Академический Документы
Профессиональный Документы
Культура Документы
Chicago, IL
27-30 May 2008
Presented by
1
INTRODUCTION
2
W H O A M I?
Introduction — The Past
Loss of
speech
&
tantrums
Self-stims Environmental
withdrawal
3
W H O A M I?
Introduction
4
W H O A M I?
Introduction — Adult
5
AREAS TO CONSIDER FOR SUCCESSFUL ADULTHOOD
Overview
Biomedical Residential
Employment
Behavioral/
Relationships (including sexual)
Developmental/
Educational
Continuing Education
6
NAVIGATING THE SEA
OF INTERVENTIONS
7
THE SEA OF INTERVENTIONS
Three Areas of Intervention
Educational/Behav Sensory
Educational- • DTT/ABA Occupational Therapy to
Behavioral Treat Imbalances of the
• Daily Life Therapy
Outer and Inner Senses
• TEACCH
• Sight • Touch
• Miller Method
• Taste • Smell
• DIR (Floortime)
Sensory Biomedical • Hearing
• RDI
• Vestibular
• SCERTS
• Proprioception
Stephen Edelson, personal
communication, December, 2004
Biomedical
Treating chemical imbalances caused by internal and external factors
• Digestion • Nutrition • Chelation • GFCF Diet
• Vaccines • Dysbiosis • Immunology • Feingold Diet
• Mercury and other heavy metal toxicities [metallothionein & glutathione]
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A POSSIBLE INTERVENTION PROFILE
Three Areas of Intervention
Educational-
Behavioral
Biomedical
Sensory
1. Size
2. Time
3. Level of Support
4. Input
5. Difficulty
6. Output
7. Participation
8. Alternate
9. Substitute Curriculum
11
Only hermits
live independently
INTERDEPENDENT LIVING
AND APPROPRIATE HOUSING
Along with
COMMUNITY INVOLVEMENT
12
AREAS TO CONSIDER FOR SUCCESSFUL ADULTHOOD
Residential
We ain’t gonna be
around forever….
13
WORK? WHERE? WHAT? HOW?
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REAL WORLD O F WORK
Defining Work – Adding Meaning to Life
However…
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REAL WORLD O F WORK
Reality for People on the Autism Spectrum
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REAL WORLD O F WORK
Characteristics of Autism – A Reframing
ASA A complex developmental disability that typically
(2005) appears during the first three years of life. Autism
Spectrum Disorder results from a neurological
Reframe
condition that affects the functioning of the brain.
p le
o Proble
pe m s wi t h
n to e … handw
riting…
i lin
s
p in
m
Bu
y e ater… …
Alw
Pick Clumsy ay
s“
on
the
go”
Difficult …
y paying a Only likes certain types
ttention
… of clothing…
Adapted from Myles, Cook, Miller, Rinner & Robbins. (2000). Asperger Syndrome and sensory issues :
Practical solutions for making sense of the world. Shawnee Mission, KS: Autism Asperger Publishing. P. 5. 18
REAL WORLD O F WORK
Gearing Work Towards Interests
19
REAL WORLD O F WORK
Determining Career Matches – Possible Employment Structures
• Competitive employment
• Full-time employment
• Part-time employment
• Permanent employment
• Short-term jobs
• Seasonal jobs
• Self-employment / Micro-enterprise
20
REAL WORLD O F WORK
Matching Needs to Possible Positions
Adapted from Shore, S. & Rastelli, L. (2006). Understanding autism for dummies. New York: Wiley.
21
REAL WORLD O F WORK
Matching Needs to Possible Positions
Adapted from Shore, S. & Rastelli, L. (2006). Understanding autism for dummies. New York: Wiley.
22
REAL WORLD O F WORK
Matching Needs to Possible Positions
Adapted from Shore, S. & Rastelli, L. (2006). Understanding autism for dummies. New York: Wiley.
23
REAL WORLD O F WORK
The Hidden Curriculum – Peter Gerhardt, 2004
THE HIDDEN
CURRICULUM
Practical Solutions for Understanding
Unstated Rules in Social Situations
Bob Sam
Brenda Myles
http://www.esoterically.net/log/archives/2003_01.html
Melissa Trautman
Ronda Schelvan
Sam arrives after Bob. What two rules did he break?
25
RELATIONSHIPS
26
THE RAGE CYCLE
Adapted from Myles, B., & Southwick, J. Asperger Syndrome and Difficult Moments: Practical
Solutions for Tantrums, Rage and Meltdowns. Autism Asperger Publishing Company 27
IMPROVING SELF–ASSESSMENT
Adapted from Myles, B., & Southwick, J. Asperger Syndrome and Difficult Moments: Practical
Solutions for Tantrums, Rage and Meltdowns. Autism Asperger Publishing Company 28
SOCCSS
Situations — Options — Consequences — Choices — Strategies — Simulation
Jan Roosa (1995) in Myles, B., Trautman, M., and Schelvan, R. (2004). The hidden curriculum, Shawnee Mission: AAPC. p. 22
Situation
Who: David and Tom
When: At recess after lunch
What: Tom pushed David when they were both standing in line at the slide. Mrs.
Smith saw them and had both of the sit out for the rest of recess.
Why: David started teasing Tom about the coat he was wearing.
Options Consequences Choice
Ignore David’s David could continue to say mean things.
comment.
David might stop saying mean things.
Avoid being around If David is playing on the slide, Tom would not
Davis at recess. be able to be there and he likes the slide
Tell David to stop; if he The teacher would tell David to stop. √
doesn’t, tell the teacher.
The teacher would tell Tom to ignore him.
Strategy - Plan of Action
The next time that David says something mean to Tom, Tom will tell him to stop
If David doesn’t stop teasing Tom, Tom will tell the teacher.
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SOCCSS
Situations — Options — Consequences — Choices — Strategies — Simulation
Jan Roosa (1995) in Myles, B., Trautman, M., and Schelvan, R. (2004). The hidden curriculum, Shawnee Mission: AAPC. p. 22
Situation
Who: David and Tom
When: At recess after lunch
What: Tom pushed David when they were both standing in line at the slide. Mrs.
Smith saw them and had both of the sit out for the rest of recess.
Why: David started teasing Tom about the coat he was wearing.
Options Consequences Choice
Avoid being around If David is playing on the slide, Tom would not be
Davis at recess. able to be there and he likes the slide
Simulation - Practice
A. Visually
B. Verbally
C. Role-playing
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Seek… to understand all aspects of the hidden curriculum
Observe… what people are doing and NOT doing in order to…
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S O C I A L S T O R I E S – by Carol Gray
Using vignettes to describe how social interactions work employing…
Descriptive Sentences: Background of situation
Directive Sentences: Suggests action and decode meanings
Affirmative Sentences: Suggests commonly shared values or opinions
• When the teacher asks a question, many students would like to
provide an answer. Descriptive
• It’s hard for a teacher to hear when several students try to answer at
once. Descriptive
• Students in a classroom need to take turns talking. Affirmative
• When I want to answer a question that the teacher asks in class, I will
try to sit quietly and raise my hand. Directive
• The teacher may call on me to answer or the teacher may give another
student a turn at answering the question. Descriptive
• If the teacher does not call on me this time maybe next time she will
ask me to answer her question. Descriptive
Adapted from Gray, C. The new social story book. Future Horizons
33
Madeline Teaches Becca How to not
Remain
Stress
Calm
Out
Power Card
Scenario: About 15 minutes into her weekly music lesson, Becca, a 9 year old
girl with AS consistently throws herself into a coach crying that she
“will never be able to do it” and “that is no use.” After 10 minutes,
Becca’s mother calms her down and the lesson continues with a doll
named “Madeline”. This behavior occurs during other activities too.
Motivator: Special
Interest/Hero
The doll Madeline
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Madeline Teaches Becca How to not
Remain
Stress
Calm
Out
Power Card
Madeline wa
nts you to re
to help calm member to c
yourself if y hoose one of
answering a ou get frust the following
question. If ra t ed when you ways
If you need on e o f t h e way s h av e difficulty
help to answ d oe s n ot work try a
you can do it er the quest nother.
all by yourse ion this time
lf. , p erhaps next t
ime
1. Take 5 d
eep breaths
slowly after exhaling
each breath
.
2. Close you
r eyes and s
count backw lowly
ards from
from 10 to 1
.
3. Get a hug
from Momm
y.
4. Take a sh
ort break.
35
THE RAGE CYCLE
Adapted from Myles, B., & Southwick, J. Asperger Syndrome and Difficult Moments: Practical
Solutions for Tantrums, Rage and Meltdowns. Autism Asperger Publishing Company 37
THE RAGE CYCLE
Adapted from Myles, B., & Southwick, J. Asperger Syndrome and Difficult Moments: Practical
Solutions for Tantrums, Rage and Meltdowns. Autism Asperger Publishing Company 40
RELATIONSHIPS
Circle of Relationships
Passerby,
Stranger Classmate, Coworker,
Fellow Commuter
Neighbor
Acquaintance Classmate, Coworker
Close Neighbor
Friend Classmate, Coworker
Mom, Dad,
Family -->Significant Sibling, Other
other
Boy/Girlfriend,
Fiancé, Spouse
Develop a social
narrative
41
R E L A T I O N S H I P S
Talking About Sex - Myths of Sexuality - Peter Gerhardt
How?
Why?
People find out about sex anyways from classmates, mass media, books, etc.
43
R E L A T I O N S H I P S
Talking About Sex - Masturbation - Peter Gerhardt
45
SELF-ADVOCACY & DISCLOSURE
46
The road to successful
self- advocacy starts by
accurately assessing your
circumstances.
47
S E L F-A D V O C A C Y D E F I N E D
48
WHEN TO TELL…
The Twin Challenges of Disclosure and Self-Advocacy
The issue of
disclosure begins…
49
WHY TO TELL…
The Twin Challenges of Disclosure and Self-Advocacy
REALITY CHECK
Most people
are busy with living
Most people
are not in the mindset of
accommodating people with differences
50
S U C C E S S F U L T R A N S I T I O N
Self-Determination —> Disclosure —> Self-Advocacy
3. Non-judgementally
compare characteristic with
other role models.
51
Self-Initiated Individual Education Plan (Cont.)
Student
StudentÕs
Who must we get on board?
(as appropriate)
IEP Team
Special
Regular • Student
Education
Education
Teacher(s)
or Provider
Teacher(s) - Student’s Guide to the IEP
- Helping Students Develop Their IEP
A Person Who
Student
StudentÕs
www.nichcy.org
as
Can Interpret School System
Evaluation IEP
appropriate Representative
Results to their
TEAM • Parents
ability
Others with
Knowledge or Transition • Special Education Teacher
Special Services Agency
Expertise Represen-
about the tative(s) • Regular Education Teacher(s)
Child
Parents
• Administrators
A Guide to the Individualized Education Program.
Office of Special Education Programs. 16 June 2002. • Others
<http://www.ed.gov/offices/OSERS/OSEP/Products/IE
P_Guide/>
52
Self-Initiated Individual Education Plan
To my IEP Team,
Truly yours,
Joey
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Self-Initiated Individual Education Plan (Cont.)
C C
• Introducing the IEP • What to do before the IEP meeting
• Writing the IEP • Writing the IEP
Y Y
• Getting Ready for the IEP Meeting • Getting ready for the IEP meeting
• During the IEP Meeting • Participating in the IEP meeting
• After the Meeting • After the IEP meeting
www.nichcy.org
54
Self-Initiated Individual Education Plan (Cont.)
Accommodation Menu
Note: This form is not required by IDEA
Student: __Somebody___________ Date: ___10/28/07_____________
Teacher: __Anybody____________ IEP Manger: __Everybody_______
Effectiveness Effectiveness
Used? (1-5) Accommodation Used? (1-5) Accommodation
Placement Sensory
Preferential Lighting
√ 4 seating √ 2 Hat with visor
Small group Standing at desk
Assignments Other
Reduced paper/ Outline with
√ 5 pencil tasks √ 5 due dates for
Extended time assignments
Adapted from McGahee et al. (2001). Student-led IEPs: A guide for student involvement. Arlington, VA: Council for
Exceptional Children in Shore (Ed). (2004) Ask and tell: Self-advocacy and disclosure for people on the autism
55
spectrum. Shawnee Mission, KS: Autism Asperger Publishing Company. P. 91.
Telescoping Forward to the Future
MY ADULT LIFE
Student: _____________________ Date: _______________________
Employment
Goals Goals
Current Accommodations Current Accommodations
Future Accommodations Future Accommodations
Recreation and Leisure
Home/Independent Living
Community Involvement/Volunteer Work
Postsecondary Education/Training
Adapted from Shore (Ed). (2004). Ask and tell: Self-advocacy and disclosure for people on the autism spectrum.
Shawnee Mission, KS: Autism Asperger Publishing Company. P. 92.
56
CONTINUING EDUCATION
57
SOME STEPS FOR A SUCCESSFUL COLLEGE EXPERIENCE
A.S
Univ
So
O ci
rg al
an • Friends
iz - Parties
at - Appropriateness
Li io • Aides
vi n
ng - Carbon-based
Co - Silicon-based
ur • Dorm? • Home?
se
w - Single?
or
k • Part time? • Full time?
• Accommodations?
58
Looking For The Right College (Cont.)
Preparation Questions that need answering
• Documentation… • Where is the office of student
support?
- Appropriate A.S.
- What is needed to obtain
Univ
- Recent
accommodations?
- Suggestions for reasonable
- Are they friendly?
accommodation
- Do they know what AS is?
Issues to consider
- Knowledgeable?
• Is assistance needed with…
- Willing to learn?
- Academic Accommodations
- Independent Living Skills
59
M a k i n g C o l l e g e R i g h t (Cont.)
ACCOMMODATIONS WORKSHEET
Name: Any Student School: Any State College
Counselor: Unnamed Somebody Date: August 15, 2007
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AUTISM & SUC C ES S
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S U C C E S S W I T H A U T I S M
Some Examples…
Zack Kassiane
“a guck goo…” AAU tumbling state
champion; 3rd national
(Special Interest)
62
S U C C E S S W I T H A U T I S M
Some Examples…
Sarah
Teacher of and seller of Laura
beads
A study in synesthesia
(Special Interest)
63
S U C C E S S W I T H A U T I S M
Some Examples…
David Shawn
Finishing a master’s in 1st place ribbon in
meteorology State Science Fair
(Special Interest) (Special Interest)
64
SUCCESS ON THE AUTISM SPECTRUM
Some Examples…
Valerie Takamimori
Founder of school for Sumo Wrestler
www.youtube.com/watch?v=ajQWQrxn1hc
children with AS
(Personal Experiences) (Special Interest)
65
MARRIAGE FROM THE SPECTRUM
Definition
66
Thanks for your participation!
Stephen Shore
www.autismasperger.net
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