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Impact of thalassemia
on children quality of
life

Nusrat Bashir
University of health sciences Lahore
INTRODUCTION
 INTRODUCTION
• .
Role
Role of
of the
the Nurse
Nurse
Role
Role of
of the
the Nurse…cont.
Nurse…cont.
 Magnitude of the Problem

• .
 Aim
Aim of
of the
the Study
Study

The present study aims at:

1.
1...
 Subjects
Subjects and
and Methods:
Methods:

Methodology was portrayed into:

1. Technical design;
2. Operational design;
3. and statistical design.
 I- Technical Design:

Research setting:

• This study was conducted in:

• The Hematology Clinic and Oncology
Departments of Ain Shams Children’s
Hospital.
 Subjects:
• This study covered the following:
• 90 children suffered from any type of cancer
(leukaemia, brain tumor and Hodgkin disease).
Their age ranged from 5 to 15 years old.
• They were either newly diagnosis or coming for
follow up.
• Caregivers that were accompanying their
children during diagnosis or follow up.
• Those caregivers that gave care to their children
either parents, siblings, grandma or grandpa.
 Tools of Data Collection:
• A Pre-designed Questionnaire Sheet
K (pre-post format):
N • To assess caregivers’ knowledge for
O
W caring of their children with cancer.
L • It included questions about:
E • Meaning of Cancer,
D
G
• Causes,
E • Signs and Symptoms,
• Methods of Treatment, its Side Effects,
• and Care of Cancer.
 Tools of Data Collection:

• An Observation Sheet:
P • It was used to assess the caregivers’
R practices before and after program
A implementation. Including:
C
• Care of stomatitis,
T
I • Nausea and vomiting,
C • Control of bleeding,
E
• Care during fever, and
• Avoidance of infection.
 Tools of Data Collection:
• Attitude Assessment Sheet:
A
• This sheet was used for appraisal of
T caregivers’ attitude, it included:
T • Positive attitude: such as caregivers’
I believes and religious in acceptance of
T cancer prognosis,
U
• and understanding the importance of
D
E
providing adequate care.
• Negative attitude: such as caregivers’
anxious and worry,
• or despair about cancer and its sequels.
 II- Operational Design:
RE-ASSESSMENT

Preparatory phase

Evaluation
Evaluation
Data collection
 Preparatory Phase

• Preparatory phase:
• Review of the past, and current related
literature covering various aspects of the
problem was done using available books,
articles, periodicals and magazines to get
acquired with the research problem,
develop the study tools and the content of
the program.
 II- Operational Design:
RE-ASSESSMENT

Preparatory phase

Evaluation
Evaluation
Data collection
 Data Collection Procedure

• All caregivers were interviewed individually

after a simple conversation started by
introducing the researchers themselves to the
participants, followed by mentioning the
purpose of the study.
 Data collection procedure

• .
 Data Collection Procedure..cont.

OR
 II- Operational Design:
RE-ASSESSMENT

Preparatory phase

Evaluation
Evaluation
Data
collection
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