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Psychological Distress Among Latino Family

Caregivers of Adults With Schizophrenia:


The Roles of Burden and Stigma
Sandy M. Magaña, Ph.D., M.S.W.
Jorge I. Ramírez García, Ph.D.
María G. Hernández, M.S.W.
Raymond Cortez, B.A.

Objective: Little research has focused on the mental health of Latino tient, compared with European-
caregivers with a relative with schizophrenia, despite data showing that American families (1–3). These key
up to three-quarters of Latino persons with schizophrenia live with their cross-ethnic differences in caregiver
families. This study examined the relation between caregivers’ mental involvement and affect may also re-
health and perceived burden and stigma and characteristics of the pa- flect differences in the way that care-
tient and caregiver. Methods: Interviews were conducted in the language giving is linked with the course of
of preference (Spanish or English) in Wisconsin, California, and Texas schizophrenia. For example, low lev-
with 85 Latinos caring for an adult with schizophrenia. Measures includ- els of caregiver warmth were a sig-
ed the Center for Epidemiologic Studies–Depression Scale, the Zarit nificant predictor of relapse among
Burden Scale, and the Greenley Stigma Scale. Results: General popula- Latino patients but not among Euro-
tion studies of Mexican Americans have found that between 12% and 18% pean-American patients (5).
meet the cutoff for being at risk of depression; however, 40% of the sam- Researchers continue to investigate
ple met this criterion. Younger caregiver age, lower levels of caregivers’ how family caregiving among Latinos
education, and higher levels of the patients’ mental illness symptoms may affect patients’ outcomes; how-
were predictive of higher levels of caregivers’ depressive symptoms. ever, it is equally important to attend
Caregivers’ perceived burden mediated the relation between patients’ to the well-being of family caregivers.
psychiatric symptoms and caregivers’ depression. Caregivers’ perceived A substantial body of research on
stigma was significantly related to caregivers’ depressive symptoms, even families and mental illness has exam-
when the analyses statistically adjusted for psychiatric symptoms and de- ined how caregiving processes are
mographic variables. Conclusions: The high rates of depressive symptoms linked to the emotional health of fam-
among Latino families caring for a relative with schizophrenia suggest ily caregivers (10–13). A consistent
that interventions should include attention to the mental health and re- pattern of findings underscores that
covery of family caregivers in addition to the patient’s recovery. Younger more psychiatric symptoms of the pa-
Latino caregivers and those with lower levels of education are particu- tient, more behavior problems of the
larly at risk of depression. (Psychiatric Services 58:378–384, 2007) patient, and more caregiving de-
mands are associated with higher lev-
els of caregivers’ feelings of burden

R
esearch on Latino families impact the patient (1–5). Data sug- and psychological distress.
who have a relative with gest that Latino family caregivers are However, there has been a paucity
mental illness (that is, the pa- more likely to live with the patient, of research on the emotional health of
tient) has largely focused on how the be more accepting and more hopeful Latino caregivers of a family member
family relates to the patient and how for a cure (6–9), and exhibit fewer with mental illness. The few studies
family attitudes and interactions may critical comments toward the pa- that have been conducted with Latino
family caregivers have found that
these caregivers experience burden
and psychological distress at levels
Dr. Magaña and Ms. Hernández are affiliated with the Department of Social Work and
with the Waisman Center, University of Wisconsin–Madison, 1500 Highland Ave., Madi-
similar to those of European-Ameri-
son, WI 53705 (e-mail: magana@waisman.wisc.edu). Dr. Ramírez García and Mr. Cortez can family caregivers (14–16). How-
are with the Department of Psychology, University of Illinois at Urbana–Champaign, ever, in studies of families caring for
Champaign, Illinois. A previous version of this article was presented at the National In- persons with other disorders, such as
stitute of Mental Health–funded Critical Issues in Latino Mental Health Research Con- Alzheimer’s disease, dementia, or
ference, Princeton, New Jersey, November 2005. mental retardation, Latino caregivers
378 PSYCHIATRIC SERVICES ♦ ps.psychiatryonline.org ♦ March 2007 Vol. 58 No. 3
have consistently reported higher lev- by society (20,21). Caregivers who most care to the patient. Participants
els of depression than European- have a relative with a high level of were recruited in two separate stud-
American caregivers (17). publicly conspicuous positive symp- ies, one that was conducted in El
Literature on Latino family care- toms may also experience stigma and, Paso, Texas (N=45), and another that
givers and mental illness suggests that in turn, higher levels of depressive was conducted in Milwaukee, Wis-
although Latino family caregivers are symptoms. Hence, we hypothesized consin (N=13), and Los Angeles, Cal-
likely to be highly engaged and dis- that stigma would be positively relat- ifornia (N=27). Adult relatives with
play warmth toward patients, the ed to caregivers’ psychological dis- mental illness were diagnosed as hav-
caregivers are also experiencing sub- tress. Furthermore, stigma may have ing either schizophrenia or schizoaf-
stantial stress and burden related to subjective appraisal components such fective disorder. In El Paso diagnosis
caregiving. Thus research is needed that some family caregivers may ap- was determined by a clinician who
that focuses on Latino caregivers’ praise schizophrenia symptoms as be- administered the Structured Clinical
emotional health. ing more stigmatizing than other fam- Interview for DSM-IV–Bilingual Pa-
In this study, we examined levels of ily caregivers would rate them. tient Edition (24). In the Milwaukee
depressive symptoms among Latino Hence, we also hypothesized that and Los Angeles study, diagnosis was
caregivers of family members with stigma would mediate the relation be- confirmed by the psychiatrists that re-
schizophrenia and the correlates of tween patients’ symptoms and care- ferred the patients. Both studies re-
depressive symptoms in this popula- givers’ depressive symptoms. cruited participants from outpatient
tion by using a stress-process model. Sociodemographic correlates of de- mental health clinics between 2001
In research on the emotional health pression among Latinos include so- and 2003. The outpatient clinics were
of family caregivers of older adults, cioeconomic status, female gender, all part of public community mental
stress-process models have been used older age, and marital status (22,23). health centers. Thus they offered
that include context variables (for ex- Thus they were incorporated in this case management, psychiatric med-
ample, demographic characteristics), study as context variables. ication, and other outpatient-based
stressors, and caregiver appraisals, Previous studies of family care- programs. Such clinics are typically
such as subjective burden (18,19). givers of persons with mental illness staffed with professionals with a
Taking into account context variables, have examined the impact of psychi- bachelor’s or graduate degree in hu-
caregiving stressors (for example, pa- atric symptoms on stigma, subjective man service fields—such as psycholo-
tients’ psychiatric symptoms) are hy- burden, and depression, each as sep- gy and social work—and nursing and
pothesized to impact caregivers’ emo- arate outcomes. Our study makes a psychiatry. The services are used pri-
tional distress both directly and unique contribution to the literature marily by indigent persons with seri-
through mediating factors, such as on family caregivers by examining the ous and persistent mental illness,
caregivers’ appraisals (19). role of caregivers’ burden and stigma whose service usage patterns vary
Following this model, we hypothe- as mediators between patients’ posi- substantially from each other and
sized that stressors (patients’ positive tive psychiatric symptoms and care- over time.
symptoms) would be related to care- givers’ depression. Furthermore, we Potential participants were identi-
givers’ depressive symptoms after examined these processes among fied by mental health professionals
taking into account context variables Latinos, who have been underrepre- who worked in community mental
(for example, demographic character- sented in caregiving burden research. health programs or outpatient clinics.
istics). Because positive symptoms Research questions for the study Participants were recruited by re-
are often linked with interpersonal presented here include the following. search teams that included mental
conflict and disruption of daily rou- What characteristics of caregivers and health professionals and graduate stu-
tines, they can be considered objec- patients (context variables) are related dents. The research teams informed
tive stressors for family caregivers. to caregivers’ depressive symptoms? patients or their parents about the
Second, we hypothesized that care- Are patients’ psychiatric symptoms study and asked if they would be in-
givers’ appraisals (subjective burden) (stressors) as well as caregivers’ bur- terested in participating. Caregivers
would mediate the relation between den and caregivers’ stigma (ap- were interviewed in their home or at
patients’ positive symptoms and care- praisals) positively related to care- the mental health agency, according
givers’ depressive symptoms. In other givers’ depressive symptoms? Does to their preferences. Interviews were
words, high levels of positive symp- burden, stigma, or both mediate the conducted in the language of prefer-
toms would be related to more bur- relation between caregivers’ stressors ence (Spanish or English) by bilingual
densome appraisals by caregivers, (patients’ psychiatric symptoms) and and bicultural interviewers. Measures
which would, in turn, be related to caregivers’ depressive symptoms? that were not already available in
higher levels of caregivers’ depressive Spanish were translated by using
symptoms. Methods back-translation methods (25). Study
We also examined the role of care- Participants and procedures procedures were approved by the re-
givers’ perceived stigma in the stress- Participants were 85 dyads of primary spective university institutional re-
process model. Stigma is character- family caregivers and their adult rela- view boards and the professional re-
ized as a source of shame that is cast tives with mental illness. Primary view committees of the mental health
onto individuals with mental illness caregivers are those who provide the clinics.
PSYCHIATRIC SERVICES ♦ ps.psychiatryonline.org ♦ March 2007 Vol. 58 No. 3 379
Table 1 clinician assessed the symptoms dur- (range of 21 to 81 years). A majority
Demographic characteristics of 85 ing clinical interviews with the pa- of caregivers were female. Almost
Latinos caring for an adult family tients by using the Brief Psychiatric half of the caregivers were married
member with schizophrenia and 85 Rating Scale (27). and had less than nine years of educa-
patients Caregiver burden was assessed by tion. Sixty percent of the caregivers
using the Zarit Burden Scale (28), were interviewed in Spanish.
N % which consists of 29 items, each an- The average age of the patients was
swered on a 3-point scale ranging 39 years (range of 19 to 82). A major-
Caregivers
Age (M±SD) 55.1±13.3
from 0, not at all true, to 2, extremely ity of patients were male. Three-
Female 72 85 true. Zarit and colleagues (28) con- quarters of the patients lived at home
Married 40 47 ceptualized burden as problems per- with their family caregiver (64 pa-
Education ceived by the caregiver with her or his tients, or 75%).
Less than 9th health, psychological well-being, fi-
grade 38 45
9th through 12th
nances, social life, and the relation- Preliminary and
grades 24 28 ship between the caregiver and the ill descriptive analyses
Higher than high family member. In the sample pre- We compared the two studies and
school 23 27 sented here internal consistency reli- three study sites on variables used in
Interviews conduct- ability was good (Cronbach’s α=.89). the analyses and found no significant
ed in Spanish 51 60
Patients
Stigma was assessed by using an differences. We also examined differ-
Age (M±SD) 38.9±11.5 adaptation by Greenberg and col- ences between Latino ethnicities and
Male 64 75 leagues (20) that was based on the whether caregivers were parents,
Number of psychi- earlier work of Freeman and Sim- spouses, or siblings. The only signifi-
atric symptoms mons (29). Stigma was measured by cant difference we found was that
(M±SD) 1.7±1.3
using five items rated on a 5-point Central and South Americans had
scale ranging from 1, never, to 5, al- higher levels of education than other
ways. These items asked about the ex- Latino groups. The mean burden
tent to which family members avoid- score for the total sample was
Measures ed having family and friends over or 35.0±10.2. The mean CES-D score
Caregivers’ and patients’ ages were avoided telling others about their for this sample was 15.5±11.6. (Possi-
continuous variables. Caregivers’ ed- child’s illness for fear of what others ble scores range from 0 to 60, with
ucation was measured by using a 6- may think of them. In the sample pre- higher scores indicating greater levels
point scale that ranged from 0, less sented here Cronbach’s alpha was .84. of depressive symptoms.) Notably, 34
than sixth grade, to 5, college gradu- Depressive symptoms were as- caregivers (40%) in the study present-
ate or higher. For easier interpreta- sessed by using the Center for Epi- ed here met the standard CES-D cut-
tion in the table, education was re- demiologic Studies–Depression (CES- off score of 16 or higher, which classi-
coded into three categories (less than D) scale (30), a measure of the fre- fies individuals as having elevated lev-
ninth grade, ninth through 12th quency of 20 depressive symptoms els of depressive symptoms (26).
grades, and higher than high school); that have occurred over the past Table 2 shows intercorrelations of
however, the full scale was used in the week, each rated on a 4-point scale study variables. Caregivers’ depres-
regression analyses. Although both ranging from 0, rarely, to 3, mostly or sive symptoms correlated with care-
studies included a comparable ques- all of the time. In the sample present- givers’ younger age, lower levels of
tion measuring household income, ed here Cronbach’s alpha was .90. education, and higher levels of bur-
there were significant missing data den and stigma. Patients’ male gen-
for this variable. Therefore, we did Results der and psychiatric symptoms were
not use it in the analysis presented A majority of primary caregivers were also related to caregivers’ depressive
here. The following variables were mothers of the ill relative (50 care- symptoms.
coded as dichotomous variables: mar- givers, or 59%), 14 were spouses
ital status: not married, 0, or married, (17%), 12 were siblings (14%), five Multivariate analyses
1; language of interview: English, 0, were fathers (6%), and four were oth- Following the stress-process model,
or Spanish, 1; and caregiver’s and pa- er relatives (5%). Three-quarters of stressors (patients’ psychiatric symp-
tient’s gender: male, 0, or female, 1. the caregivers were of Mexican de- toms) should be significantly linked
Psychiatric symptoms were meas- scent (64 caregivers, or 75%), eight with caregivers’ depressive symptoms
ured by a count of four positive symp- were Puerto Rican (9%), four were after analyses account for background
toms of schizophrenia: hallucinations Central American (5%), three were variables, such as caregivers’ demo-
and bizarre, hostile, or unusual be- South American (4%), two were graphic characteristics. The first re-
haviors. In the Milwaukee and Los Cuban (2%), and four did not specify gression model tested this hypothesis
Angeles samples the symptoms were country of origin (5%). (Table 3). Higher levels of patients’
reported by the caregiver with the Table 1 shows other characteristics psychiatric symptoms were signifi-
Schizophrenia Outcome Module of the caregivers and patients. Care- cantly related to higher levels of care-
(26). In the El Paso sample a trained givers had an average age of 55 years givers’ depressive symptoms when we
380 PSYCHIATRIC SERVICES ♦ ps.psychiatryonline.org ♦ March 2007 Vol. 58 No. 3
Table 2
Intercorrelations of study variables predicting levels of depression for 85 Latinos caring for an adult family member with
schizophrenia

Variable 1 2 3 4 5 6 7 8 9 10

1. Caregivers’ age 1.00


2. Caregivers’ gender .03 1.00
3. Caregivers’ marital status .16 .01 1.00
4. Caregivers’ education level –.06 –.06 –.09 1.00
5. Language of caregivers’ interviews –.00 .12 .20 –.46∗∗ 1.00
6. Patients’ gender .20 –.06 .06 .10 –.20 1.00
7. Patients’ psychiatric symptoms –.08 .07 .01 –.07 –.03 .01 1.00
8. Caregivers’ perceived stigma –.13 .02 –.04 –.08 .12 .09 .15 1.00
9. Caregivers’ perceived burden –.13 .13 .11 –.09 .01 –.13 .22∗ .37∗∗ 1.00
10. Caregivers’ score on the
CES-D scalea –.28∗ .16 .06 –.30∗∗ .17 –.26∗ .27∗ .36∗∗ .62∗∗ 1.00
a Center for Epidemiologic Studies–Depression scale
∗p<.01
∗∗p<.001

statistically adjusted for caregivers’ 1 shows a graphic description of this Discussion


demographic characteristics. Younger mediation. Previous research on Latino family
caregiver age and lower caregiver ed- Model 3 shows that when stigma caregivers of persons with schizo-
ucation were significant correlates of was added, psychiatric symptoms phrenia has been minimal and has
depressive symptoms in the multi- were no longer related to depressive primarily focused on how the caregiv-
variate model. symptoms at the .05 significance lev- er’s affect toward the patient is relat-
We conducted two additional re- el. However, the relation between psy- ed to the course of schizophrenia.
gression models to test the mediating chiatric symptoms and depressive Thus little is known about Latino
role of burden and stigma separately. symptoms was reduced only from .22 family caregivers’ psychological dis-
According to Baron and Kenny’s (31) to .18. In this multivariate model, tress related to their caregiving roles.
mediation criteria, a mediation vari- stigma is a significant correlate of de- With a sample of Latino (predomi-
able should be significantly associated pressive symptoms. Thus stigma has nantly Mexican-American) family
with both the independent variable an important direct effect on depres- caregivers of adults with schizophre-
(psychiatric symptoms) and the out- sive symptoms, but its mediation role nia, this study used a stress-process
come variable (depressive symptoms) in depressive symptoms is question- model to examine the relation be-
and reduce substantially the relation able at best. tween caregiving stressors (that is, pa-
between the independent variable
and outcome when introduced in a
multivariate analysis. The bivariate
Table 3
results in Table 2 show that psychi-
atric symptoms, stigma, and burden Multiple regressions of caregivers’ depressive symptoms, by caregivers’ and
were all significantly related to de- patients’ demographic characteristics and caregivers’ appraisalsa
pressive symptoms. However, only
Variable Model 1 Model 2 Model 3
burden was significantly related to
psychiatric symptoms (stigma was not Caregivers’ demographic
related to psychiatric symptoms). characteristics
Therefore, only burden met all medi- Age –.26∗ –.19∗ –.23∗
ation criteria. Gender .13 .06 .14
Marital status .08 .01 .10
In hierarchical multiple regression Education level –.28∗ –.23∗ –.28∗
analyses, burden and stigma were Interview conducted in Spanish .03 –.06
added to model 1 (symptoms and Patients’ characteristics
background variables) to test for the Gender –.19 –.12 –.17
multivariate criterion for mediation Psychiatric symptoms .22∗ .12 .18
Caregivers’ appraisals
(Table 3). Model 2 shows that when Burden .52∗∗∗
burden was added, psychiatric symp- Stigma .28∗∗
toms were no longer significantly re- Adjusted R2 .22∗∗∗ .48∗∗∗ .29∗∗∗
lated to depressive symptoms. More- a Reported coefficients are standardized.
over, the regression coefficient was ∗p<.05
notably reduced from .22 to .12, sug- ∗∗p<.01
∗∗∗p<.001
gesting substantial mediation. Figure
PSYCHIATRIC SERVICES ♦ ps.psychiatryonline.org ♦ March 2007 Vol. 58 No. 3 381
Figure 1 chological distress. However, we
Mediation model of burden for 85 Latinos caring for an adult family member found weak support for the hypothe-
with schizophrenia sized mediating role of stigma given
that it was weakly related to patients’
symptoms, and stigma did not reduce
Caregiver substantially the relation between pa-
burden tients’ symptoms and caregivers’ dis-
tress. Thus, if the case is to be made
.22∗∗ .52∗ that stigma has substantial illness ap-
praisal (subjective evaluation) quali-
Consumer Caregiver ties, researchers should examine
psychiatric depressive whether stigma is linked to other ill-
symptoms .12 symptoms
ness components, such as negative
rather than positive symptoms or per-
∗p<.05
∗∗p<.01 haps beliefs about mental illness, in-
cluding attributions of patients’ con-
trol of their symptoms. Moreover, fu-
ture research should focus on under-
tients’ positive psychiatric symptoms) greater feelings of burden among standing how stigma is linked to de-
and caregivers’ psychological distress, caregivers, which is related to more pressive symptoms. For example,
the potential mediating roles of care- depressive symptoms. This finding Greenberg and colleagues (20) pro-
givers’ appraisals (for example, bur- suggests that interventions that work posed that greater levels of stigma
den and stigma) in the relation be- to reduce positive symptoms among may have an impact on social support
tween stressors and psychological dis- patients may indeed reduce the bur- received by the caregiver, because
tress, and the role of background vari- den and improve the emotional well- stigma may restrict contact between
ables in psychological distress. being of their caregivers. Second, in- the caregiver and friends and family.
Our findings suggest that the men- terventions that focus on how care- Other factors associated with de-
tal health of Latino family caregivers givers appraise symptoms (for exam- pression among caregivers in our
is an important focus for research and ple, burden related to the illness) study were caregivers’ younger age
intervention—40% of the caregivers may also alleviate psychological dis- and lower levels of education. Al-
in the study presented here met the tress of caregivers. though older age is typically related
criterion for being at risk of depres- We found that stigma was signifi- to higher rates of depression among
sion (that is, a score of 16 or higher on cantly related to caregivers’ depres- Latinos (23), our findings suggest the
the CES-D scale). In general popula- sive symptoms independently of oth- opposite for family caregivers of per-
tion studies of Latinos, between 13% er variables. In our study, stigma re- sons with schizophrenia. Moreover,
and 18% typically meet this criterion flects the extent to which caregivers our results are consistent with find-
(32), and in populations of Latino old- avoid telling friends and family about ings in a study of parents of persons
er adults up to 25% meet the criteri- the mental illness of their relative. with mental illness (35) and in a study
on (23). A recent study that focused Our study found that stigma was not of Latina mothers caring for adults
on Mexican migrant farmworkers in related to patients’ psychiatric symp- with mental retardation (36). In both
California whose ages were similar to toms, unlike the findings of other of these studies younger caregivers
those of participants in our study re- studies (20,34). One explanation of reported more psychological distress
ported depression rates between 19% the discrepancy between the findings compared with older caregivers. One
and 20% (33). Thus providing care for of the study presented here and other explanation for the relation between
an adult with schizophrenia places studies may be that researchers in young age and high distress is that
Latino caregivers at higher risk of de- previous studies used measures of younger caregivers, particularly
pression, compared with the general psychiatric symptoms that included those in midlife, are more likely to
Latino population. negative symptoms, whereas we have additional major social roles,
We found support for our hypoth- measured only positive symptoms. such as work and other caregiving
esis that caregivers’ subjective bur- Negative symptoms may appear to roles that include raising children
den mediates the relationship be- family members as laziness or behav- and caring for aging parents. Another
tween patients’ positive symptoms iors that can be controlled by the pa- possibility is that older caregivers
and caregivers’ depressive symp- tient, which may be more stigmatiz- may have had more time to develop
toms. This finding is consistent with ing to families. resources and coping strategies that
stress-process models (18,19), which We posited that stigma may be con- reduce their levels of psychological
posit that caregivers’ appraisals (that ceptualized as an appraisal variable, distress.
is, burden) mediate the association such that family caregivers’ subjective The relationship between lower lev-
between stressors and psychological evaluations of the illness would medi- els of education among caregivers and
distress. Thus more positive symp- ate the relation between levels of pa- higher levels of caregiver depression
toms of patients are related to tients’ symptoms and caregivers’ psy- is consistent with previous research
382 PSYCHIATRIC SERVICES ♦ ps.psychiatryonline.org ♦ March 2007 Vol. 58 No. 3
with Latinos (22,23). In the context of three-quarters of the Latino family familial responses to schizophrenic illness
caring for an adult with schizophrenia, caregivers lived with the patient. among Mexican Americans, in Treatment
of Schizophrenia: Family Assessment and
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One limitation of this study is that family caregivers (38). 211–227, 2003
the cross-sectional nature of the data However, our data suggest that 5. López SR, Hipke KN, Polo JA, et al: Eth-
do not allow for causal inferences. rather than exclusively targeting pa- nicity, expressed emotion, attributions, and
Second, the samples consisted of vol- tients’ symptoms, reducing care- course of schizophrenia: family warmth
matters. Journal of Abnormal Psychology
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sive to announcements and requests is also likely to yield significant pay-
to participate by mental health ser- offs in terms of reducing caregivers’ 6. Jenkins JH: Ethnopsychiatric interpreta-
tions of schizophrenic illness: the problem
vice providers at public outpatient psychological distress and thus may of nervios within Mexican-American fami-
clinics and the research teams who be a worthy intervention focus. For lies. Culture, Medicine and Psychiatry
collaborated with the clinics. Thus example, depression screenings and 12:301–329, 1988
future researchers should examine emotional health assessments could 7. Milstein G, Guarnaccia P, Midlarsky E:
the degree to which our findings gen- be conducted for caregivers. Inter- Ethnic differences in the interpretation of
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two different methods across the ties. Our results also suggest that re-
study sites. However, the empirical searchers and practitioners should at- 9. Ramírez García JI, Wood JM, Hosch HM,
et al: Predicting psychiatric rehospitaliza-
links between symptoms and other tend to the special needs that seem to tions: examining the role of Latino versus
variables in this sample that com- place caregivers who are relatively European American ethnicity. Psychologi-
bined both measurement methods young and who have lower levels of cal Services 1:147–157, 2004
were consistent with stress-process education at risk of depression. 10. Biegel D, Milligan S, Putnam P, et al: Pre-
models and prior empirical findings dictors of burden among lower socioeco-
(19,37). Moreover, our findings are Acknowledgments and disclosures nomic status caregivers of persons with
chronic mental illness. Community Mental
more likely to underestimate rather This study was supported by a Minority Sup- Health Journal 30:473–494, 1994
than overestimate the relations be- plement awarded to Dr. Magaña from grant
R01-MH55928 (Jan Steven Greenberg, Ph.D., 11. Greenberg JS, Seltzer MM, Krauss MM, et
tween symptoms and other variables principal investigator) from the National Insti- al: The differential effects of social support
because measurement error is ex- tute of Mental Health (NIMH), by the Paso on the psychological well-being of aging
pected to be higher with our two- Del Norte Foundation Center for Border mothers of adults with mental illness or
Health Research, and by training grant MH- mental retardation. Family Relations
method assessment of symptoms 14584 from NIMH’s National Research Ser- 46:383–394, 1997
than in studies that used only one vice Award, entitled Psychological Research on
Schizophrenic Conditions. The authors thank 12. Kim HW, Greenberg JS, Seltzer MM, et al:
method. The role of coping in maintaining the psy-
Marvin Karno, M.D., for his input to a draft of
These limitations notwithstanding, the article. The authors thank Alex Kopelowicz, chological well-being of mothers of adults
replication of the findings presented M.D., for assisting with recruitment of partici- with intellectual disability and mental ill-
pants in Los Angeles; James M. Wood, Ph.D., ness. Journal of Intellectual Disability Re-
here with a uniform measure of psychi- search 47:313–327, 2003
Larry D. Meyer, M.A., and Bernardo Tarín,
atric symptoms and the inclusion of M.D., for assistance in recruitment in El Paso;
13. Reinhard SC, Horwitz A: Caregiver bur-
other illness facets, such as negative and the many families who gave their valuable
den: differentiating in the content and con-
symptoms, would strengthen the posit- time to participate.
sequences of family caregiving. Journal of
ed implications. The authors report no competing interests. Marriage and the Family 57:741–750, 1995
14. Jenkins JH, Schumacher JG: Family bur-
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