Академический Документы
Профессиональный Документы
Культура Документы
Objective: Little research has focused on the mental health of Latino tient, compared with European-
caregivers with a relative with schizophrenia, despite data showing that American families (1–3). These key
up to three-quarters of Latino persons with schizophrenia live with their cross-ethnic differences in caregiver
families. This study examined the relation between caregivers’ mental involvement and affect may also re-
health and perceived burden and stigma and characteristics of the pa- flect differences in the way that care-
tient and caregiver. Methods: Interviews were conducted in the language giving is linked with the course of
of preference (Spanish or English) in Wisconsin, California, and Texas schizophrenia. For example, low lev-
with 85 Latinos caring for an adult with schizophrenia. Measures includ- els of caregiver warmth were a sig-
ed the Center for Epidemiologic Studies–Depression Scale, the Zarit nificant predictor of relapse among
Burden Scale, and the Greenley Stigma Scale. Results: General popula- Latino patients but not among Euro-
tion studies of Mexican Americans have found that between 12% and 18% pean-American patients (5).
meet the cutoff for being at risk of depression; however, 40% of the sam- Researchers continue to investigate
ple met this criterion. Younger caregiver age, lower levels of caregivers’ how family caregiving among Latinos
education, and higher levels of the patients’ mental illness symptoms may affect patients’ outcomes; how-
were predictive of higher levels of caregivers’ depressive symptoms. ever, it is equally important to attend
Caregivers’ perceived burden mediated the relation between patients’ to the well-being of family caregivers.
psychiatric symptoms and caregivers’ depression. Caregivers’ perceived A substantial body of research on
stigma was significantly related to caregivers’ depressive symptoms, even families and mental illness has exam-
when the analyses statistically adjusted for psychiatric symptoms and de- ined how caregiving processes are
mographic variables. Conclusions: The high rates of depressive symptoms linked to the emotional health of fam-
among Latino families caring for a relative with schizophrenia suggest ily caregivers (10–13). A consistent
that interventions should include attention to the mental health and re- pattern of findings underscores that
covery of family caregivers in addition to the patient’s recovery. Younger more psychiatric symptoms of the pa-
Latino caregivers and those with lower levels of education are particu- tient, more behavior problems of the
larly at risk of depression. (Psychiatric Services 58:378–384, 2007) patient, and more caregiving de-
mands are associated with higher lev-
els of caregivers’ feelings of burden
R
esearch on Latino families impact the patient (1–5). Data sug- and psychological distress.
who have a relative with gest that Latino family caregivers are However, there has been a paucity
mental illness (that is, the pa- more likely to live with the patient, of research on the emotional health of
tient) has largely focused on how the be more accepting and more hopeful Latino caregivers of a family member
family relates to the patient and how for a cure (6–9), and exhibit fewer with mental illness. The few studies
family attitudes and interactions may critical comments toward the pa- that have been conducted with Latino
family caregivers have found that
these caregivers experience burden
and psychological distress at levels
Dr. Magaña and Ms. Hernández are affiliated with the Department of Social Work and
with the Waisman Center, University of Wisconsin–Madison, 1500 Highland Ave., Madi-
similar to those of European-Ameri-
son, WI 53705 (e-mail: magana@waisman.wisc.edu). Dr. Ramírez García and Mr. Cortez can family caregivers (14–16). How-
are with the Department of Psychology, University of Illinois at Urbana–Champaign, ever, in studies of families caring for
Champaign, Illinois. A previous version of this article was presented at the National In- persons with other disorders, such as
stitute of Mental Health–funded Critical Issues in Latino Mental Health Research Con- Alzheimer’s disease, dementia, or
ference, Princeton, New Jersey, November 2005. mental retardation, Latino caregivers
378 PSYCHIATRIC SERVICES ♦ ps.psychiatryonline.org ♦ March 2007 Vol. 58 No. 3
have consistently reported higher lev- by society (20,21). Caregivers who most care to the patient. Participants
els of depression than European- have a relative with a high level of were recruited in two separate stud-
American caregivers (17). publicly conspicuous positive symp- ies, one that was conducted in El
Literature on Latino family care- toms may also experience stigma and, Paso, Texas (N=45), and another that
givers and mental illness suggests that in turn, higher levels of depressive was conducted in Milwaukee, Wis-
although Latino family caregivers are symptoms. Hence, we hypothesized consin (N=13), and Los Angeles, Cal-
likely to be highly engaged and dis- that stigma would be positively relat- ifornia (N=27). Adult relatives with
play warmth toward patients, the ed to caregivers’ psychological dis- mental illness were diagnosed as hav-
caregivers are also experiencing sub- tress. Furthermore, stigma may have ing either schizophrenia or schizoaf-
stantial stress and burden related to subjective appraisal components such fective disorder. In El Paso diagnosis
caregiving. Thus research is needed that some family caregivers may ap- was determined by a clinician who
that focuses on Latino caregivers’ praise schizophrenia symptoms as be- administered the Structured Clinical
emotional health. ing more stigmatizing than other fam- Interview for DSM-IV–Bilingual Pa-
In this study, we examined levels of ily caregivers would rate them. tient Edition (24). In the Milwaukee
depressive symptoms among Latino Hence, we also hypothesized that and Los Angeles study, diagnosis was
caregivers of family members with stigma would mediate the relation be- confirmed by the psychiatrists that re-
schizophrenia and the correlates of tween patients’ symptoms and care- ferred the patients. Both studies re-
depressive symptoms in this popula- givers’ depressive symptoms. cruited participants from outpatient
tion by using a stress-process model. Sociodemographic correlates of de- mental health clinics between 2001
In research on the emotional health pression among Latinos include so- and 2003. The outpatient clinics were
of family caregivers of older adults, cioeconomic status, female gender, all part of public community mental
stress-process models have been used older age, and marital status (22,23). health centers. Thus they offered
that include context variables (for ex- Thus they were incorporated in this case management, psychiatric med-
ample, demographic characteristics), study as context variables. ication, and other outpatient-based
stressors, and caregiver appraisals, Previous studies of family care- programs. Such clinics are typically
such as subjective burden (18,19). givers of persons with mental illness staffed with professionals with a
Taking into account context variables, have examined the impact of psychi- bachelor’s or graduate degree in hu-
caregiving stressors (for example, pa- atric symptoms on stigma, subjective man service fields—such as psycholo-
tients’ psychiatric symptoms) are hy- burden, and depression, each as sep- gy and social work—and nursing and
pothesized to impact caregivers’ emo- arate outcomes. Our study makes a psychiatry. The services are used pri-
tional distress both directly and unique contribution to the literature marily by indigent persons with seri-
through mediating factors, such as on family caregivers by examining the ous and persistent mental illness,
caregivers’ appraisals (19). role of caregivers’ burden and stigma whose service usage patterns vary
Following this model, we hypothe- as mediators between patients’ posi- substantially from each other and
sized that stressors (patients’ positive tive psychiatric symptoms and care- over time.
symptoms) would be related to care- givers’ depression. Furthermore, we Potential participants were identi-
givers’ depressive symptoms after examined these processes among fied by mental health professionals
taking into account context variables Latinos, who have been underrepre- who worked in community mental
(for example, demographic character- sented in caregiving burden research. health programs or outpatient clinics.
istics). Because positive symptoms Research questions for the study Participants were recruited by re-
are often linked with interpersonal presented here include the following. search teams that included mental
conflict and disruption of daily rou- What characteristics of caregivers and health professionals and graduate stu-
tines, they can be considered objec- patients (context variables) are related dents. The research teams informed
tive stressors for family caregivers. to caregivers’ depressive symptoms? patients or their parents about the
Second, we hypothesized that care- Are patients’ psychiatric symptoms study and asked if they would be in-
givers’ appraisals (subjective burden) (stressors) as well as caregivers’ bur- terested in participating. Caregivers
would mediate the relation between den and caregivers’ stigma (ap- were interviewed in their home or at
patients’ positive symptoms and care- praisals) positively related to care- the mental health agency, according
givers’ depressive symptoms. In other givers’ depressive symptoms? Does to their preferences. Interviews were
words, high levels of positive symp- burden, stigma, or both mediate the conducted in the language of prefer-
toms would be related to more bur- relation between caregivers’ stressors ence (Spanish or English) by bilingual
densome appraisals by caregivers, (patients’ psychiatric symptoms) and and bicultural interviewers. Measures
which would, in turn, be related to caregivers’ depressive symptoms? that were not already available in
higher levels of caregivers’ depressive Spanish were translated by using
symptoms. Methods back-translation methods (25). Study
We also examined the role of care- Participants and procedures procedures were approved by the re-
givers’ perceived stigma in the stress- Participants were 85 dyads of primary spective university institutional re-
process model. Stigma is character- family caregivers and their adult rela- view boards and the professional re-
ized as a source of shame that is cast tives with mental illness. Primary view committees of the mental health
onto individuals with mental illness caregivers are those who provide the clinics.
PSYCHIATRIC SERVICES ♦ ps.psychiatryonline.org ♦ March 2007 Vol. 58 No. 3 379
Table 1 clinician assessed the symptoms dur- (range of 21 to 81 years). A majority
Demographic characteristics of 85 ing clinical interviews with the pa- of caregivers were female. Almost
Latinos caring for an adult family tients by using the Brief Psychiatric half of the caregivers were married
member with schizophrenia and 85 Rating Scale (27). and had less than nine years of educa-
patients Caregiver burden was assessed by tion. Sixty percent of the caregivers
using the Zarit Burden Scale (28), were interviewed in Spanish.
N % which consists of 29 items, each an- The average age of the patients was
swered on a 3-point scale ranging 39 years (range of 19 to 82). A major-
Caregivers
Age (M±SD) 55.1±13.3
from 0, not at all true, to 2, extremely ity of patients were male. Three-
Female 72 85 true. Zarit and colleagues (28) con- quarters of the patients lived at home
Married 40 47 ceptualized burden as problems per- with their family caregiver (64 pa-
Education ceived by the caregiver with her or his tients, or 75%).
Less than 9th health, psychological well-being, fi-
grade 38 45
9th through 12th
nances, social life, and the relation- Preliminary and
grades 24 28 ship between the caregiver and the ill descriptive analyses
Higher than high family member. In the sample pre- We compared the two studies and
school 23 27 sented here internal consistency reli- three study sites on variables used in
Interviews conduct- ability was good (Cronbach’s α=.89). the analyses and found no significant
ed in Spanish 51 60
Patients
Stigma was assessed by using an differences. We also examined differ-
Age (M±SD) 38.9±11.5 adaptation by Greenberg and col- ences between Latino ethnicities and
Male 64 75 leagues (20) that was based on the whether caregivers were parents,
Number of psychi- earlier work of Freeman and Sim- spouses, or siblings. The only signifi-
atric symptoms mons (29). Stigma was measured by cant difference we found was that
(M±SD) 1.7±1.3
using five items rated on a 5-point Central and South Americans had
scale ranging from 1, never, to 5, al- higher levels of education than other
ways. These items asked about the ex- Latino groups. The mean burden
tent to which family members avoid- score for the total sample was
Measures ed having family and friends over or 35.0±10.2. The mean CES-D score
Caregivers’ and patients’ ages were avoided telling others about their for this sample was 15.5±11.6. (Possi-
continuous variables. Caregivers’ ed- child’s illness for fear of what others ble scores range from 0 to 60, with
ucation was measured by using a 6- may think of them. In the sample pre- higher scores indicating greater levels
point scale that ranged from 0, less sented here Cronbach’s alpha was .84. of depressive symptoms.) Notably, 34
than sixth grade, to 5, college gradu- Depressive symptoms were as- caregivers (40%) in the study present-
ate or higher. For easier interpreta- sessed by using the Center for Epi- ed here met the standard CES-D cut-
tion in the table, education was re- demiologic Studies–Depression (CES- off score of 16 or higher, which classi-
coded into three categories (less than D) scale (30), a measure of the fre- fies individuals as having elevated lev-
ninth grade, ninth through 12th quency of 20 depressive symptoms els of depressive symptoms (26).
grades, and higher than high school); that have occurred over the past Table 2 shows intercorrelations of
however, the full scale was used in the week, each rated on a 4-point scale study variables. Caregivers’ depres-
regression analyses. Although both ranging from 0, rarely, to 3, mostly or sive symptoms correlated with care-
studies included a comparable ques- all of the time. In the sample present- givers’ younger age, lower levels of
tion measuring household income, ed here Cronbach’s alpha was .90. education, and higher levels of bur-
there were significant missing data den and stigma. Patients’ male gen-
for this variable. Therefore, we did Results der and psychiatric symptoms were
not use it in the analysis presented A majority of primary caregivers were also related to caregivers’ depressive
here. The following variables were mothers of the ill relative (50 care- symptoms.
coded as dichotomous variables: mar- givers, or 59%), 14 were spouses
ital status: not married, 0, or married, (17%), 12 were siblings (14%), five Multivariate analyses
1; language of interview: English, 0, were fathers (6%), and four were oth- Following the stress-process model,
or Spanish, 1; and caregiver’s and pa- er relatives (5%). Three-quarters of stressors (patients’ psychiatric symp-
tient’s gender: male, 0, or female, 1. the caregivers were of Mexican de- toms) should be significantly linked
Psychiatric symptoms were meas- scent (64 caregivers, or 75%), eight with caregivers’ depressive symptoms
ured by a count of four positive symp- were Puerto Rican (9%), four were after analyses account for background
toms of schizophrenia: hallucinations Central American (5%), three were variables, such as caregivers’ demo-
and bizarre, hostile, or unusual be- South American (4%), two were graphic characteristics. The first re-
haviors. In the Milwaukee and Los Cuban (2%), and four did not specify gression model tested this hypothesis
Angeles samples the symptoms were country of origin (5%). (Table 3). Higher levels of patients’
reported by the caregiver with the Table 1 shows other characteristics psychiatric symptoms were signifi-
Schizophrenia Outcome Module of the caregivers and patients. Care- cantly related to higher levels of care-
(26). In the El Paso sample a trained givers had an average age of 55 years givers’ depressive symptoms when we
380 PSYCHIATRIC SERVICES ♦ ps.psychiatryonline.org ♦ March 2007 Vol. 58 No. 3
Table 2
Intercorrelations of study variables predicting levels of depression for 85 Latinos caring for an adult family member with
schizophrenia
Variable 1 2 3 4 5 6 7 8 9 10