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ABA was established in 2003 through the joint efforts of families with sufferer and professionals. On 21 September 2003, for the occasion of the World Alzheimers Day, we organized our first pressconference. Our main topic for dispute was Why medicines for Alzheimer disease are not reimbursed in Bulgaria. We mark this date every year since then. ABA is a member of
In 2009 ABA created Information and Consulting Center in Sofia (Bulgarian capital) social worker, psychologist and legal adviser help families in their daily cares for sufferers In 2011 ABA opened a Daily Center in Sofia under (national) operational program Human Resource Development
When the project ended the center had to be closed due to lack of sustainable funding by the Government
Through 2009-10 ABA organized a total of 12 thematic workshops in different Bulgarian cities, where family members of sufferers met and discussed their problems with regional authorities and professionals. The Ombudsman of Bulgaria organised a press-conference on the problems of families with sufferers from dementia and urged the government to take urgent and adequate action. ABA continueously informed the mass media about dementia related problems.
Association Alzheimer Bulgaria 7
Future goals
ABA wants to ensure adequate social protection for the affected persons and their families, by: launching and participating in the development of a national action plan, which is backed by sufficient funding; coordinating multidisciplinary discussion of dementia problems (Ministry of Health, Ministry of Labor and Social Policy, municipal authorities); extending and making permanent the presence of sufferers relatives in the TV, the radio, the printed media, and the internet.
Brussels, May 2012 Association Alzheimer Bulgaria 8
Nothing can give us back our lives, but everybody has the right to a dignified life, after all.
Irina Ilieva Executive Secretary Alzheimer Bulgaria phone: +359 2 470 6448 e-mail: office@alzheimer-bg.org www.alzheimer-bg.org
Brussels, May 2012 Association Alzheimer Bulgaria 10
BACKUP
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Doctors prescribe drugs for me to buy, but there is a lack of money and I cannot buy them. I need the medicine but I cannot take it. My sons had to take bank credits to buy medicines, pampers and other sanitary materials. We have spent over 15 thousand BGN (7,670 ) in 4 years.
The average pension in Bulgaria: 148 * The average monthly gross salary: 372 *
In 2010 (and ongoing) ABA systematically collected data on the costs of families related to the daily care for an ill family member. ABA took active role in the elaboration of Strategy for Social Services in Sofia Municipality which envisages the development of social services for dementia sufferers (but lacks funding). ABA held 8 round tables in different towns with local authorities and families with sufferers.
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