Hospice
Bulletin
PP13040/03/2009(022048)-Vol.12 No 1 – Jan 2009
Newsletter of the National Cancer Society
of Malaysia, Penang Branch
Relay For Life - Fighting Cancer Together 2009 was
launched for the 5th time on 8th October in Gurney Plaza
by YB Phee Boon Poh, State Health, Welfare and Caring
Society Committee Chairman. This very meaningful
relay has become the signature activity for the National
Cancer Society of Malaysia, Penang Branch. The aims of
this relay are manifold – to raise awareness that cancer is
not a death sentence, to raise funds for cancer education
and, of course, for our hospice programmes, namely
Hospice-at-Home Programme and Rumah Hospis, our in-
house facility. Both these two services are free and thus
it is necessary for NCSM, Penang Branch to constantly
raise funds so that these two palliative care services can
continue to serve the public, irrespective of race, colour
or creed.
Cancer Massages - Loud & Clear Inspirational
Many people are very keen to share the fact when they
have a coronary by-pass but, most do their utmost to
hide the fact that they have cancer. Luckily, in recent
years through the effort of NCSM, Penang Branch,
some survivors have come out to the open by giving
testimonies at our various functions.
It cannot be denied, that according to statistics, one in
seven men and women will be affected by cancer some
time in their life-times. The figure will rise to one in five in
2020 when Malaysia becomes a developed country.
Reflections:
Relay for Life -
Fighting Cancer
Together
by Mui Siew Koon
member of the organizing committee
It is sad to note that to the general public cancer means
death. As our survivors have testified, most cancers can
be treated if detected early and treated professionally
without delay. Also cancer can be prevented if healthy
life-styles are practiced. In the event that cancer is
detected late, there is palliative care to depend on to give
better quality of life in one’s final phase on the earth.
1
Relay for Life – Fighting Cancer Together was initiated by
Dr Gordon Klatt in the United States of America in 1985
to raise awareness on cancer
after his friend died of the
disease. Since then thousands
of such relays have been held
in the US raising millions of
dollars. To date Relay for Life
has been held in 20 countries,
with Malaysia being the latest
addition.
It was 5 years ago when NCSM,
Penang Branch was awarded
the franchise. The launch for
each relay would be held in the fourth quarter of the year
and the actual relay would be held in March the following
year. The half-year interval is to enable dissemination of
correct cancer information to the public, through flyers,
brochures, talks, seminars and exhibitions.
In the first year we had around 100 teams of 10 participants
and the amount collected was about a quarter million
ringgit. The 2008 relay recorded some 300 teams and the
amount collected came to half a million ringgit. Many
activities have since been added to make the event a
fun-filled one for the whole family.
 On the day of the event, Taman Perbandaran Pulau
Pinang, formerly known as the Youth Park, would be
teeming with young and old - thousands to be exact –
with participants, volunteers, survivors and of course,
committee members.
As early as 4.00 pm entertainment begins. There would
be lots of friendly competitions for young and old,
colouring contests for children, clowns mingling with
the crowd, performances of cultural and modern dances
and songs. In addition there would be lots of sumptuous
food and drinks available.
Community Owned Educational
At precisely 6.00 pm the opening ceremony begins. In
the past we had the privilege of Tuan Yang Terutama
Yang DiPertua Negeri Pulau Pinang, the Chief Minister or
some other state dignitaries to grace the function. The
first lap is done by survivors, cheered by all present for
their courage and spirit for coming out to the open. After
this it is free for all participants, who would take turns to
2 be on the field till 10.00 am the following morning.
Fun Filled Activities
03 HAPPENINGS • Carers’ Meetings - Penang Island
CONTENTS
- Seberang Perai
• Palliative Care Together in Perth 2009
• Soft Sift In An Hourglass: Stories Of Hope
And Resilience At The End Of Life
– By Dr Rosalie Shaw
• Counselling Course 2008
• Palliative Care Case Presentation Pinang, 250A Jalan Air Itam, 10460 Pulau Pinang. Tel: 04-228 4140 Fax:
04 Launching of Relay For Life 2009/Roadshows
06 40th Anniversary Celebrations
07 Prem Joshua in Concert
08 From the bedside
09 Stories by Survivors
10 Tribute to the late Dato’ Poh Cheng Hee &
the late Miss Ho Choo Sin
11 Ncsm & Agm Elections
11 Volunteers
12 Donors
The walk would be interrupted for half an hour at 8.00
pm for the luminaria ceremony - the silent and solemn
half hour when we quietly remember our dear ones who
have left us. Then at 8.30 pm merriment continues till
midnight. At 7.00 am the site is again alive with various
activities.
We are indeed very grateful to all our donors and
sponsors, individuals as well as corporate bodies,
participants and volunteers, not forgetting our faithful
organizing committee members and sub-committee
members for having helped us in the past. It is hoped
that we would be able to get more donors, more
sponsors, more participants, more volunteers, more
members to serve on various committees and sub-
committees, and of course, more funds. I assure all
of you that Relay For Life is indeed a very worthwhile
activity to be in.
Registration for teams is open now. Team registration
(for 10 participants) is RM100.00. Each member receives
a kit consisting of a T-shirt, updated write-ups on cancer,
brochures, stickers, bookmarks and a donation card. The
donation card together with donations must be handed
back to Rumah Hospis by 28 February 2009.
For inquiries please contact Relay for Life Secretariat:
Tel: 04-2284140 / Fax: 04-2264676 /
E-mail: relay.for.life.pg@gmail.com
Walking for a good cause
HOSPICE BULLETIN is the quarterly newsletter of the National Cancer
Society of Malaysia, Penang Branch. We welcome your contribution to
the bulletin. Please submit at least six weeks before issue date which
are the first day of January, April, July and October 2009.
All items submitted for inclusion in the Hospice Bulletin must be
signed but author’s requests to remain anonymous will be respected.
Contributions can be sent to: The Editorial Team, Rumah Hospice Pulau
04-2264676
EDITORIAL TEAM Dato’ Seri Dr T Devaraj, Dr Oo Khaik Cheang, Mdm
Mui Siew Koon, Ms Ho Yet Min, Dr Dicky Ng Teik Kee
PUBLICATION ASSISTANTS Ms Chitra Alagan
The views expressed in HOSPICE BULLETIN are not necessarily those
of the National Cancer Society of Malaysia, Penang Branch or of the
Editorial team.
www.penanghospice.org.my
www.relayforlife.org.my

CARERS’ MEETINGS – Penang Island
Carers’ Meetings will be held every 1st and 3rd Saturdays
unless otherwise indicated (*) by the organizer.
Venue : Rumah Hospis Pulau Pinang
Day : 1st and 3rd Saturdays
Time : 11.30am - 12.30pm
2009
Jan 3 Case Studies
11 Maximising Family Tree
Feb 21 Coping With Conspiracy of Silence
Mar 7 Case Studies
21 Empowering Family Carers
April 4 Case Studies
18 Long Term Inpatients
May 2 Case Study
16 Managing common co-morbid conditions
June 6 Case Study
20 Continuous professional development
CARERS’ MEETINGS – Seberang Perai
Venue : Klinik Kesihatan Butterworth
Day : 3rd Friday of every month
Time : 1.00pm - 2.00pm
Carers’ Meetings in Seberang Perai are held every 3rd
Friday of each month. These meetings are open to
everyone. Normally volunteers and our 3 Palliative
Care Nurses of the National Cancer Society of Malaysia,
Penang Branch meet to discuss the on-going programmes
carried out by the Society and how they can contribute.
Problems of home care cases are discussed and shared at
such meetings. In addition volunteers bring newspapers
and other items for recycling, with proceeds donated to
our Society.
HAPPENINGS
SOFT SIFT IN AN HOURGLASS: STORIES OF
HOPE AND RESILIENCE AT THE END OF LIFE
– BY DR ROSALIE SHAW
A collection of stories written by
Dr Rosalie Shaw, well known for her
Palliative work.
Soft Sift in an Hourglass retails
at SG16.00 for paperback You
may order via email Jenny to
jenny@ar mour publishing.com
or call 65-62769976 (Ext 212)
COUNSELLING COURSE 2008
This course with 31 participants ended with an examination
in September. Successful candidates numbered 10 while 11
were given attendance certificates only.
The 14th counseling course will be held in June 2009. For
more information, please see the April 2009 issue of this
bulletin.
PALLIATIVE CARE CASE PRESENTATION
Pure Lotus Hospice of Compassion hosted the 17th
Clinical Meeting on 21 October. 36 participants from
Pure Lotus, Rumah Hospis, PCU Unit of BM Hospital,
PCU Unit of Penang Hospital, Charis Hospice and
Penang Hospice Society attended the meeting. 3
Dr Oo Loo Chan of Charis Hospice presented a topic
on Western Medicine/Traditional alternative medicine.
Dr Lee Her Chin of Pure Lotus shared a case study on
a patient with Cancer of the Aesophagus. Dr Lim of
BM Hospital talked about a patient with cancer of the
breast & lymph edema and Dato’ Seri Dr T Devaraj
presented a case of a patient with cancer of the brain.
The next Clinical meeting is scheduled to be held at 3pm,
on the 12 of January 2009 (Monday) at the Palliative Care
Unit of Hospital Bukit Mertajam, All those interested in
Pallaitive Care are welcome to attend this meeting. For
more information please contact Chitra at 04-228 4140.

PALLIATIVE CARE TOGETHER IN PERTH 2009

International Conference on Cultural Connections for
Quality Care at the End of Life
Perth – Western Australia
24-27 September 2009
The Inaugural International Palliative Care Conference
and the Asia Pacific Hospice Network
www.pallcare.org.au
www.aphn.org 17th Clinical meeting hosted by Pure Lotus
 HAPPENINGS

LAUNCHING OF

RELAY FOR LIFE 2009 For the fifh year running, the National Cancer Society of
Malaysia, Penang Branch and Penang Hospice Society
have embarked on this programme to raise cancer
awareness in our community and to raise funds for our
community services.

This campaign was launched by YB Encik Phee Boon

Survivors posing with YB Phee
Poh, Ahli Majlis Mesyuarat Negeri Pulau Pinang on 8th
October 2008 and will close with the Relay. The Relay
itself will begin from 6.00pm on Saturday March 14th
2009 to 10.00am on Sunday March 15th 2009 at Taman
Perbandaran Pulau Pinang (Youth Park). It will be a family
event of celebration of survivors with cancer, solidarity
with cancer patients and their families and resolve to
continue fighting cancer together as a community.

RELAY FOR LIFE 2009 ROADSHOWS

4

Harmony Food Fair 2nd Health and Fitness Expo -PISA

Harmony Food Fair Penang Food Hunt - New World Park

 HAPPENINGS

Jabatan Kesihatan Timur Laut providing free health screening Health Education Department - Promoting Healthy lifestyle

INTERNATIONAL RELAY FOR LIFE TRAINING

By Gladys Loh, Relay For Life 2009 – Committee member

On the 19th November, Chitra and I attended the Apart from the training, Chitra and I played “hosts” to 5
International Relay For Life (IRFL) training at Hilton, KL the Japanese, Philippines, Taiwanese and Sarawakian
organised by American Cancer Society. participants by bringing them to Petronas Twin Tower
for shopping and dinner.
We were welcomed by a cocktail dinner at 7.30pm by the
ACS trainers, Iris Pendergast and Darnelle Bernier and We had a wonderful and fun-filled time at the training. It
host, National Cancer Society of Malaysia, Kuala Lumpur. was also very beneficial as it showed us the way on how
to take Relay to next level.
Many other delegates from NCSM Selangor, Johor, Perak,
Perlis, Kedah and overseas participants from Taiwan,
Japan and Philippines were there too.
Besides getting to know each other, we also got to
exchange ideas on our challenges and success and how
Relay For Life was celebrated in other countries.
We were briefed on how a solid committee structure looks
like, on leadership qualities, eyeing on future committees
and how to make the event more memorable.
It was also stressed that the more survivors we include, the
more successful Relay For Life will be as survivors are our
hope for Relay. We also discussed ways to connect with
IRFL trainers Ms Pendergast & Ms Bernier posing with all the participants
them so that they walk back with HOPE after the Relay.
We were briefed on how to make the event educational Gladys Loh sharing her views at the training
as it was stressed that much as we want to make it
memorable, we must not forget that EDUCATION is the
main key for RFL.
We also learned that it is very important to have sub-
committees as that’s the one thing that will keep Relay
from reaching it’s potential if we don’t have enough
people to do the job.
 40th Anniversary Celebrations

Chief Minister of Penang addressing guests at the dinner

Penang Rotary Club donating RM40,000 to the society

40TH ANNIVERSARY CELEBRATIONS

Anniversary Dinner
In conjunction with the 40th anniversary celebrations
of National Cancer Society of Malaysia, Penang Branch
a series of activities were carried out in the month of
6 October. A dinner was held at the Georgetown Bayview
Hotel, Penang on the 25th of October. The Chief Minister
of Penang, YAB Tuan Lim Guan Eng attended the dinner
with his honourable wife. In support of the Society’s work,
the Penang Rotary Club generously donated RM40,000
at the dinner. The Dinner raised over RM89,000. Much
thanks to our donors, sponsors, supporters and all well
wishers.

Lucky Winner - courtesy of Venessa Diamonds

Supporters, donors, volunteers & staff enjoying Muhibbah Dinner. Dance Factory performing the peacock dance

Breast Cancer - Women’s Perspective
PREM JOSHUA
IN CONCERT
SPECIAL REPORT
Breast Cancer Talk
As October was also a Breast Cancer awareness month,
the Society invited Ms Dee Sidhu, a breast cancer
survivor and founder of Amanita, a company promoting
products for women living with cancer to give a talk
entitled “Breast Cancer – Women’s Perspective”. The talk
was held in Rumah Hospis on October 5.
Free mammograms
The Penang Rotary Club sponsored 200 mammograms
at RM60 each to be done at the Pusat Wanita Toh Puan
Datin Khadijah. Eligibility was for women over 40 years
who had not had a mammogram before.
Indo-fusion musician Prem Joshua
and band members consisting of long-
time partner Chintan Relenberg, Raul
Sengupta, Satgyan Fukuda and guest
artist Kumar Karthigesu, a local sitar
exponent performed to a packed hall 7
at the Wawasan Open University on 3rd 7
December 2008. The dinner and concert
organised by the Temple of Fine Arts
Penang and National Cancer Society of
Malaysia, Penang Branch was to raise
much needed funds for Rumah Hospis
Pulau Pinang. Through this effort over
RM70,000 was raised.
LE TOUR DE LOVE
PENANG – XIAMEN TRANSNATIONAL CYCLING
LE TOUR DE LOVE CHARITY FUND RAISER
This cycling campaign ended in May and was in aid
of five non-charitable organizations, National Cancer
Society of Malaysia, Penang Branch, St John’s Ambulance,
FPA Penang, Tamil Foundation Malaysia and Persatuan
Pendidikan Du Zhong
A big THANK YOU to YB Teh Yee Cheu and all those
involved in this fund raiser. The total amount raised
through this effort was RM24,004.45. An amount of
RM4,800.89 was donated towards National Cancer
Society of Malaysia, Penang Branch.
 STORIES FROM THE BEDSIDE

My great grandmother
Janice Lim – 9 year old
My name is Janice Lim. I am 9 years old. I study at Sekolah
Jenis Kebangsaan (C) Sin Kang School. I am going to Janice Lim & Ah Chor.jpg
standard 4 (yellow) next year. We stay in a flat with my
“Ah Chor” (great grandmother). My great grandmother is
91 years old. She is so loving, caring and understanding.
When I found out that she has cancer on her left eye, I
felt so sad because it caused her so much pain. At times I
cry myself to sleep. How I wish I could stop her pain and
suffering. We used to talk with each other but now she
could only listen. And it’s okay. I love her very much. I am
willing to do the talking while she does the listening.

Being by her side makes me feel so happy and I am so

proud to have her as my “Ah Chor”. Now she cannot eat
by herself. I feed her by the syringe. My aunt taught me
how to feed her. “Ah Chor” sleeps in the hall during the
day. At night, papa carries her to her bed. Every night
before I go to sleep, I pray to GOD, “Please take away all
8 the pain from her”. It hurts me so much to see her like this.
Please help her. Now I give her the medicine correctly as
the nurse taught me. I am so happy my “Ah Chor” has
no more pain. “Please don’t take my great grandmother
away from me yet”. “Thank you GOD”.

I am not ready yet,

Final Desire
Madam S had advanced cancer of the uterus. She has 4
sons and 2 daughters and many grandchildren and great
grandchildren. When asked about her life, she said she
had a good life with filial children who are all doing well.
What about her final desire in life? Her answer is to go
to Nirvana. In her dream she saw a holy monk coming
down from heaven visiting her in the home chanting for
her.
Send me home
Madam L is a 75 years old lady. She is having cancer of
the cervix. She had a dream. In her dream she said her
house was flooded. The water rose to halfway to heaven.
She was protected from drowning by a heavenly dragon
which curled her up. There was peace and happiness in
the halfway land. She was surrounded by all the saints
from different faiths.
Then she saw an English boy calling her to follow him
further up to heaven. But she told the boy, “Send me
home, I am not ready yet.” “I still have things to do on
earth.”
She suddenly woke up and found herself lying
comfortably on her own bed. She then realized that it
was only a dream

By Palliative Care Nurse Helen Cheah


“CANCER”
just a 6-letter word
My first encounter with cancer came
just after Chinese New Year in 1998
when there were some blood-stains
on the toilet tissue paper I just used.
I dismissed the problem thinking that
I had taken too much “heaty” food
recently. Moreover I was prone to
constipation. When the blood-stains
persisted, my company’s panel doctor
prescribed Anusol for piles and later
antibiotics for infection.
Then in July 1998 I was shocked that
my toilet bowl was full of red polka
dots. The surgeon confirmed it was not piles, but a
suspicious growth in the rectum. It was hard for me to
accept the fact that I was not well because I was far from
being pale and skinny. Also I practiced a healthy life-
style. I did not take high-fat food. I used to skip lunch
and took lots of fruits. I taught aerobics 6 days a week in
the evening. I took light dinner except when there was a
dinner function. With that daily routine, my weight still
maintained and I still was plump.
In any case I was operated on. A resection was done. The
report stated Duke B Well-differentiated adenocarcinoma
of the rectum. I was discharged after 9 days and was on
medical leave for a month.
I learnt of the existence of a support group “Among
Friends Wellness Centre”, located in Caring Society
Complex. Seeing that I was frightened and sad, my
husband accompanied me to the centre on the first
occasion. The minute I saw Madam Chee Goon Hoe, the
founder, a very warm person, tears ran down my cheeks.
After pouring out all my worries and fears to her, I walked
out from the centre, full of confidence and was mentally
prepared to fight this dreadful disease.
I had 25 sessions of radiotherapy in November 1998 in
Mt Miriam Hospital and continued with oral
chemotherapy for a year. I suffered loose bowels and
my anus area was sore. I had a difficult time, but for the
sake of my family and loved ones, I soldiered on. My
period ceased. I experienced hot flashes and emotional
fluctuations. I was placed on hormone replacement
therapy to relieve me of the symptoms.
Then I had the second encounter with cancer. It was in
2006 when I suffered heavy discharge. Initially I ignored it
as every year I did pap smears and had routine checkups.
STORIES BY SURVIVORS
by Loo Chye Ngoh, a cancer survivor
When the discharge became heavier I had an ultrasound
done. Then I had a D and C and I was diagnosed with
Adenocarcinoma of the Endometrium.
I was shocked beyond words. I was not prepared for
the horrible news. How could cancer strike me twice!
My mind went blank. I sought a second opinion. I was
advised to do CT scans, MRI and blood tests. The CT
scans showed that my 2 ovaries and lymph nodes were
affected, and there were a few “dots” in my lungs and
liver and two tumors of 4cm each in the spinal cord.
I underwent a total abdominal hysterectomy followed by
6 cycles of chemotherapy that ended in December of the
same year and 12 sessions of radiotherapy targeted at
the tumors at the spinal cord in January 2007.
With the support from my family, friends and the support
group I was able to pull through chemotherapy and
radiotherapy successfully. But I lost my hair then. After
this second brush with cancer, I realized that life is fragile. 9
So I opted for early retirement.
I am now in remission and I have a new appreciation of
my time and life. I am an active member at the support
group mentioned earlier. We meet every Wednesday and
last Saturday of each month from 3 pm to 5 pm You are
most welcome to visit us. At the centre, we share our
experiences and exchange information. The insights and
methods for coping will help remind one another that
no one is alone and that many have walked this difficult
road before. Cancer patients can lead normal lives. Life
does exist at the end of the dark tunnel.
Now I have a personal collection of useful books on
cancer and nutrition. Every morning I practice qigong
in Youth Park and in the evening I brisk walk in my
neighbourhood park. Now, I take less meat and more
vegetables. The CT scan in August 2007 showed that my
lungs and liver are cleared and the tumors in my spinal
cord no longer visible. I am grateful that bad times are
over. I look forward to a better tomorrow.
I strongly believe that cancer is not a killer. It is just
a test from God to make us value our lives more. I am
happy to share my knowledge and my experiences with
cancer patients and their families. My message to people
who are fighting the big C is: Know everything about
the disease; never underestimate the power of prayers
(whatever your religion is); and appreciate the support
of family and friends. Believe in yourself. CANCER is just a
6-letter word. There is no reason to be afraid of it.
 Tribute to the late
Dato’ Poh Cheng Hee &
Miss Ho Choo Sin
by Mui Siew Koon

The National Cancer Society of Malaysia, Penang Branch

is extremely sad to have lost two of its very caring and
generous supporters, Dato’ Poh Cheng Hee in 2006 and
Miss Ho Choo Sin recently.

I had the privilege of knowing both these two wonderful

ladies since 1998. Before then I was aware that
they were respected members in the education circle.
Dato’ Poh had been the principal of Phor Tay High School
10 for decades while Miss Ho was a lecturer in a teacher
training college.

The first time I met them was when they attended the
floral demonstration and exhibition, “Flowers from
The Heart” jointly organized by the Penang Floral Art Photo shows Dato’ Poh (in turquoise),
Society (of which I was president) and the Lions Club of Miss Ho (In purple) and Ms Rosie Yew
(in checks) after receiving their token of
Georgetown City (of which I was president too then) to appreciation from Mui in 1998
raise funds for the National Cancer Society of Malaysia,
Penang Branch. I was pleasantly surprised when
Dato’ Poh and Miss Ho together pledged a huge donation
on the spot, amounting to one-third the total collection
netted by the 3-day show.

That cheque marked the beginning of their many

donations to NCSM, Penang Branch for our hospice
programmes in the last decade. They were staunch
Buddhists, leading simple lives, not keen over material
stuff or fame. They made their donations whenever they
received dividends or interests and that would be a few
times a year.

We, in NCSM, Penang Branch, are very grateful to both

these two caring ladies for their kindness and generosity,
in helping us help the sick. May they rest in peace.
 NCSM & AGM ELECTIONS
THE NATIONAL CANCER SOCIETY OF MALAYSIA
PENANG BRANCH

NCSM (Pg Branch) held its 39th Annual General meeting on Sunday 23 November 2008 at Rumah Hospis. It was an
election year for the Society and a new Executive Committee was voted into for office for 2009 – 2012. Almost the
entire current Committee was re-elected into office with the exception of two new faces: Dr. Khor Yoke Lin (lecturer,
USM) and Assoc Prof. Dr. Zuraidah Mohd Yusoff (USM). This might partly reflect the confidence that members had in
the previous committee but is more likely because of lethargy and lack of new and committed members among the
general body. The rest of the Committee comprise the following

Chairman Dato’ William Ng Jit Thye

Vice-Chairman Dato’ Seri Dr. T. Devaraj
Hon. Secretary Dr. Oo Khaik Cheang
Hon. Treasurer Dato’ Dr, Chan Kok Ewe
Committee members Mdm Mui Siew Koon
Dr. Aishah Knight
Dr. Bina Rai
Wimal Jinadasa
Tan Jit Seng 11
Dr. Saad Othman

Thank You Volunteers

The Society would like to thank Ms Nisha Dhaniya and Penang Girl Guides Penang
for their time and energy spent volunteering at Rumah Hospis.

Girl Guides Lisa Anne Koh & Janice Lim help prepare Relay Kits Nisha with Ho Yet Min volunteering at the Launch of Relay 2009
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