worker or acquaintance.
b. Stand about an arm’s length between each of the two people you
are introducing.
c. Smile and use a pleasant voice. (It says you enjoy what you are doing.)
d. If possible, use both first and last names.
e. Say, “Mrs. Jackson, I would like to introduce you to my brother, Jeff
Nelson.”
f. Only do the introduction one way; for example, you would not want
to say “Mrs. Jackson, this is my brother, Jeff Nelson. Bro, this is Mrs.
Jackson.”
g. You may wish to give a reason or add a personal compliment with the
introduction. For example, “Mrs. Jackson has been so helpful to me and I
wanted you to meet her.
After reviewing each step and briefly discussing any possible exceptions to the rules for
certain situations, ask for a volunteer to assist you with demonstrating the skill to others
present. Several repetitions of the skill are best.
4. Conversational Skills: In introducing this activity, note how listening well and speaking
clearly are the roots of good conversational skills. Make note that conversation may be
considered an art and that many people would doubtlessly like to find ways of improving
their skills. Then look at the skills of starting, keeping and ending the conversation and
review.
TO START:
a. Look at the person(s) you want to talk with.
b. Use the person’s name.
c. Stand about an arm length away.
d. Wait until a pause in the conversation to begin.
e. Try to add new information with your remarks.
TO KEEP IT GOING:
a. Keep your eyes on the person(s) present and notice their gestures
and facial expressions.
b. You may change topics only when the person(s) is finished speaking
on the subject.
c. If you change the topic, generally you will want to keep it related to
what was said earlier.
d. During the conversation, both ask questions and add information
about the topic. Come alive to the topic by use of gestures and expressed
feelings.
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After reviewing each step and the general flow of the conversation, briefly discuss possible
exceptions which may need to be made in situations identified by participants. Then ask
for two volunteers to assist you with demonstrating the skill to others present. Two or three
repetitions of the process are recommended. Then ask the participants to practice these
skills on their own before the next meeting.
modesty and sharing the credit and the good feelings with deserving
others.
4. Don’t overdo or under do your reply to the compliment. For
example, avoid boasting remarks, such as “Yes, it was a great job, but
then I always do exceptional work.” Also don’t discount the
compliment by disagreeing with it, such as “Thank you, but it really
wasn’t much.”
Demonstrate the skill by having a volunteer compliment you and then model
several appropriate ways of accepting the compliment.
7. Asking a Favor: Introduce this skill by recognizing the need that everyone has
from time to time to ask for a favor from someone. Then ask the participants to
think of times and places where one might need to ask a favor from someone. Then
mention how favors may be reasonable or unreasonable, and to consider this before
asking. In other words, in general we don’t want to ask something that would place
an undue burden on someone else or require a lot of time or money. Then review
each of the following steps.
This skill, and the next one, is less easy to demonstrate directly to others. Show
how the steps are done by using an example, such as promising a group member
that you will mow their lawn while they are gone. Then walk through each of the
above steps. Suggest circling the day of the planned task in green on your calendar
and possibly leaving your mowing gloves on your bedside table on the day the
task is planned as a reminder.
9. Being on Time: Talk about all the times when you need to be sure to be on
time. Discuss what being on time says about you and about the person or persons
with whom you have a commitment to be on time. Also, discuss this skill in light
of the expectations of an employer or a person with whom you might do business.
Review each of the steps below.
As noted before, this skill is difficult to practice in any way other than direct
application. Review of how to read a bus schedule is possible. Many math skill
workbooks have pages with clocks on them as practice to determine departure
times. As a practice assignment: If Maria needs to be at work at 8 a.m., and it will
take her five minutes to walk to the bus stop and twenty-five minutes to ride the
bus, what time should the clock say when she leaves home? To better determine
the degree of skill acquisition or learning, ask each person to keep a record of
each appointment over a week and the time of his or her arrival for the
appointment or work task. A review of the outcomes of this task should be a good
indication of the amount of further needed on this skill.
The facilitator will observe closely as each participant demonstrates each of the skills. To
aid tracking and the provision of prompt corrective feedback, it is recommended that a
short checklist be used (see sample checklist in Chapter 10). The checklist should list each
of the steps for each of the skills and provide space to mark YES or No as to satisfactory
completion of the step. The checklist will also need space provided for comments,
strengths and positives of demonstration, as well as for recommendations for improvement.
Give any corrective feedback immediately following the skill demonstration. It is suggested
that you start the corrective feedback process by first noting at least one strength or positive
about the skill performance. Depending upon time constraints and attention spans, you may
wish to divide each demonstration into two parts. The most important factor is giving
timely corrective feedback and emphasizing the strengths shown in displaying the skill.
Thoughts and Instructions: After all the skills have been demonstrated by all participants,
ask them to report on the skills they noted to need more practice. Ask them to also consider
the skills that may be demanded from them, not only in their current life, but in the hoped-
for environments of the future. All of the following listed methods may be used. They are
all based on modeling, repeated practice in the daily environment, and prompt corrective
feedback, and may be used in providing the needed extended practice:
This activity reviews workplace relationships and offers some common workplace
standards for maintaining appropriate relationships with members of the opposite sex.
Movement: Minimal
Note how workplaces usually have written rules or policies about this potential problem.
Then list and discuss all ideas for basic rules suggested by the individual or group. The
following list of basic rules of conduct may be used to supplement the list, as needed.
central question, “Is there anything that one person in the group is able to do
that others would like to learn?”
Movement Level: Moderate and depending on the skills developed.
Thoughts and Instructions: After all introductions have been made and the purpose of
the meeting explained, begin with asking the individual who is the focus of the session,
“What do you need to learn to do to have a better quality of life in the community? ”
The selected facilitator of the group will record each identified skill or task the individual
identifies. (Note: Three columns at the top of the writing pad should be labeled, “What,”
“Who,” “When and How” to record what skill or task was identified, who in the group was
most able and willing to assist in teaching it, and when and how will it will be done.)
Take full advantage of all members present and enlist the support and commitment to the
plan by the focus individual when designing the “when and how” strategy. Also, decide on
a timeframe for completion of each skill or task, as well as scheduling a specific time to
provide an opportunity to review the plan and make corrections, as needed. On closing,
schedule regular follow-up sessions to evaluate mutual progress, supplement or change the
plan and encourage task completion. Also, specialists or authorities in the skill or task
could be invited to attend special meetings of the support group to do on-site teaching or
advising.
Drawing upon the resources developed from the previous activity, this exercise is intended
to consider directly all the needed tips and best advice for best preparing and succeeding
with a job interview.
Thoughts and Instructions: This exercise should be done with members of the
individual’s peer or support group present to serve as added resources. Introduce the
exercise by asking what previous experience(s) the focus individual has had with job
interviewing. Then explore the experience for the lessons learned and his or her beliefs
about all the parts that go into preparing and carrying through with a good job interview.
Then ask the individual if they would like to do better the next time they have an
opportunity for a job interview. If the answer is “yes,” then continue by drawing attention
to the others present and invite the individual to explore this topic with them. Offer to
serve as a record keeper for the information and then mention that you will also later share
some ideas. If preferred, an audio or videotape made me made of the meeting to allow for
later review and study. (Note: Use the following information as a supplement.)
Supplemental Information:
1. Do your homework: find out as much about the business as possible before the
interview to give yourself confidence, plus to be able to demonstrate your interest in
working there. This also allows for better preparation of questions.
2. You will want to look neat and well groomed. In general, dress as you would for the
job, (Note: Some business managers prefer that you dress up, however);
be sure your clothes are neat, pressed and fit well. (You want to send a message that you
care about your appearance.)
3. Introduce yourself with a confident voice and a firm handshake, look at the
interviewer and address him by his formal name.
4. Wait for the request to be seated.
5. Keep your arms, legs and feet relaxed and uncrossed. If you are wearing a jacket, open
it.
6. Try to sit within body’s length of the interviewer to aid communication, and lean
slightly forward to show your interest in hearing all that is said.
7. Pay attention to the manners of the interviewer and try to keep up and copy them.
For example, if they are speaking rapidly, pick up the pace of your replies.
8. Most interviews begin with, “Tell me about yourself?” So, you will want to be able
ahead of time to briefly describe your qualifications and any related experience, then
close by explaining your reasons for looking at the job in question today.
9. You may be asked to describe your strengths, so prepare two or three key points. Do
not misrepresent the truth, but you are not obliged to “tell all.”
10. If you are interested in working there, show your enthusiasm. A good place to show
your enthusiasm is near the end when the interviewer typically asks if you have any
questions. Ask questions that express your enthusiasm for the job and interest in
working there. For example, ask about the “team” and “future projects.”
11. In general, you don’t want to ask about money near the beginning of the
interview.
12. At the end of the interview, thank the person for the interview; for example, “Thank
you for considering me.”
This exercise provides both an amusing activity, as well as a measure of and concrete
representation of the pattern of community interaction and involvement for each
participants.
Step 1. With a pencil, locate your home on the map with a dot, as well as making
dots for each place you may travel in the community during the week, whether it
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be your place of work, grocery store, park, day program location, homes of
friends or family, or wherever. With the ruler and pencil, connect the dots to and
from each place to your home. With the tracing paper placed over it, trace the
pattern of your routes in the community.
Step 2. If working with the reed, form the reed into a circle and fasten it by
overlapping and bending the two loose ends around the edge of the circle. To
strengthen the circle and prevent it from coming undone, you may tightly wrap
the entire circle with a length of colorful yarn.
Step 3. Lay the hoop over the tracing paper and make points with your pencil or
pen on the inside edges of the hoop.
Step 4. To begin making the dream catcher, "web," tie one end of the twine or
string to the circle you have formed in Step 2. Tie 15 to 20 "hitch knots" (see photo
below) around the ring, spacing them approximately one inch apart and insuring that
a knot is at each dot previously marked on the hoop. Keep the string snug when
going from one knot to the next. It is to this inner ring that the pattern of our life in
the community connects.
Step 5. Then recreate the community web pattern found on the tracing paper by
tying lengths of yarn anchored with hitch knots to and from each point of the
pattern. To end the web, tie a double knot in the twine and cut off any excess.
Step 6. To decorate the web catcher, take about 2 feet of string for attaching beads
and/or feathers as desired. Cut string into 4 equal pieces and thread the beads or tie
the feathers to the ends. Tie these decorated strings to the bottom, sides, and center
of the web catcher. Be sure to attach a hanging loop to the top.
If this activity is done in a group setting, use the finished construction as a starting
point for discussing:
1. How our paths may be similar or different from one another?
2. Are there any shapes or forms created in the web?
3. What does the web tell you about the paths of your life?
Up to this point we have been looking at ways to increase and improve skills and abilities
needed to face and deal with whatever is met. By seriously working on attempts at skill
mastery, you may already have an idea of at least some personal limits. The reality is that
each of us has limits, and there is nothing wrong with that. The important point is to be
able to recognize what they are and when we may need to seek the assistance and support
of others. This activity starts a process of looking at limits by first looking at the limits of
others, i.e. Mary and Bud.
Mary was a young lady who was going places. She had always wanted to do as much
herself as she possibly could. She seemed to take it as a personal failure whenever she had
to accept help from others. She had already finished school and gained good work skills at
the family’s dry cleaning business. After being satisfied for a while with all she had learned
to do on her own, she started to dream about more. She started to think about having her
own place, some place she could call home. She thought that finding the perfect small
apartment was what she needed to do more than anything else. And, after saving her
money and looking all around for the right place, she finally found a cozy little place close
to friends, family and stores for shopping. It even had a grassy neighborhood park nearby
for picnics and walks with friends. Also, it had big windows with a good view of the park
and a big mulberry tree that shaded the windows and kept her apartment cool, even in the
summer. The place met all of her needs and fit within her budget, too. Everything was
right about Mary’s new apartment, except one thing: what was she going to do with the
windows? Mary had found a garage apartment. It was on the second floor and the windows
were constantly getting dirty. She could wash them from the inside okay, but could not
figure out how to clean the outside. And it was on the outside of the windows where all the
red mulberry stains and dirt collected.
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At first, she simply ignored the stained windows and hoped that the problem would go
away. But it didn’t. Before long all she could see from her big windows was big red stain.
Then a friend suggested that she get a special nozzle and try spraying the windows with
high-pressured water mixed with a cleaning solution. That managed to get the dust off the
windows but the red stains remained. Then Mary decided she would simply buy a long
ladder and clean them herself. Well, Mary was also far-sighted and the very first time she
tried, she slipped and fell off the ladder and sprained her ankle. Oh, the hurt! It seemed to
take forever to heal and it left her hobbling around feeling perfectly disgusted. Mary
wanted to do everything herself and be as independent as possible, but what was she going
to do now? Any ideas?
Bud was what you might call a too-good guy. He was simply full of things you might like
about him: he took a lot of pride in his work, he showed up to work every day on time at
the filling station and worked hard – changing tires, changing oil, doing whatever needed
doing at the filling station and doing it before his boss had to tell him what was needed. He
liked to work, it was clear. And, he liked people, too. For instance, once he met you, he
never forgot your name. Just say, “Hey Bud” and his face would break out in one of the
biggest smiles you have ever seen. In fact, almost everyone agreed, Bud was one of the
nicest guys you would ever want to meet. And generous? Bud would give you the shirt off
his back and he always had money to loan…no, he gave it away, and not only to his
friends, but to the regular panhandlers and anyone who might even look like they were
down on their luck. Bud could always spare a dollar a two. Maybe he was too good… that
was what his friends started telling him. For sure, he was too generous.
He was paid in cash every week, because he told his boss that he didn’t want to mess with
the bank. But, within a very short time, he would be broke. Sometimes he would not have
enough money to eat more than peanut butter and jelly sandwiches and, instead of riding
the bus to work, he would be forced to walk. It was a problem, and after saying it wasn’t a
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problem for the longest time, finally Bud got tired of walking to work and tired of peanut
butter and jelly sandwiches. He finally admitted that he needed help in managing his
money. His older brother who came to visit every so often, agreed to make him a budget,
and after paying for necessities, he divided the remainder into daily amounts that were
placed in envelopes with his own special labels: a moon on the envelope meant money for
Monday, two fingers meant money for Tuesday, a picture of a wind gust meant money for
Wednesday and so on. The problem was that before long, Bud was carrying two or three
envelopes of money every day and before long, he was back where he started: walking to
work and eating peanut butter and jelly sandwiches. What was he going to do now, he
asked himself? Any ideas?
Materials Needed: Mary and Bud’s stories (above), a large writing pad
and markers.
Thoughts and Instructions: Read one or both of the above stories as a way of introducing
the topic of limits. Following the reading, involve the individual or group in exploring ideas
for solving Mary’s window problem, or Bud’s money problem and the common need to
recognize limits. Ask the group to be specific in helping Mary or Bud, find the right words
to use when asking for help from others. (Note: this will allow the leader to assess the
group’s need to work on this skill.)
Following the discussion of limits, ask, “What are your limits?” As a way of modeling,
the activity leader may also wish to share one of his/her recognized limits. From this point,
note each limitation on the writing board and encourage full participation.
This activity has a purpose of dealing with limits and considering whether natural or formal
supports may be the type of support needed. It also seeks to show how the supports
identified might be used together to give us increased choices and greater control.
“Support” is a term for the assistance we may require to maintain or increase our
independence in the community. Hopefully, the support received will be flexible and able
to change with time and as the circumstances of our lives change. It is often said that there
are two kinds of support:
1. natural supports (the supports available from people we know or deal with
presently in our surroundings), and
2. formal supports (supports perhaps available from professionals and trained
persons, perhaps unknown to us at the present).
Thoughts and Instructions: Beforehand, ask the participants to consider who they might
wish to invite to participate in this activity with them, i.e., family, friends, or other
important people they trust. This activity should be done as a follow-up to the previous
exercise which identified the limits and boundaries to the abilities we have.
After noting and discussing the difference between natural and formal supports, work with
one individual at a time and add these two columns to the right of the list. Then take one
limit at a time and ask, “Is there someone you already know or your family knows that
may be able to assist you with this?” Ask them to consider not only family, and friends,
but also neighbors and other caring people throughout the community whose support might
be enlisted. As an aid to further planning and program development, you will want to
formalize the results of this activity and provide it to each individual involved. Depending
on your role, level of responsibility, and commitment to the individual, you may wish to
provide follow-up after this activity has been completed to check and problem-solve
concerning acquiring the needed supports.
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Chapter 4
Chapter Introduction
All relationships are based on mutual trust. This is an activity that seeks to build on both
fundamental empathy and trust in others. It allows the individual to experience a different
outlook and another point of view through reliance on the guidance of another person. This
activity has been referred to as a Trust Walk, as it provides an experience in learning of
one’s world solely through the sense of touch and trust in others.
Thoughts and Instructions: The most important planning factor is to insure that a safe
environment is provided. All pathways will need to be unobstructed, level surfaces. This
activity requires at least two people, one of whom may serve as the leader. A time limit is
suggested, which will depend on the number of objects assembled. Participants are told
that trust is something that usually builds slowly in all relationships over a period of time
and in a process of give and take. However, trust always begins with a first step. The
purpose of this activity is to provide that first step. Those of us who are sighted have
become dependent on seeing our world for us to understand it. This activity will give you a
chance to know better what the world is like for persons without vision. Each of you will
take turns being blindfolded and led by another person. They will provide you an
opportunity to touch and feel a variety of objects. See if you can guess what each item is
without lifting your blindfold. When everyone if finished, discuss what the experience was
like, the discoveries made about the world of touch, plus what it was like to depend on a
guide. Ask them how their feelings or the strength of their feelings toward the guide were
changed by the activity.
This is a discussion activity with the purpose of clarifying and better identifying
the kind of friend we wish to make. Also, the activity provides an opportunity to
consider what we mean when we say that we would like to make a new friend?
Thoughts and Instructions: This is a simple sharing activity and will be most meaningful
when shared with others in a small group setting. Someone is needed to lead the activity
and to keep the discussion focused on the topic. First, ask the group to discuss the things
about friends that they have had in the past that made them a friend. Were there any special
qualities or traits that you really liked and valued in them? How important was it for you to
have things in common? Note all the ideas shared under the heading of “likes”. Also, ask
the group to note any “dislikes” or qualities and traits that it would be best to avoid in
making new friends. List all likes and dislikes on the writing pad or board.
This activity looks at some of the challenges involved in making new friends. It
looks at identifying the best places to find new friends and offers suggestions for
taking the first steps.
Thoughts and Instructions: This is preferably a small group activity and will
require a leader to facilitate the discussion, keep it on track, record the ideas shared,
as well as demonstrate suggestions for taking the step of “joining in”. Start the
discussion by asking, “Today we are going to look at the things you might do to
increase the chance of making a new friend. Keeping in mind the kind of friends
you want to make that we have already talked about, where do you think the best
places would be to start meeting these types of people?” After each person
identifies one or two “best places to start,” follow-up by asking, “Now, what do you
need to do?” Ask each person to be as specific as possible in describing actions to
take and words to say. Record all of these ideas and suggestions, also. Give the
group the option of role-playing and rehearsing their ideas and suggestions, if they
so choose. After all ideas have been reviewed, tell them that you would like to
share some thoughts on the matter and make some more suggestions which may be
helpful.
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Suggestions to Share:
1. Start at a place that will be of common interest. For example, if you enjoy jogging,
think about the jogging track at a local park.
2. Know enough about the person beforehand to know that they will not be a possible
danger to you. For example, the person may be known through other friends, neighbors
or members of your family. Or, they may be well known in the community and have a
known reputation that is common knowledge.
3. Make eye contact, use a pleasant voice and state your common interest; for
example, “Hi! I’m Mike. I see you like jogging as much as I do.”
4. Listen closely to the answer. Does the person readily agree?
5. Ask permission to join in the activity. For example, “Is it ok if I jog along
with you?”
6. Think of positive things to say that might help you both to enjoy the occasion more. For
example, “These new shoes make running so much easier for me.”
7. Set a time to see the person again or suggest a way you can connect again. For example,
“I try to jog every other day, so I hope to see you the day after tomorrow.”
This activity both illustrates and explores ways of using the strategy of “having a friend by
being a friend” and acting friendly.
Thoughts and Instructions: This activity may be done on either an individual or small
group basis. Some guidance with the activity may prove helpful. Start by asking if they
have heard the common expression that “the best way to have a friend is to be a friend.”
Tell the individual that this advice seems to make good sense and, at least, is worth a try.
Then ask the person to think about the opportunities he/she may have in the coming week
to put this advice to the test. Offer to assist them with planning this opportunity, if that
might be helpful to them. If they agree, consider the ideas in terms of how safe, doable,
and effective the actions might be. If not, simply try to gain a commitment from the
individual to put this advice into action at least once in the coming week, and report back
on the results. Help the individual change the plan if the first attempt fails to meet with
success.
We have all had questions about how deeply someone should be trusted. When making
new friendships and relations, the question is sure to arise sooner or later. This exercise
uses an onion to illustrate the idea about layers of trust. In other words, the tender secrets at
the core of the onion are protected by many layers of tougher skin. The lesson is that
trusting deeply should only come after trusting persons with smaller secrets and seeing if
the confidence is kept and the trust is deserved or not.
Materials Needed: An apple and a large sweet onion; knife and cutting
board; wet paper towels.
Thoughts and Instructions: This is primarily a demonstration activity that tries to make
something complex appear more concrete and understandable. Start by identifying the
need for knowing how far one person may trust another. Explain that each person has
private things that he/she does not wish to share with all others as they may be either
embarrassing to us or may needlessly hurt someone else’s feelings. We call these things
“secrets”. This closely kept information may be thought of as a tender core that each of us
has. Then note how nature also protects itself by keeping the tender seeds of its fruit at the
very center.
Slice the apple in half and note how the tender seeds are in the very center of the apple.
Then slice the onion in half and show the participant(s) the many protective layers. Note
that the onion may serve to show us a way of growing relationships through layers. In other
words, if there are secrets in the core that need to be kept, the best way of knowing they are
safe is by only slowly peeling away the less tender layers. Suggest that there is an onion
method of knowing how much to reveal of oneself to others. For example, one may reveal
minor possibly embarrassing things to others (the outer layers) as a way of knowing if they
can reveal much deeper secrets. If small secrets are shared with someone and a period of
time is given to see if the information is kept confidential, then this gives us a way to better
know that the person is worthy of sharing the more personal, deeper secrets at the core.
F. Friendship-Keeping Skills
This activity simply looks at the actions and behaviors that are helpful for keeping
the friends that one makes. It asks the participant to identify key factors in making
friendships last and to carry out one deed, i.e. making a card, which might be helpful
in promoting the friendship.
Thoughts and Instructions: This activity is most effective when used in a small group
with a leader or facilitator. The support or peer group earlier formed may be used in
conducting this activity. Start by identifying the need to work on making friendships last
and the hazards that come with taking people for granted. Point out how it is helpful to
know the key factors in making friendships last and that this activity will give all a chance
to point out these factors. Brainstorm and record all ideas shared by the individuals. After
everyone has had a chance to contribute to the discussion, inform the participants that you
would like to share some ideas. Consider the following supplemental suggestions and use
as may be needed.
Supplemental suggestions:
1. Keep the secrets that are shared between you.
2. Be honest.
3. Don’t gossip or spread rumors about a friend.
4. Show respect; for example, keep commitments and introduce other people
to the friend when the opportunity arises.
5. Be a good listener.
6. Don’t put your friend in danger or tempt them to do something illegal.
7. Be willing to forgive mistakes and misunderstandings.
8. Share common interests.
9. Now and then, express appreciation for the friendship.
Abler: This same activity may be done online with a computer. For exploring the
possibilities of this alternative, see personalized, free online cards, as well as card-making
software available at http://www.mycardmaker.com/mycardmaker-fun.html and
http://www.allcrafts.net/cards.htm or http://www.making-greeting-cards.com/
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This is a role-playing activity that asks the participants to show their friendship-keeping
skills by enacting a typical conversation between friends over the telephone. It provides an
opportunity to make the ideas shared in the last three activities more concrete and practical
as well as providing an opportunity to provide any feedback that may be helpful. It also
provides concrete examples of friendly conversations for others that may be less confident
of their abilities.
Space Requirements: Room for comfortable seating and space for role
play enactments, about two square yards.
Thoughts and Instructions: This activity is best done in a small group setting with a
leader or facilitator present. Briefly review the key factors for keeping friendships
previously identified as a way of introducing this activity. Then talk about how helpful it
is to have practical ideas about how these ideas work and are practiced. In other words,
what do friends sound like? Then ask for two volunteers for a role-play using the
telephones provided. If they are not already friends, ask them to pretend that they are good
friends. Set the stage for the conversation by suggesting that it is evening and that they are
simply chatting with each other over the phone for five to ten minutes. If suggestions are
needed, suggest that they are simply chatting about how their day went and what their plans
for the weekend are.
At the end of the role-play, ask the other participants to comment on the conversation. Ask
them to first point out something positive before giving any suggestions about ways of
improving. Apply the supplemental suggestions from the previous activity as criteria for
further evaluating the conversation. For example, were they good listeners? Did they show
respect for one another? Were they honest with one another? Did they show their
appreciation of each other? Repeat the role-play several times, if possible.
The purpose of this exercise is to review the basics of good listening skills, primarily as a
key factor in keeping friendships, but also for its value and need for relationship
development in daily living. An opportunity to practice and make improvements with this
skill is provided.
Materials Needed: The session may be recorded for later reference and
repeat instruction. Also, a blackboard, whiteboard
or writing with markers will be needed.
Thoughts and Instructions: This is primarily a small group activity but may be applied
with as few as two persons present, in addition to a leader or facilitator. Introduce this
activity by noting that each of us probably spends as much time using our listening skills as
any other kind of relationship skill. However, also note that many people in our society are
not very good listeners. This conclusion is supported by the number of professional people
who have found work simply due to their advanced skills in being a good listener. Like all
other skills, practice is needed to do it well.
Note that while many may think of listening as a passive skill, in fact, it is an active, two-
way skill that requires a speaker, or sender of messages, and a listener, or receiver of
messages. To be sure that the correct message was received, feedback is required, i.e., a
brief restatement in your own words of both what was said and how it was said, including
the tone of voice and body language. Giving feedback assures that the message was
properly understood. However, it would be awkward and time-consuming to provide
feedback each time something was said, so save it for messages you want to be sure were
correctly received. Ask the participants to list all the things that they believe are important
for being a good listener. List them on the board or pad. Then add the following
supplemental tips as needed.
Supplemental Information:
1. Good listening takes both your ears and eyes. Give your full attention to the
person who is speaking. Don’t look out the window or keep an eye on the TV
if you really want to understand what is being said. If you are facing the
person, squarely face the person so you don’t miss any body language involved
with the message.
2. Stay focused. It is easy to let your mind wander if you think you know
what the person is going to say, but you may be wrong to assume that.
3. Let the speaker finish and don’t interrupt. It is a sign of not listening and a
degree of disrespect to interrupt.
4. Fully listen. Don’t rehearse your reply in your head ahead of time. Thinking
is about four times faster than speaking, so don’t worry about the time needed
to reply.
5. Listen for the main idea. It will sometime be emphasized by such statements
as, “The point is… ” or “What I’m trying to say is …”
6. Ask questions if you are unsure of what was said.
7. Give feedback. In addition to restating what was said, but in your own
words, you can also give feedback with your face through a smile, frown,
laugh or silence.
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After reviewing all tips and suggestions and supplementing them as needed, ask the
participants to pair off with another person for a listening activity. Suggest that they
position their chairs facing one another and about the distance of an arm length between
them. Have them take turns being either mainly the speaker or mainly the listener for five
minutes time. The assignment is for the speaker to express both his/her thoughts and
feelings about the community in which they live while the listener tries to
understand both.
At the end of the five minutes, the listener is to summarize both the thoughts and feelings of
the speaker. Have them check for the accuracy of their listening. Then reverse roles and
repeat the exercise. After everyone has finished practicing both roles, ask the group to
discuss what they learned about their listening ability from the exercise.
(Note: An option at the end is to make special note of how the body language of the listener
has an affect. For example, ask how the speaker might feel if they observed the listener
slouched or leaning back in their chair versus facing and slightly leaning forward with
their upper body.)
This activity serves as review of the basic friendship and social skills and
provides an opportunity for additional practice through the use of role-play.
Thoughts and Instructions: This is a small group activity and will require a leader or
facilitator. Have the participants seated in a circle. If there are more than ten persons
involved with the activity, divide the group into groups of five or six each. Write the
following skills on the board or paper.
Beginning a conversation
Accepting a compliment
Asking a favor
Joining in
Introducing yourself
Ending a conversation
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Inform the group that this activity is an opportunity for them to review and practice each of
the friendship skills noted. Ask for a volunteer to begin and ask that person to do the first
thing on the list, the next person to their right will do the next skill and so on. Continue
with the exercise until all of the skills have been role-played.
As surely as night follows day, each of us must learn to deal with conflicts. This exercise
provides a basic lesson in the skill of conflict resolution. While some people view conflict
as completely negative, it should be noted that it also offers an opportunity for making both
the individual and the relationship stronger.
Thoughts and Instructions: This is a small group activity, but may be done with as few
as two persons present, as well as a leader, guide or facilitator. First, discuss the times in
the past when the participant has had a conflict with someone that needed to be ended or
resolved. Talk about how ending a relationship with someone because of a conflict may
not always be possible and is likely to be very costly personally. As a better choice, note
how there is a better way of handling conflicts. Then review and discuss each of the
following steps of this better way as you write them on the paper or board and briefly
demonstrate:
6. Make peace. Make an agreement and keep your word. Answer the
WHO, WHAT, WHEN and HOW questions. Make it clear who will
do what, when will they do it, and for how long? You may also choose
to add agreed-upon consequences if either person breaks the agreement.
After each of the six steps has been reviewed, put them all together by asking
for a volunteer to role-play a conflict with you in order to model all the steps in
resolution. (Suggested Role Play: Pretend that you are patiently waiting at the
end of a cafeteria line when the other person cuts in front of you. At first you
threaten to call the manager and have the person evicted, but you resolve the
problem by not doing so after the other person agrees to wait behind you in
line.) In closing, recommend that each participant try to use these skills with any
conflict that may arise in the coming week. Of course, don’t attempt to create
conflicts to practice these skills.
This is a follow-up activity meant to build on the previous activity. The purpose
is to provide an opportunity to review conflict resolution skills and explore further
how they may be applied in daily settings.
Thoughts and Instructions: Start by reviewing each of the six steps of problem
resolution and ask the participants if they have any additional questions after they
have had to think about them and try them out. Clarify according to the needs of the
group. Then ask if anyone would like to share with the group his/her experience
with putting the skills into practice. Carefully listen to the stories shared. Provide
encouragement and praise for the attempt, regardless of the outcome. Also, ask
the individual to identify how they followed, or perhaps failed to follow, the steps of
the skill. Ask them to recommend any changes or things they might do differently
on any future occasions. Provide coaching and assistance only as requested. In
closing, again encourage participants to keep applying what they learned, and
follow up accordingly.
The following small group game provides for additional practice in the application of
conflict resolution skills. It introduces some advanced conflict resolution skills and is most
appropriate for those with advanced skills and abilities. However, some adaptations made
be made to make it more appropriate for a wider range of participants.
Thoughts and Instructions: This is a small group activity that will require at least four
participants, two on each team. The leader or facilitator may also serve in the role of the
judge of the contest.
Start by dividing the group into two teams, one for each side of the conflict being resolved.
Any topical area with conflicting views in the community, such as issues about
protecting the environment may be chosen. As an alternative, the following suggestion may
be used: “You witnessed a neighbor mistreating her child and reported the mistreatment to
authorities. While your complaint was kept confidential at first, the matter is now going to
court and you have been told that your testimony is needed. Your family encourages you
not to get further involved as the neighbor has a reputation for violence in the community
and they are concerned about your safety; but you believe that you have an obligation as a
citizen to testify.” One team has the role of arguing your family’s beliefs, and the other has
the role of supporting your opposing views.
The conflict may or not be scored for purposes of judging the results. The group makes the
decision. If scoring is used, the judge will score the conflict resolution exercise by awarding
a point to each team based on how well they did the following:
In arriving at a count of total points for each team the Judge may deduct points for any of
the following: name-calling, put-downs, blaming or insisting that the other person is wrong,
use of threatening language, interrupting, or straying from the topic.
M. Safe Relations
This is an information-sharing activity that seeks to define both safe and unsafe
dating practices. Examples and stories are provided for enacting safe responses.
The participants will be asked to supply their own lists of “do’s and don’ts.”
Space Requirements: Room for comfortable seating and for role plays
demonstrating safe responses.
Thoughts and Instructions: Have the participants discuss ideas for safe dating
practices as they might apply to both men and women. List them on the board or
writing chart. Then ask participants to indicate which of the following might be
considered to be safe or unsafe actions for either male and/or female members of
the community. Ask for the reason for their belief.
Next, have the individual or group express their own rules for safe dating. Consider
the viewpoint of both the male and female participants. Then ask for opinions
concerning these suggested safety rules and whether they might apply:
1. Invite new friends or dates home only when someone else will be
there;
2. Go on double dates or with groups when first dating someone new;
3. Meet new friends or dates in public places;
4. Know and set sexual limits before going on a date;
5. Say “No” to unwanted behaviors from your date or friend;
6. Never believe that you need to pay back a favor or a good time with
sex.
Thoughts and Instructions: For the purpose of providing a rounded picture of married
life, this activity may be done on an individual or small group basis. It provides for the
sharing of experiences of both the realities and demands of marriage and family life by
those who have experiences they would like to share. As appropriate and desired by the
individual or group, friends, family, guardians and support persons may be invited to
both attend and actively participate by sharing their experiences. If difficulties are
experienced in making arrangements for attendance, consideration should be given to
do taped interviews with selected persons with the questions posed in advance by the
participant(s). Typical questions to consider are:
1. If you could reduce all you have learned about the demands of married life
to a single paragraph, what would it be?
2. What is the best advice you could give to a couple thinking about marriage
in their future?
3. What are the three most important things for a couple to talk about and
consider before making plans for marriage?
Upon completing the first part of the activity, acknowledge that we all face teasing to
greater or lesser degrees - and it clearly makes for a bumpy ride on occasion. Learning how
to deal with it is important so that we may understand the lesson it teaches that keeps its
damage to a minimum. Strangely enough, teasing is much like a coin: it has two sides and
serves at least two purposes. In its mild form, when usually both parties are involved, it is
basically a form of rough play. It may also used at times as a sign of closeness and
acceptance by others, showing friendliness and a way of even expressing affection. In other
words, sometimes it is okay, accepted and positive. However, it can have purposes of harm
by putting people down and trying to frighten them through harassment. On those
occasions, the teasing may mushroom into violence and abuse. If you are faced with this
last form of teasing, your responses might include the following:
1. If you are sure that the purpose is to put you down, assertively ask the
person to stop. If it then stops, later thank the person. If it continues, move
away from them and ignore the person. Many teasers quickly give up
when they find they have no audience; but beware, at first the teaser may
try even harder to get a response out of another person, so it's important to
hold your ground and not respond.
2. If you are unsure of the purpose, ask. You might say, “I really don’t know
if this your way of being friendly, or simply cruel? Which is it?”
3. Another option, if you are clear that there is a negative purpose, is to give
a quick response that will throw a teaser off track. It is important, however,
that it not be in the form of teasing back or name-calling. You might try, "I
know you're trying to upset me, and it's not going to work.”
4. Prevention: Think about what is happening and what you are doing before the
teasing starts. Is it possible you are doing or saying something that might in
some way invite or encourage teasing? If so, make changes to prevent it in
the future.
When thinking about relationships with others, and special relationships with others,
it is important to remember what is right to be expected. One thing to be expected
in a relationship is that our personal rights will be respected by others. This activity
seeks to define and discuss those rights. (The following abuse awareness activities
were adapted from the Escape Curriculum developed through the Decision-making
Training Initiative of the Center for Opportunities and Outcomes for People with
Disabilities of the Teachers College, Colombia University, see
oopd@Colombia.edu.)
1. To be safe. (No one will threaten you, bully you, or hurt you.)
2. To be treated with respect and dignity at all times. (No one will insult
you or try to hurt you by teasing)
3. To say “No” to things you do not want. (No one will force you.)
4. To be listened to. (Your opinions will be considered.)
5. To tell someone to stop if you do not like something.
6. To be free from and protected against abuse.
7. To make your own decisions about things that matter to you.
8. To change things which make you unhappy in your life.
9. To have needed help and support from others.
10. As much as possible, to be in control of what happens in your life.
11. To make decisions so that things can change for the better.
12. To speak up for yourself, i.e., to be assertive.
13. To act in your best interest – to do what works for you.
14. To be yourself.
This activity seeks to define physical abuse and, hopefully, provide a greater understanding
of it. It is an important concept to teach and several repetitions, illustrations and word
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Thoughts and Instructions: This activity may be done individually or in small group
settings. A leader or facilitator will be needed. The group may be separated by gender and
this is especially appropriate for the later activity that addresses sexual abuse. Begin by
stating that abuse is something everyone needs to know about and, as much as we may wish
to deny and pretend that it doesn’t happen, people with learning disabilities may be subject
to abuse. Also, there are different ways that people can be abused. We need to know the
different ways so we can know if and when they happen and can do the right thing to put an
end to it. The leader should ask, “Do you know what physical abuse is?
Make and review the following key points at the end of the discussion:
1. It is abuse no matter if it is actual or a threat to harm another’s body.
2. It is abuse when someone hits or kicks you.
3. It is abuse when someone hurts your body physically.
Write “PHYSICAL ABUSE” on the board or writing chart along with the
key words, “hurting your body,” next to it and then show the above picture.
Below the two words write, “What can people do that would be hurting
your body?”
Then ask, “Can you think of some other things people could do that would be
physical abuse? Take ideas from the individual or group and list on the chart but
assure that the following examples are included:
a. pushing,
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b. shoving,
c. throwing things at someone to hurt them,
d. making threats to hurt or kill someone,
e. choking,
f. pulling hair,
g. beating you up,
h. hitting,
i. slapping,
j. twisting arms.
Then ask, “Who may abuse?” Take ideas and list them. Then explain that while
we may wish that it would never happen, nearly everyone at sometime may abuse,
even:
* The people that work with you, in other words, “staff” may abuse.
* Sometimes people with learning disabilities abuse other people with
learning disabilities.
* Sometimes even friends and families abuse people.
On concluding, review the key points made above. To assess learning, first ask
each participant to name a type of physical abuse. Then ask each person to name
one of the above examples, varying the presentation with non-examples such as a
pat on the back or a handshake, and ask each participant if it is an example of a
type of abuse. Then ask each person what are the key words to know what abuse
is? Repeat the instruction until each person knows the key words and can provide
examples.
This activity seeks to provide a clear definition of verbal abuse and, hopefully, an
understanding of the concept. It is an important concept to teach; and several
repetitions, illustrations, and word enactments may be needed. Also, post-activity
assessment of the level of learning acquired is strongly recommended.
Discuss with the individual or group and then summarize the discussion by
making and reviewing the following points:
Then write VERBAL ABUSE on the writing pad with the key words “talking
mean” to the side next to it. Make note of the illustration.
Write on the paper: “What can someone do to you that would be verbal
abuse?”
Explain, that for instance, cursing at you would be verbal abuse (list it on the paper)
and then ask, “Can you think of some other things people could do that would
be verbal abuse?”
It is recommended that the bold items be added to the list, i.e., yelling, cursing,
putting someone down (e.g., says that you are stupid), and calling names. List
each response from the group but other possibilities include:
a. Saying shut up loudly
b. Disrespecting – not listening or responding to a person; putting someone down in
front of other people, saying bad things about the person
c. Making fun of a person’s disability or calling names to make someone look weak
or incapable, like slow or stupid,
d. Blaming
e. Making fun of the way you look or dress
On concluding, review the key points made above. To assess learning, first ask
each participant to name a type of verbal abuse. Then ask them to name one of
the above examples, varying the presentation with non-examples, such as a
nickname or an appropriate use of a term of endearment, and then ask each
participant if it is an example of a type of abuse. Then ask each person what are
the key words to know what verbal abuse is? Repeat the instruction until each
person knows the key words and can provide examples.
S. Knowing About Sexual Abuse --- This activity provides a definition of sexual
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This activity defines sexual abuse and discusses the concept. Again, it is an important
concept to learn and several repetitions, illustrations, and word enactments may be needed.
Again, post-activity assessment of learning is recommended. A follow-up assessment
activity is provided following this activity to help with this process. Due to the nature of the
content and the need for privacy, this activity should be done in separate male and female
groups. (The same movement level, space requirements and materials as above are
indicated.)
To begin, assist in establishing the rules, or agreed upon ways of acting, for the group.
Some of the group rules might include:
Overview of Information: Next provide an overview that identifies the need to know
about sexual abuse. Use the framework presented below.
Abuse is when:
• Someone hurts someone (or tries to hurt someone);
• It leaves you scared of being hurt again. They don’t feel good about
themselves.
• Abuse can happen to anyone.
• Abuse can happen once or it can happen over and over again over a
period of time.
• No one should be hurt physically. No one should have their feelings
intentionally hurt, be made fun of or called names. No one should be
hurt sexually.
• It can be difficult to know what to do.
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Our group will focus on keeping abuse from happening in the future. We won’t talk much
about what has happened in the past. If you need to talk to someone about what happened
in the past, I will be glad to help you see your counselor, social worker, or someone you
completely trust. If you don’t want to now, you can talk to me after the session, I will help
you contact a social worker.
If we are going to stop abuse, we need to know what it is and how to make good decisions.
Ask, “What is Sexual Abuse?” (Make note of the words on the paper) Summarize and
discuss, then make and review the following points:
Write “SEXUAL ABUSE” on the paper and next to it the key words “forcing sex.” Note
the illustration below and explain the example:
Then discuss two other words that could be used to talk about sexual abuse:
Next discuss and make note of the answers on the chart paper: “What can people do to
you that would be sexual abuse?” For example, if someone touched your private parts in
a way that you do not like, that would be sexual abuse. Then list “touching private parts.”
Then ask, “What are some other things people can do to you that is sexual abuse?” List
the answers on the chart paper and be sure to include the bold items below:
Thoughts and Instructions: This evaluation is best done on an individual basis to assure
that close one-on-one attention is given to the process which will involve a teacher or
leader. (The following is a series of vignettes taken from the ESCAPE Curriculum in the
Center for Opportunities and Outcomes at Colombia Teachers College (see
http://www.tc.columbia.edu/centers/oopd/projects.html) Read through each of the vignettes
and repeat the information, as needed.
First ask, is this an example of abuse? Then, if yes, ask for the type of abuse involved.
(The answers are in italics following each question). These questions are for female
groups, but they may be adapted for a male audience. At the end of the evaluation, review
the correct and incorrect responses with the individual and review the reasons for each
correct decision. The outcome will provide a reasonable measure of how much additional
instruction will be needed.
1. Jessica lives at home with her grandmother. Whenever Jessica makes a mistake, her
grandmother hits her with a ruler. (Yes, Physical Abuse)
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2. Nancy works at a store packing boxes. Nancy’s co-workers are upset with her because
she is working slowly. The store manager tells Nancy to try to work faster and not take too
many breaks. (No)
3. Joanna lives with her mother. Everyday Joanna’s mother calls her “stupid” and other
mean names until she begins to cry. (Yes, Verbal Abuse)
4. One day Theresa bought a Coke from the vending machine. Joe, her co-worker came up
from behind her while she was buying her Coke and grabbed her bottom and told her that
he wanted to see her naked. (Yes, Sexual Abuse)
5. When Lisa’s brother comes to visit Lisa, he gives her a big hug and says, “I missed
you.” (No)
6. Today at work, Lucy did not know how to use the computer. Instead of helping her out,
her coworkers pointed and laughed at her. (Yes, Verbal Abuse)
7. Jane lives with her husband, Pete. Sometimes when she gets home, Pete has been
drinking and is drunk. When Jane tries to talk to him, Pete gets angry. He tells her to shut
up and hits her with the bottle. (Yes, Physical Abuse)
8. Karen works all day at her program. Sometimes Karen makes mistakes. When Karen
makes mistakes, her boss comes over and screams at her and calls her stupid. (Yes, Verbal
Abuse)
9. Kathy and her friend Dan hang out together a lot. Sometimes when they are alone; Dan
pulls down his pants and asks Kathy to touch his private parts. (Yes, Sexual Abuse)
10. Mary and Alice are co-workers and were carrying boxes at work. By mistake Marie
drops a box on Alice’s foot. Alice screams “Ouch” in pain. (No)
11. Tammy’s cousin Fred wanted her to follow him outside to show her something gross.
When Tammy refused, Fred grabbed her arm and tried to force her out the door. (Yes,
Physical Abuse)
12. Samantha works with Ken at the workshop. One day Ken trapped Samantha against the
wall. He put his hand on her chest and grabbed her. He told her it would be their secret
and threatened to harm her if she told. (Yes, Sexual Abuse)
13. Mike and Alice have been coworkers at the workshop for many years. Whenever they
see each other, Mike gives Alice a big pat on the shoulder. (No)
14. One day, Christine and her brother Matt were talking. Matt got mad at Christine for
talking too much, so he picked up a bat and tried to hit Christine with the bat. (Yes,
Physical Abuse)
15. Leah comes into her program every morning. One morning Michael, who works with
her, said, “Hey, dummy” (Yes, Verbal Abuse)
(illustrations from http://www.aamr.org/Reading_Room/pdf/AbuseWaleseasyformat.pdf)
This activity discusses and defines the nature of healthy relationships of all kinds.
The follow-up exercise contrasts them with unhealthy or abusive relationships so
that the difference is more easily understood.
Thoughts and Instructions: This activity may be done in either a small group or on an
individual basis with a teacher or leader. First write “Healthy Relationships” on the
writing pad and talk about “What are healthy relationships?” Write the responses on the
paper. Then write, “BOTH WANT”. In other words, both want to be friends and close to
each other. If it is a healthy sexual relationship, they both choose to have sexual contact.
Then write, “SAFE”. In other words, there is no physical danger. They don’t hurt each
other physically, and there is no name-calling or put-downs. When two people depend on
each other and get help from each other and know they won’t hurt each other, there is
“TRUST”. Then write, “RESPECT.” Explain by saying when two people have a healthy
and safe relationship, they are nice to each other, polite, and they respect each other’s
rights. They respect the right for privacy, the right to be safe, the right to change decisions,
the right to practice safe sex and use condoms, and they respect the right to use birth
control, if that is their choice. There can be healthy, safe relationships with different
people: with boyfriends or husbands, with friends, with family members, with coworkers.
Next, let’s look at the opposite, unhealthy or abusive relationships. Write, “ABUSIVE
RELATIONSHIPS” on the chart and to the side write, “PEOPLE GET HURT”.
Because there is danger, it may be unsafe. There is no trust or respect in abusive
relationships. Write, “DANGER, UNSAFE, NO TRUST, NO RESPECT”. Also, note
that abusive relationships can also happen when a group of people puts the person in danger
of abuse.
Then write SEXUAL, PHYSICAL, AND VERBAL ABUSE on the chart paper and note
that abusive/unhealthy relationships include one or all of the three types of abuse. People
who abuse are called abusers or batterers. They force you do things you do not want to
do. They try different things to try to force you to do things. Sometimes they may make
you promise to keep a secret. They force you to do things by making you feel guilty; for
example, “You made me do this because you wanted to.” They force you to do things by
threatening to hurt you; for example, “If you tell anyone, I’ll hurt you.” Or, they force you
to do things by promising gifts or money; for example, “I’ll buy you your favorite music or
pay you money if you have sex with me.”
At the end of the session, review each of the major points above and answer all questions
with as many concrete examples as possible.
V. Stopping Abuse
This activity emphasizes what must be done to stop abuse and notes the steps to be
taken in deciding and reporting abuse.
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To make a good decision we must think through the decision carefully. The
four main steps are:
1. Deciding if there is a problem and how you feel? If you think it might
be abuse, ask yourself what type of abuse would this be?
2. Think about all the choices you have. Ask yourself, “What are the
choices?”
3. Know what will happen with each choice and decide if the choice meets
your goals. Ask, “What will happen if ….?”
4. Decide which choice is best for you and make a decision. Eliminate the
choices that do not meet your goals. Select the best choice that meets
your goals.
Before ending this chapter, information on the important subject of neglect will be
shared. While it is sometimes difficult to illustrate neglect, perhaps the illustration
below will be helpful to use in conjunction with the explanations provided.
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Thoughts and Instructions: Explain that the law concerning neglect (DD Act:
61 Fed. Reg. 51155-56, to be codified at 42 CFR 1386.19) says that "Neglect", as
applies to community services agencies, refers to “a negligent act or omission by
an individual responsible for providing services in a facility rendering care or
treatment which caused, or may have caused, injury to an individual served or
which placed an individual at risk of injury, and includes an act or omission such
as the failure to carry out an appropriate individual program plan or treatment
plan, failure to provide adequate nutrition, clothing or health care or the failure to
provide a safe environment.” Explain how neglect refers to something not done
by a caretaker, and the person that employs them, to make sure a person is
adequately fed and clothed, and to provide services to meet their needs and
protect them from injury. In other words, it is not a mean action, but it is not
doing the right or needed action. As human beings, we have a right not to be
treated with neglect. We must let other important people know when this occurs so
that is does not continue.
Provide examples to illustrate these points and then have the person(s) present
discuss what the word means to them, and how they would know neglect if they
saw it or heard it. Then ask them to rehearse the steps they would take to end
neglect if it should occur to them or someone they know. List the steps noted above
for making the decision to act, and then note the action steps to report neglect.
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Chapter 5
Stories of Courage
Introduction:
The dictionary informs us that courage may be defined as, “The attitude of facing and
dealing with anything recognized as difficult or painful, instead of withdrawing from
it.” It also refers to holding onto convictions; having the courage of one’s convictions
means to do what one thinks is right. With that in mind, let’s look at some examples of
courage.
The following stories are told for use as both examples for the related activities
which follow and as a stimulus for further discussions around the meaning and need
for courage. Additionally, the stories are based on actual persons known to the
author and serve as short tributes to three common, but extraordinary people who
embodied courage in their daily lives.
Thoughts and Instructions: The topic may be introduced by first discussing the meaning
of courage for each person present. Each person might also be asked to give a specific
example based upon person(s) they have known or from events in their lives where they
believe courage was shown.
Alberto’s Story
Alberto is getting older. He walks with a cane now, though he waves it around freely when
pointing out directions to others. And, he doesn’t walk as sprightly or lively as might be
remembered from even a few years back. But he walks… nearly everywhere, from one end
of town to the other. I should say that he walks everywhere except when he catches the
bus near his apartment to work out on the edge of town, Monday through Friday, every day
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of the week, every week of the year, rain or shine. He is quite proud of his staying power.
It’s too far to walk and be on time, or he would no doubt walk there. After all, he has
aluminum to weigh, floors to sweep, customers to meet and greet --- sometimes cheerfully,
sometimes with a grumble if they distract him from what’s at hand. But he loves his work,
almost as much as he loves the small town where he has lived all of his years. It would be
safe to say that Alberto would rather be at work than be on vacation. For instance, he loves
his work clothes, his khaki overalls and ball cap with the insignias, buttons and colorful
pins that he readily doffs each time he passes a church. And he doesn’t just pass on by,
often he will go inside.
He loves what he wears so much, he wears them everyday, even weekends and holidays ---
when he is at work and when he is off work. And, over the years, there have many times
when many people have encouraged him to go on excursions or visit distant family in
distant places, but Alberto doesn’t go on trips. He doesn’t like distant places; he likes it at
home where he knows nearly everybody and nearly everybody knows him. The long and
the short of him is that he keeps up with people, and people keep up with him.
Alberto has always been a bachelor; but, at times, he is known to flirt with the women… in
fact, it is most of the time. You are likely to see him walking off to the local pub after
work, stopping by for a beer or so. “Get out of here,” you might hear him say to an
occasional tease or mocked come on, letting everyone knows he’s not buying any con jobs.
But when it’s time to leave, the women all want a hug; and he is there with open arms and
pats on the back before heading for home. Well, the truth is, he loves just about all women;
but when the subject of marriage comes up, you always get the same response: he will
quickly drag his finger across his throat and compare it to getting too close of a shave, so
close that one’s throat is bloodied in the process. Why he is reluctant about marriage, no
one seems to know, and he never had the desire to say exactly, but he has never been
reluctant about love.
Until only a few years ago, Alberto lived at home with his mother and they looked after one
another faithfully. He had always been very close to his home and family. He never had
the opportunity to go to school with other children. Instead, he stayed at home, chasing off
marauding goats that came to eat from the garden, running errands, and generally looking
after matters at home. His mother’s passing was probably the hardest thing he has ever had
to face, but he faced it squarely. It takes courage to carry on when you are left behind, but
Alberto knows about courage, in his own way. With chin up, much like the style of the
cowboys he loves, he put her to rest, and with a little assistance from family and others, he
found his own apartment, and made a new life. He has carried on, making friends, finding
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out all about their work and families, and then inquiring about them with all detail the next
time their paths cross.
For some strange and unknown reason people long ago decided that Alberto wasn’t the sort
of guy that was able to learn. They were so wrong. Alberto knows nearly everyone in his
town and just about everything there is to know about each one. While he could have
turned bitter and resentful of opportunities missed, of pleasures never known, instead, he
smiles, picks up his cane, doffs his cap, and walks away until another day. You might see
him out ambling along, simply carrying on with dignity.
Gene’s Story
Gene is rather tall, lanky and slender, and, on most occasions, you can see him wearing a
ready smile, along with his boots and cowboy hat. If he had been around in the Old West,
he would surely have answered to the name of “Slim.” While he walks proud, he does
wear his boots out rather quickly from dragging a palsied leg, something that he has had to
deal with since childhood. But once you get to know him, you never think about his
withered leg or arm, and neither does he.
Gene grew up on a ranch out in the wide-open spaces of Eastern Colorado. What he
wanted most was to be on his own, to be a real cowboy out on the range. One of his favorite
stories recalls his decision to attempt the rodeo circuit by first riding a bull at the local
rodeo. He tells about slowly mounting the bull while cooing words in the bull’s big, ugly
ears. He harnessed his good hand bound to the back of the bull and nodded a go. The
moment the gate swung opened, he started counting slowly to three…and nearly made it all
the way to three before launching from the bull into the mud and dust of the arena floor.
Gene calmly explains the event, “The bull went one way, and I went the other!” His only
rewards for the effort was the obliteration of his new hat, a mouth full of dirt to chew on,
and a set of bruised ribs to serve as a constant reminder of the event. He says that it taught
him a good lesson about what he should not be doing in the future. Figuring out what to do
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took much longer. He relishes the story, though, and can’t tell it without lots of leg slaps
and belly laughs.
On coming of age, Gene moved to town, to be more on his own, and went to work at a
sheltered workshop. At first, he lived with others, in either shared apartments or small
group homes. He found things to laugh about. He made friends easily and was quick to put
other people at ease with his limitations. He thought for himself, and trusted his own
thoughts and beliefs. He became a man that others trusted. He was the kind of guy that
said what he meant and meant what he said. Though he didn’t own a gun, you might say he
was still a straight shooter, in his own way. He no longer talked of buying a pickup truck,
or riding bulls; but he still dreamed of someday owning his own home and being on his
own. By the time he was forty, he was ready to take his dreams out for a ride, but this time,
he didn’t fall off.
With both the support of his family, and the support of a persistent program director at the
local developmental disability services agency, Gene applied for a low-income housing
construction program available at the time. And he had the financial resources he thought
were needed --- he supplemented his monthly disability payment by working regularly
afternoons and weekends doing janitorial work with a business cleaning crew. And he was
a good worker, and a regular worker, one that could be trusted to show up for work, and
work hard until the job was finished. However, when the application was processed, the
news that came back was bad. The housing authorities rejected his application for a federal
housing assistance loan, and apparently based on nothing more than the limitations of his
income and his well-documented disability.
Thankfully, the loan application provided for an appeals process, and thankfully, a law was
passed in 1990 called the Americans with Disabilities Act. With the encouragement of
those that supported him, and with the assistance of an attorney, he appealed the decision
based on the new law that prohibited unreasonable discrimination against persons with
disabilities.
The process was slow. Weeks led to weeks and months led to months of waiting and filing
further legal appeals. At last, however, the final decision was delivered. Gene had won. He
had stood up for his rights to have his own place in this world, and he had won. In fact, he
was the first person with developmental disabilities in that part of the country to win such
an appeal. Not only was he soon to open the door on the home of his dreams, but in the
process he opened the door for many others as well.
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It took courage to fight the legal battle, but he fought it and stayed with the fight until he
won. Because of the delays, it would have been easy for him to have thrown up his hands
and walked away. But he didn’t. He had walked away from the bull, but he wasn’t about
to walk away from his dream.
o How does the courage to ride a bull compare with the courage to fight a
legal battle?
o How did the character and habits that Gene formed prepare him for his later
challenges?
o How hard is it to give up on some things that aren’t meant to be?
o Is it harder to wait for what you want, or harder to take action to get what
you want?
o What lesson is there to learn from Gene’s example?
Glori´s Story
Glori kept waiting for the other shoe to drop, for the other half of her nightmare to be told.
She found the courage to accept that things were going to be hard for her, but came to
believe it was only going to be harder in the future. It seemed that she had her very own
gray cloud following her. It took both time and friends to teach her otherwise.
Glori was the youngest child in her family, but she always acted more like a mother, father,
and oldest child in the family all rolled up into one. It seemed that most members of her
family were barely able to take care of themselves, so Glori took care of them. Over the
years, her mother became ill and grew weak; she was barely able to walk, bathe herself, and
care for herself, so Glori did. Glori learned to do most of the cooking, most of the cleaning,
the shopping, and tending to the grooming and care of her mother. It was not only her
mother that needed her desperately, there was also her older sister Janey. Janey was barely
able to make sounds, she could neither talk, reason, or take care of the simplest of tasks.
This meant that Glori might be seen out walking the street with Janey, holding her hand,
guiding her steps and giving her a chance to feel the sun on her face. The family needed
Glori, and Glori somehow found the strength inside to be there for them. Yes, she had help
from others in the family and from friends of the family, and she wasn’t alone in any
physical way. What Glori wanted most, though, was to learn what she needed to make a life
of her own.
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What Glori never found was a refuge, somewhere she could get away to that was safe and
pleasant and her own that allowed her to recharge her batteries and meet some of her own
needs. In other words, somewhere she could escape from the endless needs of others. For
many, school serves as such a place, but not for Glori. She never thrived in school, but she
stayed in school until other kids starting mocking her slow ways.
After stomaching all the harassment she could take, she walked away from school, but not
from learning. Shortly afterwards, thanks to some helpful adults in her world and a
resourceful older sister, she found work at a sheltered workshop. This was a place that
offered her simple tasks and the satisfaction that comes from working. She put things
together, packaged things for sale, cleaned things, and recycled things for further use. But
perhaps most importantly, she learned how to get along with others, and she learned how to
make friends. Soon she had made several new friends on her own, friends to chat with, to
go out shopping with, to go to the movies, or just to get away from things. In fact, her new
friends probably meant more to her than anything.
It would have been so easy for Glori to have stayed at the workshop forever. After all, it
was safe, pleasant enough, and warm in the winter; and people showed her they cared about
her. True, she learned work habits and skills, but Glori had long known about work at
home, and so she quickly mastered all the new skills available to learn. Sure, she made
extra money to help her buy the things she needed, but it didn’t get her where she wanted to
go. In short, she had gone as far as there was to go. Rather than making her peace and
settling for less, Glori did something very brave, she settled for more… she decided that
she had to learn all there was for her to learn.
After finding a summer job helping out at the family store, Glori quit the workshop. She
still helped her family in the morning, helped stocked shelves in the afternoons, but
evenings were for classes. She enrolled in adult education classes so that she could learn to
read. She was soon checking books out of the library and talking to her friends about how
she would love to have her own business some day. The best bet is that she will be running
her own business some day. Glori´s gray cloud had shrunk; she found more sunlight in her
life. She found the courage of hope and wouldn’t let it go.
o Do you believe that it takes courage to leave the safe places in life for the
o At times, Glori tried to do too much. How can you tell when you have
opportunity to grow?
People learning to extend their personal limits, and live a full life in spite of the
discouragements along the road, likely have a story of courage to tell. Each person’s
struggle may be a lesson for others. Each person, each family has a unique story to share
that may inspire courage in others. As there is such a wide array of stories out there
waiting to be told for lessons they have to teach, the first activity in this chapter is much
like a treasure hunt.
Space Requirements: The space needed for collecting stories will vary
based on the needs of the individuals involved. For
later writing and compiling of stories, a small
kitchen table or desktop surface should be
sufficient.
Thoughts and Instructions: Some judgment and discretion with this task is needed.
Before recording the stories, the person contacted should be informed about the purpose of
the assignment and assured of the confidential use of the information. As a way of
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guaranteeing the confidentiality, the person’s name may be omitted entirely from the
recording itself.
We would encourage each individual and each family member to learn the stories of others
who may have dealt with issues similar to what is currently being faced. Ask one family
member to be the official “Recorder” or “Historian” to collect and categorize a scrapbook
with as wide array of personal stories and pictures of courageous individuals and families.
BASIC TASK:
Assemble and collect an assortment of seven stories, one for each day of the week.
If helpful, the stories may be tailored to address any special themes, needs, tasks or
goals confronting each specific individual and family during a typical week. A
challenging variation on this task would be to look at not only the stories of those
who have strived to achieve not only a good quality of life, but who also try to make
a difference in the world. Additionally, you may wish to assemble as a project, 12
stories, one for each month of the year, that reflect the special efforts of those to try
to reach out beyond themselves to enrich the lives of all members of the
community. Tape or glue the collected stories to a calendar as a way to provide a
more constant reminder of the need for courage throughout the year.
ABLER:
Perhaps you and your family would like to take the further initiative of compiling
several story collections into a Community Book of Courage to be shared with all
families. If you would like further assistance in getting your collection printed and
published, you may refer to the following websites: for a free self-publishing guide,
see
http://www.iuniverse.com/contact/request.htm or http://www.lulu.com/ or
http://www.trafford.com/ or http://www2.xlibris.com/
The following is a true story about courage coming from where it was least
expected.
Thoughts and Instructions: The topic may be introduced by mutual sharing of incidents
from the lives of the participants that illustrate the fact that animals are able to show
courage. The previous meanings of courage defined by the group might be briefly
reviewed to introduce the activity.
A couple from Montana were out riding on the range, he with his rifle and she
(fortunately) with her camera. Their dogs always followed them, but on this
occasion a mountain lion decided that he wanted to stalk the dogs (you'll see the
dogs in the background watching). Very, very bad decision…The hunter got off the
mule with his rifle and decided to shoot in the air to scare away the lion; but before
he could get off a shot, the lion charged in and decided he wanted a piece of those
dogs. With that, the mule took off and decided he wanted a piece of that lion. That's
when all hell broke loose...for the lion.
As the lion approached the dogs, the mule snatched him up by the tail and started
whirling him around, banging its head on the ground on every pass. Then he
dropped it, stomped on it and held it to the ground by the throat. The mule then got
down on his knees and bit the thing all over a couple of dozen times to make sure it
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was dead, than whipped it into the air again, walked back over to the couple (that
were stunned in silence) and stood there ready to continue his ride...as if nothing
had just happened. Fortunately even though the hunter didn't get off a shot, his wife
got off these:
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This activity is done strictly for the fun of it, but it does continue with the theme of
courage being found where least expected.
Thoughts and Instructions: This activity is designed to feed the imagination of the
participants, so there is no one right or wrong way to do it. Setting some time limit on the
activity is encouraged to help them better focus on finishing the activity.
Introduction to the Activity: Remind the participants about the story of the mule and the
lesson it taught about courage being found where least expected. Explain further, that
courage is found in our very own hands and that you are going to show them an example.
(Then share the picture of the eagle below with the group). Tell them that if they would
like to make an eagle from their own hand, they have everything in front of them to enable
them to do it. Give all a choice of drawing other animals on their hand if they would prefer
and let them try out all the possibilities by rehearsing with a flashlight against a screen or
white wall while the room is darkened to allow for clearer projected images. You will also
want to set a time limit on the activity, and then step back and let the imagination take over.
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E. The Starfish Story: Finding the Courage to Make a Difference --- There are
There are no simple answers or instructions to one wanting to find the courage needed to
live a full-grown life, but there are inspirational words that may help to motivate one to
realize that courage. The following story qualifies as one such inspirational story. It is a
simple story you may have heard before, but bears repeating. This version was taken
from the website of the Tri-Development Center of Aiken County, South Carolina
(www.aikentdc.org.resources). It may prove to be inspirational to both individuals with
developmental disabilities, as well as to those who work with them. It is a message that
acknowledges that while single-handedly we may not be able to change the world our
efforts can make a major difference.
narrator.
Thoughts and Instructions: The topic may be introduced by first noting the mystery
surrounding the nature of courage. Also, provide the reminder that it remains a mystery as
to what it takes to inspire a person to do courageous actions. Close by expressing the wish
that the following story might serve to inspire at least one person who hears it retold.
Early one evening, an old man was walking alone along the edge of
seashore. From a distance, the old man could see a young boy busily
tossing objects into the sea. As the old man drew closer, he could see
that the young boy was picking up starfish from the sand. One by one,
the boy was tossing each starfish back into the ocean. As the old man
looked about himself, he could see that the shoreline was covered with
many thousands of starfish that had been washed ashore by the sea tide.
"Why, I am throwing these starfish back into the sea so that they may
"But there are so many of them lying on shore . . .," said the old man.
"Do you really believe your time and effort will make any difference?"
As the young boy tossed the next starfish he was holding into the sea, he
Finding one’s voice and speaking one’s truth is not always an easy task, no matter
how well constructed your voice box may be. As a support for this necessary
process, some information may be helpful. This activity points in the direction of
some readily available support that is out there.
Thoughts and Instructions: Share the following information with the individual or
group concerning the national support group S.A.B.E., i.e., Self Advocates Becoming
Empowered. Locate the website, http://www.sabeusa.org/ for demonstration purposes, and
share the following summary of information.
Also, note the list of statewide chapters, the newsletters, reports and resources
available and listed to become more involved with this work locally, as well as
products available including “T-shirts and lots of other cool items” to financially
support the organization, if one so chooses. Close by noting other links to
websites by person(s) with disabilities promoting self-advocacy:
http://www.parentsconnect.org/linkster/linkster.php?CID=10
G. An Empowering Story
This is a story telling activity to share with either an individual or group. Read
the following story aloud for the empowering lesson it brings to us all. This story
was found on the website for the Tri-Development Center of Aiken County, South
Carolina, and is used by permission (see
http://www.aikentdc.org/resources/employment.htm).
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Thoughts and Instructions: Read aloud the following story; and on finishing,
talk about the messages taken from the story by the participants.
I try not to be biased, but I had my doubts about hiring Stevie. His placement
counselor assured me that he would be a good, reliable busboy. But I had never had
an employee with a mental handicap and wasn’t sure I wanted one. I wasn’t sure
how my customers would react to Stevie. He was short, a little dumpy, with the
smooth facial features and thick-tongued speech of Down Syndrome. I wasn’t
worried about most of my trucker customers, because truckers don’t generally care
who buses tables as long as the meatloaf platter is good and the pies are homemade.
The mouthy college kids traveling to school were the ones who concerned me; the
yuppie snobs who secretly polish their silverware with their napkins for fear of
catching some dreaded "truckstop germ;" the pairs of white-shirted businessmen on
expense accounts who think every truckstop waitress wants to be flirted with. I
knew those people would be uncomfortable around Stevie, so I closely watched him
for the first few weeks.
I shouldn’t have worried. After the first week, Stevie had my staff wrapped around
his stubby little finger, and within a month my truck regulars had adopted him as
their official truckstop mascot. After that, I really didn’t care what the rest of the
customers thought of him. He was like a 21 year-old in blue jeans and Nike’s, eager
to laugh and eager to please, but fierce in his attention to his duties.
Every salt and pepper shaker was exactly in its place, and not a bread crumb or
coffee spill was visible when Stevie got done with the table. Our only problem was
convincing him to wait to clean a table until after the customers were finished. He
would hover in the background, shifting his weight from one foot to the other,
scanning the dining room until a table was empty. Then he would scurry to the
empty table and carefully bus the dishes and glasses onto the cart and meticulously
wipe the table with a practiced flourish of his rag. If he thought a customer was
watching, his brow would pucker with added concentration. He took pride in doing
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his job exactly right, and you had to love how hard he tried to please each and every
person he met.
Over time, we learned that he lived with his mother, a widow who was disabled
after repeated surgeries for cancer. They lived on their Social Security benefits in
public housing two miles from the truckstop. Their social worker, who stopped to
check on him every so often, admitted they had fallen between the cracks. Money
was tight, and what I paid him was probably the difference between their being able
to live together and Stevie being sent to a group home.
That’s why the restaurant was such a gloomy place that morning last August, the
first morning in three years that Stevie missed work. He was at the Mayo Clinic in
Rochester getting a new valve or something put in his heart. His social worker said
that people with Down Syndrome often had heart problems at an early age, so this
wasn’t unexpected; and there was a good chance he would come through the
surgery in good shape and be back at work in a few months.
A ripple of excitement ran through the staff later that morning when word came that
he was out of surgery, in recovery, and doing fine. Frannie, my head waitress, let
out a war whoop and did a little dance in the aisle when she heard the good news.
Belle Ringer, one of our regular trucker customers, stared at the sight of the 50-
year-old grandmother of four doing a victory shimmy beside his table. Frannie
blushed, smoothed her apron and shot Belle Ringer a withering look.
"We just got word that Stevie is out of surgery and is going to be okay," said
Frannie.
"I was wondering where he was. I had a new joke to tell him. What was the surgery
about?" asked Belle.
Frannie quickly told Belle Ringer and the two other drivers sitting at his booth
about Stevie’s surgery; then sighed. "Yeah, I’m glad he is going to be okay," she
said, "but I don’t know how he and his mom are going to handle all the bills. From
what I hear, they’re barely getting by as it is."
Belle Ringer nodded thoughtfully, and Frannie hurried off to wait on the rest of her
tables. Since I hadn’t had time to round up a busboy to replace Stevie, and really
didn’t want to replace him, the girls were busing their own tables that day until we
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decided what to do. After the morning rush, Frannie walked into my office. She had
a couple of paper napkins in her hand and a funny look on her face.
"I didn’t get that table where Belle Ringer and his friends were sitting cleared off
until after they left, and Pony Pete and Tony Tipper were sitting there when I got
back to clean it off," she said. "This was folded and tucked under a coffee cup." She
handed the napkin to me, and three $20 bills fell onto my desk when I opened it. On
the outside, in big, bold letters, was printed "Something for Stevie."
Pony Pete asked me what that was all about," she said, "so I told him about Stevie
and his mom and everything and Pete looked at Tony and Tony looked at Pete, and
they ended up giving me this." She handed me another paper napkin that had
"Something for Stevie" scrawled on its outside. Two $50 bills were tucked within
its folds. Frannie looked at me with wet, shiny eyes, shook her head and said
simply, "Truckers."
That was three months ago. Today is Thanksgiving, the first day Stevie is supposed
to be back to work. His placement worker said he’s been counting the days until the
doctor said he could work, and it didn’t matter at all that it was a holiday. He called
ten times in the past week, making sure we knew he was coming, fearful that we
had forgotten him or that his job was in jeopardy. I arranged to have his mother
bring him to work, met them in the parking lot, and invited them both to celebrate
his day back.
Stevie was thinner and paler, but couldn’t stop grinning as he pushed through the
doors and headed for the back room where his apron and busing cart were waiting.
"Hold up there, Stevie, not so fast," I said. I took them and his mother by their
arms. "Work can wait for a minute. To celebrate your coming back, breakfast for
you and your mother is on me." I led them toward a large corner booth at the rear
of the room. I could feel and hear the rest of the staff following behind as we
marched through the dining room. Glancing over my shoulder, I saw booth after
booth of grinning truckers empty and join the procession.
We stopped in front of the big table. Its surface was covered with coffee cups,
saucers and dinner plates, all sitting slightly crooked on dozens of folded paper
napkins. "First thing you have to do, Stevie, is clean up that mess," I said. I tried to
sound stern.
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Stevie looked at me, and then at his mother, then pulled out one of the napkins. It
had "Something for Stevie" printed on the outside. As he picked it up, two $10 bills
fell onto the table. Stevie stared at the money, then at all the napkins peeking from
beneath the tableware, each with his name printed or scrawled on it.
I turned to his mother. "There’s more than $10,000 in cash and checks on that table,
all from truckers and trucking companies that heard about your problems. Happy
Thanksgiving."
Well, it got real noisy about that time, with everybody hollering and shouting, and
there were a few tears as well. But you know what’s funny? While everybody else
was busy shaking and hugging each other, Stevie, with a big, big smile on his face,
was busy clearing all the cups and dishes from the table . . .
If anyone knows the author of this story, please let us know how to get in
touch with him/her so that we can give credit for this work.
-Ralph Courtney, Executive Director
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Chapter 6
Introduction:
Several of the activities included in this chapter will require teamwork, i.e., joining
with others that you trust to have your best interest at heart. They may be people you care
about deeply, such as family or close friends, or they may simply be people you know
from work or from the neighborhood that you believe to be worthy of your trust and
confidence. The reason for the need for putting heads together is that some of the things
discussed are quite abstract, i.e. there is no way to make them concrete. For example, we
each know what love means; but there is no object or thing one can see, touch, taste or feel
that goes by the name of love. It is very important to each of us and to each of our lives,
but it is not so easy to put your finger on it.
This exercise looks at the way we act on the job and asks about the Do’s and
Don’ts of behavior on the job. It primarily focuses on the behaviors that are
appropriate in office and business settings.
Thoughts and Instructions: This activity draws on resources of the support or peer group
to help identify behaviors that have no place in business settings. After getting the ideas
of the individual, build on them with the ideas of the support group or peer group. The
following are supplemental thoughts to be used as needed and to stimulate further
discussion.
1. In general, your first job and main guide for behavior is to act in ways that
will help complete the job for which you were hired.
2. In general, you will need stay as clean as possible. Wash your hands regularly.
3. You will want to keep your clothes in good order. If a uniform is required,
keep it tidy. Remove stains promptly.
4. Offensive language is not tolerated.
5. Bringing personal possessions is usually okay, but don’t overdo it.
6. Displays of affection or personal relationships are usually frowned on.
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7. If you don’t know how to do it, don’t do it. Generally only do the tasks for
which you have been trained.
8. Don’t be sloppy. Objects strewn about may be safety hazards for others, if not
yourself.
The next three activities ask the question “What matters to you? or “What is really
important to you?” We say that each individual, way down deep at the core of the person,
has underlying values. These values contribute to our beliefs, ideas and opinions. Values
serve to guide the direction of our day-to-day lives and to guide the course of our growth.
Values, such as Truth, Equality, Generosity, Service, or Kindness, help to give meaning,
purpose and worth to our lives. They are important in our lives and are worthwhile to
consider, to identify clearly, and to use. Persons who use their values on a daily basis are
said to have personal integrity, which is a highly respected value in our society.
Values
To realize
The value of a sister or brother,
Ask someone
Who doesn't have one
To realize
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To realize
The value of four years:
Ask a graduate.
To realize
The value of one year:
Ask a student who
Has failed a final exam.
To realize
The value of nine months:
Ask a mother who gave birth to a stillborn.
To realize
The value of one month:
Ask a mother
who has given birth to
A premature baby.
To realize
The value of one week:
Ask an editor of a weekly newspaper.
To realize
The value of one minute:
Ask a person
Who has missed the train, bus or plane.
To realize
The value of one second:
Ask a person
Who has survived an accident.
2. Using Your Imagination---This exercise asks you to imagine briefly being away from
almost everything that you now value. You are asked to relax, close your eyes if you
would like, and then use your imagination. You have just learned that your best friend has
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moved to a deserted island to live. He or she invites you to come for a visit, a long vacation
there. You would really enjoy going on the trip, but the problem is that the boat that goes
to the island only stops there twice each year. So, knowing that you will be staying with
your friend for the next six months, besides clothes, grooming articles, and personal
necessities such as medications, what are you going to take along with you? After you
have thought about it deeply, make a list of at least three things that you value most and
want take with you on the trip. These may be words or pictures of the objects. Ask a
friend or family member to help you make your list, if you would like.
Thoughts and Instructions: Determine ahead of time how each person would
like to record his/her values and provide the tools and means of accomplishing
this. It should be stressed that the activity is meant to be both enjoyable, yet
helpful, to each person in better identifying personal values. Before concluding
the activity, advise the participants that after more time and thought is given, they
are free to change their list, if they choose. At least one week should be allowed
between the timing of the first two activities in this series and the third follow-up
activity noted next.
3. Follow-up Activities: The activities below are intended to provide an end and
conclusion to the values clarification process.
a. Sharing - If the previous two activities have been done in a small group setting, an
opportunity should be given to the participants to share what the have learned from the
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activities with others. If the activities were done in a private or small family setting, an
opportunity to share the experience experiences within the family should be provided.
Of course, this would be done on a volunteer basis and everyone present should be
given an opportunity to share and discuss the lessons learned with others.
b. What if? - Introduce this activity by recalling the opportunity that each person has been
given to look at what they value, i.e. what is important to them in guiding and directing
their lives. Ask each person if they know what their values are now? Are they able to
list them as to which is most important, next in importance, etc? If not, ask them if
there is anything they might do that would help them to understand better? If so, assist
the person in making a plan to complete the process and plan for further follow-up at a
later time.
Before concluding this activity, ask them to consider if their values would
change if they knew for certain that they would only have five more years
of life remaining? Would they change if they knew that they only had one
more year of life remaining? Suggestion: to conclude this series of
activities you may wish to read the letter entitled “Values” aloud again.
c. Making a Plague (Optional final activity): As a way of remembering these activities
and the conclusions reached, the participants may wish to make a permanent record or
plaque of the three primary values identified. As a way of symbolizing the permanent
nature of values, the use of pebbles or colored chat, available at any handcrafts store,
may be glued onto the lettered plaque with common household or craft. This plaque
may also be framed and kept as an ongoing reminder.
There are times in just about everyone’s life, when problems and worries seem to
pile up and challenge one’s ability to deal with them well, i.e., to cope. Having a
known way of dealing with them helps to lessen the sense of being overwhelmed
or hopeless. The following activity presents a five-step process for the
improvement of coping skills.
Thoughts and Instructions: If this is done in the context of a group, other than a family
group, it is suggested that the process be explained by using an example drawn from
someone outside of the group to ensure better that privacy will be fully respected and
possible embarrassment will be avoided.
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(The example provided by “Will’s Story” is a sample case study available in the last
chapter of this book). Also, organizing a worksheet with four columns at the top labeled,
“problems, coping resources, coping barriers, and strategies for overcoming barriers” may
be a helpful method to use (see sample worksheet provided in Chapter 10)
1. Begin by Listing all Current Problems - Make a list of all the issues that have been a
concern or have taken a lot of energy (whether physical, emotional, or mental) to deal
with in the past week. If it is a concern of any member of the group, list it. (After the
current problems are addressed through this process, you may wish to identify problems
anticipated in the near future or problems from the recent past that may return again to
be an issue).
2. Order the Items - First, rank the items on the list according to the amount of energy
that they have consumed over the past week. Then prioritize them according to their
importance or urgency. Choose the items ranked as highest in priority or urgency as the
first difficulties to address.
3. Identify Coping Resources – Coping resources are things inside you or outside one’s
self in the environment that can help to deal better with the difficulties at hand. Outside
resources may include such things as the availability of support agencies or support
services, money assets, access to transportation, access to needed information or
expertise, etc. Coping resources within may include strengths and qualities that you
have that may help in coping, e.g., time, a sense of humor, confidence, ability to find and
accept help from others, sensitivity to others, ability to speak up and be assertive, ability
to organize, persistence in addressing tasks at hand, creativity, etc.
4. Identify Barriers to Effective Coping - It is important to recognize factors that can
interfere or reduce successful coping so that they may be minimized. External barriers
may include such things as a lack of information about the problem, deadlines noted,
and a lack of resources, a lack of time, heavy workloads or other demands. Internal
barriers may include limiting emotions, impaired judgment, emotional distress, or
unhelpful beliefs about the problem or about your ability to solve the problem.
5. Reduce the Coping Barriers – Once the barriers are identified, it is important to
address them. Challenge any unhelpful thoughts or beliefs about the issue. Remember
that is all right to seek out further help or guidance. Develop specific strategies for
overcoming the barriers with specific time and task commitments included.
Problem solving is not such a very difficult thing to do. In fact, it is likely to occur on a
daily basis with very little thought involved. For example, at night a friend may call
wanting to go out for a cup of coffee and chat. If the hour is getting late and you know that
the coffee may keep you awake, and you also know that you need to get up early in the
morning for work or something special, the possible choices and relative risks and benefits
of accepting the offer seem to run through your mind in the process of providing your
friend with an answer. If you are able to define problems, consider alternative choices, and
make decisions about choices, and work a planned solution, you have all the skills needed
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to effectively solve problems. If not, consider all the very knowledgeable people in the
world, that seek out professional problem solvers and consultants for assistance when
things become too difficult to deal with alone. In other words, there is nothing wrong in
asking for help when needed. In fact, being able to accept needed help should be
considered as a personal strength of character. Having a step-by-step procedure for
resolving problems may help to make all problems seem a little smaller in size. The
following is a basic six-step process for helping people to solve problems.
Thoughts and Instructions: If this is done in the context of a group, other than a family
group, it is again suggested that the process be explained by using an example drawn from
someone outside of the group to ensure better that privacy will be fully respected and
possible embarrassment will be avoided. (If desired, “Will´s Story” is a sample case study
is provided in the last chapter of this book). Also, as before, organizing a problem-solving
worksheet may be a helpful method to use. (See the last chapter of the book for a
worksheet
sample.)
to step #2.
E. You Need to Laugh About It
The following information about the value of humor and laughter is taken from information
found at: www.holisticonline.com. It serves as an informative introduction to the following
activity. A guide or instructor will be required. Patients, doctors and health-care
professionals are all finding that laughter may indeed be the best medicine. Laughing is
found to lower blood pressure, reduce stress hormones, increase muscle flexion, and
boost immune function by raising levels of infection-fighting T-cells, disease-fighting
proteins called Gamma-interferon and B-cells, which produce disease-destroying
antibodies. Laughter also triggers the release of endorphins, the body's natural painkillers,
and produces a general sense of well-being.
Laughter is infectious. Hospitals around the country are incorporating formal and
informal laughter therapy programs into their therapeutic regimens. In countries
such as India, laughing clubs – in which participants gather in the early morning for
the sole purpose of laughing – are becoming as popular as Rotary Clubs in the
United States.
Thoughts and Instructions: Setting some preliminary limits is required. Instructions and
guidelines may take the following form: “The next activity involves sharing some of our
favorite jokes. You are free to share any joke that you find to be funny or that makes you
laugh. However, some jokes are funny only at the expense of other people, e.g., making fun
of them or putting them down for the sake of a cheap laugh. We welcome all humor except
the humor that comes at the cost of putting someone else down or may offend another
member of the group.”
After insuring that each person has a sticky note and something to write with, ask them to
write a number on the top part of the note that rates how happy they are at that moment.
Ask them to pick a number on a scale of one to ten - one stands for “very unhappy,” five
would mean “neither happy nor unhappy,” while ten would mean “extremely happy”. Then
begin the activity by telling any favorite joke to the group. If you can’t think of a favorite
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joke to share, you may choose one of the jokes provided below. After allowing all
members present to share their favorite jokes, ask the group to again rate their level of
happiness on a 1-10 scale. Tabulate the results and then allow the group to discuss the
benefits of laughter that they have discovered by this activity. Note how humor is an inner
resource, or coping tool, for us all; and it is especially helpful in difficult or trying times.
When times get tough, that seems to be when humor is most needed.
Joke #1: There was no rain for a month, and Marvin the mudbug (crayfish) was dry
as a bone. Marvin crawled into a yard where there was an Olympic sized swimming
pool with sparkling blue water. Marvin was at the edge of the pool when a fat tabby
cat appeared. This was the first time the cat had ever set eyes upon a mudbug and so
the curious cat decided to keep a close watch on Marvin, just in case the other cats
asked about it. "What are you doing?” the cat queried. Marvin said to the cat, "I am
tired and dry, and I am going for a swim." The cat said, "There is no swimming in
this pool because there is no lifeguard." Marvin said, "How can you stop me from
going in?" The cat said, "My paw will stop you." Marvin sneered in the cat's face.
"Big deal! I already AM a 'Dad.'"
Joke #2: Roy Rogers, known as the King of the Cowboys, for many years and to
many people, owned a ranch in the foothills of the mountains where he raised both
cattle and sheep. Even though a number of his livestock had recently died, it was his
birthday and he intended to enjoy it. So, after enjoying cake and ice cream at his
birthday party with a number of his friends that he invited to the ranch house, it was
time to open his presents. He enjoyed them all, but the present that pleased him the
most was a new pair of fancy, diamond-studded shiny boots that his beloved wife,
Dale, had given him. After the party was over, Roy told Dale that he was eager to
try out his new boots by going for a ride on Trigger, his favorite horse. So, Roy
saddled up Trigger and away he went.
After riding a ways into the mountains, he passed by a huge boulder. From the top
of the boulder, a huge mountain lion saw Roy approaching and noticed the new
boots by their bright shine. At once, the mountain lion jumped down from the top
of the boulder and sunk his teeth into the tip of Roy’s new left boot. With a quick
jerk, the lion was able to shred Roy’s boot and quickly tear it to pieces.
Thankfully, Roy wasn’t hurt, but he saw with disgust what the lion had done to his
boot. He became outraged and quickly rode back to the ranch to get his rifle. After
briefly explaining to Dale what had happened and how he knew it must have been
the same lion that had been killing his livestock, he loaded his rifle on Trigger and
headed back out to the boulder.
Well, Roy has always been an excellent shot, so after spotting the lion from nearly a
mile away, he whipped out his rifle, took quick aim and plugged the vicious
mountain lion right between the eyes. He then hopped down from Trigger, loaded
the dead lion on the Trigger’s back and headed back to the ranch to show Dale.
After seeing him coming, Dale ran out on the porch to greet him. She was so
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overcome by joy that she burst out in a song, that goes like this: “Pardon me Roy,
is that the cat-who-chewed-ya-new-shoes?”
Joke #3: A guy walks into a restaurant, sits down to order, and asked the waiter
does he serve crayfish. The waiter says yes. The guy says 'I'll have a pizza'. He
points to a chair and says, 'and a plate of chips for my crayfish friend here.'
This activity is similar to the previous one in that it involves a demonstration of the benefits
of entertaining positive thoughts. It also provides another tool for taking more control of
ourselves. However, they are more than just a tool for our use. Positive thoughts seem also
to be much like flowers in the garden of life --- to grow and bloom, care and attention is
needed.
Thoughts and Instructions: After insuring that each person has a sticky note and
something to write with, ask them to write a number on the top part of the note that rates
how happy they are at that moment. Ask them to pick a number on a scale of one to ten:
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one stands for “very unhappy”, five would mean “neither happy nor unhappy” while ten
would mean “extremely happy”. Then begin the activity by informing the person or
group that they will now have a chance to enjoy again the happiest day of their life. To
serve as an example, the activity leader should briefly describe their happiest day to the
group. Then invite the participants to close their eyes and relax. Ask them to imagine, or
picture in their minds, all the details of the happiest day in their lives. Ask them to
remember all the details about how the day both looked and felt. In particular, ask them to
note all the colors present, the smells present, what sounds they heard, and how things felt
to the touch. Ask them to make the memory as clear as possible and to enjoy the
experience to its fullest.
After at least five minutes have passed, ask them to return slowly to the present time and to
open their eyes. Then ask the group to again rate their level of happiness on a 1-10 scale.
Tabulate the results and then allow the group to discuss the benefits of remembering happy
times and pleasant thoughts rediscovered in this activity. Point out how this activity
confirms that giving pleasant thoughts room to grow makes for a very good coping tool for
each of us to use as needed, and especially when times are tough.
Ask them to try during the next week to stay focused on the positive as much as possible.
Rather than dwelling on what is wrong, ask them to look for what is right and good, and
celebrate it every chance they get. Then the week following this activity, give the persons
involved an opportunity to discuss what they have learned in using positive thinking to
improve the quality of their life on a daily basis.
The following two simple tunes have a history of providing encouragement to many people
over many years of time.. This activity provides self-affirming songs that might be used as
the need arises with the individual or group. If there is an individual present that enjoys
singing, ask them to lead the remainder of the group in singing the following two songs. It
is likely that some of the older persons present will remember the melody to each of them.
The first is adapted from a traditional African-American folk song.
All of us as human beings are affected by personal grief, loss, and trauma at some point in
our lives. Not only does the individual coping with loss need to know about the grieving
process, but those persons close to the individual will need to be aware of how they might
be of more assistance, also. The material in this section is for informational purposes.
There is a season in all of our lives where we are faced with losing someone we
love. Coupled with this natural destiny, if one watches much television, listens to
much radio or simply tunes into what people are chatting about at the corner cafe,
one will need to deal with the numerous human tragedies, whether man-made or
natural. Sooner or later, horrifying images of suffering and pain may confront each
of us. We are also likely be called upon to explain and help loved ones deal with
personal crisis and the larger questions of pain and suffering. The following
information will hopefully prove to be of assistance.
A. Closeness - How physically close was the person to the incident or event which
happened? Were family or friends killed or injured in the event? Was their home,
school, or work environment either harmed or threatened? In general, the closer the
contact, both physically and emotionally, the more severely the individual is likely
to respond.
The last noted cycle varies considerably from individual to individual. Also, it may be
repeatedly processed and recycled over time. In short, there is no right or wrong way to
move through the process of grief and loss. Respecting individual differences and coping
patterns is more helpful. While normal functioning is likely to return within a few weeks, it
may take up to a full year of time to fully assess how well an individual has managed to
cope with the loss or trauma. In other words, fully regaining a sense of balance and
optimism about the future may take time.
After time is given for full expression of the initial shock, returning to an maintaining
routines is helpful. There is a sense of safety and security inherent in daily routines
and they can provide clear sense of comfort.
Don’t alter expectations over the long term. While extra support and nurturance,
even extra flexibility is needed at first, the loss or trauma represents a change point
that could lead to developing habits and patterns that are unhealthy or counter-
productive. For example, if it was not okay to throw dishes or glasses in anger before
the crisis, there is no reason why it should be okay as a consequence of the crisis or
loss.
Share your own feelings of loss, sadness and concern and in doing so model how to
open up and honestly express your feelings. Don’t be afraid to feel.
Normalize feelings - Let the person know that strong and conflicted feelings at a time
of grief and loss are perfectly normal and okay. In other words, they are perfectly
valid to feel and experience. Help the individual to name or label both their simple
feelings and mixed feelings in full sentences that link them to events and actions. For
example, “After John died, I was left feeling both anger and sadness: anger that he
left so unexpectedly, and sadness that I won’t be seeing him again.”
Be Honest - We all deserve to know the truth of what happened in a language that is
appropriate. All the minute details of the event, however, may not be needed or be
most helpful. Let the individual guide you by the extent of their questions as to the
amount of detail needed for them to understand.
Express your feelings of continued love and support. Reassure the individual that they
are safe.
If profound grief and extreme emotional reactions persist and interfere with a return to
normal functioning, it may be necessary to consult a professional: a doctor, therapist,
religious leader, or a behavioral specialist.
This activity is about making affirmations, or positive statements, that we can say to
ourselves in times when we need to be our own fans and cheerleaders, our own
encouragers.
Thoughts and Instructions: Begin by asking the person or group to share what positive
messages they tell themselves when they need to focus their strength to better face
difficulties. The activity leader is also encouraged to share with the group the self-
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messages that work for them. Alternative ways of introducing this activity would be to
either recall the words from the song Home on the Range and its refrain of “never is heard a
discouraging word…” or recall the classic story of the “Little Engine that Could” with its’
simple affirmation of “Yes, I can! Yes I can!” Then ask the group to choose for
themselves the encouraging words that they most need to hear when both times are tough or
the days are tough. Then ask them write it down on the sticky note, (provide assistance, as
needed), and to post the note by their bedside so that each morning when they first awaken,
they will be reminded of the positive, able to make their own self affirmation.
This activity is meant to help normalize the making of mistakes, i.e. convey the message
that it is okay to make mistakes. In fact, mistakes are often quite helpful. Similarly, one
may find that going backward is only a disguise for going forward.
First, ask the person(s) present to share aloud any mistakes they have made that they
learned from or later found to be helpful. After the message has been clearly made and
reinforced with examples, ask the participant(s) if they know what a crawdad, or crayfish,
is. After processing the responses and allowing for mutual sharing, tell those present that
you would like to tell them a little about the crawdad:
The crayfish, commonly known as the crawdad, has a lesson to teach us about living. The
crawdad protects itself well; it wears a hard outer coating or shell, and it has a set of pincers
to bite or to hold objects. Besides the pincers in front, it has four pairs of walking legs to
move about. It has quite an appetite, but usually feeds at night when it is safer. It eats both
plants and animals, so it has come to have quite a menu of things from which to choose.
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While it usually crawls around on the bottom of lakes, rivers or streams, its general
movement is always a slow walk. As most youngsters living near creeks can tell you, if you
try to get close to the crawdad from the front where one is easily seen, or if you startle it,
crawdads are able to use rapid flips of their tail to swim backwards like a shot and escape
danger. So, if the crawdad were able to don a cap and gown and mount a lecture hall stage,
he might give the following advice to one and all:
“If we insist on always going forward, the path ahead may prove to be a nightmare of
our own making…. it may only lead us straight into the lap of trouble. Therefore, the
next time you find yourself edging backwards, stop to consider… you may be headed in a
life-saving direction.”
Chapter 7
Introduction:
This chapter considers model programming for inclusive and encouraging community
development. Alternative ideas that address human needs and are worthy of further
exploration will also be presented. While stories of successful group efforts to deal with the
Big Picture are related, individual efforts, initiatives, and successes will also be noted for
the lessons that they may have to teach.
This simple narrative has inspired many to develop the teamwork needed to make
successes happen.
Thoughts and Instructions: Consumers with disabilities, parents, staff, businesses, etc., all
need to work together. The word “synergy” is used to explain what happens when we work
together in harmony. The end result is greater than the parts. Just as the crawdad might
have something to say to us, there’s a great deal to be learned about teamwork from the
following lessons from the geese:
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As each goose flaps its wings, it creates an "uplift" for the bird following. By flying in a
"V" formation, the whole flock adds 71% more flying range than if each bird flew alone.
Lesson: People who share a common direction and sense of community can get
where they are going quicker and easier because they are traveling on the thrust of
one another.
Whenever a goose falls out of formation, it suddenly feels the drag and resistance of trying
to fly alone, and quickly gets back into formation to take advantage of the "lifting power"
of the bird immediately in front.
Lesson: If we have as much sense as a goose, we will join in formations with those
who are headed where we want to go.
When the lead goose gets tired, it rotates back into the formation and another goose flies at
the point position.
Lesson: It pays to take turns doing the hard tasks and sharing leadership – with
people, as with geese, interdependent with one other.
The geese in formation honk from behind to encourage those up front to keep up their
speed.
Lesson: We need to make sure our honking from behind is encouraging – not
something less helpful.
When a goose gets sick or wounded or shot down, two geese drop out of formation and
follow their fellow member down to help provide protection. They stay with this member of
the flock until he or she is either able to fly again or dies. Then they launch out on their
own, with another formation, or catch up with their own flock.
Lesson: If we have as much sense as the geese, we’ll stand by each other like
that.
"A Lesson from the Geese" was authored by Dr. Robert McNeish, former
Associate Superintendent of Schools, Reisterstown, MD. First delivered at
Northminster Presbyterian Church in Reisterstown, MD, 1972.
Materials Needed: A writing pad with markers may be used to note the
main points and features of each program and
initiative being reviewed by a community group. With
more formal group meetings, the material reviewed
may be coordinated in advance by means of a
Windows Powerpoint presentation.
Thoughts and Instructions: The suggested format for this review would be to involve a
community group with at least ten individuals, each assigned a program or initiative to
review in advance and present their findings to the group as a whole. The purpose of such
a meeting would be to identify workable model initiatives as a base for local program
development and initiatives.
Seattle – “Involving all Neighbors.” This project was funded jointly by the city
and the state Division of Developmental Disabilities to support each Seattle
neighborhood in including its members with developmental disabilities. As of
2000, it was the only city in the USA with a staff position dedicated to
neighborhood inclusion. Since 1994 this project has focused on encouraging
persons with disabilities to get involved in their neighborhood life. The goal is to
help neighborhoods become genuine communities and explore ways of involving
people who might not other participate in their communities.
6a71006957ad!OpenDocument and
http://www.brookespublishing.com/store/books/holburn-5907/index.htm
With estimates of more than half the population of the United States now connected to
the web and the cost of registering a domain and establishing a website plummeting, it
has become increasingly attractive and feasible tool to consider when trying reaching
out to the community. An example of such possibilities comes from Langley, British
Colombia, where the Langley Association for Community Living has established a
website to further its friendship-building initiative. Review the highlights from this
website below in considering this as an alternative your community might wish to
explore further. A summary is provided below.
(See:http://www.langleyacl.org/friendship.)
You've Gotta Have Friends is a group working to ensure that citizens in Langley,
including those who live with a disability, have caring people involved in their lives
with whom they share friendship and a sense of connection and belonging. The group is
sponsored by the Langley Association for Community Living [LACL] which, since
1959, has provided individuals with developmental disabilities and families with
children and youth with special needs with a wide range of services. However, a goal
not yet realized by LACL is the presence of genuine friendships and relationships for
many people who live with a disability. There remains a critical need to build more
community connections and authentic friendship opportunities for people who are
isolated. While many people have "services," this does not always equate with having a
“good life.”
Lessons Learned:
Thoughts and Instructions: There are at least three different avenues that may be taken in
accomplishing the purpose of this activity, which is to empower the local community
through the sharing of the dreams and visions of a better tomorrow. It may be done
through:
A place to start would be with the dream-sharing activity discussed in Chapter 3 or the
wish-making introductory activity. After reviewing these activities, consider whether there
are any elements or themes shared by several individuals. If so, the dream-sharing project
may become a shared group activity. Regardless, dreams that capture the unspoken
aspirations of many are likely to be the most effective in inspiring many others to action.
As you will want to “strike while the iron is hot”, the leader needs to follow the
presentation with an enlistment of community support for making commitments and taking
needed first steps to realization.
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F. The First Two Tools: Looking at the Community Toolbox and Community
Asset Maps
Regardless of the community undertaking, whether the project goal is to improve access to
public facilities, recruit assistants or mentors, improve access to needed services and
assistive technology, increase employment opportunities or increase community leadership
and volunteer opportunities, tools will be needed by the community to make it happen.
This activity considers two basic tools that will very likely prove helpful.
Thoughts and Instructions: This review and information-gathering activity will require
two or three volunteer community members with time and resources to review the
information available, condense and summarize options, and present the findings to the
larger project group. Two valuable community tools will be reviewed and evaluated in
terms of the role they may play in future group efforts. Namely, the two resources are:
1. The Community Tool Box at the website: http://ctb.ku.edu . This website was
developed by the University of Kansas with the stated mission of “promoting
community health and development by connecting people, ideas and resources”.
The Tool Box provides over 6,000 pages of practical skill-building information on
over 250 different topics, including 125 resources concerning developmental
disabilities. Topic sections include step-by-step instruction, examples, checklists
and related resources; and
new undertakings. It then presents them in a format that may be helpful for future
community efforts in serving as building blocks for the future.
Materials Needed: Paper and makers, poster boards, old magazines and
newspapers, scissors and craft glue. If internet
service is available, there is also the option of
printing illustrations from that source (see
Wikipedia.org for a listing a public domain images).
Thoughts and Instructions: This activity asks participants to first consider the things in
the community that have had a positive effect on their own life. From this starting point,
speak with their friends, family, neighbors and other people in the community they know
for the purpose of identifying the things done in, by or for the community that have made a
difference or improved people’s lives. This may include physical improvements, e.g., park
benches, or services, e.g. 9-1-1 or home delivery of meals to the elderly. After three or
more positives have been identified, ask the person to place them boldly on a poster board
and illustrate with pictures taken from the newspapers or magazines. When completed,
make arrangements to have the posters presented to the local planning group undertaking
new community development initiatives.
Materials Needed: Paper and makers, poster boards, old magazines and
newspapers, scissors and craft glue. If computer
access is available, illustrations may be printed from
the internet.
Thoughts and Instructions: This activity asks participants to consider their own needs
and wishes for things that might improve their own life and then to speak with their friends,
family, neighbors and other people in the community they know for the purpose of
identifying the things missing and the needs unmet in the community as a whole. This may
include physical needs, as well as social, educational, vocational or recreational needs.
After three or more needs have been identified, ask the person to place them boldly on a
poster board and illustrate with pictures taken from the newspapers or magazines. When
completed make arrangements to have the posters presented to the local planning group
undertaking new community development initiatives.
I. Perhaps You Just Need to Dodge the Bullet? Project Civic Access
Sometimes the motivation to act may come from a simple desire to avoid a negative or
costly alternative. This possibility is increasingly being faced by communities when
confronting the legal requirements and mandates for equal access specified in the
Americans with Disabilities Act. Read the following informational item to see if this
possibility might apply to your community.
Project Civic Access: Common Problems with the ADA and City Government
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Under Project Civic Access, a total of 129 cities, towns and counties have entered into 135
settlement agreements with the U.S. Department of Justice (DOJ) to make their programs,
services and facilities accessible to people with disabilities (see website for further
information: www.ada.gov or call (800) 514-0301 (voice) or (800) 514-0383 (TT). In
most cases, the compliance reviews were undertaken on the Department of Justice’s own
initiative because the governments receive financial assistance from the Department and are
prohibited by the Act (Rehabilitation Act of 1973) from discriminating on the basis of
disabilities.
The following ideas and suggestions were made by community planners in Ridgefield,
Connecticut, in response to a funding opportunity to development a model community
initiative. They are worthy of exploration by any number of communities (see
http://www.hcbs.org/files/53/2631/Ridgefield.pdf).
1. Concerning Schools: Find even one supportive, sympathetic teacher who would be
willing to work with kids on enhancing awareness. Begin with one class, using a video,
such as “Interroburst 2003” to stimulate discussion. Support this teacher in working
with students on an Awareness Fair, where, for example, kids would be able to
experience first-hand what it is like to have a disability.
2. With parents: Work with the local Parent Teacher Association, getting their support
for activities such as the Awareness Fair.
3. In town leadership: Approach the Mayor presenting the information that there is a
group of individuals in the community who want to be involved with disability issues.
Begin discussions around the formation of a core group that can form the basis for a
commission or task force. Constituents voicing their needs and concerns can be a
powerful agent for change.
4. Town Recreation Departments: Support the hiring of “Inclusion Specialists”. Both
Ridgefield and Groton, Connecticut have created such positions, which appear to be
working well. In Ridgefield, the Inclusion Specialist helps guide families of children
with disabilities in finding appropriate activities for their child, offering options and
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contacting instructors as needed to ensure that the child’s needs are fully met. In
Groton, the Inclusion Specialist is available to anyone needing support in order to
participate in an activity offered by the Parks and Recreation Department.
5. Places of Worship: Outreach to religious groups can be very effective. However, it is
important to stress that it is not sympathy you want but action. Start small: one goal or
two projects, such as developing a “Welcome Wagon.”
6. Find a Speakers Bureau: Organizations such as “Ability Beyond Disability” (formerly
DATAHR) and UCONN Center on Disabilities have speakers available who can present
on a wide range of subjects, from the Americans with Disabilities Act to issues affecting
inclusive childcare.
7. Educate Hospital Social Workers: Often discharge planning does not take into
account the needs of the whole person; and people are discharged from hospitals into
nursing facilities rather than community settings due to a lack of understanding on the
part of hospital administrators that living in the community is the preferred option where
supports are, in fact, available.
The Bottom Line: The bottom line is doing the legwork one person at a time. It takes a
lot of planning and groundwork to make change happen, first with individuals, one-to-
one, then with organizations.
K. Community Gardens
Community gardens are small plots of land assigned to individuals or groups of people by
some organization that holds title or lease to the land, sometimes for rent, sometimes
simply as a grant of land. A fee for usage may be charged to defray any additional costs
involved in managing such a project. It seems that many community human service
organizations and developmental disability agencies may be in a position to establish
community gardens on unused or under-used plots of land. Establishing a community
garden is a good way for promoting a diversity of interactions which help to promote the
development and renewal of community ties, and a solid strategy for promoting community
integration.
community garden. They offer a fact sheet designed to give many different groups the basic
information they need to get their gardening project off the ground. ACGA estimates that
there are 18,000 Community Gardens throughout the United States, Canada, and the world.
In addition to lots of general gardening and horticultural information, their above website
also provides links and connections to all Community Garden Programs with known
websites.
L. Community Kitchens
Community kitchens have been developed throughout Canada as a vehicle for promoting
community development (see http://www.communitykitchens.ca/). The FoodShare organization
has prepared a toolbox for communities to better understand of how community kitchens
affect communities and health issues (see http://www.foodshare.net/toolbox_kitchens01.htm. All
research findings on community kitchen programs point to the fact that participants find
that the greatest benefit is the development of social support networks. In other words, they
help to feed the soul, as well as the stomach by breaking down social isolation. However,
community kitchens not only contribute social connectedness, but to improved health
through the role they play sharing nutrition information, increasing variety in diet, and
providing information around food safety issues, they also play an valuable role in
improving health through building community.
Community kitchens also provide a way for an individual to enjoy a free or low-cost meal
in a friendly, non-stigmatizing environment. The more frequently a community kitchen is
offered the greater the impact it will have on reducing a participants’ food budget and
increasing food access. The other more long-term impact of participating in a community
kitchen may be the development of food skills that can lead to employment. Also some
participants may gain greater food skills and nutrition knowledge that help to stretch
limited food budgets. The Community Kitchens website noted above provides a listing of
planning and development considerations, if the idea interests you or members of your
community.
o Awareness projects – for example, by painting fish signs near sewer and drainage
outlets to remind people that what we pour into the storm sewer eventually ends up
in the river, ocean or even the city water supply.
o Stream Restoration – clean up and restore urban streams and shorelines by
working with governmental agencies to identify the greatest need. Residents may
clean up the stream, reintroduce indigenous plants along the shore or landscape
nearby walkways.
o Bird Habitat Projects – restore local habitat to bring back birds that may have
disappeared from an area. Work might include planting native seed-bearing plants
in parks and lanes, or building birdhouses designed o attract a particular species
(see http://www.audubon.org/
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o River Guardians – these are community volunteers who regularly walk a stretch
of riverbank, sometimes doing water tests and sometimes reporting suspicious
discharges to authorities. A stewardship society might be established to train
volunteers to ensure the quality of this community effort. An example of this sort
of community project is occurring on the Willamette River in Oregon (see
http://www.willamette-riverkeeper.org/)
Involvement with the life of the community means involvement with both the
positives and negatives. Taking part in community crime prevention presents a path
toward meeting neighbors and increasing socialization opportunities. It is also a
means of giving back to the community and helping to make the community a safer
and better place to live.
Organized citizen participation usually begins with the formation of a local Crime
Prevention Council or, in Canada, a Community Crime Prevention Office. This is
where people can meet with one another and the police to address local concerns.
Neighborhood Watch supporters, civic groups, community and business leaders, the
police, and government typically organize to form a volunteer advisory council. It
would serve in an advisory role and have the ability to influence crime prevention
policy. Members should represent a wide variety of community interests, and the
council should be a formal organization with elected leaders and bylaws. Local
action is most effective when combined with the support of local and state policies.
Partnerships with the Crime Prevention Coalition are often pursued.
Over a period of time, some communities seem to leave behind their defining
characteristics and distinctions. As a consequence, campaigns to restore or bring a new
identity to light are undertaken. Many communities add signs, banners, flags and gates to
set their community apart. Hopefully the signs and banners will solidify the image of the
community and add an honest meaning and connection for the place. The following ideas
(see www.vcn.bc.ca/citizens-handbook) are some of the forms image-building campaigns
might take:
Community signposts – Many communities are now defining and naming their
neighborhoods and then erecting colorful street signs to mark the boundaries.
Community signs – These warning signs may be used to slow or caution drivers. For
example, one neighborhood in Vancouver saw residents hand paint cat signs that
identify the street and ask motorists to slow down. Also, signs referring to kids
playing or horseback riding areas have been known to impact the speed of traffic.
Home” running from October 2003 to September 2006. This program came from
the recognition that the demand for personal assistants in the state far exceeds the
supply, and that recruitment efforts were fragmented. It was determined essential to
the growth of self-determination initiatives in Connecticut that individuals and
families have easy access to a pool of qualified staff who meets basic requirements.
In addition, Connecticut recognized a need for an education and support system for
employers of personal assistants that can prepare them to confidently direct and
manage their services and supports.
2) Criminal Justice Project: The goal of the Criminal Justice Project is to improve
the capacity of Connecticut’s criminal justice system to meet the needs of persons
with cognitive disabilities and to collaborate with government and community
agencies to ensure equal access, equal protection, and equal treatment as appropriate
for persons with cognitive disabilities in Connecticut’s criminal justice system. One
of the program thrusts was to develop a collaborative that brings together
government and community agencies, parents and disability advocates to explore
ways to improve the experience of persons with cognitive disabilities in
Connecticut’s criminal justice system. Through the work of the Collaborative, a
police training curriculum has been developed to introduce police to methods of
identifying persons with cognitive disabilities, characteristics of such persons that
are relevant to police work, and communication techniques to assist police officers
in working with persons who have cognitive disabilities.
Q. Ideas for Individual Initiatives: You Might Try Mentoring, Business Consulting
and Development Work or Support Planning Involvement
Up to this point in the chapter, we have looked more at community and group initiatives in
the community, but the reality is that making a difference only takes the actions of one.
Three possible ways of becoming involved that require only a part-time commitment
include mentoring, business consulting, and support planning involvement. This section
looks more closely at these service alternatives.
b. Screening of mentors
c. Structured monitoring
e. A focus on the needs and interests of the individual and not the expectations of
mentors.
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Research cited by the U.S. Office of Disability Employment Policy indicates that
mentoring is especially effective in helping those transitioning into the workplace
and adulthood. The U.S. Department of Labor’s Office of Disability Employment
Policy (ODEP) has funded pilot projects to expand the capacity of community and
faith-based organizations to promote mentoring programs for youth with disabilities
through intermediary organizations. (See website: U.S. Office of Disability
Employment Policy http://www.dol.gov/odep/pubs/fact/cultivate.htm
* Business Consulting
Probably the biggest need in terms of providing business consulting expertise concerns
assistance with helping people start their own business or enterprise, i.e., with
entrepreneurship. Today, small business ownership and other self-employment options
have the power to lower the traditionally high unemployment rate among people with
disabilities and help them achieve economic independence. Concerning the benefits of
entrepreneurship, many people with disabilities, particularly those in rural areas where
jobs are often scarce, have already created opportunities for themselves through
entrepreneurship. In fact, according to the U.S. Census Bureau, the 2000 census found
that people with disabilities are nearly twice as likely to be self-employed as the general
population, 14.7 percent compared to 8 percent.
The Service Corps of Retired Executives (SCORE), comprising more than 10,000
counselors at 389 offices nationwide, provides free small business start-up advice
through one-on-one counseling, group workshops and online resources.
Local One-Stop Career Centers funded through the U.S. Department of Labor’s
(DOL) Employment and Training Administration (ETA) assist people in training
for and obtaining employment, including self-employment.
Accessing the resource of the Small Business Administration (SBA) is a good place
to start. The SBA sponsors a variety of programs and resources to assist
entrepreneurs with disabilities start and grow their businesses, including the
nationwide network of SBDCs that offer free or low-cost one-on-one counseling to
help potential entrepreneurs with planning, financing, management, technology,
government procurement and other business-related areas. Other resources, include:
A. the Small Business and Self-Employment Service in the U.S. Department of
Labor’s Office of Disability Employment Policy that provides advice and referrals
to entrepreneurs with disabilities who are interested in starting their own business or
exploring other self-employment options. The SBSES Web site includes links to
other entrepreneurship sites, including the SBA and state VR programs; and B.
Small Business Administration.
After spending time with the individual getting to know about them and their
social network, their needs and dreams for the future, you will need to identify the
role and function you might play to maximize the benefits of your service to the
individual. The following summary looks at some tips on how you might
maximize your experience and service to individual being served. The following
tips and suggestions are offered as general guidelines for effective service as a
team member for an Individual Support Planning meeting. Certain knowledge
and skills are needed to increase the effectiveness of the work accomplished by
the planning team. Below is a summary listing:
1. The team needs to adhere to methods and procedures that support high quality planning.
Preliminary training is recommended to clarify the role and function they will be serving
on the team.
2. Bear in mind that the service and support plan you will be involved with needs to address
three primary needs: a) How does it address the need for belonging? b) How does the
support plan address the need for autonomy, for being one’s own self? c) How does the
support plan address the need for competency?
3. The planning process moves through successive cycles of setting goals, selecting needed
action steps, assessing progress, and then adjusting goals and strategies as needed. For
this yearly, or more frequent, process to be meaningful in the long term, the
identification and statement of a long-term goal or mission is needed.
4. Establishing observable indicators are necessary for meaningful evaluation of the
progress made toward the goals.
5. The team should consider multiple alternatives before making decisions. The loss of
creative potential appears to come about because team members are often over-eager to
commit to the first goal, strategy, or solution that comes up, rather than generating
multiple options and then choosing the best among them. Brainstorming procedures are
helpful in stimulating creative, open-ended thinking.
6. Individual tailoring of the plan to meet the specific needs or goals of the individual is
required based on their own sense of strengths, needs, and priorities.
7. The team needs to assure that there are planning methods in place that lead all members
to feel that their input is respected and valued.
8. In general, conflict around the best ways to achieve goals may be decreased when all
action steps are clearly linked to the goals.
9. Teams require specific strategies for dealing productively with conflict and controversy.
For example, facilitators should be able to recognize and intervene quickly in “negative
process,” any cycle of blaming and attacking behaviors. Where skills in conflict
management are lacking, there is a high probability that the team’s effectiveness will
suffer.
10. Team builds an appreciation of strengths when several strategies are used to focus on
strengths. As much as possible, the individual must be trusted and empowered to drive
the ISP process.
11. When newcomers to the community are members, guidance may be needed as to the
culture of specific communities. Differences in norms and values may increase the
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difficulty that teams encounter in truly hearing the individual and following their lead in
planning.
Chapter 8
Attitude Change
Introduction:
This chapter considers all community perspectives in the need for furthering inclusion: the
first half of the chapter provides information needed by the general community, while the
second half provides information and suggests activities more focused on the individuals
involved. The chapter is introduced with an overview of needed attitudinal changes and
consequent actions needed for a more full sense of inclusion to occur. The material and
activities included in the chapter seek to foster mutual empathy and mutual understanding,
acceptance and growth.
So make a wish
The best to be,
For all on hills,
To all in trees.
If in some rut,
Or sunk within,
Still better dreams
May yet attend.
Tom Nerney, President of the Center for Self-Determination in Ann Arbor, Michigan (see
www.self-determination.com) takes a much more sweeping view of both needed attitudinal
and public policy changes. In his address, entitled “This is Freedom” delivered in June,
2000 before the American Association for Mental Retardation (available at
http://www.aamr.org/Reading_Room/) he overviewed his beliefs this way:
“We believed that all individuals with disabilities are equal and are citizens of this country
and should be part of our communities. Then we looked at what “the system” had wrought
in terms of human services, and we said “they”—people with disabilities served by the
system—are not part of our communities in meaningful ways, not most of them, certainly.
If we believe that people with cognitive disabilities are truly equal and if we had a coherent
legal and ethical theory to back that up, what would we stop doing right now, if we could? I
compiled a very short list of answers.” His list is summarized, as follows:
If there is an overall key to the proposals for attitudinal change noted it is for society to
affirm that a disability label is not the defining characteristic of a person, any more than
one's age, religion, ethnicity, or gender is the defining characteristic. We must never use a
disability label to measure a person's value or predict a person's potential. And we must
recognize that the presence of a disability is not an inherent barrier to a person's success.
The consequence of this position is that we come to conclude that We do not need to
change people with disabilities! The changed needed is to change ourselves and how we
think about disability. If employers believed adults with disabilities have (or could learn)
valuable job skills, we wouldn't have an estimated (and shameful) 75 percent
unemployment rate of people with disabilities. If merchants perceived people with
disabilities as customers with money to spend, we wouldn't have so many inaccessible
stores, theaters, restrooms, and more. If the service system identified people with
disabilities as "customers," instead of "clients/consumers/recipients," perhaps it would
begin to meet a person's real needs (like inclusion, friendships, etc.) instead of trying to
remediate his "problems."
B. Barriers Unseen
The following narrative provides another perspective on the problem of attitudes and the
need for meaningful equality of opportunity. (The following was abstracted from an article
at the American Association of People with Disabilities, AAPD, website http://www.aapd-
dc.org/.)
Barriers Unseen
Without a doubt, no one may credibly disagree with the assertion that we as people with
disabilities must have the same rights and responsibilities as everyone else, but what
exactly does that mean? How will society come to embody a celebration of differences and
a spirit of equality rather than paternalism? This question is sometimes as difficult to
answer as it is to solve, because paternalism is not always obvious and degrading as in
someone blatantly saying, "Awww, look at the handicapped person. Let's do what we can
to minimize what must be a debilitating condition characterized by a lower quality of life."
Rather, the paternalism (though not consciously intended by any means) takes form in more
subtle but no less harmful ways. The attitudes, both of people with and without disabilities,
are key to making the difference between failure and success, ignorance and understanding,
and limited beliefs and boundless expectations. Legislation, litigation, and direct advocacy
185
are only PART of the ultimate solution. The rest must take form in good old-fashioned
basic education.
People with and without disabilities must constantly assess how they are to identify and
confront negative attitudes. What happened to me as a person who is blind may just as
easily have happened to people with any disability and of any age. The disability may vary
as may the particular circumstances and situations, but the fundamental tenets are the same.
Limited beliefs cross all disabilities and have a direct impact on the views of and about the
disability community. These unseen barriers are also a factor behind limited expectations
within social, educational, political, and economic contexts.
Our reaction to all of this, of course, is not to become embittered or to lead members of the
general public to think that we as people with disabilities and those who love and support
us must have some sort of chip on our proverbial shoulders. We need constantly to educate
the public about our abilities and to strive to enable people to understand that the most basic
of daily tasks and recreational activities are not something to be praised simply because we
do them. Instead, we should be praised for the true quality of what we do (judged on the
same expectations as others) and, in a recreational setting, our having fun should simply be
looked at as our enjoying life to the same degree as those without disabilities. People
should not view disability as a basis for our somehow being unluckier than the rest of the
population. Gone are the old notions of disability either as a curse or a blessing. We are
neither tragically deprived nor wondrously gifted simply by virtue of the disabilities we
possess. To cause a revolution in the societal mindset, we as members of a united
community (both with and without disabilities) must renew our commitment to the
ideal of equality of opportunity in every setting. Meanwhile, we as people with
disabilities will assert our right to participate fully in the life of our respective communities,
NOT under the rubric of "beating the odds" but in the spirit of simply doing what others do,
fulfilling and exceeding expectations as others fulfill and exceed them, living as others live,
striving for our dreams in the same way that others do, and persisting to achieve our goals
as all of us should.
As a society, our attitudes may be our greatest assets, or they may be the chief contributors
to our worst downfall. The choice is ours.
C. Working on Communication
It is not unusual for people unacquainted with persons with developmental disabilities to
feel uncomfortable in their presence. One may have doubts about how to act or what to say,
but it is all about manners and respect. The following suggestions are drawn primarily from
the Littleton, New Hampshire website, www.gotlittleton.com.
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Start with hello and consider the first words and actions needed to be no different from the
way anyone else would be treated. Adults are adults. Don’t rush to be helpful. Always ask
before assisting someone with a disability, as your assistance may not be required.
Be considerate of the extra time it might take a person with a disability to do some
things.
Most persons in wheelchair appreciate the attempts you make to speak with them at
eye level.
Give unhurried attention to a person who stutters or has difficulty speaking. Don’t
pretend to understand. If you didn't understand what the person said, ask them to
repeat it.
To aid in lip reading, when speaking to a person who is hard of hearing, look directly
at them, and speak slowly and calmly.
Greet a person who is visually impaired by telling the person your name and where
you are.
Use People First Language, i.e., people with disabilities are people, first. Try saying
'people with disabilities' instead of 'the handicapped' or 'the disabled'.
Although the term is most often used to refer to differences among individuals such as
ethnicity, gender, age and religion, diversity actually encompasses the infinite range of
individuals’ unique attributes and experiences. As the USA’s largest minority – comprising
almost 50 million individuals – people with disabilities contribute to diversity, and
businesses can enhance their competitive edge by taking steps to ensure they are integrated
into their workforce and customer base.
In the Workforce
Perhaps more than any other group of people, individuals with disabilities have the ability
to adapt to different situations and circumstances. As employees, they add to the range of
viewpoints businesses need to succeed, offering fresh ideas on how to solve problems,
accomplish tasks and implement strategies. Hiring people with disabilities can positively
affect a business’s bottom line. Recruiting and retaining workers with disabilities is one
strategy to counter the effects of the aging and shrinking workforce. This untapped labor
pool can offer a source of skilled employees and can contribute to increasing retention and
reducing turnover. In addition, tax incentives and technical assistance can assist with
accommodations, which are often relatively easy and inexpensive to implement. To gain
these benefits and others, employers should take steps to attract and retain employees with
disabilities, such as:
1) Guides to Hiring Practices, which notes the following resources helpful to the potential
employer in ensuring that their hiring practices is inclusive of individuals with disabilities:
2) Disability Friendly Strategies for the Workplace (Prepared in cooperation with the
Business Leadership Network (BLN), an employer-led endeavor of the Office of Disability
Employment Policy supported by the U. S. Chamber of Commerce.
Educate all staff on disability -- Providing disability education dispels myths and enables
all staff to make sound disability employment decisions
Provide accessible facilities and services -- Accessible facilities and services are more
useful for everybody.
This activity is appropriate for presentation before most community groups or groups of
interested citizens. It may be conducted by either a professional or lay persons in the field.
Thoughts and Instructions: First draw a line down the length of the writing pad and on
one side indicate “Positive Characteristics: Strengths and Abilities” and on the other
side note “Negative Characteristics: Weaknesses.” Then inform the group that you have
a point to make about persons with developmental disabilities and you would like to do it
by making a comparison. Start by making a provision to respect the privacy of the
individual involved by asking that they withhold the name or identifying information.
Then ask a volunteer member of the audience to describe first the qualities and
characteristics of a person with developmental disabilities that they know well and start
with the positive characteristics, strengths and abilities. Then ask them to note any negative
characteristics, weaknesses or needs of which they are aware. Number the responses on
both sides.
On a second sheet of paper, ask the same person to do the same task for someone he or she
personally knows well that does not have developmental disabilities. When completed,
compare the numbers on both sheets and point out the likelihood that the positive
characteristics will greatly outnumber the negative characteristics for both individuals
analyzed in the exercise. Then note how this points to our common humanity and similar
range of characteristics. If you look first at abilities and strengths and think of persons with
developmental disabilities as a person first then all sorts of meaningful implications follow.
This exercise is a simple way to pointing out the obvious conclusion that there are many
more similarities than differences, i.e. more common ground and connections than
disconnections.
This is a hands-on, sensitizing activity that uses a variety of teaching tools for sharing with
a community audience. The intent is to educate and provide a heightened awareness of
some the daily realities and challenges faced by persons with disabilities.
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Space Requirements: This was would depend on the amount and size of
the adaptive equipment and devices being utilized.
G. Walk a Mile
This activity builds upon the accepted wisdom in the saying concerning the need to walk a
mile in someone’s shoes before beginning to understand them. This activity has as a
purpose offering others such a perspective.
As a way of providing a reciprocal opportunity to the previous one, this activity proposes a
framework for arranging additional mutual encounters and learning experiences.
Thoughts and Instructions: This activity might be made part of a packaged deal with the
previous one. It would then be viewed as the second part of a mutual learning experience
when marketed to the community. In other words, the proposal would be to combine two
“Welcome to my World” experiences. The community member would have the
opportunity for a first hand experience in the world of the consumer and the consumer
would likewise be afforded a similar opportunity. In reciprocating, the arrangement might
simply be to have lunch together at a favorite restaurant, to take a short tour of the office or
worksite of the community member, or share a night out at a local sporting event. The
person charged with finalizing the arrangements, the Coordinator, would need to take into
consideration the needs and interests of both parties and mediate any differences that might
surface.
I. Frat Chat
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“Frat Chat” could be scheduled for the period of an hour during the morning or afternoon
break time, or after work for that matter. To reduce uncertainty, schedule it for the same
day at the same community location each week. Arrangements might be coordinated with
five different community merchants to be held at a different location each day. This
strategy would spread the opportunity throughout the community. Informative flyers could
be circulated announcing the arranged dates and locations and a calendar might be posted
in service agencies as reminders. Keep guidelines simple, e.g., this is simply an
opportunity to get to know an active member of the community who is interested in all of
the people in the community. Therefore, let them know what you do, how you think, and
emphasize your strengths and abilities. Keep expectations minimal and bill the event
simply as a chance to meet new people and chat.
This activity both offers a volunteer service opportunity to interested members of the
community, as well as a potentially enabling and empowering experience and service to
persons with developmental disabilities.
Thoughts and Instructions: Initially, contacts would be made with community individuals
and groups to recruit and enlist volunteers. This activity primarily involves the coordination
of volunteers and services, information dissemination, making physical arrangements and
assisting as needed with scheduling. Community member expertise would be needed over
an array of daily living needs and issues. For example, consultations might be offered at
nominal or low cost to individuals with developmental disabilities concerning meal
planning and preparation tips, basic budgeting and money management problems, small
business development issues, recreational and exercise needs, health or legal advice, safety
planning, social etiquette issues, event planning, etc. If the request for volunteer time was
kept minimal, e.g. for only one hour each week or each month, it will appear to be more
realistic and a less daunting request.
Ground rules and limits on the each service would need to be determined and logged.
Service providers would need some type of orientation and training to effectively address
the needs of the individuals with whom they would be working. Similarly, each individual
requesting service would need to be screened for the appropriateness of the request and the
goodness of fit with the service provider. The appointments would also need to be
coordinated with support staff or family, and transportation arrangements finalized. Due to
the scheduling and coordination demands, this service might be offered under the auspices
of a current community human services agency as a supplemental program offering. Other
than basic good listening and problem-solving skills, the volunteer would not be expected
to possess any special sophistication. Depending on the needs of the individuals involved,
this activity could also be conducted, at least in part, as a telephone or email consultation
service.
Thoughts and Instructions: After recruiting interested individuals and securing service
commitments, assistance might be provided, as needed, in fashioning and tailoring the
information and message, they may wish to share. It might be supplemented with
appropriate audio-visual supports to give their message a greater impact. The emphasis
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would be on simply telling others about themselves, their strengths, talents and dreams for
both themselves and the community.
Perhaps a community volunteer could be enlisted to act as a consultant or coach for the
Speakers Bureau. Arrangements would also need to be made for practice and rehearsal
purposes. The closest approximation of the actual speaking venue would be a helpful aid to
learning. If information about the availability of the service is spread through local public
service announcements or in connection with a chamber of commerce or community
internet sites, the demand for brief, or even more extended presentations, might be
cultivated.
Thoughts and Instructions: Initially, the abilities and desires for service, as well as the
number of hours and days available would need to be surveyed to determine the level of
interest of the participants. This information would need to be matched with the results
from a similar survey of the volunteer needs of community service agencies, organizations
and identified projects. Unless the initiative is taken on strictly an individualized basis, a
group leader or Coordinator of the activity would need to be selected. The main
responsibility of this person would be to arrange and facilitate the volunteer service bureau.
Arrangements would need to be made and confirmed in advance to permit coordination of
transportation, provision of any specialized training or advanced instructional needs, as
well as follow-up to evaluate the experience and need for further volunteer work in the
future. An example of such an initiative was a project for delivering daily hot meals to ill
and elderly persons in the community accomplished through a coordinated program of
Southern Colorado, Developmental Disabilities Services in Trinidad, Colorado (see
www.scdds.com for further information).
The person arranging the volunteer work, or the Coordinator if done as an agency initiative,
might be encouraged to document the experience through photos, videotaping short
segment, or use of other supplemental memorabilia that illustrate and help others to
understand the experience and decide if they might like to participate. This information
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could later be used in sharing experiences with other potential volunteers, recruitment
purposes, or evaluating the experience for future referral.
By emphasizing the positive and the joys found in community involvement, this activity
seeks to reinforce and emphasize the things that were done well, and accomplished through
more active community involvement. It may serve to help identify the directions needed for
the future.
Thoughts and Instructions: Ask the individual or group to point out the things that came
easiest or most natural and proved most enjoyable from their experiences of involvement in
community life. Ask about those experiences and what was most enjoyable or personally
rewarding. Explore how one might go about increasing both the number and length of those
experiences. Ask and explore the topic of what needs to happen for this to happen.
Explore what the experiences tell you about yourself, your needs and desires, and what help
this information might offer you in planning future involvement in community life.
The purpose of this activity is to see difficulties and problems in a more positive light, i.e.,
opportunities to learn and grow from the experience. The activity provides a practical
learning and problem solving experience that serves to demonstrate the steps in problem
solving as well as provide an opportunity for sharing and further developing mutual
support.
Thoughts and Instructions: This mutual sharing activity asks the participants to identify
examples and instances they found to be the most difficult or troubling to them in their
attempts to involve themselves in the life of the community. Whether the examples are
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drawn from volunteer work, paid employment, special events, community outings, or
simply the everyday encounters of daily life, share the information for the purpose of
deciding what might be learned by the individual and by others as a result. This type of
group activity might be designed with an assorted mixture of people present, a type of
community forum. In other words, members of the community who have been active with
issues advancing the needs of persons with developmental disabilities would be meeting
with persons with developmental disabilities to better understand their current and future
needs.
This forum would present an opportunity to explore fully both the greatest difficulties and
the major lessons learned to date in advancing the cause of inclusion. The question then
posed for the group might be “What did that experience teach you that you would like to
share with the group?” This forum would provide a method and vehicle for facilitating an
open discussion of community-based issues.
This activity might be done by any member or group of community members. It starts by
assuming that communities, i.e., the place of common union, are like people. They change,
develop and grow over time and will eventually die. This activity invites the individual or
group to compose a fitting epitaph, i.e., the inscription on a memorial to be erected for the
community.
Thoughts and Instructions: While poets have previously branded “exclusion” as the
dirtiest word in the language, it seems that less attention has been given to the true value
and worth of inclusion for every member of the community. This activity may help to
address this deficiency of perspectives. It may be done individually or in a group setting.
Ask the audience to assume that the end of the community has come, for whatever reason
imagined, and that it is now time to compose a few words to serve as fitting memorial to
the life of the community. The following directions are given:
1. Briefly write or tell me what is the most fitting epitaph that best describes the life and
accomplishments of the community?
2. If your efforts and the efforts of other members of the community could change things
in your community, how would you like the epitaph to read?
3. Regardless of the inscription composed, allow the factor of community inclusion to be
reflected in your answer.
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What would then be done with this epitaph and with whom it might be shared will be left
to the imagination of the reader.
Good Luck!!
I hope it works...
Chapter 9
Introduction:
One of the assumptions this book works from is that the possibilities for living and doing
well in the community with some measure of support and planning is the option that
persons with developmental disabilities will most want and need to pursue. Hopefully, this
guidebook has helped in some way to advance on that path. However, from my own
experience I know that this option will be much easier for some to develop than others.
Along the way I have met any number of individuals that presented daunting challenges
and obstacles to accomplishing this purpose. Perhaps the reader is now confronted with
such a challenge and needs more assistance and guidance than has been provided so far.
This chapter is meant to address those needs and challenges. Rather than using an activity
format, this chapter is presented in a question-and-answer format that seeks to provide
meaningful information and some directions on where to turn and directions to take.
Answer: First, start locally with visits and consultations with your local or area
developmental disability services agency. Typically, these professionals have the expertise
and experience in either directly dealing with challenging behaviors and difficult issues or,
if not, will likely be able to steer you in the right direction and assist you in finding the
specialized you may need. They will also be able to put you in touch with support groups
and the resources available from other individuals and families dealing with similar issues.
Second, consult with your local ARC and talk with individuals and families who have
personal experience to draw upon in answering your questions. The ARC is an organization
composed of such people and supportive others. They are devoted to promoting and
improving supports and services for people with mental retardation and their families. The
Arc is a grassroots organization now with about 140,000 members affiliated through
approximately 1,000 state and local chapters across the nation. At the national level, a 24-
member national board of directors and a delegate body of representatives from each
chapter guide The Arc's work. Their national headquarters are located in Silver Springs,
Maryland, Bedford, Texas and Washington, D.C. The mission statement of The Arc reads
as follows:
The Arc of the United States (see www.thearc.org) “advocates for the rights and full
participation of all children and adults with intellectual and developmental
disabilities. Together with our network of members and affiliated chapters, we
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Answer: The truth is that persons with developmental disabilities are vulnerable to
maltreatment and mistreatment. Among others, the international nonprofit agencyof people
with disabilities, their family members, other advocates, and professionals, formerly
referred to at the Association for the Severely Handicapped, that now goes by its acronym,
TASH, has taken a firm stand on this issue that one needs to know about. TASH has
gained international acclaim for its uncompromising stand against separatism,
stigmatization, abuse, and neglect. They actively promote the full inclusion and
participation of persons with disabilities in all aspects of life. Their mission is to eliminate
physical and social obstacles that prevent equity, diversity, and quality of life. Twenty-five
years ago the organization adopted the following resolution:
“TASH affirms the right of all persons with disabilities to freedom from coercive and/or
aversive procedures of any kind. TASH is unequivocally opposed to the inappropriate and
prolonged use of restraint and seclusion. They urge every state to pass legislation that result
in the cessation of dehumanizing and unnecessary use of restraint and seclusion.
200
3. physical injury and potential or actual side effects such as tissue damage, physical
illness, and/or severe physical or emotional stress;
4. effects which would require the involvement of medical personnel, and/or other
health care authorities;
5. ambivalence and/or discomfort on the part of the individual, family, staff, and/or
caregivers regarding the use of interventions or their own involvement in such
interventions;
7. the use of physical restraint for any purpose other than crisis intervention to
protect individuals from imminent harm; and/or
8. the use of sedative drugs (chemical abuse or restraint) for the sole purpose of
behavior management.
BE IT FURTHER RESOLVED, THAT TASH, calls for all persons with severe
disabilities to have access to approaches that enable them to positively affect their lives in
ways that are meaningful to them.
Therefore, educational and other support services applied in situations involving problem
behavior must:
2. be based on a functional behavioral assessment of the internal and external variables that
may be affecting the person's behavior; and
adversely affect his or her behavior. Further, supports should be provided in a manner
that maximizes access to, and participation in, the full range of typical home, school, and
community settings, in order to maximize the individual's personal well being.
Adopted October 1981
Revised November 1986
Revised March 2000”
Second, you need to be informed concerning Positive Behavior Support (PBS). As is noted
on the website of the Association for Positive Behavior Support (see www.apbs.org) PBS
involves changing situations and events to reduce the likelihood that challenging behaviors
will occur while increasing social, personal and professional qualities and events in their
lives. It is referred to as a set of research-based strategies used to increase the quality of life
and decrease problem behavior by teaching new skills and making changes in a person’s
environment (both home and community). It combines valued outcomes, behavioral and
biomedical science, validated procedures and systems change to enhance the quality of life
and reduce problem behaviors, including self-injury, aggression, property destruction, pica,
defiance and disruption. It involves a team of individuals working together to create
prevention strategies and includes processes for functional assessment, comprehensive
intervention, and lifestyle enhancement.
You need to be aware that a synthesis of more than 100 research articles (see
http://ericec.org/digests/e580.html) that involved individuals with various cognitive
disabilities found that:
Research in PBS is rapidly contributing to our knowledge of how to use the results
off assessments and how to correct environmental deficiencies.
PBS is effective in reducing problem behavior by 80 percent in two-thirds of the
cases.
Success rates are higher when intervention is based on prior functional assessment
TASH makes this summarization of PBS: “Focusing solely on the reduction of problem
behaviors such as through the use of positive or negative consequences, and/or simply
reinforcing appropriate behaviors by itself is not considered PBS. PBS interventions and
supports involve teaching new skills to replace problem behaviors over time, and assisting
the individual to change their interactions. This change must be based on the conduct of a
Functional Behavior Assessment. An important difference between positive strategies and
restrictive strategies is that positive strategies place treatment emphasis on making
desirable responses more probable, where restrictive strategies focus on making negative
responses less probable. With positive approaches to behavior change, as desirable
behavior increases, problem behaviors, including aggression, self-injury, tantrums, and
property destruction become less likely to occur.
When individuals with disabilities are supported in ways that validate their worth and when
their attempts to communicate through their behavior are responded to constructively, they
have less need to behave in ways that are dangerous or that challenge those around them,
and the quality of life of all involved improves. This is the goal of positive approaches to
behavior change.”
Bambara, L.M., Dunlap, G. & Schwartz, I.S. (Eds) (2004) Positive Behavior
Support: Critical Articles on Improving Practice for Individuals with Severe
Disabilities. PRO-ED: Austin, TX
Carr, E. G., Horner, R. H., Turnbull, A. P., Marquis, J. G., McLaughlin, D. M.,
McAtee, M. L., Smith, C. E., Ryan, K. A., Ruef, M. B., Doolabh, A., &
Braddock, D. (1999). Positive behavior support for people with developmental
disabilities: A research synthesis. Washington, D.C.: American Association on
Mental Retardation.
Carr, E.G., Dunlap, G., Horner, R.H., Koegel, R.L., Turnbull, A.P., Sailor,
W.,Anderson, J.L., Albin, R.W., Koegel, L.K., & Fox, L.(2002) Positive
Behavior Support: Evolution of an Applied Science. Journal of Positive
Behavior Interventions, 4, 4-16,20.
Center for Effective Collaboration and Practice (see www.cecp.air.org) at the
University of Oregon and associated with the American Institutes for Research
the latest methods and advancements in the field are discussed.
203
Horner, R.H.,Vaughn, B.J.,Day, H.M., Ard, Jr., W.R. (1996). The Relationship
Between Setting Events and Problem Behavior. In R. Koegel, L.Koegel & G.
Dunlap (Eds.) Positive Behavioral Support: Including People with Difficult
Behavior in the Community. (pp 381-402). Baltimore: Paul H. Brookes
Publishing Company.
Answer: Generally, the direction to take is first to eliminate possible physical causes of the
concern or problem. However, recognize that multiple factors may be involved. For
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example, an authority in the field, Joe Schiappacasse, who previously both consulted
nationally and worked with the State of Colorado’s Department of Developmental
Disability Services’ Behavior Pharmacology Clinic, noted over 85 percent of the people
seen in their traveling clinics for behavioral problems actually had an undiagnosed or
untreated medical or neurological condition that either caused or contributed to the
"problem behavior." He notes that “Our society has been programmed to see a person's
‘problem behavior’ as a willful act of choice, instead of as a symptom of a person's whole
being-current biology included.” He noted that while applied behavioral analysis was often
a useful tool, it needed to be combined with “…medical, neurological, biological,
contextual, spiritual, and cultural assessments. And through these processes, our goals must
always include a plan to discover, from the individual being assessed, ‘Who do you want to
be?’ and to learn what intrinsic (internal) motivators and reinforcers he prefers.” (See
interview, “Joe Schiappacasse on Everyone's Behavior” in Kathie Snow, (Ed.),
Revolutionary Common Sense Newsletter, Oct-Nov 2001 and Dec 2001-Jan 2002 available
at: http://www.disabilityisnatural.com/email/index.htm)
Answer: Definitely. Repetitive, challenging behaviors over time is able to wear down and
exhaust the patience of most people, even those with extensive training and experience.
Direct care and treatment staff appear to be the most vulnerable for this eventuality. Aside
from the issue of staff in frustration resorting to coercive and restrictive procedures, it is
also possible for supposedly supportive environments to lead to the unlearning of positive
behaviors, as well as the creation of new dependencies.
Joe Schiappacasse discussed this question in conjunction with his introducing the
concept of “enviable behavioral supports.” In the disabilityisnatural.org interview noted
in response to the last question, Joe was quoted as follows: “It's a concept I use in an
attempt to get at the core of what positive behavior supports really are. The concept of
positive behavior supports has been twisted into so many different things. Some people
define positive behavior supports as "not using aversives." Well, that's a nice start, but it's
only a fraction of what positive support requires. While I appreciate the concept of not
using aversive treatments, people with disabilities can still be hurt under the auspices of
what some people call positive behavior supports. Not taking a long-term, whole-person
perspective; building in artificial supports without a plan to fade them to natural and
community supports; indiscriminately reinforcing certain system and staff behavior; or
predominately using extrinsic forms of reinforcement are just some of the ways that well-
intended support can create greater problems for the individual.
It's time to up the ante and focus on enviable behavior supports. We'll know supports are
"enviable" when a person looks at the supports and approaches being used in another
person's life and says, "Hey, that looks good to me! Can you do the same thing with me?
Those are the things I need in my life."
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Consider the flip side: how many of us have ever read the behavior plan written for a
person with a disability and said, "Gee, I'd like this to happen in my life."Providing
enviable behavior supports is really a common sense approach that's right for all human
beings. We've got to move beyond offering supports from an “us vs. them" orientation.”
It's time to recognize that people with disability labels have abilities! The solution to
behavioral complexities will come not from focusing solely on a person's perceived
deficits, but from identifying and understanding a person's abilities, gifts, and desires.
Looking at the whole person is the key. And the ultimate test of whether we're providing
healthy behavioral supports is really quite simple: do the supports sustain and increase an
individual's belonging, autonomy, and competence?
.
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Chapter 10
Supplemental Resources
The following are supplemental resources and listings of resources that may be of value
both to the individual with developmental disabilities and their families, guardians and
service and support workers.
Participant:___________________________
Date: ________________________
Observer: ______________________
Other Comments:
__________________________________________________________________
__________________________________________________________________
__________________________________________________________________
2.
3.
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2.
3.
4.
5.
Possible Solution #2
Possible Solution #3
Possible Solution #4
Will’s Story
Will was doing just fine in his apartment until his roommate, who shared all the expenses
with him, decided to try the greener pastures of a newer apartment and moved. Will’s
monthly expenses greatly increased, which left his budget almost unworkable. On top of
this situation, a new neighbor, Harry, moved next door and started contributing to his
problems. Harry would drop by for a visit at all hours, even late at night, asking to use
Will’s telephone. Will was a friendly guy and wanted to get along with his new neighbor,
so he told Harry that it was okay for him to use his telephone whenever he needed. Harry
seemed to talk forever on the phone now, and it kept Will from keeping in touch with his
friends and family as he used to do.
At the end of the first month when Will got his telephone bill, he found out that Harry had
been making long distance telephone calls and charging them to Will’s phone number. The
next time Harry stopped by to use his phone, Will told him about the problem. Harry told
him that he would stop by soon and pay what he owed, but he failed to do so. When asked,
Harry would come up with a reason that he wasn’t able to pay, and Will went along with
the excuses. Then Will started noticing that food was missing. It started out with Will
missing a can of Spaghettios; then he noticed that the carton of milk was gone, then the
potato chips, then the steak he bought. When he asked Harry about it, he told him he
didn’t know anything about the food.
At the end of the following month when Will sat down with a friend that helped him write
his checks and pay his bills, he discovered that he did not have enough money in the bank
to cover either the phone bill or the electric bill. He barely had enough money left to buy
the food he would need. It seemed his grocery bill was skyrocketing since his new
neighbor Harry moved next door. Shortly after failing to pay his utility bills, he received a
notice from the utility companies saying they were going to turn off services soon unless he
made the payments in full. This really bothered Will. It became very hard for him to fall
asleep at night. As a result, he started showing up late for work the next morning. After the
third time it happened, Will’s his boss talked to him about it and warned him that he was at
risk of losing his job if he kept showing up late. Now Will became very worried and
frightened about his future. He now had so many problems he wasn’t sure what all they
were. Also, he asked himself what he was going to do to cope and solve his problems.
1. Tip from Tae Kwon Do: The elbow is the strongest point on your body. If you
are close enough to use it, do!
2. If a robber asks for your wallet and/or purse, DO NOT HAND IT TO HIM.
Toss it away from you....chances are that he is more interested in your wallet
and/or purse than you, and he will go for the wallet/purse. RUN LIKE MAD
IN THE OTHER DIRECTION!
3. If you are ever thrown into the trunk of a car, kick out the back tail lights and
stick your arm out the hole and start waving like crazy. The driver won't see
you, but everybody else will. This has saved lives.
4. Women have a tendency to get into their cars after shopping, eating, working,
etc., and just sit (doing their checkbook, or making a list, etc. (DON'T DO
THIS!) The predator will be watching you, and this is the perfect
opportunity for him to get in on the passenger side, put a gun to your head, and
tell you where to go. AS SOON AS YOU GET INTO YOUR CAR, LOCK
THE DOORS AND LEAVE.
5. If someone is in the car with a gun to your head DO NOT DRIVE OFF; repeat:
DO NOT DRIVE OFF! Instead, gun the engine and speed into anything,
wrecking the car. Your Air Bag will save you. If the person is in the back seat
they will get the worst of it. As soon as the car crashes, bail out and run. It is
better than having them find your body in a remote location.
6. A few notes about getting into your car in a parking lot, or parking garage:
a.) Be aware: look around you, look into your car, at the passenger side
floor, and in the back seat.
b.) If you are parked next to a big van, enter your car from the passenger
door. Most serial killers attack their victims by pulling them into their
vans while the women are attempting to get into their cars.
c.) Look at the car parked on the driver's side of your vehicle, and the
passenger side. If a male is sitting alone in the seat nearest your car,
you may want to walk back into the mall, or work, and get a
guard/policeman to walk you back out.
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7. ALWAYS take the elevator instead of the stairs. (Stairwells are horrible
places to be alone and the perfect crime spot. This is especially true at
NIGHT!)
8. If the predator has a gun and you are not under his control, ALWAYS RUN!
The predator will only hit you (a running target) 4 in 100 times; and even
then, it most likely WILL NOT be a vital organ. RUN, preferably in a zig –
zag pattern!
Shannon LaForge
Courtroom Deputy to Judge Robert Junell
U.S. District Court for the Western District
Eichstaedt, C. B., & Lavay, B. W. (1992). Physical Activity for Individuals with
Mental Retardation. Champaign, Illinois: Human Kinetics Publishers. (800/747-
5698)
Gabler-Halle, D., Halle, J.W., & Chung, Y.B. (1993). The effects of aerobic
exercise on psychological and behavioral variables with individuals with
developmental disabilities: A critical review. Research in Developmental
Disabilities, 14, 359-386.
Websites:
http://www.healthyvirginians.virginia.gov/Resources/HV-
ConferenceMats/Special%20Pops%20Track_Ward.ppt
(http://www.nal.usda.gov/foodstamp/Topics/disab1.html#disabphysact
People with developmental disabilities can live healthy lives. Many federal and
federally-funded programs help people learn to live well with a disability. We list
some of these efforts below.
Closing the Gap: A National Blueprint to Improve the Health of Persons with
Mental Retardation
People with mental retardation grow up and grow older and need good health and
good health care, just like anyone else. But people with mental retardation may face
extra problems in staying healthy and in finding the right health services when they
are sick. In December 2001, the U.S. Surgeon General held a conference on health
disparities and mental retardation. Closing the Gap: A National Blueprint to
Improve the Health of Persons with Mental Retardation is the official report
from that conference. The report identifies problems and proposes solutions. It sets
goals in several areas to improve the health of people with mental retardation,
including health promotion and community environments, knowledge and
understanding, quality of health care, training health care providers, health care
financing, and sources of health care,
http://www.surgeongeneral.gov/topics/mentalretardation/.
Ask people with disabilities about their needs and expectations. Include them in
planning, implementing and evaluating your program. Encourage feedback and
listen to their concerns. No one sees the obstacles to access like someone who must
overcome them.
Check that programming is accessible. For example, look for safe, well-lit and
attractive walkways with ample width and curb cuts for bicycling, walking and
wheelchair activities; and, parking spaces that provide room for vehicles' ramps.
Ask a person with a disability for an assessment of your facility's accessibility.
Think about how activities can be adapted and what adaptive equipment is
available. The professional associations and resources listed at the end of this
brochure can provide guidance and identify sources of assistance or adaptive
equipment.
There are many important reasons to make the effort to create a universally
accessible program:
People with disabilities benefit from physical activity. When people with
disabilities stay physically fit, they accrue the same health benefits enjoyed by
215
others and, at the same time, reduce their risks for developing additional health
problems.
You may only have to move an activity to an accessible room with a doorway
that is wide enough for a wheelchair. Or, you can show an individual how to
perform an exercise differently or with adaptive equipment. You can also move
equipment along the paths that already exist between equipment in your gym.
Some exercises and sports can be modified with adaptive equipment, such as a
hand-pedaled, stationary bicycle; or by performing them differently, such as by
sitting for an aerobic or hand-weights class. Adaptive equipment is available
for most activities, and prices vary.
Together with the individual with a disability, decide what is needed. For more
ideas and assistance, contact the professional organizations and agencies listed
at the end of this brochure.
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OK. That makes sense. I like believing I can help people feel
better and healthier. But, how can I adapt programs and
exercises? I don't have any special training.
The first step is to relax! Use your imagination and professional experience
and work together with the individual to design a program.
The usual recommendation to consult with one's physician before
beginning any physical activity program holds true for people with
disabilities. The health care professional may suggest certain exercises or
activities that the person should perform, as well as those that he or she should
avoid.
Safety measures should be matched to the person's functional level. For
instance, make spotters available for people with disabilities who are using free
weights, or offer floatation devices for pools.
Next you need to learn about the individual's physical capabilities; health
goals; special interests and strengths; and, learning style. You also need to
identify activities that may be difficult to perform safely, as well as the person's
current level of functional ability. Most importantly find out what they like to
do. You do all this by simply asking. Get to know the person, just as you would
any new member.
Adapting is nothing more than using your professional skills and natural
creativity in a different way. In some cases, adapting may simply mean taking
an ordinary object and turning it into an adaptive device. For example, an elastic
wrap may be used to assist with gripping free weights or to secure feet or hands
to a bicycle or an arm ergometer.
When creating a program with your client, keep in mind that people with
the same disability can differ greatly in their levels of abilities. That's why
it's important to be clear about the person's abilities, limitations and exercise
preferences. Does he or she feel fatigued while exercising? Maybe he or she is
working too hard. Work together to find a comfortable level. Do certain
movements cause pain or discomfort? Stop, and try to perform the exercise
differently.
It's important to keep the lines of communication open. A person beginning
a physical fitness program may not know what to expect. He or she may feel
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Programs for people with disabilities should improve flexibility, strength and
endurance, all of which are necessary to perform activities of daily living (ADL),
such as getting out of bed, transferring (i.e., the act of getting into and out of a
wheelchair), dressing and grooming, and showering and bathing. When a person has
a disability, being physically fit can help him or her perform ADLs more easily.
The following list is not exhaustive, but it highlights activities that may be more
appropriate for people with disabilities. It will give you some general ideas of
where to start making individual modifications.
Also, guidelines for modifying exercises for specific disabling conditions and for
monitoring the intensity of aerobic activities can be found in the books or from the
organizations listed in this brochure.
Flexibility
Strengthening
For individuals with limited strength, such as those with multiple sclerosis, a
buddy can provide resistance. In another strengthening technique, the individual
is positioned on a weight bench, and his or her trunk and extremities are stabilized.
A trunk stabilizing belt may be used. Any sign of skin sensitivity or breakdown
should be monitored.
Help the individual practice the rules of safe lifting: stretch before lifting;
breathe normally when lifting; use smooth movements. That might mean using
lighter weights. Lift slowly, 2 to 4 seconds per lift. Stay in the pain-free range.
Avoid soreness. If the person is sore after lifting, use less weight, for fewer times,
and less often.
Endurance
For people with quadriplegia (paralysis of the legs and arms), depending on t
he level of injury and the individual's voluntary control of the extremities,
endurance activities can include arm bicycling and wheelchair training. Grip
gloves or cuffs can help a person grasp handles of exercise equipment. Trunk
stabilizing belts can be used on strength training or endurance equipment.
People with multiple sclerosis or lower body limitations may benefit from
aerobic exercise performed while sitting or in a pool.
Professional Associations
For AAALF (part of AAHPERD), contact Dr. Janet Seaman, AAALF Executive
Director, at the address, telephone or e-mail address above.
For APAC (part of AAALF), contact Dr. James H. Rimmer, APAC Chair, at
(815)753-1401; e-mail: jrimmer@niu.edu
National Consortium for Physical Education and Recreation for
Individuals with Disabilities
Contact: Dr. Claudine Sherrill
89 Windjammer Dr.
Frisco, TX 75034
e-mail: F_Sherrill@Twu.edu
H. Additional Resources:
1.
The following is a list of Disability Resource Links which may be explored further
at the AAPD website, i.e., http://www.aapd-dc.org/index.php
ADA ACCESS,
ADAPTIVE MOBILITY
ADVOCACY
ASSISTIVE TECHNOLOGY
ASSOCIATIONS/ORGANIZATIONS
BULLETIN BOARD/NEWSLETTER
DISABILITIES
EDUCATION
EMPLOYMENT
FAMILIES
GOVERNMENT RESOURCES
HEALTH
HOUSING
INDEPENDENT LIVING
INTERNATIONAL
MAGAZINES/PUBLICATIONS
MEDIA/ARTS
SCHOLARSHIPS/AWARDS
STATES
TRAVEL/RECREATION
WOMEN
2.
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M. Community Living
N. Criminal Justice
O. Education
P. Employment
Q. Family Support
S. Future Planning/Guardianship/Trusts
T. Health Promotion
X. Self-Determination/Self-Advocacy
Y. Sibling Support
Z. Supports/Services
9. Best Buddies – The mission of Best Buddies is to enhance the lives of people
with mental retardation by providing opportunities for one-to-one friendships and
integrated employment.
research and teaching in biomedical ethics and other areas of applied ethics. The
Institute also houses the most extensive library of ethics in the world, the National
Reference Center for Bioethics Literature; produces bibliographic citations
relating to bioethics for the online databases at the National Library of Medicine;
and conducts regular seminars and courses in bioethics.
21. The Guided Tour, Inc. - http://www.guidedtour.com/. Since 1972, this site has
been providing travel and trained staff who specialize in services for persons with
developmental and physical challenges.
26. Irwin Siegel Agency, Inc.- An insurance agency that has developed an
insurance program specifically for agencies providing services to people with
disabilities - and their special coverage needs.
opportunity to make choices regarding the quality of their lives and be included in
the community; and to provide support and assistance to member Councils.
31. National Home Of Your Own Alliance - http://alliance.unh.edu/. The Web site
of a unique program, initiated by the Institute on Disability, a University Affiliated
Program, that provides persons with developmental disabilities the choice to lease
or purchase their own home, thereby freeing them from the constraints of
institutional living and giving them more control over their lives and the services
they require.
33. Rehabilitation Research and Training Center on Aging with Mental Retardation
(RRTCAMR) - http://www.uic.edu/orgs/rrtcamr/. A national resource for
researchers, planners, providers, self-advocates, families and students in the field of
aging and mental retardation.
Strive for the lower figure at all times. The upper limit is for very
physically active lifestyles. It's not an okay to eat up to that amount
if you can't justify it. ACTIVE is physical activity like regular
competitive sports, running, swimming, etc. It is NOT playing video
games, chasing the dog around the yard, or playing a few games
of hoops on the weekend. Each pound you gain or lose is 3,500
calories and the amount you gain or lose is CUMULATIVE in
excess of what your body needs as a minimum. ONE large
hamburger, large fries, a large soda and desert can easily be 80%
of your daily minimum. If you add 500 calories per day of food and
are not active enough each day to offset that 500 calories, in just 7
days you will gain 1lb, in one month 4lbs and one year 52lbs. Of
course, if you exercise and use up the 500 calories ABOVE what
you consume, you will LOSE the weight.
HOW MUCH IS
'ONE SERVING'?
FRUIT GROUP
1 whole medium fruit (about 1 cup)
1/4 cup dried fruit
1/2 cup canned fruit
1/2 to 3/4 cup fruit juice
BREAD & CEREAL GROUP
1 slice bread
1 medium muffin
1/2 hot dog bun or hamburger bun
1/2 bagel or english muffin
4 small crackers
1 tortilla
1 cup cold cereal
1/2 cup cooked cereal
1/2 cup rice
½ cup pasta
This table shows approximately how many servings of nonfat, lean foods are
needed for three different calorie levels (1,600, 2,200, and 2,800 calories).
HOW MANY SERVINGS DO YOU NEED EACH DAY?
CHILDREN, WOMEN, TEEN GIRLS, ACTIVE TEEN BOYS,
OLDER ADULTS WOMEN, MOST MEN ACTIVE MEN
CALORIE LEVEL¹ ABOUT 1,600 ABOUT 2,200 ABOUT 2,800
Milk & Milk
2 to 4 2 to 4 2 to 4
Products Group²
Meat & Meat
2 2 3
Alternatives Group
Vegetable Group 3 4 5
Fruit Group 2 3 4
Bread & Cereal
6 9 11
Group
Total Fat (grams)³ 36 to 53 49 to 73 62 to 93
¹These are the calorie levels if you choose nonfat, lean foods from the five major
food groups, and use food from the fats, oils, and sweets group sparingly.
²Teens, young adults, pregnant and nursing women, and women concerned
about osteoporosis prevention need at least 4 servings (or additional calcium from
alternative sources).
³The lower number is 20% of daily calories from fat; the higher number is 30%.
If you are really concerned about disease prevention, try to get down to 20% fat.
Sources: U.S. Department of Agriculture, U.S. Department of Health and Human Services
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Eat a diet low in saturated fat. See the American Dietetic Association factsheet at
http://www.ncpad.org/newsletter/newsletter.php?letter=37§ion=503#11 for a
primer on fats and oils.
Eat a diet filled with high-fiber, whole-grain carbohydrates. Healthy carbohydrate
sources include grains (brown rice or pasta, whole-grain breads/cereals -- one slice
of high fiber bread can have as much as 4 grams of fiber), beans, fruits, and some
vegetables, which are high in fiber, and have plenty of vitamins and minerals
(http://www.ncpad.org/nutrition/fact_sheet.php?sheet=263&view=all;
http://www.ncpad.org/nutrition/fact_sheet.php?sheet=296&view=all).
o Watch portion control (http://www.ncpad.org/nutrition/fact_sheet.php?
sheet=91&view=all).
o Read labels to choose foods that comprise a healthful diet
(http://www.ncpad.org/nutrition/fact_sheet.php?sheet=94&view=all). For
example, be aware of the distinction of the following keyword labels:
fat-free: less than .5 grams of fat per serving
low-fat: 3 grams of fat (or less) per serving
lean: less than 10 grams of fat, 4.5 grams of saturated fat, and no
more than 95 milligrams of cholesterol per serving
light (lite): one-third less calories or no more than half the fat of the
higher-calorie, higher-fat version; or no more than half the sodium of
the higher-sodium version
cholesterol-free: less than 2 milligrams of cholesterol and 2 grams
(or less) of saturated fat per serving
Nutrition Fact Sheets; Quality & Outcomes, Good Nutrition Reading List, Food
Guide Pyramid, ADA Journal, Daily News, Scientific Summaries, and Medical
Nutrition Therapy. A listing is provided for international organizations in the field
of dietetics, food and nutrition organizations, and governmental resources for
230
2) Hand out fliers with your pet's picture on them and your phone
number. Fliers need only have a clear photo of the animal and a telephone
number that someone will answer or that is hooked to an answering
machine.
You will need to go to the shelters at least every other day. Few shelters can
keep animals for more than 72 hours. Sometimes it takes more than a few
days for a pet to be picked up and brought to a shelter.
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It's important to visit all the shelters within 20 miles of where your pet was
lost. In many areas stray animals are picked up by a government agency
which holds them for a period and then turns them over to a shelter. If
someone took your pet in for a few days hoping you would knock on their
door and ask about it, they might later drop your pet off at the shelter that's
most convenient for them, rather the one that's closest.
http://www.hawaii.gov/health/disability-services/neurotrauma/key-services-money.html
Build a community online from members such as a forum or chat room. Tech
support, programming, web development, and internet marketing community.
http://www.daniweb.com/techtalkforums/thread35086.html
Kretzmann, J.P. & McKnight, J. (1993). Building communities from the inside
out: A path toward finding and mobilizing a community's assets. Chicago:
ACTA Publications, 4848 North Clark Street, Chicago, IL 60640. Phone: 800-
397-2282.
One of the outcomes of the Council's community planning activities is the creation
of, and continued support to, community networks that work to resolve social
problems that concern the community at large, including issues of poverty,
unemployment, economic development, and minority issues.
MAPS -- Making Action Plans -- is a planning process for people and organizations
that begins with a story - the history. Maps has a series of empty container questions
that ask a person/organization to tell us some of the milestones on their journey, so
we can get to know them, dream with them, and begin to build a plan to move in the
direction of their dreams. Maps is about listening to a person's dreams,
acknowledging their nightmares, then building a rich portrait of their gifts and
talents so we are able to focus on simple daily actions that move them in
constructive directions.
The End