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 ¢


4 Highlight the challenges we have experienced in

implementing a Palliative Care (PC) Patient & Carer
Education Program
4 Share the benefits we have noted to date with the
implementation of the PC Patient & Carer Education
Program
 u
 

4 Œiterature review
4 Review of exiting palliative care patient and carer
education program
4 Qualitative and quantitative data collection and
analysis
4 Needs Analysis
4 Result Analysis
 Π

Rosenwax(2005) suggests 10 conditions potentially

needing palliative care

4Cancer 4 Motor Neurone Disease

4HIV AIDS 4 Renal failure
4Parkinson͛s disease 4 Alzheimer͛s disease
4Œiver Failure 4 Huntington͛s Disease
4Heart failure Disease
4Chronic obstructive pulmonary disease
 Π

4 Îwak (2007) study using Cargiving at End of life Program

4 Hudson (2008) psycho-educational group program
4 Hudson (2009) study Carer Group Education Program
focus on role of carer on PC, strategies for self care and
terminally ill
4 Harding (2002) short term group intervention focus on
information and support needs of carers
4 Harding (2004) short term group intervention focus on
psychological support / anxiety reduction, information
giving and enhancement of coping
 › 
›
 
4 Carer NSW Carer Support Groups (Cancer)
4 Cancer Council NSW Cancer Support Groups
4 MND Association Education / Support Groups
4 Alzheimer͛s Australia Education / Support Groups
4 Various Hospitals have Cancer Support Groups /
Education Sessions
4 Palliative Care Australia contacted but no list of
education for PC patient and carer
 è 

(Palliative Care Australia 2003)
Physical
ADVANCE
CARE Emotional
PŒANNING

END OF Spiritual
ŒIFE ISSUES Patients
& carers
BEREAVEME Emotional
NT

Psychological Social
 
è
ͻ Consultation (based on focus group discussions, semi
structure interviews & questionnaire analysis) with clients of
What services

ͻ Participants are (a) PC patient: patients of South-Western

Area Health PC Service
Who ͻ (b) Carers of PC patients

ͻ To gain first-hand and detailed understanding of experiences,

needs and priorities from PC patients and cares
Why

   Œ


›  






  Œ
 =    

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4 Planning Ahead 4 End of life issues
4 Crisis Management 4 Nutrition & Hydration
4 Emotional Management 4 Œegal issues
4 Symptom Management 4 Emotional Management
4 Nutrition
4 Energy Conservation
4 Social Activities &
Entertainment
4 Œegal issues |

  

 
    
¢
 
›
  
4 Reduce gaps in knowledge to enhance
Œiterature Palliative Care Control
review
4 Facilitate and accelerate
implementation of best available
knowledge
Patient 4 Optimise quality and access
needs Carer
needs 4 Improve the palliative care experience
for Australians
 è&
›
  '("(
)¢*u"+Stress and Relaxation (Oncology Clinical Psychologist)
)¢*u2
4 Advanced Care Planning (CMO)
4 Nursing Issues and End of Œife Issues (PC CNC)
)¢*u!+
4 Music Therapy (Music Therapist)
4 Energy Conservation (Occupational Therapist)
)¢*u,+Œook Good, Feel Better Workshop
)¢*u-: Œegal Issues (Solicitor)

 è

Participants were asked to evaluate the program

after participation by means of an evaluation
questionnaire. They could answer on a five-point
scale (strongly agree / agree / neutral / disagree
/strongly disagree ).
* 
 ¢   
 

4 A couple of patients followed up psychologist re

depression management and relaxation
4 Follow up by patients re: Advanced care planning
4 Group discussion re nursing issues and end of life
care
4 Œegal issues follow up by carers and patients
Π
EDUCATION

Dialogue with Patient /

Basic Intervention

Increasing timely access

to services

INTERVENE

FOŒŒOW UP
 =    


4 Communication
4 Œiaise with multidisciplinary teams oncology
4 Intercede as patient advocate
4 Make transparent the role of Palliative Care service
 Π
4 Was not associated with improved health status
4 Publicity of sessions : (Œimited interest from
community patients & carers)
4 Œimited capacity to cater for those from CAŒD
backgrounds due to lack of interpreters etc
4 Œimited evaluation due to lack of resources
4 Catering for patients & carers at different Palliative
Care stages
4 No Funding / Resource
 è )  
4 Increased satisfaction with services
4 Increase Access and Connection

4 To provide leadership to change the focus of

Palliative Care so that patients͛ and families͛ needs
are better served.
4 Future research is needed to evaluate the most
acceptable and effective ways of providing
information
 è   
4 Increased knowledge about palliative care
management
4 Increase Access and Connection
4 Greater inclusion of pts and carers from CAŒD
backgrounds

4 Improved study method

4 Accessing funding / resources
4 Publicity of sessions
 è 


uè(Director, Palliative Care Service, Braeside Hospital)

u.u/ (Allied Health Manager, Braeside Hospital)

u.0

 (CNC, Palliative Care Service, Braeside Hospital)

u.
0(General Manager, Hammondcare Health and
Hospital)