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Early ntervention Collection Development Bibliography



Dawn Scheidel Bish



ndependent Study



Nora Bird


Spring 2011


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ntroduction
This bibliography was developed in response to a request from the Charlotte Child
Developmental Services Agency (CDSA). They are in the process of updating and
formalizing their lending library and this paper is in response to their request for new
acquisitions for their lending library. As part of the information gathering process, this
author visited the library resource at Exceptional Children's Advocacy Center. The
website for this wonderful resource is http://www.ecac-parentcenter.org/.
This paper covers most subjects required for early intervention services. The scope of
this bibliography is to provide information for parents of special needs children. Since it
is mainly a resource for parents, the focus of the books and websites are geared
towards parents reading information in the midst of raising a child with special needs.
The criteria set were that the books would be easy to read and provide information that
could be implemented at home.
Wherever possible, the books were reviewed personally by the author. When this was
not possible, every effort was made to obtain professional reviews of the books. Failing
that, great care was made to determine, without benefit of a formal review, if the book
should be included here. f it was determined that there was not a plethora of
information on the particular topic, the book would be included without book review. f
the book has been included in this bibliography and has no annotation this is due to lack
of professional review.
The bibliography has been organized by general information and then by disability in
alphabetical order. The first two sections, general parenting skills and early intervention
have been determined to be the broadest of the topics and therefore have been placed
first in the order. The remaining topics have been alphabetized. These sections are
followed by a list of helpful websites and a list of publishers that specialize in books in
the realm of developmental disabilities.




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General Parenting Books
Brazelon, T. B., and Sparrow, J. D. (2006). Touchpoints: 0 to 3. Cambridge, MA: Da
Capo Press
This is Brazelton's updated version of his previous 1992 book. t has a good foundation
for emotional and behavioral touchstones for your child.
Lerner, C. and Dombro, A. L. (2004). Bringing up baby: Three steps to making good
decisions in your child's first years. Washington D. C.: Zero to Three.
Diane Foote writes in Booklist "At last, here is a parenting book that doesn't claim to
have all the answers. New parenthood is challenging enough without having to sort
through the vast supply of either redundant or conflicting advice; this clearly written,
focused guide to good decision making will help stressed parents of infants find their
way (Foote, 2004).
Lerner, C. and Parlakian, R. (2009). Your baby's development. Washington D. C.: Zero
to Three.
The publisher, Zero to Three, specializes in information for the parent and professional
working and raising children from birth to age three.
Pasquale, J., Whitman, B.Y., Accardo, J. A., Bodurtha, J. N., Farrell, A. (2011).
Dictionary of developmental disabilities terminology. Baltimore, MD: Paul H.
Brookes Publishing Company.
SciTech Book Review writes (Unknown, 2002):
'Written for professionals, parents, and other caretakers, this dictionary defines
technical terms in non-technical language. The terminology represents that from
fields like pediatrics, anatomy, genetics, orthopedics, neurology, pathology,
pharmacology, physiology, psychiatry, psychology, education, social work,
family therapy, law, speech pathology, linguistics, audiology, physical therapy,
occupational therapy, and nutrition. Chronic diseases which are not
developmental in nature are not generally included.'
Raikes, H. and McCall Whitmer, J. (2006). Beautiful beginnings: A developmental
curriculum for infants and toddlers. Baltimore, MD: Paul H. Brookes Publishing
Company.
This is a great book for goals and activities which focus on the age of the child as well
as the particular skills acquisition, including gross motor, fine motor, communication,
self-help and social skills. All activities are printable. This book is great for both parents
and professionals.
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Shelov, S. P. (Editor in Chief). (2009). aring for your baby and young child: Birth to
age 5. New York, NY: Random House.
According to the book review in Contemporary Pediatrics (unknown, 2010), this book:
AAP s foremost parenting book expounds on the sound medical insight and
recommendations of more than 100 pdiatrie specialists. n this latest edition,
explore new chapters on sleep and food allergies as well as updated content on
prebiotics and probiotics, resilience, and other pediatric health-related subjects.
Sections on nutrition, exercise, and obesity have been expanded. Also find a
more comprehensive immunization guide with the latest input on vaccine safety.

Starr Campito, J. (2007). Supportive parenting. London, England: Jessica Kingsley
Publishing.
Lisa Jordan reviewed Supportive Parenting for the Library Journal. She states in her
review (Jordan, 2007):
"Here, she [Campito] leads parents through obtaining a diagnosis, a formal
evaluation, and services; beginning therapeutic interventions; understanding the
special-education process; and parenting a special-needs child effectively.
Filling the book with personal insights, Campito focuses on supporting children
at home and at school by determining what they need and then asking for it.
Early ntervention
Bagnato, S.J. (2007). Authentic assessment for early childhood intervention: Best
practices. New York, NY: Guilford Publications.
This is a textbook, therefore, this book may be too detail oriented for most parents.
However, this will assist practitioners in developing programs.
Pretti-Frontczak, K. and Bricker, D.D. (2004). An activity based approach to early
intervention, (3
rd
Edition) Baltimore, MD: Paul H. Brookes Publishing Company.
This is a good source of information for beginning and running a structured environment
for your young child. This has a good organizational structure in regards to early
intervention approaches. This book may be too clinical an approach for some parents.
Sher, Barbara. (2009). Early intervention games: Fun, joyful ways to develop social and
motor skills in children with autism spectrum or sensory processing disorders.
Hoboken, NJ: John Wiley and Sons, ncorporated.
This book provides fun, easy and enjoyable activities for developing motor and social
skills. This book demonstrates that learning can be fun as well as productive.
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Autism
Chawarska, K., Volkmar, F.R. and Klin, A. (Eds). (2008). Autism spectrum disorders in
infants and toddlers: Diagnosis, assessment and treatment. New York, NY:
Guilford Publications, nc.
Abbott writes that this book is written by experts in the field of Autism and Pervasive
Developmental disorders and stresses early intervention and providing the right
interventions for your child at the age and development that he is at (Abbott, 2008).
Coplan, J. (2010). Making Sense of Autism Spectrum Disorder: reate the Brightest
Future for Your hild with the Best Treatment Options. New York: Bantam
Books.
Coplan makes science look easy. This understandable, comprehensible book defines
ASD and its treatment in words that both parents and professionals will have no trouble
following. t encompasses both the scientific basis of ASD, including a viable reason for
the increase in ASD over the years to treatment options. The chapter on Sense and
Nonsense in treatment of ASD is a must read for parents searching for the elusive
'cure'.
Harris, S. L. and Weiss, M. J. (2007). Right from the start: Behavioral intervention for
young children with autism: A guide for parents and professionals. Bethesda,
MD: Woodbine House.
Prager (Prager, 2009) states in her review of this book:
"Right from the Start has an excellent section to help parents judge the quality
of the information available on the web and to assess the validity of various
research claims. The book will give parents a frame of reference for the
terminology and techniques used in early behavioral interventions for young
children with autism. t will also help parents understand the similarities and
differences among the different programs available and empower them to make
an informed choice.

McWilliam, R. A. (2010). Routines-based early intervention: Supporting young children
and their families. Baltimore, MD: Paul H. Brookes Publishing Company.
Although this book has been written for professionals, parents of children with Autism
will benefit from the information made available. t outlines what a routine based
intervention is as well as how to set up a routine based intervention in a home
environment.
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Stillman, W. (2007). The autism answer book: More than 300 of the top questions
parents ask. Naperville, L: Sourcebooks, nc.
This is a reference guide for parents with children with ASD. Written by a person with
Asperger's Syndrome, this book is direct and to the point. No nonsense answers to a
variety of questions from what is autism to self-help skills to social skills issues. This
book concentrates on several issues missing from other books such as the presumption
that the person with ASD does have intelligence, prevention versus intervention and
self-advocacy.
A great first book primer that introduces the parent to what autism is and provides
access to additional resources. Especially helpful and relevant is the Social Stories
Narratives that address specific social skills that a child will need. This section explores
the necessity of setting up specific social settings to work on what a typical child has no
problems addressing such as making mistakes, wearing my pants and sleeping in my
own bed. Simple instructions and reinforcing techniques help the parent understand
how to use Social Stories.
Schreibman, L. (2005). The Science and Fiction of Autism. London: Harvard University
Press.
The Science and Fiction of Autism seek to chronicle what works and what doesn't work
in treating children with ASD. The chapter on Miracle Cures or Bogus Treatments is
worth the price of the book. Schreibman analyzes treatment options using scientific
based modalities and answers the question: Does this really work?
Turklington, C., & Anan, R. (2007). The Encyclopedia of Autism Spectrum Disorders.
New York: Facts on File.
An alphabetical listing of facts about autism and autism spectrum disorders, this
encyclopedia is written in clear, concise terms meant for the layperson and not the
professional. t covers such topics as diagnosis, topics of legal relevance and school
related topics such as ndividual Education Plan (EP) and transition plans. Although the
topics are not exhaustive, it is a great basic text for parents and professionals to
develop an understanding of autism.
Behavior/Sensory ssues
sbell, C. and sbell, R. (2007)). Sensory integration: A guide for preschool teachers.
Silver Spring, MD: Gryphon House, ncorporated
This book has been written for professionals but would be invaluable for parents of
children with sensory issues, especially the chapters on practical and low cost solutions.
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Kranowitz, C.S. (2006). Out-of-sync child: Recognizing and coping with sensory
processing disorder. New York, NY: Penguin Group (USA).

Publisher's Weekly reviewed this book and had this to say (The out-of-sync child, 2011):
"Often erroneously diagnosed with attention deficit disorder (ADD) or labeled
"difficult, picky, clumsy, oversensitive, or inattentive," children with S
dysfunction exhibit unusual responses to touching and being touched, and/or to
moving and being moved. n concise, well-organized chapters, Kranowitz
reveals how the tactile, vestibular (pertaining to gravity and movement) and
proprioceptive (pertaining to joints, muscles and ligaments) senses operate.
Checklists and sidebars throughout the text compare the "normal" child in
various situations to the child with sensory integration dysfunction. Asserting S
dysfunction is best treated by occupational therapy, not by medication,
Kranowitz helps clear the way for families to understand a disorder that they
may suspect but not have been able to pinpoint.
Kranowiz, C. S. (2006). The out-of-sync child has fun: Activities for kids with sensory
processing. New York, NY: Penguin Group (USA).

This book was designed to be read with the above book, The Out-of-Sync Child. This
book is filled with activities that parents can do with the child with sensory integration
issues at home.

Mauro, T. and Cermak, S. A. (2006). The everything parent's guide to sensory
integration disorder: Get the right diagnosis, understand treatments and advocate
for your child. Avon, MA:Adams Media Corporation.
This book was written by two occupational therapists. t provides ideas and exercises
for parents to complete with their child at home to alleviate the issues involved with
sensory integration disorder.
Phelan, T. (2010). 1-2-3 Magic: Effective discipline for children 2-12. Glen Ellyn, L:
ParentMagic, nc.

This simply written book helps a parent to deal with inappropriate behavior in a straight
forward, matter of fact way. Teaches parents how to stop behaviors they do not want to
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continue, reinforce behaviors that they want to foster and build self-esteem of the child.
This book is at times humorous, poignant but overall provides parents with time tested
strategies to help with behavioral issues.
The behaviors include going to bed alone, listening to directions, decreasing tantrums,
whining and yelling. This is an invaluable book for any parent's repertoire.
Thompson, T. (2008). Freedom from meltdowns: Dr. Thompson's solutions for children
with autism. Baltimore, MD: Paul H. Brookes Publishing Company.
This book not only addresses behavior issues but the roots of the behavior and what
triggers those behaviors. An informative book for both parents and professionals.
Williamson, G. G. and Anzalone, M. E. (2001). Sensory integration and self-regulation in
infants and toddlers: Helping very young children interact with their environment.
Washington, D. C.: Zero to Three.
An amazing look at sensory issues from infancy through age 5, this is a good resource
for parents. This book explains what sensory integration and self-regulation is as well as
how a parent can help their child with such issues as self-soothing and processing
information from their environment.
Cerebral Palsy
Geralis, E. (Ed) (1998). hildren with cerebral palsy: A parents' guide. Bethesda, MD:
Woodbine House.
Another winner from Woodbine House. However, this book needs to be updated as the
most current edition was published in 1998.
Miller, F. and Bachrach, S.J. (Eds). (2006). erebral palsy: a complete guide for
caregiving. Baltimore. MD: Johns Hopkins University Press.
The Book Watch (Cerebral Palsy: a complete guide for caregivers [Book review], 2006)
completed a review of this book and states: 'it provides parents with answers ranging
from understanding areas of involvement and basic care issues to understanding
medical terminology commonly used. An A-Z encyclopedia helps define these terms,
diagnoses and procedures, while discussions delve into regulations, assessments of
condition, and the latest research.'
Down Syndrome
Cohen, W. ., Madnick, M. E. and Nadel, L. (2002). Down syndrome. Hoboken, NJ:
John Wiley and Sons, ncorporated.
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This is a great book that encompasses the treatment and prognosis for the person with
Down Syndrome from birth to adulthood. This book includes chapters on self-
determination, advocacy, educational inclusion and health related concerns.
Kumin, L. (2003). Early communication skills for children with down syndrome: A guide
for parents and professionals. Bethesda, MD: Woodbine House
Houtz Griffin writes in the Library Journal (Houtz Griffin, 2003):
'Woodbine House continues to uphold its high standards for special-needs
texts. Focusing on infants through kindergartners (a promised later volume will
discuss older children), Kumin (founder, Down Syndrome Ctr. for Excellence,
Loyola Coll.) includes several new evaluation checklists and new sections on
apraxia, articulation, and alternative communication options. Most helpful are
the many home activities suggested throughout. Rather than offer more
therapy-type activities, Kumin presents activities that a parent could easily
incorporate into everyday routines like bathing or mealtime.'

Skallerup, S. (Ed). (2008). Babies with down syndrome: A new parent's guide.
Bethesda, MD: Woodbine House.
Stafford writes in the Library Journal (Safford, 2011): 'Revised for the first time in 13
years and featuring four new chapter authors, it covers information that will be most
helpful for families with children from birth to age five. ncluding the experiences and
advice of parents, this should be one of the first books parents read upon receiving their
child's diagnosis.'
Feeding
Chatoor, E. (2009). Diagnosis and treatment of feeding disorders in infants, toddlers,
and young children. Washington, D. C.: Zero to Three.
Another volume from the publisher's Zero to Three. Good information on feeding
disorders.




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Gross, Fine Motor and Play Skills
Bruni, M. (2006). Fine motor skills for children with down syndrome: A guide for parents
and professional. Bethesda, MD: Woodbine House.

Gronlund, G. (2010). Developmentally appropriate play: Guiding young children to a
higher level. St. Paul, MN: Redleaf Press.
This book creates a great background for how important play is in developing motor and
intellectual skills.
Winders, P.C. (1997). Gross motor skills in children with down syndrome: A guide for
parents and professionals. Bethesda, MD: Woodbine House.

This book and the one above by Bruni entitled Fine Motor Skills have been published by
Woodbine House Publishing. These books come highly recommended by the special
needs to community. The only issue with the Gross Motor Skills book is that it needs to
be updated.
Hearing/visual impairment
Holbrook, M. C. (Ed). (2006). hildren with visual impairments: A guide for parents.
Bethesda, MD: Woodbine House.
This book provides an abundance of information on raising a child with a visual
impairment. This book delves into such subjects as diagnosis, treatment, development,
early intervention and special education, orientation and mobility and legal issues. A
must read for those raising a visually impaired child.
FSP/Treatment Planning
Anderson, W., Hayden, D., Chitwood, S. and Takemoto, C. (2008). Negotiating the
special education maze: A guide for parents and teachers. Bethesda, MD:
Woodbine House.
Great book for explaining the ins and outs of the special education system.
Siegal, L. M. (2000). The omplete IEP Guide: How to Advocate for Your Special
Needs hild. Berkeley, CA: Nolo.
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Navigating the ins and outs of the ndividual Education Plan is daunting for most
professionals, let alone downright intimidating to a parent of a special needs child. The
best defense for this is to come prepared. This book covers the entire process of the
EP so that the parent is prepared with information needed to advocate and protect the
needs of their child. Sections include: who qualifies for an EP, what is an EP, who are
the players involved in the child's EP and how to develop goals and objectives. The
extensive Appendices are an invaluable source of information including a sample EP to
Special Education Law and Regulations. This is a must have book for anyone with a
special needs child of school age.
Premature infants
Linden, D. W., Paroli, E. T., and Doron, M. W. (2010). Preemies: The essential guide for
parents of premature babies. Chicago, L: Simon and Schuster Adult Publishing
Group.

Barbara Bibel voted the previous incarnation of this book one of the Best Consumer
Health Books of 2000 in the Library Journal. Bibel writes (Bibel, 2001): 'The parents of
these small, often sick, children need practical information to participate in their care.
Written by two mothers of premature babies and a neonatologist, this much-needed
guide provides detailed coverage of all aspects of prematurity: causes, delivery, the
intensive care nursery, surgical procedures, taking the baby home, growth and
development, and loss and grief. t also has a resource list, glossary, growth charts.'
The current book has been updated with new medical information.
Sears, W., Sears, R., Sears, J. and Sears, M. (2004) The premature baby book:
Everything you need to know about your premature baby from birth to age one.
New York, NY: Little, Brown and Company
Zaichkin, J.(2010). Newborn intensive care: What every parent needs to know. Elks
Grove Village, L: American Academy of Pediatrics.
Other Disabilities
Charkins, H. (1996). hildren with facial differences: A parents' guide. Bethesda, MD:
Woodbine House.
This is a good resource for parents with children with facial anomalies including cleft lip
and palate. Some of the chapters include feeding issues, dental issues, education and
legal rights. The only issue is that the book needs to be updated.
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Dixon Weber, J.D. (2000). hildren with fragile x syndrome: A parent's guide. Bethesda,
MD: Woodbine House.
Barbara Bibel also named this book one of the Best Consumer Health Books of 2000 in
the Library Journal. She writes (Bibel, 2001):
'They have created another thorough yet easy-to-understand guide for parents
of special-needs children. This one is especially important because of the
absence of other good parenting texts on Fragile X Syndrome, which is one of
the most common genetic causes of mental retardation. Recent evidence
suggests that it may be even more prevalent than Down Syndrome. The book
follows the publisher's well-established format, covering topics such as
diagnosis, medical concerns, family life, education, legal issues, daily care, and
advocacy.'
Lutkenhoff, M. (2007). hildren with spina bifida: A parent's guide. Bethesda, MD:
Woodbine House.
Another winning book from Woodbine House Publishing. This book follows a similar
pattern to the other 'guides for parents. ncludes information specifically to raising a
child with spina bifida including urology concerns, neurosurgery and bowel
management.
Sullivan, T. (1996)). Special parents, special child: Parents of children with disabilities
share their trials, triumphs and hard-won wisdom. New York, NY: Penguin Group
(USA).
Donavin writes in Booklist (Donavin, 1995):
'looking at how parents cope with the realization that their child has a serious
problem and then move on to work as advocates, protectors, and educators
The disabilities mentioned here are blindness, deafness, ADD with learning
disabilities, cerebral palsy, Down syndrome, and leukemia. However, people,
not medical conditions, are center stage here. Sullivan manages to convey
plenty of practical information through these parents' words.'
Winter, J. (2006). Breakthrough parenting for children with special needs: Raising the
bar of expectations. Hoboken, NJ: John Wiley and Sons, ncorporated.
Speech/Communication
Bardige, B. S. (2009)). Talk to me baby! How you can support young children's
language development. Baltimore, MD: Paul H. Brookes Publishing Company.
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McLeer Hamaguchi, P. (2001). hildhood speech, language and listening problems.
Hoboken, NJ: John Wiley and Sons, ncorporated.
Sadao, K. and Robinson, N. B. (2010). Assistive technology for young children: reating
inclusive learning environments. Baltimore, MD: Paul H. Brookes Publishing
Company.
This book covers assistive technology for young children from birth to age 5. This book
was written for professionals, however parents will benefit from the information
presented in this book.

Websites
American Academy of Pediatrics
http://www.aap.org/
Autism Society of North Carolina
http://www.autismsociety-nc.org/
Center for Disease Control
http://www.cdc.gov/
Cleft Palate Foundation
http://www.cleftline.org/
March of Dimes
http://www.marchofdimes.com/
National Down Syndrome Society
http://www.ndss.org/
National nstitute of Health
http://www.nih.gov/
United Cerebral Palsy
http://www.ucp.org/
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!:bIishers
John Wiley and Sons, ncorporated
111 River Street
Hoboken, NJ 07030-5774
Telephone: 201.748.6000
http://www.wiley.com/WileyCDA/

Paul H. Brookes Publishing Company
P.O. Box 10624
Baltimore, MD 21285-0624
www.brookespublishing.com

Woodbine House Publishing
6510 Bells Mill Road
Bethesda, MD 20817
800-843-7323
www.woodbinehouse.com

Zero to Three
1255 23rd Street, NW
Suite 350
Washington, DC 20037
Phone: (202) 638-1144
http://www.zerotothree.org
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