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DeboraA.Paterniti,Ph.D.
CenterforHealthServicesResearchin PrimaryCare
DepartmentsofInternalMedicine&Sociology DepartmentsofInternalMedicine&Sociology
theory
hypotheses
PartI:ResearchDesign PartI:ResearchDesign
purposeofqualitativemethods
toprovideanopenended,indepthexploration ofanaspectoflife tofocusattentiononaparticularexperience togainaspecificpersonsorgroupsinsights aboutanexperience
purposeofqualitativemethods
toelicitsubjectiveworldviewsofan experience togainanindepthunderstandingofthenature ofsocialsettingsandbehaviorsfromthe nativestandpoint
modesofdatacollection
intensiveinterviewing
anopenended,directedconversationthat exploresaparticipantsdeep,firsthand knowledge focusesonlivedexperience emphasizessensemaking anindepthandintimatediscussionbeyond whatordinaryconversationalconventionsand etiquettepermit
focusgroups
asmallgroupdiscussion guidedbyasetofresearchquestionsthat exploreattitudes,values,andbehaviors emphasizingaparticulartopicorevent homogenousyetdiversegroup leadbyatraineddiscussionleader leadbyatraineddiscussionleader
fieldresearch
prolongedobservationinvolvingspecific contexts,persons,orbehaviors entryintotheworldsofpersonsand behaviorsofinterest anattempttounderstandaparticularaspectof thelivedexperiencefromtheperspectiveof thosewholiveit
nonprobabilitysamplingstrategies
conveniencesamplingeaseofavailability snowballsamplingselectionofadditional peopleforinterviewingbasedonprevious interviews purposefulsamplingjudgmentaboutwhich mightbethemostusefulorrepresentative quotasamplingspecifiedcharacteristics knowntoberepresentativeofthe population
findingparticipants
invitationbymailortelephone contactperson(e.g.,physician) targetedgroups(e.g.,churches) postedflyers newspaperandradioadvertisements wordofmouth
Participantdriven Researcherdriven
selectingsettings&behaviors
PRIVATE
secretive nonsecretive
PUBLIC
barrierstosubjectparticipation
traveltotheresearchsite opinionsoffamily,friends,orexperts experts timingofintervieworobservations settingrelatedconstraints(gatekeepers) setting Hawthorneeffect researcherknowledge&status researcherknowledge&status
PartII:DataCollection PartII:DataCollection
agentsofdatacollection agentsofdatacollection
generalguidingquestions
typesandmeanings
whatisthis?whatdoesthismean?
structures
whatarethecontextsthatgivethismeaning?
processes
howdoesthiscometohavemeaning? howdoesthiscometohavemeaning?
datacollectionstrategies
askingquestions
phrasingquestions openendedquestions open askparticipantstothinkback avoidaskingwhy why keepquestionssimple becautiousaboutgivingexamples becautiousaboutgivingexamples
strategiesforcollectingdata
interactionalstyle
beconversational beclear allowsufficienttimeforresponses usewhatworks recognizethelimits
observingbehavior
takenotesonthegrouporsettingdynamic notelimitationsofrecordingdevices notelimitationsofrecordingdevices
typesofinterviewquestions
opening&introductoryquestions
tellusabout. tellusabout whenyouhear. whenyouhear
transitionquestions
whathaveyoudone. whathaveyoudone howdidyoucometo. howdidyoucometo
keyquestions
whatwerethemostimportant. whatwerethemostimportant
endingquestions
ofallofthethingsthatyoudescribed. ofallofthethingsthatyoudescribed .
formsofqualitativedata
transcriptsofinterviews audiorecordedconversations audio notatedobservationsmadeduringinterviewsor inaspecificsetting picturesorvideosofsocialgroupdynamicsor behaviorsincontext behaviorsincontext
examples:interview&focusgroupdata
whatdoesthismean? howdoesitcometohavemeaning? meaning
whatdoeshavingadiagnosismean?
processes
howdoesthediagnosiscometohavemeaning? howdoesthediagnosiscometohavemeaning?
interviewtranscriptexcerpt
whenIwasfirstdiagnosed,myphysician,she uh,Mr.[X],youhavecancerononeside Mr.[X],youhave cancer ofyourprostate,notwosides.Ittakemefor ofyourprostate,no ashockatthatmoment.Imafirmbeliever ashockatthatmoment.I thatyoudontworryaboutanythingthatyou thatyoudon cantdoanythingabout.{cough} can thenIwentdownandpickedupsomeliterature causeIreallywasnteducatedonprostate causeIreallywasn cancer,anduhitwasverylimitedanyway.I cancer,anduh startedreadinit,andwenthomeanddiscussed readin itwithmywifeandIhaveasoninlaw,hes itwithmywife andIhaveason in law,he adoctor,andtheymadememakethe decision.(CancerDecisionmakingProject,ACS) decision (CancerDecision makingProject,ACS)
focusgrouptranscriptexcerpt
P1: ya know,Iwas lookin forthesideeffects, ya know, causelikeItoldyallinthebeginning,Iwas, Idontknowaboutthismedication itsisit gonna makemeworse?ButImean,ithelpedme P2: Let,letmeaskaquestion[of] erybody:didthe diagnosisscareyall? P3:..yeah P4: itscaredtheshititscaredme. P1:itdidmecauseIhadknownthatIhadsomerisky behaviorsIhaveknowntherewasachanceofthis [P2:yeah],soIdidnt freakoutbutofcourse,you faceadeathsentence,its gonna scareanybody.
(ComboAntiretroviralAdherenceProject,VAfocusgroup)
examples:fieldresearchdata
whatisthenatureofthisplace? nature structures
whatarethecontextsthatgiveinstitutionallife meaning? meaning?
fieldnoteexcerpt
Colorlesspaintandfadedwallpaperprovidedthebackdropfor dozensofbodiesseatedintheopenentryway.Anolderman withdarkskinsattiedinhiswheelchairwithathreeinch webbedbeltsurroundinghimhehadwethispants.Thesight ofhispantsintensifiedthesmellofurine. Themanattemptedtomovehimselfdownoneofthemany corridorswithhisrightleg,castingitoutinfrontofhimand pullingbackasheleanedforwardinafeebleefforttomovehis bodywiththeaidofachair,stoppinghischairnexttothepost whereIstood.AsItriedtogetmybearings,hetriedto maintainhisbalance.Hetookacoupleofdeepbreaths,then loudlyclearedhisthroat,spittingatthepostasImovedpast him. Awomanscreamed,andIlookedaroundatotherswhoseemed deaforaccustomedtothenoise.Iheardthemanbehindme begintoclearhisthroatagainasIdisappearedbehindthe heavywoodendoormarkedStaffOnly.(JContEthn2000)
assessingdatacollection
describecontextandstructureofthesituation recordobservationsofparticipants assessqualityofthedata evaluaterelativeusefulnessofguiding questions acknowledgeareasofdifficulty
PartIII:DataAnalysis PartIII:DataAnalysis
dataanalysisprocess
organizingandsortingdata
developingcategoriesfromorganizationalunits developingcategoriesfromquestionsabout meanings,structures,andprocesses
codingdata
whatisthis?whatdoesitrepresent? whatdoiseegoingonhere?whatarepeople doing?whatishappening?whatkindsofevents areatissue? whatisthisanexampleof?howisitrelatedto otherthings? otherthings?
dataanalysisprocess
continuousidentificationandcomparison retrievingandexaminingdata
identifyingmeaningfulunits developingstructuresandnotingrelationships definingprocesses
drawingconclusions
notecategoriesofmeaningfulelements summarizestructuralrelationships describeprominentpatternsandprocesses describeprominentpatternsandprocesses
notesontranscripts
Participant3:Ijust ha veaco ns ta ntb urning. Itsrea llyhard toeatve rymuc h.. uh so Ima lwa ys hungry,a ndha vea ha rdtimekeep ing foc usedatwork. Mode rator: Someo f yo udesc ribe w hats o und lik eratherse rio usp rob le msa ndothe rs of yo ue xp la inedtha t yo urs to mac hisbo thered o r yo u fee lna usea ted. C an yo ute ll mea littleb itmoreabo utw ha ts go ingo nw he nyo u fee lthat wa y?
Participant5: we ll,Im notrea llys urew hat yo umea n uh Imk inda like P articipant3,here uh attime s,Ijustca inteat. Ijus tdo nt fee l hungrybe ca useIdo nt wa nt to fee la lltha tb loa tinga ndb urning. A ndI dont likethos eTumsmuc h,soIjust ha ngo ntil itso ver. Participant2:Ikno ww hat yo u mea n.Ire a llydo nt fee llikedo in muc hw he n Im fe e lintha twa y. Yo uk no w,so meo fthe guys,the y like to getto gethe rto pla ycardsa ndd rinkbee r.W e ll,Ica intdrinko n aco unto f this,a ndsoI dont godotha t nomo re.
makingcategories
(2) /Uncertainty (21)/Uncertainty/informationquality (211)/Uncertainty/informationquality/personalcompetence (211)/Uncertainty/informationquality/personalcompetenc (212)/Uncertainty/informationquality/amount (213)/Uncertainty/informationquality/clarity (22)/Uncertainty/optionsordecisions (221)/Uncertainty/optionsordecisions/toofew (222)/Uncertainty/optionsordecisions/toomany (223)/Uncertainty/optionsordecisions/conflicting (23)/Uncertainty/outcomeordiagnosis (24)/Uncertainty/treatmentordiagnostictests
(MammographyProject,FocusGroups2005) (MammographyProject,FocusGroups2005)
presentingresults
chartformats tableswithsummarydata tablesthatpresentsimilaritiesandcontrasts longtextpassages longtextpassages
chartrelatedformats chart
BarrierstoF/U
Efficacy
Uncertainty
Cost
Communication
informationquality
options/decisions
outcome/diagnosis
treatment/diagnostictests
personalcompetence
amount
clarity
(MammographyProject,FocusGroups2005) (MammographyProject,FocusGroups2005)
thematictables
Group All Theme
Whatcomesto mindwhenyou heartheterm breastcancer? Ontheuseof tamoxifenfor prevention Weighingrisks
Comments
ImeanImterrifiedofcancer. Iwouldbemoreafraidofmetastases. Ihavenofearofbreastcancer. Iwouldnttakesomethingthatwouldincreasemy chancesofgettingsomethingelsetoprevent somethingthatIknowIamnotgoingtoget.
IlltellyouanotherrealbigproblemIhavewiththisisthata bloodclotalonewillkillyoufasterthancancerwithoutany warningandthatwithinitselffrightensme. Ihaveenoughmedicalproblemsalready,anditseemstome thatitllbeaddingmoreproblemstowhatIalreadyhave.
Latina
African American
All
Imgoingtodieofsomethinganyway.
(Ethnicity&Disease2005)
PartIV:UsingResults PartIV:UsingResults
practicalapplications
toexploreorunderstanddiverseexperiences toconductresearchforspecificneedsandvalues todesignsurveysrelevanttorespondentsexperiences todesignsurveysrelevanttorespondents tocreateeducationalmaterialsordesigninterventions toassistorganizationsinprovidingservice toinformpolicy toinformpolicy
applicationintheorybuilding applicationintheory
toexpanddefinitionsofconcepts toprovideempiricalevidencetosupport conceptualdefinitions toidentifygapsinexistinganalysesortheories toofferconjecturestocheckintheliteratureor totestbyempiricalresearch
PartV:Ethics&Conduct PartV:Ethics&Conduct
obligationstoresearchsubjects
howmuchdoweholdontoouragenda? howmuchdowerevealaboutourselves? howfardoweprobeintosensitiveareas? howtightlydoweholdontothetraditional rolesofresearcherandsubject? whatroledothesedecisionshavein influencingouranalysisandwriteupofthe data?
InSummary InSummary